Medicaid Home Care (HCBS) in 2025

Authors: Maiss Mohamed, Alice Burns, and Molly O'Malley Watts
Published: Jan 5, 2026

Key Questions

Many older adults and people with disabilities require assistance with self-care such as bathing, dressing, and eating. Help with such services is known as “long-term care” and may be provided in institutional settings such as nursing facilities or in people’s homes and the community, including assisted living facilities. Four-in-ten adults incorrectly believe that Medicare is the primary source of coverage for low-income people who need nursing or home care, but Medicaid is the primary payer—covering nearly two-thirds of all home care spending in the United States in 2023.

The 2025 reconciliation law is estimated to reduce federal Medicaid spending by $911 billion (roughly 14%) over a decade and may have broad implications for home care, including for the workforce, support for family caregivers, and states’ coverage of services. Over half of Medicaid spending finances care for people ages 65 and older and those with disabilities, the enrollees most likely to use home care and related services, and reductions of this magnitude will leave states with difficult choices to raise new revenues or reduce Medicaid spending. The reconciliation law also established a new type of 1915(c) home care waiver for people who do not need an institutional level of care. Take-up of the new waivers is expected to be low given the cuts to federal Medicaid spending and requirements for states to demonstrate that new waivers will not increase the average amount of time that people wait for existing waiver services. This issue brief provides an overview of what Medicaid home care (also known as “home- and community-based services” or HCBS) is, who is covered, and what services were available in 2025. Over 5 million people receive Medicaid covered home care services annually.

This brief is one of several describing data from the 23rd KFF survey of officials administering Medicaid home care programs in all 50 states and the District of Columbia (hereafter referred to as a state), which states completed between April and July 2025. Other issue briefs from the survey describe the number of people on waiting lists for home care, how states manage home care spending, how home care programs support family caregivers, and payment rates for home care providers. The survey was sent to each state official responsible for overseeing home care benefits (including home health, personal care, and waiver services for specific populations such as people with physical disabilities). All states except Florida responded to the 2025 survey, but response rates for certain questions were lower. Where possible, KFF supplemented survey data with previously reported or publicly available data to provide information for the states that did not respond. Survey findings are reported by state and waiver target population, although states often offer multiple waivers for a given target population. States generally completed the survey prior to enactment of the reconciliation law. Key takeaways include:

  • Nursing facility care is a required Medicaid benefit, but states can choose whether to provide most home care services. A key component of home care is personal care, which helps people who need assistance with self-care (such as bathing and dressing) and household activities (such as taking medications and preparing meals).
  • Medicaid home care can be offered through either the Medicaid state plan or as part of a specialized waiver. All states offer Medicaid home care through waivers, most commonly 1915(c) waivers (47 states).
  • Home care is also offered through 1115 waivers (15 states), personal care offered as a state plan benefit (33 states), or the Community First Choice option, which is also a state plan benefit (10 states, Figure 1).
  • Most states provide Medicaid home care through waivers that offer benefits specifically targeted to people with intellectual or developmental disabilities (48) and people ages 65 and older or who have physical disabilities (46). For such waivers, most states offer multiple waivers for each population: Among states with intellectual or developmental disability waivers, only 16 offer one program, while 18 offer three or more; and among states with waivers serving people ages 65 and older or who have physical disabilities, 24 offer only one program and 10 offer three or more.
  • Waivers’ coverage of different home care services, such as day services, supported employment, and home-based services, vary by the target populations they serve.
All States Offer Medicaid Home Care Through Optional Waiver and State Plan Programs (Bar Chart)

What programs do states use to provide Medicaid home care?

Unlike institutional long-term care, nearly all home care is optional for states to provide under Medicaid. States are required to offer cover home health—which consists of part-time nursing services; home health aide services; and medical supplies, equipment, and appliances suitable for use in the home—but all other home care services are provided at the discretion of the states. States use various federal legal “authorities,” also known as programs, to offer home care, which are generally categorized as being part of the Medicaid state plan or part of a waiver. If services are provided through a state plan, they must be offered to all eligible individuals. In contrast, services provided under waivers, such as 1115s or 1915(c)s, may be restricted to specific groups based on geographic region, income, or type of disability. Waivers may include a wider range of service types than can be provided under state plans, but states may limit the number of people receiving waiver services. When the number of people seeking services exceeds the number of waiver slots available, states may use waiting lists to manage participation in the waiver.

All states have at least one home care program and many states have multiple programs. Home care is most frequently offered through 1915(c) waivers (47 states) and the personal care state plan benefit (33 states), and less frequently offered through 1115 waivers (15 states) or the Community First Choice option (10 states, Figure 1). KFF estimates that 5.1 million people used Medicaid home care in 2023 compared with only 1.4 million people who used institutional long-term care.

All states offer people assistance with self-care and household activities under the personal care benefit, but they use different programs to do so. The primary home care benefit is personal care, which provides people with assistance with the activities of daily living (such as eating and dressing) and the instrumental activities of daily living (such as preparing meals and managing medication). States most commonly cover personal care through waivers (48 states), followed by the state plan (33 states).

How are people eligible for Medicaid home care?

Most people who are eligible for Medicaid home care qualify on the basis of having a disability or being ages 65 and older. Medicaid eligibility pathways in which eligibility is based on old age or disability are known as “non-MAGI” pathways because they do not use the Modified Adjusted Gross Income (MAGI) financial methodology that applies to children, pregnant individuals, parents, and other non-elderly adults with low incomes. In addition to considering income and age or disability status, non-MAGI eligibility pathways usually require people to demonstrate that they have limited savings and other financial resources (e.g., assets). Because nearly all non-MAGI pathways are optional, eligibility levels vary substantially across states.

Most states allow people with somewhat higher incomes to qualify for Medicaid home care, but income is capped at 300% of the supplemental security income limit ($2,901 per month in 2025) and assets are usually limited to $2,000 per person. Medicaid enrollees who use long-term care must also meet requirements related to their functional needs which are generally measured in terms of the ability to perform activities of daily living such as eating and bathing. Over half of people who use Medicaid home care are also enrolled in Medicare; such people are also known as dual-eligible individuals

In 2025, states operated over 300 different programs for Medicaid home care, many of which targeted a specific population. Most programs (259) were operated through 1915(c) waivers with 15 operated through 1115 waivers. The most common waiver programs target people with intellectual or developmental disabilities (48 states) and people who are ages 65 and older or have physical disabilities (46 states). States are likely to offer multiple waiver programs for the most common target populations, but states with less common waivers, such as those serving people with traumatic brain or spinal cord injuries or mental health conditions, typically only offer one program per target population.

Each year, some states’ waiver programs change, but in general, the trend has been towards offering more waivers. In 2025, only one state, Oregon, had new waivers and no states eliminated waivers. In Oregon, there is a new 1115 waiver for people who are ages 65 and older or have physical disabilities that provides in-home support services and support for family caregivers and a new 1915(c) waiver that allows parents of minor children with disabilities to be paid for providing attendant care to their child.

States Vary in the Number of Waiver Programs Offered for Different Target Populations (Stacked Bars)

What services does Medicaid home care cover?

Besides personal care, Medicaid home care covers an array of services to help people with the activities of daily living and the instrumental activities of daily living. KFF asked states about what services they provide through Medicaid home care programs using the Centers for Medicare and Medicaid Services’ list of services, which are categorized in a comprehensive taxonomy. The taxonomy was developed to provide common language for describing home- and community-based services across waivers and state plans. Those services vary widely, including adult day care, supported employment, round-the-clock care, services to support unpaid family or friends who are caregivers, home-delivered meals, and non-medical transportation (Table 1).

All responding states (50) cover supported employment, day services, home-based services, and equipment, technology, and modifications in any home care program (Appendix Table 3). States often also offer other additional services for specific populations that are uniquely tailored to the needs of waiver recipients. Examples of such services reported in the 2025 survey include:

  • Illness support, group counseling, and bereavement counseling in a waiver for children who are medically frail or technology dependent (Colorado);
  • Discovery and career planning, additional residential supports, and community navigators in a waiver for people with intellectual or developmental disabilities (Hawaii);
  • Dental services, permanent supportive housing, and prevocational/community career planning in a waiver for people with intellectual or developmental disabilities (Louisiana);
  • Other speech, hearing, language, occupational, and physical therapies in a waiver for people who are ages 65 and older or have physical disabilities (Texas).

Among the categories defined by the Centers for Medicare & Medicaid Services, the least-frequently covered service was rent and food expenses for a live-in caregiver. For the most common services, there is little change in the number of states offering each type of service in a given year. (The numbers reported for most services are higher in 2025 but in many cases, that reflects a higher state response rate in 2025 than in 2024.)

CMS Definitions of Medicaid Home Care Services (Table)

States use waivers that target specific populations to offer tailored benefits, and covered services differ among different types of waivers (Figure 3, Appendix Table 4). Some services, such as equipment, technology and modifications, home-based services, and day services, are covered by most states and in most waiver programs. However, other services are much more targeted to specific populations. Comparing services among the most commonly-offered waivers (those serving people with intellectual or developmental disabilities and people who are ages 65 and older or have physical disabilities), shows some services are widely covered by one type of waiver but not the other. For example, 47 states cover supported employment for people with intellectual or developmental disabilities, but only 15 cover the service for people who are ages 65 and older or have physical disabilities, a population less likely to be working. Alternatively, home-delivered meals are covered by 41 states under waivers serving people who are ages 65 and older or have physical disabilities, but only under 10 states’ waivers serving people with intellectual or developmental disabilities. By enabling states to cover, at times, different services per target population, waivers allow states to customize services to the needs of the specific populations they serve.

Within waivers, states may change the benefit offerings from year to year, highlighting the flexibility that home care waivers offer to states in managing program benefits and spending. Focusing on the most common waivers and benefits, some notable changes between 2024 and 2025 include the following. (Due to variation in the number of states responding to KFF’s survey and changes in the number of waivers offered between 2024 and 2025, comparing the number of states or waivers offering each type of service could be misleading. However, looking at changes in covered services within a specific waiver can illuminate the flexibility available to states.)

  • Oregon began offering coverage of equipment, technology, and modifications for waivers serving people who are ages 65 and older or have physical disabilities, and Idaho now covers case management services for waivers serving the same population.
  • D.C. and South Dakota started offering coverage of non-medical transportation for waivers serving people with intellectual or developmental disabilities, but Illinois and Kentucky no longer cover this service for those waivers.
  • Michigan, Nevada, and Washington began covering day services for waivers serving people with intellectual or developmental disabilities, and Idaho started offering this benefit for waivers serving people who are ages 65 and older or have physical disabilities.
States' Coverage of Medicaid Home Care Services Vary by Target Population (Grouped column chart)

How do states use managed care to provide home care?

All but 11 states use managed care to provide at least some home care (Figure 4). In managed care, states pay managed care plans a set fee—often called a capitation payment—for each person enrolled and the managed care plans are responsible for providing all services to enrollees. Use of managed care to provide home care has been growing over time, with states using managed care to make their Medicaid spending more predictable and to help coordinate the services enrollees use.

All but 11 States Provide Some Medicaid Home Care Through Managed Care Plans (Choropleth map)

Managed care is more commonly used for home health benefits provided through the state plan or 1115 waivers than for 1915(c) waivers (Figure 5, Appendix Table 5). Among the 15 states with 1115 waivers, 10 use managed care plans to provide at least some home care; and over two-thirds of states use managed care plans to provide at least some home health through the state plan. Fewer than half of states use managed care plans to provide some personal care through the state plan. For 1915(c) waivers, over half of states (26) use managed care plans, 4 more states than in 2024, but managed care was much less common for waivers serving people with intellectual or developmental disabilities—of the 47 out of 51 responding states with such waivers, only 8 provided any of the benefits through managed care.

All States Provide Optional Medicaid Home Care, Many Using Managed Care (Stacked Bars)

This work was supported in part by Arnold Ventures. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

Appendix Tables

States Offering Medicaid Home Care Through Various Federal Programs

States Offering Medicaid Home Care Through Various Federal Programs (Table)

States Offer Medicaid Home Care for Several Target Populations

States Offer Medicaid Home Care for Several Target Populations (Table)

States Reporting Coverage of Each Medicaid Home Care Service Under Any Program

States Reporting Coverage of Each Medicaid Home Care Service Under Any Program (Table)

States’ Coverage of Medicaid Home Care Services Vary by Target Population

States' Coverage of Medicaid Home Care Services Vary by Target Population (Table)

All States Provide Optional Medicaid Home Care, Many Using Managed Care

All States Provide Optional Medicaid Home Care, Many Using Managed Care (Table)

Payment Rates for Medicaid Home Care Ahead of the 2025 Reconciliation Law

Authors: Alice Burns, Maiss Mohamed, and Molly O'Malley Watts
Published: Jan 5, 2026

Key Questions

Long-standing workforce challenges in Medicaid home care (also known as home- and community-based services or HCBS) impact care for the over 5 million people who use these services. Shortages and high turnover rates among the direct care workforce reflect demanding work and low wages, particularly among home care workers (who are direct care workers that provide HCBS). This issue brief describes states’ ongoing efforts to respond to shortages of home care workers and how they pay these workers, finding that increased payment rates are a key component of states’ efforts to address workforce shortages.

Such shortages could increase as states will face tough choices about how to absorb Medicaid cuts stemming from the 2025 reconciliation law, which is estimated to reduce federal Medicaid spending by $911 billion over the next decade. When faced with fiscal pressures in the past, states have responded with restrictions on home care, and as a result of the reconciliation law, states may again face significant pressures to cut Medicaid payment rates, offer fewer covered benefits, or restrict eligibility. The Medicaid cuts could also affect access to health coverage among home care workers because over one-in-three workers in home care settings are enrolled in Medicaid. Reduced access to health coverage among the workforce could exacerbate other challenges.

Workforce challenges may also worsen in future years because of changes in immigration policy. Nearly one-in-three home care workers are immigrants, and the Trump Administration’s intensified immigration enforcement and restrictive policies are deepening anxiety and fear among immigrants of all statuses. KFF survey data finds that 13% of immigrants have avoided going to work since January 2025 because of concerns about drawing attention to someone’s immigration status, a number which rises to 40% among people who are likely to be undocumented immigrants. Fewer immigrants overall and potentially lower rates of employment among immigrants could reduce the size of the home care workforce. With more limited immigration, there will be fewer workers overall to care for an aging population.

Amidst this evolving landscape, this issue brief describes Medicaid payment rates for home care and other workforce supports that are in place in 2025, before the majority of the 2025 reconciliation law provisions start taking effect. This issue brief is one of several reporting the data from the 23rd KFF survey of officials administering Medicaid home care programs in all 50 states and the District of Columbia (hereafter referred to as a state), which states completed between April and July 2025. The survey was sent to each state official responsible for overseeing home care benefits (including home health, personal care, and waiver services for specific populations such as people with physical disabilities). All states except Florida responded to the 2025 survey, but response rates for certain questions were lower. States generally completed the survey prior to enactment of the 2025 reconciliation law. Survey findings are reported by state and waiver target population, although states often offer multiple waivers for a given target population. Key takeaways include:

  • All responding states reported taking actions to address workforce shortages, with most states raising payment rates (Figure 1).
  • All states reported shortages of home care workers, most frequently among direct support professionals, nursing staff, personal care attendants, and case managers.
  • Most (41) states reported permanent closures of home care providers within the last year.
  • Among the 34 states that reported time-based payment rates for personal care providers, more than half pay less than $20 per hour.
The bar chart compares the number of states reporting each strategy to increase the number of workers in home and community-based services programs. Increasing provider payment rates is states' most common strategy to increase the supply of these workers, followed by offering education and training.

How are States Addressing the Workforce Challenges in Home Care?

All responding states reported workforce shortages in 2025, with the most common shortages being among direct support professionals (48 states), followed by nursing staff (47 states) and personal care attendants (46 states) (Figure 2, Appendix Table 2). States were asked if they had shortages of each type of provider but were not provided with a definition of “shortage.” Most states also reported shortages in case managers (44 states), home health aides (41 states), certified nurse aides (39 states), community-based mental health providers (38 states), and occupational, physical, and speech therapy providers (30 states). In some cases, states may not have reported a shortage of a particular type of provider because that type of service is not offered through their home care program.

All Responding States Reported Shortages of Home Care Workers in 2025 (Bar Chart)

All states reported shortages for more than one type of provider, and 43 states reported shortages among five or more provider types. Such shortages may reflect low compensation coupled with demanding working conditions. In the spring of 2024, home care providers participating in KFF focus groups reported that their jobs had high physical demands and mental demands that were often “overwhelming.” The groups described their wages as low, particularly given the demands of their jobs; and how staffing shortages made their jobs harder because they may not know if they would be able to leave work at the end of their shift. In survey responses, states attributed shortages to low reimbursement rates, lack of qualified providers, and high turnover rates.

Within the last year, 41 states reported permanent closures of home care providers, which were most common among adult day health programs (28 states), followed by group homes (23 states), assisted living facilities, and the enrollee’s home (22 states each) (Figure 3, Appendix Table 3). States were asked if there were any permanent closures of providers that offer services for Medicaid enrollees based on the location in which the providers deliver care. For a setting such as an assisted living facility or group home, a closure could reflect either the closure of an assisted living facility or the closure of a home care agency that sent workers into facilities and group homes. States were not asked to provide a reason for the closures. Some states reported closures of supported employment providers (12 states), home health agencies (11 states), and community mental health providers (5 states). Most states reported closures among more than one type of provider: 35 states reported closures among two or more provider types, and 26 states reported closures among three or more provider types.

41 States Reported Permanent Closures of Medicaid Home Care Providers in 2025 (Bar Chart)

All responding states reported taking actions to address provider shortages, with 48 states increasing payment rates, 38 states developing or expanding worker education and training programs, and 24 states offering incentive payments to recruit or retain workers (Figure 1, Appendix Table 1). Less common initiatives included establishing or raising the state minimum wage (20 states), offering worker retention bonuses (20 states), and offering paid sick leave for workers (18 states). States also reported other types of initiatives to strengthen the workforce, including initiatives allowing people to receive paid care from family members. For example, Oregon created a new 1915(c) waiver that allows parents of minor children to be paid for providing attendant care to their child. States’ actions to address provider shortages in 2025 were similar to those in 2024.

All but 11 states use managed care to provide at least some home care, and in over half of the states with managed care, fee-for-service payment rates impact the payment rates that managed care plans pay home care providers. Out of the 39 states that use managed care to provide at least some home care, 20 states reported that the fee-for-service payment rates represent the minimum amount that plans must pay providers, 2 states, Michigan and Wisconsin, reported that the rate represents the maximum payment rate for managed care plans, 11 states reported that the fee-for-service rates do not affect payments by private plans, and 6 states responded that the answer was unknown or did not respond to the question.

How Much do States Pay for Medicaid Home Care?

KFF asked states to report their average hourly rate paid to two types of home care provider agencies (personal care agencies and home health agencies) and three types of specific home care providers (personal care providers, home health aides, and registered nurses), but many states were unable to report all rates (Appendix Table 4). The number of states that responded to the survey but did not provide hourly payment rates or reported that payment rates were unknown was 4 for personal care agencies and 32 for home health agencies. Many states also did not provide payment rates for specific provider types: For registered nurses and home health aides, more than half of states did not provide hourly payment rate information or reported that payment rates were unknown.

Starting July 2026, states are required to report detailed payment rates for personal care, home health, and other services, per the provisions of the Biden Administration final Access rule (see Box 1). In addition to reporting payment rates for certain home care services, starting in 2030, states must demonstrate that at least 80% of the payments went to compensation for providers, also described as “direct care workers.” Meeting that requirement will require states to know both agency and provider payment rates. Among the states that were able to report payment rates, only 15 could report payment rates for personal care agencies, home health agencies, personal care providers, and home health aides, all of which would be required under the rule. Those 15 states include states that reported a mix of hourly and non-hourly rates, which makes comparisons between provider and agency rates more complicated. These challenges highlight the difficulties states face as they implement the requirements in the new rule, which will take effect in July 2026 (Box 1).

Box 1: Biden Administration Final Access Rule’s Provisions on Home Care

On May 10, 2024, the Biden Administration released a final rule aimed at helping to ensure access to Medicaid services, which has several notable provisions aimed at increasing transparency and improving access to Medicaid home care, increasing home care payment rates, and addressing home care workforce challenges. Although the 2025 reconciliation law delayed other Medicaid rules until 2034, it did not address the final rule on access to Medicaid services.

The rule cites workforce shortages as a major contributor to home care access barriers among Medicaid enrollees. To address those access barriers, the rule requires states to implement the following requirements. Some of the rules take effect as early as 2026, which means guidance to states about how to implement the requirements could emerge soon.

• Starting July 2026, states must report state hourly payment rates for personal care, homemaker services, home health aide services, and habilitation and publish that information on the state website. If states rates vary across provider types, geographies, or other factors, the states must report each of those rates.

• For each type of payment rate, the disclosures must also include the number of Medicaid paid claims and the number of Medicaid enrollees who received the service within the calendar year.

• States must establish an interested parties advisory group (IPAG) comprised of direct care workers, Medicaid enrollees and their representatives, and other interested parties. The IPAG will meet at least every two years to advise and consult on the sufficiency of current and proposed payment rates for personal care, homemaker services, home health aide services, and habilitation.

• Starting July 2030, states must ensure that at least 80% of payments to Medicaid providers for designated home care go directly to compensation for direct care workers. Designated home care include personal care, homemaker services, home health aide services, and habilitation. States may adopt separate standards for small providers or exempt small providers that meet reasonable criteria.

Beyond payment rates, the Access rule includes other requirements aimed at increasing access to home care. Starting July 2027, states will be required to report the number of people on waiting lists for services and the average amount of time from when homemaker services, home health aide services, or personal care services are initially approved to when services begin and the percentage of authorized hours that are provided. The proposed rule also includes provisions that would strengthen requirements around person-centered planning and needs assessment, create new requirements around incident management, establish requirements for people to file grievances if they are receiving home care from the state Medicaid program, and require states to report on nationally-standardized quality measures.

The home care payment-related requirements are one component of a broader emphasis on addressing Medicaid payment rates. The Access rule also requires states to report all fee-for-service Medicaid payment rates on state websites, and to compare various service-specific rates to those of Medicare. A companion rule on Medicaid managed care requires states to submit an annual payment analysis comparing managed care plans’ payment rates to Medicare payment rates for selected services.

States reported many reasons why it was difficult to report payment rates, including the following.

  • Some states reported that services were bundled together in various ways and therefore, the payment rates were not distinguishable.
  • Among states with managed care, some states responded that they did not know the payment rates for agencies because the services were paid for by managed care plans and they did not have access to those payment rates.
  • Other states responded that they knew the payment rates for agencies but not what the agencies paid their home care workers. Multiple states reported that they do not “dictate” what agencies pay to providers or that individual providers negotiate their own payment rates with the agencies.

In addition to having difficulty reporting payment rates, many states reported different payment rates for personal care across different waivers, and the waiver payment rates often differ from the payment rates for personal care provided through the state plan. When states reported multiple payment rates for personal care, KFF used the median of those payment rates in the analysis.

The payment rates to home care providers show considerable variation and are somewhat higher than those reported by other organizations on account of differences in reporting and provider categorization (Figure 4). KFF’s survey estimates that median payment rates to providers are $19 per hour for personal care providers, $41 for home health aides, and $70 for registered nurses. It is difficult to compare those numbers to other sources of data for the following reasons.

  • Other organizations group classes of providers together differently. PHI reports that in 2024, the median rate for home care workers was $17 per hour and $18 per hour for residential care aides. The Bureau of Labor Statistics reports $17 per hour for home health and personal care aides in 2024.
  • Other organizations include payment rates for workers regardless of the source of payment whereas KFF rates only reflect the Medicaid rates. Medicaid often covers more intensive personal care services than other payers, which may contribute to the higher rates.

Payment rates to home health agencies are generally larger than those to personal care agencies, but there is considerable variation in both (Figure 4). Among states reporting hourly rates, the rates for home health agencies range from $25 to $159 whereas those for personal care agencies range from $14 to $44. Those states reported that the median hourly payment to home health agencies was $51 and $26 for personal care agencies. Between 2024 and 2025, the median payment rates for personal care agencies and most other provider types increased marginally.

There is Considerable Variation in Payment Rates for Medicaid Home Care, Across States and Provider Types (Dot Plot)

Among states able to report any payment rate data, payments for personal care workers range from below $15 to over $30 per hour (Figure 5, Appendix Table 4). Rates for home health aides are somewhat higher than those of personal care workers, reflecting the additional training requirements for such workers. Among the states with payment rates for home health aides in the highest category, some states reported that the rates were per visit or per day (which is noted in Appendix Table 4). There were other states with particularly high payment rates that did not report providing rates per visit or per day, but the rates may still reflect a non-hourly payment basis.

Payment Rates for Home Care Vary Across States and Type of Provider (Choropleth map)

Appendix Tables

States’ Use of Strategies to Increase the Number of Medicaid Home Care Workers in 2025

States' Use of Strategies to Increase the Number of Medicaid Home Care Workers in 2025 (Table)

States’ Responses to Whether They Were Experiencing Workforce Shortages by Type of Worker in 2025

States' Responses to Whether They Were Experiencing Workforce Shortages by Type of Worker in 2025 (Table)

States Reporting Permanent Closures of Home Care Providers in 2025, by the Location in Which Services are Offered

States Reporting Permanent Closures of Home Care Providers in 2025, by the Location in Which Services are Offered (Table)

States’ Hourly Payment Rates for Home Care Agencies and Workers in 2025

States' Hourly Payment Rates for Home Care Agencies and Workers in 2025 (Table)

Policy Changes Bring Renewed Focus on High-Deductible Health Plans 

Published: Jan 5, 2026

The expiration of the Affordable Care Act’s enhanced premium tax credits, along with the passage of the budget reconciliation law, implementation of new Marketplace regulations, and other administrative changes, could bring significant changes to ACA Marketplace enrollment and affordability for the 2026 plan year and beyond. Anticipated increases in what enrollees pay for premiums and new standards for health savings accounts (HSAs) could lead some consumers to consider plan options with lower premiums in exchange for higher deductibles, such as catastrophic or bronze plans. This issue brief examines key features of bronze and catastrophic plans, recent policy changes, coverage and costs, and the complicated choices for consumers.

What are some key features of Marketplace bronze and catastrophic plans?

Affordable Care Act (ACA) qualified health plans (QHPs) are categorized into four “metal levels” based on the overall amount of cost sharing they require: bronze, silver, gold, and platinum, plus catastrophic plans, which are a separate tier of QHPs. Bronze and catastrophic plans offered through the Marketplaces must cover essential health benefits, limit the amount of annual cost sharing for covered benefits ($10,600 for an individual or $21,200 for a family in 2026), cover certain preventive services without cost sharing, and have other ACA-required consumer protections.

There are several notable differences between the characteristics of bronze and catastrophic plans (Table 1). Bronze plans usually have the lowest premiums of all metal levels, but the highest deductibles. Catastrophic plans often, but not always, have even lower premiums than bronze plans, but a higher level of cost sharing. In 2026, bronze plans have an average deductible of $7,476, while catastrophic plans have deductibles equal to the out-of-pocket maximum allowed under the ACA ($10,600 for an individual or $21,200 for a family in 2026).

Both bronze and catastrophic plans can be purchased on or off the Marketplaces, but premium tax credits are only available for metal level plans that are sold on the Marketplace, meaning they cannot be applied to any plans sold off the Marketplace, nor to catastrophic plans. (Cost-sharing reductions— which lower out-of-pocket costs for enrollees with income between 100% and 250% of the federal poverty level (FPL)—are only available for silver plans on the Marketplace.)

Actuarial value — the expected share of health care expenses a plan covers for a standard population — also differs between bronze and catastrophic plans. Bronze plans are currently required to have an actuarial value (AV) between 58% and 62%, though the AV for expanded bronze plans can be as high as 65%. (Regulations finalized in June 2025 would permit an AV as low as 56% for standard bronze plans, but a court ruling has temporarily blocked that provision (and others) from taking effect.) Catastrophic plans, on the other hand, are not required to meet minimum actuarial value targets, except that they must have a lower AV than bronze plans. However, due to the permitted range of bronze actuarial values, the “generosity” of these two types of plans can be similar.

Unlike metal level plans, which can be sold to anyone eligible for Marketplace coverage, catastrophic plans can only be sold to individuals under age 30 or individuals over 30 who qualify for a “hardship” or “affordability” exemption. Consumers may be eligible for the affordability exemption if their lowest cost coverage option available through a Marketplace or employer would cost more than 8.05% of their household income in 2026. A person may qualify for a hardship exemption if they experience one of several examples of financial or domestic circumstances, such as an unexpected natural or human-caused disaster, domestic violence, or bankruptcy.

Comparison of General Features of Bronze and Catastrophic ACA Qualified Health Plans (Table)

What recent changes have been made to catastrophic plans and bronze plans?

In September 2025, the Trump administration issued guidance expanding the catastrophic plan hardship exemption to include consumers who are not eligible for premium tax credits or cost-sharing reductions due to their income, chiefly those with incomes below 100% FPL or above 250% FPL, beginning with the 2026 plan year. This change currently applies to individuals in all states except California, Connecticut, Maryland, and the District of Columbia.

Even though those below 100% FPL are ineligible for premium tax credits, they are generally eligible for Medicaid in states that have expanded Medicaid. With varied eligibility criteria in non-expansion states, this population may fall in the coverage gap. While they could theoretically buy a catastrophic plan, they would be unlikely to be able to afford the premium or the very high deductibles.

The administration has begun streamlining the application process for this hardship exemption through HealthCare.gov and its paper applications to make it easier for consumers to enroll in a catastrophic plan. Also, HealthCare.gov now automatically displays catastrophic plans (where available) for consumers age 30 and older if they enter an income above 400% FPL or below 100% FPL. These plans are not currently displayed for consumers with incomes between 250% FPL and 400% FPL.

In addition to the hardship exemption changes, the 2025 budget reconciliation law expanded the availability of health savings accounts (HSAs) on the Marketplace. Previously, only plans that met IRS rules related to minimum annual deductible amounts, out-of-pocket maximums, and other design features were eligible to be paired with an HSA. No catastrophic plans were HSA-eligible. Starting on January 1, 2026, all individual market bronze and catastrophic plans are considered HDHPs and eligible to be paired with an HSA even if the plan does not meet the minimum annual deductible requirement ($1,700 for individual coverage and $3,400 for family coverage in 2026) or the HSA out-of-pocket (OOP) maximum requirement ($8,500 for self-only coverage and $17,000 for family coverage in 2026) for an HDHP. New IRS guidance states that this change applies to all bronze and catastrophic plans, even those not purchased through a Marketplace (“off-exchange”). Other changes to HSA-eligible HDHPs include allowing pre-deductible coverage of telehealth and other remote care services, and allowing individuals covered by certain direct primary care arrangements to be eligible for an HSA.

Separately, congressional Republicans have recently proposed alternatives to continuing the enhanced premium tax credits that would further expand access to HSAs. While precise details vary, they generally propose directing funds to HSAs for eligible consumers enrolled in a catastrophic or bronze Marketplace plan to pay for out-of-pocket expenses. President Trump has also signaled his support for replacing tax credits with direct payments to consumers. None of these proposals has advanced.

What is the availability of and enrollment in bronze and catastrophic Marketplace plans?

An insurer selling QHPs on the Marketplace must offer at least one silver and one gold plan in all the areas where the insurer sells Marketplace coverage. Although Marketplace insurers in most states are not required to offer a bronze plan in all areas, only one county in the US does not have a bronze plan for sale for 2026; the availability of catastrophic plans is more limited. Where catastrophic plans are available, there tend to be fewer plan choices than there are for bronze plans.

In 2026, catastrophic plans are offered in 36 states and the District of Columbia—down from 40 states and the District of Columbia in 2025. The share of Marketplace enrollees with access to catastrophic plans fell from 87% to 76% over the same period.

Marketplace Enrollees Have Few Options for Issuers That Offer Catastrophic Plans in Many States (Choropleth map)

In 2025 (without the new hardship exemption extension in effect), less than 1% of Marketplace enrollees chose a catastrophic plan, and 30% selected a bronze plan. The highest uptake of catastrophic plans was in the District of Columbia and Minnesota, where about 2% of Marketplace enrollees were in a catastrophic plan in 2025.

How do premiums for bronze and catastrophic plans compare?

In 2026, the average lowest-cost catastrophic Marketplace plan for a 27-year-old individual is $346 per month, a 29% increase from 2025. The average lowest-cost unsubsidized bronze plan (where catastrophic plans are also available) is $369 for a 27-year-old, a 19% increase from 2025. On average, the gap between premiums for unsubsidized bronze and catastrophic plans shrank by $19 per month for a 27-year-old individual from last year. (Differences in where catastrophic plans are offered may have contributed to this change.) The lowest-cost catastrophic Marketplace plans for 2026, where available, are, on average, $23 cheaper per month than the lowest-cost unsubsidized bronze plan for a 27-year-old individual. However, this varies a lot by county. For example, unsubsidized bronze plans offered in more than half of the counties in Oklahoma are over $200 cheaper per month than the cheapest catastrophic plan for a 27-year-old individual. Conversely, all counties in Connecticut have catastrophic plans around $200 a month cheaper than the lowest-cost unsubsidized bronze plan for a 27-year-old individual.

The Trump administration’s expansion of catastrophic plan hardship exemptions was not announced until September, after many insurers had already submitted their proposed rates for the 2026 plan year. As a result, its effect on pricing for bronze and catastrophic plans is unclear and may affect the relative pricing of bronze and catastrophic plans in future years, with more data on which to base premiums.

Even with the hardship exemption expansion, potential enrollees may have difficulty finding affordable coverage options in places where catastrophic plans are available. For a 27-year-old individual earning $45,000 a year (just under 300% FPL), expenditures on premiums would amount to 9% of income; a 50-year-old with the same income would spend 16% on premiums ($7,027 annually) on average.

One of the reasons catastrophic plans have lower premiums, on average, than bronze plans is that catastrophic plans tend to enroll younger and healthier consumers, thus lowering average claims costs per enrollee. Insurers may then be able to offer lower premiums, on average, compared to bronze plans, which may enroll an overall sicker (higher cost) population. Additionally, while all non-grandfathered individual market plans are part of the same general risk pool, for the purpose of the ACA’s risk adjustment program, which redistributes funds from plans with lower-risk enrollees to plans with higher-risk enrollees, catastrophic plans are treated as a separate risk pool from the metal level plans.

What is the outlook for consumers?

Recent policy changes could have wide-reaching implications for Marketplace coverage. As a result of the anticipated expiration of enhanced premium tax credits, out-of-pocket premiums in 2026 are estimated to more than double what subsidized enrollees currently pay annually for premiums, net of tax credits. To help offset these increases, some enrollees may switch to a plan with a higher deductible, while others, such as those with incomes above 400% FPL, who will lose subsidies altogether, may choose to exit the Marketplace.

Changes to HSA eligibility may also influence some Marketplace enrollees’ choice of plan. For plan year 2026, 35% of Marketplace plans sold on HealthCare.gov are HSA-eligible, compared to just 4% in plan year 2025. With all bronze and catastrophic plans now HSA-eligible, some consumers who were enrolled in a gold or silver plan, particularly those with enough income to set some aside into health savings accounts, may choose a bronze or catastrophic plan to take advantage of this change. HSAs offer a triple tax advantage: contributions are tax-deductible; withdrawals are tax-free if used to pay for qualified medical expenses; and investment earnings grow tax-free. Although more people will have access to HSA-eligible HDHPs starting in 2026, higher-income individuals typically have more disposable income to contribute to these accounts than those with lower incomes. Because they are in a higher tax bracket, higher-income enrollees save more money for every dollar contributed to their HSAs. The IRS’s interpretation of the budget reconciliation law’s expansion of HSA eligibility to include off-Marketplace catastrophic and bronze plans may also create new incentives for HSA vendors, who often charge fees for monthly account maintenance, making withdrawals, and other transactions, to market individual plans with HSAs outside the Marketplace.

Additionally, expanded hardship exemptions for catastrophic plans could increase uptake of these plans. The new HealthCare.gov display options for shoppers whose incomes make them ineligible for premium tax credits increase the visibility of catastrophic plans, and the streamlining of the hardship exemption process may make enrolling in these plans easier. More consumers choosing catastrophic plans could have implications for the Marketplace risk pool. To the extent that catastrophic plans pull enough healthy people out of metal level plans or off the Marketplace, premiums for these plans, which would be left with more sick people, could increase in the future.

In an already complex health insurance system, consumer awareness of these policy changes and their implications may be limited. The 2023 KFF Survey of Consumer Experiences with Health Insurance found that many individuals already have trouble understanding various aspects of health insurance. For example, 31% of Marketplace consumers reported difficulty comparing cost-sharing features, and 25% had trouble comparing premiums when presented with different coverage options. The barrage of marketing pitches consumers face during open enrollment (including through internet searches, telemarketing, and social media) can compound the challenges of making an informed decision. Some consumers could unknowingly be directed to off-Marketplace plans, which can be difficult to distinguish from on-Marketplace plans, as the websites can look very similar. While ACA-compliant plans may also be sold off-Marketplace, these websites often also sell non-ACA-compliant plans, which may make plan comparison more difficult for consumers and could result in consumers losing out on premium tax credits who would otherwise be eligible for them if they had purchased a plan on a Marketplace. With few impartial resources, shoppers may feel less confident choosing a plan that best meets their needs or be left with unanswered questions about their specific circumstances.

Lack of understanding of plan options can have far-reaching effects on consumer finances. Price-sensitive consumers shopping for bronze and catastrophic plans can face difficult tradeoffs. While these plans typically have lower premiums than other Marketplace plans, these plans come with higher deductibles. In addition, cost-sharing reductions are only available to enrollees in silver plans. Compared to a bronze plan, a silver plan with cost-sharing reductions often leads to a lower total health expenditure even with a higher premium. If an enrollee has a medical emergency or develops a serious illness, they may be on the hook for substantial out-of-pocket costs. Many Marketplace enrollees are already struggling to afford health care costs. According to a recent KFF poll, about six in ten (61%) Marketplace enrollees report having difficulty affording out-of-pocket costs for medical care. Considering that 37% of all U.S. adults reported that they would not be able to cover a $400 expense with cash or its equivalent—only 5% of the average bronze individual deductible or 4% of the catastrophic individual deductible—many consumers in plans with high deductibles could find themselves scrambling to pay for health care when they need it.

Methods

Premium information for 2026 come from the medical individual market file of the QHP landscape file from CMS for states using the federally-facilitated platform (HealthCare.gov) and from HIX Compare for all other states and the District of Columbia. Analysis of data from HIX Compare assume that all plans are available in all counties in their respective rating areas where the issuer offers at least one plan. To assess plan availability and differences in premiums, county data were weighted by the number of plan selections in 2025. Plan eligibility for health savings accounts was obtained from the plan attributes public use file, which is only available for plans offered on HealthCare.gov

New Trump Administration Proposals Would Further Limit Gender Affirming Care for Young People by Restricting Providers and Reducing Coverage

Published: Dec 22, 2025

On December 18, 2025, the Centers for Medicare and Medicaid Services (CMS) issued two proposed rules that would  further limit youth access to gender affirming care. One rule would change the hospital Conditions of Participation (CoPs) which would prohibit most Medicare and Medicaid enrolled hospitals from providing specified gender affirming medical care for youth (the proposed CoPs rule). The second proposed rule would prohibit federal Medicaid or CHIP funds from covering this care for youth (the proposed Medicaid rule). Despite gender affirming care being considered a best practice model of care and consisting of interventions recommended by major medical associations, if finalized and implemented, the proposed rules would have a sweeping impact, albeit for a small number of young people, significantly limiting their access to these services.  

The rules broadly align with a range of other administrative actions that take a multipronged approach to restrict this care. In particular, the proposed rules follow a January 2025 Executive Order that set a pathway for limiting youth access to gender affirming care and directed the Secretary of Health and Human Services (HHS) to “take all appropriate actions to end” gender affirming care for youth, including in Medicaid, and which specifically identified the CoPs as a possible vehicle for this. Additionally, on April 11, 2025, CMS sent a State Medicaid Director’s letter with the stated purpose of “reminding states of their responsibility to ensure that Medicaid payments are consistent with quality of care and that covered services are provided in a manner consistent with the best interest of recipients” and appearing to encourage states to take steps to limit gender affirming care for youth within their state Medicaid programs. Then, in May 2025, HHS sent a second letter to an unspecified group of providers, state medical boards, and health risk managers urging them to update treatment protocol to move away from provision of gender affirming medical care.

The proposed rules do not take effect immediately. Both have a 60-day comment period following their publication in the federal register. Then, following the comment period, CMS is tasked with considering the comments and could ultimately choose to finalize the proposed rule—either in amended form or as currently written—or elect not to do so. If finalized, both rules will likely face legal challenges, which could further slow implementation.

The Proposed Conditions of Participation (CoPs) Rule

If finalized, the proposed hospital CoPs rule would limit gender affirming care for youth, regardless of payer. The CoPs rule proposes to prohibit certain hospitals (i.e. those covered by section 42 CFR part 482) that accept payments from the Medicare or Medicaid programs from providing identified pharmaceutical and surgical services related to gender affirming care to young people under age 18. Prohibited services would include puberty blockers (which delay the onset of puberty), hormone therapy, and surgery (which is very rare among youth). While these services would be prohibited for the purposes of providing gender affirming care, the rule would permit hospitals to provide them to youth in some scenarios when the service is not intended to affirm a person’s gender.

The changes under the proposed CoPs rule represent a condition based on facility type (not payer) and therefore, if adopted, would prohibit hospitals from offering gender affirming services to all patients under 18 years old, regardless of payer, including youth with private insurance or other coverage and those paying cash, not just those covered by Medicare and Medicaid.  It does not prohibit other types of facilities (e.g. free standing clinics, primary care or specialist providers in other settings) from offering these services (there are a variety of CoPs for providers which are not affected by the proposed CoPs rule).

Hospital Conditions of Participation (CoPs) are currently used to regulate how services can be provided safely and with high quality, rather than prohibiting specific services from being offered altogether. There are a variety of CoPs across different provider types which set standards and requirements, primarily related to quality and safety of care that health care providers must generally meet to participate in and receive reimbursement from Medicare and Medicaid. Hospital CoPs regulate a variety of administrative functions and health care services, including a hospital’s responsibilities to its patients, obligations of the hospital’s governing body, requirements related to emergency preparedness and planning, staffing requirements, minimum medical record requirements, and processes to develop safety procedures and quality improvement plans.  While the proposed rule states that it is offering the revision to existing hospital CoPs regulations to address “the health and safety of children,” there is no medical consensus that gender affirming care represents a safety issue, and using hospital CoPs this way marks a departure from their current function of regulating how services can be performed (e.g., by licensed professionals, with equipment like defibrillators available during surgeries, etc.), rather than which services can be provided.  

Hospital compliance with the CoPs is monitored with detailed surveys conducted by state agencies or accredited organizations (like the Joint Commission on Accreditation of Hospitals). These surveys are conducted during onsite visits to the hospitals; CMS usually gives hospitals time to fix violations.  When hospitals are unwilling or unable to fix violations, CMS issues a termination notice, which happens relatively rarely. Medicare and Medicaid do not reimburse services rendered at terminated hospitals.

If finalized, the rule would apply to most hospitals in the United States. The proposed rule estimates there are a total of “4,832 Medicare/Medicaid certified hospitals” (covered by section 42 CFR part 482) that would be subject to its provisions. The restrictions would also apply to gender affirming care clinics and other clinics if they  operate as a part of a hospital, including at off-campus locations. In 2023, the American Hospital Association identified more than 6,000 hospitals nationwide and it is likely that the large majority of hospitals not covered in the proposed rule and not included in 42 CFR part 482 are facilities such as Critical Access Hospitals and Rural Emergency Hospitals which are small rural facilities that may be less likely to offer gender affirming care. Although the proposal would apply to the large majority of hospitals, it is not clear what share of hospitals currently offer gender affirming care services for youth and many systems have recently stopped offering such services and have cited growing concern about pressure from the federal government (e.g. Los Angeles Children’s cited the “complex and uncertain regulatory environment” and Children’s National the “escalating legal and regulatory risks,” among many other examples).

If the proposed CoPs rule were finalized, most hospitals would be prohibited from providing gender affirming care services for youth.  Although hospitals could in theory stop participating in Medicare and Medicaid to continue providing gender affirming services, it is very unlikely that they would do so given the financial challenges this would present. Nationally, nearly half (44%) of all spending on hospital care comes from Medicare and Medicaid payments. 

Nearly Half (44%) of All Spending on Hospital Care Comes from Medicare and Medicaid Payments (Donut Chart)

Although the rule would apply broadly to most hospitals, hospitals provide relatively few gender affirming care services and almost no gender affirming surgeries to youth. Accounting for states that already restrict youth access to gender affirming care, the proposed rule estimates the change would impact 8,570 young people. The Williams Institute estimates that there are approximately 724,000 trans identified youth (13-17) in the U.S. This suggests that approximately 1.2% of trans youth in the U.S. receive gender affirming medical services in hospitals and could be impacted by the proposal each year.  As with past research, the CMS finds that most of this care is pharmacologic with surgery being very rare among transgender youth. The proposed rule identifies 85 surgeries in facilities that would be impacted by the rule over the course of one year nationwide. This represents less than 0.0003% of youth under 18 in the United States (based on the denominator of people aged 12 to 18 being 29,600,770 as described in the proposed rule).

Although gender affirming services could still be provided outside of hospitals subject to the proposed CoPs rule, there would be fewer facilities available in a landscape where accessing this care has already become challenging. Many types of gender affirming care sought by young trans people (such as puberty blockers and hormone therapies) can be provided in outpatient settings and therefore received at non-hospital providers. However, patients may need to travel farther and pay more to receive the set of services they need. They may also face challenges finding a specialized pediatric gender clinic offering a cross-specialty integrated care experience as those clinics are often based in hospital settings. Indeed, the proposal states young people may face “difficulty in identifying in-network providers that have available space and longer commute times to these providers” and assumes that 4,285 youth (half of those estimated to be impacted by the proposed rule) would stop receiving care.

The Proposed Medicaid Rule

The proposed Medicaid rule would prohibit the use of federal Medicaid and CHIP funds to cover the specified gender-affirming care services, regardless of the site of care, limiting access for minors who are covered by these programs. The specified services are the same pharmaceutical and surgical services the CoPs proposed rule seeks to bar. Unlike the CoPs proposal, which seeks to limit access at the hospital level (regardless of coverage type), the Medicaid proposal seeks to limit funding for services for youth based on their coverage source (i.e. Medicaid or CHIP) and would therefore restrict reimbursement for care regardless of provider type (e.g. hospitals, primary care providers, endocrinologists, etc.). However, it does not prohibit providers from offering these services. Based on statutory definitions of “minor” the proposed rule would prohibit federal Medicaid reimbursement for this care to those under 18 years of age, while separately administered CHIP programs would limit reimbursement for people through age 18. (CMS is requesting comment on the feasibility of implementing the proposal with these age differences in Medicaid compared to CHIP.) As with the CoPs proposed rule, although Medicaid programs would be prohibited from covering the identified services for gender affirming care with federal funds, programs would be permitted to reimburse for these same services for youth when used for other purposes. Also, similar to the CoPs proposed rule, these health programs could cover other related services such as psychotherapy, which is a common part of gender affirming care services, especially for youth.

Although the proposed rule would prohibit states from using federal Medicaid or CHIP funds to cover gender affirming care, it would not restrict states from covering these services using state-only dollars. It is likely that different states will make different choices about whether or not to cover these services using state funds. Already, some states restrict coverage of gender affirming care in their Medicaid and CHIP programs.

The Medicaid proposed rule (unlike the CoPs proposal) does not offer an estimate on the number of individuals it would impact but it does find that only a very small share of Medicaid/CHIP funds are spent on gender affirming care, likely suggesting low utilization. Although the impact of the proposed Medicaid restrictions would be meaningful for individuals and families, only a very small amount of Medicaid funding is spent on services for which the Medicaid proposed rule would prohibit reimbursement. In the proposed rule, CMS estimates that Medicaid spent about $31 million on the specified services for enrollees aged 18 years and younger in 2023. This represents about 0.003% of all Medicaid spending that year (based on the proposed rule’s spending estimate and FY 2023 total Medicaid spending). Of this total ($31m), CMS finds most of the spending occurred on services provided to older teens, with two-thirds of identified spending (66%) occurring among those 15-18 years old. Notably, this includes some spending for 18-year-olds, some of whom would not be impacted by the proposal. Nonetheless, the agency’s analysis supports the conclusion of other researchers that utilization of gender affirming medical services is relatively rare among adolescents and most spending is nonsurgical. Ninety-two percent (92%) of spending on the specified services for enrollees aged 18 years and younger was nonsurgical and almost all surgical spending (98%) occurred among youth in the 15-18 age group. It is not possible to know how much of this was spent on eighteen-year-olds, a group not impacted by this policy, and the age of majority in most states.

KFF estimates 37% of people under 18 in the United States are covered by Medicaid or CHIP with variation across states. Applying state specific shares of youth enrolled in Medicaid to Williams Institute state level estimates of trans youth (and assuming the coverage distribution among trans youth is similar to youth in general), KFF estimates there to be approximately 270,000 trans youth covered by Medicaid or CHIP. We estimate that, approximately, 138,000 young trans people with Medicaid or CHIP live in a state without a state law prohibiting gender affirming care (and without a state-based Medicaid ban) and could face insurance limitations under the proposed Medicaid rule, if they sought gender affirming care. Notably, not all transgender youth would seek or desire access to the proposed restricted services, and the CoPs rule, along with other research, finds uptake of gender affirming medical services is low. Nonetheless, if finalized, the proposed rule could foreclose on their ability to receive covered care.

While young people with Medicaid and CHIP coverage could theoretically seek care outside of hospitals without using their insurance, the cost of doing so would likely be prohibitive. Families with children covered by Medicaid and CHIP have low to moderate incomes and would face difficulty paying for any uncovered care.

Looking Ahead

As noted earlier, the proposed rules do not take effect immediately. If finalized (following a 60-day comment period), these proposed rules taken together would lead to youth access to gender affirming care being further limited. Patients with the most financial and other supportive resources would have the greatest ability to navigate access (e.g., travel long distances to providers offering these services or have commercial insurance which might cover gender affirming care), whereas those with more limited resources and Medicaid/CHIP coverage, which is by definition insurance for low-income families, could find accessing services the most challenging. The rules would not limit other care for transgender young people.

Losing access to gender affirming care could have meaningful health implications for young people and their families.  Research has demonstrated that young transgender people’s mental health is negatively impacted when this care is denied, including leading to an increased risk of suicidality and that when care is received, well-being is improved. Hospitals with larger gender affirming care programs may also be conducting academic or clinical research on the experiences of and care for young transgender patients. If these hospitals close or limit their services, that may change or eliminate their ability to do this research.

Immediately following their release, the proposals faced criticism from the American Academy of Pediatrics which wrote, “these rules are a baseless intrusion into the patient-physician relationship” and that the association “remains committed to ensuring that all children — including gender-diverse youth and children covered by Medicaid — receive care that is backed by science, delivered with compassion, and offered without political interference.”

There has been significant litigation challenging efforts to limit gender affirming care at both the state and federal level and if finalized, lawsuits challenging these rules would be likely and could happen on multiple grounds (e.g., Constitutional, Administrative Procedure Act (APA), Section 1557 of the Affordable Care Act (ACA), and violations of Medicaid and Medicare statute and/or regulations, etc.). Indeed, the ACLU has already suggested a willingness to challenge these are regulations, stating that “if this administration moves forward with this attempt to enact a national ban on our medical care through coercion, the ACLU will see them in court.” Additionally, multiple state attorneys’ general have stated that they oppose the rule and plan to fight its implementation.

Beyond these two rules, also on December 18th 2025, HHS Secretary Kennedy issued a declaration stating that the same pharmaceutical and surgical  procedures are “neither safe nor effective…and therefore, fail to meet professional recognized standards of health care” (the determination does not apply to these procedures when the service is not intended to affirm a person’s gender). It further noted the HHS Secretary has existing authority to exclude individuals or entities from participation in federal health programs, if the Secretary determines delivered services fail “to meet professionally recognized standards of health care.”  Unlike the two rules, the declaration is not limited to payer (as the Medicaid proposed rule is) or to a specific facility type (as the Conditions of Participation rule is).

On December 24, 2025, a lawsuit was filed in which nearly half of all states challenged the administration’s authority to issue the declaration, claiming it violates the Administrative Procedures Act and the Medicare and Medicaid statutes and that “the Secretary has no legal authority to substantively alter the standards of care and effectively ban, by fiat, an entire category of healthcare.”  On December 30th, HHS announced it had referred at least one hospital to the Office of Inspector General based on the declaration.

Key Data on Health and Health Care for American Indian or Alaska Native People 

Published: Dec 19, 2025

Introduction

American Indian and Alaska Native (AIAN) people experience substantial and enduring disparities in health, health care, and health coverage. While the federal government has a trust responsibility to meet the health care needs of AIAN people, the Indian Health Service (IHS), the primary federal agency charged with upholding the trust responsibility has historically been underfunded and unable to meet their health care needs. AIAN people face challenges accessing health care, including geographic isolation, economic challenges, and limited access to culturally appropriate care that reflect a long history of abuse and mistreatment by the federal government. Proposed cuts to Medicaid could widen health and health care disparities for AIAN people given that Medicaid is a major source of health coverage for AIAN people and funding for IHS and Tribal providers.

AIAN people are often excluded from data and analysis due to smaller population sizes, limiting the visibility and understanding of their health outcomes and the challenges they face in accessing health services and impeding efforts to address their health care needs and reduce disparities. Moreover, aggregate data for AIAN people may mask underlying disparities among Tribes and subgroups of the AIAN population. Data availability may become even more limited going forward, due to the Trump administration’s actions to reduce racial and ethnic data collection and reporting.

To help address gaps in data and information, this brief provides an overview of AIAN people’s health and health care, including by subgroup, where data allow, and differences are statistically significant. It is based on KFF analysis of data from multiple datasets, including the 2019-2023 American Community Survey, the 2023 Behavioral Risk Factor Surveillance System, and the Centers for Disease Control and Prevention (CDC) WONDER online database, as well as the 2023 KFF Survey on Racism, Discrimination, and Health. This report also incorporates analysis from Key Data on Health and Health Care by Race and Ethnicity, which examines 64 measures of health, health care, and social and economic factors that drive health outcomes, across six racial and ethnic groups, including AIAN people. The racial and ethnic group definitions for each table may vary depending on the source of the data. Some data are limited to specific age groups as specified in the notes. Key takeaways include:

AIAN people represent a diverse population, with many identifying with more than one race or ethnicity. As of 2023, approximately 7.2 million people in the U.S. identify as AIAN alone or in combination with another racial or ethnic group. The majority of AIAN individuals identify as AIAN and at least one other race, while about a quarter (1.7 million) identify as AIAN alone. This analysis identifies people based on self-identified race and ethnicity in federal survey data. However, AIAN is also a political and legal classification. This status recognizes over 570 AIAN Tribes as sovereign nations, establishing a government-to-government relationship that dictates the federal government’s trust responsibility, including the provision of health care to AIAN people in federally recognized Tribes.

AIAN individuals experience significant health disparities compared to their White counterparts. People identified as AIAN alone have shorter life expectancies (70.1 vs 78.4 years at birth), higher rates of chronic diseases such as diabetes and asthma, and higher rates of suicide deaths and substance use disorder. About a quarter (26%) of AIAN adults report having fair or poor health status compared to 17% of White adults. Additionally, AIAN people face higher risks during pregnancy, including higher rates of preterm births and infant mortality, as well as the highest rates of pregnancy related deaths across racial and ethnic groups.

Among those under age 65, people who identify as AIAN alone are three times more likely to be uninsured (21%) compared to White people (7%). This coverage gap contributes to challenges in accessing health care. About 22% of adults under age 65 who identify as AIAN alone report not having a personal health care provider, and 43% did not have a dental visit within the past year. Medicaid provides a key source of coverage for AIAN people, helping to mitigate their coverage gaps and serving as the largest third-party payer for the IHS. Medicaid covers roughly one in three (35%) people under age 65 who identify as AIAN alone compared with 15% of their White counterparts, and over half (52%) of AIAN children versus 23% of White children.

AIAN communities face racism and discrimination and substantial social and economic challenges that impact their health outcomes and reflect historical mistreatment and policies. Across measures of discrimination in daily life and health care settings, AIAN adults report the highest frequency of experiencing certain types of discrimination compared to other racial and ethnic groups, while White adults report the lowest frequency. They have a higher poverty rate compared to White people, with about 25% living below the poverty line, and are more likely to experience food insecurity compared to their White counterparts. They also have lower educational attainment levels. Additionally, AIAN people are less likely to own homes and more likely to live in crowded housing conditions compared to White people. These social and economic challenges reflect an array of historical policies implemented by the U.S. government that disadvantaged AIAN communities.

Aggregate data for AIAN people may mask underlying disparities among subgroups since there is a wide variation in experiences and key factors that influence health among AIAN people. Experiences and outcomes vary based on their racial and ethnic composition, where they live, and their Tribal affiliation or Tribal land residency. For example, among AIAN people, uninsured rates and limited English proficiency (LEP) are highest among those who identify as AIAN and Hispanic, creating additional barriers that may impact access to and quality of care. AIAN adults living on Tribal lands are more likely to report having a usual place of care and receiving a flu vaccine (92% and 50%, respectively) compared to AIAN adults living off Tribal lands (82% and 39%, respectively), which may reflect greater proximity to IHS services.

Box 1: Notes on Data and Methods

Components of this analysis are based on data from the 2019-2023 five-year American Community Survey (ACS) and include people who identify as AIAN as defined by the U.S. Census. Except where otherwise specified, we include people who identify as AIAN alone, who are individuals who identify their race solely as AIAN and report non-Hispanic ethnicity.

As noted above, this analysis identifies people as AIAN based on self-identified race and ethnicity. However, AIAN is also a political and legal classification. This status recognizes over 570 AIAN Tribes as sovereign nations, establishing a government-to-government relationship that dictates the federal government’s trust responsibility, including the provision of health care to AIAN people in federally recognized Tribes.

Among AIAN people, data are reported by racial and ethnic subgroup, self-attested Tribal status, Tribal land residency, geographic region, and IHS region, where available, and when differences are statistically significant.

The AIAN racial and ethnic subgroups include AIAN alone, AIAN and White, AIAN and Black, AIAN and Hispanic, AIAN and Asian, and AIAN and two or more other races.

Tribal affiliation is based on whether respondents write the name of an “enrolled or principal tribe” in set aside boxes in the ACS and is only reported among individuals who identify as AIAN alone due to data limitations. In this brief, individuals who report a specific Tribe are defined as Tribally affiliated, and individuals who do not are classified as not Tribally affiliated. People who do not report a Tribe on the ACS may still be Tribally affiliated and not represented in the data.

Tribal land residential status is defined based on whether respondents’ addresses fell within AIAN legal and statistical entities for which the U.S. Census Bureau publishes data. All estimates for Tribal residential status are sourced from a 2023 National Health Statistics Report.

Geographic region is defined using the 4 regions outlined by the U.S. Census Bureau, including the Northeast, Midwest, South, and West.

IHS region is defined using state level groupings commonly used by some federal agencies and in published research. This definition divides the states into six regions: East, Northern Plains, Southern Plains, Southwest, Pacific Coast, and Alaska. While the IHS divides its services into 12 regions, the six-region definition was selected to align with the available geographies in the ACS data file.

Overview of AIAN People in the U.S.

Most AIAN people identify with more than one race and ethnicity. The number of AIAN people who identify with more than one racial or ethnic group has grown over time, likely reflecting some demographic shifts as well as changes in the design of questions used to identify race and ethnicity. As of 2023, there are roughly 7.2 million people in the U.S. who identify as AIAN alone or in combination with another racial or ethnic group. The majority of AIAN people identify as AIAN and at least one other race, while about a quarter of AIAN people identify as AIAN alone (24% or 1.7 million) (Figure 1).

AIAN People Represent a Diverse Population With Many Identifying With More Than One Race or Ethnicity (Pie Chart)

Overall, about nine in ten (89%) people who identify as AIAN alone indicate they are affiliated with a Tribe, while 11% do not identify a Tribal affiliation (Figure 2). There are over 570 federally recognized Tribes. Tribal enrollment has important implications for access to benefits, since members and descendants of members of federally recognized Tribes have broader access to certain federal programs, including the IHS (Box 2).

Most People Who Identify as AIAN Alone Indicate That They Are Affiliated with a Tribe

Box 2: Overview of the Indian Health Service

The IHS provides health care and disease prevention services to AIAN people through a network of hospitals, clinics, and health stations. In addition to medical care, the IHS provides a wide range of other services, including sanitation and public health functions. In exchange for lands and resources, the federal government provides health services through facilities that are managed directly by the IHS, by Tribes or Tribal organizations under contract or compact with the IHS, and Urban Indian Health programs (UIHP). If facilities are unable to provide needed care, the IHS and Tribes may contract for health services from private providers through the IHS Purchased/Referred Care (PRC) program. However, due to limited funding, services through PRC are often rationed based on medical need, such as emergency care for life-threatening illnesses and injuries. Recent updates to the PRC medical priorities aim to expand coverage for more preventive care services, although some recipients continue to face challenges accessing care. Urban Indian Organizations do not participate in the PRC program and do not receive PRC funding for health services beyond the scope of what they can provide.

Direct services provided through IHS and Tribally operated facilities are generally limited to members or descendants of members of federally recognized Tribes who live on or near federal reservations. Qualified AIAN people receiving services through IHS providers are not charged or billed for the cost of their services. UIHPs serve a wider group of AIAN people, including those who are not able to access IHS or Tribally operated facilities because they do not meet eligibility criteria or because they reside outside their service areas. However, funding to UIHPs is limited to 1% of the IHS budget despite the overall demographic shift of AIAN people away from reservations. To address the needs of AIAN people who live in metropolitan areas, there have been recent recommendations to fully fund UIHP services.

The IHS is a discretionary program with limited funding that relies on Congressional appropriations each fiscal year. This funding process contributes to uncertainty, operations challenges, and, in some cases, disruptions in care if Congress is delayed in passing appropriations. Although the IHS discretionary budget has increased over time, funds are not equally distributed across IHS facilities and remain insufficient to meet health care needs. As such, access to IHS services varies significantly across locations, and AIAN people who rely solely on the IHS often lack access to needed care.

Among people who identify as AIAN alone or in combination, about three in ten (31%) reside in California, Texas, or Oklahoma (Figure 3). The AIAN population is largely concentrated in the Western U.S., at least in part due to forced displacement and relocation (Box 3). The majority of AIAN people (87%) live in metropolitan areas, some live in rural areas, and only 13% reside on reservations or land trusts.

About Three in Ten AIAN People Live in California, Texas, or Oklahoma

Box 3: Historical Mistreatment of AIAN People in the U.S.

The U.S. government has a long history of systemic abuse against AIAN people, including forced historical displacement, broken political treaties, and cultural erasure. Policies like the Indian Removal Act, the establishment of the Federal Indian Boarding Schools, and the Indian Relocation Act of 1956 were aimed to assimilate AIAN people to majority culture and strip them of their Tribes, lands, languages, and their traditions. Further, a history of forced sterilization and policies that separated infants from their families has also eroded trust in health care providers and government institutions.

Health disparities persist due to a lack of data and underfunded health care systems that are rooted in historical neglect and inequities. The legacy of colonization, historical dispossession, and intergenerational trauma continues to impact AIAN communities, worsening health, economic, environmental, and social challenges that reflect ongoing structural inequities and systemic discrimination. Further, differing cultural beliefs and values about health and limited cultural understanding among non-Native providers present additional barriers to accessing health care.

Health Coverage, Access, and Use

Among people under age 65, people who identify as AIAN alone are three times more likely to be uninsured compared to White people (21% vs. 7%) (Figure 4). Among those who identify as AIAN alone, uninsured rates are higher for those who indicate that they are affiliated with a Tribe (23%) compared to those who do not indicate a Tribal affiliation (17%). This may, in part, reflect greater reliance on the IHS for health care among those affiliated with a Tribe. However, the IHS is not insurance, and people relying solely on the IHS may face gaps in care. Among people who identify as AIAN alone or in combination with another racial or ethnic group, uninsured rates are higher among those who identify as AIAN alone (21%) and AIAN and Hispanic (21%), than among those who identify as AIAN and White (11%) (Figure 5). Higher uninsured rates among AIAN people contribute to barriers to accessing and utilizing health care.

Medicaid is a major source of coverage for AIAN people, particularly AIAN children, it is one of the primary ways the federal government honors its federal trust responsibility. Among those under age 65, Medicaid covers over one in three (35%) of those who identify as AIAN alone and nearly one in four (23%) people who identify as AIAN alone or in combination with another race or ethnicity (Figure 5). Medicaid, in combination with the Children’s Health Insurance Program (CHIP), covers over half (51%) of children who identify as AIAN alone. Medicaid is also the largest third-party payer for the IHS, accounting for $1.3 billion out of the total almost $1.8 billion in third-party collections in fiscal year 2025. In contrast to IHS funds, Medicaid funds are not subject to annual appropriation limits and, since Medicaid claims are processed throughout the year, facilities receive Medicaid funding on an ongoing basis for covered services. As such, Medicaid revenues help facilities cover operational costs, including provider payments and infrastructure developments. Notably, during federal government shutdowns, some parts of the IHS that do not receive advance appropriations rely on third-party reimbursement, including Medicaid, to fund services.  

AIAN People are More Likely to be Uninsured Than White People (Stacked Bars)

Uninsured rates among AIAN people vary by where they live. About one in four people under age 65 who identify as AIAN alone and live in the IHS regions of the Southern Plains (26%), Alaska (23%), and the Northern Plains (23%) are uninsured, which is higher compared to other IHS regions (Figure 5). The higher uninsured rate in the Southern Plains region reflects a relatively low rate of Medicaid coverage compared to the national rate (22% vs. 35%), which is largely driven by the fact that two (Texas and Kansas) out of three states in the region have not implemented the Affordable Care Act (ACA) Medicaid expansion to low-income adults. In contrast, the higher uninsured rate in Alaska and the Northern Plains largely reflects a lower rate of private coverage compared to the national rate (31% and 35% vs. 44%). Among people under age 65 who identify as AIAN alone, Medicaid coverage rates are lower in states that have not adopted the ACA Medicaid expansion to low-income adults compared to expansion states (31% vs. 37%). Research finds that while health coverage improved among AIAN people post-ACA, there are stark differences in coverage regionally. In the period following the ACA, AIAN people in the Southwest, West Coast, and Alaska regions experienced the greatest increases in Medicaid and other public health coverage.

Health Coverage Varies Based on Where AIAN People Live (Stacked Bars)

AIAN adults are more likely to report not having a personal provider, not receiving dental care, and not being up to date on their flu vaccine compared to White adults, suggesting barriers to accessing care. About one in five (22%) adults who identify as AIAN alone under the age of 65 report not having a personal provider compared to 16% of White adults (Figure 6). AIAN adults are also more likely to have gone without a dental visit within the past year than White adults (43% vs. 32%) and to not be up to date on their flu vaccine (64% vs. 50%). However, they are not more likely than White adults to report going without a routine check-up in the past 12 months.

AIAN Adults Report Greater Barriers to Accessing Care Than White Adults (Bar Chart)

Among those who identify as AIAN alone or in combination, those living off Tribal lands generally report more limited health care access and use compared to those living on Tribal lands. AIAN adults who live on Tribal lands are more likely to report having a usual source of care compared to those who live off Tribal lands (92% vs. 82%). About half (50%) of AIAN adults living on Tribal lands report receiving a flu vaccine in the past 12 months compared to about four in ten (39%) AIAN people who live off Tribal lands. About one-third (34%) of AIAN people who live on Tribal lands report having at least one emergency room visit in the past 12 months compared to about a quarter (25%) of AIAN adults who live off Tribal lands. Among AIAN people who live on Tribal lands, 2% report delaying or not receiving mental health treatment due to cost, while 8% of those who live off Tribal lands report the same (Figure 7). The increased access and use of care among those living on Tribal lands may reflect increased access and proximity to IHS or Tribal Health facilities.

AIAN Adults Living on Tribal Lands Report Greater Access and Use of Some Health Services Than Those Living Off Tribal Lands (Bar Chart)

Health Outcomes

AIAN people have a shorter life expectancy at birth compared to White people (Figure 8). Since 2019, life expectancy has fallen for AIAN people, reflecting the impacts of the COVID-19 pandemic. The existing gap in life expectancy widened between people who identify as AIAN alone and White people from 7 years in 2019 (71.8 vs. 78.8 years) to 8.3 years in 2023 (70.1 years vs 78.4 years).

AIAN Individuals Have Shorter Life Expectancies Compared to Their White Counterparts (Line chart)

Adults who identify as AIAN alone report poorer health status compared to White adults. About a quarter (26%) of AIAN adults report having fair or poor health status compared to 17% of White people, and roughly one in five (22%) AIAN adults report having 14 or more mentally unhealthy days compared to 15% for White people (Figure 9).

About One in Four AIAN Adults Report Fair or Poor Health and About One in Five Report 14 or More Mentally Unhealthy Days (Bar Chart)

AIAN people fare worse than their White counterparts across multiple measures of birth risks and outcomes. People who identify as AIAN alone have higher shares of preterm births compared to their White counterparts (12% vs. 9%), low birthweight births (9% vs. 7%), and births for which they received late or no prenatal care (13% vs. 5%) (Figure 10). The birth rate among teens who identify as AIAN alone is more than two times higher than the rate for White teens (Figure 11). AIAN infants have a mortality risk that is twice as high as that of White infants (9.2 vs. 4.5 per 1,000 live births) (Figure 12).

AIAN People Fare Worse than Their White Counterparts Across Pregnancy-Related Measures (Bar Chart)
The Birth Rate Among AIAN Teens is More Than Two Times Higher Than the Rate Among White Teens (Column Chart)
AIAN Infants Have a Higher Mortality Rate Than White Infants (Column Chart)

Chronic Diseases

AIAN people have higher rates of certain conditions than their White counterparts. Adults who identify as AIAN alone are more likely to have asthma than White adults (15% vs. 10%) (Figure 13). AIAN adults also have higher rates of obesity than White adults. Among children, the prevalence of asthma was not significantly different between AIAN and White children, with 12% of AIAN children and 9% of White children reporting having asthma.

AIAN Adults Have Higher Rates of Asthma Than White Adults (Bar Chart)

AIAN people have the highest rate of diabetes across racial and ethnic groups, with 18% of adults who identify as AIAN alone reporting being told by a doctor they have diabetes compared to 11% of White adults. Researchers suggest that higher diabetes prevalence among AIAN people may be linked to historical forced relocation, changes to traditional lifestyles, and reliance on government food assistance programs. AIAN people are about two times more likely to die from diabetes compared to White people (41.5 vs. 19.8 per 100,000) (Figure 14). In contrast, AIAN adults have similar rates of heart disease to White adults (8% vs. 7%) and lower heart disease mortality rates than White people (138.3 vs. 169.1 per 100,000). However, it is important to note that race misclassification on death certificates is particularly common for AIAN people and likely leads to underestimates of AIAN mortality rates, with research showing that at least 30% of individuals who identify as AIAN alone are misclassified on their death certificates.

Overall, AIAN People are Twice as Likely to Die From Diabetes Than White People But are Less Likely to Die From Heart Disease (Bar Chart)

Rates of diabetes and heart disease mortality vary by census region among people who identify as AIAN alone. Geographically, among AIAN people, rates of death due to diabetes range from 19.6 per 100,000 in the Northeast to 54.1 per 100,000 in the Midwest. Heart disease deaths range from 69.7 per 100,000 in the Northeast to 151.2 per 100,000 in the Western U.S. (Figure 15). Regional differences in mortality could in part reflect differences in health coverage and access in each region. However, a range of other factors may contribute to regional differences, including environmental, lifestyle, and socioeconomic factors.

Rates of Deaths by Chronic Diseases Vary by Region For AIAN Adults (Split Bars)

AIAN people are more likely than White people to be diagnosed with HIV or AIDS, the most advanced stage of HIV infection. In 2022, the HIV diagnosis rate for people who identify as AIAN alone was about two times higher than the rate for White people (10.6 vs. 5.3 per 100,000). Similar patterns are observed in AIDS classification rates, the most advanced stage of HIV, reflecting barriers to treatment. People who identify as AIAN alone have higher AIDS classification rates than White people (4.1 vs. 2.3 per 100,000) (Figure 16).

AIAN People are More Likely Than White People to be Diagnosed with HIV or AIDS (Bar Chart)

Cancer

Differences in rates of cancer incidence are mixed between AIAN and White adults. People who identify as AIAN alone have lower rates of cancer incidence than White people overall, and across most leading types of cancer examined. However, AIAN people have higher incidence rates of colon and rectum cancer than White people (43.3 vs. 36.0 per 100,000) (Figure 17). Further, other data show that AIAN people have the highest rates of liver cancer incidence across racial and ethnic groups.

AIAN People Have Lower Rates of Cancer Incidence Than White People For Most Leading Types of Cancer (Bar Chart)

Cancer incidence rates among people who identify as AIAN alone vary across IHS regions. Rates of cancer incidence range from 304.4 per 100,000 in the Southwest to 635.3 per 100,000 in the Southern Plains (Figure 18). Rates of lung and bronchus, and prostate cancer are highest in the Northern Plains (105.9 and 128.8 per 100,000, respectively) and lowest in the Southwest (15.4 and 57.1 per 100,000, respectively). Alaska Native people have the highest colorectal cancer incidence and mortality rates in the world, which may in part be due to lower receipt of screening. This regional variation may reflect a variety of environmental, lifestyle, and socioeconomic factors.

Rates of Cancer Incidence Vary by Type and Across Region Among AIAN People (Split Bars)

Consistent with their lower incidence rates, AIAN people have lower rates of cancer mortality than White people for all cancers as well as across most leading cancer types (Figure 19). However, as of 2023, people who identify as AIAN alone and White people have similar rates of death due to colon and rectum cancer (13.1 and 13.0 per 100,000, respectively).

AIAN People Have Lower Rates of Overall Cancer Mortality Than White People (Bar Chart)

Suicide and Substance Use Disorder

AIAN people have the highest rates of deaths by suicide across all racial and ethnic groups. In 2023, people who identify as AIAN alone have higher rates of deaths by suicide than White people (23.8 vs. 17.6 per 100,000) (Figure 20). Additionally, AIAN adolescents have the highest rates of deaths by suicide across all racial and ethnic groups. Research finds that suicide is the second leading cause of death for high school-aged AIAN adolescents. Rates of deaths by suicide increased by 139% for AIAN adolescent females and 71% for AIAN adolescent males between 1999 and 2017, however, recent data show that these rates declined between 2021 and 2023. Studies have shown that the high rates of suicide are associated with AIAN youths’ high likelihood of having adverse childhood experiences combined with historical intergenerational trauma as a result of colonization and structural discrimination.

AIAN People Have Higher Rates of Death by Suicide Compared to Their White Counterparts (Bar Chart)

Deaths by suicide vary by region among people who identify as AIAN alone. AIAN people in the Western U.S. experience the highest rate of deaths by suicide (31.6 per 100,000), while AIAN people in the Northeast experience the lowest rate of deaths by suicide (9.6 per 100,000) (Figure 21). Deaths by suicide are higher among AIAN people than White people in all regions except the Southern U.S.

Deaths by Suicide Vary by Region Among People Who Identify as AIAN Alone (Bar Chart)

AIAN people report the highest prevalence of substance use disorder (SUD) in the past year compared with other racial and ethnic groups. AIAN people also experience the highest rates of drug overdose death, including the highest rates of opioid-related deaths in 2023. The high rates of opioid-related deaths likely reflect the low uptake of medication treatment services among AIAN people. Among those ages 12 years and older, over a quarter (27%) of people who identify as AIAN alone report experiencing substance use disorder in the past year, compared to 19% of White people (Figure 22). Similar shares of AIAN people (12%) and White people (14%) report experiencing alcohol use disorder.

About A Quarter of AIAN People Report Experiencing a Substance Use Disorder (Bar Chart)

AIAN people are about twice as likely to die from a drug overdose compared to White people (65 vs. 33.1 per 100,000) in 2023 (Figure 23). Alcohol-induced deaths are also higher among people who identify as AIAN alone in 2023 compared to White people. AIAN people have the highest rate of alcohol-induced deaths and the fastest growing rate of alcohol-induced deaths compared to other racial and ethnic groups, nearly doubling in the past 10 years. Increases in alcohol deaths among AIAN people follow worsening trends in other areas related to behavioral health, where AIAN people have both the highest and fastest-growing rates of suicide and overall drug overdose deaths.

AIAN People Have Higher Death Rates Due to Drug Overdose and Excessive Alcohol Use Compared to White People (Bar Chart)

Experiences with Racism and Discrimination

Racism is an underlying driver of health disparities. Research has shown that exposure to racism and discrimination can lead to negative mental health outcomes and certain negative impacts on physical health, including depression, anxiety, and hypertension. Across measures of discrimination in daily life and health care settings, AIAN adults report the highest frequency of experiencing certain types of discrimination compared to other racial and ethnic groups, while White adults report the lowest frequency.

AIAN adults are more likely to report certain experiences with discrimination in daily life compared with their White counterparts. Based on KFF survey data from 2023, more than a quarter of AIAN adults (28%) say that they received poorer service than other people at restaurants or stores at least a few times in the past year, higher than the share of White adults who say the same (16%) (Figure 24). Similarly, about four in ten (42%) AIAN adults say that people have acted as if they think they are not smart at least a few times in the past year, higher than the one-quarter (26%) of White adults who say the same. Further, about one in five (19%) AIAN adults say people acted as if they were afraid of them at least a few times in the past year, compared to 9% of White adults. Cumulatively, at least half of AIAN (58%) adults say they have experienced one of these forms of discrimination at least a few times in the past year compared to about four in ten (38%) White adults (Figure 24).

AIAN Adults Are More Likely Than White Adults to Report Experiences of Discrimination (Grouped column chart)

AIAN adults report having less frequent positive and respectful interactions with health care providers than White adults. KFF survey data from 2023 also show that AIAN adults (18%) are about twice as likely as White adults (8%) to say their health care providers explained things in a way they could understand just some of the time, rarely, or never in the past three years. Similarly, about one in four AIAN adults (24%) say their health care providers understood and respected their cultural beliefs just some of the time, rarely, or never, compared with about one in ten White adults (12%). They also are more likely than their White counterparts to say their providers did not frequently involve them in decision-making about their care during their visits in the past three years (Figure 25).

AIAN Adults Report Less Frequent Positive Interactions With Health Care Providers Than White Adults (Grouped column chart)

Social and Economic Factors that Influence Health

There is wide variation in the share of AIAN people reporting LEP among racial and ethnic subgroups. Among people who identify as AIAN in combination with another race or ethnicity, LEP ranges from 30% of people who identify as AIAN and Hispanic to one percent or less of AIAN and Black, and AIAN and White people (Figure 26).  Having LEP can contribute to difficulty accessing health coverage and care and negatively impact quality of care and health outcomes.

English Proficiency Varies Across AIAN Racial and Ethnic Subgroups (Stacked column chart)

AIAN people have lower educational attainment than their White counterparts, but there is significant variation among AIAN people by racial and ethnic subgroups. Among adults ages 25 and older, 16% of people who identify as AIAN alone have a bachelor’s degree or higher, compared to 39% of White people. The share with a bachelor’s degree or higher is similar among those who identify as AIAN and Hispanic (17%), but it rises to over a quarter among those who are AIAN and Black (26%), and AIAN and White (27%), and to over four in ten (42%) of those who identify as AIAN and Asian. Additionally, AIAN people living off Tribal lands are twice as likely to have a bachelor’s degree or higher compared to AIAN people who live on Tribal lands (18% vs. 9%) (Figure 27). Researchers have found that some of the educational attainment gap can be explained by a lack of culturally relevant coursework in traditional educational settings.

About One in Six AIAN People Have a Bachelor's Degree or Higher (Bar Chart)

While most people who identify as AIAN alone are in a working family, they are less likely than White people to live in a family with at least one worker (85% vs. 95%). The share living in a working family also varies among AIAN people by racial and ethnic subgroup. More than eight in ten AIAN people who identify as AIAN alone (85%) or AIAN and Black (87%) are part of a working family, while more than nine in ten people who identify as AIAN and Hispanic (95%) and as AIAN and Asian (94%) live in a working family (Figure 28).

More Than Eight in Ten AIAN People Live in a  Family With At Least One Worker (Bar Chart)

AIAN people are more likely than White people to live in a family with an income below poverty, although there is variation among racial and ethnic subgroups of AIAN people. Among AIAN people, poverty rates are lower among those who identify as AIAN and Asian (11%), and AIAN and White (14%), while they rise to about one in five among AIAN and Hispanic (18%) people and about a quarter among AIAN and Black (23%) people, and people who only identify as AIAN alone (25%) (Figure 29).

Poverty Rates Vary Among AIAN People by Racial and Ethnic Subgroup (Bar Chart)

AIAN people are nearly twice as likely to experience food insecurity compared to their White counterparts. People who identify as AIAN alone (23%) are more likely to be in a household that experienced food insecurity compared to White people (12%) (Figure 30).  Food insecurity among AIAN people is closely linked to historical federal policies that removed and relocated AIAN people and disrupted their connection to traditional lands, foods, and cultural practices.

Food Insecurity Rates Are About Twice as High Among AIAN People Compared to Their White Counterparts (Column Chart)

AIAN people are less likely to own a home than White people (62% vs. 77%). Lower rates of homeownership among AIAN people may reflect insufficient housing supply and a lack of access to affordable capital. Rates of home ownership vary among AIAN people by racial and ethnic subgroup. Nearly seven in ten AIAN and White (69%) people own a home, while about six in ten people who identify as AIAN alone (62%), and people who identify as AIAN and Asian (62%) own a home. The home ownership rate drops to about half or lower among people who identify as AIAN and Hispanic (52%) or AIAN and Black (43%) (Figure 31).

AIAN Households Have Lower Homeownership Rates Than White Households (Bar Chart)

AIAN people are more likely to live in “crowded” housing compared to White people. About 16% of people who identify as AIAN alone and one in ten (12%) people who identify as AIAN alone or in combination with another race or ethnicity report living in crowded housing, compared to 3% of White people. “Crowded housing” is defined as housing with more than one occupant per room (not counting bathrooms, porches, balconies, hallways, or unfinished basements, etc.). Among AIAN people, the share of people living in crowded housing ranges from 5% for people who identify as AIAN and White to about one in five (22%) for people who identify as AIAN and Hispanic (Figure 32). Living in multigenerational households is more common among AIAN people, and family connection is important to health and well-being, which may contribute to higher shares reporting “crowded housing” arrangements and may reflect cultural preferences or choices rather than a housing challenge.

AIAN People Are More Likely Than White People to Live in Crowded Housing (Bar Chart)

Emerging research also highlights a number of protective social factors that can support better health outcomes in AIAN communities. Strong family and community networks, access to culturally competent care, the prioritization of traditional food systems, and the preservation of language and cultural practices have all been shown to promote resilience and improve well-being. Strengthening these protective factors alongside efforts to address structural barriers can help reduce health disparities for AIAN people.

Health and Health Care for American Indian or Alaska Native People: Key Issues

Published: Dec 19, 2025

Introduction

Recent and forthcoming policy changes may have important implications for American Indian or Alaska Native (AIAN) people and could widen existing disparities in health and health care. This brief provides an overview of recent policies affecting health and health care for AIAN people and their potential impacts. It draws on data from KFF’s Key Data on Health and Health Care for American Indian or Alaska Native People and KFF analysis of recent laws and policy changes. AIAN people are identified as a racial and ethnic group. However, AIAN is also a political and legal classification. This status recognizes over 570 AIAN Tribes as sovereign nations, establishing a government-to-government relationship that dictates the federal government’s trust responsibility, including the provision of health care to AIAN people in federally recognized Tribes.  Key takeaways include the following:

  • The 2025 reconciliation law makes large cutbacks in federal Medicaid spending that could negatively impact AIAN people and communities. The Congressional Budget Office (CBO) estimates that the law will reduce federal Medicaid spending over the next decade by an estimated $911 billion and increase the number of uninsured people by 10 million due to changes to Medicaid and other programs, including the ACA Marketplace. Medicaid is the primary source of health coverage for Native communities, with over one in three (35%) AIAN individuals under age 65 enrolled in Medicaid or the Children’s Health Insurance Program (CHIP), including 52% of AIAN children. Medicaid and CHIP are also the largest source of third-party funding for the Indian Health Service (IHS) and Tribal health facilities, and one of the main ways the federal government upholds its trust responsibility. To replace reductions in federal funding, states will need to increase spending or make program reductions, which could lead to eligibility and benefit cutbacks that might reduce coverage for low-income people overall, including AIAN people, and reduce funding available to IHS and other Tribal providers. Further, although the law provides exemptions for most AIAN people from new work requirements and more frequent eligibility determinations, AIAN people may face challenges documenting their eligibility for such exemptions and may experience coverage losses.
  • Similarly, changes to the ACA Marketplace may erode coverage for AIAN people. Enhanced premium tax credits are set to expire at the end of 2025, which would make coverage unaffordable for many, including AIAN people. Estimates show that as many as 40% of AIAN people enrolled in the Marketplace with tax credits will lose their coverage if these credits expire.
  • Continued underfunding of the IHS, broad reductions in federal funding and equity initiatives, and shifts in vaccination policy and attitudes may also negatively impact health and health care access for AIAN people. Despite proposed increases, FY 2026 funding for the IHS falls short of levels estimated to fully meet health care needs and fulfill the federal trust responsibility. Further, while Executive Orders focused on eliminating Diversity, Equity, and Inclusion (DEI) initiatives largely exempt Tribes, broader federal budget cuts and rollbacks to equity initiatives may reduce resources available to Tribal communities, including for data, public health surveillance, and outreach. Recent declines in vaccination rates, rising misinformation about vaccines, and shifts in federal vaccine policy may increase the risk of preventable disease outbreaks in AIAN communities, including recent measles outbreaks in the U.S.

Health Care for AIAN People

Under treaties and laws, the U.S. has a unique trust responsibility to provide health care to AIAN people. The IHS is the primary federal agency through which the federal government fulfills its trust responsibility for members of federally recognized Tribes, who make up approximately 2.8 million AIAN people from 574 federally recognized Tribes nationwide. Members of federally recognized Tribes, as well as certain other eligible AIAN individuals, can receive IHS-funded services through a network of IHS- and Tribally-run hospitals and clinics, along with Urban Indian Organizations (UIOs). AIAN people receiving services through IHS providers are not charged or billed for the cost of their services. However, the IHS has long been underfunded and lacks the resources needed to fully meet the health care needs of AIAN people. Services available through the IHS are primarily limited to primary care, although the IHS does provide some ancillary and specialty services. When care is not available within IHS or Tribal facilities, the Purchased/Referred Care (PRC) Program may fund services from outside providers. Yet, the funding for PRC has historically been insufficient and does not extend to UIOs. As a result, access to care through the IHS varies widely by location, and AIAN individuals who rely solely on the IHS often face significant barriers to obtaining needed services.

AIAN people can access health coverage through Medicaid, CHIP, and the Affordable Care Act (ACA) Marketplace, with certain unique benefits and protections. Tribal members enrolled in these programs can continue receiving care from IHS, Tribal, or UIO providers at no cost and additionally have access to a broader network of services than those available solely through IHS since they can access care through any provider participating in Medicaid and are covered by the comprehensive Medicaid benefit package. Medicaid offers specific protections for Tribal members, including exemptions from out-of-pocket costs. For the ACA Marketplace, Tribal members eligible for premium tax credits can enroll in zero or limited cost-sharing Marketplace plans and have other specific protections. For example, AIAN individuals with incomes between 100% and 300% of the federal poverty level who enroll in zero cost-sharing plans pay no out-of-pocket costs for covered services. Additionally, AIAN Marketplace enrollees have access to a Special Enrollment Period, allowing them to enroll in or switch plans once per month, beyond the standard open enrollment window that is available for other eligible people.

Health coverage improves access to care for AIAN people and strengthens Tribal health systems. Given the limitations of IHS funding and service availability, health coverage through Medicaid and the Marketplace enhances access to care for AIAN people since they can access covered care through a broader network of providers and have coverage for a comprehensive set of benefits. In addition to improving individual access to care, Medicaid is also an important source of funding for IHS and Tribal facilities and is one of the primary ways the federal government upholds its federal trust responsibility to provide health care to AIAN people. Medicaid is the largest third-party payer for the IHS, accounting for $1.3 billion out of the total almost $1.8 billion in third-party collections in fiscal year 2025. Further, unlike other Medicaid costs, which are typically shared between the federal government and states, the federal government covers 100% of the cost for services provided to AIAN Medicaid enrollees through the IHS or Tribally operated facilities whether operated directly by the IHS or on its behalf by a Tribe. Importantly, in contrast to IHS funding, Medicaid funding is not subject to annual appropriations and is provided on a continuous, claims-based basis throughout the year. As a result, Medicaid revenues are a vital funding stream that help facilities cover operational costs, pay providers, and invest in infrastructure development.

Due to a combination of lower coverage rates, additional access barriers, and historical and ongoing discrimination, AIAN people continue to face significant disparities in health and health care. AIAN people have shorter life expectancies relative to their White counterparts (70.1 vs 78.4 years at birth), higher rates of chronic diseases such as diabetes and asthma, and higher rates of suicide deaths and substance use disorder. About a quarter (26%) of AIAN adults report having fair or poor health status compared to 17% of White adults. Additionally, AIAN people face greater risks during pregnancy, including higher rates of preterm births and infant mortality. Among those under age 65, AIAN people are three times more likely to be uninsured (21%) compared to White people (7%).

Since President Trump took office in January 2025, the Administration and Congress have made significant health policy changes. While in some cases AIAN people have been specifically exempted or protected from new requirements or cutbacks, many changes may have significant impacts on health and health care for AIAN people that could exacerbate the large disparities they already face in health and health care.

Medicaid and ACA Marketplace Changes

The 2025 reconciliation legislation makes large cutbacks in federal Medicaid spending that could negatively impact low-income people overall, including AIAN people and communities. CBO estimates that the law will reduce federal Medicaid spending over the next decade by an estimated $911 billion and increase the number of uninsured people by 10 million due to changes to Medicaid and other programs, including the ACA Marketplace. Medicaid is the primary source of health coverage for Native communities with one in three (35%) AIAN individuals under age 65 enrolled in Medicaid or the Children’s Health Insurance Program (CHIP), including 52% of AIAN children. As noted, Medicaid is also the largest source of external funding for IHS and Tribal health facilities, accounting for roughly two-thirds of their third-party revenue and providing a stable funding source to support operations. To replace reductions in federal funding, states will need to increase spending or make program reductions, which could lead to broad eligibility and benefit cutbacks that might reduce coverage for low-income people overall, including AIAN people and reduce funding available to IHS and other Tribal providers.

The law imposes an array of new requirements on Medicaid enrollees but largely exempts AIAN people from these changes. The law will require more frequent Medicaid eligibility determinations (every six months), adds a new work requirement, and imposes increased cost sharing for adults enrolled in the ACA Medicaid expansion. The law exempts AIAN people from these new requirements. However, it is unclear how state Medicaid programs will verify AIAN people’s Tribal citizenship. Some AIAN people may face challenges documenting their exemption status. While states are required to use available data to verify exemption status, some AIAN people who need to document their Tribal citizenship may face challenges to submitting documents, including long distances to post offices and limited internet access, as seen during the recent unwinding of Medicaid continuous enrollment.

While the 2025 reconciliation law exempts AIAN people from changes to Marketplace coverage, the pending expiration of enhanced Marketplace subsidies could lead to declines in coverage for AIAN people. Without renewal of the enhanced tax credits, premium payments for individuals enrolled in the Marketplace are expected to more than double on average. Estimates suggest that a substantial share of AIAN people currently enrolled in a Marketplace plan could lose coverage if the enhanced premium tax credits expire, particularly in states that have not expanded Medicaid to adults.

Funding for IHS

Congressional appropriations bills for Fiscal Year (FY) 2026 increase funding for the IHS compared to prior years but still fall far short of the funding levels to fulfill the federal trust responsibility to AIAN communities. In late July 2025, both the House and Senate Appropriations Committees passed their respective FY 2026 bills, each proposing increased funding for the IHS. The House bill allocates $8.41 billion, while the Senate bill allocates $8.1 billion, both above the FY 2025 enacted level of $6.96 billion. These increases are expected to support expanded primary care, behavioral health, and preventive services, as well as help offset inflationary pressures that threaten to erode service capacity. The House bill also includes $105.99 million for Urban Indian Health and $6.05 billion in advance appropriations for FY 2027. Following the most recent government shutdown, the deadline to pass FY 2026 appropriations bills has been extended through the end of January, during which time IHS continues to operate at FY 2025 funding levels. While these bills increase funding, they fall short of estimated needs. The Tribal Budget Formulation Work Group, led by Tribal leaders across all IHS regions, has recommended full funding at $73 billion for the IHS and $1.09 billion for Urban Indian Health to meet health care needs and fill service gaps. The group has identified several areas that would benefit from increased funding including workforce shortages, Infrastructure improvement, and targeted public health initiatives, such as mental health, substance use and opioid treatment programs, efforts to eliminate HIV and hepatitis C, and culturally tailored chronic disease management through the Special Diabetes Program for Indians.

Federal Cutbacks to Staff, Diversity Initiatives, Data, and Research

Although Tribes have largely been exempted from recent reductions in DEI initiatives, broader federal program and budget cutbacks that eliminate staff and programs focused on health equity may still undermine efforts to address longstanding disparities affecting AIAN communities. While Health and Human Services (HHS) Secretary Robert F. Kennedy Jr. has suspended layoffs at IHS, Tribal leaders caution that deep cuts at other federal health agencies are causing widespread disruption. These reductions are impacting many programs Tribal communities rely on, including public health surveillance, data systems, and community outreach efforts. Tribes report that staffing losses in key federal health agencies have led to gaps in data collection, weakened communication, and delayed implementation of essential programs. Maintaining strong health data infrastructure and partnerships with Tribal communities is key for tracking health inequities and targeting resources effectively. One notable loss is the Centers for Disease Control and Prevention’s (CDC) Healthy Tribes Program, which previously provided roughly $32.5 million annually to support culturally grounded approaches, such as community gardens and incorporation of traditional wellness practices, but has now been effectively dismantled. Broader restructuring across the HHS has also affected Indian country. Tribal representatives, including the National Indian Health Board, have expressed concerns that dismantling equity-focused initiatives threatens to reverse gains addressing disparities affecting AIAN people.

Changes in Vaccine Policy

Shifts in vaccine policy, misinformation about vaccine safety, and declines in childhood vaccination rates may lead to a rise in outbreaks of once eradicated diseases with disproportionate impacts for AIAN people. HHS Secretary Kennedy, known for his longstanding opposition to vaccines and for spreading vaccine misinformation, has recently spearheaded initiatives to review the federal childhood vaccination schedule, overhaul the membership of the Advisory Committee on Immunization Practices (ACIP), and limit both COVID-19 vaccines and mRNA vaccine research. Additionally, the Trump administration has released a report advocating for a new vaccine policy framework, which includes revisiting the childhood vaccine schedule and focusing on vaccine-related injuries. Since the COVID-19 pandemic, childhood vaccination coverage has declined nationwide. Gaps in immunization are higher in AIAN communities, increasing their susceptibility to disease resurgence. Among children born in 2020, only 57% of AIAN children were fully immunized by age two, compared to 71% of non-Hispanic White children. Additionally, roughly 76% of AIAN children have received their first MMR dose, falling short of the 95% coverage required to achieve herd immunity. AIAN adults were also 30% less likely to receive a flu shot than their non-Hispanic White counterparts during the 2023–2024 season. These declines have contributed to the most severe measles outbreak in the U.S. in more than three decades. Recent measles clusters in Tribal communities, especially in the Northern Plains and Southwest, have disrupted health care access and led to temporary clinic closures. In response, IHS, Tribal, and Urban health facilities have implemented mobile vaccination units, walk-in clinics, and multilingual public health campaigns tailored to meet local needs.

At the same time, misinformation about vaccine safety continues to circulate widely. KFF polling data shows that a majority of Americans have read or heard the false claim that the MMR vaccine causes autism in children. About one-third have heard that getting the measles vaccine is more dangerous than becoming infected with measles, and 34% believe the debunked claim that MMR vaccines cause autism. Among parents, about one in ten (9%) believe the MMR vaccine can cause autism, and roughly one in six (16%) say they have ever skipped or delayed at least one childhood vaccine for any of their children. Additionally, while formally supportive of the MMR vaccine’s effectiveness, Senator Kennedy has amplified anti-vaccine narratives including debunked claims linking the MMR vaccine to autism, creating confusion and reducing clarity on vaccine safety. Beyond the existing mistrust of the health care system due to historical trauma and abuse, some Tribal leaders warn that skepticism and mistrust of the health care system among AIAN people is increasing. Together, the increased skepticism among the public about the safety and effectiveness of measles vaccines and a decline in trust of health authorities in general, have contributed to lower vaccination rates and complicated outreach and communication efforts to combat preventable disease outbreaks.

A Snapshot of Sources of Coverage Among Medicare Beneficiaries

Most in Traditional Medicare Have Supplemental Coverage that Helps Cover Medicare Cost Sharing but More Than Three Million Don’t

Published: Dec 19, 2025

Health care affordability has been a longstanding concern in the U.S., including among older adults, many of whom have relatively low incomes and modest assets to help cover the cost of premiums and medical bills. Medicare offers important financial protection by providing health insurance coverage to 69 million people in the U.S., including adults age 65 or older and younger adults with long-term disabilities. However, Medicare-covered benefits are subject to cost-sharing requirements and exclude some commonly needed services, like dental and vision care.  Additionally, traditional Medicare does not include a cap on out-of-pocket costs.

To help with cost sharing for Medicare-covered services and fill the gaps in Medicare benefits, most Medicare beneficiaries supplement traditional Medicare with additional coverage, such as Medigap, for which policyholders pay an average of $2,600 annually in premiums. More than half of people with Medicare are currently enrolled in Medicare Advantage, which offers extra benefits not available in traditional Medicare and caps annual out-of-pocket costs. Medicare beneficiaries may also have employer- or union-sponsored coverage or Medicaid coverage in addition to Medicare. But some people on Medicare lack additional coverage and face the risk of incurring high out-of-pocket costs if they need expensive medical care.

This analysis documents the different sources of coverage among people with Medicare and examines variation in beneficiary characteristics by source of coverage. The analysis draws on data from the Centers for Medicare & Medicaid Services (CMS) March 2025 Medicare Advantage enrollment files and the 2023 Medicare Current Beneficiary Survey (see Methods for details).

Key Facts

  • More than half of all people with Medicare Part A and Part B (54% or 34.1 million in 2025) are enrolled in a Medicare Advantage plan, while 46% (28.7 million) are in traditional Medicare.
  • Among traditional Medicare beneficiaries, most (87%) had additional coverage that supplements Medicare benefits in 2023, but 3.5 million beneficiaries (13%) lacked additional coverage, leaving them at risk of facing high out-of-pocket costs for medical care.
  • Overall, 14.1 million beneficiaries (23% of all Medicare beneficiaries) had employer or union sponsored coverage in 2023, either as a supplement to traditional Medicare or through group Medicare Advantage plans, another 12.2 million (20%) had Medicaid in addition to traditional Medicare or Medicare Advantage, and the same number, 12.2 million (20%) had a Medicare supplemental insurance (Medigap) policy to supplement traditional Medicare.
  • The number and share of Medicare beneficiaries with Medicaid (dual eligible individuals) were substantially higher in Medicare Advantage (68%) than traditional Medicare (32% in 2023).
  • Compared to traditional Medicare beneficiaries, Medicare Advantage enrollees were more likely to be Black or Hispanic, have incomes below $20,000 per person, and self-report fair or poor health.

More than Half of All People with Medicare Are Enrolled in Medicare Advantage

In 2025, Medicare Advantage covered more than half (54%) of Medicare beneficiaries with both Medicare Parts A and B, or 34.1 million out of about 62.8 million people. Of the total number of Medicare Advantage enrollees in 2025, most (62%) are enrolled in individual plans available to all Medicare beneficiaries. One in five (21%) are in Special Needs Plans (SNPs) and 17% are enrolled in employer- or union-sponsored group plans, where employers or unions contract with an insurer and Medicare pays the insurer a fixed amount per enrollee to provide benefits covered by Medicare. (These estimates are based on March 2025 Medicare Advantage plan enrollment data and therefore differ from those discussed below and shown in Figure 1, which are based on the 2023 Medicare Current Beneficiary Survey (MCBS)).

Compared to traditional Medicare beneficiaries, Medicare Advantage enrollees were more likely to be Black or Hispanic, have incomes below $20,000 per person, and self-report fair or poor health, based on KFF analysis of the 2023 MCBS (Figure 2, Appendix Table 1).

Medicare Advantage Enrollees Were More Likely Than Those in Traditional Medicare To Be Black or Hispanic, Low-Income, and in Poorer Health (Stacked Bars)

Most Medicare Beneficiaries in Traditional Medicare Have Additional Coverage that Supplements Medicare Benefits

In 2023, most (87%) people in traditional Medicare had some form of additional coverage, either through Medigap (43%), employer coverage (29%), Medicaid (14%), or another source (1%),based on estimates from the MCBS.But 3.5 million Medicare beneficiaries in traditional Medicare (13%) had no additional coverage. A more detailed discussion of these types of coverage and the characteristics of people with each coverage type is below.

The Characteristics of Traditional Medicare Beneficiaries Vary Widely by Source of Additional Coverage (Stacked Bars)

Nearly a Quarter of Medicare Beneficiaries Have Employer Coverage, Either through Group Medicare Advantage Plans or in Addition to Traditional Medicare

In total, 14.1 million Medicare beneficiaries – nearly a quarter (23%) of Medicare beneficiaries overall – had some form of employer or union-sponsored health insurance coverage in 2023 in addition to Medicare Part A and Part B. Of this total, 8.2 million beneficiaries had employer coverage in addition to traditional Medicare (29% of beneficiaries in traditional Medicare), while 5.9 million beneficiaries were enrolled in Medicare Advantage employer group plans. Most people with both Medicare Part A and Part B and employer- or union-sponsored coverage are retirees with Medicare as their primary source of health insurance coverage.

Compared to traditional Medicare beneficiaries overall in 2023, beneficiaries with employer or union-sponsored coverage in addition to traditional Medicare were more likely to have higher incomes ($40,000 or greater per person), a bachelor’s degree or higher, self-report excellent or good health, and were less likely to be under age 65 (Figure 3, Appendix Table 1).

Separately, in 2023, an estimated 5.8 million Medicare beneficiaries had Part A only, a group that primarily includes people who were active workers (either themselves or their spouses) and had primary coverage from an employer plan and Medicare as a secondary payer. People with Part A only cannot enroll in a Medicare Advantage plan, so people with coverage through Medicare Advantage employer group plans are likely to be retired.

Four in 10 People in Traditional Medicare Have a Medigap Supplemental Policy

Medicare supplement insurance, also known as Medigap, covered 2 in 10 (20%) Medicare beneficiaries overall, or 43% of those in traditional Medicare (12.2 million beneficiaries) in 2023. Medigap policies, sold by private insurance companies, fully or partially cover Medicare Part A and Part B cost-sharing requirements, including deductibles, copayments, and coinsurance. Medigap limits the financial exposure of Medicare beneficiaries and provides protection against catastrophic medical expenses. However, Medigap premiums can be costly and can rise with age, among other factors, depending on the state in which they are regulated.

Compared to all traditional Medicare beneficiaries in 2023, beneficiaries with Medigap were more likely to be White, have higher annual incomes (above $20,000 per person), self-report excellent, very good, or good health, and have a bachelor’s degree or higher (Figure 3, Appendix Table 1).

In contrast, a smaller share of traditional Medicare beneficiaries under age 65 have a Medigap policy than traditional Medicare beneficiaries ages 65 and older (1% versus 9%). Federal law provides a 6-month guarantee issue protection for adults ages 65 and older when they first enroll in Medicare Part B if they want to purchase a supplemental Medigap policy, but these protections do not extend to adults under the age of 65 with disabilities, and most states do not require insurers to issue Medigap policies to beneficiaries under age 65.

One in Five People with Medicare Also Have Coverage from Medicaid, with More Covered Under Medicare Advantage than Traditional Medicare

Medicaid, the federal-state program that provides health and long-term services and supports coverage to low-income people, was a source of supplemental coverage for 12.2 million Medicare beneficiaries with low incomes and modest assets in 2023, or 20% of all Medicare beneficiaries. A larger number and share of Medicare beneficiaries with Medicaid (known as dual-eligible individuals) were enrolled in a Medicare Advantage plan (8.3 million, or 68% of all dual-eligible individuals) than in traditional Medicare (4.0 million, or 32%) (Appendix Table 1). For these beneficiaries, Medicaid typically pays the Medicare Part B premium and may also pay a portion of Medicare deductibles and other cost-sharing requirements. Most dual-eligible individuals are also eligible for full Medicaid benefits, including long-term services and supports.

Compared to traditional Medicare beneficiaries overall in 2023, dual-eligible individuals were more likely to have low incomes and relatively low education levels, self-report fair or poor health, identify as Black or Hispanic, and be under the age of 65 (Figure 3, Appendix Table 1).

3.5 Million Traditional Medicare Beneficiaries Lack Supplemental Coverage

In 2023, 3.5 million Medicare beneficiaries – 6% overall –and 13% of beneficiaries in traditional Medicare – had no supplemental health insurance coverage. Traditional Medicare beneficiaries with no additional coverage are fully exposed to Medicare’s cost-sharing requirements, which would mean paying a $1,736 deductible for a hospital stay in 2026, daily copayments for extended hospital and skilled nursing facility stays, and a $283 deductible plus 20% coinsurance for physician visits and other outpatient services. (These costs are in addition to the standard Part B premium amount of $203 per month in 2026). Beneficiaries in traditional Medicare without additional coverage also face the risk of high annual out-of-pocket costs because there is no cap on out-of-pocket spending for Part A and B services in traditional Medicare, unlike in Medicare Advantage plans.

Beneficiaries in traditional Medicare without any form of additional coverage were more likely to have modest incomes (between $20,000 and $40,000 per person) compared to all traditional Medicare beneficiaries in 2023 (Figure 3, Appendix Table 1). Medicare beneficiaries with modest incomes have limited ability to afford Medigap premiums and are unlikely to qualify for Medicaid because their income and assets are not low enough to meet eligibility guidelines.

The number and share of traditional Medicare beneficiaries without any form of supplemental coverage has steadily declined in recent years. Between 2018 and 2023, the number of traditional Medicare beneficiaries without supplemental coverage declined from 5.6 million beneficiaries (10% of the total Medicare population, or 17% of those in traditional Medicare) to 3.5 million (6% of the total Medicare population, or 13% of those in traditional Medicare). This decline likely reflects the increase in Medicare Advantage enrollment over time, which has increased from 20 million in 2018 to 34 million in 2025.

Methods

For information on Medicare Advantage enrollment in 2025, this analysis draws on data from the Centers for Medicare & Medicaid Services (CMS) Medicare Advantage Enrollment files for March 2025 (See Methods of KFF, “Medicare Advantage in 2025: Enrollment Update and Key Trends” for more details). For information on sources of supplemental coverage within traditional Medicare and Medicare Advantage, this analysis draws on data from the CMS Medicare Current Beneficiary Survey (MCBS) 2023 Survey file data (the most recent year available), a nationally representative survey of Medicare beneficiaries.

Sources of coverage are determined based on the source of coverage held for the most months of Medicare enrollment in 2023. The analysis includes 60.4 million people with both Part A and B Medicare coverage in 2023 (weighted), including beneficiaries living in the community and in facilities. It excludes beneficiaries who were enrolled in Part A only (typically active workers or their spouses with employer or union sponsored coverage) or Part B only for most of their Medicare enrollment in 2023 (weighted n=5.4 million) and beneficiaries who had Medicare as a secondary payer (weighted n=1.7 million). (Because this analysis reflects coverage held for most months, it shows fewer Medicare beneficiaries with Part A-only or Part B-only coverage than the CMS Medicare enrollment dashboard, which reports 5.8 million with Part A only in 2023). The analysis also focuses only on coverage for Part A and Part B benefits, not Part D. This analysis of the MCBS accounted for the complex sampling design of the survey.

In this brief, the number and share of beneficiaries enrolled with both Medicare and Medicaid coverage (dual-eligible individuals) do not align with other KFF estimates due to differences in data sources and methods used. In other KFF publications, the number of dual-eligible individuals is estimated using a 100% CCW sample and include dual-eligible individuals with at least one month of enrollment in Medicare Part A or Part B, rather than those with coverage for most months of the year. The analysis in this brief is based on the MCBS because this data source provides a wider array of demographic and health status indicators than the CCW.

All reported differences in the text are statistically significant; results from all statistical tests are reported with p<0.05 considered statistically significant. Because estimates reported in the text and figures are rounded to the nearest whole number, some estimates may not sum to overall totals due to rounding.

Appendix

Sources of Coverage Among Medicare Beneficiaries, 2023 (Table)

VOLUME 37

ACIP Vote Drives Online Engagement About Hepatitis B Vaccine, And Posts Claim a VAERS “Cover-Up” of COVID-19 Vaccine Deaths


Highlights

Nearly two weeks after a CDC vaccine advisory panel voted to end the universal recommendation that newborns be vaccinated for hepatitis B, online conversations about childhood vaccination schedules and parental choice have continued at elevated levels, with many prominent accounts celebrating the decision as a victory for medical freedom.

Meanwhile, narratives about an FDA memo claiming COVID-19 vaccines caused 10 pediatric deaths have evolved from focusing on the unverified claims to framing the announcement as evidence of a broader government “cover-up,” as some have characterized it as vindication for those previously “silenced” for raising vaccine safety concerns.


Recent Developments

Online Conversations About Childhood Vaccination Schedule Continue Following ACIP Meeting

A medical professional puts a Band-Aid on an infant's thigh.
FotoDuets / Getty Images

What’s happening?

  • The CDC’s Advisory Committee on Immunization Practices (ACIP) voted earlier this month to end its prior recommendation that all newborns receive the hepatitis B vaccine within 24 hours of birth. The committee now recommends that parents of infants born to mothers who test negative for hepatitis B should consult with their health care provider and decide when or if their child should be vaccinated.
  • The universal birth dose of the hepatitis B vaccine has been credited with a 99 percent drop in hepatitis B infections in children and teens since the 1991 recommendation, but high-profile critics of the universal birth dose, including Department of Health and Human Services (HHS) Secretary Robert F. Kennedy Jr., have argued that vaccinating all children is unnecessary when many cases are transmitted through sexual activity or needle-sharing among adults.
  • After the vote by ACIP, President Donald Trump called for a full review of the childhood vaccination schedule, suggesting limiting the number of recommended children’s vaccinations to match that of “peer, developed countries.”

How has this contributed to online conversation?

  • KFF’s monitoring of X, Reddit, and Bluesky identified more than 50,000 posts, reposts, and comments mentioning hepatitis B on X, Reddit, and Bluesky on December 5, the day of the vote, up from a daily average of approximately 3,400 posts thus far in 2025 as of December 8. Many accounts framed the decision as a victory for parental rights or medical freedom, celebrating the move to shared clinical decision-making. Some accounts which have previously shared false information about vaccines characterized the universal birth dose as previously having been “forced” on newborns, despite ACIP’s recommendations not constituting vaccine mandates.
  • The enhanced engagement about hepatitis B has persisted beyond the initial spike on December 5, with the average number of daily posts, reposts, and comments remaining elevated at approximately 17,000 through December 12. But, the volume of posts is declining, and KFF will continue to monitor how these conversations evolve.

Who do people trust for health information in light of conflicting guidance?

Following ACIP’s vote to end the universal hepatitis B birth dose recommendation, major medical organizations including the American Medical Association (AMA) and American Academy of Pediatrics (AAP) issued statements emphasizing the importance of hepatitis B vaccination for newborns. Several Democratic governors and state health departments in Democratic-led states have also reaffirmed support for the birth dose, leaving parents with conflicting recommendations from federal and state authorities, as well as from professional medical organizations. Recent polling from the Annenberg Public Policy Center found that when the CDC and AMA issue conflicting vaccine recommendations, Americans are more likely to accept the AMA’s recommendation by a 2-to-1 margin, regardless of political affiliation. KFF polling similarly shows that larger shares of the public trust their own health care providers and physicians associations like the AMA and AAP than the CDC for reliable vaccine information. In light of conflicting recommendations, these survey findings suggest that enhanced prenatal counseling may be helpful for alleviating confusion about vaccine guidelines among parents.

Why this matters

  •  ACIP’s decision to end the universal birth dose recommendation for the hepatitis B vaccine, despite its documented effectiveness and safety record, signals a shift in how the committee weighs population-level protection against individual parental choice. Online narratives celebrated the decision as a victory for medical freedom, indicating that personal decision making may outweigh public health concerns for some parents.
  • The debate over hepatitis B vaccinations indicates further partisan divides. A recent KFF Quick Take explores findings from the KFF/Washington Post Survey of Parents, showing that very few parents report skipping or delaying the hepatitis B vaccine for their children, but Republican supporters of the Make America Great Again (MAGA) and supporters of the Make America Healthy Again (MAHA) are more likely to have done so.
  • The KFF/Washington Post poll found that similar shares report skipping or delaying other recommended childhood vaccines like MMR or chickenpox. President Trump’s call to review the full pediatric vaccine schedule suggests that concerns about the timing of hepatitis B vaccination may influence broader conversations about childhood immunization schedules that health professionals should monitor.

Claims of “Cover-Up” Emerge Following FDA Memo on Vaccine Deaths

A masked young child with dark brown hair holds a teddy bear in the background while a doctor draws liquid into a syringe in the foreground.
thianchai sitthikongsak / Getty Images

What’s happening?

  • A recent internal Food and Drug Administration (FDA) memo  claims to link at least 10 pediatric deaths to COVID-19 vaccines, based on reports from the Vaccine Adverse Event Reporting System (VAERS). The memo, which does not include children’s ages, medical histories, or other evidence, has not been published in a peer-reviewed medical journal, its claims have been criticized by 12 former FDA commissioners as well as by current FDA staff. The FDA has since announced it is expanding its investigation to examine adult deaths potentially linked to COVID-19 vaccines.
  • VAERS is a passive vaccine surveillance system, and reports of side effects can be submitted by anyone including patients, healthcare providers, or individuals without medical training. The system is intended to generate hypotheses and identify possible concerns, not establish causality. Individuals and groups opposed to vaccinations have commonly misrepresented VAERS data to cast doubt on vaccine safety by presenting unverified reports as proof of harm.

What are common online narratives?

  • Online narratives about the FDA memo have continued through December. While early discussions focused on the memo’s claims about the 10 deaths, recent conversations have framed the announcement as evidence of a broader “cover-up” of vaccine harms. The vice chair of ACIP, who has more than 1.3 million followers on X, posted that the pediatric deaths were previously identified by the CDC, but were only now being disclosed. Approximately 17% of all posts KFF identified about the FDA memo in December thus far as of December 15, used language that suggested the memo was an admission that the FDA hid vaccine deaths from the public, using terms like “cover-up,” “finally admitting,” “caught red-handed,” or claims that officials “lied” about vaccine safety.  Some also expressed feelings of “vindication” for individuals who were allegedly “silenced” or “censored” for raising concerns about COVID-19 vaccines.
  • A Substack article published in early December and shared by an account on X with more than 500,000 followers claimed that the memo may result in the FDA adding a “black-box” warning to COVID vaccines or removing them from the market.

What does the evidence say?

COVID-19 vaccines have been extensively studied in children, and multiple published, peer-reviewed studies have demonstrated no increase in mortality. The vaccines have been shown to reduce the risk of hospitalization and severe illness, and about 2,100 children have died from COVID-19 itself since the pandemic began.

Why this matters

Federal health officials framing unverified VAERS reports as evidence of vaccine-caused deaths may contribute to uncertainty among parents about the safety of COVID-19 vaccines for children. The KFF/The Washington Post Survey of Parents found that large majorities of parents had positive views of long-standing childhood vaccinations, but were more uncertain about COVID-19 vaccines. Previous KFF polling has shown that about half (52%) of adults said they did not know enough to say whether mRNA vaccines were generally safe or generally unsafe. The FDA memo may provide what appears to be official validation for these concerns, making it more difficult for health communicators to explain the limitations of VAERS and the vaccines’ established safety record.


What We Are Watching

Continued Staffing Changes Signal Ongoing Shifts in Federal Health Messaging

Recent staffing changes at federal health agencies may signal continuation of criticism around current vaccination schedules and public health recommendations. The CDC’s new principal deputy director, for example, previously ended his state’s mass vaccination campaigns and delayed outbreak notifications as Louisiana’s surgeon general, while a new chief science officer at HHS co-authored a declaration calling for an end to pandemic shutdowns and later chaired a vaccine advisory committee that made recommendations criticized by major medical organizations. The FDA also appointed a new acting director of its Center for Drug Evaluation and Research who has advocated for making it more difficult for young men to receive the COVID-19 vaccine and questioned whether the childhood vaccination schedule is scientifically justified. Health communicators should anticipate statements from federal health officials that may contradict existing guidance and potentially contribute to declining trust in government health agencies as reliable sources of vaccine information. KFF will continue to monitor how communication from these officials influences public trust in vaccines and federal health agencies.

X’s Location Transparency Feature Could Help Verify the Authenticity of Accounts That Cast Doubt on Health Information

A new feature deployed on the social media platform X in late November shows the country or region where accounts are based, designed to verify authenticity and limit the influence of bot networks and foreign “troll” accounts. Initial media reporting has focused on politically-oriented accounts, revealing that numerous high-engagement accounts that presented themselves as American were actually based overseas. The feature could prove valuable for health communicators and researchers attempting to track the origin of false health claims, and understanding where these claims originate could help public health officials and platforms develop more targeted responses.

Recent ChatGPT Updates Aim to Address Mental Health Risks, OpenAI says

OpenAI, the company that operates the popular AI chatbot ChatGPT, has introduced a number of safety updates to its default model this year after reports emerged of users experiencing mental health crises during conversations with the chatbot. The New York Times uncovered nearly 50 cases of people having mental health crises while talking with ChatGPT, with nine hospitalized and three deaths. In some cases, the chatbot’s responses validated delusional thinking or discouraged users from seeking mental health help, and the company is now facing five wrongful death lawsuits alleging that the chatbot may have encouraged users to commit suicide. The company released GPT-5 in August and deployed an October update, developed in consultation with mental health professionals, that aims to better recognize users experiencing crisis and de-escalate sensitive conversations. OpenAI says that additional features, like session break reminders, parental controls, and age verification, are designed with user safety in mind, but internal communications reported by The New York Times show that the company still prioritizes user engagement metrics. Some mental health professionals have argued that OpenAI is understating the risk to its users, noting that 5 to 15 percent of the population could be vulnerable to delusional thinking. Parents and mental health professionals should be aware of the potential for AI chatbots to reinforce harmful thoughts or provide dangerous guidance, particularly during extended conversations.

About The Health Information and Trust Initiative: the Health Information and Trust Initiative is a KFF program aimed at tracking health misinformation in the U.S., analyzing its impact on the American people, and mobilizing media to address the problem. Our goal is to be of service to everyone working on health misinformation, strengthen efforts to counter misinformation, and build trust. 


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Support for the Health Information and Trust initiative is provided by the Robert Wood Johnson Foundation (RWJF). The views expressed do not necessarily reflect the views of RWJF and KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities. The data shared in the Monitor is sourced through media monitoring research conducted by KFF.

A Look at Nursing Facility Characteristics in 2025

Published: Dec 17, 2025

The 2025 reconciliation law could have major implications for nearly 15,000 federally certified nursing facilities and the more than 1.2 million people living in them. Nursing facilities provide medical and personal care services for older adults and people with disabilities. In 2023, Medicaid paid for 44% of long-term institutional care costs; 37% of long-term institutional care costs were paid for out-of-pocket; and the remaining 18% was covered by other public and private payers. Although provisions in the reconciliation law do not directly limit or reduce nursing facility services, changes to the Medicaid program could result in reduced payments from Medicaid for nursing facility care and may result in fewer people having Medicaid coverage of nursing facility care (see Box 1 for more on the 2025 reconciliation law.)

This data note discusses the impact of the 2025 reconciliation law on nursing facilities and examines the characteristics of nursing facilities and the people living in them with data from Nursing Home Compare, a publicly available dataset that provides a snapshot of information on quality of care in each nursing facility, and CASPER (Certification and Survey Provider Enhanced Reports), a dataset that includes detailed metrics collected by surveyors during nursing facility inspections. State-level data are also available on State Health Facts, KFF’s data repository with downloadable health indicators. Key takeaways from July 2025 data include:

  • There are 14,742 nursing facilities certified by CMS and about 1.24 million residents living in these certified nursing facilities (Figure 1).
  • Nursing facility residents receive, on average, about 3.85 hours of nursing care per day from licensed practical nurses (LPN/LVN), registered nurses (RNs), and nurse aides (Figure 2).
  • On average, nursing facilities receive 9.5 deficiencies over the course of a survey cycle (Figure 3).
  • While nearly all facilities receive at least one deficiency over the course of a survey cycle, 27% of facilities receive serious deficiencies for actual harm or jeopardy posed to a resident (Figure 3).

Box 1: Major Provisions in 2025 Reconciliation Law that Could Impact Nursing Facilities

The reconciliation law, passed on July 4, 2025, includes significant health care policy changes, including some major changes could have implications for nursing facilities.

Broader federal spending cuts: The 2025 reconciliation law is expected to reduce federal Medicaid spending by $911 billion over the next decade, which could have implications for nursing facilities. Those spending cuts are likely to leave states with difficult choices about how to respond to reduced federal support including spending on long-term care which accounts for more than one-third of all Medicaid spending. States’ options for reducing spending on nursing facility care could involve reducing payment rates or restricting eligibility so that fewer people receive services.

State-directed payments (SDPs): SDPs require managed care organizations to make certain types of payments to health care providers, generally aimed at increasing provider payment rates to increase access to or quality of care. The reconciliation law reduced the maximum payment rate in SDPs from commercial rates to Medicare rates in states that have adopted the ACA expansion and to 110% of Medicare rates in non-expansion states. As a result of these changes, states may reduce payments to nursing facilities to comply with the caps in the new law.

Moratorium on eligibility rules: The reconciliation law delays implementation of two eligibility rules that would have increased Medicaid enrollment, especially among Medicare beneficiaries (dual-eligible individuals), a group that disproportionately uses nursing facility services, until 2034. CBO estimated that delaying these rules could reduce the number of dual-eligible individuals by around 1 million.

Reduced retroactive coverage period: The law reduces the period for which states must provide Medicaid coverage for qualified medical expenses from 90 days prior to the date of application for coverage to 60 days among non-expansion enrollees. Because entering a nursing facility is often a precipitating event for people to apply for Medicaid, this change may particularly affect Medicaid payments for nursing facilities.

Staffing rule: The law delays implementation of a Biden-era rule intended to help address long-standing concerns about staffing shortages and the quality of care in nursing homes until 2034. A Texas judge overturned key requirements from the rule in May 2025; and the Trump Administration rescinded the rule in December 2025.

Freezing home equity limit: The reconciliation law reduces maximum home equity limits on the homes of Medicaid nursing facility applicants to $1 million, starting in 2028. The limits will not grow over time and thus, become more binding in future years (as of 2025, 11 states had home equity limits higher than $1 million). Once this cap takes effect, people in those states who would otherwise be eligible may no longer qualify for Medicaid long-term care. 

Immigration enforcement: The law provides additional funding to Immigration and Customs Enforcement to expand detention and deportation operations of immigrants in the U.S., raising questions about workforce shortages. Immigrants made up 21% of workers in nursing facilities in 2023.

Effective prohibition on new provider taxes or increases to existing ones: States are permitted to finance the non-federal share of Medicaid spending through healthcare-related taxes or “provider taxes” and often use those tax revenues to bolster provider payment rates. All but six states have taxes on nursing facilities. The law effectively prohibits states from enacting any new provider taxes or from increasing existing ones. Historically, states have used provider tax revenues as a mechanism to sustain Medicaid spending during budget shortfalls and to bolster payment rates, and the prohibition will reduce states’ ability to do so in the future. Recent data from a 50-state survey of state Medicaid programs show that 7 states (CO, KY, MA, MN, NJ, NC, and OK) planned to increase taxes on nursing facilities in FY 2026, though the new reconciliation law may prevent these increases from taking effect.

As of July 2025, there are 14,742 nursing facilities certified by CMS (Figure 1). The number of nursing facilities certified by CMS decreased by 6% between July 2015 and July 2025. There has generally been a steady decline during that time period. In order to receive payment under the Medicare and/or Medicaid programs, nursing facilities are required to follow certain regulations and be certified by CMS. The decreased number of nursing facilities reflects the net change in the number of certified facilities after accounting for newly-certified facilities and facilities that are no longer certified, including facilities that closed.

There are about 1.24 million residents living in certified nursing facilities (Figure 1). Since 2021, the number of nursing facility residents has gradually increased from 1.10 million to 1.24 million. However, between 2015 and 2025, the number of residents living in nursing facilities decreased by 9%, with most of that coming from a steep decline between 2020 and 2021, reflecting the effects of the COVID-19 pandemic. Prior to the pandemic, the number of residents was relatively steady, although it declined from 1.37 million in 2015 to 1.32 million in 2020. COVID-19 exacerbated the decrease in nursing facility residents—in part because nursing facility residents and staff incurred so many deaths during the pandemic.

Number of Certified Nursing Facilities and Residents, 2015-2025 (Column Chart)

Residents receive an average of 3.85 hours of nursing care per day, including 0.87 hours of LPN care, 0.68 hours of RN care, and 2.3 hours of nurse aide care (Figure 2). While staffing levels have gradually slightly increased overtime since 2022, the average hours of nursing care that nursing facility residents received declined by 7%, from 4.13 hours to 3.85 hours per resident each day, between July 2015 and July 2025. The decrease was driven by a 19% decline in registered nurse (RN) hours and a 7% decline in nurse aide hours. Licensed practical nurse (LPN) hours increased by 5% in this same time period. The 2024 rule would have required nursing facilities to meet minimum standards in staff hours for RNs and nurse aides but did not include any requirements for LPNs. A Texas judge overturned key elements of the rule in April 2025, the 2025 reconciliation law delayed all provisions of the rule until October 2034 (Box 1), and the Trump Administration rescinded the rule in December 2025. Previous KFF analysis show that just 19% of nursing facilities met the standards at the time of the rule’s passing.

The total hours of nursing care per resident decreased between 2015 and 2025, but rose briefly in 2021. The relatively higher staffing hours per resident in 2021 reflected the fact that the number of residents declined more quickly than the number of total nursing staff hours did between 2020 and 2021. In 2021, the number of staffing hours was 12% lower than in 2020 (data not shown). These lower staffing levels in the last several years align with data as of March 2024 showing that the number of workers employed at long-term care facilities continues to remain below pre-pandemic levels.

Nursing Facility Hours per Resident Day by Nurse Staff Type, 2015-2025 (Stacked column chart)

Box 2: Direct Care Staff in Nursing Facilities

Registered Nurse (RN): Registered nurses (RNs) are responsible for the overall delivery of care to the residents and assess needs of nursing facility residents. RNs are typically required to have between two and six years of education.

Licensed Practical Nurse (LPN) and Licensed Vocational Nurse (LVN): LPNs/LVNs provide care under the direction of an RN. Together, RNs and LPNs/LVNs make sure each resident’s plan of care is being followed and their needs are being met. LPNs/LVNs typically have one year of training. 

Certified Nurse Aides/Assistants (CNAs): CNAs work under the direction of a licensed nurse to assist residents with activities of daily living such as eating, bathing, dressing, assisting with walking/exercise, and using the bathroom. All CNAs must have completed a nurse aide training and competency evaluation program within 4 months of their employment. They must also pursue continuing education each year.

Nursing facilities receive an average of 9.5 deficiencies over the course of a survey cycle and 27% of facilities receive deficiencies for actual harm or jeopardy (Figure 3, Box 3). While nearly all facilities receive at least one deficiency during a survey cycle, this analysis focuses on the share with serious deficiencies since there is wide variation in the types of deficiencies a facility may receive. Both the average number of deficiencies and the share of facilities with serious deficiencies have increased over time, which could reflect increased oversight and low staffing levels that lead to staffing-related deficiencies. Between 2015 and 2025, the average count of deficiencies per nursing facility increased from 6.8 to 9.5, an increase of 40%. The increase was generally steady overtime, except for two stable periods: 1) between 2020 and 2022 and 2) between 2024 and 2025 (though 2024 and 2025 reported the highest number deficiencies during the 10-year period). The share of facilities reporting serious deficiencies between 2015 and 2025 increased from 17% to 27%, with a slight decrease between 2024 and 2025. A 2023 report on nursing home staffing by Abt Associates found that better-staffed nursing homes are typically cited for fewer deficiencies or violations of federal regulations, suggesting there may be a relationship between the increase in deficiencies and the general decrease in staffing levels over the 10-year time period.

Box 3: Deficiencies in Nursing Facilities

Nursing facilities receive deficiencies when they fail to meet the requirements necessary to receive federal funding. Deficiencies are often given for problems which may have negative effects on the health and safety of residents. Commonly cited deficiencies include a failure to provide necessary care, failure to report abuse or neglect, and violation of infection control requirements. Each of these categories has specific regulations that state surveyors review to determine whether facilities have met the standards.

Deficiencies are characterized by their level of severity: Deficiencies for “actual harm” or “immediate jeopardy” are the most severe and are grouped together under the term, “serious deficiencies.” CMS defines “actual harm” as a “deficiency that results in a negative outcome that has negatively affected the resident’s ability to achieve the individual’s highest functional status.” “Immediate jeopardy” is defined as a deficiency that “has caused (or is likely to cause) serious injury, harm, impairment, or death to a resident receiving care in the nursing facility.” These can include citations to facilities for physically abusing residents, failure to maintain safe living quarters, or failure to provide CPR or other basic life support when necessary for residents.

Average Deficiencies per Nursing Facility and Share of Nursing Facilities Receiving a Deficiency for Actual Harm or Jeopardy, 2015-2025 (Column Chart)

Medicaid is the primary payer for 63% of nursing facility residents; Medicare for 14% of residents; and the remaining 23% of residents have another primary payer (ex. out-of-pocket) (Figure 4). The share of residents by primary payer has stayed relatively stable over time. Medicare does not generally cover long-term care but does cover up to 100 days of skilled nursing facility care following a qualifying hospital stay. KFF polling shows that four in ten adults overall incorrectly believe that Medicare is the primary source of insurance coverage for low-income people who need nursing facility care. 

Distribution of Nursing Facility Residents by Primary Payer in 2025 (Donut Chart)

Nearly three-quarters (73%) of nursing facilities are for-profit, one-fifth (20%) are non-profit, and the remaining seven percent are government-owned (Figure 5). The share of facilities by ownership type has also stayed relatively stable over time but there was increasing scrutiny over the 73% of facilities that are for-profit during the prior Administration. Despite little change in the type of ownership, there have been reports of private equity firms purchasing nursing facilities and changing operations to increase profits, resulting in lower-quality care. The GAO estimates that about 5% of nursing facilities had private equity ownership in 2022.

The Biden Administration issued a final rule in November 2023 on nursing facilities (separate from the April 2024 staffing rule that was delayed by the 2025 reconciliation law and then rescinded by the Trump Administration in December 2025). The 2023 nursing facility rule requires nursing homes enrolled in Medicare or Medicaid to disclose detailed information regarding their owners, operators, and management, including:

  • Anyone who exercises any financial control over the facility;
  • Anyone who leases or subleases property to the facility, including anyone who owns 5% or more of the total value of the property; and
  • Anyone who provides administrative services, clinical consulting services, accounting or financial services, policies or procedures on operations, or cash management services for the facilities.

Facilities must also disclose whether any of the owning or managing entities are a private equity company or real estate investment trust (REIT). Facilities began self-reporting this data to CMS in early 2024 and the data is now available to the public. However, these data may be incomplete for now as fewer than 100 facilities report private equity ownership and just over 300 facilities report REIT ownership. Other research estimates those counts to be higher. 

Distribution of Nursing Facilities by Profit Status (Donut Chart)

This work was supported in part by The John A. Hartford Foundation. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

Recent Changes in Federal Vaccine Recommendations: What’s the Impact on Insurance Coverage?

Author: Jennifer Kates
Published: Dec 16, 2025

The Trump administration has made several recent changes to federal routine vaccination recommendations. Specifically, under the auspices of Secretary Kennedy, who has long questioned the safety and efficacy of vaccines and stated his intention to review vaccine schedules, the CDC’s Advisory Committee on Immunization Practices (ACIP) has recommended changes (including to age group, type of vaccine, and/or clinical decision-making process) to seven vaccine usage recommendations in the United States: Meningococcal; RSV for adults; RSV for children; influenza; COVID-19; Measles, Mumps, Rubella and Varicella (MMRV); and Hepatitis B. These recommendations, which have been adopted by the HHS Secretary or Acting CDC Director, have raised questions about the implications for insurance coverage, since most insurers are required to cover ACIP/CDC recommended vaccines at no-cost, either due to requirements of the Affordable Care Act or other federal statutes.

Below, we provide an overview of each of these changes and what they mean for coverage requirements. As the table indicates, of the seven recent changes, two have no implications for coverage, two removed the coverage requirement, and three expanded the requirement. When a coverage requirement is removed, an insurer could still choose to cover a vaccine at no cost. In fact, AHIP, the trade association for the health insurance industry whose members cover more than 200 million Americans, announced that health plans will continue to cover all ACIP-recommended immunizations that were recommended as of September 1, 2025 with no cost-sharing for patients through the end of 2026. When a coverage requirement is expanded, insurers (with limited exception) must cover the vaccine at no-cost. The insurance requirement extends to vaccines with “individual decision-making” (also known as “shared clinical decision-making”) recommendations as well, which are those “individually based and informed by a decision process between the health care provider and the patient or parent/guardian”.

In addition to federal requirements for coverage, states have the authority to require state-regulated health insurers (employer plans that are fully insured and individual and small-group marketplace plans) to cover vaccines beyond minimum federal requirements (and not necessarily linked to current ACIP/CDC recommendations). As of December 2025, eight states have moved to do so (and one state authorizes the state Commissioner of Insurance to do so). Still, states cannot impose coverage requirements on self-insured employer plans, which cover most (67%) people with employer coverage.

Additional changes to ACIP-recommended vaccine schedules are likely, as President Trump has issued a Presidential Memorandum calling on HHS and CDC to begin a “process to align U.S. core childhood vaccine recommendations with best practices from ‘peer, developed countries’”. Beyond their implications for insurance coverage, changes to vaccine recommendations, particularly those that narrow or limit access, are likely to have other implications, such as driving down already falling vaccine coverage rates in the United States.

Changes to Vaccine Recommendations and Insurance Coverage
VaccinePrior RecommendationNew RecommendationDate of
Change
Insurance Implications
Meningococcal MenACWY and MenB may be administered at the same visit if indicated (for certain populations).MenABCWY vaccine may be used when both MenACWY and MenB are indicated at the same visit (for certain populations).4/16/25 (ACIP)
6/25/25 (HHS)
Expands coverage requirement to include new pentavalent (5-in-1) MenABCWY vaccine for those indicated. Applies to private insurers, Medicaid, Vaccines for Children Program.
RSV for adultsRecommended for all adults, ages 75 and older and adults ages 60-74 with increased risk. Recommended for all adults, ages 75 and older and adults ages 50-74.4/16/25 (ACIP)
6/25/25 (HHS)
Expands coverage requirement to include those ages 50-59 who are at increased risk. Applies to private insurers, Medicaid, Medicare Part D.
RSV for childrenRecommended that infants aged < 8 months born during or entering their first RSV season who are not protected by maternal vaccination receive nirsevimab.Recommended that clesrovimab, a monoclonal antibody approved in 2025, be added as an option, with no preferential recommendation between nirsevimab and clesrovimab.6/25/25 (ACIP)
7/22/25 (HHS)

 

Expands coverage requirement to include new monoclonal antibody for infants. Applies to private insurers, Medicaid, Vaccines for Children Program.
InfluenzaSingle-dose and multi-dose influenza vaccines recommendedMulti-dose influenza vaccines with Thimerosal no longer recommended6/25/25 (ACIP)
7/22/25 (HHS)
Removes coverage requirement for multi-dose flu vaccine (which will no longer be available in the U.S. market). Applies to private insurers, Medicaid, Vaccines for Children Program. Medicare Part B required to cover by statute, not linked to ACIP/CDC*.
COVID-19Recommended for everyone, ages 6 months and olderVaccination based on individual-based decision-making (also known as shared clinical decision-making) with an emphasis that the risk-benefit of vaccination is most favorable for individuals who are at an increased risk for severe COVID-19 disease and lowest for individuals who are not at an increased risk.9/19/25 (ACIP)
Last week of September (CDC)
 

 

Coverage requirement remains unchanged (vaccines recommended through individual-based decision-making must be covered at no-cost). Applies to private insurers, Medicaid, Vaccines for Children Program. Medicare Part B required to cover by statute, not linked to ACIP/CDC.
Measles, Mumps, Rubella, VaricellaBoth the combined measles, mumps, and rubella (MMR) vaccine and combined measles, mumps, rubella, and varicella (MMRV) vaccine recommended for childrenRecommendation that Varicella vaccine be given as stand-alone vaccine (combined MMRV no longer recommended)9/19/25 (ACIP)
Last week of September (CDC)
Removes coverage requirement for combined MMRV. Applies to private insurers, Medicaid, and Vaccines for Children Program.
Hepatitis BBirth dose recommended for all infantsVaccination based on individual-based decision-making for parents deciding whether to give the hepatitis B vaccine, including the birth dose, to infants born to women who test negative for the virus. For those infants not receiving the birth dose, recommendation that initial dose be administered no earlier than two months of age. Additionally, when evaluating need for subsequent dose in children, recommended that parents should consult with health care providers to decide whether to test first.**12/5/25 (ACIP)
12/16/25 (CDC, change in birth dose recommendation adopted; review of screening recommendation still underway)
Coverage requirement remains unchanged (vaccines recommended through individual-based decision-making must be covered at no-cost). Applies to private insurers, Medicaid, Vaccines for Children Program. Medicare Part B required to cover by statute, not linked to ACIP/CDC.

Notes:
See KFF, ACIP, CDC, and Insurance Coverage of Vaccines in the United States, for coverage criteria by payer.
*While Medicare Part B is required to cover influenza vaccine by statute, not linked to ACIP/CDC, this change will result in the removal of the multi-dose vaccine from the market.
**CDC has not changed its recommendations for adult hepatitis B vaccinations, which are that adults aged 19–59 years, and adults aged 60 years and older with risk factors for hepatitis B or without identified risk factors but seeking protection, receive the vaccine if they had not been previously vaccinated. See CDC Hepatitis B Vaccine Administration.

Sources: