Rise in Use of Mental Health Apps Raises New Policy Issues

Published: Jun 20, 2023

Digital behavioral health services such as mental health apps became increasingly popular especially during the pandemic, according to industry reports, when in-person health care visits were avoided to prevent the spread of COVID-19. Approximately 40% of Americans reported symptoms of depression and anxiety at the beginning of the pandemic, and there was an increased need for mental health support for consumers to address these symptoms. Additionally, industry reports found that funding of behavioral health startup companies exploded during the pandemic with $588 million invested in the first half of 2020, many funded by private equity firms.

During the PHE, many federal and state healthcare requirements were “waived” in an attempt to expand access to digital behavioral health services such as mental health apps. This Issue Brief looks at how federal PHE waivers may have expanded use of mental health apps and some of the policy issues concerning the continued use and promotion of mental health apps post-PHE.

What Are Mental Health Apps?

Mental health apps are mobile technology applications that offer clinical and non-clinical methods of offering mental health support. These vary in the scope of services they offer to consumers, from clinical services offered by a licensed behavioral health provider to treat specific conditions to services aimed at promoting general health and wellness. Users typically download an app through an app store available on smartphones and are then prompted to review and agree to an app’s privacy and technology policies prior to accessing other features on the app (e.g., intake questionnaires on symptoms and personalized treatment plans). The spectrum of available apps includes the following, with some apps including a combination of these features:

  • Medical Devices: Apps defined as computerized behavioral therapy devices subject to approval by the FDA (e.g., ReSET) offer a clinician-administered version of virtual behavioral therapy that patients can utilize outside of synchronous, live sessions with their provider. These apps can be found on smartphone devices, although they may be difficult or nearly impossible to utilize without a prescription.
  • Mental health apps that include telehealth features: Some apps such as TalkSpace and multi-service platforms such as Lyra offer therapy sessions with a licensed provider via live video or audio communications. Telehealth apps can also offer patients means to receive consultations and prescription drugs with a provider licensed to prescribe psychiatric medications. Telehealth apps might also include other general wellness features and are typically accessible through app stores on smartphone devices.
  • Mental health “wellness” products: Other apps (e.g., Happify | Get Started, PTSD Coach App) assist consumers with general wellness (e.g., stress relief) via use of journaling tools, motivational quotes, chatbot therapy, or meditation exercises, as well as offer non-medical treatments to assist consumers in managing symptoms associated with a specific mental health condition. Some of these apps may be developed by licensed providers and offer clinician-endorsed treatments, but the line between what is actual medical care and what is non-medical care is not always clear. There are a number of general wellness apps that claim to offer medical strategies to help with certain mental health disorders, but the apps themselves might not offer treatments based on evidence. One study from 2017 found that none of the most popular apps rated highly by consumers for treating anxiety related symptoms were evidence-based treatments. On the other hand, some apps contain mental health tools and practices that have been developed or supported by licensed providers. Even these apps might contain disclaimers stating that usage of the app does not replace a consumer seeking medical care from a licensed behavioral provider, which makes it difficult for a consumer to determine if they are receiving medical treatment or not via these apps.

A consumer might be introduced to a mental health app in a variety of ways including through their health insurance coverage provider or directly from their employer separate from their health insurance. Employers or health insurers, for instance, might pay a small per member per month fee to a behavioral health vendor to make an app available to their employees, allowing them to receive care or an assessment of their mental health needs. Low or no cost direct-to-consumer options are also widely available and are often marketed to younger audiences via social media.

Federal COVID Waivers Drive Change in Guidance on Mental Health Apps

During the pandemic, federal agencies suspended some policies to increase access to digital behavioral health services. This may have facilitated the use of mental health apps as a vehicle to access these services. Multiple federal COVID waivers have played a role alongside state law changes that temporarily allowed health care providers to practice across state lines (specifically, allowing a provider in one state to provide telehealth to a patient in another state). Temporary changes in Medicare and Medicaid required coverage for telehealth services. These changes may have also resulted in more utilization of telehealth delivered through mental health apps across the health system, as more providers expanded their capabilities to provide telehealth for all of their patients, regardless of whether the patient had public or private health insurance coverage. Some flexibilities for Medicare have been made permanent through federal legislation and regulation or extended past the end of the PHE on May 11, 2023, while some states have made telehealth flexibilities permanent for those with Medicaid coverage.

For the private sector, waivers focused on promoting the use of telehealth in high deductible health plans (HDHP) and offering “stand alone” telehealth may have played a role to encourage the use of telehealth delivered via mental health apps. The Coronavirus, Aid, Relief, and Economic Security Act (CARES) allowed coverage of telehealth services before the deductible is met for Health Savings Account (HSA) qualifying HDHPs. Congress extended this pre-deductible coverage of HSA telehealth services under the Consolidated Appropriations Act of 2023 until December 2024. Additionally, in FAQ guidance (Q14), the federal government allowed large employers (generally those with 50 or more employees) to offer “stand-alone” telehealth coverage to employees without having to meet certain Affordable Care Act (ACA) and Employee Retirement Income Security Act of 1974 (ERISA) legal requirements for the duration of the PHE. This was available to employees who are not eligible for benefits under their employer’s health plan and continues until the end of the employer’s current plan year (for example, until December 31, 2023 for a calendar year plan).

Other federal waivers also may have created incentives for the use of mental health apps among consumers and providers:

  • Privacy and security protections for telehealth and other remote communications. Prior to the pandemic, health care providers were required to ensure that audio-video technology utilized during telehealth sessions and any third-party apps administered by a clinician for treatment or communication purposes were HIPAA-compliant. In 2020, the US Department of Health and Human Services exercised its enforcement discretion by allowing providers to utilize audio and video technology without facing penalties for non-compliance with HIPAA’s privacy and security standards. Suspending these requirements gave providers a wider range of telecommunication tools to choose from, including use of popular apps such as Apple’s Facetime to conduct telehealth visits as well as wellness coaching.
  • FDA protocols for approving computerized behavioral therapy devices. Prior to the pandemic, the FDA required developers of these devices to meet certain requirements to show that the device was safe, effective, and comparable with other products on the market. All of these requirements were loosened during the PHE and will be reinstated in November 2023. Even before the pandemic, the FDA took a less active role in regulating general wellness devices or software that may be classified as a medical device but that the FDA determined pose a low risk to consumers. In addition, due to changes in the law in 2016, the FDA’s authority to assess patient safety risks for some of these products was limited. As a result, these products did not and will not for the foreseeable future have to abide by FDA requirements post-PHE.
  • Standards for prescribing of controlled substances via telehealth. Prior to the PHE, federal law generally required providers to have an in-person medical evaluation before a prescription for controlled substances was given. This includes, for example, certain medications used to treat Attention Deficit Hyperactivity Disorder (ADHD) such as Adderall, as well as buprenorphine used to treat opioid use disorder. Many of these standards were waived during the PHE by the Drug Enforcement Administration (DEA), an agency that is part of the U.S. Department of Justice, allowing providers to use telehealth (video or audio only mechanisms) to prescribe these medications, including through telehealth apps.

What to Watch Now That the PHE is Over

Before the PHE ended on May 11, some stakeholders and consumers expressed interest in making some waivers permanent, and efforts are underway to extend some of these waivers so that patients can continue to easily use digital behavioral health tools often employed via use of mental health apps permanently, or at least until the impact of the PHE waiver is evaluated. The end of the PHE now shifts the policy focus in digital health solutions to, in some cases, extending the COVID waiver policy in some areas, and in other areas has brought new government scrutiny on health policy concerns such as privacy and security of mental health apps and access to prescription drugs via telehealth.

Employer Plan Telehealth Flexibilities

Promoting easier access through virtual behavioral health was seen early on in the pandemic as a way to not only prevent the spread of COVID, but also address growing behavioral health care needs for those with employer coverage. There are proposals to make pre-deductible coverage of telehealth services for HDHPs used in conjunction with health savings accounts permanent. For example, the Telehealth Expansion Act, was introduced this year. Also, some members of Congress have proposed making stand-alone telehealth coverage permanent, allowing employers to make it available to all employees (including those eligible for their employer’s health plan) in the Telehealth Benefit Expansion for Workers Act, largely exempting the coverage from regulatory oversight. Going forward stakeholders will likely address ways to expand access to virtual behavioral health beyond just those with health savings accounts, and address design alternatives for employer coverage that incorporate telehealth as just one part of a broader set of tools to enhance coverage for the continuum of behavioral health care.

Access to Controlled Medications

The PHE changes gave patients easier access to psychiatric medications via prescribing through telehealth. However, more unrestricted access may have contributed to a shortage in prescription drugs such as Adderall. The percentage of stimulants prescribed via telehealth rose from less than two percent prior to the pandemic, up to 40% in 2022. Originally, the DEA proposed in two separate regulations reinstating some protocols for controlled substances, including mandating an in-person visit, in certain circumstances before a provider can give prescriptions. Although some speculate this might help resolve the shortage issue, reinstating this requirement could have potentially caused gaps in coverage for people who receive medication via telehealth platforms due to geographic restrictions, provider shortages, or other barriers that might prevent them from seeking in-person care. Just before the end of the PHE, the DEA issued a temporary rule that will allow virtual prescribing of controlled substances to continue until November 2024, giving providers and consumers time to adjust and regulators a chance to evaluate policy options.

Privacy Risks

Licensed providers and health plans who want to continue to use telehealth delivered via mental health apps after the PHE ends are expected to use telecommunication technology that meets HIPAA specifications. There is no checklist for what defines “HIPAA compliant technology”, however, HIPAA-covered entities are required to conduct a risk assessment of their telecommunication platforms and ensure that key risks are addressed. Some examples of the types of security protections they might address in their risk assessment include encryptions used to protect patients’ personal health data, login requirements, and verification processes used to ensure only verified users have access to the platform. Recent guidance gave providers an additional 90 days after the end of the PHE (August 9, 2023) to comply. Even with these HIPAA protections, there are growing concerns that mental health apps are being used to access sensitive health information that is then provided or sold to third parties for marketing purposes. HHS recently issued a Bulletin on guidelines HIPAA covered entities must follow when using online tracking technology. Additionally, HHS is currently investigating Cerebral, a mental health platform that offers online therapy and assessments, for selling patient data to third party advertisers via use of online tracking technologies.

HIPAA’s guidance and HHS’ enforcement powers only reach so far when it comes to mental health apps. Unless the entity offering a mental health app is considered a HIPAA-covered entity (typically a health provider, plan or insurer) or is a business associate of one of these entities, mental health apps do not have to follow federal HIPAA privacy, security and breach notice rules. HIPAA generally does not cover general wellness apps or even apps that are considered medical devices if they are not connected with a HIPAA-covered entity. Outside of HIPAA, app users’ data are often at the mercy of an app’s privacy policies, which could be written in convoluted language that a consumer may find difficult to understand or are not read by consumers at all.

Although non-HIPAA covered apps and telehealth vendors that misrepresent or do not abide by their privacy policies or mishandle patient data would not face penalties under HIPAA’s guidelines, they could face legal repercussions from the Federal Trade Commission (FTC), a federal agency that enforces federal laws that prohibit “unfair and deceptive” practices that affect commerce and oversee certain consumer protection laws. The FTC has recently announced new enforcement activity related to mishandling of patient data. For example, BetterHelp (a subsidiary of Teledoc), a popular mental health app, will have to pay $7.8 million in restitution as a result of allegedly selling patient data to third party advertisers without their permission and misrepresenting their privacy practices. Additionally, the FTC has proposed to update the Health Breach Notification Rule, which would require organizations that manage digital health apps and consumers’ personal records to inform consumers and the FTC when their personal data has been compromised. This proposal is controversial, as the FTC has claimed that it has authority to regulate all health apps that are not covered by HIPAA.

Congress is also weighing in on how data is used within mental health apps. Several senators have questioned leaders of major telehealth companies on their data sharing practices and some have introduced the Upholding Protections for Health and Online Location Data (UPHOLD) Privacy Act that would increase protection of personal health data stored in apps.

Looking Forward

Mental health apps, as well as other digital health solutions, have the potential to expand access to care, and for this reason certain rules and standards were waived or modified during the pandemic, which was also a time of heightened mental health needs. Coming out of the urgency of the pandemic, there is now an opportunity to evaluate the benefits and risks of these tools and consider what oversight might be appropriate. We can expect much more attention focused on the quality and clinical effectiveness of these tools, as well as who will pay for them. 

News Release

States Received Over $117 Billion in Enhanced Federal Medicaid Funding for Pausing Disenrollments During the Pandemic; Non-Expansion States Received a Disproportionate Share 

Published: Jun 16, 2023

A new KFF analysis finds that states received over $117 billion in enhanced federal Medicaid funding in exchange for pausing disenrollments during the first three years of the pandemic. The injection of federal money enabled states to spend less of their own funds on Medicaid even as enrollment rose by more than 23 million people nationally and total Medicaid spending increased by billions of dollars.

Pandemic-era enrollment protections expired in March, and in April states were permitted to resume disenrollments of people who are no longer eligible for Medicaid or who do not complete the eligibility renewal process.

As the enhanced federal funding is phased out and ultimately eliminated next year, states’ spending on Medicaid will likely increase — though the impact will vary by state. The size of the increase in state Medicaid spending will depend largely on changes in total spending growth, which in turn reflect how quickly people are disenrolled, how many new people come on to Medicaid, and how spending per person in the Medicaid program will change.

States that have not adopted Medicaid expansion under the Affordable Care Act received a disproportionately large share of the more than $117 billion in enhanced federal funds that was disbursed when enrollment protections were in effect. That’s because the extra funding came in the form of enhanced federal matching money that did not apply to spending on Medicaid enrollees who were made eligible for the program through the ACA expansion. Non-expansion states received 27 percent of the enhanced funding despite accounting for only 22 percent of all Medicaid spending, the analysis finds. The full analysis, “Fiscal Implications for Medicaid of Enhanced Federal Funding and Continuous Enrollment,” includes data showing how much each state received in enhanced federal funding from January 2020 through March 2023.

Related resources:

Medicaid Enrollment and Unwinding Tracker

How Many People Might Lose Medicaid When States Unwind Continuous Enrollment?

10 Things to Know About the Unwinding of the Medicaid Continuous Enrollment Provision

Fiscal Implications for Medicaid of Enhanced Federal Funding and Continuous Enrollment

Published: Jun 16, 2023

For a three-year period, states provided continuous enrollment in Medicaid in exchange for an increase in the percentage of Medicaid spending that is paid for by the federal government (the Federal Medical Assistance Percentage or “FMAP”). A recent KFF analysis estimated that over 23 million people gained Medicaid coverage during the continuous enrollment period. Beginning April 1, 2023, states could begin disenrolling individuals from Medicaid, but phased-down federal matching funds will be available through the end of the year if states comply with certain rules. While there remains a great deal of uncertainty as to how Medicaid enrollment will change during the unwinding, the end of the Medicaid continuous enrollment provision and enhanced FMAP are expected to have a significant impact on Medicaid enrollment and spending. This brief examines how Medicaid spending changed during the continuous enrollment period and estimates the amount of enhanced federal funding states received during the continuous enrollment period. Key findings include:

  • State spending dipped below pre-pandemic levels even as Medicaid enrollment increased by 23 million during the continuous enrollment period. With the substantial enrollment growth, total spending increased, including significant increases in federal Medicaid spending due to the enhanced FMAP.
  • We estimate states received over $117 billion from the increased FMAP during the continuous enrollment period, with enhanced federal funds comprising a larger share of total Medicaid spending in states that had not adopted Medicaid expansion through the Affordable Care Act (ACA).
  • Although the magnitude is uncertain, significant decreases in Medicaid enrollment are expected during the unwinding of the continuous enrollment provision, which will result in lower Medicaid spending. Even with lower enrollment, state spending will likely increase as the enhanced FMAP expires.
  • The phase down of the enhanced FMAP was designed to provide continued financial support to states during the unwinding process and to mitigate sharp increases in state Medicaid spending. How much state Medicaid spending increases as the enhanced FMAP phases down and is ultimately eliminated next year will depend on how many and how quickly people are disenrolled, how many new people come on to Medicaid, and how spending per person in the Medicaid program will change.

What was the purpose of the enhanced federal Medicaid match rate?

States received a 6.2 percentage point FMAP increase in exchange for keeping individuals continuously enrolled during the pandemic as authorized by the Families First Coronavirus Response Act (FFCRA). The increased FMAP was retroactive to January 1, 2020 and generally applied to Medicaid spending that would otherwise reimbursed at the state’s regular FMAP. The enhanced federal matching funds do not apply to administrative expenses or to Medicaid spending that is already subject to an increased match, including spending for ACA expansion adults (the FMAP is 90% for adults eligible through expansion). The Consolidated Appropriations Act, 2023 (CAA) delinked the continuous enrollment provision from the public health emergency (PHE), ending continuous enrollment on March 31, 2023. The CAA also phases down the enhanced federal Medicaid matching funds through December 2023, with the increased FMAP decreasing to 5 percentage points from April to June 2023, 2.5 percentage points from June to September 2023, and 1.5 percentage points from October to December 2023.

The federal funding from the enhanced FMAP was designed to support the costs of increased Medicaid enrollment and provide fiscal relief to states beyond the costs of enrollment growth. During economic downturns, enrollment in Medicaid grows, increasing state Medicaid costs while state tax revenues are declining. Congress enacted legislation to temporarily increase the federal share of Medicaid during the last two economic downturns prior to the pandemic. At the onset of the COVID-19 pandemic, states were projecting large revenue declines, but the enhanced FMAP provided new federal funding to states quickly by using an existing federal funding mechanism. Enhanced federal funding supported state Medicaid programs and helped free up state funds for other purposes including mitigating the need for widespread spending cuts on other services and filling gaps in state budget shortfalls.

How did Medicaid spending change during the pandemic?

State spending on Medicaid dipped below pre-pandemic levels even as enrollment in Medicaid increased by 23 million during the continuous enrollment period (Figure 1). The reduction in state spending reflected a sharp drop from $231 billion in 2019 to $214 billion in FY 2020, accompanied by an increase in federal spending of nearly $50 billion (from $393 billion to $444 billion). After 2020, state spending remained relatively stable while federal spending continued to increase due to the enhanced FMAP and total spending increased in conjunction with rising enrollment. State spending remained below 2019 levels in both expansion (defined as those having implemented Medicaid expansion as of 10/1/2021) and non-expansion states through the end of FY 2022. In the first six months of FY 2023—before the end of the continuous enrollment provision—we find that total and federal spending continued to increase while state spending returned to levels similar to the first two quarters of 2019. We expect spending and enrollment levels for the second half of 2023 to change, reflecting the end of the continuous enrollment period.

While Enrollment Increased During the Continuous Enrollment Period, State Medicaid Spending Remained Below FY 2019 Levels.

How much did states receive in enhanced federal funding during the continuous enrollment period?

During the continuous enrollment period, we estimate that states received over $117 billion in funding from the increased FMAP, with non-expansion states receiving a disproportionate share (Figure 2 and Appendix Table 1). Non-expansion states received 27% of the enhanced funding despite accounting for only 22% of all Medicaid spending because the enhanced FMAP does not apply to spending for people eligible through an ACA expansion. Across all states, the $117 billion in additional funding comprised an estimated 5% of total Medicaid spending and 7% of federal Medicaid spending during the continuous enrollment period (January 2020 through March 2023).

Non-Expansion States' Share of the Enhanced Federal Funding is Larger than their Share of Total Medicaid Spending Over the Period.

What might happen to Medicaid spending during the unwinding?

Although the size of the effects are quite uncertain, significant decreases in Medicaid enrollment are expected during the 14-month period in which states unwind the continuous enrollment period. KFF estimates that nationally Medicaid enrollment will decrease by 18% (17 million people) between March 2023 and May 2024 (based on a recent survey of states), but in practice, rates of enrollment decline will vary across states, depending on states’ approaches to unwinding. Early data from states shows substantial variation in disenrollment rates. While state Medicaid agencies report enrollment changes as the most significant factor driving changes in total Medicaid spending, they also note that factors such provider payment rate increases were putting upward pressure on spending. Overall, total Medicaid spending could decrease during the unwinding if the effects of enrollment losses are larger than the effects of other factors such as those.

Even with declining enrollment, state spending on Medicaid will likely increase as the enhanced FMAP expires. States are expecting the end of the enhanced FMAP to shift the state and federal spending shares, as has been the case in previous economic downturns when an enhanced FMAP expired. CBO estimates that federal spending will decrease by about 9% from FY 2023 to FY 2024. While states received substantial enhanced federal funding of $117 billion during the continuous enrollment period, they will likely see increases in state Medicaid spending as the enhanced federal matching funds expire at the end of the year.

The phase down of the enhanced FMAP was designed to provide continued financial support to states during the unwinding process and to mitigate sharp increases in state Medicaid spending. Before the CAA delinked the continuous enrollment provision and the enhanced FMAP from the PHE, the enhanced FMAP was set to expire at the end of the quarter when the PHE expired. The gradual phase-out of the FMAP through December 2023 recognizes that it will take states time to unwind the continuous enrollment provision and conduct redeterminations for all Medicaid enrollees. To be eligible for the enhanced match, states must meet certain eligibility, renewal, and reporting requirements. Recently, in a letter to CMS, Democratic lawmakers reiterated these beneficiary protections as well as CMS enforcement tools that were made available in the CAA, and CMS, in a letter to state governors, reiterated that states must comply with federal requirements to continue to draw down enhanced federal funds. The amount of the enhanced funding available to states during the unwinding will be smaller relative to the continuous-enrollment period, but it will still help mitigate the shift in funding from the federal government back to the states. As the enhanced federal funding is phased out and ultimately eliminated, the size of the increase in state Medicaid spending will depend on changes in total spending growth, which in turn will reflect how quickly people are disenrolled, how many new people come on to Medicaid, and how spending per person in the Medicaid program will change. These enrollment and spending changes will vary by state.

Appendix

Federal Funding from the Enhanced FMAP During the Continuous Enrollment Period, By State

Methods

Data: This analysis uses the Medicaid CMS-64 new adult group expenditure data collected through MBES (CMS-64 data), the 2019 T-MSIS Research Identifiable Demographic-Eligibility and Claims Files (T-MSIS data), the May 2023 Congressional Budget Office (CBO) estimates of federal Medicaid spending per enrollee, and enrollment estimates from a prior KFF analysis.

Overview of Approach: To estimate total, federal, and state Medicaid spending as well as the enhanced federal funding states received from the increased FMAP, we:

  • Use estimates of Medicaid enrollment by eligibility group during the continuous enrollment period, which are described in the prior analysis,
  • Use actual total Medicaid expenditure data from CMS-64 and the ratio of per enrollee spending by eligibility group from T-MSIS to estimate per enrollee spending by eligibility group for FY 2019 – FY 2022,
  • Estimate spending per enrollee for FY 2023 by growing the previous year’s per enrollee spending for each eligibility group based on the CBO’s projected Medicaid spending per enrollee,
  • Calculate total, federal, and state spending during the pandemic based on a state’s actual FMAP, and
  • Compare to an estimate of what state spending would have been without the FMAP increase to estimate enhanced federal funding.

Definitions and Limitations: While very similar at a national level, our estimates of the enhanced federal funding received over the period do not match those posted by the Medicaid CMS-64 FFCRA Increased FMAP Expenditure reports. There are a few reasons for this:

  • We estimate total additional federal funds for the continuous enrollment period (through March 2023), while the FFCRA expenditure reports only showed spending through June 2022 as of May 2023, when the analysis was completed.
  • Our estimates reflect an accrual basis of accounting—which means we estimate all spending states incurred each quarter. In practice, states have two years following the date a service was rendered to report their spending, so some spending so the FFRCA reports will not show complete spending until two years after the enhanced FMAP ends. If the FFCRA expenditure reports show spending when it is paid from the federal government to the states—rather than when states incurred the costs, the timing of federal payments will be different from what we have estimated.
  • Our model assumes the 6.2 percentage point FMAP increase applies to all non-administrative Medicaid spending for enrollees that are not ACA expansion enrollees. While they usually account for only a small share of overall spending, we do not make additional exclusions for the other services that are matched at a higher rate, which include family planning, services received through an Indian Health Services facility, expenditures for Medicare beneficiaries enrolled in the “Qualifying Individuals” program, and home health services that are matched at a 90% rate.

We provide more detail about each step in the process below.

1. Estimate Medicaid enrollment by eligibility group.

  • For enrollment by eligibility group through the end of the continuous enrollment period, we use estimates from a previous KFF analysis.

2. Prepare CMS-64 expenditure data and estimate spending per enrollee by eligibility group for FY 2019 – FY 2022 at the state level.

  • First, we pull quarterly data from the Medicaid CMS-64 New Adults Group Expenditure Data collected through MBES and aggregate total and federal spending by state for enrollees in the ACA expansion group and for all other Medicaid enrollees from FY 2019 – FY 2022. Spending includes all medical assistance expenditures.
  • Data for FY 2022 was only available for three of the four quarters (through June 2022). We assume those expenditures constitute 75% of FY 2022 spending to estimate expenditures for the full year.
  • We calculate spending per enrollee for each FY for the ACA expansion group and all other enrollees by dividing the group’s total spending by the enrollment in September of that year.
  • We use the 2019 T-MSIS claims data to estimate spending per enrollee for the non-expansion enrollees. We calculate the ratio of spending per enrollees for each specific eligibility group to spending per enrollee for all non-expansion enrollees. We apply these ratios to the spending per enrollee from the CMS-64 data for all non-expansion enrollees to estimate spending per enrollee for each eligibility group.
  • We scale state-level spending per enrollee by eligibility group estimates so that multiplying enrollment by spending per enrollee equals the total spending in each state from the CMS 64 in FY 2019 – FY 2022.

3. Estimate FY 2023 spending per enrollee. We only have full-year, detailed administrative expenditure data through June 2022, so we estimated expenditures for FY 2023.

  • We use the CBO’s May 2023 projections of average federal spending on benefit payments per enrollee by eligibility group and their assumed FMAPs to estimate average total spending per enrollee by eligibility group for FY 2022 and FY 2023.
  • We calculate the growth in total spending per enrollee from FY 2022 to FY 2023 by eligibility group and apply the 2023 growth rates to our 2022 estimated spending per enrollee, resulting in estimated spending per enrollee by eligibility group for 2023.
  • For states that newly expanded Medicaid, we estimated spending per enrollee for the new group by multiplying that state’s spending per enrollee for their non-expansion adults by the ratio of spending per expansion enrollee to non-expansion enrollee in all other states.

4. Calculate total, federal, and state Medicaid spending during the pandemic with the enhanced FMAP.

  • For each FY, we estimate total Medicaid spending by multiplying spending per enrollee by enrollment. We group spending into two groups: spending on ACA expansion group and spending for all other Medicaid enrollees.
  • We estimate the FMAPs as the percentage of total spending that is federal spending in the CMS-64. We assume the FY 2022 FMAP applies for the rest of the continuous enrollment period, which is the first six months of FY 2023.

5.  Estimate enhanced federal funding.

  • We estimate states’ spending without the enhanced FMAP by subtracting 6.2 percentage points from each state’s FMAP for non-expansion spending.
  • Total spending from the enhanced FMAP is estimated to be the difference between states’ actual spending and the spending we estimated without the enhanced FMAP.
  • The American Rescue Plan Act included a 5-percentage point increase in the FMAP for states to adopt an ACA Medicaid expansion. For the states using this option during the continuous enrollment period (Missouri and Oklahoma), we subtracted the enhanced federal funding from that provision from state spending when calculating spending from the continuous enrollment enhanced FMAP.

 

News Release

One Year Since Dobbs: The Landscape of Abortion Policies Across the US  

Published: Jun 15, 2023

There has been intense focus on abortion policies across the United States since the Supreme Court’s decision in Dobbs v. Jackson Women’s Health Organization on June 24, 2022. That decision overturned Roe v. Wade, eliminating federal constitutional protections for abortion and putting the decision to restrict or protect abortion with the states. 

Now, nearly one year later, what is the status of federal and state developments? Where is abortion banned? Where is litigation pending? And how does the public view abortion, the Supreme Court, and related women’s health issues?

These KFF resources provide the latest information:

Abortion in the United States Dashboard: Tracks state abortion policies and litigation following the overturning of Roe v. Wade.

Key Facts on Abortion in the United States: Answers key questions about abortion in the United States.

The Availability and Use of Medication Abortion: Explains medication abortion, how it is used and regulated, the role of the drug in self-managed abortions, and analyzes the intersection of federal and state regulations pertaining to its provision and coverage.

Legal Challenges to State Abortion Bans Since the Dobbs Decision: Summarizes the types of challenges presented in state courts since the Dobbs ruling and highlights some of the novel strategies that are being used to defend access to abortion in states that have enacted abortion bans.

A Review of Exceptions in State Abortions Bans: Implications for the Provision of Abortion Services: Analyzes the rape, incest, and health exceptions to abortion bans and discusses how they may not achieve their purported aims to provide life-saving care.

Health Care in the 2024 Election and in the Courts Polling: Medication Abortion: Examines abortion as a key issue in the 2024 election cycle, awareness of medication abortion’s legality and safety, and confidence in the Supreme Court and the FDA.

Medicaid Managed Care Network Adequacy & Access: Current Standards and Proposed Changes

Published: Jun 15, 2023

Managed care is the dominant delivery system for Medicaid enrollees with 72% of Medicaid beneficiaries nationally enrolled in comprehensive managed care organizations (MCOs). Current federal rules require states to establish and enforce network adequacy standards for Medicaid MCOs, but states have flexibility to define those standards. States use an array of provider network standards (e.g., time and distance, provider-to-enrollee ratios, and appointment wait time) as well as varying methods to monitor access and oversee MCO performance. Recent research findings suggest that provider network directories may overstate Medicaid physician availability and current network adequacy standards may not reflect actual access. It is well documented that provider directories are often outdated or inaccurate. Study findings also suggest care provided to Medicaid enrollees is often highly concentrated among a small number of physicians. Our KFF Survey of Consumer Experiences with Health Insurance revealed adults with Medicaid or Marketplace coverage are more likely than those with Medicare or employer sponsored insurance to report experiencing provider network problems.

On April 27, 2023, the Biden Administration released two notices of proposed rulemaking (NPRMs), Ensuring Access to Medicaid Services (“Access” NPRM”) and Managed Care Access, Finance, and Quality (“Managed Care” NPRM), to help ensure access to quality health care in Medicaid and the Children’s Health Insurance Program (CHIP). Under the Managed Care NPRM, CMS is proposing to establish national maximum wait time standards for certain appointments and to require states to conduct independent secret shopper surveys to validate plan compliance. States would also be required to conduct an annual enrollee experience survey and managed care plan payment analysis for certain services.

This brief describes current network adequacy and availability standards for Medicaid managed care plans, presents related findings from KFF’s 22nd annual Medicaid budget survey (conducted in 2022), and summarizes proposed changes to network adequacy and access rules in the Managed Care NPRM. The 2022 Medicaid budget survey asked states about network access and availability monitoring, network adequacy penalties, and about certain features of state-developed standards. Findings from the survey may provide information and context for provisions included in the Managed Care NPRM. Public comments (for both NPRMs) are due by July 3, 2023. Key findings from our 2022 survey include:

  • Monitoring. States are currently using a variety of methods to monitor MCO compliance with network adequacy standards and access requirements including monitoring access-related member surveys (34 of 37 responding MCO states) and conducting secret shopper calls (28 of 37 responding MCO states).
  • Penalties. Less than one quarter of responding MCO states (9 of 38) reported issuing monetary or non-monetary penalties (e.g., suspending new enrollment) excluding corrective action plans for non-compliance with MCO contractual network adequacy standards in the past three years.
  • Public Transit / Time and Distance Standards. Few states reported state-developed time and distance standards account for enrollees who rely on public transit.
  • Telehealth. While many states have not altered network adequacy requirements to account for telehealth, other states reported varying approaches to accounting for telehealth availability within network adequacy standards.
  • Cultural Competency. Most MCO states reported they define cultural competency standards for MCO provider networks in their MCO contracts; however, few specifically described how they monitor and ensure compliance with these standards.

What are the current network adequacy and service availability rules for Medicaid managed care plans?

Federal law requires Medicaid managed care plans to assure that they have capacity to serve expected enrollment in their service area and maintain a sufficient number, mix, and geographic distribution of providers. A Medicaid managed care plan must make covered services accessible to its enrollees to the same extent that such services are accessible to other state residents with Medicaid who are not enrolled with that plan.

Network adequacy standards for Medicaid managed care plans differ by state. While federal rules related to availability of services are complex, key requirements for network adequacy (i.e., whether managed care plans contract with a sufficient number of providers to serve enrollees) include the following:

  • Current federal rules require states to establish network adequacy standards for specified provider types including primary and specialty care (adult and pediatric), OB/GYN, behavioral health (adult and pediatric), hospital, pharmacy, pediatric dental, and long-term services and supports (LTSS) (as applicable).
  • The 2020 CMS Medicaid managed care final rule removed the requirement that states use time and distance standards to ensure provider network adequacy and instead lets states choose any quantitative standard such as minimum provider-to-enrollee ratios, maximum travel time or distance to providers, minimum percentage of contracting providers accepting new patients, maximum wait times for an appointment, or hours of operation requirements.
  • Network standards must include all geographic areas covered by the managed care program; however, states may vary standards for the same provider type by geography.
  • In setting network adequacy standards, states must consider the diverse needs of their Medicaid enrollees, including individuals with disabilities, special needs, or limited English proficiency.
  • States must make network adequacy standards available online and network adequacy standards and access requirements must be included in the state’s managed care quality strategy.

Plans must document to the state that they have the capacity to serve the expected enrollee population. This must occur annually (in addition to at contract start) as well as when there are significant changes in a plan’s operations that affect its capacity. Significant changes include changes that affect the plan’s covered services or geographic service area, the composition of payments to its provider network, or enrollment of a new population. States, in turn, must assure CMS that the plans meet the state’s requirements for availability of services and provide an analysis that supports the state’s certification of each plan’s provider network adequacy. As of October 2022, states are required to use a standard reporting template. CMS plans to make the Network Adequacy and Access Assurances Reports publicly available on Medicaid.gov once a page is established and CMS has completed an initial review of the reports but will make these reports available upon request until then.

States must monitor managed care plan performance, including the availability and accessibility of services (including network adequacy standards). Each state Medicaid agency must have a monitoring system for all managed care programs. The monitoring system must address all aspects of the state’s managed care program, including the performance of each managed care entity in virtually every area of operations and management (e.g., appeals and grievance systems, claims management, enrollee materials and customer service, information systems, marketing, medical management, provider network management, availability and accessibility of services). States and managed care plans may use multiple datasets to monitor network adequacy and access (e.g., MCO-supplied data and reports, administrative or claims data, survey data, etc.). A 2018 MACPAC study found few states referenced metrics or standards to measure access or network adequacy and most states describe network oversight in terms of contract compliance and access monitoring in terms of visits or clinical outcomes.

States that contract with managed care plans must ensure that a qualified “external quality review organization” (or EQRO) performs an annual external quality review (EQR) for each plan. EQR activities are intended to improve states’ ability to oversee and manage the managed care plans they contract with, and help managed care plans improve performance. The primary focus of EQR annual reviews is on quality outcomes and timeliness of and access to services. Validation of plan network adequacy is a mandatory EQR activity. In February 2023, CMS released updated EQR protocols which add a new protocol for the mandatory network adequacy validation activity. States and EQROs must begin using the new network adequacy validation protocol by February 2024. States are required to finalize and post the annual EQR technical report on their website. A recent MACPAC review revealed EQR annual technical reports are sometimes difficult to locate and may be hard for stakeholders to understand (e.g., may be lengthy, technical, and/or report only aggregate results etc.).

Beginning in June 2021, states were required to submit the Managed Care Program Annual Report (MCPAR) to CMS (no later than 180 days after each contract year) for each managed care program the state administers. The first reports were due to CMS in December 2022. The MCPAR must provide information on and an assessment of the availability and accessibility of covered services within managed care contracts, including network adequacy standards. The MCPAR must also include the results of any sanctions or corrective action plans imposed by the state (or other formal or informal intervention) with a contracted managed care plan (described in more detail below). CMS plans to make the MCPAR publicly available on Medicaid.gov once a page is established and CMS has completed an initial review of the reports but will make these reports available upon request until then.

States may impose penalties if managed care plans do not meet contractual obligations, including those related to network adequacy and access standards. States have several enforcement mechanisms including corrective action plans, monetary penalties, or terminating the plan contract. States can also suspend new enrollment after a sanction has been imposed (until the state or CMS determines the reason for the sanction has been resolved). A 2018 MACPAC study found most states do not provide specific enforcement mechanisms for failure to meet access standards or report network data.

How are states currently monitoring network adequacy and access?

KFF’s annual Medicaid budget survey conducted in 2022 asked states to identify network adequacy monitoring activities in place as of July 1, 2022, and penalties issued for non-compliance with network adequacy standards in the past three years. States were also asked to describe how network adequacy standards currently account for enrollee use of public transit and services delivered via telehealth as well as how cultural competency standards for provider networks are defined and enforced. Findings from the survey may provide helpful information and context for provisions included in the Managed Care NPRM.

Network Access and Availability Monitoring

Currently, states use a variety of methods to monitor MCO compliance with network adequacy standards and access requirements (Figure 1 and Appendix). States were asked to identify strategies used to monitor MCO network adequacy, including External Quality Review Organization (EQRO) monitoring activities, as well as other strategies in place to monitor network access and availability, as of July 1, 2022. Results from the survey show EQR organizations are engaged in a variety of network adequacy monitoring tasks. The majority of responding MCO states reported “other” monitoring (in addition to EQR monitoring) across most monitoring categories. While we did not ask states to describe their specific monitoring activities (e.g., breadth, frequency, or how findings inform quality improvement activities), these data provide a high-level snapshot of the various methods being used to track network access and availability as part of EQRO monitoring or other state activities.

State MCO Network Adequacy Monitoring Activities as of July 1, 2022

Network Adequacy Incentives or Penalties

A MACPAC review of publicly available state network oversight documents found that most states do not provide specific network adequacy enforcement mechanisms. A 2014 HHS Office of Inspector General report found that among states that identified violations of access standards, states most commonly relied on corrective action plans to address them. When states do impose monetary penalties on MCOs, the fines are often very small relative to annual Medicaid profits and revenues. Generally, publicly available information on states’ use of penalties has been limited to date.

Nine responding MCO states reported issuing penalties for non-compliance with MCO contractual network adequacy standards in the past three years (Table 1). States were asked whether they have issued one or more monetary or non-monetary penalties (excluding corrective action plans) for non-compliance with MCO contractual network adequacy standards attributable to MCO performance in the past three years. States reported monetary penalties, liquidated damages, suspending new enrollment, and mandating out of network access (for certain provider types or areas with deficiencies). Areas of non-compliance included failure to meet various state standards (e.g., time and distance, provider-to-member ratios, appointment wait times, accepting new Medicaid enrollees, provider directory requirements) and covered a variety of provider types (e.g., primary care, obstetrics, behavioral health, hospital, home health, vision, dental).

States that Issued Penalties for Non-Compliance with MCO Contractual Network Adequacy Standards

Public Transit and Time and Distance Standards

Only five responding MCO states reported state-developed time and distance standards account for enrollees who rely on public transit (as of July 1, 2022) (Table 2). Time and distance standards establish a maximum travel time or distance that enrollees would have to travel to see a provider in their network. The 2020 CMS Medicaid managed care final rule removed the requirement that states use time and distance standards to ensure provider network adequacy and instead lets states choose any quantitative standard. However, most MCO states establish time and distance standards as part of network adequacy requirements. Medicaid beneficiaries, particularly in urban areas, may rely on public transit rather than driving. CMS recommends states should consider how to adapt time and distance standards based on traffic patterns, car ownership, and public transportation in urban and rural areas.

State Time and Distance Standards that Account for Enrollees who Rely on Public Transit

Telehealth and Network Adequacy

While some states have not altered network adequacy requirements to account for telehealth, other states reported varying approaches to accounting for telehealth availability within network adequacy standards. States were asked how (if at all) their state MCO network adequacy requirements account for services delivered via telehealth. Among states that reported accounting for telehealth, some generally reported MCOs may use the availability of telehealth services to meet network adequacy requirements while other states reported allowing telehealth availability to be considered only under certain circumstances (e.g., for specific provider types) or as part of network adequacy “exception” requests. A few states indicated work currently underway to study this issue further.

Examples of State Network Adequacy Requirements that Account for Services Delivered via Telehealth

Cultural Competency STANDARDS

In developing network adequacy standards, states must consider the ability of network providers to communicate with patients with limited English proficiency in their preferred language and to accommodate patients with disabilities. Plans must participate in state efforts to promote linguistically and culturally competent care. Federal rules also require Medicaid managed care plan directories to indicate providers’ cultural and linguistic capabilities and the availability of skilled medical interpreters.

Although there are no specific federal requirements, most MCO states reported they define cultural competency standards for MCO provider networks in their MCO contracts. Several states reported MCOs are required to submit an annual cultural competency plan to the state Medicaid agency. Some states reported MCOs are required to provide cultural competency training to network providers or must ensure network providers complete cultural competency training. Although states were asked how cultural competency standards are enforced, few specifically described how they monitor and ensure compliance with these standards. Those that did described activities including reviewing MCO network management plans and policies, requiring MCOs to evaluate compliance and report to the state, monitoring compliance as part external quality review, monitoring grievances and appeals, and retaining the ability to apply remedies for non-compliance (e.g., corrective action plans, enhanced monitoring, sanctions etc.). Examples of state cultural competency standards for MCO provider networks are included in Table 4 below.

Examples of State Cultural Competency Standards for MCO Provider Networks

What are the proposed changes to managed care network adequacy and access rules?

On April 27, 2023, the Biden Administration released two notices of proposed rulemaking (NPRMs), Ensuring Access to Medicaid Services (“Access” NPRM”) and Managed Care Access, Finance, and Quality (“Managed Care” NPRM), to help ensure access to quality health care in Medicaid and the Children’s Health Insurance Program (CHIP) across fee-for-service and managed care delivery systems. Provisions related to network adequacy standards and availability of services in the Managed Care NPRM have been summarized below:

Under the proposed rules, states would be required to develop and enforce wait time standards for certain routine appointments. CMS proposes establishing maximum wait time standards for routine outpatient mental health and substance use disorder (SUD) appointments (no longer than 10 business days), routine primary care appointments (no longer than 15 business days), and routine OB/GYN appointments (no longer than 15 business days). CMS notes the proposed maximum timeframes were informed by standards for the individual Marketplace that will go into effect in 2024. States would also be required to establish a maximum appointment wait time standard for an additional state-selected service. CMS would defer to states on whether and how to vary appointment wait time standards for the same provider type (e.g., adult vs. pediatric, telehealth vs. in-person, geography, etc.) but all standards would need to fall within maximums proposed.

States would be required to use an independent entity to conduct annual secret shopper surveys to validate plan compliance with appointment wait time standards as well as the accuracy of provider directories. To increase the validity and accuracy of states’ efforts to measure network adequacy and access, CMS proposes to require states to use secret shopper surveys as part of their monitoring activities. States would be required to determine each managed care plan’s rate of network compliance with appointment wait time standards (proposing a minimum compliance rate of at least 90 percent). CMS proposes appointments offered via telehealth only be counted toward compliance if the provider also offers in person appointments (and that telehealth visits offered during the secret shopper survey be identified separately). CMS also proposes to require surveys of provider directory data to verify the accuracy of certain data elements (street address, telephone number, active network status with the managed care plan, and whether the provider is accepting new enrollees) for primary care, OB/GYN, outpatient mental health, and SUD providers, as well as the “state-selected” provider type. States would be required to post the results of these surveys on the state’s website. (Effective July 1, 2025, the Consolidated Appropriations Act, 2023 will require Medicaid managed care plan electronic provider directories be searchable and include information on whether each provider offers covered services via telehealth.)

To ensure states’ managed care program monitoring systems capture the enrollee experience, states would be required to conduct an annual enrollee experience survey. CMS indicates results from enrollee surveys would help states evaluate access to care and care continuity and inform the development of quality assessment and improvement strategies. CMS invites comment on whether they should mandate the use of a specific enrollee experience survey or define characteristics of acceptable survey instruments as well as related to the cost and feasibility of implementing enrollee experience surveys for each managed care program.

To better understand how payment rates may impact access, states would be required to submit an annual payment analysis comparing certain managed care provider rates to Medicare rates. Managed care plans would be required to use paid claims data from the immediate prior rating period to determine the total amount paid for primary care, OB/GYN, mental health, and SUD evaluation and management (E&M) services. The payment analysis would provide each managed care plan’s payment levels (by provider type) as a percentage of Medicare rates. Percentages would be reported separately if they differ between adult and pediatric services. States would submit a similar payment analysis for certain home and community-based services (HCBS) (homemaker services, home health aide services, and personal care services) but the comparison would be to Medicaid fee-for-service rates (due to lack of comparable Medicare rates for these services). States would be required to post this information on their website within 30 days of submission to CMS.

Under the proposed rules, states would be required to submit remedy plans to address any areas where managed care plans need to improve access. Remedy plans would identify responsible parties (including states and plans) and specific steps to achieve improvement within 12 months. States would be required to submit quarterly progress updates to CMS on implementation of the remedy plan.

Looking Ahead

Many factors influence access to care including provider supply and capacity, payment rates, accuracy of provider directories, cultural competency/provider acceptability, availability of transportation, etc. As most Medicaid beneficiaries are enrolled in comprehensive MCOs, managed care plan efforts to recruit and maintain their provider networks affect enrollees’ access to care through factors such as travel times, wait times, or choice of provider. Current federal rules require states to establish and enforce network adequacy standards for Medicaid MCOs, but states have flexibility to define those standards. States use an array of provider network standards (e.g., time and distance, provider-to-enrollee ratios, and appointment wait time) as well as varying methods to monitor access and oversee MCO performance. Historically, CMS has provided limited oversight of state access standards. Recent research findings suggest that MCO provider network directories may overstate Medicaid physician availability and current network adequacy standards may not reflect actual access. Study findings also suggest care provided to Medicaid enrollees is often highly concentrated among a small number of physicians.

On April 27, 2023, the Biden Administration released two notices of proposed rulemaking (NPRMs), Ensuring Access to Medicaid Services (“Access” NPRM”) and Managed Care Access, Finance, and Quality (“Managed Care” NPRM), to help ensure access to quality health care in Medicaid and the Children’s Health Insurance Program (CHIP). The Managed Care NPRM aims to standardize and set a quantified floor for what it means to have timely access to care as well as provide transparency around provider payment rates. Data from our 2022 Medicaid budget survey provide a high-level snapshot of current network adequacy and availability monitoring activities and the types of penalties states may impose when standards are not met. This brief also highlights key features of state-developed standards (e.g., how states account for telehealth or public transit in network adequacy standards or define cultural competency standards for provider networks) where there may be variation across states and emerging interest in studying these issues.

This brief draws on work done under contract with Health Management Associates (HMA) consultants Kathleen Gifford, Aimee Lashbrook, Mike Nardone, and Matt Wimmer.

Appendix

State MCO Network Adequacy Monitoring Activities as of July 1, 2022
Poll Finding

KFF Survey of Consumer Experiences with Health Insurance

Published: Jun 15, 2023

Findings

About the survey

Understanding how health insurance works involves exploring how people feel about their health coverage, how affordable that coverage is, how they interact with their insurance provider, the problems they experience, and, critically, how insurance works for people when they get sick. To accomplish this, the KFF Survey of Consumer Experiences with Health Insurance interviewed a nationally representative sample of 3,605 U.S. adults with health insurance. To gauge the diversity of experience among insured adults, the sample includes interviews with 978 adults whose primary coverage is through their or a spouse’s employer, 885 adults with Medicare, 880 individuals who purchased their own coverage through the ACA Marketplace, and 815 adults with Medicaid. Importantly, people covered by different types of insurance have different levels of income, education and health status, which may affect their experiences and views. (See Appendix 1).

This initial report provides an overview of the survey findings, exploring problems patients often face when using their insurance –related to claims processing and denials, inadequate provider networks, and others – as well as whether consumers can resolve their insurance problems and the consequences that can arise from them. Along with problems insured adults have experienced, this report also covers how well consumers understand their health insurance, their rights, and the government agencies to call if they need help. In addition to an overview of the varied problems insured adults experience when using their insurance – especially for people who are sick – this report also provides a more detailed review of difficulty accessing mental health care and affordability concerns – two prominent issues among many insured adults. Finally, this report explores consumers’ views on public policies that might make insurance easier to understand and insurance problems easier to avoid or resolve. Data were analyzed across health status, coverage type, race and ethnicity and other consumer characteristics, and this report presents the findings where there were compelling differences.

In the coming months, KFF plans to release additional reports providing further detailed analysis on the insurance experiences of adults within specific types of insurance (employer coverage, Marketplace, Medicare, and Medicaid), on the experiences of key patient populations including those with specific chronic conditions, and about ongoing policy discussions to address health insurance problems, complexity, and affordability.

Key Findings

  • Most insured adults give their health insurance positive ratings, though people in poorer health tend to give lower ratings. Most insured adults (81%) give their health insurance an overall rating of “excellent” or “good,” though ratings vary based on health status: 84% of people who describe their physical health status as at least “good” rate insurance positively, compared to 68% of people in “fair” or “poor” health. Ratings are positive across insurance types, though higher shares of adults on Medicare rate their insurance positively (91%) and somewhat lower shares of those with Affordable Care Act (ACA) Marketplace coverage give their insurance a positive rating (73%).
  • Despite rating their insurance positively, most insured adults report experiencing problems using their health coverage; people in poorer health are more likely to report problems. A majority of insured adults (58%) say they have experienced a problem using their health insurance in the past 12 months – such as denied claims, provider network problems, and pre-authorization problems. Looking at responses by health status, two-thirds (67%) of adults in fair or poor health experienced problems with their insurance, compared to 56% of adults who say they are in at least “good” physical health. Notably, about three in four insured adults who received mental health care in the past year, or who use a lot of health care (defined as more than ten provider visits in a year) experienced insurance problems. At least half of adults across insurance types say they experienced a problem, though the nature of problems people experienced varied somewhat more based on their type of coverage.
  • Nearly half of insured adults who had insurance problems were unable to satisfactorily resolve them, with some reporting serious consequences. Half of consumers with insurance problems say their problem was resolved to their satisfaction. Among the 58% of insured adults who had a problem with their insurance in the past year, about one in six (17%) say they were unable to receive recommended care as a direct result of their problems; 15% say they experienced a decline in their health and about three in ten (28%) say they paid more than they expected for care all as a direct result of their problems.
  • Among those with the greatest mental health needs, many adults across insurance types find their coverage lacking and report forgoing needed care. Among insured adults who report being in “fair” or “poor” mental health, four in ten (43%) say there was a time in the past year when they did not get mental health services or medication they thought they needed, and a similar share (45%) give their insurance a negative rating when it comes to the availability of mental health providers. One in five of this group (19%) say there was a time in the past year when a particular mental health service or treatment they needed was not covered by their plan. People with Medicare – who are less likely overall to say they are in fair or poor mental health – are also somewhat less likely than adults with other types of insurance to say a needed mental health therapist or treatment was not covered by their insurance. Adults with Marketplace and Medicaid coverage are more likely than those with employer-sponsored insurance (ESI) or Medicare to negatively rate their insurance when it comes to the availability of mental health providers.
  • Affordability of premiums and out-of-pocket costs are a concern, particularly for those with private health coverage, and for some, contributed to not getting care. About half of adults with Marketplace plans (55%) or ESI (46%) rate their insurance negatively when it comes to premiums, compared to 27% of people with Medicare and 10% of Medicaid enrollees. Four-in-ten insured adults say they skipped or delayed some type of care in the past year due to cost. One in six insured adults (16%), including larger shares of those at lower income levels, say they had problems paying medical bills in the past year.
  • Insured adults overwhelmingly support public policies to make insurance simpler to understand and to help them avoid or resolve insurance problems. About nine in ten say they support requirements on insurers to maintain accurate and up-to-date provider directories, provide simpler, easier-to read EOBs, disclose their claims denial rates to regulators and the public, and provide in advance, upon request, information about whether care is covered and their out-of-pocket cost liability. Nearly eight in ten say they would be likely to use the services of a publicly established consumer assistance program (CAP) when they encounter insurance problems. All of these public policies have already been enacted, though not all have been fully implemented or funded. The survey did not probe trade-offs that might be involved in implementing existing or future consumer protections in these areas, such as administrative costs.

Consumers Generally Rate Their Health Insurance Positively, Less So When They Are Sick

Large majorities of insured adults across insurance types give their own health insurance an overall positive rating. But ratings vary, and the KFF Survey of Consumer Experiences with Health Insurance finds that groups with greater health needs, who generally are more likely to use their health insurance to seek care, are also more likely to rate their health insurance negatively.

Insured adults who describe their physical health as either “fair” or “poor” are more likely to give their health insurance a negative rating, but the shares of those who describe their health this way also differ between insurance coverages. Across all coverage types, about one in six insured adults (16%) describe their physical health status as “fair” or “poor,” with larger shares of those with Medicaid (32%) and Medicare (23%) describing their physical health in this way.

About

Overall, about eight in ten (81%) insured adults rate the overall performance of their current health insurance as either “excellent” or “good,” including large majorities of those with ESI (80%), Marketplace coverage (73%), and Medicaid (83%). Adults with Medicare are the most positive in their overall ratings with nine in ten (91%) rating their coverage positively, including half who say it is “excellent.” (This brief reports on experiences of all people insured by Medicare combined, whether they are enrolled in traditional Medicare or private Medicare Advantage plans, and whether they are elderly or under age 65. In future briefs we will report in more detail on experiences of people with Medicare.)

Adults with “fair” or “poor” physical health are nearly twice as likely as those with at least “good” physical health to give their insurance a negative rating on its overall performance (31% vs. 16%).

Most Insured Adults Give Their Health Insurance An Overall Positive Rating

Across each insurance type, insured adults with fair or poor health are more likely than their healthier counterparts to rate their insurance negatively. Notably, adults with fair or poor health with ESI coverage, Medicare, or Medicaid are more than twice as likely as their counterparts in at least “good” health to give their insurance an overall negative rating. Marketplace enrollees, regardless of health status, are the most likely to rate their insurance negatively.

Across Coverage Type, Adults With Fair Or Poor Physical Health Are More Likely To Rate Their Insurance Negatively

Despite Positive Ratings, Most Adults Experience Problems Using Their Health Insurance

Though a majority of insured adults give positive ratings to their health insurance’s overall performance, most also report experiencing problems when they used their insurance in the past year. About six in ten (58%) insured adults report having experienced a problem with their health insurance in the past 12 months, including majorities of those with ESI (60%), Medicaid (58%) and Marketplace coverage (56%) and about half of adults with Medicare (51%).

Types Of Problems Vary By Type Of Insurance

Though large shares across insurance types report at least some problem with their insurance, the nature of problems people experience differs across health coverage types.

Claims payment issues – About a quarter (27%) of insured adults say there was a time in the past year when their health insurance paid less than they expected for a medical bill, and about one in six (18%) say there was a time when their insurance did not pay anything for care they received and thought would be covered. Smaller shares of adults with public health insurance coverage (Medicare 15%, Medicaid 11%) say their insurance paid less than they expected for a medical bill, compared to those with private coverage (ESI 35%, Marketplace 28%). Similarly, those with public coverage are less likely to report that insurance paid nothing at all for a service they thought was covered (Medicare 10%, Medicaid 12%) compared to those with private coverage (ESI 21%, Marketplace 20%).

Provider network issues – About a quarter (26%) of insured adults say there was a time in the past year when an in-network doctor they needed to see did not have available appointments and 14% say there was a time when a particular doctor or hospital they needed was not covered by their insurance. Generally, adults with Marketplace or Medicaid coverage are more likely than those with Medicare or ESI to report experiencing these provider network problems. Medicare Advantage plans typically establish limited networks of doctors and other providers, while traditional Medicare allows people to see any provider that accepts Medicare.

Pre-authorization issues – About one in six insured adults (16%) say their health insurance denied or delayed prior approval for needed care in the past 12 months. About one in five Medicaid enrollees (22%) experienced these pre-authorization problems whereas just one in ten of those with Medicare (11%) report experiencing this. While Medicare Advantage plans use prior authorization, traditional Medicare generally does not.

Prescription drug problems – About a quarter of insured adults (23%), including at least one in five across insurance types, say their insurance did not cover a needed prescription medication or charged a very high copay in the past 12 months. This prescription drug coverage problem is the most commonly experienced problem among people with Medicare (27%).

Problems with mental health coverage – One in ten adults say their insurance did not cover a particular mental health therapist or treatment they needed in the past year.

About Six In Ten Insured Adults Say They Have Had A Problem With Their Health Insurance In The Past Year

Adults In Poorer Physical Or Mental Health Are More Likely To Report Insurance Problems

Insured adults who report being in fair or poor physical health are more likely than those who describe their physical health as at least “good” to report having problems with their health insurance in the past year (67% vs. 56%). Similarly, insured adults who say they are in fair or poor mental health are more likely than those in at least “good” mental health to say they experienced a problem with their insurance (69% vs. 55%). Indeed, three in four (74%) insured adults who say they received mental health treatment in the past year report experiencing a problem with their insurance. Likewise, about three in four (78%) high utilizers of health care – those who had more than ten visits with a health care provider in the past year – say they experienced problems using their insurance.

About Two-Thirds Of Insured Adults In Fair Or Poor Health Report Having A Problem With Their Insurance In The Past Year

Notably, differences in the share who experienced insurance problems between those in better and worse physical health persist across insurance types. For example, those in fair or poor health with ESI, Marketplace, or Medicaid coverage are more likely than their healthier counterparts with those insurance types to say that in the past year a doctor they needed to see did not have available appointments. Importantly, across insurance types, problems with prescription drug costs are more prevalent among insured adults in fair or poor health – who are often most likely to need access to prescription medication.

Across Insurance Types, Larger Shares Of Adults With Fair Or Poor Physical Health Say They Experienced Problems With Appointments And Prescription Drug Costs

Nearly Half Who Experienced Insurance Problems Say They Were Not Resolved To Their Satisfaction

While half of insured adults who report experiencing an insurance-related problem in the past year say their biggest problem was resolved to their satisfaction, similar shares say it was either not resolved (19%) or resolved in a way they were unsatisfied with (28%). This was more often the case among consumers with Marketplace coverage; three in ten (31%) say their biggest problem was resolved, but not in the manner they would have liked, while one in four (25%) say the biggest problem they had with their insurance was not resolved. By contrast, a majority of those with Medicare (55%) or Medicaid coverage (55%) say their biggest problem was resolved to their satisfaction.

Nearly Half Of Adults Who Had A Problem With Their Insurance In The Past Year Say Their Biggest Problem Was Not Resolved To Their Liking Or Not Resolved At All

Among insured adults who had a problem with their health insurance in the past 12 months, most (78%) say they have taken some action to try and resolve the problem. Fifty-three percent say they contacted their insurance in an effort to resolve the problem, about half (49%) say they referred to their insurance website or documents for information and 45% say they contacted their doctor or medical provider or someone on their staff. About one in five insured adults who had a problem with their insurance say they asked family or friends for help (22%), while a similar share say they changed doctors (20%). One in ten say they filed a formal appeal. One in five insured adults who had a problem with their insurance say they took none of these actions in an effort to resolve the issue (22%).

Among Medicaid enrollees who had a problem with their insurance, 28% say they contacted their state Medicaid agency in order to resolve the problem. About one in five adults with ESI who had insurance problems say they asked someone in human resources at their employer for help (21%), while a smaller share of those with a Marketplace plan say they asked a Navigator or broker for help (11%). About one in ten people with Medicare with insurance problems contacted 1-800-Medicare or their State Health Insurance Assistance Program (12%).

Trying to fix a health insurance problem can be time consuming. Among adults who say their insurance problem has been resolved, either satisfactorily or not, 27% say it was resolved the same day it occurred, 25% say it took more than one day but less than one week, 31% spent one to four weeks, and 17% spent more than one month.

Among insured adults whose problems were not resolved, 12% say they were still trying and have been doing so for up to four weeks, and 35% are still trying and have been doing so for longer than one month. But 54% say they had given up and are no longer trying to fix it. Combined with the 22% of adults with problems who took no action at the outset, 31% of adults with insurance problems eventually give up on trying to resolve them.

Half Of Insured Adults Have At Least Some Difficulty Understanding Their Insurance

The KFF Survey of Consumer Experiences with Health Insurance asked insured adults about how well they understand key aspects of their health insurance – what it covers, what they will owe out of pocket when they use care, how to find information about provider networks, what their explanation of benefits (EOB) statements say, and common terms used in health insurance such as “deductible.” Half (51%) of insured adults say they find at least one aspect of how their insurance works at least somewhat difficult to understand. Education level does not appear to help; a slightly higher share of college graduates (58%) said they had difficulty understanding an aspect of their insurance coverage. What people have difficulty understanding varies somewhat depending on their type of coverage, with people covered by private insurance through an employer or the Marketplace generally having more trouble comprehending their insurance than those enrolled in public coverage through Medicare or Medicaid.

What insurance covers – More than one-third (36%) of all insured adults say it is at least somewhat difficult for them to understand what their insurance will and will not cover. Larger shares of adults covered in Marketplace plans (46%) or ESI (40%) cite this difficulty.

Out-of-pocket costs – Thirty percent of insured adults overall say it is difficult for them to understand what they will owe out-of-pocket when they get health care, including larger shares of people with a Marketplace plan (41%) and about a third of adults with ESI (34%).

The Explanation of Benefits (EOB) – Three in ten insured adults – including 38% of those with Marketplace plans and 35% of those with ESI – say they find it difficult to understand statements explaining whether or how much insurance will pay for care; these statements are called Explanation of Benefits, or EOB.

Basic health insurance terminology – A quarter of all insured adults say they have difficulty understanding specific terms, such as “deductible,” “coinsurance,” “prior authorization,” or “allowed amount.” Among Marketplace enrollees, about one-third (32%) say they find these terms difficult to understand.

Provider networks – Nearly one in four insured adults (23%) say it is at least somewhat difficult for them to understand where to find information about which doctors and hospitals are covered in their health plan network. Adults covered by Marketplace plans (30%), Medicaid (27%), or by ESI (24%) are more likely than people with Medicare (15%) to cite this difficulty.

Notably, adults who say they experienced a problem with their insurance in the past 12 months are nearly twice as likely to as those who did not experience insurance problems to say it is difficult for them to understand at least some aspect of their health coverage asked about in the survey (63% vs. 33%).

Half Of Insured Adults Say It Is Difficult To Understand At Least Some Aspect Of Their Health Insurance
Language barriers may also lead to difficulty understanding health insurance

Across race and ethnic groups, insured Hispanic adults (37%) are more likely than insured White (29%) and Black (24%) adults to report difficulty understanding their insurance EOB. The share who say they find it at least somewhat difficult to understand their EOB rises to 45% among adults who completed the survey in Spanish. Among these Spanish-dominant speakers, 35% say insurance documents are never or only sometimes available in a language they prefer.

Many Consumers Don’t Know Their Rights Or Where To Turn For Help

Four in ten insured adults (40%) know they have a legal right to appeal to a government agency or an independent medical expert if their health insurance refuses to cover medical services they think they need. A small share incorrectly believe they do not have appeal rights (9%), while about half (51%) say they are not sure. With the exception of people with Medicare, majorities across insurance types say they do not know or believe they do not have appeal rights if their insurance refuses to cover medical services they think are needed.

Most Insured Adults Are Unaware They Have A Right To Appeal Insurance Decisions

A majority of insured adults (76%) also say they don’t know which government agency to contact for help dealing with their insurance. Uncertainty over who to contact is particularly an issue among those with private health coverage with at least eight in ten adults with ESI (83%) or with a Marketplace plan (81%) saying they do not know which government agency to contact for help with insurance problems. About four in ten adults with Medicare and three in ten Medicaid enrollees say they do know which government agency to contact for help with insurance problems. For those who say they do know which government agency to contact, when asked to name the agency, few (2% of all insured adults with ESI or Marketplace coverage) name their state insurance department (the lead agency that regulates non-group insurance), and no one named the U.S. Department of Labor (the lead agency with jurisdiction over ESI).

Just One In Four Insured Adults Say They Know Which Government Agency To Contact For Health Insurance Problems

Health Insurance Problems Can Have Financial And Health Consequences

The survey also finds that problems with health insurance can affect people’s ability to access medical care. Among insured adults who experienced a problem with their insurance in the past 12 months, 17% (10% of all insured adults) say that as a result of those problems they experienced a significant delay in receiving needed care, while a similar share (17%, or 10% of all insured) say they were unable to receive the recommended care at all. One in six (15%, or 9% of all insured) say they experienced a decline in health status as a direct result of their insurance problem. Notably, among those who had a problem with their insurance in the past year, about one in five (22%) adults with a Marketplace plan and one in four (26%) Medicaid enrollees say they were unable to get medical treatment recommended by a provider as a direct result of their health insurance problems.

Problems with health insurance can also lead to unexpected costs – 28% of insured adults who had a problem with their insurance (16% of all insured) say they ended up paying more for treatment or services than they expected as a direct result of those problems. Among those who had a problem with their health insurance, about one-third of adults with ESI (33%) or with Marketplace coverage (35%) say they ended up paying more than they expected as a direct result of those problems. Among those who paid more for treatment or services due to health insurance problems, 56% said the amount they had to pay as a result was less than $500, while 39% had to pay $500 or more.

Insurance Problems Can Lead To Unexpected Costs, Delayed Or Missed Medical Care, And Negative Health Outcomes

Insurance Experiences of Consumers With Mental Health Needs

KFF’s Survey of Consumer Experiences with Health Insurance finds that many insured adults report problems accessing mental health care – including larger shares of those who say their mental health is “fair” or “poor” and are most in need of these services.

Many insured adults report problems with access to mental health services, including notable shares of adults who describe their mental health as either “fair” or “poor.” Younger adults, women, and Black and Hispanic insured adults disproportionately report being in fair or poor mental health, as do more than one in three Medicaid enrollees (36%), one in five Marketplace enrollees (20%), and 16% of those with ESI coverage. Adults with Medicare – most of whom are over the age of 65 – are less likely to report being in fair or poor mental health.

Additionally, about one in five (22%) insured adults say they have sought medical treatment or taken prescription medication for a mental health condition such as depression or anxiety in the past year, including about a third of Medicaid enrollees (35%) and nearly half of those who say their mental health is “fair” or “poor” (46%). Because of the eligibility pathways for Medicaid – including being disabled with a mental illness – it is not unexpected to see self-reported ratings for mental health and emotional well-being poorer than for other types of coverage.

About One In Five Insured Adults Describe Their Mental Health As Fair Or Poor, Including More Than A Third Of Medicaid Enrollees

Overall, about four in ten insured adults give their plans positive ratings for the availability of mental health providers covered and the quality of mental health providers available. About one in five insured adults (19%) rate their insurance negatively when it comes to the availability of mental health providers while about one in six (16%) give negative ratings when it comes to the quality of mental health. About four in ten insured adults say it doesn’t apply to them, presumably because they haven’t tried to access mental health services.

About One In Five Insured Adults Rate Their Insurance Negatively When It Comes To The Availability Of Mental Health Providers

Given that many insured adults don’t attempt to access mental health services, it is useful to examine impressions of mental health coverage among those with greater mental health needs. When looking at those who describe their own mental health as “fair” or “poor,” we find much higher shares giving their insurance negative ratings for the quality and availability of mental health providers. Nearly half (45%) of insured adults who describe their own mental health as fair or poor give their plan a negative rating for the availability of mental health therapists and professionals, including a majority of those who have Marketplace coverage (56%). In addition, more than one-third (37%) of insured adults in fair or poor mental health give a negative rating to the quality of mental health providers available under their plan, including four in ten Medicaid enrollees (41%) and those with Marketplace coverage (41%).

Notable Shares Of Adults With Fair Or Poor Mental Health Rate The Availability And Quality Of Mental Health Providers Under Their Insurance Negatively

When asked more specifically about seeking mental health care or treatment, one in ten insured adults say there was a time in the past twelve months when a particular mental health therapist or treatment they needed was not covered by their insurance – rising to one in five (19%) among those who rate their mental health as fair or poor – including similar shares of those with Medicaid (22%), ESI (19%), and Marketplace coverage (18%) and one in eight (13%) people with Medicare.

More broadly, among all insured adults, about one in six (17%) say that there was a time in the past year when they thought they might need mental health services or medication but didn’t get them. This includes one in four Medicaid enrollees (27%), one in seven insured adults with Marketplace coverage (18%) or ESI coverage (17%), and fewer than one in ten (7%) adults with Medicare.

Notably, at least four in ten insured adults (43%) who describe their mental health as either fair or poor say there was a time in the past year when they thought they might need mental health services or medication but didn’t get them for any reason, including more than four in ten of those with ESI (46%), Marketplace (45%), and Medicaid coverage (44%). Medicare beneficiaries with fair or poor mental health are somewhat less likely to report forgoing needed mental health care (27%).

About a third (31%) of insured adults under age 30, and about a quarter (23%) of those ages 30 to 49 say there was a time in the past 12 months when they thought they might need mental health care but did not get it, whereas just one in ten adults between the ages of 50 and 64 say the same. Even among insured adults who describe their mental health as “fair” or “poor”, those between the ages of 50 and 64 are less likely than adults under the age of 30 to say there was a time in the past year when they needed mental health care but did not get it (32% vs. 55%). Insured Hispanic adults are more likely than White adults to say they experienced this problem (21% vs. 15%) and women are nearly twice as likely as men to say they experienced this (21% vs 11%).

Four In Ten Adults With Fair Or Poor Mental Health Say They Did Not Get Needed Mental Health Services In The Past Year

There are many reasons insured adults cite for going without needed mental health services or medication: just under half (47%) of those who skipped such care say they were too busy or could not get time off work or school, 44% say they couldn’t find a provider they trust, 36% say they didn’t know how to find care, and 34% say they were afraid or embarrassed to seek care. But insurance was a factor for many. More than four in ten said they didn’t get needed mental health care because they couldn’t afford the cost (44%) or find a provider that was easy for them to get to for an in-person visit (42%). Just over a third of those who didn’t get mental health care say it was because their insurance wouldn’t cover it (37%).

Affordability Concerns with Health Insurance

Most insured adults rate their health insurance as “excellent” or “good” when it comes to their prescription co-pays (61%), their monthly premiums (54%) and the amount they have to pay out of pocket to see a doctor (53%). Yet, at least a third rate their insurance as “fair” or “poor” on each of these metrics, and affordability ratings vary depending on the type of coverage people have.

About half of those with ESI and Marketplace coverage rate their plan as either “fair” or “poor” when it comes to their monthly premium (46% and 55%, respectively), and the amount they have to pay out of pocket to see a doctor (50% and 55%, respectively). About a third (35%) of those with ESI and four in ten (43%) of those with Marketplace coverage give a negative rating to their prescription co-pays. About one in four adults with Medicare give negative ratings to the amount they have to pay each month for insurance and to their out-of-pocket prescription costs, while about one in five give their insurance a negative rating when it comes to their out-of-pocket costs to see a doctor.

Smaller shares of Medicaid enrollees give negative ratings to these dimensions of their health insurance. Medicaid does not charge monthly premiums in most states, and copays for covered services, where applied, are required to be nominal.

Most Adults With Marketplace Coverage Rate Their Insurance Negatively When It Comes To Premiums and Out-Of-Pocket Costs To See A Doctor

One In Six Insured Adults Report Problems Paying Medical Bills, Including One-Third Of Those In Fair Or Poor Health

Overall, one in six insured adults (16%) say they have had problems paying or an inability to pay for medical bills in the past year, including similar shares of adults with Marketplace coverage (19%), ESI (17%), and Medicaid (16%). Adults with Medicare are less likely than those with Marketplace coverage or ESI to report issues affording medical bills in the past year (12%).

Lower-income adults in general are more likely than those with higher incomes to report difficulty paying medical bills. For insured adults with annual household incomes below 138% of the federal poverty level ($20,120 for a single person, $34,307 for a family of 3) – the eligibility threshold to qualify for Medicaid in those states that have expanded the program under the ACA — about a quarter (23%) say they had problems paying medical bills in the past year, as do a similar share of those with household incomes between 138% and 199% FPL (22%). Comparably, just under one in ten (8%) adults with incomes over 400% FPL say they have had problems paying or an inability to pay for medical bills in the past 12 months.

Additionally, insured adults who describe their physical health as either “fair” or “poor” are more than twice as likely as those with at least “good” physical health to say they have had problems paying medical bills in the past year. Insured women are more likely than men to report problems paying medical bills (20% vs. 11%), and Black adults are more likely than White adults to report problems paying or an inability to pay medical bills (23% vs. 14%).

One In Six Insured Adults Report Problems Paying Medical Bills In The Past Year, Including A Third Of Those In Fair Or Poor Physical Health

Problems paying medical bills are particularly notable among lower-income adults with private plans. For those with household incomes below 200% FPL, three in ten adults with ESI (31%) and a quarter of adults with Marketplace plans (24%) say they have had problems paying medical bills in the past year.

Among Adults With ESI Or Marketplace Coverage, Those With Lower Incomes Are More Likely To Report Problems Paying Medical Bills

Among the 16% of insured adults who had problems paying or an inability to pay medical bills in the past year, nearly eight in ten (77%, or 12% of all insured adults) cite the cost of copays or deductibles being more than they could afford as a reason they had problems paying these bills. Among the other reasons cited, about six in ten (57%, 9% of all insured) say the bill was for care or services that their insurance didn’t cover, just under half (46%, 7% of all insured) say they received care from an out-of-network doctor or facility and their insurance either didn’t cover it or only covered a portion, and four in ten (39%, 6% of all insured adults) say they submitted a claim to their insurance but the claim was denied.

Four In Ten Insured Adults Face Cost Barriers To Care

Overall, 41% of insured adults say they have delayed or gone without some form of medical, dental, vision, or hearing care due to cost in the past 12 months. About one in six insured adults (14%) say they have delayed or gone without a visit to a doctor’s office in the past year because of the cost, including similar shares of those with ESI (17%) and Marketplace coverage (18%). Smaller shares among those with Medicaid (10%) and Medicare (5%) report skipping or delaying a doctor’s visit due to cost in the past year. At least one in ten across insurance types report delaying or not filling a prescription due to cost.

Certain other health care services such as dental, vision, or hearing care are often not included as part of health insurance coverage. Across coverage types, at least one in four report cost barriers to accessing dental care in the past year, including about four in ten of those with Medicaid (39%) and Marketplace coverage (37%) and a quarter of those with ESI (25%) and Medicare (26%). Smaller but still important shares report delaying or going without hearing or vision care due to costs.

In total, about four in ten insured adults say they have delayed or gone without a visit to the doctor’s office, vision services, hearing services, prescription drugs or dental care within the last year because of the cost, including half of those with Marketplace coverage and half of Medicaid enrollees. Delayed or skipped care could be due to the cost of having to pay for the deductibles or copays, or the out-of-pocket cost for care not covered by insurance at all.

Half Of Medicaid Enrollees And Those With Marketplace Coverage Report Delaying Or Going Without Some Type Of Health Care Due To Cost In the Past Year

Most Insured Adults Support Public Policies To Make Insurance Work Better for People

The KFF Survey of Consumer Experiences with Health Insurance asked about several public policies that might help people avoid insurance problems or resolve them more easily and found broad support for each, including large majorities across insurance types and across partisans. The survey did not probe trade-offs that might be involved in changing how measures like these are implemented, including additional administrative costs.

Simple, easy-to-read EOBs – Nearly all insured adults (94%) support requiring health insurance statements (explanations of benefits, known as EOBs) to be written in simple, easy-to-read language that explains the reasons for coverage decisions and how to appeal if one disagrees. Federal law has long required that EOBs for private health plans be written “in a manner calculated to be understood by the claimant.” Medicare Advantage plans and Medicare Part D plans and Medicaid managed care plans also are required to provide EOBs that are easily understandable to enrollees.

Accurate provider network directories – About nine in ten insured adults also support government policy to require health insurers to provide accurate and up-to-date information about who is in their network. In 2021, Congress passed a law applying this requirement to private health plans, though this requirement has not yet been implemented. Medicare and Medicaid both require private health plans delivering these benefits to provide consumers with accurate information about their provider networks. Extensive provider directory inaccuracy problems have been documented across the coverage types. This year CMS issued a new proposed regulation that would establish national appointment wait time standards and require states to use secret shopper surveys to determine the accuracy of provider directory information in Medicaid managed care plans

Advanced EOB – Nine in ten insured adults also support requiring health insurance companies to tell people in advance (upon request) if a service they need is covered and, if so, how much they would be required to pay out-of-pocket. In 2021, Congress passed a law applying this requirement to private health plans, though this requirement has not yet been implemented.

Disclosure of claims denial rates – More than eight in ten (85%) insured adults support a requirement for health insurance to tell regulators how often they deny claims and to disclose that denial rate to consumers. Though this disclosure is required by the Affordable Care Act, this requirement remains largely unimplemented. The Inspector General has recommended that Medicare Advantage plans be required to definitively identify and report on denials. Federal rules require states to have systems in place to conduct oversight of Medicaid managed care plans generally, but do not require data reporting on claims denials.

Most Insured Adults Support Policies Requiring More Transparency In Health Insurance Information

Consumer Assistance/ombudsman programs – Additionally, the survey also described free consumer assistance programs (CAPs) – operating in some states to help people file appeals and resolve problems with their health insurance – and asked how likely insured adults would be to use this type of program. Nearly eight in ten said they would be very (36%) or somewhat (43%) likely to use such a program. Notably, close to half of Black (46%) and Hispanic (45%) insured adults say they would be very likely to use a CAP program. Federal law authorized the establishment of these programs in every state, but Congress has not provided funding for CAPs since 2010 and some that were initially established have since closed. Where such programs do exist, consumers appear to be largely unaware of them. Only 3% of consumers who reported having insurance problems in the past year said they contacted a CAP for help.

Black And Hispanic Insured Adults Are More Likely Than White Adults To Consider Using Free Consumer Assistance Programs

Discussion

In the U.S., health insurance is the way people generally get access to health care. Having coverage is valuable to people, and so not surprisingly, most who have it rate it favorably overall. But we don’t buy health insurance in case we stay healthy, so monitoring how coverage works for people who are sick is particularly important in gauging how well our health insurance system works when people need it the most. The KFF Survey of Consumer Experiences with Health Insurance finds that most consumers experience problems when they try to use their coverage – related to denied or mishandled claims, provider network issues, pre-authorization requirements and others. Among high utilizers of health care, and people who use mental health care, about three in four people experience problems with their insurance.

The types of problems people experience vary depending on the type of coverage they have. For example, people in Marketplace and Medicaid are more likely to experience provider network problems compared to people with traditional Medicare. People with Marketplace and ESI coverage more often experience claims denials than people with public coverage, though Medicaid enrollees report problems with pre-authorization denials more often than consumers with any other type of coverage. In addition, affordability of health insurance premiums and out-of-pocket costs is a particular concern for people with private (ESI and Marketplace) coverage. In follow up reports, we will delve deeper into experiences of consumers, especially those with serious and chronic health conditions, by coverage and problem type.

Challenges using health insurance are particularly acute for those who describe their mental health as “fair” or “poor,” with 45% rating their coverage negatively for the availability of mental health providers. Also, a sizable share (37%) of this population, who said that they did not get needed mental health care in the last year, say it was because their insurance did not cover the care. At a time when most US adults say mental health is a crisis in the U.S., such insurance barriers to mental health care are cause for concern.

We also find most consumers struggle to understand their health insurance – many have difficulty understanding what their insurance covers, what they’ll owe out of pocket, how to find information on network providers, and what their EOB says. This is not merely a matter of education as large shares of insured adults with college degrees also report difficulty understanding aspects of their insurance.

People who encounter problems using their insurance often can’t fix them. About half of consumers with problems said they were able to resolve the problem to their satisfaction. One in six consumers who experienced health insurance problems in the past year said they were not able to access recommended care as a direct result; one in six also said their health status declined as a direct result; and about one in four said they ended up paying more out of pocket for care. Most consumers (60%) don’t understand they have legal rights when problems arise, and most (76%) do not know what government agency to call if they need help.

Over the years, Congress has enacted a number of measures to make health insurance more understandable and easier to navigate, and to hold health insurers and public programs accountable for the coverage they promise. These measures, not surprisingly, attract broad support among the public. How government administers these protections, including those that are yet to be implemented, is a key consideration. Alone, these measures are unlikely to eliminate all the problems people encounter with health insurance, especially those related to affordability, but they may help to reduce somewhat the dizzying complexity of health insurance in the U.S. And they may inform oversight so that regulators can better monitor how well insurance works when people need to use it. At the same time, stronger oversight and accountability could entail more administrative costs – a trade-off we did not probe in this survey.

This work was supported in part by a grant from the Robert Wood Johnson Foundation. The views and analysis contained here do not necessarily reflect the views of the Foundation. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

Methodology

This KFF Survey of Consumer Experiences with Health Insurance was designed and analyzed by public opinion researchers at KFF. The survey was designed to reach a representative sample of insured adults in the U.S. The survey was conducted February 21 – March 14, 2023, online and by telephone among a nationally representative sample of 3,605 U.S. adults who have employer sponsored insurance plans (978), Medicaid (815), Medicare (885), Marketplace plans (880), or a Military plan (47).

The sample includes 2,595 insured adults reached through the SSRS Opinion Panel either online or over the phone (n=75 in Spanish). The SSRS Opinion Panel is a nationally representative probability-based panel where panel members are recruited randomly in one of two ways: (a) Through invitations mailed to respondents randomly sampled from an Address-Based Sample (ABS) provided by Marketing Systems Groups (MSG) through the U.S. Postal Service’s Computerized Delivery Sequence (CDS); (b) from a dual-frame random digit dial (RDD) sample provided by MSG. For the online panel component, invitations were sent to panel members by email followed by up to three reminder emails. 2,500 panel members completed the survey online and panel members who do not use the internet were reached by phone (95). Another 504 respondents were reached online through the Ipsos Knowledge Panel. This panel is recruited using ABS, based on a stratified sample from the CDS.

Another 289 (n=10 in Spanish) interviews were conducted from a random digit dial (RDD) of prepaid cell phone numbers (n=190) and landline telephone numbers (n=99). Phone numbers used for the prepaid cell phone component were randomly generated from a cell phone sampling frame with disproportionate stratification aimed at reaching Hispanic and non-Hispanic Black respondents. Stratification for the prepaid cell phone sample was based on incidence of the race/ethnicity groups within each frame. Phone numbers for the landline component were randomly generated from a landline sampling frame utilizing MSG’s listed household sampling frame to identify households with an adult age 65 or older and therefore more likely to have Medicare. This landline sample was also disproportionately stratified to reach African American and Hispanic respondents. An additional 217 respondents were reached by calling back respondents who said they were insured in previous KFF probability-based polls. Respondents in the phone samples received a $10 incentive via a check received by mail. SSRS web respondents received a $5 electronic gift card incentive (some harder-to-reach groups received a $10 electronic gift card). Ipsos Knowledge Panel respondents were included in raffles and sweepstakes for cash prizes as appreciation for their participation.

Respondents with Employer-sponsored plans, Medicaid, Medicare, and Marketplace plans from the combined phone and panel samples were weighted separately to match each group’s demographics using data from the 2021 American Community Survey (ACS). Weighting parameters included gender, age, education, race/ethnicity, and region. The weights take into account differences in the probability of selection for each sample type (cellphone sample, landline sample, callback phone sample, and panel). This includes adjustment for the sample design, within household probability of selection, and the design of the panel-recruitment procedure. The total sample of insured adults was also weighted to match demographics of insured adults using data from the 2021 American Community Survey (ACS).

The margin of sampling error including the design effect for the full sample is plus or minus 2 percentage points. Numbers of respondents and margins of sampling error for key subgroups are shown in the table below. For results based on other subgroups, the margin of sampling error may be higher. Sample sizes and margins of sampling error for other subgroups are available by request. Sampling error is only one of many potential sources of error and there may be other unmeasured error in this or any other public opinion poll. KFF public opinion and survey research is a charter member of the Transparency Initiative of the American Association for Public Opinion Research.

This work was supported in part by the Robert Wood Johnson Foundation. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

GroupN (unweighted)M.O.S.E.
Total insured adults3,605± 2 percentage points
Employer Sponsored978± 4 percentage points
Medicaid815± 5 percentage points
Medicare885± 4 percentage points
Marketplace880± 4 percentage points

Appendix

The KFF Survey of Consumer Experiences with Health Insurance interviewed adults with Employer-sponsored, Marketplace, Medicare and Medicaid health insurance coverage. The demographics of these insured populations differ, which is important context for understanding the findings in this report. For example, adults with employer-sponsored insurance (ESI) are higher income and generally healthier, whereas Medicaid enrollees tend to be younger, more female, have lower incomes, and are more likely to describe their health as “fair” or “poor.” Those with Marketplace coverage have mixed income levels and are generally healthy while adults with Medicare also have mixed income levels, but are mainly over the age of 65.

Demographics Of Insured Adults By Insurance Type
News Release

KFF Survey Shows Complexity, Red Tape, Denials, Confusion Rivals Affordability as a Problem for Insured Consumers, With Some Saying It Caused Them to Go Without or Delay Care

Most Consumers Across Types of Insurance Had a Problem with Their Coverage in the Past Year, Including About Three-Quarters of Those Who Used a Lot of Care or Received Mental Health Services

Published: Jun 15, 2023

Most (58%) people with health insurance say they encountered at least one problem using their coverage in the past year, with even larger shares of people with the greatest health care needs reporting such problems, finds a new KFF survey of consumer experiences with health insurance.

Such problems vary across types of insurance but include such things as denied claims for care they thought was covered, difficulty finding an in-network doctor or other provider, and delays and denials of care that involved an insurer’s prior authorization. 

At least half within each of four major types of health coverage – employer, Medicaid, the Affordable Care Act’s marketplace, and Medicare – say they had a problem using their coverage in the past year. 

Such problems are more common among people with greater health care needs. For example:

  • Two-thirds (67%) of consumers who rate their own health as “fair” or “poor” encountered a problem in the past year.
  • About three-quarters (74%) of those who received mental health treatment in the past year reported a problem.
  • More than three-quarters (78%) of those who received a lot of health care (more than 10 provider visits in the past year) reported a problem.

“The survey shows that the sheer complexity of insurance is as big a problem as affordability, particularly for those with the greatest needs,” KFF President and CEO Drew Altman said. “People report an obstacle course of claims denials, limited in-network providers, and a labyrinth of red tape, with many saying it prevented them from getting needed care.”

Today’s report captures key results from the nationally representative survey of 3,605 people with health coverage through an employer, Medicare, Medicaid or the Affordable Care Act’s marketplaces. Future reports will delve more deeply into the experiences of people with those types of coverage, as well as people with specific chronic conditions and needs across types of insurance.

The frequency that people encounter specific insurance problems varies by type of coverage. For example, people with employer and marketplace coverage report denied claims more often than people with Medicare or Medicaid, and people with Medicaid and marketplace coverage more often report problems finding in-network providers.

Insurance problems can contribute to unexpected costs, with more than a quarter (28%) of those who reported problems saying they had to pay more for their care as a result. This includes about a third of those with marketplace or employer coverage who reported problems in the past year.

Among those who reported recent insurance problems, half say they were able to resolve the issue to their satisfaction, while nearly as many say either that the issue had been resolved in a way they didn’t like (28%) or that it remained unresolved (19%). Most insured adults (60%) do not know they have appeal rights by law, and three quarters (76%) do not know what government agency to call for help dealing with their insurance.

Consumers’ insurance problems can affect their ability to get timely, needed care. Among those with recent problems, about one in six say that they were not able to get recommended care (17%), they faced a significant delay in receiving such care (17%), or their health declined (15%) as a direct result.

About half (51%) of insured adults report some difficulty understanding at least one aspect of their health insurance, such as what their insurance will cover (36%), what they will owe out-of-pocket for care (30%), or what their explanation of benefits statement means (30%). About a quarter say that they find it difficult to understand terms such as “deductible” or “copay” (25%) and to figure out which doctors, hospitals and other providers are in network (23%).

People with Mental Health Challenges Have More Problems

The report also probes the challenges facing insured people who rate their mental health as fair or poor, regardless of whether they sought or obtained mental health treatment. This includes about one in five of all people with insurance, and one in three of those with Medicaid coverage.

Substantial shares of enrollees in this group rate the availability (45%) and quality (37%) of mental health therapists and providers covered by their insurance as “fair” or “poor.” 

Among those who say their own mental health is fair or poor, 43% say that there was a time in the past year when they did not get needed mental health care. Among young adults under age 30 who describe their mental health as fair or poor, more than half (55%) say they did not get needed mental health care in the past year.

People cite various reasons for not getting needed mental health care, but insurance was a factor for many.  Among all insured adults who didn’t get needed mental health care, more than four in 10 (44%) say they couldn’t afford the cost, and more than a third say it was because their insurance wouldn’t cover it. 

  • One in six (16%) of all insured people say they have had problems paying or an inability to pay for medical bills in the past year, including similar shares of those with marketplace (19%), employer (17%), and Medicaid (16%) coverage, as well as 12 percent of people with Medicare.
  • Premiums also can be an issue for consumers, particularly for those with employer and marketplace plans.  About half of those with marketplace or employer coverage give their insurance plan low marks for the amount that they pay in premiums and the amount they pay out-of-pocket to see a doctor. Far fewer of those with Medicare or Medicaid rate those aspects of their coverage negatively.
  • In spite of the problems people report using their insurance, a large majority (81%) give “excellent” or “good” ratings when asked to rate their insurance overall. 
  • Large majorities of consumers with insurance say they would support requirements on insurers that could make it easier to avoid or resolve insurance problems. These include requirements to maintain accurate and up-to-date information about who is in their network (91%) and to provide simpler, easier-to read statements explaining coverage decisions and how to appeal if you disagree (94%), all of which have been enacted by Congress though not all have been implemented.   

Designed and analyzed by public opinion researchers at KFF, the KFF Survey of Consumers Experiences with Health Insurance was conducted February 21-March 14, 2023, online and by telephone among a representative sample of 3,605 adults in the U.S. with health insurance coverage, including 978 adults with employer-sponsored insurance, 815 adults with Medicaid coverage, 885 adults with Medicare, and 880 adults with marketplace insurance. Interviews were conducted in English and in Spanish. The margin of sampling error is plus or minus 2 percentage points for the full sample. For results based on subgroups, the margin of sampling error may be higher. 

A Focus on Contraception in the Wake of Dobbs

Published: Jun 13, 2023

The reproductive health landscape in the United States changed dramatically following the Supreme Court ruling in Dobbs v. Jackson Women’s Health Organization, which overturned Roe v. Wade. In the wake of this ground-shaking decision, Alina Salganicoff and Usha Ranji discuss the intersection of the new limits on abortion with ongoing gaps in contraceptive care. In this commentary for Women’s Health Issues, a publication of the Jacobs Institute of Women’s Health, KFF experts discuss contraceptive coverage and financing policies, access points within the delivery system, and the role of mis- and disinformation.

News Release

Walgreens and KFF’s Greater Than HIV Team Up with Community Partners to Provide Free, Confidential HIV Testing and Counseling on National HIV Testing Day (June 27)

Largest HIV testing event in the United States increases access and supports a more coordinated, re-energized response to HIV

Published: Jun 13, 2023

DEERFIELD, Ill. & SAN FRANCISCO, June 13, 2023 – Walgreens is teaming up with Greater Than HIV, a public information initiative of KFF, along with health departments and community organizations, to provide free HIV testing and counseling as part of the largest National HIV Testing Day event in the nation. Hundreds of local health departments and community organizations will be at more than 400 Walgreens stores offering free, confidential and fast HIV test results. 

“This unique community-led effort brings people together in a familiar setting to receive a free HIV test, get the latest on HIV prevention and treatment and connect with local services,” said Tina Hoff, senior vice president, KFF. “Our Greater Than HIV and Walgreens National HIV Community Partnership provides a great opportunity to help people know their HIV status and take action to protect their health.” 

Click here for a list of participating Walgreens stores and hours to get a free HIV test on Tuesday, June 27. Counselors will be available to answer questions about HIV prevention and treatment options, and provide referrals for PrEP (pre-exposure prophylaxis), FDA-approved medications that are highly effective in preventing HIV. HIV test manufacturers, Abbott, BioLytical Laboratories, Inc., Chembio Diagnostics, Inc. and OraSure Technologies, Inc., donated rapid tests to support the activation. 

“Each year on National HIV Testing Day, Walgreens teams up with Greater Than HIV, KFF’s public information initiative, and community partners to provide free and confidential HIV testing and counseling at hundreds of Walgreens locations, especially in areas disproportionately impacted by HIV,” said Rick Gates, chief pharmacy officer, Walgreens. “This program builds on our local and national initiatives to reach people in community-settings so that HIV prevention and treatment options are more equitable, accessible and convenient.” 

KFF’s Greater Than HIV and Walgreens National HIV Community Partnership is an ongoing commitment to work with local health departments and community organizations to expand HIV testing and information through non-traditional settings. Since 2011, the partnership has provided more than 76,000 free HIV tests, including over 15,000 self-tests provided during the height of the COVID-19 pandemic.

Walgreens is committed to expanding testing as a critical component in ending the HIV epidemic, helping to inform individuals if they should be linked to HIV treatment services or if they qualify for PrEP. All of these tools help to prevent further transmission of HIV.

In addition to providing services to help prevent and treat HIV, Walgreens invests in training its pharmacy team members to address the specific challenges faced by people living with HIV. More than 3,000 Walgreens pharmacists are specially trained to offer one-on-one, confidential and stigma-free HIV care including medication counseling, information on prevention options and how to apply for financial assistance programs.

About Walgreens 

Walgreens (www.walgreens.com) is included in the U.S. Retail Pharmacy and U.S. Healthcare segments of Walgreens Boots Alliance, Inc. (Nasdaq: WBA), an integrated healthcare, pharmacy and retail leader with a 170-year heritage of caring for communities. WBA’s purpose is to create more joyful lives through better health. Operating nearly 9,000 retail locations across America, Puerto Rico and the U.S. Virgin Islands, Walgreens is proud to be a neighborhood health destination serving nearly 10 million customers each day. Walgreens pharmacists play a critical role in the U.S. healthcare system by providing a wide range of pharmacy and healthcare services, including those that drive equitable access to care for the nation’s underserved populations. To best meet the needs of customers and patients, Walgreens offers a true omnichannel experience, with fully integrated physical and digital platforms supported by the latest technology to deliver high-quality products and services in communities nationwide. 

About KFFKFF is the independent source for health policy research, polling, and journalism. Its mission is to serve as a nonpartisan source of information for policymakers, the media, the health policy community, and the public.  

KFF’s Greater Than HIV initiative is a leading public information response focused on HIV in the U.S. Through localized Greater Than HIV campaigns, KFF works with health departments and community partners to reach those most affected and in need with the latest on testing, prevention and treatment. This public-private partnership model helps extend the reach of limited resources in high need areas.

Employment Among Immigrants and Implications for Health and Health Care

Published: Jun 12, 2023

Introduction

Immigrants are an integral part of our nation, including our nation’s workforce. Immigrants support the U.S. economy and its workforce by filling unmet labor market needs, especially in industries such as construction and agriculture that are at increased risk of adverse health outcomes and injuries, including climate-related health hazards.1 ,2  Through entrepreneurship and establishment of businesses, immigrants also create jobs that generate employment for other U.S. residents, including U.S.-born citizens.3  However, their employment patterns contribute to them having higher uninsured rates and facing increased health risks relative to their U.S.-born peers.4  While their employment patterns, in part, reflect lower educational attainment levels and skills among immigrant workers versus U.S.-born workers, research and data suggest that some immigrant workers may be overqualified for their jobs—that is having education or skills beyond what is necessary for their job.5 ,6  Addressing this occupational mismatch could help reduce disparities in health and health care faced by immigrant families and positively benefit the U.S. economy.

This brief examines socioeconomic characteristics and employment patterns among immigrant workers and examines how they compare to U.S.-born workers, including differences among college-educated workers. It discusses the implications of these patterns for their health and well-being as well as the nation’s economy. It is based on KFF analysis of the 2022 Current Population Survey Annual Social and Economic Supplement. The analysis is limited to nonelderly adult workers between ages 19-64 who are employed either full-time or part-time in the U.S. labor force. All differences between U.S.-born and immigrant workers described in the text are statistically significant at the p<0.05 level. In sum, it finds:

  • In 2021, there were 27 million immigrants employed in the labor force, making up close to one in five (17%) nonelderly adult workers (ages 19-64) in the U.S. The share of nonelderly adults who were employed was similar across U.S.-born citizens (78%), naturalized citizens (79%), and noncitizens in the U.S. for five or more years (76%), while it was 63% among recent noncitizens (in the U.S. for less than five years). Compared to their U.S.-born counterparts, nonelderly adult immigrant workers were more likely to be Hispanic or Asian, were younger, and had lower levels of educational attainment.
  • Among nonelderly adults, noncitizen workers were more likely than citizen workers to be employed in construction, agricultural, and service jobs. While some of these differences in occupation patterns likely reflect lower educational levels and skills among immigrant workers, differences in occupations persisted among college-educated workers. One in ten noncitizen workers with a college degree were employed in service jobs, compared with 6% of their U.S.-born peers. College-educated noncitizen workers were also more likely than their citizen counterparts to be employed in construction and transportation jobs.
  • Reflecting these differences in employment patterns, noncitizen workers were more likely than citizen workers to be low-income and uninsured, even among those with college degrees. Roughly one in three noncitizen workers was low-income (below 200% of the federal poverty level (FPL)), compared with 15% of U.S.-born workers. In addition, over three in ten nonelderly adult noncitizen workers lacked health insurance, over three times higher than the uninsured rate of their citizen counterparts, reflecting lower rates of private coverage. Incomes and coverage rates were higher among college-educated workers across citizenship statuses, but, among college-educated nonelderly adult workers, noncitizens still were more likely to be low-income and uninsured than their citizen counterparts.

Immigrant Worker Characteristics

In 2021, there were 27 million immigrants employed in the labor force, making up close to one in five (17%) nonelderly adult workers in the U.S. Roughly 8% of nonelderly workers were naturalized citizens and 9% were noncitizens, the majority of whom had been in the U.S. for five or more years (Figure 1). The share of nonelderly adults (ages 19-64) who were employed on either a full- or part-time basis was similar across U.S.-born citizens (78%), naturalized citizens (79%), and noncitizens in the U.S. for five or more years (76%), while it was 63% among recent noncitizens.

Nonelderly Adult Workers by Citizenship Status, 2021

Compared to their U.S.-born counterparts, nonelderly adult immigrant workers were more likely to be Hispanic or Asian, were younger, and had lower levels of educational attainment (Figure 2).

  • Among nonelderly adult workers, both naturalized citizens and noncitizen immigrants included higher shares of Hispanic and Asian adults compared to U.S.-born citizens, although the shares varied by citizenship status and length of time in the country. Over six in ten (62%) of noncitizen nonelderly adult workers in the U.S. for five years or more were Hispanic, while one in three (31%) naturalized citizens were Asian. Among more recent nonelderly noncitizen adult workers in the U.S. for less than five years, over half were Hispanic (53%) and one in five (21%) were Asian.
  • Recent noncitizen nonelderly adult workers had the largest share of younger workers, with over half (55%) between 19 and 34 years of age, while those who had been in the country for five or more years and naturalized citizens had the largest share of workers between ages 35-54 (57%). Naturalized citizen nonelderly adult workers were older compared to their U.S.-born and noncitizen counterparts, with a quarter between ages 55-64.
  • Roughly a quarter of noncitizen nonelderly adult workers had less than a high school education, compared to just 3% of their U.S.-born peers. However, similar proportions of nonelderly adult U.S.-born citizens (41%), naturalized citizens (47%), and recent noncitizens (44%) in the labor force had a bachelor’s degree or higher. In contrast, less than three in ten nonelderly adult noncitizen workers in the country for at least five years (29%) had at least a college degree. Research shows that an increasing number of immigrants who arrived in the U.S. in the last five years have a college degree, driven largely by an increase in the share of high-skilled immigrants arriving from Asian countries.7 
Selected Demographic Characteristics of Nonelderly Adult Workers by Citizenship Status, 2022

Occupations Among Immigrant Workers

Among nonelderly adults, noncitizen workers were more likely than citizen workers to be employed in construction, agricultural, and service jobs. Noncitizen workers were nearly three times as likely to be employed in construction jobs compared to naturalized and U.S. born citizen workers (14% vs. 5% and 4%, respectively) (Figure 3). Moreover, one in four (25%) noncitizen workers was employed in service jobs, such as food preparation and health care support, compared with 18% of naturalized citizen and 15% of U.S.-born citizen workers. Small shares of workers were employed in agriculture across citizenship statuses, but noncitizen workers were slightly more likely to be employed in these jobs than their citizen counterparts (2% vs. less than 1%), and they accounted for 18% of all agricultural workers. They also were more likely to be employed in production and transportation jobs compared with their citizen counterparts. Occupation patterns among naturalized citizen workers were more similar to U.S.-born citizen workers, although they were more likely than their U.S.-born peers to be employed in service jobs.

Employment Among Nonelderly Adult Workers in Selected Occupations by Citizenship Status, 2022

While some of these differences in occupation patterns likely reflect lower educational levels and skills among immigrant workers compared with U.S.-born workers, differences in occupations persisted among workers with a college degree. Among nonelderly adult workers with a bachelor’s degree or higher, nearly half of workers were employed in professional occupations, such as accounting, engineering, and legal services, across citizenship statuses. However, one in ten noncitizen workers with a bachelor’s degree or higher were employed in service jobs such as food preparation and health care support, compared with 6% and 7% of their U.S.-born and naturalized citizen peers (Figure 4). College-educated noncitizen workers were also more likely than their citizen counterparts to be employed in construction and transportation jobs. There were no significant differences in employment in these occupations between naturalized and U.S.-born college-educated workers, although naturalized citizens were less likely than U.S-born citizens to be in management occupations (26% vs. 29%).

Employment Among College-Educated Nonelderly Adult Workers in Selected Occupations by Citizenship Status, 2022

Income and Health Coverage among Immigrant Workers

Reflecting these differences in employment patterns, noncitizen workers were more likely than citizen workers to be low-income (income below 200% of the FPL). Nearly one in three (31%) noncitizen workers in the country for five or more years was low-income, including one in ten (9%) who had incomes below poverty (Figure 5). This share was 38% among recent noncitizen workers in the country for less than five years, including 16% with incomes below the poverty level. In contrast, 15% of U.S.-born workers were low-income, with 4% having incomes below poverty.

Incomes were higher among college-educated workers across citizenship statuses, but, among college-educated nonelderly adult workers, noncitizens were still more likely to be low-income than their citizen counterparts. Over one in ten (11%) college-educated noncitizen workers in the country for five or more years were low-income, with this share rising to 24% among college-educated recent noncitizen workers, including 10% who had incomes below the poverty level (Figure 5). In contrast, 5% of college-educated U.S.-born citizen workers were low-income, with just 1% having income below poverty.

Income among Nonederly Adult Workers by Citizenship Status, 2021

Noncitizen nonelderly adult workers were also more likely than their citizen counterparts to be uninsured, even among those with college educations (Figure 6). Over three in ten nonelderly adult noncitizen workers lacked health insurance, over three times higher than the uninsured rate of their citizen counterparts, reflecting lower rates of private coverage among these workers. While uninsured rates were lower among college-educated workers across citizenship statuses, these differences between citizens and noncitizens persisted. Among college educated nonelderly adult workers, noncitizens were more four times as likely to lack health coverage than U.S.-born workers, with more than one in ten uninsured compared with 3% of their U.S.-born peers. This share rose to 13% among recent noncitizen workers with a college education. Medicaid coverage does not fully offset the larger gaps in private coverage for noncitizen workers, likely reflecting Medicaid eligibility restrictions for noncitizen immigrants, particularly those in the country for less than five years and for those who are undocumented, who are ineligible for any federal coverage options.8 

Health Coverage among Nonederly Adult Workers by Citizenship Status, 2021

Implications for Immigrant Health and the U.S. Workforce

Noncitizen immigrant workers are disproportionately employed in occupations with lower wages that often do not offer employer-sponsored health coverage, contributing to higher poverty and uninsured rates. The occupations in which noncitizen immigrant workers are disproportionately employed, such as service, farming, and construction jobs, also have higher adverse health risks including but not limited to climate related health risks such as heat strokes and respiratory illnesses and workplace injuries.9 ,10  Undocumented immigrant workers may face even greater employment challenges due to lack of work authorization, which increases risk of potential workplace abuses, violations of wage and hour laws, and poor working as well as living conditions.11 

While some noncitizen immigrants are in lower-wage higher risk jobs due to limited experience, skills, and lack of work authorization, others may be overqualified for their positions, contributing to negative implications for immigrant families and the overall U.S. economy. This analysis finds that disparities in employment, income, and health coverage for noncitizen workers persisted among college-educated workers, suggesting some were employed in jobs for which they may be overqualified. While language barriers and work eligibility restrictions may explain part of this employment pattern, other factors such as time since immigration, age, and cultural obstacles may also play a role. Research suggests that immigrants with limited English proficiency, those who earned degrees in a country outside the U.S., and those who are recent or first-generation immigrants are more likely to experience underutilization of skills in the workplace.12  In addition, cultural barriers such as lack of familiarity with the U.S. labor market and lack of professional and social networks can also lead to this occupational mismatch. Beyond contributing to higher rates of poverty and uninsured rates among immigrants, this occupational mismatch can also have adverse impacts on mental health. Research suggests that working in jobs for which people may be overqualified can lead to lower rates of job as well as life satisfaction and declines in mental health.13 ,14  A shortage of immigrant workers, including those who are college-educated, can also have a negative impact on productivity, job creation, and can consequently slow down economic growth.15  Moreover, the employment of overqualified immigrants in low-skilled jobs contributes to forgone earnings as well as tax revenues.

Actions to increase job opportunities for immigrants that fully utilize their skills could not only improve the health and well-being of immigrants but also support the economy by helping to address the country’s unmet labor market needs. Broadening pathways for migrants to enter the U.S. to fill gaps in the labor force, improving the processing of applications for work visas and work authorization, recognizing credentials for immigrant professionals, and investing in English language training for recent immigrants could benefit the U.S. economy by helping immigrants find jobs that are an appropriate match for their educational background and training.16 , 17 , 18  These actions could also support the U.S. economy by helping to fill gaps in industries experiencing the greatest shortage of workers. These include lower-skilled occupations such as manufacturing and food services, but also higher-skilled occupations such as health, professional, and business services, especially following the labor force disruptions that resulted from the COVID-19 pandemic.19  As the U.S. continues to experience workforce shortages, it is important to fully utilize the skills and potential of immigrants who form a growing share of the country’s labor market not only as workers but also as job creators.

  1. The Brookings Institution (2022), “Who are the 1 million missing workers that could solve America’s labor shortages?”, https://www.brookings.edu/blog/up-front/2022/07/14/who-are-the-1-million-missing-workers-that-could-solve-americas-labor-shortages/, accessed April 5, 2023. ↩︎
  2. CNN (2022), “America needs immigrants to solve its labor shortage”, https://www.cnn.com/2022/12/22/economy/immigration-jobs/index.html, accessed April 5, 2023. ↩︎
  3. Northwestern University (2020), “Immigrants to the U.S. Create More Jobs than They Take”, https://insight.kellogg.northwestern.edu/article/immigrants-to-the-u-s-create-more-jobs-than-they-take, accessed April 5, 2023. ↩︎
  4. KFF (2022), “Health Coverage and Care of Immigrants”, https://modern.kff.org/racial-equity-and-health-policy/fact-sheet/health-coverage-and-care-of-immigrants/, accessed April 6, 2023. ↩︎
  5. Forbes (2019), “Foreign-Born Workers Are Often Overqualified”, https://www.forbes.com/sites/niallmccarthy/2019/01/17/foreign-born-workers-are-often-overqualified-infographic/?sh=6b5cb8c856e7, accessed April 5, 2023. ↩︎
  6. Migration Policy Institute (2016), “’Untapped Talent: The Costs of Brain Waste among Highly Skilled Immigrants in the United States”, https://www.migrationpolicy.org/sites/default/files/publications/BrainWaste-FULLREPORT-FINAL.pdf, accessed April 24, 2023. ↩︎
  7. Migration Policy Institute (2020), “College-Educated Immigrants in the United States”, https://www.migrationpolicy.org/article/college-educated-immigrants-united-states, accessed April 24, 2023. ↩︎
  8. University of Southern California (2023), “A Guide for Helping Immigrants and Refugees Access Health Services”, https://mphdegree.usc.edu/blog/health-insurance-for-immigrants/, accessed May 5, 2023. ↩︎
  9. The National Institute for Occupational Safety and Health (2023), “Occupational Safety and Health and Climate”, https://www.cdc.gov/niosh/topics/climate/default.html, accessed April 24, 2023. ↩︎
  10. U.S. Census Bureau (2017), “Workplace injuries, illnesses, and fatalities by occupation”, https://www.bls.gov/opub/ted/2017/workplace-injuries-illnesses-and-fatalities-by-occupation.htm, accessed April 24, 2023. ↩︎
  11. Economic Policy Institute (2020), “Federal labor standards enforcement in agriculture”, https://www.epi.org/publication/federal-labor-standards-enforcement-in-agriculture-data-reveal-the-biggest-violators-and-raise-new-questions-about-how-to-improve-and-target-efforts-to-protect-farmworkers/?mc_cid=28c0cb58c0&mc_eid=85f0a96990, accessed April 25, 2023. ↩︎
  12. Pivovarova, M., & Powers, J. M. (2022). Do immigrants experience labor market mismatch? New evidence from the US PIAAC. https://largescaleassessmentsineducation.springeropen.com/articles/10.1186/s40536-022-00127-7. Large-scale Assessments in Education, 10(1), 1-23. Accessed April 6, 2023. ↩︎
  13. Johnson, G. J., & Johnson, W. R. (2000). “Perceived overqualification and dimensions of job satisfaction: A longitudinal analysis.” The Journal of psychology, 134(5), 537-555. https://www.tandfonline.com/doi/abs/10.1080/00223980009598235, accessed April 25, 2023 ↩︎
  14. Chen, C., Smith, P., & Mustard, C. (2010). The prevalence of over-qualification and its association with health status among occupationally active new immigrants to Canada. https://www.tandfonline.com/doi/full/10.1080/13557858.2010.502591?casa_token=bQ_dvsNcQC8AAAAA%3A-6kg8LcCo1CiAijZv7zRYXfAjHjrPPAd5lInDqFuIW-5XH3-Jqe3F9L4k_lQpO15medsmfbhGwtlFA. Ethnicity & health, 15(6), 601-619. Accessed April 6, 2023 ↩︎
  15. Peri, G., & Zaiour, R. (2022). “Labor shortages and the immigration shortfall”, https://econofact.org/labor-shortages-and-the-immigration-shortfall, accessed April 18, 2023. ↩︎
  16. Migration Policy Institute (2022), “Unblocking the U.S. Immigration System: Executive Actions to Facilitate the Migration of Needed Workers”, https://www.migrationpolicy.org/sites/default/files/publications/mpi-global-skills-us-executive-actions-2023_final.pdf, accessed April 6, 2023. ↩︎
  17. Migration Policy Institute (2023), “What Role Can Immigration Play in Addressing Current and Future Labor Shortages?”, https://www.migrationpolicy.org/sites/default/files/publications/mpi-global-skills-labor-shortages-brief-2023_final.pdf, accessed April 18, 2023. ↩︎
  18. Society for Human Resource Management (2021), “English Classes Help Retain Immigrant Workers”, https://www.shrm.org/hr-today/news/all-things-work/pages/english-classes-help-retain-immigrant-workers.aspx, accessed April 6, 2023. ↩︎
  19. U.S. Chamber of Commerce (2023), “Understanding America’s Labor Shortage: The Most Impacted Industries”, https://www.uschamber.com/workforce/understanding-americas-labor-shortage-the-most-impacted-industries, accessed April 18, 2023. ↩︎