Advancing Health Equity Requires More and Better Data

Author: Samantha Artiga
Published: Oct 27, 2021

One hallmark of the COVID-19 pandemic has been its disproportionate impact on people of color. Although recent trends point to a narrowing in racial disparities in COVID-19 cases and deaths, overall, people of color have borne the brunt of the pandemic—from higher rates of infection, illness, and death to negative mental health, social, and economic impacts. The disparate impacts of the pandemic have given rise to wide recognition of and increased calls to address longstanding racial disparities in health and health care. Yet, nearly two years into the pandemic, we still lack comprehensive data to understand disparities in COVID-19 impacts and uptake of the vaccines. Looking ahead to the next phases of the vaccination rollout and pandemic recovery, data gaps will likely continue, limiting our ability to identify and address disparities.

Data are a cornerstone for efforts to address disparities and advance health equity. Data are essential for identifying where disparities exist, directing efforts and resources to address disparities as they are identified, measuring progress toward achieving greater equity, and establishing accountability for achieving progress. Without adequate data, inequities remain unseen and unaddressed.

A recurrent issue over the course of the pandemic has been a lack of data regarding racial disparities. Early in the pandemic, the federal government and many states did not report COVID-19 cases, hospitalizations, and deaths by race or ethnicity. Over time, reporting of these data has increased, but the data still have gaps and limitations. There was more racial/ethnic data reported when the COVID-19 vaccination rollout began, but these data also have deficiencies. The Centers for Disease Control and Prevention (CDC) reports race/ethnicity of people vaccinated at the federal level, but race/ethnicity data is missing for nearly 40% of people vaccinated. Moreover, CDC is not reporting vaccinations by race/ethnicity at the state level, limiting understanding of how disparities may vary across the country. In the absence of this reporting, KFF has conducted an ongoing analysis of state-reported data on vaccinations by race/ethnicity. However, this effort is challenged by inconsistencies in how states report their data. Unlike federally reported data, which is standardized, states vary in the racial/ethnic classifications they use, their units of measure, and their frequency of reporting, among other factors.

Data that will be key for identifying and addressing disparities in the next phases of the vaccination rollout and recovery effort are not currently available. As the next phases of the vaccination rollout occur, it will be important to understand who is and is not getting booster shots and, when younger children become eligible, whether they face the same disparities in vaccination uptake that affected adults. As more people are vaccinated, we will also want to know if some groups are at increased risk for breakthrough infections and illness. Insight into testing patterns will also be important, particularly with many children having returned to in-person school and growing numbers of people returning to in-person work and social activities. However, we currently lack data to answer many of these questions. For example, there is very limited data on vaccinations by race/ethnicity broken out by age, meaning that we do not know if there are racial disparities in the uptake of vaccinations among adolescents who are already eligible and will not know if there are disparities among younger children when they become eligible without improved reporting. Data are not available to identify who received which type of COVID-19 vaccine, which likely will be important for understanding who should receive a booster dose. Moreover, at this time, CDC is not reporting race/ethnicity of booster dose recipients, and only a handful of states are reporting these data. Beyond vaccination data gaps, others have highlighted the paucity of data to identify whether some groups are at higher risk for breakthrough infections and illness. Additionally, there still are major gaps in data on testing, including whether testing rates vary by race/ethnicity, whether some groups face greater barriers to accessing testing than others (e.g., cost, distance traveled, etc.), if times to receive test results vary across groups, and if there is variation in the types of tests (e.g., at home, rapid, PCR) people use.

Increasing availability of high-quality, comprehensive data disaggregated by race/ethnicity is a prerequisite for efforts to advance health equity, not only related to COVID-19 but in health and health care more broadly. Prioritizing data collection and reporting to identify and address disparities by race/ethnicity and other factors is a key first step to addressing data gaps and limitations. As part of this work, focused efforts to expand data available for smaller groups, such as American Indian and Alaska Native and Native Hawaiian and Other Pacific Islander people, as well as subpopulations of the broader racial/ethnic categories will be important for a complete understanding of individuals’ experiences. Increased standardization of racial/ethnic data would also aid in analyzing and interpreting data. The federal government has minimum standards for reporting race/ethnicity data. However, these standards were last revised in 1997 and may not fully reflect the diversity of today’s population. Moreover, the standards do not apply to reporting by states, localities, or private entities. Encouraging, incentivizing, or requiring minimum standards across more entities would provide more consistent data. In some cases, improving data may require modernizing data collection and reporting systems and structures to allow for more disaggregated data reporting. Conducting outreach to providers and other entities that collect data as well as directly to individuals reporting data about the importance and value of demographic data may also help to improve the completeness and accuracy of data over time.

News Release

Annual Survey of Medicaid Directors Finds States Continue to Adopt Policies to Respond to the Pandemic and Are Addressing Issues Related to Social Determinants of Health and Health Equity

Published: Oct 27, 2021

More than 18 months into the COVID-19 pandemic, state Medicaid programs around the country continue to reshape policy in response to the public health emergency and at the same time advance broader initiatives and priorities, including efforts to address the social determinants of health and health equity, finds a new KFF survey.

The 21st annual KFF survey of Medicaid directors in states and the District of Columbia highlights policies in place and changes implemented or planned for the current fiscal year (which for most states runs from July to June). It also reviews state experiences with policies adopted in response to the COVID-19 pandemic. A companion survey report provides a look at state Medicaid directors’ spending and enrollment projections and expectations beginning the current fiscal year, including preparations for the eventual unwinding of the COVID-19 public health emergency (PHE) and the return to a new normal of operations.

The pandemic has profoundly affected Medicaid program spending, enrollment, and policy, challenging state Medicaid agencies, providers, and enrollees in a myriad of ways, the survey shows.

States report a variety of activities offered by Medicaid managed care plans aimed at promoting the take-up of COVID-19 vaccinations, for instance. These include member and provider incentives, member outreach and education, provider engagement, assistance with vaccination scheduling and transportation coordination, and partnerships with state and local organizations.

In state fiscal years (FY) 2021 and FY 2022 more states were implementing or planning provider rate increases compared to restrictions, and the majority of reporting states indicated that provider payment changes were related to COVID-19. The most common of these were rate increases for nursing facilities and providers of home and community-based services. While most states rely on capitated arrangements with managed care organizations to deliver Medicaid services to most Medicaid enrollees, fee for service rates remain important benchmarks for managed care payments in many states, often serving as the state-mandated payment floor.

Over half of responding states report that the pandemic prompted them to expand programs to address social determinants of health, especially related to housing. Also, three-quarters of responding states reported initiatives in place or planned to address racial and ethnic disparities in health, with many focusing on disparities in specific health outcomes including maternal and infant health, behavioral health, and COVID-19 outcomes and vaccination rates.

Policy-related survey findings appear across five sections of the report: delivery systems, benefits and telehealth, social determinants of health, provider rates and taxes, and pharmacy. Among the other key findings:

  • Twenty-two states reported new or enhanced benefits in FY 2021, and 29 states are adding or enhancing benefits in FY 2022. Many states are focused on expanding behavioral health services, care for pregnant and postpartum women, dental benefits, and housing-related supports. A large majority of states also cited the value of telehealth in maintaining or expanding access to care during the pandemic, particularly for behavioral health. Post-pandemic telehealth coverage and reimbursement policies are being evaluated in most states, with states weighing expanded access against quality concerns, especially for audio-only telehealth.
  • Most states that contract with managed care organizations (36 of 41 states) reported that 75 percent or more of their Medicaid beneficiaries were enrolled in MCOs as of July 1, 2021. Children and adults (particularly Medicaid expansion adults) are much more likely to be enrolled in Medicaid managed care than elderly individuals with disabilities.
  • Two-thirds of states that include Medicaid pharmacy benefits in managed care contracts reported prohibiting spread pricing in managed care organization subcontracts with their pharmacy benefit managers. This reflects a significant increase in state Medicaid agency oversight of these arrangements, in which a pharmacy benefit manager charges a Medicaid managed care organization more than it pays a pharmacy for a prescription drug and then pockets the difference.

In the companion report, KFF researchers analyze Medicaid enrollment and spending trends for state fiscal years 2021 and 2022.

The survey found that states expected Medicaid enrollment growth to slow to 4.5 percent in FY 2022 (down from 10.3% in FY 2021); total federal and state Medicaid spending to grow by 7.3 percent (down from 11.4% in FY 2021); and state Medicaid spending to grow by 14 percent (up from 4% in FY 2021).

The recent federal extension of the PHE to mid-January 2022 will likely reshape states’ projections and delay anticipated changes in enrollment and spending trends further into or beyond FY 2022. How long the PHE remains in place is pivotal, because enhanced federal Medicaid money is tied to it, as are the “maintenance of eligibility” requirements which have ensured continuous coverage for Medicaid enrollees. However, much uncertainty remains about the duration of the public health emergency and the progression of the pandemic.

When the short-term federal financial support related to the pandemic eventually ends, states are likely to face pressures to contain growth in state spending tied to enrollment, even as they work to overcome challenges with systems and staffing to ensure that eligible individuals remain covered by Medicaid or transition to other sources of coverage.

KFF researchers conducted the survey over the summer with analysts from Health Management Associates.

The full survey reports are:

For more data and analyses about Medicaid, visit kff.org

States Respond to COVID-19 Challenges but Also Take Advantage of New Opportunities to Address Long-Standing Issues

Results from a 50-State Medicaid Budget Survey for State Fiscal Years 2021 and 2022

Authors: Kathleen Gifford, Aimee Lashbrook, Sarah Barth, Mike Nardone, Elizabeth Hinton, Madeline Guth, Lina Stolyar, and Robin Rudowitz
Published: Oct 27, 2021

Executive Summary

The coronavirus pandemic has generated both a public health crisis and an economic crisis, with major implications for Medicaid—a countercyclical program—and its beneficiaries. The pandemic has profoundly affected Medicaid program spending, enrollment, and policy, challenging state Medicaid agencies, providers, and enrollees in a variety of ways.1  As states continue to respond to pandemic challenges, they are also pushing forward non-emergency initiatives as well as preparing for the unwinding of the public health emergency (PHE) and the return to a new normal of operations. The current PHE declaration expires on January 16, 2022,2  though the Biden Administration could renew the declaration again and has notified states that it will provide 60 days of notice prior to the declaration’s termination or expiration.3  The duration of the PHE will affect a range of emergency policy options4  in place as well as a 6.2 percentage point increase in the federal match rate (“FMAP”)5  (retroactive to January 1, 2020) available if states meet certain “maintenance of eligibility6  requirements included in the Families First Coronavirus Response Act (FFCRA).7 

This report highlights certain policies in place in state Medicaid programs in state fiscal year (FY) 2021 and policy changes implemented or planned for FY 2022, which began on July 1, 2021 for most states;8  we also highlight state experiences with policies adopted in response to the COVID-19 pandemic. The findings are drawn from the 21st annual budget survey of Medicaid officials in all 50 states and the District of Columbia conducted by the Kaiser Family Foundation (KFF) and Health Management Associates (HMA), in collaboration with the National Association of Medicaid Directors (NAMD). States completed this survey in mid-summer of 2021, following increased vaccination rates and declining COVID-19 cases but just prior to a new wave of COVID-19 infections, hospitalizations, and deaths driven by the highly contagious Delta variant. Overall, 47 states responded to this year’s survey, although response rates for specific questions varied.9  This report summarizes key findings across five sections: delivery systems, benefits and telehealth, social determinants of health (which also includes information on health equity and COVID-19 vaccine uptake), provider rates and taxes, and pharmacy (ES Figure 1).

ES Figure 1: Key Themes Explored in KFF’s 2021 Medicaid Budget Survey

Delivery Systems

The vast majority of states that contract with managed care organizations (MCOs) reported that 75% or more of their Medicaid beneficiaries were enrolled in MCOs as of July 1, 2021.10  Children and adults (particularly expansion adults) are much more likely to be enrolled in an MCO than elderly or individuals with disabilities. MCOs provide comprehensive acute care (i.e., most physician and hospital services) and in some cases long-term services and supports (LTSS) to Medicaid beneficiaries. MCOs are at financial risk for the services covered under their contracts and receive a per member per month “capitation” payment for these services.11  Enrollment in Medicaid MCOs has grown12  since the start of the pandemic, tracking with overall growth in Medicaid enrollment.13  Throughout other sections of this survey, we report state policy changes that often apply to both the managed care and/or fee-for-service (FFS) delivery systems.

Benefits and Telehealth

The number of states reporting new benefits and benefit enhancements in FY 2021 and FY 2022 greatly outpaced the number of states reporting benefit cuts and limitations. While state benefit actions are often influenced by prevailing economic conditions,14  when the COVID-19 pandemic and resulting economic downturn hit, instead of restricting benefits, most states used Medicaid emergency authorities to temporarily adopt new benefits, adjust existing benefits, and/or waive prior authorization requirements.15  States may choose to permanently extend these emergency benefit changes past the PHE period. Many states are now focused on expanding behavioral health services, care for pregnant and postpartum women, dental benefits, and housing-related supports.

An overwhelming majority of states noted the benefits of telehealth in maintaining or expanding access to care during the pandemic, particularly for behavioral health services. In response to the COVID-19 pandemic, many states expanded Medicaid telehealth coverage, including through the use of Medicaid emergency authorities.16  Preliminary CMS data shows that utilization of telehealth in Medicaid and CHIP has dramatically increased during the pandemic; however, telehealth access is not equally available to all Medicaid enrollees.17  Nearly all responding states report covering a range of services via audio-visual telehealth as of July 2021, with slightly fewer states reporting audio-only coverage. All or nearly all responding states at least sometimes cover audio-visual delivery of behavioral health, reproductive health, and well/sick child services, with fewer states reporting audio-visual coverage of HCBS and dental services. Trends in telehealth utilization during the pandemic vary across states. Post-pandemic telehealth coverage and reimbursement policies are being evaluated in most states, with states weighing expanded access against quality concerns, especially for audio-only telehealth.

Social Determinants of Health

Most states reported that the COVID-19 pandemic prompted them to expand Medicaid programs to address social determinants of health, especially related to housing. States also report existing initiatives in this area in MCO contracts (e.g., requirements for MCOs to screen and refer enrollees for social needs). Social determinants of health (SDOH) are the conditions in which people are born, grow, live, work, and age that shape health.18  In response to the pandemic, federal legislation has been enacted to provide significant new funding to address the health and economic effects of the pandemic including direct support to address food and housing insecurity as well as stimulus payments to individuals, federal unemployment insurance payments, and expanded child tax credit payments. While measures like these have a direct impact in helping to address SDOH, health programs like Medicaid can also play a supporting role. Although federal Medicaid rules prohibit expenditures for most non-medical services, state Medicaid programs have been developing strategies to identify and address enrollee social needs both within and outside of managed care.

Three-quarters of responding states reported initiatives to address disparities in health care by race/ethnicity in Medicaid, with many focusing on specific health outcomes including maternal and infant health, behavioral health, and COVID-19 outcomes and vaccination rates. The COVID-19 pandemic exacerbated already existing health disparities for a broad range of populations, but specifically for people of color.19  Multiple analyses of available federal, state, and local data show that people of color are experiencing a disproportionate burden of COVID-19 cases and deaths. In addition to worse health outcomes, data from the Census Bureau’s Household Pulse Survey show that during the pandemic, Black and Hispanic adults have fared worse than White adults across nearly all measures of economic and food security.20 

States report a variety of MCO activities aimed at promoting the take-up of COVID-19 vaccinations. These include member and provider incentives, member outreach and education, provider engagement, assistance with vaccination scheduling and transportation coordination, and partnerships with state and local organizations. Given the large number of people covered by Medicaid, including groups disproportionately at risk of contracting COVID-19 as well as many individuals facing access challenges, state Medicaid programs and Medicaid MCOs (which enroll over two-thirds of all Medicaid beneficiaries)21  can be important partners in COVID-19 vaccination efforts.22 

Provider Rates and Taxes

Reported FFS rate increases outnumber rate restrictions in both FY 2021 and FY 2022, with more than two-thirds of states indicating payment changes related to COVID-19. The most common COVID-19-related payment changes were rate increases for nursing facilities and home and community-based services (HCBS) providers. Although states historically are more likely to restrict rates during economic downturns, states likely found rate reductions to be less feasible as many providers faced financial strain from the increased costs of COVID-19 testing and treatment or from declining utilization of non-urgent care, especially in the early months of the pandemic.23  Starting early in the pandemic, Congress, states,24  and the Administration adopted a number of policies to ease financial pressure on hospitals and other health care providers.25 

Among states that implemented COVID-19-related risk corridors in 2020 or 2021 MCO contracts, about half reported that they have or will recoup funds, while recoupment in the remaining states remains undetermined. Although state capitation payments to MCOs (and prepaid health plans, known as PHPs) must be actuarially sound,26  states use a variety of mechanisms (including risk corridors) to adjust managed care plan risk, incentivize performance, and ensure plan payments are not too high or too low.27  While most states rely on capitated arrangements with comprehensive MCOs to deliver Medicaid services to most of their Medicaid populations, state-determined FFS rates remain important benchmarks for MCO payments in many states, often serving as the state-mandated payment floor. About two-thirds of responding states with managed care plans (MCOs or PHPs) reported minimum fee schedule requirements that set a reimbursement floor for one or more specified provider types.

Pharmacy

A majority of responding states reported prohibiting spread pricing in MCO subcontracts with their pharmacy benefit managers (PBMs), which reflects a significant increase in state Medicaid agency oversight of MCO subcontracts with PBMs compared to previous surveys. The administration of the Medicaid pharmacy benefit has evolved over time to include delivery of these benefits through MCOs and increased reliance on PBMs.28  PBMs may perform a variety of administrative and clinical services for Medicaid programs (e.g., negotiating rebates with drug manufacturers, adjudicating claims, monitoring utilization, overseeing preferred drug lists (PDLs) etc.) and are used in FFS and managed care settings. MCO subcontracts with PBMs are under increasing scrutiny as more states recognize a need for transparency and stringent oversight of these subcontract arrangements.

More than half of states reported newly implementing or expanding at least one initiative to contain prescription drug costs in FY 2021 and/or FY 2022. While Medicaid net spending on prescription drugs remained almost unchanged from 2015 to 2019, spending before rebates increased, likely reflecting the launch of expensive new brand drugs and increasing list prices.29  As a result, state policymakers remain concerned about Medicaid prescription drug spending growth and the entry of new high-cost drugs to the market. States continuously innovate to address these pressures with cost containment strategies and utilization controls that include but are not limited to PDLs, managed care pharmacy carve-outs, and multi-state purchasing pools. A number of states also report laying the groundwork to employ value-based arrangements (VBA) with pharmaceutical manufacturers as a way to control pharmacy costs.

Looking Ahead

States completed this survey in mid-summer of 2021, following increased vaccination rates and declining COVID-19 cases but just prior to a new wave of COVID-19 infections, hospitalizations, and deaths driven by the highly contagious Delta variant. At that time, states continued to focus on ongoing pandemic-related challenges for agencies, providers, and enrollees, but were also looking ahead to prepare for challenges associated with the unwinding of the PHE. Despite the upheaval caused by the pandemic, states also continued to advance non-emergency priority initiatives and to maintain efficient and effective program operations.

State officials also pointed to lessons learned during the pandemic that may provide opportunities to strengthen relationships with providers, develop new relationships with other community stakeholders, and improve enrollee access and outcomes during and beyond the PHE transition period. States identified ongoing efforts to advance delivery system reforms and to address health disparities and social determinants of health as areas of promise to build on in the future. Looking ahead, uncertainty remains regarding the future course of the pandemic and what kind of “new normal” states can expect in terms of service provision and demand as well as challenges associated with the unwinding of the PHE. In addition, as part of budget reconciliation, Congress is currently considering additional Medicaid policies building on earlier legislation to expand coverage and increase HCBS funding, which could have further implications for the direction of Medicaid policy in the years ahead. Finally, states may pursue and CMS under the Biden administration may promote Section 1115 demonstration waivers to help improve social determinants of health and advance health equity.30 

Acknowledgements

Pulling together this report is a substantial effort, and the final product represents contributions from many people. The combined analytic team from KFF and Health Management Associates (HMA) would like to thank the state Medicaid directors and staff who participated in this effort. In a time of limited resources and challenging workloads, we truly appreciate the time and effort provided by these dedicated public servants to complete the survey and respond to our follow-up questions. Their work made this report possible. We also thank the leadership and staff at the National Association of Medicaid Directors (NAMD) for their collaboration on this survey. We offer special thanks to Jim McEvoy and Kraig Gazley at HMA who developed and managed the survey database and whose work is invaluable to us; and to Meghana Ammula at KFF who assisted with review of data and text.

Introduction

The COVID-19 pandemic and public health emergency (PHE) declaration dramatically impacted state Medicaid programs, requiring states to rapidly adapt to meet the changing needs of Medicaid enrollees and providers. Nationwide, Medicaid provided health insurance coverage to nearly one in five  Americans in 202031  and accounted for nearly one-sixth of all U.S. health care expenditures in 2019.32  Total Medicaid/CHIP enrollment grew to 82.3 million in April 2021, an increase of 11.1 million (15.5%) from February 2020, right before the pandemic and when enrollment began to steadily increase.33 

Beginning early in the pandemic, states and the federal government implemented numerous Medicaid emergency authorities to enhance state capacity to respond to the emerging public health and economic crises.34  In addition, Congress authorized changes to Medicaid through the Families First Coronavirus Response Act (FFCRA)35  and Coronavirus Aid, Relief, and Economic Security (CARES) Act,36  including a 6.2 percentage point increase in the federal Medicaid match rate (“FMAP”) (retroactive to January 1, 2020). This “enhanced FMAP” is available to states that meet “maintenance of eligibility” (MOE) conditions which ensure continued coverage for current enrollees as well as coverage of coronavirus testing and treatment.37  All of these changes (the emergency policy actions, the fiscal relief and the MOE) are tied to the duration of the PHE. The current PHE declaration expires on January 16, 2022,38  though the Biden Administration could renew the declaration again and has notified states that it will provide 60 days of notice prior to the declaration’s termination or expiration.39  The Biden Administration also recently updated previous state guidance regarding the end of the PHE and transition to normal operations,40  allowing states additional time to complete renewals and redeterminations once the PHE ends.41 

This report draws upon findings from the 21st annual budget survey of Medicaid officials in all 50 states and the District of Columbia conducted by KFF and Health Management Associates (HMA), in collaboration with the National Association of Medicaid Directors (NAMD). (Previous reports are archived here.42 ) This year’s KFF/HMA Medicaid budget survey was conducted via a survey sent to each state Medicaid director in June 2021 and then a follow-up telephone interview. Overall, 47 states responded in summer of 2021,43  although response rates for specific questions varied. The District of Columbia is counted as a state for the purposes of this report. Given differences in the financing structure of their programs, the U.S. territories were not included in this analysis. The survey instrument is included as an appendix to this report.

This report examines Medicaid policies in place or implemented in state fiscal year (FY) 2021, policy changes implemented at the beginning of FY 2022, and policy changes for which a definite decision has been made to implement in FY 2022 (which began for most states on July 1).44  We also examine state experiences with policies adopted in response to the COVID-19 pandemic. Policies adopted for the upcoming year are occasionally delayed or not implemented for reasons related to legal, fiscal, administrative, systems, or political considerations, or due to CMS approval delays. States completed this survey in mid-summer of 2021, following increased vaccination rates and declining COVID-19 cases but just prior to a new wave of COVID-19 infections, hospitalizations, and deaths driven by the highly contagious Delta variant. Key findings, along with state-by-state tables, are included in the following sections:

Delivery Systems

Context

For more than two decades, states have increased their reliance on managed care delivery systems often with broad goals to improve access and outcomes, enhance care management and care coordination, and better control costs.45  State managed care contracts vary widely, for example, in the populations required to enroll, the services covered (or “carved in”), and the quality and performance incentives and penalties provided. In general, most states contract with risk-based managed care organizations (MCOs) that cover a comprehensive set of benefits (acute care services and sometimes long-term services and supports), but many also contract with limited benefit prepaid health plans (PHPs) that offer a narrow set of services such as dental care, nonemergency medical transportation, or behavioral health services. A minority of states operate primary care case management (PCCM) programs which retain fee-for-service (FFS) reimbursements to providers, but enroll beneficiaries with a primary care provider who is paid a small monthly fee to provide case management services in addition to primary care.

MCOs are at financial risk for the services covered under their contracts and receive a per member per month “capitation” payment for these services.46  (The Provider Rates and Taxes section of this report includes information on state options to address MCO payment issues in response to the COVID-19 pandemic.) Enrollment in Medicaid MCOs has grown since the start of the pandemic, tracking with overall growth in Medicaid enrollment.47 

This section provides information about:

  • Managed care models;
  • Populations covered by risk-based managed care; and
  • Managed care changes

Findings

Managed Care models

Capitated managed care remains the predominant delivery system for Medicaid in most states. As of July 2021, all states except four – Alaska, Connecticut,48  Vermont,49  and Wyoming – had some form of managed care (MCOs and/or PCCMs) in place. As of July 2021, 41 states50  were contracting with MCOs, up from 40 states in 2019 (with the addition of North Carolina), and only two of these states (Colorado and Nevada) did not offer MCOs statewide. Twelve states reported operating a PCCM program, unchanged from 2019.51 

Of the 47 states that operate some form of managed care, 35 states operate MCOs only,52  six states operate PCCM programs only,53  and six states operate both MCOs and a PCCM program (Figure 1 and Table 1). In total, 27 states54  were contracting with one or more PHPs to provide Medicaid benefits including behavioral health care, dental care, vision care, non-emergency medical transportation (NEMT), long-term services and supports (LTSS).

Comprehensive Medicaid Managed Care Models in States as of July 1, 2021

Populations Covered by Risk-Based Managed Care

The vast majority of states that contract with MCOs (36 of 41) reported that 75% or more of their Medicaid beneficiaries were enrolled in MCOs as of July 1, 2021. This is an increase of three states compared to the 2019 survey and includes the ten states with the largest total Medicaid enrollment (Figure 2 and Table 1). These ten states account for over half of all Medicaid beneficiaries across the country.55 

Children and adults, particularly those enrolled through the ACA Medicaid expansion, are much more likely to be enrolled in an MCO than elderly Medicaid beneficiaries or persons with disabilities. Thirty-seven of the 41 MCO states reported covering 75% or more of all children through MCOs. Of the 38 states56  that had implemented the ACA Medicaid expansion as of July 1, 2021, 31 were using MCOs to cover newly eligible adults. The large majority of these states (28 states) covered more than 75% of beneficiaries in this group through capitated managed care. Thirty-four of the 41 MCO states reported covering 75% or more of low-income adults in pre-ACA expansion groups (e.g., parents, pregnant women) through MCOs. In contrast, the elderly and people with disabilities were the group least likely to be covered through managed care contracts, with only 19 of the 41 MCO states reporting coverage of 75% or more such enrollees through MCOs (Figure 2).

MCO Managed Care Penetration Rates for Select Groups of Medicaid Beneficiaries as of July 1, 2021

Managed Care Changes

A number of states reported a variety of managed care changes made in state fiscal year (FY) 2021 or planned for FY 2022. Notable changes included the following:

  • North Carolina reported implementing its first MCO program. On July 1, 2021, North Carolina launched new MCO “Standard Plans,” offering integrated physical and behavioral health services statewide, with mandatory enrollment for most population groups (nearly 1.6 million enrollees).
  • Four states (Arizona, Illinois, Kentucky, and New York) reported managed care changes for children in foster care. Arizona established a fully integrated managed care plan for children in state custody in April 2021; Illinois transitioned youth in care of the Illinois Department of Children and Family Services into the YouthCare Health Plan in September 2020; Kentucky awarded one MCO a contract to manage and oversee Medicaid services for children enrolled in foster care in FY 2021; and New York began mandatory MCO enrollment of children and youth in direct placement foster care in New York City and children and youth placed in foster care in the care of Voluntary Foster Care Agencies statewide in July 2021.
  • Two states (District of Columbia and Tennessee) reported expanding mandatory MCO enrollment for other targeted populations. The District of Columbia expanded mandatory managed care enrollment in FY 2021 to include beneficiaries receiving Medicaid Supplemental Security Income (SSI) or SSI-related Medicaid because of a disability, and Tennessee intends to integrate intermediate care facility services for individuals with intellectual disabilities and home and community-based services (HCBS) for persons with intellectual disabilities into its statewide managed care program in FY 2022.
  • Three states (Maine, North Carolina, and Oregon) reported changes to their PCCM programs. North Carolina launched a new PCCM option in July 2021 available only to Indian Health Service (IHS) eligible beneficiaries associated with the Eastern Band of Cherokee Indians in select counties in the western part of the state; Oregon reported plans to implement an Indian PCCM program in FY 2022; and Maine reported plans to end its PCCM program in FY 2022 and replace it with a value-based payment model designed to simplify, integrate, and improve the state’s current primary care programs.57 ,58 
  • Texas ended its non-emergency medical transportation (NEMT) PHP program and carved NEMT services into its MCO contracts effective June 1, 2021.
  • Illinois expanded its Medicare-Medicaid Alignment Initiative statewide on July 1, 2021. This initiative allows eligible beneficiaries to receive their Medicare Parts A and B benefits, Medicare Part D benefits, and Medicaid benefits from a single Medicare-Medicaid MCO.

Table 1: Share of the Medicaid Population Covered Under Different Delivery Systems in All 50 States and DC, as of July 1, 2021

Benefits and Telehealth

Context

State Medicaid programs are statutorily required to cover a core set of “mandatory” benefits, but may choose whether to cover a broad range of optional benefits.59  States may apply reasonable service limits based on medical necessity or to control utilization, but once covered, services must be “sufficient in amount, duration and scope to reasonably achieve their purpose.”60  State benefit actions are often influenced by prevailing economic conditions: states are more likely to adopt restrictions during downturns and expand or restore benefits as conditions improve.61  Prior to the COVID-19 pandemic,62  trends in state changes to Medicaid benefits included enhancements of behavioral health services as well as efforts to advance maternal and infant health.63  When the COVID-19 pandemic and resulting economic downturn hit, instead of restricting benefits, most states used Medicaid emergency authorities64  to temporarily adopt new benefits, adjust existing benefits, and/or waive prior authorization requirements, and in 2020,65  some states indicated plans to permanently extend these emergency benefit changes past the public health emergency (PHE) period.66  The American Rescue Plan Act of 2021 also included several provisions designed to expand Medicaid benefits, including expanded federal funding for home and community-based services (HCBS) and for COVID-19 treatment and vaccination.67 

Prior to the pandemic, the use of telehealth in Medicaid was becoming more common.68  While all states had some form of Medicaid coverage for services delivered via telehealth, state policies regarding allowable services, providers, and originating sites varied widely.69  To increase health care access and limit risk of viral exposure during the pandemic, states used Medicaid emergency authorities to expand telehealth coverage and also took advantage of broad authority to further expand telehealth without the need for CMS approval.70  For example, states expanded the range of services that can be delivered via telehealth; established payment parity with face-to-face visits; expanded permitted telehealth modalities (e.g., audio-only telephone communication); and broadened the provider types that may be reimbursed for telehealth services. Preliminary CMS data shows that utilization of telehealth in Medicaid and CHIP has dramatically increased during the pandemic,71  but telehealth access is not equally available to all Medicaid enrollees. For example, while telehealth has the potential to facilitate greater access to care for Medicaid enrollees in rural areas with fewer provider and hospital resources,72  inadequate and/or unaffordable broadband access can be a barrier.73  Prior to the pandemic, one in four Medicaid enrollees lived in a home with limited internet access, with higher rates of limited access among non-White enrollees, older enrollees, and enrollees living in non-metro areas.74  The American Rescue Plan Act75  of 2021 included funding for rural health facilities to increase telehealth capabilities, and the Biden Administration has announced investments to strengthen telehealth in rural and underserved communities.76 

This section provides information about:

  • Non-emergency benefits and
  • Telehealth

Findings

Non-Emergency benefits

We asked states about non-emergency benefit changes implemented during state fiscal year (FY) 2021 or planned for FY 2022, excluding temporary changes adopted via emergency authorities in response to the COVID-19 pandemic but including any emergency changes that have or will become permanent (i.e., transitioned to traditional, non-emergency authorities).77  Benefit changes may be planned at the direction of state legislatures and may require CMS approval.

Benefit Changes Reported by States, FYs 2011 - 2022

The number of states reporting new benefits and benefit enhancements greatly outpaced the number of states reporting benefit cuts and limitations (Figure 3 and Table 2).78  Twenty-two states reported new or enhanced benefits in FY 2021, and 29 states are adding or enhancing benefits in FY 2022. Three states reported benefit cuts or limitations in FY 2021 and two states reported benefit cuts or limitations in FY 2022. We provide additional details about several benefit categories below (Exhibit 1). In addition to benefit categories discussed below, several states reported updated and expanded benefits in HCBS waivers. HCBS changes are a key area to watch in FY 2022 as states may expand covered services using the American Rescue Plan Act’s HCBS federal match rate (“FMAP”) increase; however, these spending plans may not have been finalized ahead of survey completion.79 

Exhibit 1: Select Categories of Benefit Enhancements or Additions
Behavioral Health Services

States continue to focus on behavioral health through the introduction of new and expanded mental health and/or substance use disorder (SUD) benefits in FY 2021 and FY 2022. For example, states report implementing or plans to implement coverage of intensive outpatient services, clinic services, school-based services, and supportive employment services. State approaches to targeting SUD include new or expanded residential/inpatient SUD benefits and coverage of opioid treatment programs.80  Examples of targeted behavioral health services enhancements/additions include:

  • If approved by CMS, Illinois will implement a team-based model of care providing trauma recovery services for adults and children due to chronic exposure to firearm violence in FY 2022. This model will include outreach services, case management, community support services, and group and individual therapy.81 
  • California plans to become the first Medicaid program to cover dyadic care, beginning in FY 2022.82  Dyadic care is a family- and caregiver-focused model of care that provides for early identification of developmental and behavioral health conditions and supports prevention, coordinated care, child social-emotional health and safety, developmentally appropriate parenting, and maternal mental health. During a medical visit, the caregiver and child will be screened for behavioral health conditions, interpersonal safety, tobacco and substance misuse, and social determinants of health.
  • Wisconsin is testing a new approach to care for individuals with SUD and other health conditions. This model, called the Hub and Spoke Health Home Pilot, will provide Integrated Recovery Support Services through “hubs” or lead agencies that deliver SUD treatment and supports and “spokes” that are community partners providing additional supports and care management.83 
Pregnancy and Postpartum Services

States are expanding and transforming care for pregnant and postpartum women to improve maternal health and birth outcomes. Six states will newly cover services provided by doulas.84  Doulas are trained professionals who provide holistic support to women before, during, and shortly after childbirth. A few states are investing in the implementation or expansion of home-visiting programs to teach prevention, parenting, and other skills aimed at keeping children healthy and promoting self-sufficiency. Several states have or will expand behavioral health services for pregnant and postpartum women. For example, in 2021, Louisiana initiated coverage for tobacco cessation services during pregnancy and perinatal depression screening; in 2022, two states (Maine and Maryland) will implement or expand their Maternal Opioid Misuse (MOM) Model, a Center for Medicare and Medicaid Innovation (CMMI) initiative for pregnant and postpartum women with opioid use disorder. Two states (Maryland and Tennessee) have or will implement coverage of dental services for pregnant or postpartum women. In addition to benefit changes aimed at improving maternal health, many states are pursuing eligibility changes in this area, especially through the American Rescue Plan Act’s new option to extend Medicaid postpartum coverage to 12 months via a state plan amendment.85 

Dental Services

States aim to improve oral health by expanding covered dental benefits and extending coverage to new populations. Seven states added, expanded, or restored dental coverage for the adult population86  and several states expanded dental services for pregnant or postpartum women (counted separately and discussed above). Arizona is requesting Section 1115 waiver authority to expand covered adult dental services, which are currently limited to an emergency dental benefit only, for the AI/AN population. In FY 2021, Georgia and New York started covering Silver Diamine Fluoride (SDF). SDF is a topical agent that can be used to halt the development of cavities in children and adults.87 

Five states reported new and expanded housing-related supports, as well as other services and programs tailored for individuals experiencing homelessness or at risk of being homeless. All five states plan to implement these services in FY 2022. Arizona is requesting Section 1115 waiver authority to enhance housing services and interventions for certain beneficiaries who are homeless or at risk of becoming homeless, including by: strengthening outreach strategies, securing funding for housing, and expanding available wraparound housing services and supports.88  The state is requesting federal funding for room and board for short-term, transitional housing (up to 18 months) for individuals leaving homelessness or institutional settings. In early FY 2022, Connecticut established four new service categories targeted to adults experiencing homelessness and high inpatient admissions: care plan development and monitoring, pre-tenancy and transition assistance, housing and tenancy sustaining services, and transportation. When North Carolina implements a new pilot program in FY 2022, called “Healthy Opportunities Pilots,” it will provide coverage of non-medical services to address housing instability and other needs related to social determinants of health (SDOH).89  The District of Columbia and Maine also reported plans to cover certain housing-related supports for certain high-need groups.

Benefit restrictions in FY 2021 and FY 2022 were infrequent and narrowly targeted. Benefit restrictions reflect the elimination of a covered benefit, benefit caps, or the application of utilization controls such as prior authorization for existing benefits. In FY 2021, Wyoming eliminated its chiropractic services benefit and imposed prior authorization for children’s mental health services in excess of thirty visits per calendar year; Utah imposed more restrictive quantity limits for medically necessary urine drug testing; and Missouri eliminated coverage of counseling and person-centered strategies consultation from its four Developmental Disabilities waivers. In FY 2022, South Carolina updated its Vaccines for Children coverage policy following direction from CMS, which resulted in the elimination of Medicaid coverage for component-based vaccine counseling.90 

Telehealth

Prior to the COVID-19 pandemic, the use of telehealth in Medicaid was becoming more common. While all states had some form of Medicaid coverage for services delivered via telehealth, the scope of this coverage varied widely across states.91  To understand the impact of the pandemic on telehealth service delivery, we asked states about telehealth coverage and reimbursement policies as of July 2021, including for live audio-visual and audio-only delivery; telehealth efficacy and utilization trends during the pandemic; changes to telehealth policy planned for FY 2022; and challenges regarding telehealth from the member, provider, and state Medicaid agency perspectives.

Coverage and Reimbursement of Telehealth

Nearly all responding states reported covering a range of fee-for-service (FFS) services delivered via audio-visual telehealth, with slightly fewer states reporting audio-only coverage for each service (Figure 4).92  States were asked to indicate what telehealth modalities (audio-visual and/or audio-only) were covered for each specified service as of July 1, 2021, and whether the service is “always” or “sometimes” covered via each modality. All or nearly all responding states reported that they sometimes or always covered audio-visual delivery of the specified behavioral health, reproductive health, therapy, and well/sick child services, with fewer states reporting audio-visual coverage of HCBS and dental services. Across all service categories, states reported covering audio-only services less frequently than audio-visual services. However, majorities of responding states do report sometimes or always covering audio-only delivery of each specified service and, notably, access to audio-only mental health and SUD telehealth services is available in nearly all responding states. In states that reported covering a service via telehealth “sometimes,” coverage typically depends upon clinical appropriateness or the nature of the service or visit. Thirty-three states with managed care organizations (MCOs) (out of 36 responding)93  report requiring MCOs to cover the same services via telehealth as covered in FFS; one MCO state indicated requiring MCOs to cover the same services “in part.”

FFS Telehealth Coverage of Well/Sick Child Visits as of July 1, 2021

All responding states ensure payment parity between telehealth and in-person delivery of FFS services, and most states require MCOs to maintain these same payment parity policies. Prior to the COVID-19 pandemic, Medicaid telehealth payment policies were unclear in many states;94  however, during the PHE, many states issued temporary or permanent guidance in this area.95  As of July 1, 2021, 45 states (out of 47 responding) reported that they maintain payment parity between telehealth and in-person visits for all services and telehealth modalities,96  while two states reported generally having parity with some variation for audio-only reimbursement.97  Twenty-seven MCO states (out of 36 responding)98  require MCOs to maintain the same telehealth payment parity policies that are applied in FFS.

Telehealth Efficacy and Utilization During COVID-19 Pandemic

An overwhelming majority of states noted the benefits of telehealth in maintaining or expanding access to care during the pandemic, particularly for behavioral health services. We asked states for examples of services delivered via telehealth and/or modalities that were particularly effective in improving access and/or health outcomes since the beginning of the pandemic. States commonly identified expanded audio-only coverage and allowing the enrollee’s home as an originating site as particularly effective policy flexibilities. Thirty-one states (out of 45 responding) reported that telehealth had particular value in maintaining or improving access to behavioral health services. We also asked states to list the top two or three categories of physical health and behavioral health services that had the highest telehealth utilization during FY 2021:

  • For physical health services, states most frequently identified physician office visits and therapy services, particularly speech and hearing services.
  • For behavioral health services, states most frequently identified psychotherapy, counseling (for mental health conditions and/or substance use disorder), and patient evaluations.

States reported telehealth utilization across all population groups during the pandemic, with considerable state-by-state variation in the eligibility groups with highest utilization. We asked states to identify trends in telehealth utilization by eligibility group and by other demographic categories:

  • Telehealth utilization by eligibility group. A similar number of states identified that telehealth utilization was highest for adult eligibility categories (especially the Medicaid expansion group, but also parents and pregnant women) as states that identified that utilization was highest for children. Many states reported particularly high telehealth utilization among people with disabilities. Utilization trends may vary by service: for example, Utah noted that adult populations (including expansion adults, pregnant women, and parents) have had higher telehealth utilization for behavioral health services, whereas other populations (including children, elderly, and people with disabilities) have had higher utilization for physical health services.
  • Telehealth utilization by race/ethnicity. A few states reported utilization trends by race/ethnicity, nearly all of which identified higher telehealth use for White, non-Hispanic adults. For example, California noted that the rate of telehealth visits among Hispanic beneficiaries was 10% lower than the statewide rate.
  • Telehealth utilization by geography (urban vs. rural). We asked states whether rural or urban populations had experienced greater growth in telehealth utilization since the onset of the pandemic. Of the states that answered this question, 16 saw similar growth in rural and urban areas, ten observed higher growth in urban populations, and only two states observed higher growth in rural populations.99  Some states reported that audio-only coverage helped to expand access in rural areas that may not offer broadband coverage.
Post-Pandemic Policies and Telehealth Challenges

Post-pandemic telehealth coverage and reimbursement policies are under consideration in most states, with states weighing expanded access against quality concerns especially for audio-only telehealth. Across service categories, the majority of states reported that FY 2022 changes to telehealth coverage policies were “undetermined” at the time of the survey. Similarly, while eleven states indicated plans to change FFS telehealth reimbursement policies in FY 2022, 25 states have not yet determined whether changes will occur.100  In particular, plans for post-pandemic audio-only telehealth coverage and reimbursement parity vary by state. Many states identified that expanded audio-only coverage during the pandemic was particularly important for maintaining and expanding access to care, especially in rural areas and for older populations. However, states also expressed uncertainty regarding the legal authority to continue reimbursing audio-only telehealth services post-PHE due to state and federal privacy laws, as well as concerns about the clinical effectiveness and quality of audio-only visits for some services. States that did report plans to maintain audio-only coverage post-PHE particularly highlighted the continued use of this modality for mental health and SUD services.

Key factors under consideration for post-pandemic telehealth policy, including audio-only, include:

  • Evaluation of telehealth access, utilization, and outcomes. Many states cited anecdotal feedback and preliminary data analysis suggesting that expanded telehealth has been viewed positively by members and providers and has decreased barriers to care. However, states also note that ongoing and planned review of data is necessary to further evaluate the impacts of telehealth expansions on access and health outcomes.
  • Quality assurances and clinical appropriateness. States reported working to determine what services are clinically appropriate to be delivered via various telehealth modalities. While states may allow providers to make decisions of clinical appropriateness in some cases, states are working on developing guidelines and guardrails to ensure quality.
  • Coordination with policies in other states, from other payers, and at the federal level. States are awaiting federal guidance relevant to allowable telehealth modalities. In many cases, states also note an interest in telehealth policies in other state Medicaid programs, Medicare, and private insurers.
  • Costs of expanded telehealth. States reported budgetary questions and concerns about expanded telehealth, especially pertaining to whether increased telehealth use substitutes for in-person visits or contributes to overall increased utilization.

Commonly reported challenges associated with telehealth include access to internet and technology, as well as needs for education/outreach and quality assurances. Exhibit 2 highlights telehealth-related barriers reported by states from member, provider, and state Medicaid agency perspectives. Nearly all responding states reported that inadequate access to internet or technology was a barrier to telehealth utilization for members and/or providers. Other barriers for members include the need for outreach about the availability of telehealth and education on how to use telehealth technologies. Other barriers for providers include needs related to staffing, training, and help navigating a complex set of regulations and billing rules. At the agency level, states expressed concerns about assuring clinical effectiveness and quality, program integrity, and equity. Several states also identified challenges or concerns related to development of telehealth policy post-PHE and the need for federal guidance.

Exhibit 2: Key Telehealth-Related Barriers by Members, Providers, and State Medicaid Agencies

Table 2: Benefit Changes in all 50 States and DC, FY 2021 and FY 2022

Social Determinants of Health

Context

Social determinants of health (SDOH) are the conditions in which people are born, grow, live, work, and age that shape health. Prior to the pandemic, non-health and health sectors have engaged in initiatives to address SDOH. In response to the pandemic, federal legislation was enacted to provide significant new funding to address the pandemic’s health and economic effects including direct support to address food and housing insecurity, stimulus payments to individuals, federal unemployment insurance payments, and expanded child tax credit payments. While measures like these have a direct impact in helping to address SDOH, health programs like Medicaid can also play a supporting role. Although federal Medicaid rules prohibit expenditures for most non-medical services, state Medicaid programs have developed strategies to identify and address enrollee social needs both in managed care and fee-for-service (FFS) delivery systems.101  CMS released guidance for states about opportunities to use Medicaid and CHIP to address SDOH in January 2021.102 

Communities of color have higher rates of underlying health conditions compared to White people and are more likely to be uninsured or report other health care access barriers.103  The COVID-19 pandemic exacerbated already existing health disparities for a broad range of populations, but specifically for people of color.104  Multiple analyses of available federal, state, and local data show that people of color are experiencing a disproportionate burden of COVID-19 cases and deaths.105  In addition to worse health outcomes, data from the Census Bureau’s Household Pulse Survey show that over the past year, Black and Hispanic adults have fared worse than White adults across nearly all measures of economic and food security.106 

As the U.S. continues to grapple with the COVID-19 pandemic, the latest KFF COVID-19 Vaccine Monitor finds that more than seven in ten U.S. adults (72%) now report being at least partially vaccinated, with the surge in cases, hospitalizations, and deaths due to the Delta variant being the main motivator for the recently vaccinated.107  The largest increases in vaccine uptake between July and September were among Hispanic adults and individuals ages 18-29, and similar shares of adults now report being vaccinated across racial and ethnic groups (71% of White adults, 70% of Black adults, and 73% of Hispanic adults). Large differences in self-reported vaccination rates remain between older and younger adults, individuals with and without college degrees, and those with higher and lower incomes. Adults living in rural areas continue to have lower vaccination rates than those living in urban and suburban areas. Because Medicaid covers over 82 million enrollees, including groups disproportionately at risk of contracting COVID-19, state Medicaid programs and Medicaid managed care organizations (MCOs) (which enroll over two-thirds of all Medicaid beneficiaries)108  can be important partners in COVID-19 vaccination efforts.109 

This section provides information about:

  • Initiatives to address social determinants of health;
  • Efforts to expand community health worker workforce;
  • Initiatives to address disparities in health care by race/ethnicity in Medicaid; and
  • COVID-19 vaccine-related MCO initiatives

Findings

Initiatives to address Social Determinants of Health

Social determinants of health include but are not limited to housing, food, education, employment, healthy behaviors, transportation, and personal safety. Addressing social determinants of health is important for improving health and reducing longstanding disparities in health and health care. Although federal Medicaid rules prohibit expenditures for most non-medical services, state Medicaid programs have been developing strategies to identify and address enrollee social needs both within and outside of managed care.110 

The vast majority of responding states that contract with MCOs (33 of 37) reported leveraging MCO contracts to promote strategies to address the social determinants of health in FY 2021 (Figure 5). In this year’s survey, MCO states were asked about MCO contract requirements related to social determinants of health in place in state fiscal year (FY) 2021 or planned for implementation in FY 2022. More than half of responding MCO states reported the following requirements were in place in FY 2021: screening enrollees for behavioral health needs, providing referrals to social services, partnering with community-based organizations (CBOs), and screening enrollees for social needs. About half of responding MCO states reported requiring or planning to require uniform SDOH questions within MCO screening tools. Fewer states reported requiring MCOs to track the outcomes of referrals to social services or requiring MCO community reinvestment (e.g., tied to plan profits or MLR) compared to other strategies; however, a number of states indicated plans to require these activities in FY 2022.

State MCO Contract Requirements Related to Social Determinants of Health, FYs 2021 - 2022

The following are examples of state MCO initiatives related to social determinants of health:

  • Arizona’s Whole Person Care Initiative, which was launched in November 2019, seeks to address social risk factors in collaboration with MCOs, community-based organizations, tribal partners, providers, and other external stakeholders. The Whole Person Care Initiative: provides support for transitional housing for certain high-need enrollees (e.g., those experiencing chronic homelessness or transitioning from correctional facilities); leverages existing non-medical transportation services to support member access to community-based services; works to reduce social isolation among Medicaid enrollees using long-term care services; and is partnering with Arizona’s Health Information Exchange to establish a statewide closed-loop referral system.111 
  • In FY 2021, North Carolina launched a new pilot program, called “Healthy Opportunities Pilots,” to cover non-medical services to address housing instability, transportation insecurity, food insecurity, interpersonal violence, and toxic stress for a limited number of high-need enrollees in managed care plans.112  Healthy Opportunities “Network Leads” will develop, contract with, and manage the network of human service organizations that will deliver pilot services. MCOs in participating regions will be required to participate and will manage the pilot budget, enrollee eligibility, and authorize pilot services as well as work in collaboration with Network Leads to track pilot services.
  • Tennessee plans to procure a closed loop referral system to support MCOs and providers in screening for social needs, making referrals to social services, and tracking follow-up. The system is scheduled to be implemented in 2022.

In addition to initiatives through MCOs, many states have strategies outside of their MCO programs (in FFS programs) to address social determinants of health.113  This year’s survey asked all states about non-MCO initiatives in place in FY 2021 or planned for implementation in FY 2022 related to social determinants of health. About half of responding states reported non-MCO initiatives in place in FY 2021 related to screening enrollees for social needs, screening enrollees for behavioral health needs, providing enrollees with referrals to social services, and partnering with CBOs or social service providers. About a quarter of states or fewer reported non-MCO initiatives in place in FY 2021 to employ community health workers, encourage/or require providers to capture SDOH data using ICD-10 Z codes, track the outcomes of referrals, or incorporate uniform SDOH questions within screening tools.

Medicaid Initiatives to Address SDOH in Response to the COVID-19 Pandemic

Over half of responding states reported that the COVID-19 pandemic caused their state to implement, expand, or reform a Medicaid program that addresses enrollees’ social determinants of health. States reported a variety of initiatives; however, the most commonly reported initiatives were related to food/nutrition assistance and/or housing. Notable examples include:

  • Arizona’s Medicaid agency established a partnership with a community provider that has access to the Homeless Management Information System (HMIS).114  HMIS is used to collect data on the provision of housing and services to homeless individuals and families and persons at risk of homelessness.115  The state Medicaid agency obtains weekly reports with Medicaid members found in HMIS who test positive for COVID-19 and have recently accessed homeless services. The state Medicaid agency shares this information with MCOs so that they can conduct outreach to these Medicaid enrollees and provide care management and follow-up services.
  • California expanded its "Whole Person Care" (WPC) pilot program in response to the pandemic.116  The WPC program aims to coordinate care (physical, behavioral, and social services) for high-risk, high-utilizing Medicaid (Medi-Cal) enrollees and increase integration and data sharing among county agencies, health plans, and CBOs. In response to the COVID-19 pandemic, the pilot was expanded to allow participating counties to offer care coordination and other services to Medi-Cal enrollees who contracted COVID-19 or were at-risk of contracting COVID-19. For example, some WPC counties expanded housing services available (frequently for individuals experiencing homelessness) as well as other care management and wrap-around services. The state was able to leverage the WPC pilots and existing community partnerships to quickly mobilize in response to the pandemic to reach the most vulnerable Medi-Cal enrollees.117 
  • North Carolina leveraged the design of its “Healthy Opportunities Pilots" to create a similar program in select counties that funded CHWs to screen and refer individuals who needed to isolate or quarantine due to COVID-19 to medical and non-medical services, and then funded services including non-congregate shelter, home-delivered meals and groceries, COVID-19 relief payments, medication and COVID-19-related supplies, and transportation.118  To support this effort, the NC Department of Health and Human Services braided funds including COVID-19 relief funds, FEMA funds, and state Medicaid funds. Early results from this program showed participating in the program was associated in a 12-15% decrease in COVID-19 positivity rates in counties with the program relative to control counties. Health equity was a major focus of this initiative and over 70% of support services were provided to historically marginalized populations.

Efforts to expand community health worker Workforce

More than half of states reported Medicaid workforce initiatives in place in FY 2021 or planned for FY 2022 to expand the number of community health workers in the state. Community Health Workers (CHWs) can play an important role in addressing social determinants of health. CHWs are frontline workers who have close relationships with the communities they serve, allowing them to better liaise and connect community members to healthcare systems.119  CHW examples include care coordinators, community health educators, outreach and enrollment agents, patient navigators, and peer educators. CHWs can provide support to Medicaid enrollees by facilitating care coordination, providing culturally competent care, and linking enrollees to relevant resources and services.120 ,121  CHWs also have played an important role in trying to mitigate the spread of COVID-19.122  Historically, most CHW programs have been run and funded through community health centers and other community-based organizations. This year’s survey asked states to describe any Medicaid workforce initiatives underway in FY 2021 or planned for FY 2022 to expand the number of CHWs. States reported initiatives including:123 

  • Adding CHWs as a Medicaid covered service. Five states plan to add CHWs as a Medicaid covered service in FY 2022 (California, Illinois, Louisiana, Nevada, and Wisconsin).
  • Adding CHWs as a Medicaid provider type. Four states reported they are establishing or planning to establish CHWs as a Medicaid provider type (Arizona, California, District of Columbia, and Illinois). For example, California is exploring adding CHWs as a provider type through a State Plan Amendment for preventative services in both the fee-for-service and managed care setting.
  • Integrating CHWs into case or care management efforts. Two states are incorporating CHWs into case management redesign/care coordination improvement efforts (Colorado and Oregon). Additionally, Oregon passed state legislation that will officially recognize Tribal Traditional Health Workers as a type of CHW.124  CHWs are required to be included as an available service in managed care contracts in Oregon, meaning that Tribal CHWs will become more available for those who need them.125 

State Medicaid CHW Workforce Initiative Examples

  • California, starting on January 1, 2022, will allow their MCOs to begin offering certain “in lieu of” services which they expect will increase the number of CHWs MCOs contract with. California is also exploring the ability to allow community-based organizations to participate in its Medicaid program as an enrolled provider of CHWs.
  • As part of Illinois’ first round of grant funding for its “Healthcare Transformation Collaboratives” program,126  the state will support the work of CHWs and will apply lessons learned within the Medicaid program. The Healthcare Transformation Collaborative, created in January 2021, seeks to fund collaboratives between healthcare providers and community-based organizations to increase access to preventative care, chronic disease management, and obstetrics care, and ultimately improve health outcomes.127 
  • Missouri’s Medicaid agency has a contract with the Missouri Primary Care Association to expand the Community Health Worker Program designed to address social determinants of health, improve patient engagement in preventative care, provide chronic disease management and self-management services, connect patients with community-based services, and reduce potentially avoidable emergency room visits and hospital admissions and readmissions.

initiatives to address disparities in health care by race/ethnicity in Medicaid

Communities of color have higher rates of underlying health conditions compared to White people and are more likely to be uninsured or report other health care access barriers.128  The COVID-19 pandemic exacerbated already existing health disparities for a broad range of populations, but specifically for people of color.129 

Three-quarters of responding states reported initiatives in place in FY 2021 or planned for FY 2022 to address disparities in health care by race/ethnicity in Medicaid. We asked states to identify innovative or notable initiatives in this area, and many of the state responses overlapped with initiatives also reported elsewhere on the survey. About half of responding states reported managed care requirements and/or initiatives to address health disparities, including Performance Improvement Projects (PIPs), requirements that MCOs achieve the NCQA Distinction in Multicultural Health Care,130  and pay-for-performance (P4P) initiatives. Nearly half of responding states reported focusing on using data to address health disparities, including by stratifying quality and other measures by race/ethnicity. Many of these states planned to expand or improve data collection to better identify disparities. A few states reported that eligibility or benefit expansions would address health disparities, particularly for pregnant and postpartum women, non-citizens, and justice-involved populations. Many states cited efforts to diversify, support, and/or train workforces to increase cultural competency, including by partnering with community-based organizations.

Twenty states reported initiatives to address disparities in specific health outcomes, including maternal and infant health, behavioral health, and COVID-19 outcomes and vaccination rates (Exhibit 3). For example:

  • To address disparate maternal health outcomes for Black women, Connecticut is developing a comprehensive maternity bundled payment that includes obstetrician/nurse midwife services, doulas, community health workers, and breastfeeding support. Pennsylvania reported a P4P maternity care bundled payment arrangement that will reward providers that reduce racial disparities.131 
  • Since FY 2020, Michigan has used capitation withholds to incentivize reductions in racial disparities in behavioral health metrics. California’s value-based payment program directs MCOs to address health disparities by making enhanced payments that target serious mental illness, substance use disorder, and homelessness.
  • Several states reported efforts to reduce disparities in COVID-19 vaccination rates. For example, one of Iowa’s MCOs has developed a vaccine outreach program that monitors for low uptake among traditionally underserved member groups (including by race and language).
  • Two states cited programs to reduce disparities in diabetes outcomes. Maine is supporting the training of community health workers to provide culturally engaging outreach around diabetes management. In FY 2021, Ohio focused on reducing diabetes disparities through an MCO PIP.

Exhibit 3: Initiatives Targeting Disparities by Race/Ethnicity in Specific Health Outcomes

Currently, there are three COVID-19 vaccines approved for use in the U.S. States and public health agencies are playing a central role in vaccine distribution and the public health promotion of these vaccines. Because Medicaid covers over 82 million enrollees, including groups disproportionately at risk of contracting COVID-19, state Medicaid programs and Medicaid MCOs can be important partners in COVID-19 vaccination efforts.132 

States report a variety of MCO activities aimed at promoting the take-up of COVID-19 vaccinations. Given that MCOs provide services to over two-thirds of Medicaid enrollees, states were asked to describe any known programs, initiatives, or value-added services newly offered by MCOs to promote take-up of COVID-19 vaccinations.133   States reported a wide variety of initiatives including: member and provider incentives, member outreach and education (including targeted outreach to high-risk members or areas demonstrating disparities in access or take-up), provider engagement, assistance with vaccination scheduling and transportation coordination, and partnerships with state and local organizations, especially related to community-specific events, like vaccination clinics/events. Examples include:

  • In Indiana, the state is tracking COVID-19 vaccinations by plan, geographic location, and demographics including race and ethnicity to help guide targeted MCO outreach.
  • In Iowa, Amerigroup has been strategically redirecting traditional community relations giveaway items as part of community vaccination clinic efforts. For example, Amerigroup distributed 300 coffee shop gift cards (in the amount of $5) to college students in Iowa City to promote participation in a vaccination clinic.
  • In Michigan, MCOs are employing a variety of strategies to increase COVID-19 vaccinations including member and provider incentives, using CHW workforce to provide education and outreach to address vaccine hesitancy, and partnering with community-based organizations to provide vaccines where people can easily access them.
  • In Pennsylvania, MCOs have performed analysis to identify members who were at high risk for complications from COVID-19 and conducted outreach to those members to encourage vaccination. The managed care long-term services and supports (MLTSS) MCOs also coordinated to establish vaccination clinics specifically dedicated to serving their membership through partnerships with large pharmacies.
  • In Utah, the state shares information with Medicaid MCOs regarding the immunization status of enrollees on a monthly basis. MCOs conduct member outreach, coordinate with PCPs, and offer incentives to enrollees (e.g., gift cards).
  • In Washington, MCOs are tracking COVD-19 vaccine data within their enrollment and performing targeted outreach to members.

Although not specifically asked, several states also discussed incentives in place for MCOs to increase COVID-19 vaccination rates. For example:

  • In Florida, the state Medicaid agency incentivized managed care plans to work to increase vaccination uptake. For plans that achieved a greater than 50% first dose vaccination rate for members 50 years or older by August 31, 2021, the plan accrued a dollar amount per enrollee that can be used to offset any liquidated damages assessed for calendar year (CY) 2020.134 
  • Hawaii added an MCO P4P process measure for CY 2021 to focus MCOs on increasing COVID-19 vaccine uptake within the Medicaid population.
  • Louisiana Medicaid implemented COVID-19 vaccination administration MCO incentive payments to encourage MCOs to increase vaccination rates. The state is leveraging a pre-existing managed care incentive payment program which allows for incentive payments above the capitation rate if performance targets are met. The state indicates MCOs that achieve targets and receive incentive payments could then use these funds to create member and/or provider vaccination incentives. The state is leveraging MCO performance improvement project (PIP) reporting structures that are already in place to monitor MCO performance on vaccine administration.

Provider Rates and Taxes

Context

Fee-for-service (FFS) provider rate changes generally reflect broader economic conditions. During economic downturns where states may face revenue shortfalls, states have typically turned to provider rate restrictions to contain costs. Conversely, states are more likely to increase provider rates during periods of recovery and revenue growth. The COVID-19 pandemic, however, has changed this historic dynamic. With many providers facing financial strain from the increased costs of COVID-19 testing and treatment or from declining utilization for non-urgent care, especially in the early months of the pandemic, states facing budget challenges likely found rate reductions to be less feasible.135  At the same time, starting early in the pandemic, Congress, states,136  and the Administration adopted a number of policies to ease financial pressure on hospitals and other health care providers.137  Also, while most states increasingly rely on capitated arrangements with managed care organizations (MCOs) to deliver Medicaid services to most of their Medicaid populations, state-determined FFS rates remain important benchmarks for MCO payments in many states, often serving as the state-mandated payment floor.

In state fiscal year (FY) 2019, state payments to MCOs comprised about 46% of total Medicaid spending.138  State capitation payments to MCOs and limited benefit prepaid health plans (PHPs) must be actuarially sound,139  but within this broader constraint, states use a variety of mechanisms to adjust managed care plan risk, incentivize performance, and ensure plan payments are not too high or too low.140  To further state goals and priorities, including COVID-19 response, states can also implement CMS-approved “directed payments” that require MCOs and/or PHPs to apply certain methodologies (e.g., minimum fee schedules or uniform increases) when making payments to specified provider types. For example, CMS has permitted states to implement directed payments to ensure funds continue to flow to providers during the pandemic, even if utilization had decreased, but also permitted states to make pandemic-related adjustments to managed care contracts and capitation rates to provide financial protection and limits on financial risk for states and plans.

States have considerable flexibility in determining how to finance the non-federal share of state Medicaid payments, within certain limits. In addition to state general funds appropriated directly to the state Medicaid program, most states also rely on funding from health care providers and local governments generated through provider taxes, intergovernmental transfers (IGTs), and certified public expenditures (CPEs).141  Over time, states have increased their reliance on provider taxes, with expansions often driven by economic downturns.142 

This section provides information about:

  • FFS reimbursement rates;
  • MCO capitation rate setting;
  • Managed care plan (MCO & PHP) payment requirements; and
  • Provider taxes

Findings

FFS reimbursement Rates

At the time of the survey, responding states had implemented or were planning more FFS rate increases than rate restrictions in both FY 2021 and FY 2022 (Figure 6 and Tables 3 and 4). In FY 2021, 42 states (out of 47 responding) reported implementing rate increases for at least one category of provider and 27 states reported implementing rate restrictions. In FY 2022, slightly more states reported at least one planned rate increase (45 states) and the number of states planning to restrict rates decreased slightly (26 states).

FFS Provider Rate Changes Implemented in FY 2003 - FY 2021 and Adopted for FY 2022

States reported rate increases for nursing facilities and home and community-based services (HCBS) providers more often than other provider categories (Figure 7). As discussed further below, approximately two-thirds of the states reporting a nursing facility or HCBS rate increase indicated that the increase was related, at least in part, to the COVID-19 pandemic. While states reported imposing more restrictions on inpatient hospital and nursing facility rates than on other provider types, most of these restrictions were rate freezes rather than actual reductions. (Because inpatient hospital and nursing facility services are more likely to receive routine cost-of-living adjustments than other provider types, this report counts rate freezes for these providers as restrictions.) Two states (Colorado and Wyoming) reported rate reductions across most provider categories in FY 2021; three states (California, Idaho, and North Carolina) reported rate reductions across most provider categories in FY 2022; and Mississippi reported that its legislature had enacted a rate freeze for all providers for FY 2022 through FY 2024. Broader rate cuts across provider types are often linked to budget shortfalls.

FFS Provider Rate Changes Implemented in FY 2021 and Adopted for FY 2022

More than two-thirds of responding states (33 of 47) indicated that one or more payment changes made in FY 2021 or FY 2022 are related in whole or in part to COVID-19. Across provider types, the vast majority of COVID-19-related payment changes were rate increases. COVID-19-related payment changes were most commonly associated with nursing facilities (27 states) and HCBS providers (26 states). Additionally, states reported a variety of other FFS payment changes in FY 2021 or planned for FY 2022 in response to COVID-19 including: increasing COVID-19 vaccine reimbursement rates to 100% of the Medicare rate (approximately $40 per dose) and allowing a broader range of providers to be reimbursed for vaccine administration such as pharmacists, home health agencies, ambulance providers, renal dialysis clinics, and outpatient behavioral health clinics; making retainer payments to HCBS providers and bed hold payments to institutional providers; and making supplemental or add-on payments to certain providers, especially nursing facilities, for COVID-19 patients.143 

MCO capitation rate setting

This year’s survey asked states about remittances related to minimum medical loss ratios as well as the use of risk corridors in MCO contracts.

Minimum Medical Loss Ratios

The Medical Loss Ratio (MLR) reflects the proportion of total capitation payments received by an MCO spent on clinical services and quality improvement (where the remainder goes to administrative costs and profits). CMS published a final rule in 2016 that requires states to develop capitation rates for Medicaid managed care plans to achieve an MLR of at least 85% in the rate year, for rating periods and contracts starting on or after July 1, 2019.144  Analysis of National Association of Insurance Commissioners (NAIC) data for the Medicaid managed care market show that annual loss ratios in 2020 (in aggregate across plans) decreased by four percentage points from 2019 (and three percentage points from 2018), but still met the 85% minimum even without accounting for potential adjustments.145 

Contracts taking effect on or after July 1, 2017 must include a requirement for plans to calculate and report an MLR.146  The 85% minimum MLR is the same standard that applies to Medicare Advantage and private large group plans. There is no federal requirement for Medicaid plans to pay remittances to the state if they fail to meet the MLR standard, but states have discretion to require remittances. (A state and the federal government share in any remittances in proportion to the state’s federal matching rate—if the state requires remittances). For a limited time (from federal fiscal years 2021 through 2023), The Substance Use Disorder Prevention that Promotes Opioid Recovery and Treatment for Patients and Communities (SUPPORT) Act permits states to keep their regular state share of any remittances paid by Medicaid plans for expansion adults rather than only 10%.147 

More than half of states that contract with MCOs always require MCOs to pay remittances when minimum MLR requirements are not met. States were asked whether they require MCOs that do not meet minimum MLR requirements to pay remittances. Of the 37 MCO states that responded to this year’s survey, 21 reported that they always require MCOs to pay remittances, while nine indicated they sometimes require MCOs to pay remittances (Exhibit 4). States reporting that they sometimes require remittances often limit this requirement to certain MCO contracts. For example, in Pennsylvania, physical health MCOs not meeting minimum MLR requirements are always required to pay remittances, while remittances for managed long-term services and supports (MLTSS) MCOs are at the Medicaid agency’s discretion. Likewise, Utah’s remittance requirements are limited to MCO contracts for the adult expansion population. In the District of Columbia, an MCO with an MLR less than 85% may be required to remit payments or be subject to other corrective actions. One state (South Carolina) reported allowing an exception to the remittance requirement if an MCO achieved a high National Committee for Quality Assurance (NCQA) health insurance plan rating. Seven states reported that they do not require remittances when their plans do not meet the minimum MLR requirement.

Exhibit 4: Medicaid MCO Minimum Medical Loss Ratio (MLR) Remittance Requirements
COVID-19 Risk Corridors

The COVID-19 pandemic caused major shifts in utilization across the healthcare industry that could not have been anticipated and incorporated into MCO capitation rate development for 2020 and 2021. CMS therefore allowed states to modify managed care contracts and rates in response to the pandemic, including through the imposition of risk corridor arrangements, where states and health plans agree to share profit or losses (at percentages specified in plan contracts) if aggregate spending falls above or below specified thresholds (two-sided risk corridor).148 

More than half of MCO states implemented COVID-19-related risk corridors in their 2020 or 2021 contracts; about half of these states reported that they have or will recoup funds, while recoupment in the remaining states remains undetermined (i.e., yet to be reconciled) (Exhibit 5). Twenty-one of 37 responding MCO states reported imposing risk corridors in their MCO contracts for all or part of FY 2020 or FY 2021 in response to the COVID-19 pandemic. State MCO contract periods may be on a calendar year, fiscal year, or another period.149  One state (Hawaii) had risk corridors already in place but narrowed them in response to the pandemic. Of these 21 states, nine reported that recoupments had already occurred or were expected while 12 reported that potential recoupments remained undetermined. Tennessee noted that potential recoupments were undetermined but that any potential recoupments would be mitigated by utilization-based capitation rate reductions imposed in 2020. A number of states noted having risk corridors in place for at least one MCO program unrelated to the pandemic.150 

Exhibit 5: States Imposing MCO Risk Corridors in FY 2020 and/or FY 2021 in Response to the COVID-19 Pandemic

Managed care PLAN (mco & php) payment requirements

States are generally prohibited from contractually directing how a managed care plan (MCO or PHP) pays its providers.151  Subject to CMS review and approval, however, states may implement certain “state directed payments” (permissible under 42 CFR Section 438(c))152  that require MCOs and/or PHPs to adopt minimum or maximum provider payment fee schedules or provide uniform dollar or percentage increases to network providers that provide a particular service under the contract.153  State directed payments must be: based on utilization and delivery of services covered under the managed care plan contract; reflected in capitation rate development and certification; and expected to advance at least one of the goals and objectives in the state’s managed care quality strategy.154  In May 2020, CMS also announced temporary flexibilities to address the COVID-19 public health emergency (PHE), including the use of state directed payments to require managed care plans to temporarily enhance provider payments and to make retainer payments to HCBS providers covered under the managed care contract.155 

In FY 2021, more than one-third of responding MCO states (13 of 37) implemented new provider payment and/or pass-through requirements on MCOs in response to the COVID-19 emergency. In addition to these 13 states,156  two states (Florida and North Carolina) reported plans to add a new provider payment and/or pass-through requirement in FY 2022. New COVID-19-related provider payment requirements reported in FY 2021 and/or FY 2022 included COVID-19 testing and vaccine reimbursement requirements, rate increases or add-on payments for selected providers, HCBS retainer payments, and telehealth reimbursement rate requirements.

MCO and PHP Directed Fee Schedules

About two-thirds of responding states with MCO and/or PHP contracts (26 of 40) reported a minimum fee schedule that sets a reimbursement floor for one or more specified provider types (Exhibit 6). States with managed care plans (MCOs and/or PHPs) were asked to indicate, by provider type, the state directed minimum fee schedules in place for at least some managed care contracts as of July 1, 2021. The most frequently cited provider type was physicians or other professional services (16 states), followed by hospitals (14 states) and nursing facilities (14 states). Although most states reported that minimum fee schedules were tied to Medicaid FFS rates, a few states mentioned developing alternative fee schedules or using Medicare rates. For example, Indiana reported requiring MCOs to pay no less than Medicare rates across provider types in the Healthy Indiana Plan program for expansion adults; Maryland reported requiring MCOs to pay hospital rates set by the state’s Health Services Cost Review Commission; and Michigan reported using average commercial rates for a physician directed payment requirement. Fifteen states reported a minimum fee schedule for a provider type not specified in Exhibit 6 (including 12 states that also reported at least one other minimum fee schedule for a provider type noted in Exhibit 6).157 

Additionally, six states reported setting a maximum fee schedule for certain provider types under at least some managed care contracts.158  For example, Wisconsin imposes a maximum fee schedule under certain long-term care managed care contracts for multiple provider types (including hospitals, physicians/other professional services, nursing facilities, dental, and transportation providers) and four other states set a maximum fee schedule for hospitals.

Exhibit 6: State MCO and PHP Directed Minimum Fee Schedules as of July 1, 2021

Over half of states with managed care contracts reported a uniform dollar or percentage increase payment requirement in place as of July 1, 2021, most commonly for hospitals.159  Distinct from the minimum/maximum state directed fee schedules described above, a total of 24 states reported requiring MCOs or PHPs (of 40 responding) to provide a uniform dollar or percentage increase for network providers that provide a particular service as of July 1, 2021. By far, the most frequently cited provider type was hospitals, sometimes specific to inpatient or outpatient services, public or private hospitals, or teaching hospitals. Similar numbers of states reported using intergovernmental transfers (IGTs) and health care-related taxes to provide the non-federal share of these provider payments, with somewhat fewer states using State General Funds. A small number of states reported that the non-federal share for a single state directed payment was funded through multiple sources.

Provider Taxes

States continue to rely on provider taxes and fees to fund a portion of the non-federal share of Medicaid costs (Figure 8). Provider taxes are an integral source of Medicaid financing, comprising approximately 17% of the nonfederal share of total Medicaid payments in FY 2018 according to the Government Accountability Office (GAO).160  At the beginning of FY 2003, 21 states had at least one provider tax in place. Over the next decade, most states imposed new taxes or fees and increased existing tax rates and fees to raise revenue to support Medicaid. By FY 2013, all but one state (Alaska) had at least one provider tax or fee in place. In this year’s survey, states reported a continued reliance on provider taxes and fees to fund a portion of the non-federal share of Medicaid costs. Thirty-four states reported having three or more provider taxes in place in FY 2021 (Figure 8).161 

States with Provider Taxes or Fees in Place in FY 2021

Very few states made or are making any changes to their provider tax structure in FY 2021 or FY 2022 (Table 5). The most common Medicaid provider taxes in place in FY 2021 were taxes on nursing facilities (45 states), followed by taxes on hospitals (44 states), intermediate care facilities for individuals with intellectual disabilities (33 states) and MCOs162  (17 states). Only four states reported plans to add new taxes in FY 2022: Kentucky, Massachusetts, Oklahoma, and Wyoming reported new ambulance taxes (which will increase the number of states with ambulance taxes in FY 2022 to 11),163  and Wyoming also reported a new physician tax. Only one state (Maryland) reported plans to eliminate a tax in FY 2022 (an MCO tax that previously was dedicated to funding Medicaid but beginning in FY 2022 will contribute to the State General Fund instead). Eleven states reported planned increases to one or more provider taxes in FY 2022, while two states reported planned decreases.164 

Table 3: FFS Provider Rates Changes in all 50 States and DC, FY 2021

Pharmacy

Context

States may administer the Medicaid pharmacy benefit on their own or may contract out one or more functions to other parties.165  The administration of the pharmacy benefit has evolved over time to include delivery of these benefits through managed care organizations (MCOs) and increased reliance on pharmacy benefit managers (PBMs). PBMs may perform a variety of administrative and clinical services for Medicaid programs (e.g., negotiating rebates with drug manufacturers, adjudicating claims, monitoring utilization, overseeing preferred drug lists (PDLs), etc.) and are used in fee-for-service (FFS) and managed care settings. MCO subcontracts with PBMs are under increasing scrutiny as more states recognize a need for transparency and stringent oversight of the arrangements.

Managing the Medicaid prescription drug benefit and pharmacy expenditures is a policy priority for state Medicaid programs. While Medicaid net spending on prescription drugs remained almost unchanged from 2015 to 2019, spending before rebates increased, likely reflecting the launch of expensive new brand drugs and increasing list prices.166  Because state Medicaid programs are required to cover all drugs from manufacturers that have entered into a federal rebate agreement (in both managed care and FFS settings), states cannot limit the scope of covered drugs to control drug costs.167  Instead, states use an array of payment strategies168  and utilization controls to manage pharmacy expenditures, including PDLs, managed care pharmacy carve-outs, and multi-state purchasing pools.169  States update and expand cost containment strategies in response to changes in the pharmaceutical marketplace, continuously innovating to address pressures such as rising unit prices and the introduction of new “blockbuster” drugs. 170  Some policies traditionally implemented under the pharmacy benefit are being adopted under the medical benefit to better manage the cost and utilization of expensive, physician administered drugs. Some states are also using alternative payment methods to increase supplemental rebates through value-based arrangements (VBAs) negotiated with individual pharmaceutical manufacturers.

Though attention in current federal actions is largely focused on Medicare171  and private insurance drug prices, federal legislation also has been recently introduced172  or enacted173  that would affect Medicaid prescription drug policy. Legislation to generate federal or state savings include proposals that increase Medicaid drug rebates, increase price transparency, and target drug prices.174  These proposals could be included in upcoming budget reconciliation bills, and have the potential to result in savings for state Medicaid programs.175 

This section provides information about:

  • Managed care’s role in administering pharmacy benefits and
  • Pharmacy cost containment

Findings

Managed Care’s Role in Administering Pharmacy Benefits

Most states that contract with MCOs carve in Medicaid pharmacy benefits to MCO contracts, but some states “carve out” prescription drug coverage from managed care. While the vast majority of states that contract with MCOs report that the pharmacy benefit is carved in to managed care (35 out of 41 states that contract with MCOs),176  five states (Missouri, North Dakota, Tennessee, Wisconsin, and West Virginia) report that pharmacy benefits are carved out of MCO contracts as of July 1, 2021 (Figure 9). Three states report plans to carve out pharmacy from MCO contracts in state fiscal year (FY) 2022 or later (California, New York, and Ohio),177  with the original implementation date having been delayed in some of these states.178  Instead of implementing a traditional carve-out of pharmacy from managed care, in FY 2022, Kentucky began contracting with a single PBM for the managed care population. Under this “hybrid” model, which the state reports is the first of its kind, MCOs remain at risk for the pharmacy benefit but must contract with the state’s PBM to process pharmacy claims and pharmacy prior authorizations according to a single formulary and PDL.179  Louisiana reports that it is moving to a similar model in FY 2022, and will require MCOs to contract with a single PBM designated by the state.

State Coverage of Pharmacy Benefits in MCO Contracts as of July 1, 2021

The majority of states that contract with MCOs report targeted carve-outs of one or more drugs or drug classes. As of July 1, 2021, nineteen of 37 responding states that contract with MCOs report carving out one or more classes of drugs from MCO capitation payments (Exhibit 7). These targeted drug carve-outs can include drugs covered under the pharmacy benefit or the medical benefit. Some of the most commonly carved out drugs include hemophilia products, spinal muscular atrophy agents, Hepatitis C drugs, and behavioral health drugs such as psychotropic medications. Among states with carve-outs, 17 states report using the carve-out as part of a MCO risk mitigation strategy (discussed in more detail below). In addition to risk mitigation, states may carve out drugs or drug classes for other reasons, including beneficiary protection.

Exhibit 7: Drug Classes Carved Out of MCO Benefits as of July 1, 2021

A number of states require MCOs to follow a uniform PDL covering the same drugs as FFS. Uniform PDLs allow states to drive the use of lower cost drugs and offer incentives for providers to prescribe preferred drugs.180  States may require prior authorization for a drug not on a preferred drug list or attach a higher copayment, creating incentives for a provider to prescribe a drug on the PDL when possible. In this way, a uniform PDL allows a state to drive utilization to lower-cost drugs carved into managed care. Uniform PDLs also streamline administration of pharmacy benefits and prior authorization policy across MCOs. As of July 1, 2021, nine states reported having a uniform PDL for all classes of drugs and 13 states reported having a uniform PDL for a subset of drug classes (Exhibit 8). At least one additional state (North Dakota) plans to establish a uniform PDL for one or more drugs classes in FY 2022, and seven states will expand existing uniform PDLs. Five states have not decided whether to implement a uniform PDL or make additional changes in FY 2022.

Exhibit 8: MCO Preferred Drug Lists (PDLs)

States leverage a variety of risk mitigation strategies, in addition to targeted drug carve-outs, to help MCOs curb the financial risk of administering drugs covered under both the pharmacy and medical benefit. As of July 1, 2021, 30 of the 37 responding states that contract with MCOs report adoption of at least one financial risk mitigation strategy in MCO contracts. Drug carve-outs and risk corridors (global and pharmacy-only) are the most common risk mitigation strategies reported (Exhibit 9). Other strategies include risk pools, reinsurance, kick payments, medical loss ratio (MLR) caps, and non-risk contracts for certain drugs. States report applying risk mitigation strategies to high-cost drugs, including high-cost drugs that have low utilization, drugs exceeding a set cost threshold (ranging from $100,000 to $500,000), or specialty drugs coming on the market with little to no experience. Ten states181  specifically report that they have implemented or will implement a risk mitigation strategy for the new gene therapies available to treat spinal muscular atrophy (Zolgensma and Spinraza).

Exhibit 9: Risk Mitigation Strategies Used in MCO Pharmacy Contracts as of July 1, 2021

States have implemented reforms to address concerns related to spread pricing and the role of PBMs in administering Medicaid pharmacy benefits in managed care. Spread pricing refers to the difference between the payment the PBM receives from the MCO and the reimbursement amount it pays to the pharmacy. In the absence of oversight, some PBMs have been able to keep this “spread” as profit.182  Twenty-one out of 31 responding carve in states plus Kentucky reported a prohibition on spread pricing in MCO subcontracts with their PBMs. Pennsylvania reported that its MCOs voluntarily transitioned from spread pricing to transparent pricing in their subcontracts with PBMs, effective January 1, 2020. An additional state, Massachusetts, reported that it will prohibit spread pricing beginning in 2023. Compared to results of previous surveys, this activity reflects a significant increase in state Medicaid agency oversight of MCO subcontracts with their PBMs. For example, in 2019 only 11 states reported that they prohibited spread pricing.183 

Pharmacy Cost Containment

Specialty and high-cost drugs remain the biggest cost driver of pharmacy spending growth in most states. This year’s survey asked states to identify the biggest cost drivers that affected growth in total pharmacy spending (federal and state) in FY 2021 and projected for FY 2022. Consistent with the results of prior surveys in recent years, most states identified specialty and high-cost drugs (individually or in general) as the most significant pharmacy cost driver. This includes drugs prescribed for conditions such as cancer, hepatitis C, and rheumatoid arthritis, as well as “orphan” drugs used to treat rare diseases like spinal muscular atrophy affecting only a small patient population. States expressed particular concern with new drugs coming to market, biologics/biosimilars (including gene therapies and immunotherapies), and drugs that have obtained accelerated approval from the U.S. Food and Drug Administration (FDA). A few states acknowledged that they are closely monitoring the impact of Aduhelm, the controversial and costly new drug used in the treatment of Alzheimer’s ($56,000 annually), on their Medicaid program. States also report concerns about increasing unit prices, including for insulin and continuous glucose monitors, and the cost of drugs used to treat substance use disorder (SUD), hemophilia, HIV/AIDS, cystic fibrosis, and COVID-19.

A number of states report laying the groundwork to employ value-based arrangements (VBA) with pharmaceutical manufacturers as a way to control pharmacy costs. However, only a handful of states have active VBA agreements in place. As of July 1, 2021, six states have VBAs in place with one or more drug manufacturers (Alabama, Arizona, Massachusetts, Michigan, Oklahoma, and Washington). Drugs covered by the VBAs include but are not limited to Zolgensma (spinal muscular atrophy), Onpattro (tansthretin-mediated amyloidosis), Givlaari (acute hepatic porphyria), and hepatitis C treatments. Thirteen additional states184  are considering opportunities or are developing and executing plans to implement a VBA arrangement in FY 2022 or later.

A majority of states reported newly implementing or expanding upon at least one initiative to contain costs in the area of prescription drugs in both FY 2021 and FY 2022. In this year’s survey, states were asked to describe any new or expanded pharmacy program cost containment strategies implemented in FY 2021 or planned for FY 2022. States were asked to exclude routine updates to PDLs or state maximum allowable cost programs as these utilization management strategies are employed by states regularly and are not typically considered major new policy initiatives. A number of states reported newly implementing or expanding PDLs, including for diabetic supplies, HIV/AIDS drugs, medication-assisted treatment (MAT) drugs, and physician administered drugs. Other states will be implementing or expanding uniform PDL policies, which help states maximize supplemental rebates by covering drugs administered under both the FFS and managed care delivery system. States also report imposition of new utilization management controls and quantity limits. For example, West Virginia is considering implementation of an initial fill limit policy for certain oncology treatments that have high discontinuation rates. Additional state strategies to control pharmacy and overall program costs are noted below:

  • Medication Therapy Management (MTM) Services. California, Oklahoma, and Texas will be implementing medication therapy management services to increase adherence, reduce adverse drug events, and improve outcomes. By improving management of disease through medication compliance, the states also hope to control costs. New Jersey reported that it is also exploring opportunities to offer enhanced MTM services in the future.
  • Elimination of Hepatitis C Strategies. Michigan and Missouri have embarked on new partnerships to eliminate hepatitis C through increased access to and utilization of hepatitis C treatments. Both states entered into an agreement with the pharmaceutical manufacturer of Mavyret and aim to reduce costs associated with hepatitis C by decreasing or even eliminating the incidence of hepatitis C in the state. For example, Michigan negotiated a low net cost for the treatment and, once an agreed upon utilization threshold is met, the therapy will be provided at nearly zero cost to the state.
  • Pharmacy Reimbursement. Five states reported revising pharmacy reimbursement policy to reduce program costs (Alabama, Alaska, Colorado, Kansas, and Kentucky). For example, Colorado added a maximum allowable cost for drugs without an average acquisition cost (AAC) in FY 2021 and Kansas transitioned specialty drugs for managed care populations to fall under the “lesser of” reimbursement methodology set by the state instead of MCO pricing. Additionally, Missouri and North Carolina report revising 340B policy to ensure accurate payments.
  • Extending Covered Days Supply. Three states (Alaska, West Virginia, and Wyoming) report extending the covered days supply in an effort to contain pharmacy costs by reducing aggregate dispensing fees.
  • Program Integrity. In FY 2021, Missouri invested in hiring a Program Integrity Pharmacist responsible for reviewing pharmacy data on a daily basis to identify trends, potentially fraudulent activity, and billing errors. In a single month, the pharmacist uncovered a billing error that resulted in $1 million in savings for the state.
  • Prescriber Resources and Tools. In FY 2021, Colorado unveiled a real-time provider tool that helps prescribers identify more affordable alternatives and locate information about the most cost-effective treatments. In both FY 2021 and FY 2022, Oklahoma reported expanding its academic detailing program which provides outreach and education to improve prescribing practices and encourage use of evidence-based guidelines.

States are in various stages of preparing for coverage of emerging gene and cell therapies. In this year’s survey, we asked states to describe any initiatives underway or planned to address future coverage of new gene and cell therapies, including CAR-T therapy. These therapies come with high price tags but are often curative. While nearly half of the states interviewed were not able to report any specific initiatives, a few states indicated internal discussions and/or planning efforts are currently underway. Several states reported the development of prior authorization policy or clinical criteria to ensure appropriate utilization of the drugs. Other states reported that they have or will carve out these drugs from managed care, maximize supplemental rebates, and/or enter into VBAs with the pharmaceutical manufacturers to help contain the costs of coverage for expensive gene and cell therapies. A few states are evaluating opportunities to provide reimbursement outside of bundled inpatient rates which may not adequately cover the cost of these drugs. A few states are also exploring ways to address therapies provided in different settings to secure rebates for both inpatient and outpatient utilization.

Key Priorities and Challenges In FY 2022 and Beyond and Conclusion

Many state Medicaid officials remain focused on their state’s response to the COVID-19 pandemic, including efforts to increase the vaccination rate of Medicaid enrollees. At the same time, officials are looking ahead and beginning to prepare for the “unwinding” of the various public health emergency (PHE) emergency measures and the resumption of Medicaid eligibility redeterminations once the PHE ends. Despite the upheaval caused by the pandemic, states also continue to advance non-emergency priority initiatives and to maintain efficient and effective program operations. State officials cited a wide variety of state-lead innovations designed to improve quality, access, health outcomes, operational efficiency, and accountability.

The COVID-19 pandemic has challenged state Medicaid agencies, providers, and enrollees in a variety of ways. As they continue to focus on pandemic response, states are also looking ahead to the post-PHE transition: about a quarter of responding states identified the unwinding of PHE emergency measures, especially the need to complete eligibility redeterminations within federally prescribed timelines, as a major challenge. An equal number of states anticipate future budget concerns, including those related to the expiration of enhanced federal funding associated with the end of the PHE, especially if caseloads remain high. Additionally, many states commented on COVID-19-related administrative staffing and provider workforce concerns including hiring and retention challenges, high workloads, and fatigue and burnout. States also commented on the ongoing negative impacts of the pandemic on enrollee health and wellbeing, especially the exacerbation of behavioral health needs. Several states also reported the need to increase enrollee COVID-19 vaccination rates as a challenge.

Several states identified lessons learned from the pandemic as opportunities, including for improved relationships with providers and expanded access for enrollees. Several states noted that increased communications related to emergency response had strengthened their relationships with providers and other community stakeholders. States also reported that the evaluation of PHE-related utilization data, including telehealth utilization, could inform efforts to sustain and expand access post-pandemic. Most states implemented or expanded programs to address social determinants of health during the pandemic, and many cited plans to continue focusing on initiatives in this area post-PHE. A number of states also highlighted the enhanced health and community-based services (HCBS) funding made available by the American Rescue Plan Act as an opportunity. States must use this time-limited funding to enhance, expand, or strengthen Medicaid HCBS, and were required to submit an initial spending plan for approval by CMS by mid-July 2021 (as this survey was in the field).185 

Many responding states reported that promoting health equity was a top priority, especially after the pandemic highlighted and exacerbated many health disparities. A number of these states described building a health equity focus more broadly into Medicaid program and policy development, with initiatives to address disparities reported across numerous programmatic areas including payment reforms, managed care requirements, benefit expansions, and programs to address social determinants of health. States also reported incorporating health equity initiatives into waivers or waiver renewals, expanding staff training on being anti-racist, and upgrading systems to enable them to capture and report race and ethnicity data.

States continue to focus on non-emergency initiatives as well, especially efforts to better align payment with quality, improve health outcomes, and implement information technology (IT) systems. Consistent with state survey responses over the past several years, nearly half of responding states reported that delivery system and payment reforms remain a key priority. States are pursuing these goals in a variety of ways including through reimbursement methodology reforms, creation of Health Homes and other medical home programs, and managed care contract changes focused on value-based payment initiatives and social determinants of health. Additionally, more than one-third of responding states reported prioritizing behavioral health initiatives, often related to promoting integrated care or improving behavioral health care access. Nearly one-third of responding states reported prioritizing IT systems projects, including Medicaid Management Information Systems (MMIS) procurements, eligibility system upgrades and replacements, implementation of health information exchanges (HIEs), and a focus on data analytics. These types of IT initiatives may underpin other program objectives related to delivery system reform and value-based purchasing, quality improvement, provider and managed care organization (MCO) monitoring, and cost control strategies.

Conclusion

States completed this survey in mid-summer of 2021, following increased vaccination rates and declining COVID-19 cases but just prior to a new wave of COVID-19 infections, hospitalizations, and deaths driven by the highly contagious Delta variant. At that time, states continued to focus on ongoing pandemic-related challenges for agencies, providers, and enrollees, but were also looking ahead to prepare for challenges associated with the unwinding of the PHE. State officials also pointed to lessons learned during the pandemic that may provide opportunities to strengthen relationships with providers, develop new relationships with other community stakeholders, and improve enrollee access and outcomes during and beyond the PHE transition period. States identified ongoing efforts to advance delivery system reforms and to address health disparities and social determinants of health as areas of promise to build on in the future. Looking ahead, uncertainty remains regarding the future course of the pandemic and what kind of “new normal” states can expect in terms of service provision and demand. In addition, as part of budget reconciliation, Congress is currently considering additional Medicaid policies building on earlier legislation to expand coverage and increase HCBS funding, which could have further implications for the direction of Medicaid policy in the years ahead. Finally, states may pursue and CMS under the Biden administration may promote Section 1115 demonstration waivers to help improve social determinants of health and advance health equity.186 

Methods

KFF commissioned Health Management Associates (HMA) to survey Medicaid directors in all 50 states and the District of Columbia to identify and track trends in Medicaid spending, enrollment, and policy making. This is the 21st annual survey, each conducted at the beginning of the state fiscal year (FY) from FY 2002 through FY 2022. Additionally, nine mid-fiscal year surveys were conducted during state fiscal years 2002-2004, 2009-2013, and 2021 when a large share of states were considering mid-year Medicaid policy changes due to state budget and revenue shortfalls. Findings from previous surveys are referenced in this report when they help to highlight current trends. Archived copies of past reports are available on the following page.187 

The KFF/HMA Medicaid survey on which this report is based was sent to state Medicaid directors in June 2021. The survey instrument (in Appendix A) was designed to document policy actions in place in FY 2021 and implemented or planned for FY 2022 (which began for most states on July 1, 2021).188  The survey captures information consistent with previous surveys, particularly for provider payment rates, benefits, and managed care, to provide some trend information. Each year, questions are added or revised to address current issues. This year, in light of the ongoing COVID-19 pandemic, a number of questions were added to capture information regarding state actions taken or planned in response to the pandemic.

Medicaid directors and staff provided data for this report in response to a written survey and a follow-up telephone interview. Overall, 47 states responded in mid-summer of 2021, though response rates for specific questions varied.189  Forty-three states participated in a follow-up telephone interview, conducted between July and August 2021.190  The telephone discussions are an important part of the survey to ensure complete and accurate responses and to record additional context for and complexities of state actions.

The survey does not attempt to catalog all Medicaid policies in place for each state. This report highlights certain policies in place in state Medicaid programs in FY 2021 and policy changes implemented or planned for FY 2022; we also highlight state experiences with policies adopted in response to the COVID-19 pandemic. Experience has shown that adopted policies are sometimes delayed or not implemented for reasons related to legal, fiscal, administrative, systems, or political considerations, or due to delays in approval from CMS. Policy changes under consideration without a definite decision to implement are not included in the survey. States completed this survey in mid-summer of 2021, following increased vaccination rates and declining COVID-19 cases but just prior to a new wave of COVID-19 infections, hospitalizations, and deaths driven by the highly contagious Delta variant. Given differences in the financing structure of their programs, the U.S. territories were not included in this analysis.

Appendix

Survey Instrument

Download the Survey (.pdf)

Endnotes

  1. Elizabeth Williams, Medicaid Enrollment & Spending Growth: FY 2021 & 2022 (Washington, DC: KFF, October 27, 2021), https://modern.kff.org/medicaid/issue-brief/medicaid-enrollment-spending-growth-fy-2021-2022  ↩︎
  2. U.S. Department of Health and Human Services, Renewal of Determination That A Public Health Emergency Exists (October 15, 2021), https://www.phe.gov/emergency/news/healthactions/phe/Pages/COVDI-15Oct21.aspx ↩︎
  3. U.S. Department of Health and Human Services, Public Health Emergency Message to Governors (January 22, 2021), https://ccf.georgetown.edu/wp-content/uploads/2021/01/Public-Health-Emergency-Message-to-Governors.pdf ↩︎
  4. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  5. FMAP = Federal Medicaid Assistance Percentage. ↩︎
  6. Rachel Dolan, MaryBeth Musumeci, Jennifer Tolbert, and Robin Rudowitz, Medicaid Maintenance of Eligibility (MOE) Requirements: Issues to Watch (Washington, DC: KFF, December 17, 2020), https://modern.kff.org/medicaid/issue-brief/medicaid-maintenance-of-eligibility-moe-requirements-issues-to-watch/ ↩︎
  7. Kellie Moss et al., The Families First Coronavirus Response Act: Summary of Key Provisions (Washington, DC: KFF, March 23, 2020), https://modern.kff.org/global-health-policy/issue-brief/the-families-first-coronavirus-response-act-summary-of-key-provisions/ ↩︎
  8. State fiscal years begin on July 1 except for these states: New York on April 1; Texas on September 1; Alabama, Michigan, and District of Columbia on October 1. ↩︎
  9. Delaware, Minnesota, New Mexico, and Rhode Island did not respond to the 2021 survey. In some instances, we used publicly available data or prior years’ survey responses to obtain information for these states. However, unless otherwise noted, these states are not included in counts throughout the survey. ↩︎
  10. Elizabeth Hinton, Robin Rudowitz, Lina Stolyar, and Natalie Singer, 10 Things to Know about Medicaid Managed Care (Washington, DC: KFF, October 29, 2020), https://modern.kff.org/medicaid/issue-brief/10-things-to-know-about-medicaid-managed-care/ ↩︎
  11. Elizabeth Hinton and MaryBeth Musumeci, Medicaid Managed Care Rates and Flexibilities: State Options to Respond to COVID-19 Pandemic (Washington, DC: KFF, September 9, 2020), https://modern.kff.org/medicaid/issue-brief/medicaid-managed-care-rates-and-flexibilities-state-options-to-respond-to-covid-19-pandemic/ ↩︎
  12. Lina Stolyar, Elizabeth Hinton, Natalie Singer, and Robin Rudowitz, Growth in Medicaid MCO Enrollment during the COVID-19 Pandemic (Washington, DC: KFF, June 24, 2021), https://modern.kff.org/coronavirus-covid-19/issue-brief/growth-in-medicaid-mco-enrollment-during-the-covid-19-pandemic/ ↩︎
  13. Bradley Corallo and Avirut Mehta, Analysis of Recent National Trends in Medicaid and CHIP Enrollment (Washington, DC: KFF, September 21, 2021), https://modern.kff.org/coronavirus-covid-19/issue-brief/analysis-of-recent-national-trends-in-medicaid-and-chip-enrollment/ ↩︎
  14. Laura Snyder and Robin Rudowitz, Trends in State Medicaid Programs: Looking Back and Looking Ahead (Washington, DC: KFF, June 21, 2016), https://modern.kff.org/medicaid/issue-brief/trends-in-state-medicaid-programs-looking-back-and-looking-ahead/ ↩︎
  15. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  16. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  17. Centers for Medicare and Medicaid (CMS), “Medicaid & CHIP and the COVID-19 Public Health Emergency,” last updated October 31, 2020, https://www.medicaid.gov/state-resource-center/downloads/covid-19-medicaid-data-snapshot.pdf ↩︎
  18. Elizabeth Hinton and Lina Stolyar, Medicaid Authorities and Options to Address Social Determinants of Health (SDOH), (Washington, DC: KFF, August 5, 2021), https://modern.kff.org/medicaid/issue-brief/medicaid-authorities-and-options-to-address-social-determinants-of-health-sdoh/ ↩︎
  19. Samantha Artiga, Bradley Corallo, and Olivia Pham, Racial Disparities in COVID-19: Key Findings from Available Data and Analysis (Washington, DC: KFF, August 17, 2020), https://modern.kff.org/racial-equity-and-health-policy/issue-brief/racial-disparities-covid-19-key-findings-available-data-analysis/ ↩︎
  20. Kendal Orgera, Rachel Garfield, and Robin Rudowitz, Tracking Social Determinants of Health During the COVID-19 Pandemic (Washington, DC: KFF, October 21, 2021), https://modern.kff.org/coronavirus-covid-19/issue-brief/tracking-social-determinants-of-health-during-the-covid-19-pandemic/ ↩︎
  21. Elizabeth Hinton, Robin Rudowitz, Lina Stolyar, and Natalie Singer, 10 Things to Know about Medicaid Managed Care (Washington, DC: KFF, October 29, 2020), https://modern.kff.org/medicaid/issue-brief/10-things-to-know-about-medicaid-managed-care/ ↩︎
  22. Elizabeth Hinton, Lina Stolyar, and Robin Rudowitz, A Look at How Medicaid Agencies Are Assisting with the COVID-19 Vaccine Roll-Out (Washington, DC: KFF, March 12, 2021), https://modern.kff.org/coronavirus-covid-19/issue-brief/a-look-at-how-medicaid-agencies-are-assisting-with-the-covid-19-vaccine-roll-out/ ↩︎
  23. MaryBeth Musumeci, Robin Rudowitz, Elizabeth Hinton, Rachel Dolan, and Olivia Pham, Options to Support Medicaid Providers in Response to COVID-19 (Washington, DC: KFF, June 17, 2020), https://modern.kff.org/coronavirus-covid-19/issue-brief/options-to-support-medicaid-providers-in-response-to-covid-19/ ↩︎
  24. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  25. Nancy Ochieng, Jeannie Fuglesten Biniek, MaryBeth Musumeci, and Tricia Neuman, Funding for Health Care Providers During the Pandemic: An Update (Washington, DC: KFF, August 20, 2021), https://modern.kff.org/policy-watch/funding-for-health-care-providers-during-the-pandemic-an-update/ ↩︎
  26. Elizabeth Hinton, Robin Rudowitz, Lina Stolyar, and Natalie Singer, 10 Things to Know about Medicaid Managed Care (Washington, DC: KFF, October 29, 2020), https://modern.kff.org/medicaid/issue-brief/10-things-to-know-about-medicaid-managed-care/ ↩︎
  27. Elizabeth Hinton and MaryBeth Musumeci, Medicaid Managed Care Rates and Flexibilities: State Options to Respond to COVID-19 Pandemic (Washington, DC: KFF, September 9, 2020), https://modern.kff.org/medicaid/issue-brief/medicaid-managed-care-rates-and-flexibilities-state-options-to-respond-to-covid-19-pandemic/ ↩︎
  28. Rachel Dolan and Marina Tian, Management and Delivery of the Medicaid Pharmacy Benefit (Washington, DC: KFF, December 6, 2019), https://modern.kff.org/medicaid/issue-brief/management-and-delivery-of-the-medicaid-pharmacy-benefit/ ↩︎
  29. Elizabeth Williams and Rachel Dolan, Utilization and Spending Trends in Medicaid Outpatient Prescription Drugs, 2015-2019 (Washington, DC: KFF, June 9, 2021), https://modern.kff.org/medicaid/issue-brief/utilization-and-spending-trends-in-medicaid-outpatient-prescription-drugs-2015-2019/ ↩︎
  30. Madeline Guth, Elizabeth Hinton, MaryBeth Musumeci, and Robin Rudowitz, The Landscape of Medicaid Demonstration Waivers Ahead of the 2020 Election (Washington, DC: KFF, October 30, 2020), https://modern.kff.org/medicaid/issue-brief/the-landscape-of-medicaid-demonstration-waivers-ahead-of-the-2020-election/ ↩︎
  31. KFF, “Health Insurance Coverage of the Total Population (CPS), 2020, https://modern.kff.org/other/state-indicator/health-insurance-coverage-of-the-total-population-cps/ ↩︎
  32. Centers for Medicare & Medicaid Services (CMS), National Health Expenditure Data Fact Sheet: Table 4, National Health Expenditures by Source of Funds and Type of Expenditure: Calendar Years 2011-2018 (CMS, March 2020), https://www.cms.gov/Research-Statistics-Data-and-Systems/Statistics-Trends-and-Reports/NationalHealthExpendData/NHE-Fact-Sheet.html ↩︎
  33. Bradley Corallo and Avirut Mehta, Analysis of Recent National Trends in Medicaid and CHIP Enrollment (Washington, DC: KFF, September 21, 2021), https://modern.kff.org/coronavirus-covid-19/issue-brief/analysis-of-recent-national-trends-in-medicaid-and-chip-enrollment/ ↩︎
  34. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  35. Kellie Moss et al., The Families First Coronavirus Response Act: Summary of Key Provisions (Washington, DC: KFF, March 23, 2020), https://modern.kff.org/global-health-policy/issue-brief/the-families-first-coronavirus-response-act-summary-of-key-provisions/ ↩︎
  36. Kellie Moss et al., The Coronavirus Aid, Relief, and Economic Security Act: Summary of Key Health Provisions (Washington, DC: KFF, April 9, 2020), https://modern.kff.org/global-health-policy/issue-brief/the-coronavirus-aid-relief-and-economic-security-act-summary-of-key-health-provisions/ ↩︎
  37. Rachel Dolan, MaryBeth Musumeci, Jennifer Tolbert, and Robin Rudowitz, Medicaid Maintenance of Eligibility (MOE) Requirements: Issues to Watch (Washington, DC: KFF, December 17, 2020), https://modern.kff.org/medicaid/issue-brief/medicaid-maintenance-of-eligibility-moe-requirements-issues-to-watch/ ↩︎
  38. U.S. Department of Health and Human Services, Renewal of Determination That A Public Health Emergency Exists (October 15, 2021), https://www.phe.gov/emergency/news/healthactions/phe/Pages/COVDI-15Oct21.aspx ↩︎
  39. U.S. Department of Health and Human Services, Public Health Emergency Message to Governors (January 22, 2021), https://ccf.georgetown.edu/wp-content/uploads/2021/01/Public-Health-Emergency-Message-to-Governors.pdf ↩︎
  40. Centers for Medicare and Medicaid Services (CMS), “Updated Guidance Related to Planning for the Resumption of Normal State Medicaid, Children’s Health Insurance Program (CHIP), and Basic Health Program (BHP) Operations Upon Conclusion of the COVID-19 Public Health Emergency,” last updated August 13, 2021, https://www.medicaid.gov/federal-policy-guidance/downloads/sho-21-002.pdf ↩︎
  41. Marybeth Musumeci and Rachel Dolan, Key Issues for State Medicaid Programs When the COVID-19 Public Health Emergency Ends (Washington, DC: KFF, January 25, 2021), https://modern.kff.org/medicaid/issue-brief/key-issues-for-state-medicaid-programs-when-the-covid-19-public-health-emergency-ends/ ↩︎
  42. KFF, 50-State Medicaid Budget Survey Archives, (Washington, DC: KFF, October 2021), https://modern.kff.org/medicaid/report/medicaid-budget-survey-archives/ ↩︎
  43. Delaware, Minnesota, New Mexico, and Rhode Island did not respond to the 2021 survey. In some instances, we used publicly available data or prior years’ survey responses to obtain information for these states. However, unless otherwise noted, these states are not included in counts throughout the survey. Among responding states, four states (Georgia, Louisiana, Mississippi, and Texas) did not participate in a follow-up telephone interview. ↩︎
  44. State fiscal years begin on July 1 except for these states: New York on April 1; Texas on September 1; Alabama, District of Columbia, and Michigan on October 1. ↩︎
  45. Elizabeth Hinton, Robin Rudowitz, Lina Stolyar, and Natalie Singer, 10 Things to Know about Medicaid Managed Care (Washington, DC: KFF, October 29, 2020), https://modern.kff.org/medicaid/issue-brief/10-things-to-know-about-medicaid-managed-care/ ↩︎
  46. Elizabeth Hinton and MaryBeth Musumeci, Medicaid Managed Care Rates and Flexibilities: State Options to Respond to COVID-19 Pandemic (Washington, DC: KFF, September 9, 2020), https://modern.kff.org/medicaid/issue-brief/medicaid-managed-care-rates-and-flexibilities-state-options-to-respond-to-covid-19-pandemic/ ↩︎
  47. Lina Stolyar, Elizabeth Hinton, Natalie Singer, and Robin Rudowitz, Growth in Medicaid MCO Enrollment during the COVID-19 Pandemic (Washington, DC: KFF, June 24, 2021), https://modern.kff.org/coronavirus-covid-19/issue-brief/growth-in-medicaid-mco-enrollment-during-the-covid-19-pandemic/ ↩︎
  48. Connecticut does not have capitated managed care arrangements, but does carry out many managed care functions through ASO arrangements that include payment incentives based on performance, intensive care management, community workers, educators, and linkages with primary care practices. Connecticut also reported continuing to expand its Patient-Centered Medical Home Plus (PCMH+) program that uses PCCM authority to provide upside-only shared savings payments to providers. ↩︎
  49. Vermont runs a public, non-risk bearing prepaid health plan delivery model under its Section 1115 Global Commitment to Health waiver. At the time of the survey, the state reported that it had submitted a waiver renewal application to CMS, effective January 1, 2022, to transition to a state-run, risk-bearing Medicaid managed care plan. ↩︎
  50. Idaho’s Medicaid-Medicare Coordinated Plan has been recategorized by CMS as an MCO but is not counted here as such since it is secondary to Medicare. Publicly available data used to verify status of four states that did not respond to the 2021 survey (Delaware, Minnesota, New Mexico, and Rhode Island). ↩︎
  51. For purposes of this report, states contracting with “PCCM entities” are also counted as offering a PCCM program. In addition to furnishing basic PCCM services, PCCM entities also provide other services such as intensive case management, provider contracting or oversight, enrollee outreach, and/or performance measurement and quality improvement. 42 CFR §438.2. ↩︎
  52. Oklahoma was set to transition to comprehensive Medicaid managed care on October 1, 2021. However, implementation has been paused due to Oklahoma Supreme Court decision 2021 OK 30. ↩︎
  53. For purposes of this report, the following three states are not counted here as PCCM states: Connecticut and Arizona use PCCM authority to reimburse medical home-related costs and South Carolina uses PCCM authority to provide care management services to medically complex children. ↩︎
  54. Rhode Island did not respond to the 2021 survey. Therefore, Rhode Island’s dental services PHP status was confirmed via publicly available data. ↩︎
  55. In order of Medicaid enrollment size, the ten states are: California, New York, Texas, Florida, Pennsylvania, Illinois, Ohio, Michigan, Arizona, and Georgia. Centers for Medicare and Medicaid Services (CMS), “Medicaid & CHIP Monthly Application, Eligibility Determinations, and Enrollment Reports,” last updated September 2021, https://www.medicaid.gov/medicaid/program-information/medicaid-and-chip-enrollment-data/monthly-reports/index.html ↩︎
  56. This does not include Missouri which had adopted, but not yet implemented, the ACA expansion as of July 1, 2021. ↩︎
  57. Maine’s primary care programs are the PCCM program, Primary Care Health Homes, and the Primary Care Provider Incentive Payment. ↩︎
  58. Maine Department of Health and Human Services, “MaineCare Primary Care 2.0 Reimbursement Webinar,” June 7, 2021, https://www.maine.gov/dhhs/sites/maine.gov.dhhs/files/inline-files/Primary-Care-Reimbursement-Presentation-Stakeholders-June2021.pdf ↩︎
  59. Samantha Artiga, Elizabeth Hinton, Robin Rudowitz, and MaryBeth Musumeci, Current Flexibility in Medicaid: An Overview of Federal Standards and State Options (Washington, DC: KFF, January 31, 2017), https://modern.kff.org/medicaid/issue-brief/current-flexibility-in-medicaid-an-overview-of-federal-standards-and-state-options/ ↩︎
  60. 42 C.F.R. Section 440.230(b). ↩︎
  61. Laura Snyder and Robin Rudowitz, Trends in State Medicaid Programs: Looking Back and Looking Ahead (Washington, DC: KFF, June 21, 2016), https://modern.kff.org/medicaid/issue-brief/trends-in-state-medicaid-programs-looking-back-and-looking-ahead/ ↩︎
  62. Kathleen Gifford et al., “Benefits and Cost-Sharing,” A View from the States: Key Medicaid Policy Changes (Washington, DC: KFF, October 18, 2019), https://modern.kff.org/report-section/a-view-from-the-states-key-medicaid-policy-changes-benefits-and-cost-sharing/ ↩︎
  63. Samantha Artiga, Olivia Pham, Usha Ranji, and Kendal Orgera, Medicaid Initiatives to Improve Maternal and Infant Health and Address Racial Disparities (Washington, DC: KFF, November 10, 2020), https://modern.kff.org/report-section/medicaid-initiatives-to-improve-maternal-and-infant-health-and-address-racial-disparities-issue-brief/ ↩︎
  64. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  65. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  66. Although original CMS guidance on maintenance of eligibility (MOE) requirements during the COVID-19 Public Health Emergency (PHE) prohibited states from restricting benefits in order to receive an enhanced FMAP , a November 2020 Interim Final Rule reinterpreted the MOE to allow states to eliminate optional benefits as well as to change the scope of benefits, such as service authorization criteria. For more information, see: Rachel Dolan, MaryBeth Musumeci, Jennifer Tolbert, and Robin Rudowitz, Medicaid Maintenance of Eligibility (MOE) Requirements: Issues to Watch (Washington, DC: KFF, December 17, 2020), https://modern.kff.org/medicaid/issue-brief/medicaid-maintenance-of-eligibility-moe-requirements-issues-to-watch/ ↩︎
  67. MaryBeth Musumeci, Medicaid Provisions in the American Rescue Plan Act (Washington, DC: KFF, March 18, 2021), https://modern.kff.org/medicaid/issue-brief/medicaid-provisions-in-the-american-rescue-plan-act/ ↩︎
  68. Madeline Guth and Elizabeth Hinton, State Efforts to Expand Medicaid Coverage & Access to Telehealth in Response to COVID-19 (Washington, DC: KFF, June 22, 2020), https://modern.kff.org/coronavirus-covid-19/issue-brief/state-efforts-to-expand-medicaid-coverage-access-to-telehealth-in-response-to-covid-19/ ↩︎
  69. State Telehealth Medicaid Fee-For-Service Policy: A Historical Analysis of Telehealth: 2013-2019 (Center for Connected Health Policy, January 2020), https://www.cchpca.org/2021/04/Historical-State-Telehealth-Medicaid-Fee-For-Service-Policy-Report-FINAL.pdf ↩︎
  70. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  71. CMS data shows that the number of Medicaid and CHIP services delivered via telehealth increased by more than 2700% in the period from March to October 2020 as compared to the same time period in 2019. Additionally, early 2021 data shows that although telehealth utilization across the entire health care system  has increased rapidly during the pandemic, it has not offset decreases in in-person care. See: Centers for Medicare and Medicaid (CMS), “Medicaid & CHIP and the COVID-19 Public Health Emergency,” last updated October 31, 2020, https://www.medicaid.gov/state-resource-center/downloads/covid-19-medicaid-data-snapshot.pdf Kieran Gallagher, Jackie Gerhart, Krutika Amin, Matthew Rae, and Cynthia Cox, Early 2021 Data Show No Rebound in Health Care Utilization (Washington, DC: Peterson-KFF Health System Tracker, August 17, 2021), https://www.healthsystemtracker.org/brief/early-2021-data-show-no-rebound-in-health-care-utilization/ Cynthia Cox, Krutika Amin, and Rabah Kamal, How Have Health Spending and Utilization Changed During the Coronavirus Pandemic? (Washington, DC: Peterson-KFF Health System Tracker, March 22, 2021), https://www.healthsystemtracker.org/chart-collection/how-have-healthcare-utilization-and-spending-changed-so-far-during-the-coronavirus-pandemic/ ↩︎
  72. MACPAC, Medicaid and Rural Health (Washington, DC: MACPAC, June 2021), https://www.macpac.gov/wp-content/uploads/2021/04/Medicaid-and-Rural-Health.pdf ↩︎
  73. Krutika Amin, Matthew Rae, Giorlando Ramirez, and Cynthia Cox, How Might Internet Connectivity Affect Health Care Access (Washington, DC: Peterson-KFF Health System Tracker, December 14, 2020), https://www.healthsystemtracker.org/chart-collection/how-might-internet-connectivity-affect-health-care-access/ ↩︎
  74. Bradley Corallo, Housing Affordability, Adequacy, and Access to the Internet in Homes of Medicaid Enrollees (Washington, DC: KFF, September 22, 2021), https://modern.kff.org/medicaid/issue-brief/housing-affordability-adequacy-and-access-to-the-internet-in-homes-of-medicaid-enrollees/ ↩︎
  75. American Rescue Plan Act of 2021, Pub. L. No. 117-2 (March 11, 2021), https://www.congress.gov/117/plaws/publ2/PLAW-117publ2.pdf ↩︎
  76. U.S. Department of Health and Human Services, Biden-Harris Administration Invests over $19 Million to Expand Telehealth Nationwide and Improve Health in Rural, Other Underserved Communities (August 18, 2021), https://www.hhs.gov/about/news/2021/08/18/biden-harris-administration-invests-over-19-million-expand-telehealth-nationwide-improve-health-rural.html ↩︎
  77. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  78. Throughout this section, we used publicly available data to verify benefit changes in four states that did not respond to the 2021 survey (Delaware, Minnesota, New Mexico, and Rhode Island). ↩︎
  79. MaryBeth Musumeci, Medicaid Provisions in the American Rescue Plan Act (Washington, DC: KFF, March 18, 2021), https://modern.kff.org/medicaid/issue-brief/medicaid-provisions-in-the-american-rescue-plan-act/ ↩︎
  80. In addition, eight states (District of Columbia, Georgia, New Mexico, North Dakota, Oklahoma, Rhode Island, South Carolina, and Tennessee) reported new or expanded medication-assisted treatment (MAT) benefits in FY 2021. Federally required changes, such as coverage of MAT (including all FDA-approved drugs, counseling services, and behavioral therapy) as mandated by the SUPPORT Act, are not counted as positive or negative benefit changes for purposes of this report. ↩︎
  81. 430 ILCS 69/35-55 (June 17, 2021), https://casetext.com/statute/illinois-compiled-statutes/health-and-safety/chapter-430-public-safety/act-69-reimagine-public-safety-act/section-430-ilcs-6935-55-medicaid-trauma-recovery-services-for-children-and-youth ↩︎
  82. California Welfare and Institutional Code § 14132.755 (2021), https://casetext.com/statute/california-codes/california-welfare-and-institutions-code/division-9-public-social-services/part-3-aid-and-medical-assistance/chapter-7-basic-health-care/article-4-the-medi-cal-benefits-program/section-14132755-dyadic-behavioral-health-visits-a-covered-benefit-under-medi-cal-program ↩︎
  83. Wisconsin Department of Health Services, “Hub and Spoke Health Home Pilot Program,” https://www.dhs.wisconsin.gov/aoda/hubandspoke-sud-hh.htm ↩︎
  84. The six states are: California, Illinois, Maryland, New Jersey, Nevada, and Virginia. ↩︎
  85. KFF, “Medicaid Postpartum Coverage Extension Tracker,” last updated October 21, 2021, https://modern.kff.org/medicaid/issue-brief/medicaid-postpartum-coverage-extension-tracker/ ↩︎
  86. The seven states are: Delaware, Massachusetts, Minnesota, Oklahoma, South Carolina, Virginia, and West Virginia. ↩︎
  87. Jennifer Garvin, ADA Supports Silver Diamine Fluoride for Caries Management (American Dental Association, October 26, 2020), https://www.ada.org/en/publications/ada-news/2020-archive/october/ada-supports-silver-diamine-fluoride-for-caries-management ↩︎
  88. KFF, “Medicaid Waiver Tracker: Approved and Pending Section 1115 Waivers by State,” last updated October 22, 2021, https://modern.kff.org/medicaid/issue-brief/medicaid-waiver-tracker-approved-and-pending-section-1115-waivers-by-state/ ↩︎
  89. Elizabeth Hinton and Lina Stolyar, Medicaid Authorities and Options to Address Social Determinants of Health (SDOH), (Washington, DC: KFF, August 5, 2021), https://modern.kff.org/medicaid/issue-brief/medicaid-authorities-and-options-to-address-social-determinants-of-health-sdoh/ ↩︎
  90. South Carolina Department of Health and Human Services, “Vaccines for Children Policy and Coding Update,” July 30, 2021, https://www.scdhhs.gov/press-release/vaccines-children-policy-and-coding-update-0 ↩︎
  91. Madeline Guth and Elizabeth Hinton, State Efforts to Expand Medicaid Coverage & Access to Telehealth in Response to COVID-19 (Washington, DC: KFF, June 22, 2020), https://modern.kff.org/coronavirus-covid-19/issue-brief/state-efforts-to-expand-medicaid-coverage-access-to-telehealth-in-response-to-covid-19/ ↩︎
  92. Tennessee enrolls 100% of its Medicaid enrollees in MCOs and has no FFS telehealth coverage policies; however, Tennessee’s status in Figure 4 reflects state legislation requiring Tennessee insurers, including Medicaid MCOs, to cover telehealth in the same manner as in-person care. ↩︎
  93. This count excludes Tennessee, which enrolls 100% of its Medicaid enrollees in MCOs and has no FFS telehealth coverage policies. ↩︎
  94. Rose C. Chu, Christie Peters, Nancy De Lew, and Benjamin D. Sommers, State Medicaid Telehealth Policies Before and During the COVID-19 Public Health Emergency (Washington, DC: U.S. Department of Health and Human Services, Office of the Assistant Secretary for Planning and Evaluation, July 19, 2021), https://aspe.hhs.gov/sites/default/files/2021-07/medicaid-telehealth-brief.pdf ↩︎
  95. KFF, “Medicaid Emergency Authority Tracker: Approved State Actions to Address COVID-19,” last updated July 1, 2021, https://modern.kff.org/medicaid/issue-brief/medicaid-emergency-authority-tracker-approved-state-actions-to-address-covid-19/ ↩︎
  96. Tennessee enrolls 100% of its Medicaid enrollees in MCOs and has no FFS telehealth reimbursement policies; however, we include Tennessee in this count of states to reflect state legislation requiring Tennessee insurers, including Medicaid MCOs, to reimburse telehealth in the same manner as in-person care. ↩︎
  97. North Carolina reported that as of July 1, 2021, audio-visual services are paid at parity with in-person visits, but audio-only services are reimbursed at 80% the in-person rate. Mississippi reported that several audio-only codes are reimbursed slightly differently as compared to the comparable in-person evaluation & management codes. ↩︎
  98. This count excludes Tennessee, which enrolls 100% of its Medicaid enrollees in MCOs and has no FFS telehealth reimbursement policies. ↩︎
  99. Sixteen states indicated similar growth in telehealth utilization for rural and urban populations: Arizona, Florida, Georgia, Indiana, Maine, Missouri, Montana, North Dakota, Nebraska, New Hampshire, New York, Ohio, Oklahoma, Utah, West Virginia, and Wyoming. Ten states indicated that telehealth utilization increased more for urban populations: Colorado, District of Columbia, Illinois, Louisiana, North Carolina, Nevada, Pennsylvania, Tennessee, Texas, and Virginia. Two states indicated that telehealth utilization increased more for rural populations: Alaska and California. ↩︎
  100. Regarding changes to FFS telehealth coverage or reimbursement policy planned for FY 2022, the MCO states generally reported that they will require MCOs to implement the same policy. ↩︎
  101. Elizabeth Hinton and Lina Stolyar, Medicaid Authorities and Options to Address Social Determinants of Health (SDOH), (Washington, DC: KFF, August 5, 2021), https://modern.kff.org/medicaid/issue-brief/medicaid-authorities-and-options-to-address-social-determinants-of-health-sdoh/ ↩︎
  102. Centers for Medicare and Medicaid Services (CMS), “Opportunities in Medicaid and CHIP to Address Social Determinants of Health (SDOH),” last updated January 7, 2021, https://www.medicaid.gov/federal-policy-guidance/downloads/sho21001.pdf ↩︎
  103. Samantha Artiga, Rachel Garfield, and Kendal Orgera, Communities of Color at Higher Risk for Health and Economic Challenge due to COVID-19 (Washington, DC: KFF, April 7, 2020), https://modern.kff.org/coronavirus-covid-19/issue-brief/communities-of-color-at-higher-risk-for-health-and-economic-challenges-due-to-covid-19/ ↩︎
  104. Samantha Artiga, Bradley Corallo, and Olivia Pham, Racial Disparities in COVID-19: Key Findings from Available Data and Analysis (Washington, DC: KFF, August 17, 2020), https://modern.kff.org/racial-equity-and-health-policy/issue-brief/racial-disparities-covid-19-key-findings-available-data-analysis/ ↩︎
  105. Samantha Artiga, Bradley Corallo, and Olivia Pham, Racial Disparities in COVID-19: Key Findings from Available Data and Analysis (Washington, DC: KFF, August 17, 2020), https://modern.kff.org/racial-equity-and-health-policy/issue-brief/racial-disparities-covid-19-key-findings-available-data-analysis/ ↩︎
  106. Kendal Orgera, Rachel Garfield, and Robin Rudowitz, Tracking Social Determinants of Health During the COVID-19 Pandemic (Washington, DC: KFF, October 21, 2021), https://modern.kff.org/coronavirus-covid-19/issue-brief/tracking-social-determinants-of-health-during-the-covid-19-pandemic/ ↩︎
  107. Liz Hamel et al., KFF COVID-19 Vaccine Monitor: September 2021 (Washington, DC: KFF, September 28, 2021), https://modern.kff.org/coronavirus-covid-19/poll-finding/kff-covid-19-vaccine-monitor-september-2021/ ↩︎
  108. Elizabeth Hinton, Robin Rudowitz, Lina Stolyar, and Natalie Singer, 10 Things to Know about Medicaid Managed Care (Washington, DC: KFF, October 29, 2020), https://modern.kff.org/medicaid/issue-brief/10-things-to-know-about-medicaid-managed-care/ ↩︎
  109. Elizabeth Hinton, Lina Stolyar, and Robin Rudowitz, A Look at How Medicaid Agencies Are Assisting with the COVID-19 Vaccine Roll-Out (Washington, DC: KFF, March 12, 2021), https://modern.kff.org/coronavirus-covid-19/issue-brief/a-look-at-how-medicaid-agencies-are-assisting-with-the-covid-19-vaccine-roll-out/ ↩︎
  110. Elizabeth Hinton and Lina Stolyar, Medicaid Authorities and Options to Address Social Determinants of Health (SDOH), (Washington, DC: KFF, August 5, 2021), https://modern.kff.org/medicaid/issue-brief/medicaid-authorities-and-options-to-address-social-determinants-of-health-sdoh/ ↩︎
  111. For more information on WPCI: Arizona Health Care Cost Containment System, “AHCCCS Whole Person Care Initiative (WPCI),” https://www.azahcccs.gov/AHCCCS/Initiatives/AHCCCSWPCI/ ↩︎
  112. Elizabeth Hinton and Lina Stolyar, Medicaid Authorities and Options to Address Social Determinants of Health (SDOH), (Washington, DC: KFF, August 5, 2021), https://modern.kff.org/medicaid/issue-brief/medicaid-authorities-and-options-to-address-social-determinants-of-health-sdoh/ ↩︎
  113. Louisiana and Texas did not provide answers to this specific question about non-MCO initiatives. ↩︎
  114. More information the Homeless Management Information System can be found here: “HMIS Homeless Management Information System,” HMIS Arizona, accessed October 15, 2021, https://hmisaz.com/ ↩︎
  115. “Homeless Management Information System,” HUD Exchange, accessed October 15, 2021, https://www.hudexchange.info/programs/hmis/ ↩︎
  116. Elizabeth Hinton and Lina Stolyar, Medicaid Authorities and Options to Address Social Determinants of Health (SDOH), (Washington, DC: KFF, August 5, 2021), https://modern.kff.org/medicaid/issue-brief/medicaid-authorities-and-options-to-address-social-determinants-of-health-sdoh/ ↩︎
  117. California Association of Public Hospitals and Health Systems, “Whole Person Care Lays Groundwork For Quick COVID-19 Response,” August 31, 2020, https://caph.org/2020/08/31/whole-person-care-lays-groundwork-for-quick-covid-19-response/ ↩︎
  118. North Carolina Department of Health and Human Services, “Community Health Workers,” https://www.ncdhhs.gov/divisions/office-rural-health/community-health-workers ↩︎
  119. Jim Lloyd, Kathy Moses, and Rachel Davis, Recognizing and Sustaining the Value of Community Health Workers and Promotores (Center for Health Care Strategies, Inc., January 2020), https://www.chcs.org/media/CHCS-CHCF-CHWP-Brief_010920_FINAL.pdf ↩︎
  120. Centers for Disease Control and Prevention (CDC), “States Implementing Community Health Worker Strategies,” https://www.cdc.gov/dhdsp/programs/spha/docs/1305_ta_guide_chws.pdf ↩︎
  121. Rural Health Information Hub, “Roles of Community Health Workers,” https://www.ruralhealthinfo.org/toolkits/community-health-workers/1/roles ↩︎
  122. Elinor Higgins, States Engage Community Health Workers to Combat COVID-19 and Health Inequities (National Academy for State Health Policy, June 22, 2020), https://www.nashp.org/states-engage-community-health-workers-to-combat-covid-19-and-health-inequities/ ↩︎
  123. Two states (Arkansas and Vermont) cited peer supports as CHW initiatives. Arkansas is looking to expand its “peer support” network, a network of individuals who have received or are currently receiving behavioral health services provide support, education, and advocacy to others receiving behavioral health services while Vermont will be adding peer support services to their Medicaid state plan in 2022. More information on Arkansas’s definition of peer supports can be found here: Arkansas Department of Human Services, “Adult Behavioral Health Services for Community Independence,” https://humanservices.arkansas.gov/wp-content/uploads/ABHSCI_II.doc More information on Vermont’s plan to add peer support services can be found here: Letter from Vermont Governor to CMS (June 29, 2021), https://www.medicaid.gov/medicaid/section-1115-demonstrations/downloads/vt-global-commitment-to-health-pa4.pdf ↩︎
  124. Oregon House Bill 2088 (June 2021), https://olis.oregonlegislature.gov/liz/2021R1/Downloads/MeasureDocument/HB2088/Enrolled ↩︎
  125. Oregon Community Health Workers Association, “Community Health Worker Payment Model Guide,” November 2020, https://www.orchwa.org/resources/Documents/ORCHWA%20Payment%20Model%20Guide%202020.pdf ↩︎
  126. For more information on the Healthcare Transformation Collaboratives: Illinois Department of Healthcare and Family Services, “Healthcare Transformation Collaboratives,” https://www2.illinois.gov/hfs/Pages/HealthcareTransformation.aspx ↩︎
  127. Illinois Department of Healthcare and Family Services, Provider Notice, “Healthcare Transformation Collaboratives Program Application for Funding Awards,” March 8, 2021, https://www2.illinois.gov/hfs/MedicalProviders/notices/Pages/prn210308b.aspx ↩︎
  128. Samantha Artiga, Rachel Garfield, and Kendal Orgera, Communities of Color at Higher Risk for Health and Economic Challenge due to COVID-19 (Washington, DC: KFF, April 7, 2020), https://modern.kff.org/coronavirus-covid-19/issue-brief/communities-of-color-at-higher-risk-for-health-and-economic-challenges-due-to-covid-19/ ↩︎
  129. Samantha Artiga, Bradley Corallo, and Olivia Pham, Racial Disparities in COVID-19: Key Findings from Available Data and Analysis (Washington, DC: KFF, August 17, 2020), https://modern.kff.org/racial-equity-and-health-policy/issue-brief/racial-disparities-covid-19-key-findings-available-data-analysis/ ↩︎
  130. National Committee for Quality Assurance, “Multicultural Health Care,” https://www.ncqa.org/programs/health-plans/multicultural-health-care-mhc/ ↩︎
  131. Additionally, several states cited that current or planned expansions of doula coverage and other maternity services would address health disparities. These benefit changes are included in the Benefits and Telehealth section of this report. ↩︎
  132. Elizabeth Hinton, Lina Stolyar, and Robin Rudowitz, A Look at How Medicaid Agencies Are Assisting with the COVID-19 Vaccine Roll-Out (Washington, DC: KFF, March 12, 2021), https://modern.kff.org/coronavirus-covid-19/issue-brief/a-look-at-how-medicaid-agencies-are-assisting-with-the-covid-19-vaccine-roll-out/ ↩︎
  133. Elizabeth Hinton, Robin Rudowitz, Lina Stolyar, and Natalie Singer, 10 Things to Know about Medicaid Managed Care (Washington, DC: KFF, October 29, 2020), https://modern.kff.org/medicaid/issue-brief/10-things-to-know-about-medicaid-managed-care/ ↩︎
  134. Florida Agency for Healthcare Administration, Policy Transmittal, “Statewide Medicaid Managed Care (SMMC),” June 18, 2021, https://ahca.myflorida.com/medicaid/statewide_mc/pdf/2018-23_plan_comm/PT_2021-21_COVID-19_SOE_Vaccine.Administration.Initiative_06.18.2021.pdf ↩︎
  135. MaryBeth Musumeci, Robin Rudowitz, Elizabeth Hinton, Rachel Dolan, and Olivia Pham, Options to Support Medicaid Providers in Response to COVID-19 (Washington, DC: KFF, June 17, 2020), https://modern.kff.org/coronavirus-covid-19/issue-brief/options-to-support-medicaid-providers-in-response-to-covid-19/ ↩︎
  136. Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  137. Nancy Ochieng, Jeannie Fuglesten Biniek, MaryBeth Musumeci, and Tricia Neuman, Funding for Health Care Providers During the Pandemic: An Update (Washington, DC: KFF, August 20, 2021), https://modern.kff.org/policy-watch/funding-for-health-care-providers-during-the-pandemic-an-update/ ↩︎
  138. Elizabeth Hinton, Robin Rudowitz, Lina Stolyar, and Natalie Singer, 10 Things to Know about Medicaid Managed Care (Washington, DC: KFF, October 29, 2020), https://modern.kff.org/medicaid/issue-brief/10-things-to-know-about-medicaid-managed-care/ ↩︎
  139. Elizabeth Hinton, Robin Rudowitz, Lina Stolyar, and Natalie Singer, 10 Things to Know about Medicaid Managed Care (Washington, DC: KFF, October 29, 2020), https://modern.kff.org/medicaid/issue-brief/10-things-to-know-about-medicaid-managed-care/ ↩︎
  140. Elizabeth Hinton and MaryBeth Musumeci, Medicaid Managed Care Rates and Flexibilities: State Options to Respond to COVID-19 Pandemic (Washington, DC: KFF, September 9, 2020), https://modern.kff.org/medicaid/issue-brief/medicaid-managed-care-rates-and-flexibilities-state-options-to-respond-to-covid-19-pandemic/ ↩︎
  141. Robin Rudowitz, Kendal Orgera, and Elizabeth Hinton, Medicaid Financing: The Basics (Washington, DC: KFF, March 21, 2019), https://modern.kff.org/report-section/medicaid-financing-the-basics-issue-brief/ ↩︎
  142. Laura Snyder and Robin Rudowitz, Trends in State Medicaid Programs: Looking Back and Looking Ahead (Washington, DC: KFF, June 21, 2016), https://modern.kff.org/medicaid/issue-brief/trends-in-state-medicaid-programs-looking-back-and-looking-ahead/ ↩︎
  143. For more information on state emergency Medicaid actions in response to COVID-19, including payment changes, see: KFF, “Medicaid Emergency Authority Tracker: Approved State Actions to Address COVID-19,” last updated July 1, 2021, https://modern.kff.org/medicaid/issue-brief/medicaid-emergency-authority-tracker-approved-state-actions-to-address-covid-19/ Rachel Dolan, and Madeline Guth, How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn? (Washington, DC: KFF, August 26, 2021), https://modern.kff.org/medicaid/issue-brief/how-have-states-used-medicaid-emergency-authorities-during-covid-19-and-what-can-we-learn/ ↩︎
  144. Julia Paradise and MaryBeth Musumeci, CMS's Final Rule on Medicaid Managed Care: A Summary of Major Provisions, (Washington, DC: KFF, June 9, 2016), https://modern.kff.org/medicaid/issue-brief/cmss-final-rule-on-medicaid-managed-care-a-summary-of-major-provisions/ ↩︎
  145. Daniel McDermott et al., Health Insurer Financial Performance in 2020 (Washington, DC: KFF, May 3, 2021), https://modern.kff.org/private-insurance/issue-brief/health-insurer-financial-performance-in-2020/ ↩︎
  146. Center for Medicare and Medicaid (CMS), “Medicaid Managed Care Regulations with July 1, 2017 Compliance Dates,” last updated June 30, 2017, https://www.medicaid.gov/federal-policy-guidance/downloads/cib063017.pdf ↩︎
  147. Center for Medicare and Medicaid (CMS), “Medicaid Managed Care Frequently Asked Questions (FAQs) – Medical Loss Ratio,” June 5, 2020, https://www.medicaid.gov/sites/default/files/Federal-Policy-Guidance/Downloads/cib060520_new.pdf ↩︎
  148. Elizabeth Hinton and MaryBeth Musumeci, Medicaid Managed Care Rates and Flexibilities: State Options to Respond to COVID-19 Pandemic (Washington, DC: KFF, September 9, 2020), https://modern.kff.org/medicaid/issue-brief/medicaid-managed-care-rates-and-flexibilities-state-options-to-respond-to-covid-19-pandemic/ ↩︎
  149. Among reporting states that contract with MCOs, an equal number of states reported contracting with MCOs on a calendar year basis (15) vs. on a state fiscal year basis (15). One state reported having both calendar year and state fiscal year contracts and six states reported “other” contract terms. ↩︎
  150. States that noted having risk corridors in place for at least one MCO program unrelated to the pandemic include: Arkansas, California, Hawaii, Massachusetts, Nebraska, Pennsylvania, Texas, and Utah. ↩︎
  151. 42 CFR §§ 438.6 and 438.60. ↩︎
  152. Prior to 2016, a number of states made pass-through payments to providers by increasing MCO capitation rates and then requiring MCOs to direct these additional funds to designated providers. The 2016 Medicaid and CHIP Managed Care Final Rule required states to phase out “pass-throughs” of state supplemental provider payments in the capitation rates paid to MCOs and limited benefit PHPs over five to ten years because they are not tied to the provision of services covered under plan contracts and therefore conflict with the actuarial soundness requirement. The 2016 Rule created an exception that permits “state directed payments” that comply with 42 CFR Section 438.6(c). CMS added this exception in recognition of the fact that pass-through payments are often an important revenue source for safety-net providers and that states also had interests in contractually directing MCO payments to improve and integrate care, enhance quality, reduce costs, and promote delivery system reforms. ↩︎
  153. States also can seek CMS approval to require MCOs to implement value-based purchasing models for provider reimbursement (e.g., pay-for-performance, bundled payments) or participate in multi-payer or Medicaid-specific delivery system reform or performance improvement initiatives (discussed in more detail in Social Determinants of Health section of this report). ↩︎
  154. In January 2021, CMS issued state directed payment updated guidance. See: Center for Medicare and Medicaid (CMS), SMD#21-001, “Additional Guidance on State Directed Payments in Medicaid Managed Care,” last updated January 8, 2021, https://www.medicaid.gov/Federal-Policy-Guidance/Downloads/smd21001.pdf ↩︎
  155. Center for Medicare and Medicaid (CMS), “Medicaid Managed Care Options in Responding to COVID-19,” last updated May 14, 2020, https://www.medicaid.gov/sites/default/files/Federal-Policy-Guidance/Downloads/cib051420.pdf ↩︎
  156. The 13 states are: Arizona, Iowa, Illinois, Louisiana, Massachusetts, New Hampshire, New Jersey, New York, Ohio, Oregon, Tennessee, Washington, and West Virginia. ↩︎
  157. Fifteen states reported minimum fee schedules for “other” provider types not specified in Exhibit 6: Hawaii, Iowa, Illinois, Kentucky, Maryland, Missouri, Mississippi, North Carolina, New Hampshire, New York, Ohio, Pennsylvania, Virginia, Wisconsin, and West Virginia. Provider types cited in this “other” category include: durable medical equipment (DME) (Kentucky, North Carolina, New Hampshire, Virginia, and West Virginia), BH providers (Ohio and West Virginia), hospice (Hawaii), Federally Qualified Health Centers (FQHC)/rural health clinics (RHC) (Iowa), critical access pharmacy (Illinois), ambulance (Missouri), autism spectrum disorder (Mississippi), pregnancy management program (North Carolina), psychiatric designated receiving facilities and BH community residential providers (New Hampshire), Indian Health Center providers (New York), opioid use disorder Centers of Excellence and Integrated Community Wellness Centers (Pennsylvania), sub-acute psychiatric providers (Wisconsin), and family planning providers (West Virginia). ↩︎
  158. The six states are: Florida, Massachusetts, Missouri, Pennsylvania, Tennessee, and Wisconsin. Five states (Florida, Massachusetts, Missouri, Tennessee, and Wisconsin) set a maximum fee schedule for hospitals; Wisconsin also sets maximum fee schedules for several other provider types (described in text). Pennsylvania sets a maximum fee schedule for an “other” provider type not specified in Exhibit 6 (Opioid Use Disorder Centers of Excellence and Integrated Community Wellness Centers). ↩︎
  159. Twenty-four states reported any MCO or PHP directed payments in place as of July 1, 2021: Arizona, California, Florida, Georgia, Hawaii, Iowa, Illinois, Kansas, Kentucky, Massachusetts, Michigan, Missouri, Mississippi, Nebraska, New Hampshire, New Jersey, Ohio, Tennessee, Texas, Utah, Virginia, Washington, Wisconsin, and West Virginia. Specifically, 19 states reported directed payments for hospitals: Arizona, California, Florida, Hawaii, Iowa, Illinois, Kansas, Kentucky, Michigan, Mississippi, New Hampshire, New Jersey, Ohio, Tennessee, Texas, Utah, Virginia, Wisconsin, and West Virginia. ↩︎
  160. Government Accountability Office, Medicaid: CMS Needs More Information on States’ Financing and Payment Arrangements to Improve Oversight (Washington, DC: Government Accountability Office, December 2020), https://www.gao.gov/assets/gao-21-98.pdf ↩︎
  161. Throughout this section, we use 2020 survey data for Minnesota and 2019 survey data for Delaware, New Mexico, and Rhode Island because these four states did not response to the 2021 survey. ↩︎
  162. The Deficit Reduction Act of 2005 amended the federal Medicaid provider tax law to restrict the use of MCO taxes effective July 1, 2009. Prior to that date, states could apply a provider tax to Medicaid MCOs that did not apply to MCOs more broadly and could use that revenue to match Medicaid federal funds. Since 2009, several states have implemented new MCO taxes that tax member months rather than premiums and that meet the federal statistical requirements for broad-based and uniform taxes. In addition to the 12 states reporting implemented MCO taxes, some states have implemented taxes on health insurers more broadly that generate revenue for their Medicaid programs. ↩︎
  163. Seven states reported having an ambulance tax in place in FY 2021: California, Louisiana, Michigan, Missouri, Tennessee, Utah, and Vermont. ↩︎
  164. Eleven states reported planned increases to one or more provider taxes in FY 2022: California, Hawaii, Illinois, Indiana, Louisiana, Missouri, North Carolina, Ohio, Oklahoma, Pennsylvania, and Utah. These increases were most commonly for taxes on hospitals. Two states reported planned decreases to one or more provider taxes in FY 2022: Maryland and Missouri. ↩︎
  165. Kathleen Gifford et al., How State Medicaid Programs are Managing Prescription Drug Costs: Results from a State Medicaid Pharmacy Survey for State Fiscal Years 2019 and 2020 (Washington, DC: KFF, April 2020), https://files.kff.org/attachment/How-State-Medicaid-Programs-are-Managing-Prescription-Drug-Costs.pdf ↩︎
  166. Elizabeth Williams and Rachel Dolan, Utilization and Spending Trends in Medicaid Outpatient Prescription Drugs, 2015-2019 (Washington, DC: KFF, June 9, 2021), https://modern.kff.org/medicaid/issue-brief/utilization-and-spending-trends-in-medicaid-outpatient-prescription-drugs-2015-2019/ ↩︎
  167. Rachel Dolan, Understanding the Medicaid Prescription Drug Rebate Program (Washington, DC: KFF, November 12, 2019), https://modern.kff.org/medicaid/issue-brief/understanding-the-medicaid-prescription-drug-rebate-program/ ↩︎
  168. Rachel Dolan and Marina Tian, Pricing and Payment for Medicaid Prescription Drugs (Washington, DC: KFF, January 23, 2020), https://modern.kff.org/medicaid/issue-brief/pricing-and-payment-for-medicaid-prescription-drugs/ ↩︎
  169. Rachel Dolan and Marina Tian, Management and Delivery of the Medicaid Pharmacy Benefit (Washington, DC: KFF, December 6, 2019), https://modern.kff.org/medicaid/issue-brief/management-and-delivery-of-the-medicaid-pharmacy-benefit/ ↩︎
  170. State policymakers remain concerned about Medicaid prescription drug spending growth and the entry of new high-cost drugs to the market, like Aduhelm, which could cost states anywhere from $230 to $695 million and states report developing strategies and policies to address these drugs is a priority. See: Rachel Dolan and Elizabeth Williams, How Might the FDA’s Approval of a New Alzheimer’s Drug Impact Medicaid? (Washington, DC: KFF, July 13, 2021), https://modern.kff.org/medicaid/issue-brief/how-might-the-fdas-approval-of-a-new-alzheimers-drug-impact-medicaid/ ↩︎
  171. Juliette Cubanski, Meredith Freed, and Tricia Neuman, A Status Report on Prescription Drug Policies and Proposals at the Start of the Biden Administration (Washington, DC: KFF, February 11, 2021), https://modern.kff.org/medicare/issue-brief/a-status-report-on-prescription-drug-policies-and-proposals-at-the-start-of-the-biden-administration/ ↩︎
  172. Rachel Dolan, How Might Current Federal Drug Pricing Proposals Impact Medicaid? (Washington, DC: KFF, May 24, 2021), https://modern.kff.org/policy-watch/how-might-current-federal-drug-pricing-proposals-impact-medicaid/ ↩︎
  173. American Rescue Plan Act of 2021, Pub. L. No. 117-2 (March 11, 2021), https://www.congress.gov/117/plaws/publ2/PLAW-117publ2.pdf ↩︎
  174. Rachel Dolan, Rachel Garfield, and Robin Rudowitz, Potential Implications of Policy Changes in Medicaid Drug Purchasing (Washington, DC: KFF, May 4, 2021), https://modern.kff.org/medicaid/issue-brief/potential-implications-of-policy-changes-in-medicaid-drug-purchasing/ ↩︎
  175. Rachel Garfield, Rachel Dolan, and Elizabeth Williams, Costs and Savings under Federal Policy Approaches to Address Medicaid Prescription Drug Spending (Washington, DC: KFF, June 22, 2021), https://modern.kff.org/medicaid/issue-brief/costs-and-savings-under-federal-policy-approaches-to-address-medicaid-prescription-drug-spending/ ↩︎
  176. Survey data from KFF’s Pharmacy Survey were used for the four states that did not respond to the 2021 survey (Delaware, Minnesota, New Mexico, and Rhode Island) for this question. See: Kathleen Gifford et al., How State Medicaid Programs are Managing Prescription Drug Costs: Results from a State Medicaid Pharmacy Survey for State Fiscal Years 2019 and 2020 (Washington, DC: KFF, April 2020), https://files.kff.org/attachment/How-State-Medicaid-Programs-are-Managing-Prescription-Drug-Costs.pdf ↩︎
  177. Ohio is “unbundling” many components of pharmacy benefit administration from MCO responsibilities and will contract with a single PBM instead. It is also contracting with a Pharmacy Pricing and Audit Consultant (PPAC) who will provide operational and consulting support in the areas of pharmacy reimbursement, benefit design, oversight, and auditing. Additional information about the program change is available at Ohio Medicaid Managed Care, “Ohio Medicaid Single Pharmacy Benefit Manager (SPBM),” https://managedcare.medicaid.ohio.gov/wps/portal/gov/manc/managed-care/single-pharmacy-benefit-manager ↩︎
  178. California’s pharmacy carve-out was originally scheduled for a January 2021 implementation, but the implementation date was moved to January 2022. New York’s pharmacy carve-out was delayed by two years, until April 2023, in the recently enacted FY 2022 state budget ↩︎
  179. Kentucky Cabinet for Health and Family Services, Provider Bulletin “Kentucky Managed Care Organization Single Pharmacy Benefit Manager Announcement,” April 1, 2021,  https://chfs.ky.gov/agencies/dms/dpo/ppb/Documents/ProviderMailingApril2021Final.pdf ↩︎
  180. Kathleen Gifford et al., How State Medicaid Programs are Managing Prescription Drug Costs: Results from a State Medicaid Pharmacy Survey for State Fiscal Years 2019 and 2020 (Washington, DC: KFF, April 2020), https://files.kff.org/attachment/How-State-Medicaid-Programs-are-Managing-Prescription-Drug-Costs.pdf ↩︎
  181. The ten states are: Hawaii, Indiana, Iowa, Kansas, Louisiana, Mississippi, Nevada, New Hampshire, Ohio, and West Viriginia. ↩︎
  182. Kathleen Gifford et al., How State Medicaid Programs are Managing Prescription Drug Costs: Results from a State Medicaid Pharmacy Survey for State Fiscal Years 2019 and 2020 (Washington, DC: KFF, April 2020), https://files.kff.org/attachment/How-State-Medicaid-Programs-are-Managing-Prescription-Drug-Costs.pdf ↩︎
  183. Kathleen Gifford et al., How State Medicaid Programs are Managing Prescription Drug Costs: Results from a State Medicaid Pharmacy Survey for State Fiscal Years 2019 and 2020 (Washington, DC: KFF, April 2020), https://files.kff.org/attachment/How-State-Medicaid-Programs-are-Managing-Prescription-Drug-Costs.pdf ↩︎
  184. The thirteen states are Arkansas, Colorado, Illinois, Indiana, Nevada, New York, North Carolina, Ohio, Oregon, Tennessee, Texas, Vermont, and Wisconsin. ↩︎
  185. Centers for Medicaid and Medicaid (CMS), “RE: Implementation of American Rescue Plan Act of 2021 Section 9817: Additional Support for Medicaid Home and Community-Based Services during the COVID-19 Emergency,” May 13, 2021, https://www.medicaid.gov/federal-policy-guidance/downloads/smd21003.pdf ↩︎
  186. Madeline Guth, Elizabeth Hinton, MaryBeth Musumeci, and Robin Rudowitz, The Landscape of Medicaid Demonstration Waivers Ahead of the 2020 Election (Washington, DC: KFF, October 30, 2020), https://modern.kff.org/medicaid/issue-brief/the-landscape-of-medicaid-demonstration-waivers-ahead-of-the-2020-election/ ↩︎
  187. KFF, 50-State Medicaid Budget Survey Archives, (Washington, DC: KFF, October 2021), https://modern.kff.org/medicaid/report/medicaid-budget-survey-archives/ ↩︎
  188. State fiscal years begin on July 1 except for these states: New York on April 1; Texas on September 1; Alabama, District of Columbia, and Michigan on October 1. ↩︎
  189. Delaware, Minnesota, New Mexico, and Rhode Island did not respond to the 2021 survey. In some instances, we used publicly available data or prior years’ survey responses to obtain information for these states. However, unless otherwise noted, these states are not included in counts throughout the survey. ↩︎
  190. Among responding states, four states (Georgia, Louisiana, Mississippi, and Texas) did not participate in the follow-up telephone interview. ↩︎

Medicaid Enrollment & Spending Growth: FY 2021 & 2022

Published: Oct 27, 2021

Issue Brief

Key Takeaways

In March 2020, the COVID-19 pandemic generated both a public health crisis and an economic crisis, with major implications for Medicaid – a countercyclical program – and its beneficiaries. During economic downturns, more people enroll in Medicaid, increasing program spending at the same time state tax revenues may be falling. While state revenues have substantially rebounded after dropping precipitously at the onset of the pandemic, the public health crisis has continued as a new surge of COVID-19 infections, hospitalizations, and deaths, fueled by the Delta variant, began to take hold in the U.S. in late July and August 2021. To support Medicaid and provide broad state fiscal relief, the Families First Coronavirus Response Act (FFCRA), enacted in March 2020, authorized a 6.2 percentage point increase in the federal Medicaid matching rate (“FMAP”) (retroactive to January 1, 2020) if states meet certain “maintenance of eligibility” (MOE) requirements. Since then, the MOE requirements and temporary FMAP increase have been the primary drivers of Medicaid enrollment and spending trends. The fiscal relief and the MOE requirements are tied to the duration of the public health emergency (PHE).

This brief analyzes Medicaid enrollment and spending trends for state fiscal year (FY) 2021 and FY 2022 (which for most states began on July 1)1  based on data provided by state Medicaid directors as part of the 21st annual survey of Medicaid directors in states and the District of Columbia. Forty-seven states2  responded to the survey by mid-September 2021, although response rates for specific questions varied. In their survey responses, most states anticipated that the fiscal relief and MOE would end in December 2021 and that had major implications for enrollment and spending projections. The PHE was recently extended to mid-January 2022, which would affect these projections and possibly delay anticipated effects of slowing enrollment and spending currently assumed in state budgets for FY 2022. The methodology used to calculate enrollment and spending growth and additional information about Medicaid financing can be found at the end of the brief. Key survey findings include the following:

  • Enrollment growth: After increasing sharply in FY 2021 (10.3%) due to the MOE requirements and the pandemic’s economic effects, responding states expect Medicaid enrollment growth to slow to 4.5% in FY 2022, based largely on the assumption that the PHE and the related FFCRA MOE requirements will end in FY 2022 (most states assume mid-way through FY 2022).
  • Total spending growth: FY 2022 state budgets for responding states assume total Medicaid spending growth will slow to 7.3% compared to 11.4% in FY 2021. States identified enrollment growth as the primary driver of FY 2021 expenditure growth and assume slower enrollment growth will result in lower total spending growth in FY 2022.
  • State spending growth: While states reported that the state (nonfederal) share of Medicaid spending grew by 4.0% in FY 2021, they projected sharper FY 2022 growth of 14.0% based on the assumption that the PHE and related enhanced FMAP would expire in mid–FY 2022, shifting the state and federal spending shares even though total Medicaid spending growth is expected to slow.

As in 2020, the 2021 survey was fielded during a time of great uncertainty. State fiscal conditions had improved, but the rate of recovery varied across the states and employment indicators had not yet reached pre-pandemic levels. After COVID-19 infection rates dropped to encouragingly low levels in the late spring of 2021, a summer surge driven by the Delta variant was generating more uncertainty around the PHE end date, to which the MOE requirements and enhanced FMAP are tied. In their survey responses, most states projected slowing Medicaid enrollment growth and total spending growth along with increases in the share of state Medicaid spending in FY 2022 due to the assumption that MOE requirements and the enhanced FMAP would end in December 2021, half-way through the fiscal year for most states. However, the PHE was recently extended to mid-January 2022 and may be extended further if cases and deaths from the Delta variant remain high or increase heading into the winter. Extensions of the PHE would likely delay state projections/trends for spending and enrollment growth depicted in this report (for FY 2022). How states respond to the eventual end of the PHE and the unwinding of their MOE will have significant implications for enrollment and spending.

Context

Following declines from 2017 through 2019, total Medicaid and CHIP enrollment nationwide began to grow following the onset of the COVID-19 pandemic. Between February 2020 and April 2021, enrollment grew to 82.3 million, an increase of 11.1 million or 15.5%. In 2020, Medicaid (together with CHIP) provided coverage to nearly one in five Americans. This enrollment growth reflects both changes in the economy, as people enrolled following income and job losses, as well as the FFCRA MOE provisions that require states to ensure continuous coverage for current Medicaid enrollees to access a temporary increase in the FMAP rate. Total Medicaid spending was over $662 billion in FY 2020 with 67.4% paid by the federal government and 32.6% financed by states. Medicaid accounts for one in six dollars spent in the health care system and more than half of spending on long-term services and supports.3 

States experienced a dramatic and rapid reversal of their fiscal conditions when the pandemic hit in March 2020. Before the pandemic, unemployment was low, states expected revenues to grow for the 10th consecutive year, and state general fund spending was on track to grow by 5.8%. In this context, governors developed FY 2021 budget proposals that reflected continued revenue and spending growth. The pandemic began during the second half of FY 2020 and quickly reversed state fiscal conditions. Early estimates projected state budget shortfalls of up to $555 billion for fiscal years 2020 through 2022, and states experienced their first general fund revenue decline in FY 2020 since the Great Recession, though some declines in revenue can be attributed to states delaying their 2020 income tax collections from April to July (the start of FY 2021 for most states). Faced with continued uncertainty regarding the course of the pandemic, ongoing revenue collections, and additional federal fiscal relief, states adopted conservative FY 2021 budgets. Unlike the federal government, states must meet balanced budget requirements. To address budget shortfalls heading into FY 2021, states used strategies such as layoffs or furloughs for state workers, hiring freezes or salary reductions, across the board spending cuts, or one-time use of rainy day funds.

State economic conditions have since improved mitigating the need for widespread spending cuts last year. National economic indicators have moderated in recent months. For example, September 2021 saw a national unemployment rate of 4.8% across all states including DC, below the peak of 14.8% in April 2020 but still above the February 2020 rate of 3.5% right before the pandemic. State revenue collections have rebounded due, in part, to federal aid provided to states, improved state sales tax collections on online purchases, and smaller personal income tax revenue declines due to the disproportionate impact of the pandemic on low-income workers. While state general funds are estimated to have grown by 3% in FY 2021, general fund spending in FY 2021 remained 2% below spending projections made before the pandemic. In FY 2022, however, general fund spending is expected to grow by 5%. In contrast to budgets adopted for FY 2021, proposed FY 2022 state budgets did not include general fund spending decreases, and most states enacted FY 2022 budgets with increased state spending and revenue.

Viewed nationally, state fiscal conditions have improved, but pandemic-related economic impacts vary by state. The severity of the pandemic-induced economic downturn and speed of recovery varies by state depending on state characteristics such as tax structure, industry reliance, social distancing policies and behaviors, and virus transmission. Economic indicators are improving across states, with indicators for some states returning to pre-pandemic levels while others remain distressed. For example, in September 2021, Nebraska saw an unemployment rate of 2.0%, which is below their pre-pandemic rate of 3.0% in February 2020, while Nevada’s unemployment rate was 7.5%, well above their pre-pandemic unemployment rate of 3.7%. While state revenues overall appear to have surpassed pre-pandemic levels, there is variation across states. Also, this data pre-dates the recent Delta variant fueled COVID-19 surge and is volatile due to most states delaying their income tax filing deadlines for 2020 and 2021.

While the FFCRA FMAP increase currently continues to support Medicaid programs and provide broad fiscal relief to states, states are preparing for the FMAP increase to end in FY 2022. In the past, federal fiscal relief provided through Medicaid FMAP increases during significant economic downturns has helped to both support Medicaid and provide efficient, effective, and timely fiscal relief to states. FFCRA uses this model as well by providing a temporary 6.2 percentage point increase in the Medicaid FMAP from January 1, 2020 through the end of the quarter in which the PHE ends. The current PHE declaration expires in mid-January 2022, meaning the enhanced FMAP will remain in place until the end of March 2022 unless the PHE is extended further. This FMAP increase does not apply to the Affordable Care Act (ACA) expansion group, for which the federal government already pays 90% of costs. To be eligible for the funds, states must meet certain MOE requirements that include not implementing more restrictive Medicaid eligibility standards or higher premiums and providing continuous eligibility for enrollees through the end of the PHE. Though the recent rise in COVID-19 cases and deaths due to the Delta variant cast uncertainty on the duration of the PHE, states are beginning to prepare for the end of MOE requirements, and new guidance from CMS gives states 12 months to address Medicaid eligibility renewals and redeterminations following the end of the PHE.

Key Findings

Medicaid enrollment growth peaked in FY 2021 and is expected to slow in FY 2022 (Figure 1). Medicaid enrollment growth peaked in FY 2015 due to ACA implementation and tapered thereafter. Enrollment actually declined in FY 2018 and FY 2019 and was relatively flat in FY 2020. Enrollment rose sharply, however, in FY 2021 (10.3%), and is projected to continue to grow, though more slowly, in FY 2022 (4.5%). Many states noted uncertainty in their projections due to the unknown duration of the PHE and related MOE requirements. Following the end of the MOE requirements, redeterminations will resume, and eligibility will end for beneficiaries who are determined to no longer meet eligibility standards. For budget projections, a majority of states were assuming the MOE would end as of December 31, 2021. This assumption was contributing to slowing enrollment growth in FY 2022; however, states also identified challenges to resuming normal eligibility operations such as the need for system changes, staffing shortages, and the volume of new applications and redeterminations.

States largely attributed enrollment increases to the FFCRA’s MOE requirements. All responding states reported that the MOE requirements were a significant upward pressure on FY 2021 enrollment. Over two-thirds of responding states reported that the MOE was likely to be a significant upward driver of FY 2022 enrollment, though some assumed that this upward pressure would end mid-year. In the absence of the MOE, individuals may lose Medicaid coverage because they have a change in circumstance (such as an increase in income), because they fail to complete renewal processes or paperwork even when they remain eligible, or because they age out of a time- or age-limited eligibility category (e.g., pregnant women or former foster care youth). In FY 2021, only about a quarter of states noted that the economy was a significant upward pressure on enrollment. Conversely, signs of economic improvement at the time of the survey likely contributed to some states citing economic conditions as a downward pressure on enrollment in FY 2022. Among Medicaid expansion states that responded to the survey, expansion adults were the most frequently mentioned eligibility group with notably higher rates of enrollment growth relative to other groups.  States also reported that groups more sensitive to changes in economic conditions (e.g., children, parents, and other expansion adults) grew faster than the elderly and people with disabilities.

Percent Change in Medicaid Spending and Enrollment,1998-2022

FY 2022 state budgets for responding states assume total Medicaid spending growth will slow to 7.3% compared to a peak of 11.4% in FY 2021 (Figure 2). High rates of enrollment growth, tied first to the Great Recession and later to ACA implementation, were the primary drivers of total Medicaid spending growth over the last decade. Following ACA implementation but prior to the pandemic, declining or slowing enrollment growth resulted in more moderate spending growth. In prior surveys, states noted that spending growth in FY 2020 (prior to the major effects of the pandemic) was tied to increasing costs for prescription drugs (particularly for specialty drugs), rate increases (most often for managed care organizations, hospitals, and nursing facilities), overall medical inflation, pressures from an aging state population, and a higher acuity case-mix.

FY 2021 spending growth increased sharply, primarily due to enrollment growth. Some states noted upward pressures from increased COVID-19 related expenditures, but half of states reported pandemic-related utilization decreases for non-COVID care as a downward pressure on overall spending. A majority of states reported acute care utilization on a per member basis decreased in FY 2021, but most of these states expect a full rebound in acute care services utilization in FY 2022 (most states were responding to the survey before a new surge in cases from the Delta variant were emerging). Most states indicated nursing facility utilization decreased in FY 2021; however, a majority of states noted the decreased utilization was partially or fully offset by utilization in home and community-based services (HCBS). Among states seeing decreases in nursing facility utilization, only a small number expect nursing facility utilization to fully rebound in FY 2022. Changes in payment rates and utilization patterns for acute and long-term care services may have contributed to states reporting that per enrollee spending for the elderly and people with disabilities was growing faster relative to other groups in FY 2021.

For FY 2022, a majority of states expect enrollment growth trends to be a primary factor driving total spending growth.  While a majority of states cited enrollment as an upward pressure, over a third of states expect enrollment to become a downward pressure in FY 2022, assuming that the MOE requirements end midway through FY 2022 and states would resume redeterminations resulting in slower enrollment growth. Beyond enrollment, states reported additional upward pressure coming from provider rate or cost changes and increased utilization driven by a return to pre-pandemic utilization levels or by pent up demand resulting from pandemic-related delays in care.

Assumptions about the duration of the PHE and the expiration of the enhanced FMAP affected state Medicaid spending growth assumptions (Figure 2). The state share of Medicaid spending typically grows at a similar rate as total Medicaid spending growth unless there is a change in the FMAP rate. During the Great Recession, state spending for Medicaid declined in FY 2009 and FY 2010 due to fiscal relief from a temporary FMAP increase provided in the American Recovery and Reinvestment Act (ARRA). State spending increased sharply when that fiscal relief ended.

This pattern has repeated during the pandemic-induced economic downturn, with state Medicaid spending declining in FY 2020, increasing but at a slower rate than total spending in FY 2021, and then projected to increase sharply to surpass total Medicaid spending in FY 2022 due to assumptions about the expiration of the fiscal relief. More than three-quarters of responding states assumed the enhanced FMAP rate would end December 31, 2021, half-way through the state fiscal year, with only two states assuming a later date. The spike in state spending growth reflects these assumptions. However, the recent PHE extension to mid-January 2022 extends the enhanced FMAP through at least March 2022, which will mitigate the state spending increase observed here. Of course, a further extension of the PHE due to the Delta variant or other factors could mean that the enhanced FMAP would be in place through June 2022 (the end of the state fiscal year for most states), meaning the spike in state spending would not occur until the following fiscal year.

Percent Change in Total and State Medicaid Spending, 2000-2022

Nearly all responding states report using the federal fiscal relief to support costs related to increased Medicaid enrollment. About two-thirds of responding states also report using the fiscal relief to help address Medicaid or general budget shortfalls and mitigate provider rate and/or benefit cuts. Fewer states anticipate Medicaid budget shortfalls in FY 2022 (prior to the Delta variant surge) compared to last year’s survey, reflecting improving state revenues that allow states to fund their share of Medicaid spending increases. However, many states noted the importance of federal fiscal relief to avoiding a shortfall and uncertainty of a shortfall due to the unknown duration of the enhanced FMAP.

Conclusion and Looking Ahead

State economic conditions have improved, though the recovery varies across states and employment indicators have not yet reached pre-pandemic levels. Almost all states have adopted budgets for state fiscal year 2022 (which started July 1 in most states), and revenue and spending projections incorporated improvements in revenue reflecting increased economic activity due to COVID-19 vaccination efforts and eased restrictions, assumptions about the duration of the PHE, and federal stimulus funds that were part of the American Rescue Plan. A summer surge in COVID-19 cases, hospitalizations, and deaths driven by the Delta variant, however, has generated greater uncertainty regarding future state fiscal conditions.

The end date of the PHE remains uncertain and will have significant implications for Medicaid enrollment and spending. The recent COVID-19 surge casts further uncertainty around the duration of the PHE and the MOE requirements and enhanced FMAP that are tied to the PHE. The MOE requirements and enhanced FMAP have already been extended further than most states anticipated in their budget projections and may be extended even further if the current COVID-19 surge continues or worsens. If the PHE is extended beyond January, Medicaid enrollment growth will likely continue in FY 2022, but the expected increase in state Medicaid spending will be delayed while the enhanced federal fiscal relief remains in place. Regardless of when the PHE ends, most states will start to prepare for the eventual unwinding of their MOE policies and procedures, as resuming Medicaid eligibility renewals will be a large administrative task for states. Guidance from CMS gives states 12 months to complete renewals and redeterminations following the end of the PHE. Additional guidance and oversight from the federal government could help mitigate differences in how states approach the end of the MOE. With the unwinding, states are likely to face pressures to contain growth in state spending tied to enrollment, particularly after the enhanced FMAP ends, even as they work to overcome challenges with systems and staffing to ensure that eligible individuals remain covered by Medicaid or transition to other sources of coverage.

Methods

Methods

Definition of Medicaid Spending. Total Medicaid spending includes all payments to Medicaid providers for Medicaid-covered services provided to enrolled Medicaid beneficiaries. Medicaid spending also includes special disproportionate share hospital (DSH) payments that subsidize uncompensated hospital care for persons who are uninsured and unreimbursed costs of care for persons on Medicaid. Total Medicaid spending does not include Medicaid administrative costs and federally mandated state “Clawback” payments to help finance the Medicare Part D prescription drug benefit for Medicaid beneficiaries who are also enrolled in Medicare. States are also asked to exclude costs for the Children’s Health Insurance Program (CHIP). Total Medicaid spending includes payments financed from all sources, including state funds, local contributions, and federal matching funds. Historical state Medicaid spending refers to all nonfederal spending, which may include local funds and provider taxes and fees as well as state general fund dollars.

Methodology. KFF commissioned Health Management Associates (HMA) to survey Medicaid directors in all 50 states and DC to identify and track trends in Medicaid spending, enrollment, and policymaking. Given differences in the financing structure of their programs, the U.S. territories were not included in this analysis. This is the 21st annual survey, conducted at the beginning of each state fiscal year from FY 2002 through FY 2022. The KFF/HMA Medicaid survey for this report was sent to each Medicaid director in June 2021. Forty-seven states provided survey responses by mid-September 2021. The four states that did not respond by this time are Delaware, Minnesota, New Mexico, and Rhode Island.

For FY 2021 and FY 2022, annual rates of growth for Medicaid spending were calculated as weighted averages across all states. For FY 2021 and FY 2022, 46 states reported Medicaid expenditure growth rates, and publicly available data was used for New Mexico’s expenditure growth. Weights for spending were derived from the most recent state Medicaid expenditure data for FY 2020, based on estimates prepared for KFF by the Urban Institute using CMS Form 64 reports, adjusted for state fiscal years. These CMS-64 data were also used for historic Medicaid spending and include all 50 states and DC. For FY 2018 and 2019, spending for New York was adjusted to reflect unexplained anomalies in the state spending on the CMS-64 data.

The average annual Medicaid enrollment growth rate for FY 2022 was calculated using weights based on Medicaid and CHIP preliminary monthly enrollment data for April 2021 published by CMS. For FY 2022, 42 states reported Medicaid enrollment growth rates, and publicly available data was used for New Mexico’s enrollment growth. The data reported for FY 2021 and FY 2022 for Medicaid spending and FY 2022 for Medicaid enrollment are weighted averages, and therefore, data reported for states with larger enrollment and spending have a greater effect on the national average.

Historical enrollment trend data for FY 1998 to FY 2013 reflects the annual percentage change from June to June of monthly enrollment data for Medicaid beneficiaries collected from all states and DC. Enrollment trend data for FY 2014 to FY 2021 reflects growth in average monthly enrollment based on KFF analysis of the Medicaid & CHIP Monthly Applications, Eligibility Determinations, and Enrollment Reports from CMS for all 50 states and DC. FY 2021 growth is preliminary through April 2021. Note that several states have revised monthly enrollment data as far back as June 2017 to better align with reporting criteria for the CMS, Medicaid & CHIP Monthly Applications, Eligibility Determinations, and Enrollment Reports. Data for months prior to June 2017 have not been revised and may use slightly different criteria for reporting monthly enrollment and generally result in larger enrollment totals.

Appendix

Medicaid Financing Structure. The federal government jointly funds the Medicaid program with states by matching qualifying state Medicaid expenditures. The federal match rate (known as the Federal Medical Assistance percentage, or "FMAP") is calculated annually for each state using a statutory formula based on a state’s average personal income relative to the national average which results in higher FMAP rates for poorer states. The FMAP formula relies on three years of lagged personal income data, so data for federal fiscal years (FFYs) 2017 to 2019 was used to calculate FFY 2022 FMAP rates, which range from a floor of 50% (applicable to 12 states) to a high of 78% (for Mississippi). Because of the federal matching structure, Medicaid is both a state budget expenditure item and a source of federal revenue for states. In FY 2019 (the latest year of actual data), Medicaid accounted for 28.7% of total state spending, but 15.9% of state funds (general fund plus other state funds), a far second to spending on K-12 education (25.1% of state funds). Medicaid is the largest single source of federal funds for states, accounting for over half (58.4%) of all federal funds received by states (Figure 3).

Medicaid Spending as a Share of Total, State, and Federal Funds

Medicaid and the Economy. Medicaid is a countercyclical program. During economic downturns, more people qualify and enroll in Medicaid, increasing program spending at the same time that state tax revenues may be stagnating or falling. Prior to the current pandemic, to mitigate these budget pressures, Congress had twice passed temporary FMAP increases to help support states during economic downturns, most recently in 2009 as part of the American Recovery and Reinvestment Act (ARRA). The ARRA-enhanced FMAP rates provided states over $100 billion in additional federal funds over 11 quarters, ending in June 2011.4 

Medicaid and the ACA. Effective January 1, 2014, the ACA expanded Medicaid eligibility to millions of non-elderly adults with income at or below 138% of the federal poverty level (FPL) –$17,774 per year for an individual in 2021.5  The law also provided 100% federal funding for expansion adults through 2016, phasing down to 90% in 2020 and future years. The June 2012 Supreme Court ruling on the ACA effectively made the Medicaid expansion optional for states; as of October 2021, 39 states (including DC) had adopted the expansion, including Missouri and Oklahoma, which have adopted the expansion through ballot measures and implemented beginning in state fiscal year 2022.

Endnotes

  1. State fiscal years begin on July 1 except for these states: New York on April 1; Texas on September 1; Alabama, Michigan, and District of Columbia on October 1. ↩︎
  2. The four states that did not respond by mid-September 2021 are: Delaware, Minnesota, New Mexico, and Rhode Island. ↩︎
  3. U.S. Centers for Medicare & Medicaid Services (CMS). National Health Expenditure Data Fact Sheet: Table 4, National Health Expenditures by Source of Funds and Type of Expenditure: Calendar Years 2011-2018 (CMS, March 2020), https://www.cms.gov/Research-Statistics-Data-and-Systems/Statistics-Trends-and-Reports/NationalHealthExpendData/NHE-Fact-Sheet.html. ↩︎
  4. To be eligible for ARRA funds, states could not restrict eligibility or tighten enrollment procedures in Medicaid or CHIP. Vic Miller, Impact of the Medicaid Fiscal Relief Provisions in the American Recovery and Reinvestment Act (ARRA) (Washington, DC: Kaiser Commission on Medicaid and the Uninsured, October 2011), http://kff.org/medicaid/issue-brief/impact-of-the-medicaid-fiscal-relief-provisions/. ↩︎
  5. U.S. Department of Health & Human Services, Office of the Assistant Secretary for Planning and Evaluation. U.S. Federal Poverty Guidelines Used to Determine Financial Eligibility for Certain Federal Programs (January 2021), https://aspe.hhs.gov/poverty-guidelines ↩︎
News Release

Policy Considerations as Children Ages 5-11 Become Eligible for the COVID-19 Vaccine

Published: Oct 25, 2021

A new KFF issue brief lays out key factors for the successful rollout of COVID-19 vaccinations for younger children, ages 5 to 11. This week, the Food and Drug Administration’s (FDA) advisory committee will meet to vote on a request to authorize the Pfizer vaccine for younger children. A final FDA decision, and Centers for Disease Control and Prevention actions, will follow as soon as the first week in November.

As the Biden administration plans with states and local jurisdictions for rollout, among several issues to consider:

  • Access to vaccines for children will likely vary across the country reflecting state and local decisions related to the scale up and supply of vaccines. Meeting initial demand for the vaccine may be challenging as vaccine providers will need to wait to receive pediatric doses, which have different packaging and formulations than existing vaccines.
  • Pediatricians and children’s hospitals, in areas that have them, will likely play an expanded role in vaccinating younger children, while the role of schools as vaccine sites may vary based on state or local decisions. However, states will need to enroll additional providers and potentially reestablish or expand capacity of community vaccination sites to enhance accessibility for children.
  • Outreach and education through trusted messengers, including pediatricians, will be important for achieving high vaccination rates among children. It also will be key to prioritize equity in vaccination efforts to prevent against disparities in vaccination seen so far, as more than half of younger children are children of color and many live in low-income families.

Read the brief, Vaccinating Children Ages 5-11: Policy Considerations for COVID-19 Vaccine Rollout, for a full discussion of implementation issues. Also available is KFF’s latest installment of the THE CONVERSATION / LA CONVERSACIÓN campaign addressing questions about the COVID-19 vaccines and children, with FAQ videos featuring pediatricians presented with the American Academy of Pediatrics.

Vaccinating Children Ages 5-11: Policy Considerations for COVID-19 Vaccine Rollout

Published: Oct 25, 2021

Introduction

It is widely expected that children, ages 5-11, will soon become the latest group to be eligible for COVID-19 vaccination in the United States. The Food and Drug Administration (FDA)’s advisory committee is meeting on October 26 to vote on Pfizer’s request to authorize its vaccine for children, which would be followed by an FDA decision. The Centers for Disease Control and Prevention (CDC) Advisory Committee on Immunization Practices (ACIP) is meeting on November 2-3 to make its recommendation, which would be followed by a CDC Director recommendation. As such, children could become eligible as soon as November 3 or 4. In anticipation, the White House and CDC have engaged in operational planning with state and local jurisdictions. However, when the doses for children become available and how rapidly the rollout translates into shots getting into kids’ arms nationwide remain to be seen. At least in the near term, there could be some unique challenges to this new vaccination effort as well as a repeat of some of the difficulties faced during previous COVID-19 vaccination phases. This brief highlights key issues to consider for the vaccination rollout to younger children.

Scale-up and Supply

Access to vaccines for children will likely vary across the country in the short run. While the federal government has been working with state and local jurisdictions to prepare to administer vaccines, as in the early days of the vaccine effort, much of the rollout will depend on jurisdictional decisions, and implementation will likely vary across the country. Local vaccination efforts will reflect decisions about pre-ordering supplies, choosing vaccination sites and providers, the adequacy of provider networks, and communication and outreach plans. While this vaccination effort will rely on existing COVID-19 vaccination providers (pharmacies, Community Health Centers/Rural Health Clinics, hospitals), other providers will have an expanded role in the rollout to younger kids, including pediatricians, primary care providers, schools, and children’s hospitals. New providers will need to be registered, trained, and certified, a process which likely to occur at different speeds and with different levels of completeness across jurisdictions. As a result, vaccine availability for children will likely vary depending on where they live.

Demand for pediatric vaccinations could initially outstrip supply, as providers wait for delivery of children’s vaccines and update processes to administer them. Up until now, when a new group has been prioritized or authorized for COVID-19 vaccination, providers could simply use existing supply to administer the vaccine. However, Pfizer’s COVID-19 vaccines for children will have different dosing, formulation, and packaging requirements compared to vaccines for adults. The new product and packaging have advantages, including a smaller number of vials per carton (compared to the much large number of adult doses distributed) that may make it easier for physicians’ offices and other locations to store and manage; these differences will also keep pediatric vaccines easily distinct from adult vaccines. However, existing vaccination providers – including physicians’ offices, pharmacies, clinics, and other sites – will have to wait for delivery of these new vials to begin vaccinating this age group and may have to update processes to reflect these differences.

The speed of scale-up will likely vary across the country, partially dependent on state ordering and assessments. The White House has said that the federal government has enough vaccine supply for the estimated 28 million children ages 5-11, who will become eligible for vaccination. Initially, a large, one-time allotment of 15 million doses will be made available to jurisdictions for pre-order, on a pro-rata basis based on the distribution of the child population. This initial allotment will be distributed in three waves, and began October 20. States will be responsible for planning and ordering first and second doses and distributing doses to participating providers and sites (although pharmacies will also receive doses directly from the federal government as part of the federal pharmacy program). At least initially, unpredictable and shifting levels of demand could result in mismatches between demand and supply across and within states.

Vaccination Providers

Pediatricians and children’s hospitals will play an expanded role in vaccinating younger children. The White House has indicated that the COVID-19 vaccine will be available at over 25,000 pediatrician offices and primary care sites. As trusted sources of care for children, and regular providers of routine immunizations, pediatricians can help provide parents/caregivers with the information needed to make a decision about the vaccine for their children. While many pediatricians are already providing COVID-19 vaccinations (an American Association of Pediatrics survey found that most pediatricians in primary care had enrolled as COVID-19 vaccine providers and many had started administering to adolescents), states are working to enroll more doctors to meet the increased demand and ensure caregivers can access the vaccine where they are used to seeking care for their children. Still, enrollment is likely uneven across the country, and some pediatricians, especially those in smaller practices, may face barriers to participating at least initially, as they wait to receive doses or, despite the smaller number of vials per carton, run into challenges with administering their supply within a set period to avoid running into expiration dates. In addition, given how trusted pediatricians are, the success of vaccination efforts may in part hinge on whether they are able to proactively reach out to parents/caregivers or if they wait to hear from them. The federal government is also partnering with over 100 children’s hospitals across the country to set up vaccination clinics through the end of the year.

While schools are positioned to play an important role in vaccinating children and educating families, their role will likely play out differently across the country given the localized nature of school decision-making and politicization of COVID-19 vaccines. The White House has said it will work with state and local jurisdictions to make vaccination sites available at schools, including setting up and supplying sites as well as supporting logistics and communications. However, school decisions are highly localized, whether that be relating to mask or vaccine requirements, screening, or offering on-site vaccine clinics. Decisions about whether schools will provide on-site clinics will be up to jurisdictions, as was the case for 12-17 year-olds. For 12-17 year-olds, some states, such as Mississippi, encouraged vaccine providers to partner with schools to offer on-site vaccination and others, including California and DC, set such clinics up. At the same time, others have resisted putting any school-based COVID-19 requirements in place, including for masking and testing, and some have been reluctant to offer COVID-19 vaccine clinics on site. In preparation for authorization of vaccines for those 5-11, California and Maryland have already indicated their intention to offer school-based vaccination clinics, but whether others follow suit remains to be seen.

Pharmacies have been one of the major sites for COVID-19 vaccination, particularly since the spring, but it is unclear how many will offer vaccination for young children. HHS has invoked the PREP Act under the COVID-19 public health emergency to allow pharmacists to vaccinate younger children for routine immunizations as well as COVID-19 (upon authorization). This action pre-empts state laws that might have age limits on pharmacist administration of vaccines. However, not all pharmacies have chosen to take up this option, thereby potentially limiting what could be an extensive avenue for access to vaccination nationwide. Outreach to major pharmacy chains and independent pharmacies about their ability to administer vaccines to younger children during the public health emergency by the federal government or individual jurisdictions could further increase their participation.

Community vaccination clinics that were vital to vaccinating large numbers of people early in the vaccination effort could provide additional access points for children. However, local health departments have scaled back community-based vaccination efforts as demand for the vaccine slowed over the past few months. Reestablishing these clinics in community-based settings to specifically reach younger children or increasing the capacity of existing clinics will require additional resources. These sites may also face logistical challenges vaccinating younger children because of the special dosing requirements. Federal support and funding can assist with staffing and supply needs to ramp up capacity as well as the community outreach needed to inform parents/caregivers of the availability of these clinics.

Vaccination Uptake and Equity

Parental/caregiver support and confidence will be paramount to achieving high vaccination rates over time, yet many have concerns or questions about getting their younger children vaccinated against COVID-19. KFF polling has found that overall, about one-third of parents (34%) with children in the 5-11 age group are eager to get them vaccinated as soon as their kids are eligible (with some parents more likely to say they want to get their children vaccinated right away, including those who are older, have college degrees, and have been vaccinated themselves). This means there initially will likely be high demand for vaccines, when scale up and distribution issues noted above may pose challenges. After this initial surge, however, the primary challenge is likely to shift to addressing concerns or questions that contribute to reluctance to vaccinating younger children. As of September 2021, a majority of parents reported being either unsure about vaccinating their children in this age group (32% say they will wait and see) or say they will not get them vaccinated or only do so if required (31%). These shares will likely decline once the vaccines are approved for younger children and there is increased outreach and education. However, data show some remaining reluctance among parents of 12-17 year-olds, with a quarter still saying they will not get their child vaccinated or will only do so if required, even though children in this age group have been eligible for vaccination for months. CDC data show that as of October 21, 63% of 16-17 year-olds had received at least one vaccine dose as had 56% of 12-15 year-olds, compared to 79% of those 18 and older. Parental/caregiver consent will be a major factor in vaccinating those under age 12 since consent is required in all states (though DC and Philadelphia allow 11-year-olds to self-consent for the COVID-19 vaccine). Therefore, outreach and education to parents/caregivers will be important to achieving high vaccination rates in younger children, and pediatricians will play an especially important role in this regard.

Trusted and diverse messengers matter, and outreach will be even more important, but more challenging, over time. As part of its plan, the White House has said HHS will conduct a national public education campaign, relying on trusted messengers and multiple stakeholders (e.g., schools, health departments, faith leaders, and community organizations, local organizers). This will include popular media and social media campaigns, such as one that we recently launched with the American Academy of Pediatrics to reach parents and caregivers. The news media – particularly local news media – will also be key messengers about COVID-19 vaccines for children and the extent to which they are actively and regularly providing information will likely have an important impact on vaccine uptake

Finally, it will be important to prioritize equity as vaccination efforts extend to younger children. Of the estimated 28 million children in the U.S. ages 5-11, more than half are children of color, including approximately 26% who are Hispanic and 14% who are Black (Figure 1). The racial ethnic distribution of children varies across states, which higher shares of children of color in many states, particularly in Hawaii and the District of Columbia (Table 1). Almost four in ten (39%) children between the ages of 5-11 live in households with incomes below 200% of the Federal Poverty Level (FPL) (Figure 1). Over the course of the COVID-19 vaccination rollout, Black and Hispanic people have been less likely to be vaccinated compared to their White counterparts, although these disparities have narrowed over time. To mitigate similar disparities in vaccination rates among children, it will be important to address potential access barriers and ensure vaccinations are available through trusted sites in the community. Engaging trusted community members to provide outreach and education and address parent/caregiver concerns and questions about the vaccine will also be key. In addition, increasing the availability of data will be vital for being able to identify and address disparities in vaccination rates among children. At the federal level, data currently are not available on vaccinations by race/ethnicity and age, and very few states report these data. Without these data, disparities will remain unseen and more difficult to address.

Characteristics of Children Ages 5 to 11, 2019
Distribution of Children Ages 5-11 by Race/Ethnicity, 2019

 

Infographic: The Availability and Use of Medication Abortion Care

Published: Oct 21, 2021

Medication abortion, also known as medical abortion or abortion with pills, is an FDA approved pregnancy termination protocol that involves taking two different drugs, mifepristone and misoprostol, for use up to the first 70 days (10 weeks) of pregnancy. Studies show that medication abortion care is safe and effective. This infographic highlights data and policies regarding the availability and effectiveness of medication abortion in the United States. Medication abortion accounts for more than half (54%) of all abortions before nine weeks gestation in the United States.

On April 12, 2021 , the FDA’s Center for Drug Evaluation and Research notified the American College of Obstetricians and Gynecologists (ACOG) that they are suspending enforcement of the Risk Evaluation and Mitigation Strategy (REMS) requirement for mifepristone that requires prescribers to dispense to patients in-person during the COVID-19 emergency. This temporarily allows providers in the 32 states and DC that do not have laws that otherwise ban this practice to dispense mifepristone using the telehealth protocol for medication abortion. The FDA has also undertaken a full review of the REMS for mifepristone and the results of that review are expected later in 2021..

View Source Slides

Most Medicare Beneficiaries Don’t Shop Around for Coverage

Authors: Wyatt Koma, Meredith Freed, Juliette Cubanski, and Tricia Neuman
Published: Oct 21, 2021

The Medicare open enrollment period is now underway, and beneficiaries are encouraged to review their coverage options to see if they can get better coverage or lower costs by switching plans. However, about 7 in 10 (71%) beneficiaries say they did not compare plans during a recent open enrollment period, and some groups were even less likely to do so.

Our recent analysis found that among beneficiaries who could be most affected by plan changes from year to year, like beneficiaries in relatively poor health, age 75 and older or under age 65 with long-term disabilities, a larger percentage reported that they did not compare plans during the 2018 open enrollment period. Additionally, a larger percentage of people on Medicare who are Black and Hispanic, with low income, with fewer years of education, or enrolled in Medicaid did not compare plans during a recent open enrollment period. While this could indicate that many enrollees are satisfied with their existing coverage, past KFF analysis has found that many Medicare beneficiaries reported that the process of choosing their Medicare plan was frustrating and difficult, and most do not switch plans.

Source

Seven in Ten Medicare Beneficiaries Did Not Compare Plans During Past Open Enrollment Period

Senate Appropriations Committee Releases FY 2022 State and Foreign Operations (SFOPs) and Labor Health and Human Services (Labor HHS) Appropriations Bills

Published: Oct 20, 2021

The Senate Appropriations Committee released its FY 2022 State, Foreign Operations, and Related Programs (SFOPs) (links to bill and report) and Labor, Health and Human Services, Education, and Related Agencies (Labor HHS) (links to bill and report) appropriations bills and accompanying reports on October 18, 2021. The SFOPs bill includes funding for U.S. global health programs at the State Department and the U.S. Agency for International Development (USAID), while the Labor HHS bill includes funding for global health programs at the Centers for Disease Control and Prevention (CDC) and the National Institutes of Health (NIH).[i] Key highlights are as follows (see table for additional detail):

State, Foreign Operations, and Related Programs (SFOPs):

  • Funding provided to the State Department and USAID under the SFOPs bill and through the Global Health Programs (GHP) account, which represents the bulk of global health assistance, totals $10.4 billion in the bill, $1.2 billion above the FY21 enacted level, $303 million above the President’s FY22 request, but $288 million below the FY22 House level. Funding for all global health programs at State and USAID either increased or remained flat compared to the FY21 enacted level (the largest increase is for global health security). Several program areas in the Senate bill are below House levels, including bilateral HIV/AIDS, tuberculosis, malaria, and family planning and reproductive health. Details on specific programs are as follows (unless otherwise specified, totals represent funding through the Global Health Programs account):
    • Funding for global health security totals $1 billion in the bill, which is $810 million (426%) above the FY21 enacted level ($190 million), $87 million (10%) above the FY22 Request ($913 million[ii]), and matches the FY22 House level.
    • Bilateral HIV funding through the President’s Emergency Plan for AIDS Relief (PEPFAR) is $4.7 billion in the Senate FY22 bill, matching the FY21 enacted and FY22 Request levels, but $150 million (3%) below the FY22 House bill ($4.85 billion).
    • The bill includes $1.56 billion as the U.S. contribution to the Global Fund to Fight AIDS, Tuberculosis and Malaria (Global Fund), matching the FY21 enacted, FY22 Request, and FY22 House level.
    • Funding for tuberculosis (TB) totals $400 million, $81 million (25%) above the FY21 enacted and FY22 Request level ($319 million), and $69 million (15%) below the FY22 House ($469 million).
    • Funding for malaria through the President’s Malaria Initiative (PMI) totals $800 million, $30 million (4%) above the FY21 enacted and FY22 request level ($770 million), and $20 million (2%) below the FY22 House level ($820 million).
    • The bill includes $941 million for maternal and child health (MCH) programs, an increase of $85.5 million (10%) above the FY21 enacted level ($855.5 million), $61.5 million (7%) above the FY22 Request ($879.5 million), and $61 million (7%) above the FY22 House level ($880 million). Specific areas under MCH include:
      • Gavi, the Vaccine Alliance funding totals $290 million, matching the FY21 enacted, FY22 Request, and FY22 House level.
      • Polio funding through the GHP account totals $101 million, $36 million (55%) above the FY21 enacted, FY22 Request, and FY22 House level ($65 million).
      • $139 million for the U.S. contribution to the United Nations Children’s Fund (UNICEF) provided through the International Organizations and Programs (IO&P) account, matching the FY21 enacted, FY22 Request, and FY22 House level.
    • Funding for nutrition totals $160 million, $10 million (7%) above the FY21 enacted and FY22 Request level ($150 million), and matching the FY22 House level.
    • Bilateral family planning and reproductive health (FP/RH) funding totals $650 million, $75 million (13%) above the FY21 enacted level ($575 million), $66 million (11%) above the FY22 Request ($584 million), but $110 million (15%) below the FY22 House level ($760 million).
    • Funding for the United Nations Population Fund (UNFPA) totals $55 million, $22.5 million (69%) above the FY21 enacted level ($32.5 million), $1 million (2%) below the FY22 Request ($56 million), and $15 million (21%) below the FY22 House level ($70 million).
    • Funding for the vulnerable children program totals $30.5 million, $5.5 million (22%) above the FY21 enacted and FY22 Request level ($25 million) and $0.5 million (2%) above the FY22 House level ($30 million).
    • Funding for neglected tropical diseases (NTDs) totals $112.5 million, $10 million (10%) above the FY21 enacted and FY22 Request level ($102.5 million), and matching the FY22 House level.
    • The SFOPs bill also includes the following policy provisions and transfer authorities:
      • A permanent repeal of the Mexico City Policy, representing the first time it has been included in the underlying bill in the Senate.
      • A provision directing USAID and the U.S. Global AIDS Coordinator that, for operating units implementing more than one global health program area, at least 10% of each GHP program line is spent on “cross-cutting health systems strengthening activities.”
      • States that up to $100 million be made available under the GHP account for the Emergency Reserve Fund, which is a mechanism that is used to quickly respond to emerging infectious disease outbreaks.
      • Provides the authority to transfer an amount “not to exceed an aggregate total of $200,000,000 of the funds appropriated by this Act” for international infectious disease outbreaks.
      • States that up to $250 million of funding from the GHP account “may be made available for a contribution to an international financing mechanism for pandemic preparedness.”

Labor, Health and Human Services, Education, and Related Agencies (Labor HHS):

  • Total global health funding at CDC and NIH through the Labor HHS bill is not yet known, as funding for some programs at NIH is determined at the agency level rather than specified by Congress in annual appropriations bills. [iii] Of the known amounts[iv], the Senate bill totals $694 million, which is $17 million above the FY21 enacted level, but $100 million below the FY22 Request and $246 million below the FY22 House level. Funding for all global health programs at CDC and NIH in the Senate bill either increased or remained flat compared to the FY21 enacted level. Several program areas in the Senate bill are below House levels, including parasitic diseases and global public health protection at CDC. Details on specific programs are as follows:
    • Funding provided to CDC for global health through the Labor HHS bill totals $598 million, an increase of $5 million (1%) above the FY21 enacted level ($593 million), $250 million (42%) above the FY22 Request ($698 million), but $245 million (29%) below the House FY22 level ($843 million). All of the increase at CDC compared to FY21 is for polio. Global health funding at CDC includes:
      • $128.4 million for global HIV/AIDS, matching the FY21 enacted, FY22 Request, and FY22 House level.
      • $9.2 million for global tuberculosis (TB), matching the FY21 enacted, FY22 Request, and FY22 House level.
      • $231 million for global immunization, $5 million (2%) above the FY21 enacted, FY22 Request, and FY22 House level ($226 million). Within this total are the following:
        • Funding for polio totals $181 million, $5 million (3%) above the FY21 enacted, FY22 Request, and FY22 House level ($176 million).
        • Funding for CDC’s other global vaccines/measles program totals $50 million, matching the FY21 enacted, FY22 Request, and FY22 House level.
      • $26 million for parasitic diseases and malaria, matching the FY21 enacted level and $5 million (16%) below the FY22 Request and FY22 House level ($31 million).
      • $203 million for the global public health protection program, matching the FY21 enacted level, $100 million (33%) below the FY22 Request ($303 million), and $245 million (55%) below the FY22 House ($448 million).
    • Funding for the Fogarty International Center (FIC) at NIH totals $96.3 million, $12.2 million (15%) above the FY21 enacted level ($84 million) and essentially matching the FY22 Request and FY22 House level.

Resources:

  • FY2022 State, Foreign Operations, and Related Programs Appropriations Bill – Bill
  • FY2022 State, Foreign Operations, and Related Programs Appropriations Bill – Report
  • FY2022 Labor, Health and Human Services, Education, and Related Agencies Appropriations Bill – Bill
  • FY2022 Labor, Health and Human Services, Education, and Related Agencies Appropriations Bill – Report

The table (.xlsx) below compares global health funding in the FY 2022 Senate SFOPs and Labor HHS appropriations bills to the FY 2021 enacted funding amounts as outlined in the “Consolidated Appropriations Act, 2021” (P.L. 116-260; KFF summary here), the President’s FY 2022 request (KFF summary here), and the House FY 2022 SFOPs and LHHS bills (KFF summaries here and here).

See the KFF budget tracker for details on historical annual appropriations for global health programs.

Table: KFF Analysis of FY22 Senate Appropriations for Global Health
Department / Agency / AreaFY21Enactedi(millions)FY22Request(millions)FY22Houseii(millions)FY22Senateii(millions)Difference(millions)
FY22 Senate– FY21 EnactedFY22 Senate– FY22 RequestFY22 Senate– FY22 House
State, Foreign Operations, and Related Programs (SFOPs) – Global Health
HIV/AIDS$4,700.0$4,700.0$4,850.0$4,700.0$0 (0%)$0 (0%)$-150 (-3.1%)
State Department$4,370.0$4,370.0$4,520.0$4,370.0$0(0%)$0(0%)$-150(-3.3%)
USAID$330.0$330.0$330.0$330.0$0(0%)$0(0%)$0(0%)
of which Microbicides$45.0$45.0$45.0$45.0$0(0%)$0(0%)$0(0%)
Global Fund$1,560.0$1,560.0$1,560.0$1,560.0$0 (0%)$0 (0%)$0 (0%)
Tuberculosisiii$321.0 – – – –
Global Health Programs (GHP) account$319.0$319.0$469.0$400.0$81(25.4%)$81(25.4%)$-69(-14.7%)
Economic Support Fund (ESF) accountNot specified$2.0Not specifiedNot specified – – –
Malaria$770.0$770.0$820.0$800.0$30 (3.9%)$30 (3.9%)$-20 (-2.4%)
Maternal & Child Health (MCH)iv$1,039.5 – – – –
GHP account$855.5$879.5$880.0$941.0$85.5(10%)$61.5(7%)$61(6.9%)
of which Gaviv$290.0$290.0$290.0$290.0$0(0%)$0(0%)$0(0%)
of which Polio$65.0$65.0$65.0$101.0$36(55.4%)$36(55.4%)$36(55.4%)
UNICEFvi$139.0$139.0$139.0$139.0$0(0%)$0(0%)$0(0%)
ESF accountNot specified$21.0Not specifiedNot specified – – –
of which PolioNot specified$0.0Not specifiedNot specified – – –
Nutritionvii$154.8 – –$-154.8 (-100%) –
GHP account$150.0$150.0$160.0$160.0$10(6.7%)$10(6.7%)$0(0%)
ESF accountNot specified$4.0Not specifiedNot specified – – –
AEECA account –$0.8 – – – – –
Family Planning & Reproductive Health (FP/RH)viii$607.5$639.7$830.0$705.0$97.5 (16%)$65.3 (10.2%)$-125 (-15.1%)
Bilateral FP/RHviii$575.0$583.7$760.0$650.0$75(13%)$66.3(11.4%)$-110(-14.5%)
GHP accountviii$524.0$550.0$760.0$650.0$126(24%)$100(18.2%)$-110(-14.5%)
ESF accountviii$51.1$33.7Not specifiedNot specified – – –
UNFPAix$32.5$56.0$70.0$55.0$22.5(69.2%)$-1(-1.8%)$-15(-21.4%)
Vulnerable Children$25.0$25.0$30.0$30.5$5.5 (22%)$5.5 (22%)$0.5 (1.7%)
Neglected Tropical Diseases (NTDs)$102.5$102.5$112.5$112.5$10 (9.8%)$10 (9.8%)$0 (0%)
Global Health Security $190.0$913.3$1,000.0$1,000.0 $810(426%)$86.7 (9.5%)$0 (0%)
GHP account$190.0$905.0$1,000.0$1,000.0$810(426.3%)$95(10.5%)$0(0%)
USAID GHP accountx$190.0$655.0$1,000.0$1,000.0$810(426.3%)$345(52.7%)$0(0%)
State GHP accountxi –$250.0 – – – –
ESF accountNot specified$8.3Not specifiedNot specified – – –
Emergency Reserve Fundxii$90.0xiixii –$-90 (-100%) –
SFOPs Total (GHP account only)$9,196.0$10,051.0$10,641.5$10,354.0$1,158 (13%)$303 (3%)$-287.5 (-2.7%)
Labor Health & Human Services (Labor HHS)
Centers for Disease Control & Prevention (CDC) – Total Global Health$592.8$697.8$842.8$597.8$5 (0.9%)$250 (42.2%)$-245 (-29.1%)
Global HIV/AIDS$128.4$128.4$128.4$128.4$0(0%)$0(0%)$0(0%)
Global Tuberculosis$9.2$9.2$9.2$9.2$0(0.2%)$0(0%)$0(0%)
Global Immunization$226.0$226.0$226.0$231.0$5(2.2%)$5(2.2%)$5(2.2%)
Polio$176.0$176.0$176.0$181.0$5(2.8%)$5(2.8%)$5(2.8%)
Other Global Vaccines/Measles$50.0$50.0$50.0$50.0$0(0%)$0(0%)$0(0%)
Parasitic Diseases$26.0$31.0$31.0$26.0$0(0%)$-5(-16.1%)$-5(-16.1%)
Global Public Health Protection$203.2$303.2$448.2$203.2$0(0%)$-100(-33%)$-245(-54.7%)
Global Disease Detection and Emergency Response$193.4$293.4Not specifiedNot specified – – –
of which Global Health Security (GHS)Not specifiedNot specifiedNot specifiedNot specified – – –
Global Public Health Capacity Development$9.8$9.8Not specifiedNot specified – – –
National Institutes of Health (NIH) – Total Global Health$918.8Not specifiedNot specifiedNot specified – – –
HIV/AIDS$616.7$617.1Not specifiedNot specified – – –
Malaria$218.0Not specifiedNot specifiedNot specified – – –
Fogarty International Center (FIC)$84.0$96.3$96.8$96.3$12.2(14.5%)$-0.1(-0.1%)$-0.6(-0.6%)
Labor HHS Total$1,511.6Not yet knownNot yet knownNot yet known – – –
Notes:
i – The FY21 final bill includes a provision giving the Secretary of State the ability to transfer up to $200,000,000 from the ‘Global Health Programs’, ‘Development Assistance’, ‘International Disaster Assistance’, ‘Complex Crises Fund’, ‘Economic Support Fund’, ‘Democracy Fund’, ‘Assistance for Europe, Eurasia and Central Asia’, ‘Migration and Refugee Assistance’, and ‘Millennium Challenge Corporation’ accounts “to respond to a Public Health Emergency of International Concern.”
ii – The FY22 House and Senate SFOPs bills provide the authority to transfer an amount “not to exceed an aggregate total of $200,000,000 of the funds appropriated by this Act” for international infectious disease outbreaks. The FY22 House SFOPs bill states that an unspecified amount of funding from the GHP account “may be made available for a contribution to an international financing mechanism for pandemic preparedness.” The FY22 Senate SFOPs bill states that up to $250 million of funding from the GHP account “may be made available for a contribution to an international financing mechanism for pandemic preparedness.”
iii – Some tuberculosis funding is provided under the ESF account, which is not earmarked by Congress in the annual appropriations bills and determined at the agency level (e.g. in FY19, TB funding under the ESF account totaled $3.6 million).
iv – Some MCH funding is provided under the ESF account, which is not earmarked by Congress in the annual appropriations bills and determined at the agency level (e.g. in FY19, MCH funding under the ESF account totaled $14.42 million).
v – The FY21 final bill text provides additional funding to Gavi to support coronavirus response efforts, stating, “For an additional amount for ‘Global Health Programs’, $4,000,000,000, to remain available until September 30, 2022, to prevent, prepare for, and respond to coronavirus, including for vaccine procurement and delivery: Provided, That such funds shall be administered by the Administrator of the United States Agency for International Development and shall be made available as a contribution to the GAVI, Alliance.”
vi – UNICEF funding in the FY21final, FY22 House, and FY22 Senate bills include an earmark of $5 million for programs addressing female genital mutilation.
vii – Some nutrition funding is provided under the ESF account, which is not earmarked by Congress in the annual appropriations bills and determined at the agency level. (e.g. in FY17, nutrition funding under the ESF account totaled $21 million).
viii – The FY21 final bill states that “not less than $575,000,000 should be made available for family planning/reproductive health.” The FY22 request funding amounts are based on a bilateral total of $583.7 million as specified in the FY22 OMB Budget Appendices for the Department of State and Other International Programs. The FY22 House SFOPs bill text states that “not less than $760,000,000 shall be made available for family planning/reproductive health.” According to the FY22 House SFOPs bill report, $760 million is provided through the GHP account; however, it is possible that the administration could provide additional funding for FPRH activities through the ESF account. The FY22 Senate SFOPs bill text states that “not less than $650,000,000 shall be made available for family planning/reproductive health.” According to the bill report, $650 million is provided through the GHP account; however, it is possible that the administration could provide additional funding for FPRH activities through the ESF account.
ix – The FY21 final bill and FY22 House and Senate SFOPs bill texts state that if this funding is not provided to UNFPA it “shall be transferred to the ‘Global Health Programs’ account and shall be made available for family planning, maternal, and reproductive health activities.”
x – According to the Department of State, Foreign Operations, and Related Programs FY22 Congressional Budget Justification, $300 million of this funding is “for contributions to support multilateral initiatives leading the global COVID response through the Act-Accelerator platform.”
xi – According to the Department of State, Foreign Operations, and Related Programs FY22 Congressional Budget Justification, this funding is “to support a new health security financing mechanism, which would be developed alongside U.S. partners and allies, to ensure global readiness to respond to the next outbreak.”
xii – The FY21 final bill states that “up to $50,000,000 of the funds made available under the heading ‘Global Health Programs’ may be made available for the Emergency Reserve Fund.” The FY22 House SFOPs bill text states that “up to $90,000,000 of the funds made available under the heading ‘Global Health Programs’ may be made available for the Emergency Reserve Fund.” The FY22 Senate SFOPs bill text states that “up to $100,000,000 of the funds made available under the heading ‘Global Health Programs’ may be made available for the Emergency Reserve Fund.”

[i] Total funding for global health is not currently available as some funding provided through USAID and DoD is not yet available.

[ii] The FY22 Request provided $913 million for global health security, of which $905 million was through the GHP account and $8.3 million through the ESF account.

[iii] Funding for global HIV/AIDS and malaria research programs provided through the NIH is not yet known.

[iv] Known amounts include total global health funding at CDC and funding for the Fogarty International Center at NIH.

News Release

KFF’s Kaiser Health News, Associated Press Win Online News Association Award for Investigative Data Journalism

Joint Investigation Examined How the Nation’s Decades-long Neglect of Public Health Infrastructure Hampered its Covid-19 Response

Published: Oct 18, 2021

The Online News Association has named KFF’s Kaiser Health News and The Associated Press winners of its 2021 University of Florida Award in Investigative Data Journalism for their joint project “Underfunded and Under Threat.” The award is one of the highest honors in data journalism.

The joint KHN-AP investigation revealed that public health departments around the country had become understaffed and poorly equipped to confront the worst pandemic in a century. Their analysis found that at least 38,000 state and local public health jobs disappeared since 2008, and spending for local public health departments dropped by 18% per capita since 2010.

The joint KHN-AP investigation revealed that public health departments around the country had become understaffed and poorly equipped to confront the worst pandemic in a century. Their analysis found that at least 38,000 state and local public health jobs disappeared since 2008, and spending for local public health departments dropped by 18% per capita since 2010.

Journalists from both news organizations drew upon more than a dozen data sources to assess hundreds of state and local health departments. Reporters interviewed more than 150 people, surveyed all 50 statehouses, filed dozens of records requests and sorted through legislation across the country.

Even during the height of the coronavirus crisis, many states spent little of their federal covid-19 relief funding on public health departments, and state legislatures continued to undermine the public health system with budget cuts.

KHN and AP also followed the story throughout the pandemic, showing how the politicization of public health measures prompted physical threats against public health workers, with the backlash triggering the largest exodus of public health leaders in American history and a massive legislative rollback of public health powers.

AP and KHN also routinely shared data and offered guidance to news organizations to help them localize the findings of the investigation for their communities. The award — one of many KHN has received over the years — honors work that effectively uses data to tell a story, presents that data well to users and has relevance and journalistic impact.

About KFF and KHN

KHN (Kaiser Health News) is a national newsroom that produces in-depth journalism about health issues. Together with Policy Analysis and Polling, KHN is one of the three major operating programs at KFF (Kaiser Family Foundation). KFF is an endowed nonprofit organization providing information on health issues to the nation.

About AP

The Associated Press is an independent global news organization dedicated to factual reporting. Founded in 1846, AP today remains the most trusted source of fast, accurate, unbiased news in all formats and the essential provider of the technology and services vital to the news business. More than half the world’s population sees AP journalism every day.