Deaths and Health Care Issues in ICE Detention Centers Under the Second Trump Administration

Published: Mar 25, 2026

Introduction

As of March 18, 2026, Immigration and Customs Enforcement (ICE) reported that 46 people died while in their custody or detention facilities since the start of the second Trump administration in January 2025. The number of deaths of people in detention during 2025 exceeded the highest seen in over two decades, and deaths in 2026 are on track to meet or exceed that number. President Trump implemented immigration policy changes focused on increasing interior enforcement efforts to support mass deportation, which increased the number of immigrants detained by ICE to over 68,000 as of February 7, 2026, an increase of over 70% from the 39,000 immigrants held in detention at the end of the Biden administration in December 2024.

ICE is required to maintain certain basic health and safety standards in all detention facilities, which include an initial medical and mental health screening as well as comprehensive health services that include diagnoses and treatments, transfers to off-site medical care when necessary, and access to 24-hour emergency care. However, detention facilities have a history of inadequate compliance with health and safety standards, insufficient health care, shortages in health care staffing, and limited oversight, which may create health risks for those detained. The increased number of people in detention facilities and overcrowding of facilities may further increase health risks, particularly for communicable diseases like measles and people with complex medical conditions. This brief provides an overview of deaths in ICE custody and detention centers under the Trump administration based on KFF analysis of ICE detainee death reporting and news releases and reviews recent reports of health care issues in detention centers.

Deaths in ICE Custody and Detention

The number of deaths occurring among people in ICE custody or detention increased from 11 in 2024 and less than ten in earlier years to 33 in 2025 after the Trump administration took office (Figure 1). ICE is required to publish a news release with relevant details regarding custody deaths within two days, while full reports regarding custody deaths are published within 90 days of occurrence that may contain more details from investigations into the deaths. Six of the deaths that occurred between January 1, 2025 and March 18, 2026 were among people with no reported criminality or pending criminal charges. A total of 36 deaths occurred among people who spent three or fewer months in ICE detention, including those ICE transferred to a hospital for additional medical care. Thirty-eight (38) deaths occurred among people younger than age 65, and 21 were among those under age 45 (Figure 2). Twenty-two (22) deaths were among people from Mexico and Central America, while ten were among people from Asia.

Total Annual Deaths Under ICE Custody or Detention, January 2021-March 2026 (Column Chart)
Deaths in ICE Custody or Detention by Age, January 1, 2025-March 18, 2026 (Pie Chart)

A total of 32 deaths among people in ICE custody or detention between January 2025 and March 2026 were among people with existing medical conditions who appeared to experience worsening health complications contributing to their death, while the remaining share were reported as due to suicide or other causes (Figure 3). While ICE does not always report an official cause of death as determined by a medical examiner, they report the details of initial health screenings and medical history. The causes of death due to health complications and the initial severity of health conditions varied. For example, ICE detained a 68-year-old adult with reported mild blood pressure issues who experienced steadily worsening symptoms over the course of two months that led to his hospitalization and death. In contrast, a 55-year-old adult with severe physical and mental health issues was transferred one day after his arrest to a hospital, where he stayed until his death. ICE reported the remaining deaths as suicide (9) and other causes (5), such as a fatal traffic collision during arrest. ICE reporting may differ from independent assessments of deaths. For example, the El Paso County Medical Examiner’s Office in Texas ruled a death in January 2026 to be a homicide due to the actions of enforcement officers, while ICE reported it as a suicide.

ICE Reported Causes of Death for Deaths Occurring Under ICE Custody or Detention, January 1, 2025-March 18, 2026 (Pie Chart)

Reported Health Care Issues

The Trump administration’s mass deportation efforts led to a significant increase in immigrants held in detention centers, which can lead to overcrowding if deportations do not keep up with the pace of arrests as well as challenges to accessing health care due to limited capacity and resources. Moreover, ICE payments to contractors providing medical care in detention facilities lapsed after the Department of Veterans Affairs terminated a longstanding agreement to process medical reimbursement claims in October 2025, which may impact certain health care services as the new claims system may not be active until April 2026. Overcrowding as well as limited capacity and resources may also increase the risk of the spread of communicable diseases, such as measles. For example, media reports indicate that recent measles outbreaks in Arizona and Texas detention facilities may have been the result of overcrowding and delays in providing vaccinations. ICE also terminated the contract with a private company that operated the Texas detention facility in March 2026 according to a media report indicating that, despite having no prior experience, the company was selected to build and operate the largest ICE facility and that there were reports of inadequate health care.

Reports since January 2025 suggest ICE may not be maintaining health and safety standards for immigrants held in detention centers. ICE is responsible for oversight and management of health care in detention facilities, but it has a history of inadequate compliance with detention standards and provides little to no publicly available data on health care use, quality, and outcomes. A 2025 report based on an investigation launched by Democratic Senator Jon Ossoff of Georgia documented instances of lack of access to prescribed medications, mistreatment of pregnant women, malnutrition and dehydration, unsanitary conditions, sleep deprivation, and abuse in detention facilities. A report based on interviews with people held at an Arizona detention facility between July 2024 to November 2025 conducted by a nonprofit organization serving detainees found instances of medical and mental health care lapses, such as several month delays in necessary specialty treatment and people with serious mental illnesses never seeing a mental health provider. Other media reports indicate instances of lost medical treatments and prescriptions during transfers between detention facilities.

There have also been recent reports of health care issues for children and pregnant people held in detention under the Trump administration. A media report on a Texas facility, where over half of detainees during the first nine months of the Trump administration were children, identified problematic health care issues, including inadequate staffing of pediatricians and child psychologists. Additionally, although ICE policy limits the detention of pregnant, postpartum, and nursing individuals to “very limited circumstances,” ICE data shared in response to an inquiry from Democratic Senator Patty Murray of Washington showing that 121 were detained as of February 16, 2026. This stands in contrast to when most of these groups were released on parole according to the most recent publicly available ICE report on these groups from the first half of fiscal year 2024. A media report and interviews conducted by legal organizations in 2025 with pregnant, postpartum, and nursing individuals in ICE detention identified gaps in prenatal and postnatal care. Another media report based on interviews with pregnant individuals held in ICE detention between 2025 and 2026 identified reports of excessive bodily restraints, inadequate nutrition and prenatal care, delayed emergency care, and an instance where ICE attempted to deport an individual in a late-term and high-risk pregnancy.

Several legal challenges related to poor health care conditions and limited oversight have been brought against ICE, some of which resulted in court rulings requiring ICE to implement changes. In February 2026, a judge ruled that ICE was required to improve conditions in California detention facilities due to poor conditions, including by ensuring adequate health care staffing, access to medical specialists, and providing timely care and medications. ICE faces pending lawsuits alleging that they delayed providing cancer care medication for an extended period of time during transit between facilities between August and October 2025 and that they provided inadequate medical care in Illinois in October 2025. In March 2026, local officials in California filed lawsuit to gain access to ICE facilities and conduct public health inspections after being denied access, and Maryland filed a lawsuit to obtain records detailing conditions at an immigration detention facility in Baltimore after investigations revealed multiple issues, including denial of medical care. These lawsuits to increase oversight followed a previous court order for ICE to restore unannounced congressional oversight visits to DHS facilities. A court order also required the Trump administration to restore DHS oversight offices that investigated issues of neglect and mistreatment in the ICE facilities. Despite reversing their decision to close the offices, the administration faces additional legal challenges due to low staffing in the offices that may reduce their ability to investigate ICE facility health care issues. The outcomes of court orders may change due to appeals by the Trump administration.

Poll Finding

KFF Tracking Poll on Health Information and Trust: Use of AI For Health Information and Advice

Published: Mar 25, 2026

Findings

Key Takeaways

  • With the recent explosion of consumer artificial intelligence (AI) tools and chatbots, KFF’s latest Tracking Poll on Health Information and Trust finds about a third (32%) of adults are turning to AI for health information and advice. This includes about three in ten (29%) who say they’ve used AI tools in the past year for information or advice about their physical health, and one in six (16%) who’ve used them for mental health information or advice. AI use is on par with the share who say they turn to social media for health information, but lags behind the shares saying they’ve sought health information from health care providers and internet search engines (where they may be encountering AI generated results, even if they are not looking for them).
  • Larger shares of younger adults, uninsured adults, Black adults, and Hispanic adults are turning to AI chatbots for mental health advice. About three in ten (28%) of those ages 18 to 29 say they’ve used AI for information about their mental health or emotional wellbeing in the past year, compared to about one in five (18%) adults ages 30 to 49 and about one in ten of those ages 50 and older. Uninsured adults are more likely than insured adults to say they’ve relied on AI for mental health advice (30% v. 14%), as are Black (21%) and Hispanic (19%) adults compared to White adults (12%).
  • Among the top reasons given for turning to AI for health information, most users (65%) say a desire for quick and immediate advice was a “major reason,” for doing so, while many also cite wanting to look up information before seeing a provider (41%) or feeling more comfortable looking up health questions privately (36%). Difficulty accessing or affording health care is also driving some to rely on AI for health information, particularly younger and lower-income users. About one in five AI health users cite not having a health care provider or not being able to get an appointment as a major reason they used AI for health advice, rising to four in ten (38%) among users ages 18 to 29. Another one in five users say difficulty affording health care was a major reason they relied on AI for health advice, rising to three in ten (29%) among users ages 18 to 29 and one-third (32%) among those with annual incomes below $40,000.
  • A majority (77%) of the public says they are concerned about the privacy of personal medical information provided to AI tools, including similar majorities across age groups and those who use AI for health information. Despite these privacy concerns, about four in ten (41%) of those who have used AI for physical or mental health (amounting to 13% of all adults), say they’ve uploaded personal medical information into an AI tool or chatbot.

AI Use for Health Information and Advice

KFF’s latest Tracking Poll on Health Information and Trust finds that use of and exposure to artificial intelligence has become omnipresent in most Americans’ lives, and some are turning to these tools for health information and advice at a time when several technology companies have announced the launch of health-specific chatbots.

Overall, four in ten (39%) adults say they actively use AI tools at least several times a week, while eight in ten say they come across AI-generated content at least several times a week, even if they are not actively looking for it.

About a third (32%) of the public reports turning to AI chatbots for physical or mental health advice – rivaling social media as a health information source, but less common than reliance on health care providers or internet search engines. The share using AI for health advice includes about three in ten (29%) who say they’ve sought information or advice about their physical health from an AI tool or chatbot in the past year, as well as one in six (16%) who say they’ve sought information or advice about their mental health from AI tools in the past year. Comparably, large shares of the public report seeking physical or mental health information and advice from a health care professional (80%) or an internet search engine (68%) in the past year. Given that many search engines now provide AI-generated summaries of search results, much of the public may be getting AI-generated health information, even if they are not looking for it.

Split bar chart showing percent who have sought information or advice about their physical or mental health from specific sources in the past year.

Use of AI tools for health information is more common among younger adults (as is AI use overall), particularly when it comes to mental health. Over one-third (36%) of adults ages 18 to 29 report using AI tools or chatbots for information or advice related to their physical health in the past year and about three in ten (28%) say the same about their mental health or emotional wellbeing. Those ages 18 to 29 are at least three times as likely as adults ages 50 and older to report using AI for mental health advice (28% v. 8%).

Larger shares of uninsured adults, Black adults, and Hispanic adults report turning to AI for mental health advice in the past year compared to fewer insured adults and White adults, respectively. Use of AI for physical health advice does not differ by race and ethnicity or health insurance status. Notably, race and ethnicity, age, and health insurance coverage are interrelated, as younger adults and Hispanic adults are more likely to be uninsured.

Split bar chart showing percent who say they have sought information or advice about physical or mental health from artificial intelligence tools in the past year. Results shown by total adults, age, race and ethnicity, and insurance coverage.

People report using AI for health information in various ways, but most commonly to look for general information about health conditions or symptoms. About a quarter (27%) of adults used AI for physical health questions in the past year and say they did so to look up symptoms or general information about health conditions. About one in five adults say they used AI to get explanations of medical tests, lab results, or diagnoses (19%) or understand and compare treatment options (19%), while about one in six (16%) say they used AI in the past year to get help deciding whether to see a doctor or seek medical care.

Bar chart showing percent who say they have used artificial intelligence tools for information and advice about their physical health in the past year, and whether they have used it for specific reasons.

Overall, about one in ten adults say they used AI for information related to their mental health or emotional wellbeing in the past year and did so to look up symptoms or get general information about a mental health condition (11%), get advice or coping skills for mental health issues (11%), understand and compare treatment options (10%), or to talk through personal mental health concerns like a conversation with a companion (9%). Seven percent of adults say they turned to AI to get help deciding whether to seek professional mental health care.

Bar chart showing percent who have used AI for mental health information in the past year, and whether they have used it for specific reasons.

About six in ten (58%) adults who used AI for physical health advice in the past year say they later followed up with a doctor or health care provider after consulting an AI tool, while about four in ten (42%) of those who used AI for mental health say they followed up with a mental health professional.

Mirrored bar chart showing percent who say they did or did not follow up with a doctor after using AI for information related to their physical or mental health.

Overall, larger shares of younger adults compared with older adults report consulting AI for health information and then not following up with a doctor. About one in five (21%) adults ages 18 to 29 (who are more likely to have used AI for health in the first place) say they turned to AI for physical health advice in the past year and then did not follow up with a doctor – about twice the share of those ages 30 and older who report doing so. Similarly, about one in six (16%) adults ages 18 to 29 say they used AI for mental health advice in the past year and did not follow up with a doctor or mental health professional, more than twice the share of adults ages 50 and older who say the same.

Split bar chart showing percent who say they used AI for their physical or mental health, respectively, and did not follow up with a doctor. Results shown by total adults and age.

Reasons for Using AI for Health Information and Advice

Among those who have used AI tools or chatbots for physical or mental health information in the past year (32% of all adults), most users (65%) cite wanting quick or immediate information or support as a “major reason” for doing so. Many users cite other “major” reasons, including that they wanted to look up information before deciding whether to see a provider (41%), they felt more comfortable looking up health-related topics privately (36%), or they received medical test results before being able to discuss them with provider (28%).

Some users say they turned to AI due to difficulty accessing or affording health care, with about one in five saying a “major reason” they used AI for health was because they could not afford the cost of seeing a provider (19%) or they don’t have a regular health care provider or could not get an appointment (18%).

While about one in five AI users (18%) say a “major reason” they used AI for health was because they felt the information was as reliable as what a health care provider would tell them, most users (65%) say this was at least a “minor reason” for using AI.

Stacked bar chart showing percent who say specific reasons were "major" or "minor" reasons for using AI tools for health information.

While wanting quick or immediate information is the top reason for using AI across groups, younger adults and lower-income adults are more likely to cite difficulty accessing or affording health care as their reason for relying on AI for health information. Among those who have used AI for health information in the past year, adults under age 30 are six times as likely as users 50 and older to cite not having a regular health care provider or being unable to get an appointment (38% v. 6%) and more than twice as likely to cite not being able to afford the cost of a provider (29% v. 12%) as major reasons for turning to AI for health advice. Among adults with annual household incomes less than $40,000 who have used AI for health, one-third (32%) cite not being able to afford a health care provider as a “major reason” for using AI, while one in four cite not having a regular health care provider.

Notably, younger adults are more likely than older adults to not have health insurance coverage and to have lower annual household incomes.

Split bar chart showing percent who say specific reasons were "major" reasons for using AI for health information. Results shown by total adults, age, and household income.

Trust and Satisfaction in AI for Health Information and Advice

Among adults who used AI for physical or mental health advice in the past year, large majorities say they were at least “somewhat satisfied” with the quality of the responses they received related to their physical health (92%) or mental health (85%), though relatively small shares say they were “very satisfied” (19% and 27%, respectively).

Stacked bar chart showing satisfaction with the quality of response received from AI tools when used for information related to physical health and mental health.

At least six in ten adults who have used AI for advice related to their physical health or mental health say they trust AI tools “a great deal” or “a fair amount” to provide reliable information about health (69%) or mental health (62%), respectively.

On the other hand, trust in AI tools for health information is relatively low among the public overall, and especially among those who have not used these tools. Trust in AI for health information drops to about one in five (18%) among adults who have not used AI for physical health advice, while trust in AI for mental health information drops to about one in six (16%) among those who have not used AI for mental health advice.

Split bar chart showing trust in AI tools to provide reliable information about health and mental health respectively. Results shown by total adults and by use of AI for different types of health information.

Privacy Concerns and Uploading Personal Medical Data to AI

Recently, several major technology companies have launched dedicated AI health products, promoting them as personalized health tools where users can connect and upload their medical records. Although most adults, including AI users, have concerns about privacy of personal medical information provided to AI chatbots, many who use AI for health still report uploading personal medical information to an AI tool or chatbot.

Among adults who have used AI for physical or mental health information in the past year (32% of all adults), about four in ten (41%) say they have uploaded personal medical information like test results or doctor’s notes. Overall, this means 13% of all adults say they have entered personal medical information into an AI tool to get an explanation or advice related to their health, rising to about one in five adults ages 18 to 29 (19%).

Bar chart showing percent who say they have ever entered personal medical information into an AI tool. Results shown by total adults, adults who have used AI for health, and age.

Although AI chatbots are commonly trained on user conversations, some AI companies have said that conversations with their health-specific AI tools won’t be used for training. Still, a large majority of the public, including most AI users, say they have concerns about the privacy of personal health information uploaded to AI chatbots. About three in four (77%) adults say they are either “very” or “somewhat” concerned about the privacy of personal medical information provided to AI tools, including similar shares across age groups.

Even among adults who report having entered personal medical information into an AI tool, most (65%) say they are concerned about privacy of this information, though just a quarter say they are “very concerned.”

Stacked bar chart showing concern about the privacy of personal medical information provided to AI tools. Results shown by total adults, age, and whether they have used AI for health information.

Methodology

This KFF Health Tracking Poll/KFF Tracking Poll on Health Information and Trust was designed and analyzed by public opinion researchers at KFF. The survey was conducted February 24 – March 2, 2026, online and by telephone among a nationally representative sample of 1,343 U.S. adults in English (n=1,268) and in Spanish (n=75). The sample includes 1,019 adults (n=62 in Spanish) reached through the SSRS Opinion Panel either online (n=995) or over the phone (n=24). The SSRS Opinion Panel is a nationally representative probability-based panel where panel members are recruited randomly in one of two ways: (a) Through invitations mailed to respondents randomly sampled from an Address-Based Sample (ABS) provided by Marketing Systems Groups (MSG) through the U.S. Postal Service’s Computerized Delivery Sequence (CDS); (b) from a dual-frame random digit dial (RDD) sample provided by MSG. For the online panel component, invitations were sent to panel members by email followed by up to three reminder emails.

Another 324 (n=13 in Spanish) adults were reached through random digit dial telephone sample of prepaid cell phone numbers obtained through MSG. Phone numbers used for the prepaid cell phone component were randomly generated from a cell phone sampling frame with disproportionate stratification aimed at reaching Hispanic and non-Hispanic Black respondents. Stratification was based on incidence of the race/ethnicity groups within each frame. Among this prepaid cell phone component, 142 were interviewed by phone and 182 were invited to the web survey via short message service (SMS).

Respondents in the prepaid cell phone sample who were interviewed by phone received a $15 incentive via a check received by mail or an electronic gift card incentive. Respondents in the prepaid cell phone sample reached via SMS received a $10 electronic gift card incentive. SSRS Opinion Panel respondents received a $5 electronic gift card incentive (some harder-to-reach groups received a $10 electronic gift card). In order to ensure data quality, cases were removed if they failed two or more quality checks: (1) attention check questions in the online version of the questionnaire, (2) had over 30% item non-response, or (3) had a length less than one quarter of the mean length by mode. Based on this criterion, 1 case was removed.

The combined cell phone and panel samples were weighted to match the sample’s demographics to the national U.S. adult population using data from the Census Bureau’s 2024 Current Population Survey (CPS), September 2023 Volunteering and Civic Life Supplement data from the CPS, and the 2025 KFF Benchmarking Survey with ABS and prepaid cell phone samples. The demographic variables included in weighting for the general population sample are gender, age, education, race/ethnicity, region, civic engagement, frequency of internet use and political party identification. The weights account for differences in the probability of selection for each sample type (prepaid cell phone and panel). This includes adjustment for the sample design and geographic stratification of the cell phone sample, within household probability of selection, and the design of the panel-recruitment procedure.

The margin of sampling error including the design effect for the full sample is plus or minus 3 percentage points. Numbers of respondents and margins of sampling error for key subgroups are shown in the table below. For results based on other subgroups, the margin of sampling error may be higher. Sample sizes and margins of sampling error for other subgroups are available on request. Sampling error is only one of many potential sources of error and there may be other unmeasured error in this or any other public opinion poll. KFF public opinion and survey research is a charter member of the Transparency Initiative of the American Association for Public Opinion Research.

GroupN (unweighted)M.O.S.E.
Total1,343± 3 percentage points
   
Party ID  
Democrats449± 6 percentage points
Independents449± 6 percentage points
Republicans373± 6 percentage points
   
MAGA Republicans/Republican leaning independents334± 6 percentage points
   
Used AI for health information or advice in the past year458± 6 percentage points
Used for physical health information407± 6 percentage points
Used for mental health information234± 8 percentage points
News Release

Poll: 1 in 3 Adults Are Turning to AI Chatbots for Health Information, Equaling the Share Who Use Social Media for Health

1 in 5 Who Use AI for Health Cite Affordability and Access Concerns as Major Reasons, Including Larger Shares of Young and Lower Income People

Published: Mar 25, 2026

About a third (32%) of adults nationally say they have turned to artificial intelligence (AI) chatbots in the past year for health information, a new KFF Tracking Poll on Health Information and Trust finds. Most who turned to AI for health information say they were in search of quick and immediate advice, though challenges affording and accessing health care also play a role, particularly for younger adults.

The share using AI for health advice includes about 3 in 10 (29%) who have sought information related to their physical health and about 1 in 6 (16%) who have sought information related to their mental health. People are about as likely to use AI as social media to find health information.

As with AI use generally, younger adults are more likely than older adults to rely on AI for health information, particularly for mental health.

For example, adults under age 30 are about three times as likely as adults ages 50 and older to use AI for mental health information (28% vs. 8%). Uninsured adults are also more likely than those with insurance to do so (30% vs. 14%), as are Black and Hispanic adults compared to White adults.

When asked why they consulted AI for health information, about two-thirds (65%) of users say that a major reason was to get quick or immediate information or support. Substantial shares also cite wanting to look up information before deciding whether to see a provider (41%) or feeling more comfortable looking up information privately (36%).

Challenges affording and accessing health care are also driving some to rely on AI, particularly for younger adults and those with lower incomes. About 1 in 5 say that not being able to afford the cost of seeing a health professional (19%) or not having a regular doctor or not being able to get an appointment (18%) was a major reason for turning to AI.

Larger shares of young users (under age 30) cite barriers to affording (29%) or accessing (38%) health care as a major reason they relied on AI for health advice. Similarly, users with low incomes (less than $40,000 annually) are more likely to cite both health care costs (32%) and access (25%) as major factors for using AI.

Many people who consult AI for health information say they did not follow up with a doctor or other health professional afterward, including most (58%) who asked about mental health, and 42% who asked about physical health. Younger adults are more likely than older adults to have used AI for health advice and then not followed up with a doctor.

Many AI Users Upload Personal Health Information Despite Privacy Concerns

Among those who use AI for health information, 41% say that they have uploaded personal medical information like test results or doctors’ notes into an AI tool or chatbot to get personalized explanations or advice related to their health. This means 13% of the public has uploaded personal medical information to an AI chatbot for this purpose.

Among the public at large, about three-quarters (77%) say that they are concerned about the privacy of personal medical information provided to AI tools, including most (65%) of those who have shared personal medical information with AI.

Designed and analyzed by public opinion researchers at KFF, this survey was conducted February 24-March 2, 2026, online and by telephone among a nationally representative sample of 1,343 U.S. adults in English and in Spanish. The margin of sampling error is plus or minus 3 percentage points for the full sample. For results based on other subgroups, the margin of sampling error may be higher.

Claims Denials and Appeals in ACA Marketplace Plans in 2024

Published: Mar 24, 2026

The impact of claims denials is widely recognized by lawmakers and the public. According to a January 2026 KFF poll, two-thirds (66%) of insured adults believe delays and denials of health care services by health insurance companies are a “major problem.” One-third (33%) of insured adults say they have had a health insurance company deny coverage for a certain health care service or medication prescribed by their doctor in the past two years. The Affordable Care Act (ACA) requires insurers to report transparency data for all non-grandfathered health plans sold on and off the Marketplace, including fully-insured and self-funded employer health plans. Partial implementation of this federal requirement began with the 2015 plan year; however, it has so far been limited to qualified health plans (QHPs) offered on the federally facilitated Marketplace, HealthCare.gov (including state-based Marketplaces that rely on HealthCare.gov for eligibility and enrollment functions). It does not yet include QHPs offered on state-based Marketplaces or group health plans.

This brief analyzes federal transparency data published by the Centers for Medicare and Medicaid Services (CMS) on claims denials and appeals for non-group qualified health plans (QHPs) offered on HealthCare.gov in 2024. Similar to KFF’s previous analyses of these data, a downloadable working file based on CMS’s public use file is available on the right-hand side of this brief.

Key Takeaways

  • Insurers of qualified health plans (QHPs) sold on HealthCare.gov denied 19% of in-network claims in 2024 and 37% of out-of-network claims for a combined average of 20% of all claims, all similar to 2023.
  • The in-network denial rate ranged from 3% to 36%, with significant variation by insurer and by state. Three percent of reporting insurers had in-network denial rates of 30% or higher in 2024, a decrease from 17% in 2023.
  • Of the limited information available on in-network claims denial reasons, the most common reasons cited by insurers in 2024 included “Other” [reason not listed] at 36%, followed by administrative reasons (25%). Nine percent of denials were for lack of prior authorization or referral, and only 5% of denials were for lack of medical necessity. Insurers do not report what types of services were denied.
  • Consumers rarely appeal denied claims (fewer than 1% of denied claims were appealed), and when they do, insurers usually uphold their original decision (66% of appeals were upheld).
  • Marketplace enrollees filed at least 5,881 external appeals in 2024, or 4% of all upheld internal appeals. Due to the suppression of small values, the rate at which external appeals were upheld could not be calculated.
  • Rapidly developing artificial intelligence (AI) tools may reduce administrative errors that can lead to improper denials, predict whether a claim will be paid, and assist providers and patients in appealing a denial, but federal oversight and guardrails to protect consumers may be a challenge.

Introduction

As part of the annual QHP certification process, issuers (referred to as insurers in this brief) must report certain denied claims information to CMS for plans that were offered in the previous year that they want to offer in the upcoming year. The ACA requires the data to be made available to federal and state insurance regulators and to the public. The current dataset only includes information about claims for benefits (medical and prescription drugs combined) made after a service was provided (post-service claims); it does not include information about denied requests for prior authorization (a claim decision made before a service is provided, also called a “pre-service” claim).

Insurers participating in the Marketplace in 2026 reported aggregated data on all HealthCare.gov QHPs they offered in 2024. Additionally, plan-level data from 2024 are reported for plans returning in 2026, including the number of in- and out-of-network claims submitted and denied, and reasons for claims denials. Among insurers participating in HealthCare.gov states in 2024, 52 are either not participating in 2026 or offered plans in states that have since switched to operating their own marketplaces, and therefore, did not provide claims denial information. (See the Methods section for details.) Among returning insurers, such denial information was only reported for 75% of their claims (the share of claims attributable to returning plans), because not all plans offered in 2026 were also offered in 2024 and vice versa. Additionally, only 62% of plans in the CMS dataset were also offered in 2024 and are included in the plan-level reporting for denial reasons. See the Methodology section for more details.

Claims Denials and Appeals in 2024

Insurer-level Claims Denials Data

Insurers reported receiving about 496 million claims in 2024, with 91% (451 million claims) filed for in-network services. Of these in-network claims, approximately 85 million were ultimately denied, resulting in an average in-network denial rate of 19% (Figure 1). Out-of-network claims totaled 44 million, with an overall higher denial rate of 37%. Claims that were initially denied, then subsequently resubmitted and paid, are not included as denied claims in the denial rate.

HealthCare.gov Insurers Denied About Two in Ten In-Network Claims in 2024 (Pie Chart)

Although the composition of HealthCare.gov states has continued to change since the inception of transparency reporting, the overall in-network denial rate in 2024 is similar to previous years (Figure 2).

Denial Rates for In-Network Claims by HealthCare.gov Insurers, 2015-2024 (Line chart)

Insurer denial rates for in-network claims received in 2024 varied widely, ranging from 3% to 36%. Seventeen of the 157 reporting insurers had an in-network denial rate of less than 10%, while 26 insurers had a denial rate of 25% or more (Figure 3). About 3% of reporting insurers had in-network denial rates of 30% or higher in 2024, a decrease from 14% in 2023.

Distribution of Denial Rates for In-Network Claims by HealthCare.gov Insurers, 2024 (Column Chart)

Denial rates also varied geographically (Figure 4). The state with the highest average in-network denial rate for HealthCare.gov insurers was Hawaii (27%), and the lowest average was in South Dakota (7%). South Dakota also had the lowest average denial rate in 2023 (6%). Average denial rates have the potential to obscure variation. For example, while the average denial rate for insurers in Texas was about the same as the national average, denial rates for insurers in Texas had greater variability than any other state included in this analysis, ranging from 12% to 36% (the highest single insurer-level denial rate in the country).

Average Denial Rates for In-Network Claims by HealthCare.gov Insurers, by State, 2024 (Choropleth map)

Denial rates vary substantially by insurer. Table 1 shows denial rates for claims filed in HealthCare.gov states by parent companies that received more than 5 million claims in 2024. (State-specific Blue Cross and Blue Shield parent companies are listed separately in the table below because they operate independently of one another.) For in-network claims processed by these parent companies, the average in-network denial rate was 19%, ranging from 8% (Elevance Health) to 25% (Oscar Health). There was less variability in 2024 than in 2023, when the lowest average denial rate by large parent companies was 14% (Centene), and the highest was 35% (Blue Cross Blue Shield of Alabama).

Denial Rates for HealthCare.gov Parent Companies That Received More Than 5 Million Total Claims, 2024 (Table)

Plan-level Claims Denial Data

In addition to insurer-level data, insurers also report certain claims data at the plan level. Insurers reported about 79 million denial reasons, excluding denials for claims being out-of-network, for claims that were denied at some point in the adjudication process during the 2024 coverage year. In all, insurers reported on about 66 million in-network claims at the plan level that were ultimately denied that year.

Denials by Metal Level

Denial rates varied only slightly between most plan metal levels. On average, in 2024, HealthCare.gov insurers denied 19% of in-network claims in their bronze plans, 20% in silver plans, 17% in gold plans, 18% in platinum plans, and 22% in catastrophic plans. These are similar to 2023 except for catastrophic and platinum plans, which denied an average of 26% of in-network claims that year.

Denial Reasons

CMS requires HealthCare.gov insurers to report the reasons for claims denials at the plan level. Specified denial reason categories include:

  • Denials due to lack of prior authorization or referral
  • Denials due to an out-of-network provider
  • Denials due to an exclusion of a service
  • Denials based on medical necessity (reported separately for behavioral health and other services)
  • Denials due to enrollee benefit reached
  • Denials due to a member not being covered
  • Denials due to investigational, experimental, or cosmetic procedure
  • Denials for administrative reasons (which include claims that were duplicated, missing information, untimely, for an unapproved provider, or that met other criteria)
  • Denials for all other reasons not specified above

A claim might be denied for more than one reason and on more than one submission, and each denial reason is tallied separately (see the Data Limitations section for more information). The distribution of denial reasons, shown in Table 2, likely includes multiple reasons per claim as the data set does not indicate the total number of claims denied at some point in the adjudication process, nor the number of times a given claim was denied. Of in-network claims, 13% of denials were because the claim was for an excluded service, 9% of denials were due to lack of prior authorization or referral, and only 5% were based on medical necessity. The share of denial reasons related to administrative reasons was 25%, the most common reason aside from “other" (36%).

Reasons for In-Network Claims Denials by HealthCare.gov Plans, 2024 (Table)

Insurers also had wide variability in their use of denial reasons. While 5% of all in-network claim denials by HealthCare.gov plans were based on medical necessity, several plans reported much higher shares for medical necessity reasons. For example, 38% of denial reasons for Molina Healthcare of Mississippi were due to medical necessity. Similarly, while 9% of all in-network denials by HealthCare.gov plans were based on lack of prior authorization or referral, some plans reported a much larger share. For example, 97% of denial reasons for Blue Cross Blue Shield of Arizona were for lack of prior authorization or referral.

Plans may apply utilization review techniques differently. For example, individual insurer policies and practices may affect the balance between denials for failure to obtain referral/prior authorization and medical necessity denials, as greater use of prior authorization would shift utilization review to before a service is provided and possibly decrease the number of denials due to medical necessity. However, without more detail on the types of claims subject to these denials, it is not possible to discern the possible implications for patients. Additionally, denials captured in the CMS data do not reflect the share or types of services covered by insurers.

Appeals Data

CMS requires insurers to report the total number of denied and internally appealed claims at the insurer level. Internal appeal is a process that allows consumers to challenge a denied claim made by their health insurer. As in KFF’s previous analyses of federal claims denial data, we find that consumers rarely appeal denied claims, and when they do, insurers usually uphold their original decision.

Appeal to Insurer (Internal Appeal). Of the approximately 85 million in-network denied claims in 2024, HealthCare.gov consumers appealed at least 262,982 – an appeal rate of less than 1%. (CMS suppresses reporting of observations lower than 10, so the number of internally appealed claims could be higher). Insurers upheld 165,863 (66%) denials on appeal. Relatedly, the 2023 KFF Survey of Consumer Experiences with Health Insurance found that only one in ten insured adults who reported experiencing a problem with their insurance in the past year had filed a formal appeal.

Appeal to Third Party (External Appeal). Consumers whose denial is upheld at internal appeal may have the right to an independent external appeal (also called external review) for certain types of claims. Among insurers that reported at least 10 external appeals in 2024, Marketplace enrollees externally appealed at least 5,881 claims in 2024 (again, the number of externally appealed claims could be higher due to CMS suppression of values under 10). Among insurers that reported at least 10 external appeals in 2024, 4% of upheld appeals were externally appealed. Due to the suppression of small values, the rate at which external appeals were upheld could not be calculated.

It is not well known that consumers can appeal claims denials through an external appeal process. KFF’s 2023 consumer survey found that just 40% of consumers believed they have a legal right to appeal to a government agency or independent medical expert, while 51% said they were unsure if they had appeal rights, and 9% did not believe they had this right. Furthermore, Marketplace enrollees (34%) were less likely to know they had external appeal rights compared to those with Medicare (58%) and Medicaid (45%).

Data Limitations

While the CMS data allows users to glean insights into HealthCare.gov insurers’ claims denials to a degree not broadly available for other market segments, it currently has several gaps and limitations. Because the current data do not link denial reasons to the services that were denied, neither the share of total claims denied for a given reason nor the type of service most often denied can be calculated. Claims initially denied but then paid cannot be identified from the data set, nor can the set of denial reasons associated with a given claim. For example, if the initial submission of a claim misspelled a patient’s name and was denied because the patient could not be identified, the claim may be denied again after being corrected and resubmitted if the claim were for a service that was not covered. Each of these reasons is reported individually, irrespective of whether a claim is resubmitted to correct the deficit, denied, or ultimately paid with or without appeal. In addition, the adjudication process employed by the insurer may affect how denial reasons are reported. Although publicly reported data allow for multiple reasons throughout the life of a claim, in practice, insurers may file denial reasons sequentially and not capture all applicable reasons for denying claims, such as denying claims from an unidentifiable enrollee before determining whether the claim was for a medically necessary procedure. Lastly, claims that are denied do not necessarily indicate that services are not ultimately paid by the insurer, such as when a new claim is filed instead of resubmitting the original. In these cases, the original claim would be counted as denied, even if the new claim was ultimately paid. 

Federal reporting on denials could be more useful when presented as claims ever denied for a given reason, instead of tallying the total reasons. Also, reporting that includes denial information about all claims from all insurers in the previous year, and not just those attributable to plans that are returning to the Marketplace next year, would provide a more complete understanding of claims denials. Additionally, information about the types of services approved and denied (e.g., specialty of service and type of prescription drug) would give a more comprehensive picture of insurer practices and what type of care insurers actually cover. Information about appeals, especially external appeals, could provide insight into how this consumer protection mechanism works for patients. Information about what services required prior authorization and how often the prior authorization itself was approved and denied is another data element not included in the CMS data. Many insurers in the individual and group market report this information to the National Association of Insurance Commissioners (NAIC), but these specific data points are not available to the public.

Other Claims Data

With few exceptions, complete, uniform claims denial data are currently only available for plans sold on HealthCare.gov, making it difficult to directly compare these data to other segments of the private insurance market. However, related claims data from other sources are available and can provide some insights. Recent data for government health insurance programs, such as Medicare and Medicaid, largely focus on denials of prior authorization requests. (Prior authorization is a process used by health insurers that requires providers to obtain approval before a service or other benefit is covered, whereas the claims denial data in this analysis is based on claims the insurer receives after the service has been rendered.)

Other Private Insurance Claims Data

State Reporting Requirements

Some states require insurers to report certain claims denial data to the state, which are then made publicly available. For example, California requires all insurers on its state-based Marketplace, Covered California, to annually report claims data similar to what is available for HealthCare.gov insurers. In plan year 2023, insurers with complete claims data denied an average of 21% of in-network claims, similar to HealthCare.gov insurers. (Insurer-level claims data is not currently available for the 2024 plan year.)

Health insurers in Connecticut with at least 1,000 enrollees must report annual data on claims payment practices, prior authorization requests and denials, claims denial reasons, and several other metrics for all private market segments. In 2024, the largest insurers in Connecticut had an overall denial rate of 14%.

Vermont requires insurers of state-regulated health plans (individual and group) with at least 2,000 enrollees or that offer insurance through the Vermont Health Benefit Exchange to report certain pre- and post-service claims denial data to the state, including breakdowns by mental health, substance use disorder services, and prescription drugs. In 2024, these insurers denied an average of 8.5% of total claims received.

Connecticut’s and Vermont’s claims denial data are not directly comparable to those reported by Covered CA or HealthCare.gov insurers for several reasons, including that those states’ data include group health plans, and claims data are not separated by network status. As interest in insurer claims practices and transparency continues, more states may implement claims data reporting. These state laws, however, do not apply to self-funded health plans sponsored by private employers, which, nationally, cover most insured people under age 65, resulting in a patchwork of different requirements across the country.

National Association of Insurance Commissioners

The National Association of Insurance Commissioners (NAIC), via the Market Conduct Annual Statement (MCAS), collects uniform data annually on claims denials, prior authorization requests, appeals, and more from many insurers in the individual and group markets in nearly every U.S. state. MCAS data are intended to help state insurance regulators monitor the market conduct of insurance companies, and insurers can use this information to identify areas to improve performance. However, full MCAS health insurance data are shared with state regulators only, not the general public or CMS. A limited national summary published by the NAIC shows that the average claims denial rate for both in- and out-of-network claims (excluding pharmacy) in 2024 was 16%.

Prior Authorization Data for Government Health Insurance Programs

Medicare

Medicare Advantage, which covers more than half of all Medicare beneficiaries, has come under scrutiny in recent years over concerns about policies and processes related to prior authorization denials. According to a KFF analysis of federal data, Medicare Advantage plans fully or partially denied 4.1 million prior authorization requests in 2024, for an overall denial rate of nearly 8%. The use of prior authorization in traditional Medicare is relatively new and is only used for a limited set of services. According to KFF analysis, in 2024, CMS denied about 143,000 prior authorization requests for traditional Medicare beneficiaries, for a denial rate of about 23%.

Medicaid Managed Care

Medicaid managed care organizations (MCOs), which deliver care to the majority of Medicaid enrollees, often require prior authorization to determine if the requested service or medication is appropriate and medically necessary. A 2023 federal report found that Medicaid MCOs denied more than 2 million prior authorization requests in 2019, for an overall prior authorization denial rate of nearly 13%.

Looking Forward

A January 2025 KFF poll about the public’s priorities for the incoming Congress and President Trump’s second term found that more than half (55%) of U.S. adults thought closer regulation of insurers’ decisions to approve or deny claims for health services or prescription drugs should be a “top priority.” Although CMS has expressed an interest in possibly using the claims denial data to conduct compliance in an effort to improve the accuracy of the data issuers submit, so far, the federal government has not used the available claims denial data to conduct oversight of insurers, nor to develop tools or indicators to help consumers see and compare differences across plans. Providing the public with accessible information and more transparency about how claims review and appeals operate for each insurer, in all market segments, could better enable consumers and employers to make more informed choices when purchasing private coverage. This includes:

Broadening the Data Collected and Disclosed

Planned additions for the coming year. Starting in the next few months, as part of the federal QHP certification process for plan year 2027, insurers will report to CMS additional data elements: whether claims received and denied were for behavioral health or non-behavioral health services; data on pre-service claims; and denial reasons for out-of-network claims that mirror the current denial reasons for in-network claims. In addition, a 2024 CMS interoperability regulation requires QHP issuers to publicly report specific prior authorization metrics on their websites by March 31, 2026, according to a recently released 2027 Draft Letter to Issuers in the Federally-facilitated Exchanges. While a specific format for the public display of this information is not required, CMS has issued templates.

More useful data on reasons for denial. More than half of the reasons for a denial are either due to administrative reasons or an “other” category. Exploring ways to get more specific information about what is happening in the plan’s claims review process, especially when a claim is initially reviewed, could help policymakers address delays in patients receiving needed care and improper denials without a long and protracted second internal review and appeal. For instance, specific information about how many initial denials relate to administrative or coding errors or requests for information already provided could be useful in evaluating plan and provider performance and addressing improper denials.

Collecting employer data. Transparency of pricing data is a stated priority for the Trump administration, and the ACA requires group health plans to disclose claims denial and other data; however, these requirements still have not been implemented at the federal level. Since most people under age 65 have employer-sponsored coverage, efforts to provide more information about this market could begin to address concerns about insurer denials. Federal mental health parity regulations updated in 2024 require employer plans (and non-group plans) to collect and evaluate certain data, including the number and percentage of certain claim denials. However, the Trump administration has indicated that the requirements will not be enforced by the federal government.

Assessing the Impact of Artificial Intelligence in Claims Review

The use of artificial intelligence (AI) by both health plans and providers in the review and appeal of health claims could have both positive and negative implications for consumers. Health plans already use proprietary automated systems for claims processing, largely unknown to the public, but AI presents new challenges for oversight as well as opportunities to help patients navigate the complexities in health care. New tools being rapidly developed and promoted might reduce administrative errors that lead to improper denials, predict in advance whether a claim will be paid, and assist providers and patients in appealing a denial. However, concerns about accuracy, privacy, and bias in AI models have resulted in calls from consumer advocates, insurers, and providers for new consumer protections and/or oversight. States have begun to pass legislation, some focused on making sure a human is involved where claims are denied, regulators can audit the data used to train AI systems, and technology companies are required to test and disclose outcome metrics.

Congress has not enacted new laws to regulate AI specifically, and the Trump administration has stated its position that state laws to regulate AI should not apply. The CMS WISeR model is now testing the use of AI to make prior authorization decisions for specific services in traditional Medicare. Public information about the specific technology being used in the model is limited.

Key issues moving forward include how and whether the federal government will provide guardrails for how this technology is used, not just for claims review, but for an increasingly wide variety of administrative and clinical tasks that have a direct and indirect impact on patients.

Closer Examination of Independent External Review

The information available on independent review for the federal Marketplace continues to show a small number of external appeals. No information is provided about the types of services that are being evaluated under external review, and publicly-available data on the number of upheld internal appeals that are overturned in an external appeal are limited. Other researchers have started to look deeper at external review outcomes using other data sources. One recent study examined external review decisions (not limited to Marketplace plans) involving coverage of specific cancer genetic tests in four states where data are publicly available. It found that almost half of all external review decisions overturned the initial denial, and 30% of denials specifically for cancer genetic tests were overturned, with wide variation across states and types of genetic tests.

Looking for Information About Voluntary Insurer Prior Authorization Changes

In June 2025, the Trump administration announced a pledge by many of the largest health insurers to act to “fix [the] broken prior authorization system.” Insurers voluntarily committed to make several changes, including reducing the scope of prior authorization requirements by January 1, 2026, and providing better transparency about authorization decisions and appeals. While some insurers have made general announcements about changes, information about specific process improvements and reductions in prior authorization requirements is limited, and a recent report and KFF polling indicate that prior authorization is still a problem for many consumers.

Methodology

Our analysis of the CMS Transparency in Coverage 2026 Public Use File (published September 26, 2025) includes insurers with more than 1,000 claims submitted and excludes stand-alone dental plans and small group (SHOP) plans. Of the 183 major medical insurers offering plans in 2026 in HealthCare.gov states, 156 reported receiving more than 1,000 claims and showed data on claims received and denied in 2024. Comparison with the QHP Landscape PY2026 Individual Medical file showed that, among insurers participating in HealthCare.gov states in 2024, 52 are not participating in 2026. (This number does not include the two insurers in the transparency public use file that are not actually offering plans in 2026. Since one of those insurers submitted claims information for its 2024 plans, that issuer is still included in our analysis.) Twenty-two HealthCare.gov insurers participated in Illinois and Georgia in 2024. Since then, these two states have switched to operating their own marketplaces. Excluding insurers operating in these two states, 30 participated in 2024 but did not participate in 2026.

Calculation of claims denial rates includes information provided by insurers on plans offered in 2024 but not in 2026. The number of denied claims reflects only the final adjudication status. A claim may be initially denied, then resubmitted and approved; claims that are paid even after initial denial do not count as denied in the claims denial rate calculation.

Twenty-five insurers offering plans in 2026 did not offer plans in 2024. Among states that offered plans on HealthCare.gov in both 2024 and 2026, 38% of plans available in 2026 were not available in 2024; of the 4,415 plans offered in 2024, only 2,514 (57%) were offered in 2026 and are included in the plan-level reporting of information on denial reasons. Half (the median) of the returning insurers did not provide statistics on denial reasons for more than 20% of claims filed in 2024, as they were associated with plans not being offered in 2026. Calculation of denial reasons excluded claims that were denied as out-of-network in all totals. Since out-of-network denials may depend more on plan type than insurer processes, the analysis focused on in-network claims.

To obtain the parent company name, the QHP Landscape PY2026 Individual Medical file was merged with the Medical Loss Ratio Submission Template header using HIOS plan identification numbers to find NAIC company codes. The NAIC identifier was then mapped to a parent company name using the Enrollment by Segment Exhibit data from Mark Farrah Associates. A small number of insurers could not be mapped by this method, so parent company names were entered manually. Statistics calculated at the parent company level do not include plans offered in market segments other than on-exchange ACA plans offered in HealthCare.gov states.

The external appeal rate assumes that all external appeals went through an internal appeal first and was calculated as the number of external appeals filed over the number of internal appeals upheld. CMS does not report values under 10. When calculating statistics with suppressed values, they were assumed to be zero. Additional considerations for using CMS transparency public files can be found here.

10 Things to Know About Medicaid Managed Care

Published: Mar 23, 2026

Key Facts

Introduction

Managed care is the dominant delivery system for people enrolled in Medicaid. The latest national Medicaid managed care enrollment data (from 2024) show 78% of Medicaid beneficiaries were enrolled in comprehensive managed care organizations (MCOs). While managed care is the dominant Medicaid delivery system, states decide which populations and services to include in managed care arrangements, which leads to considerable variation across states. Additionally, while state requirements for Medicaid managed care plans can be tracked, plans have flexibility in certain areas, including in setting provider payment rates, and plans may choose to offer additional benefits beyond those required by the state.

States and plans faced considerable rate setting uncertainty after millions of people were disenrolled during the “unwinding” of the pandemic-era Medicaid continuous enrollment provision. Many states sought federal approval to adjust rates to address shifts in utilization and acuity—as people who used fewer services than average were disenrolled, leaving a group with higher health risk and spending. Looking ahead, states expect the 2025 federal budget reconciliation law will create additional managed care plan rate setting challenges as the Medicaid provisions impacting enrollment and spending (e.g., program financing changes, work requirements, and more frequent eligibility redeterminations) roll out over the next several years. Federal Medicaid spending cuts, coupled with a more tenuous fiscal climate (at the state-level), will have implications for states and enrollees as well as plans and providers. In this context, this brief describes 10 themes related to the use of comprehensive, risk-based managed care in the Medicaid program.

1. Capitated managed care is the dominant way in which states deliver services to Medicaid enrollees.

States design and administer their own Medicaid programs within federal rules. States determine how they will deliver and pay for care for Medicaid beneficiaries. Nearly all states have some form of managed care in place – comprehensive risk-based managed care (i.e., contracts with MCOs) and/or primary care case management (PCCM) programs.1, 2 As of July 2025, 42 states (including DC) contract with comprehensive, risk-based managed care plans to provide care to at least some of their Medicaid beneficiaries (Figure 1). Oklahoma is the latest state to be included in this count, having implemented capitated, comprehensive Medicaid managed care (for most children and adults) on April 1, 2024. Following the passage of state legislation, Idaho ended its PCCM program effective January 1, 2026 and expects to implement comprehensive MCOs in January 2030. Medicaid MCOs provide comprehensive acute care (i.e., most physician and hospital services) and, in some cases, long-term care to Medicaid beneficiaries and are paid a set per member per month payment for these services. For more than three decades, states have increased their reliance on managed care delivery systems with the aim of improving access to certain services, enhancing care coordination and management, and making future costs more predictable. While the shift to MCOs has increased budget predictability for states, the evidence about the impact of managed care on access to care and costs is both limited and mixed.3,4,5

As of July 2025, 42 States Contract with Comprehensive, Risk-based Managed Care Plans to Deliver Services in Medicaid (Choropleth map)

2. In FY 2024, payments to comprehensive risk-based MCOs accounted for half of Medicaid spending.

In FY 2024, state and federal spending on Medicaid services totaled $919 billion. Payments made to MCOs accounted for about 50% of total Medicaid spending (Figure 2). The share of Medicaid spending on MCOs varies by state, but about three-quarters of MCO states directed at least 40% of total Medicaid dollars to payments to MCOs (Figure 3). State-to-state variation reflects many factors, including the proportion of the state Medicaid population enrolled in MCOs, the health profile of the Medicaid population, whether high-risk/high-cost beneficiaries (e.g., people with disabilities, dual-eligible beneficiaries) are included in or excluded from MCO enrollment, and whether long-term care services are included in MCO contracts. As states continue to expand Medicaid managed care to include higher-need, higher-cost beneficiaries, expensive long-term care, and adults eligible for Medicaid under the Affordable Care Act (ACA), the share of Medicaid dollars going to MCOs could continue to increase.

Payments to Comprehensive MCOs Account for Half of Total National Medicaid Spending (Pie Chart)
In Most MCO States, Spending on MCOs Makes Up at Least 40% of Total Medicaid Spending (Choropleth map)

3. Over three-quarters (78%) of all Medicaid beneficiaries received their care through comprehensive risk-based MCOs.

As of July 1, 2024, over 66 million Medicaid enrollees, or 78% of all Medicaid enrollees, received their care through risk-based MCOs. Thirty MCO states covered at least 75% of Medicaid beneficiaries in MCOs (Figure 4).

In Most States With Comprehensive MCOs, at Least 75% of Beneficiaries Are Enrolled in One (Choropleth map)

4. Children and adults are groups most likely to be enrolled in MCOs.

Among states that contract with comprehensive Medicaid MCOs, children and ACA expansion adults are the most likely to be enrolled in comprehensive MCOs (90% and 86%, respectively) (Figure 5). Nearly three quarters (72%) of “other adults” (e.g., parents and pregnant individuals) were enrolled in comprehensive MCOs (in 2023). People eligible for Medicaid through a disability pathway and adults ages 65+ are less likely to be enrolled in comprehensive MCOs, although states have been moving to include these groups in MCOs over time.

Among States with Comprehensive MCOs, Children and ACA Expansion Adults Have Highest Rates of Enrollment in Comprehensive MCOs (Bar Chart)

5. Five publicly traded firms account for almost half of MCO enrollment.

States contracted with a total of 291 Medicaid MCOs as of July 2024. MCOs represent a mix of private for-profit, private non-profit, and government plans. As of July 2024, a total of 15 firms operated Medicaid MCOs in two or more states (called “parent” firms), and these firms accounted for over 62% of enrollment in 2024 (Figure 6). Of the 15 parent firms, six are publicly traded, for-profit firms while the remaining nine are non-profit companies. Five firms – Centene, UnitedHealth Group, Elevance (formerly Anthem), Molina, and Aetna/CVS – account for 47% of all Medicaid MCO enrollment (Figure 6). All five are publicly traded companies ranked in the Fortune 500, and four are ranked in the top 100.

Five Fortune 500 Companies Have Almost Half of the Medicaid MCO Market (Donut Chart)

6. States make decisions about which services to carve in and out of MCO contracts. 

Although MCOs provide comprehensive services to beneficiaries, states may carve specific services out of MCO contracts to fee-for-service systems or limited benefit plans. Services frequently carved out include dental, non-emergency medical transportation (NEMT), and behavioral health. Among those enrolled in comprehensive MCOs, over two-thirds were also enrolled in at least one limited benefit prepaid health plan (PHP) and/or received fee-for-service (FFS) care outside of their MCO in 2023 (Figure 7).  People with disabilities (enrolled in an MCO) are most likely to also be enrolled in a limited benefit plan(s) and/or receive FFS care. Individuals enrolled in multiple plans (i.e., MCO + limited benefit PHP(s)) or delivery systems (i.e., MCO + FFS) may have to juggle multiple complex systems, with differing rules. Among MCO enrollees also enrolled in at least one limited benefit plan, over half were enrolled in a dental plan (Figure 8). (Note that while EPSDT requires states to provide comprehensive dental services for children, dental benefits are optional for adults. State Medicaid programs are required to provide necessary transportation for enrollees to and from providers (referred to as “non-emergency medical transportation” or “NEMT”).)

Among Enrollees in Comprehensive MCOs, Over Two-Thirds Were Also Enrolled in a Limited Benefit Plan and/or Received Services Through FFS (Stacked column chart)
Over Half of Enrollees in a Comprehensive MCO and Any Limited Benefit Plan Were Enrolled in a Dental Plan (Split Bars)

7. Each year, states develop MCO capitation rates that must be actuarially sound and may include risk mitigation strategies.

MCOs are at financial risk for services covered under their contracts, receiving a per member per month “capitation” payment for these services. While plans set rates in the commercial and Medicare Advantage markets, Medicaid managed care rates are developed by states and their actuaries and reviewed and approved by CMS. Capitation rates must be actuarially sound6 and are applied prospectively, typically for a 12-month rating period, regardless of changes in health care costs or utilization. States may use a variety of risk mitigation tools to ensure payments are not too high or too low, including risk sharing arrangements, risk and acuity adjustments, or medical loss ratios (MLR) remittance requirements. States may also incorporate quality metrics into the ongoing monitoring of their programs, including linking financial incentives (e.g., performance bonuses or withholds) to quality measures.

To limit the amount that plans can spend on administration and keep as profit, states are required to develop capitation rates for Medicaid to achieve an MLR of at least 85% in the rate year;7 however, there is no federal requirement for Medicaid plans to pay remittances to the state if they fail to meet the MLR standard.8 As of July 2025, 33 MCO states reported they always require remittance payments when an MCO does not meet state minimum MLR requirements, while three states indicated they sometimes require MCOs to pay remittances (Figure 9). Analysis of National Association of Insurance Commissioners (NAIC) data for the Medicaid managed care market show that average loss ratios (in aggregate across plans) increased from 88% in 2023 to 91% in 2024 (Figure 10) (the highest Medicaid managed care average loss ratio observed in the past decade – data not fully shown).

When significant enrollment, utilization, cost, and acuity changes began to emerge early in the COVID-19 public health emergency, CMS allowed states to modify managed care contracts, and many states implemented COVID-19 related “risk corridors” (where states and health plans agree to share profit or losses), allowing for the recoupment of funds. States and plans faced another period of heightened rate setting uncertainty when the continuous enrollment provision expired on March 31, 2023. During the “unwinding” of the pandemic-era Medicaid continuous enrollment provision, millions of people were disenrolled. Higher member risk and utilization patterns began to emerge by late 2023, and many states sought federal approval to adjust rates to address these shifts. The 2025 federal budget reconciliation law is expected to create rate setting challenges for states as the Medicaid provisions impacting enrollment and spending (e.g., work requirements, more frequent eligibility redeterminations, and provider tax and state directed payment (SDP) caps and reductions) roll out over the next several years.

Most MCO States Always Require Remittance Payments When an MCO Does Not Meet Minimum Medical Loss Ratio (MLR) Requirements (Choropleth map)
The Average Medical Loss Ratio for the Medicaid Managed Care Market Increased from 88% in 2023 to 91% in 2024 (Column Chart)

8. Changes to federal state directed payment rules may impact provider payments.

States are generally prohibited from contractually directing how a managed care plan pays its providers.9 Subject to CMS approval, however, states may implement certain “state directed payments” (SDPs) that require managed care plans to adopt minimum or maximum provider payment fee schedules, provide uniform dollar or percentage increases to providers (above base payment rates), or implement value-based payment (VBP) arrangements.10,11,12 Many states that contract with MCOs use SDPs to make uniform rate increases that are like FFS supplemental payments. Since SDPs were introduced in 2016, they have become a core component of reimbursement for many providers. Significant changes to state directed payment rules recently enacted through the 2025 federal budget reconciliation law and through the 2024 CMS Managed Care rule are expected to affect Medicaid provider payment rates.

The reconciliation law directs HHS to revise SDP regulations to cap the total payment rate for inpatient and outpatient hospital services, nursing facility services, and professional services at academic medical centers at 100% of the total published Medicare payment rate for states that have adopted the Medicaid expansion and at 110%13 of the total published Medicare payment rate for states that have not adopted the expansion. (Under previous rules, payments were capped at 100% of average commercial rates.14) Certain SDPs are initially grandfathered15 but will be reduced by ten percentage points each year (starting January 1, 2028) until they reach the allowable Medicare-related payment limit. The Congressional Budget Office (CBO) estimated revising the payment limit for state directed payments will result in $149 billion in federal savings over ten years (Figure 11). The 2025 reconciliation law also imposes significant new restrictions on states’ ability to generate Medicaid provider tax revenue, estimated to result in $226 billion in federal savings (Figure 11). In KFF’s 2025 Medicaid budget survey, states noted the new provider tax changes could result in significant state budget impacts as well as reductions in provider payment rates and state directed payments, which are often funded by provider taxes.

The 2025 Reconciliation Law Imposes Restrictions on Medicaid Financing and State Directed Payments That Could Have Implications for MCOs and Providers (Donut Chart)

In addition to the 2025 reconciliation law changes, beginning in July 2027, the 2024 Medicaid Managed Care rule requires states to incorporate all SDPs through capitation rate setting adjustments instead of using “separate payment terms,” which provide payments outside of base capitation rates.16 The change moves these payments from predictable, separate payments to more complex, risk-based arrangements, which may reduce states’ ability to target reimbursement for specific provider types. CMS eliminated separate payment terms due to concerns that these separate payments undermine the risk-based nature of managed care and are frequently driven by the financing of the non-federal share. MACPAC analysis found that over half of SDP arrangements approved between February 2023 and August 2024 were incorporated through separate payment terms.

9. CMS finalized rules to strengthen access standards, but the future of the rules is uncertain.  

In 2024, the Biden administration finalized major Medicaid regulations designed to promote quality of care and advance access to care for Medicaid enrollees. The Managed Care rule strengthens standards for timely access to care, including through the establishment of national maximum wait time standards for certain “routine” appointments, and states’ monitoring and enforcement efforts. These rules are complex and set to be implemented over several years. It remains uncertain whether the Trump administration will seek to roll back or revise provisions included in the 2024 managed care final rules. 

In 2024, CMS also finalized a rule focused on improving the prior authorization process including reducing approval wait times and improving transparency. A July 2023 OIG report found that Medicaid MCOs had an overall prior authorization denial rate of 12.5%–more than 2 times higher than the Medicare Advantage rate (Figure 12), raising concerns about prior authorization and access in Medicaid managed care. OIG recommendations (to CMS) included strengthening state monitoring of denials and appeals. MACPAC has highlighted similar concerns, making recommendations in the March 2024 Report to Congress focused on improving the appeals process and enhancing monitoring and oversight of MCOs. Beginning in June 2026, states will be required to report plan-level prior authorization data to CMS, including the total number prior authorization requests, denial and approval rates, the percentage of standard prior authorization requests that were approved after appeal, and average and median decision times as part of managed care annual program reports (see additional discussion below). 

Medicaid MCOs Have an Overall Prior Authorization Denial Rate More Than 2 Times Higher Than the Medicare Advantage Rate (Grouped column chart)

While health insurers are increasingly using AI to automate parts of the prior authorization process, there is limited information available about its use and impact within Medicaid managed care. MACPAC found that while there are potential benefits of automation in prior authorization such as administrative efficiencies and faster processing times, it may also pose potential risks or challenges depending on how it is administered and monitored. In the absence of comprehensive federal policy governing AI use and oversight in prior authorization, some states have taken steps to regulate or monitor use of AI by health plans. A 2025 KFF survey of state Medicaid directors found less than one-quarter of states reported requiring MCOs to disclose the use of AI in prior authorization processes as of July 1, 2025, although nearly half of MCO states reported knowledge of at least some of their contracted MCOs using AI in their prior authorization processes (Figure 13). Several states reported implementing new or expanded oversight activities or adopting other safeguards in FY 2025 or 2026 to support appropriate use of AI in MCO prior authorization processes.

Nearly Half of MCO States Reported MCO Use of AI in their Prior Authorization Processes as of July 1, 2025 (Choropleth map)

10. In recent years, CMS has taken steps to improve managed care program monitoring and transparency.

The 2016 Medicaid managed care final rule created new managed care reporting requirements for states. CMS, under the Biden administration, developed standard reporting templates (Table 1) and a variety of toolkits and released a series of informational bulletins (2021, 2022, 2023, 2024) to help states improve their monitoring and oversight of managed care programs. Transparency has the potential to promote accountability. To improve transparency, CMS began publicly posting the Managed Care Program Annual Report (MCPAR) and the MLR Summary Reports on Medicaid.gov in 2024. Posting data relating to the performance of individual MCOs may allow for comparison within and across states. However, limitations and challenges may exist.

Managed care rules finalized in 2024 include provisions aimed at further strengthening managed care transparency and monitoring, though the fate of these rules remains uncertain. In March 2026,  the Trump administration released an informational bulletin to aid states’ monitoring and oversight of managed care. CMS indicated it has implemented managed care oversight reviews that will leverage data collected from standardized reporting tools (e.g., MCPARs, network adequacy and access reports, and MLR summary reports). While CMS has continued to post state-submitted MCPAR and MLR summary reports on Medicaid.gov, it has also updated MCPAR requirements to remove certain questions related to access and network adequacy and plan-level MLR percentage reporting. These changes were introduced to reduce state burden and duplication with the separate network adequacy and access report and the MLR summary report; however, removing certain access and network adequacy questions may also reduce transparency as state network adequacy and access reports are not currently posted on Medicaid.gov. While the MLR Summary Reports are posted on Medicaid.gov, in the future, individuals will need to access the MLR Summary Reports separately to obtain plan-level MLR reporting information (as it will no longer be available in MCPAR reports). 

To Improve Transparency, CMS Began Publicly Posting Some State Managed Care Reports in 2024 (Table)

This work was supported in part by Arnold Ventures. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

Methods

Medicaid Managed Care Plan Enrollment by Eligibility Group

This section provides information on the methods used in the analysis of Medicaid managed care plan enrollment by eligibility group (Figures 5, 7, and 8).

Data: This analysis uses data available from the 2023 T-MSIS Research Identifiable Demographic-Eligibility and Claims Files to identify enrollment in Medicaid managed care plans.

Medicaid enrollee inclusion criteria: Individuals were included if they had at least one month of Medicaid enrollment in 2023.  This analysis identified Medicaid enrollment in a month (MM) in 2023 when CHIP_CD_01- CHIP_CD_12 equals 1 or, if missing CHIP_CD, when ELGBLTY_GRP_CD_01- ELGBLTY_GRP_CD_12 equals 1-60 or 69-75. Eligibility groups are defined using the most recent non-missing eligibility group in the calendar year (ELGBLTY_GRP_CD_LTST) and a person’s age as follows:

  • Seniors: Enrollees age 65 and older.
  • People with Disabilities: Enrollees under age 65 who are reported as eligible because of disability.
  • Adults: Enrollees ages 19 to 64 who are not eligible because of disability or newly eligible for Medicaid by the ACA Medicaid expansion.
  • Children: Enrollees ages 18 and younger who are not eligible because of disability.
  • ACA Expansion Adults: Enrollees ages 19 to 64 who were made newly eligible for Medicaid by the ACA Medicaid expansion.

State inclusion criteria: To assess the usability of states’ data, the analysis examined quality assessments from the DQ Atlas for enrollment in managed care and payments to comprehensive managed care plans and compared enrollment in comprehensive managed care with the Medicaid Managed care enrollment report:

  • This analysis excluded 10 states with no comprehensive Medicaid managed care plans in 2023 (Alabama, Alaska, Connecticut, Idaho, Maine, Montana, Oklahoma, South Dakota, Vermont, and Wyoming).
  • Among states with Medicaid managed care, the analysis excluded states that had both a “Unclassified/ Unusable” DQ Atlas assessment and more than 50% difference between the number of individuals enrolled in managed care in T-MSIS and the number reported in the Medicaid managed care enrollment report.
  • No states were excluded based on those criteria in 2023, leaving the other 40 states and D.C. (hereafter, treated as a state) which contract with comprehensive MCOs in the main analysis. Enrollees were assigned a state based on their T-MSIS STATE_CD.

Identifying enrollment in Medicaid managed care plans: To determine enrollment in plans in 2023, individuals were assigned as enrolled in any plans from the list MC_PLAN_ID_01_MM-MC_PLAN_ID_16_MM from the Managed Care Participation segment of the T-MSIS eligibility file. To determine enrollment in comprehensive MCOs, enrollment was limited to plans from the list MC_PLAN_ID_01_MM-MC_PLAN_ID_16_MM from the Managed Care Participation segment of the T-MSIS eligibility file which also have a positive capitated payment to a plan on behalf of the enrollee in the month (MM) in the T-MSIS Other Services (OT) file. This analysis calculated positive capitated payment to a plan on behalf of the enrollee in a month by summing the MDCD_PD_AMT for claims with CLM_TYPE_CD equal to ”2” (Medicaid or Medicaid-expansion Capitated Payment) having a SRVC_END_DT in the month in 2023. Capitated payments were attributed to a specific plan using the MC_PLAN_ID from the OT file.

Identifying Medicaid managed care plan types: This analysis used the Managed Care Participation segment of the T-MSIS eligibility file to map each plan as identified by its MC_PLAN_ID and STATE_CD to its plan type using the associated MC_PLAN_TYPE_CD. In cases where the plan as identified by MC_PLAN_ID and STATE_CD had more than one associated MC_PLAN_TYPE_CD in the Managed Care Participation segment of the T-MSIS eligibility file, the MC_PLAN_TYPE_CD with the largest number of enrollees in that plan was selected. This virtually always matches the MC_PLAN_TYPE_CD from the TAF Annual Managed Care Plan (APL).

KFF created indicator variables to assign the more detailed plan types into the following larger categories. Note that plan types are not mutually exclusive. For example, while there are no plans in 2023 have a MC_PLAN_TYPE_CD of 19 (Individual is enrolled in Long-Term Services and Supports (LTSS) and Mental Health (MH) PIHP), plans of this plan type would fall under both behavioral health and long-term care. KFF grouped the more detailed plan types into the following larger categories:

  • Comprehensive managed care: having a MC_PLAN_TYPE_CD with values of 01 (Comprehensive managed care) or 04 (Health Insuring Organization).
  • Program of All-Inclusive Care for the Elderly (PACE): having a MC_PLAN_TYPE_CD with values of 17 (PACE).
  • Long-term care: having a MC_PLAN_TYPE_CD with values of 07 (Long Term Care Services and Supports (LTSS) PIHP) or 19 (Individual is enrolled in Long-Term Services and Supports (LTSS) and Mental Health (MH) PIHP).
  • Behavioral health: having a MC_PLAN_TYPE_CD with values of 08 (Mental Health (MH) PIHP), 09 (Mental Health (MH) PAHP), 10 (Substance Use Disorders (SUD) PIHP), 11 (Substance Use Disorders (SUD) PAHP), 12 (Mental Health (MH) and Substance Use Disorders (SUD) PIHP), 13 (Mental Health (MH) and Substance Use Disorders (SUD) PAHP), or 19 (Individual is enrolled in Long-Term Services and Supports (LTSS) and Mental Health (MH) PIHP).
  • Dental: having a MC_PLAN_TYPE_CD with values of 14 (Dental PAHP).
  • Transportation: having a MC_PLAN_TYPE_CD with values of 15 (Transportation PAHP).
  • Other limited benefit: having a MC_PLAN_TYPE_CD with values of 05 (Medical-only Prepaid Inpatient Health Plan (PIHP)), 06 (Medical-only Prepaid Ambulatory Health Plan (PAHP)), 16 (Disease Management PAHP), 18 (Pharmacy PAHP), or 20 (Other).
  • Any limited benefit: having a MC_PLAN_TYPE_CD with values defined above as long-term care, behavioral health, dental, transportation, or other limited benefit.
  • Primary care case management (PCCM): having a MC_PLAN_TYPE_CD with values of 02 (Traditional Primary Care Case Management (PCCM) Provider arrangement), or 03 (Enhanced PCCM Provider arrangement).

Managed long-term care (LTC) limited benefit plans: Using the definitions above, in 2023, virtually zero enrollees in long-term care limited benefit plans were concurrently enrolled in a comprehensive MCO. The likely reason there are no enrollees in comprehensive MCOs and limited benefit LTC plans is that most enrollees in limited benefit LTC plans also have Medicare. For such people (“dual-eligible individuals”), Medicaid covers medical acute and post-acute care, including skilled nursing facility services and home health care. Medicaid wraps around Medicare coverage by paying Medicare premiums and in most cases, cost sharing. Most people with Medicare and Medicaid (“dual-eligible individuals”) also are eligible for Medicaid benefits that are not otherwise covered by Medicare, including long-term carevision, and dental. It is unlikely that many dual-eligible individuals who are enrolled in LTC plans would also use many benefits provided through a comprehensive MCO.

Endnotes

  1. PCCM is a managed fee-for-service (FFS) based system in which beneficiaries are enrolled with a primary care provider who is paid a small monthly fee to provide case management services in addition to primary care. ↩︎
  2. While MCOs are the predominant form of Medicaid managed care, millions of other beneficiaries receive at least some Medicaid services, such as behavioral health or dental care, through limited-benefit risk-based plans, known as prepaid inpatient health plans (PIHPs) and prepaid ambulatory health plans (PAHPs). ↩︎
  3. Sparer M. 2012. Medicaid managed care: costs, access, and quality of care. Res. Synth. Rep. 23, Robert Wood Johnson Found., Princeton, NJ ↩︎
  4. Daniel Franco Montoya, Puneet Kaur Chehal, and E. Kathleen Adams, “Medicaid Managed Care’s Effects on Costs, Access, and Quality: An Update,” Annual Review of Public Health 41:1 (2020):537-549 ↩︎
  5. Medicaid and CHIP Payment and Access Commission (MACPAC), “Managed care’s effect on outcomes,” (Washington, DC: MACPAC, 2018), https://www.macpac.gov/subtopic/managed-cares-effect-on-outcomes/ ↩︎
  6. Federal regulations require actuarially sound capitation rates that are “projected to provide for all reasonable, appropriate, and attainable costs that are required under the terms of the contract and for the operation of the MCO, PIHP, or PAHP for the time period and the population covered under the terms of the contract . . .” 42 CFR §438.4(a) ↩︎
  7. The 85% minimum MLR is the same standard that applies to Medicare Advantage and private large group plans. ↩︎
  8. The 2024 Consolidated Appropriations Act included a financial incentive to encourage certain states to collect remittances from Medicaid MCOs that do not meet minimum MLR requirements. ↩︎
  9. 42 CFR Sections 438.6(c) and 438.60. ↩︎
  10. Permissible under 42 CFR Section 438.6(c). ↩︎
  11. In creating state directed payments (in 2016), CMS aimed to help states ensure access to adequate provider networks and to increase use of VBP arrangements. ↩︎
  12. State directed payments must meet federal requirements (e.g., must be tied to utilization and delivery of services, be distributed equally to specified providers, and not be conditioned on participation in intergovernmental transfer (IGT) agreements) (42 CFR §438.6(c)). ↩︎
  13. For states that newly adopt the ACA Medicaid expansion after enactment, the cap at 100% of the Medicare payment rate applies at the time coverage is implemented even for SDPs that had prior approval. ↩︎
  14. The managed care rules finalized in 2024 permitted states to pay hospitals and nursing facilities at the average commercial payment rate (ACR) when using directed payments, (higher than the Medicare payment ceiling used for other Medicaid FFS supplemental payments). ↩︎
  15. Specifies that the grandfathering clause only applies to SDPs in rating periods occurring 180 business days before or after enactment of the bill (July 4, 2025) and that (1) for rural hospitals, states received approval or made a “good faith effort” to receive approval prior to enactment of the bill; (2) for all other providers, states received approval or made a “good faith effort” to receive approval prior to May 1, 2025; or (3) states applied for approval prior to enactment of the bill. ↩︎
  16. “Separate payment terms are a type of payment method that provides a fixed amount of directed payment funding outside of the base capitation rate. States often use separate payment terms to make large uniform rate increases…Under the 2024 managed care rule, separate payment terms will be eliminated effective for the first rating period beginning on or after July 9, 2027, and all directed payment arrangements will henceforth be required to be incorporated through capitation rate adjustments. CMS eliminated separate payment terms due to concerns that payment streams separate from capitation rates undermine the risk-based nature of managed care and are often driven by the underlying financing of the non-federal share.” Medicaid and CHIP Payment And Access Commission, “Directed Payments in Medicaid Managed Care,” October 2024 Issue Brief, p.6, https://www.macpac.gov/wp-content/uploads/2024/10/Directed-Payments-in-Medicaid-Managed-Care.pdf. ↩︎

The President’s Malaria Initiative and Other U.S. Government Global Malaria Efforts

Published: Mar 23, 2026

Editorial Note: Originally published in June 2009, this resource is updated as needed to reflect the latest developments.

Key Facts

  • About half of the world’s population is at risk of being infected with malaria. In 2024, there were an estimated 282 million cases of malaria and 610,000 deaths from malaria worldwide. Sub-Saharan Africa is the hardest hit region in the world.
  • While gains have been made over the past two decades in increasing access to malaria prevention and treatment, many challenges (including drug and insecticide resistance and climate change impacts) continue to complicate malaria control efforts in hard-hit areas. In promising developments in recent years, new tools against malaria, including dual-ingredient insecticide-treated nets and the world’s first malaria vaccines, are being integrated into broader health systems.
  • The U.S. government (U.S.) has been involved in global malaria activities since the 1950s and, today, is the largest donor government to global malaria efforts.
  • Historically, U.S. malaria efforts included activities primarily through the U.S. President’s Malaria Initiative (PMI), which was overseen by the U.S. Global Malaria Coordinator, as well as through other U.S. activities, collectively reaching approximately 30 countries.
  • U.S. funding for malaria control efforts and research activities was approximately $1 billion in FY 2026, up slightly from $963 million in FY 2017. Additionally, the U.S. is the largest donor to the Global Fund to Fight AIDS, Tuberculosis and Malaria (Global Fund), which in turn is the largest overall funder of malaria efforts in the world.
  • Since the beginning of the second Trump administration, the U.S. global health response has undergone a significant change (including a reorganization of foreign assistance, reductions in funding, and cancellation of programs), fundamentally altering the global health landscape as well as PMI and other U.S. global malaria efforts.

Global Situation1

Malaria is one of the world’s most common and serious tropical diseases, with about half the world’s population at risk of being infected with malaria. Although preventable and treatable, malaria causes significant morbidity and mortality, with the greatest numbers of cases and deaths in resource-poor regions and among young children.2

Malaria: an infectious disease caused by certain Plasmodium parasites, which are transmitted to humans by Anopheles mosquitoes. This mosquito thrives in warm, tropical, and subtropical climates. Infection with malaria parasites can cause common symptoms like fever, chills, and flu-like illness and lead to anemia, causing severe malaria disease and sometimes death. When the infected parasites clog small blood vessels in the brain, causing cerebral malaria, it can also be fatal.3

Strategies and efforts to address malaria have evolved over time, with global eradication efforts waning in the 1970s, resulting in rising rates.4 In the late 1990s, malaria began to receive renewed attention, particularly after the 1998 creation of the Roll Back Malaria Partnership (RBM), now referred to as the RBM Partnership to End Malaria.5 In 2000, all nations agreed to global malaria targets as part of Millennium Development Goal 6 (combat HIV/AIDS, malaria, and other diseases). Since then, expanded efforts by the U.S. government, other donor governments, multilateral institutions, and affected countries have helped to increase access to malaria prevention and treatment and reduce cases and deaths, and there has been, at times, discussion of the possibility of finally eradicating the disease.6

Today global malaria activities are focused on sustaining, improving, and expanding efforts to control the disease. Still, the rate of progress has stalled in some countries recently, and many challenges continue to complicate malaria control efforts in countries with ongoing malaria transmission, including poverty, poor sanitation, weak health systems, limited disease surveillance capabilities, natural disasters, armed conflict, migration, climate change, and the presence of counterfeit and/or sub-standard antimalarial drugs.7

Morbidity and Mortality8

  • WHO estimates that there were approximately 282 million cases of malaria and 610,000 deaths, mostly among children under the age of five, in 2024. Overall, substantial scale-up of malaria interventions helped reduce the malaria case incidence and death rates over the past two decades, though case incident rates were slightly higher in 2024 than in 2023 due to increased rates in some countries.
  • Multidrug-resistant malaria is a widespread and recurring problem, and while highly-effective artemisinin-based combination therapies (ACTs) have been introduced to treat drug-resistant strains, evidence suggests ACT resistance is occurring in parts of Asia and Africa.9 Resistance to insecticides has emerged as a problem in Africa, the Americas, Eastern Mediterranean, South-East Asia, and the Western Pacific.10
  • Certain groups, particularly pregnant women and children, are more vulnerable. Making up 76% of all malaria deaths in the Africa region, children under five are especially at-risk of malaria infection, because they lack developed immune systems to protect against the disease. Other high-risk groups include people living with HIV/AIDS, travelers, refugees, displaced persons, and migrant workers entering endemic areas.

Interventions

Malaria control efforts involve a combination of prevention and treatment strategies and tools, such as:

  • insecticide-treated bed nets (ITNs),11
  • indoor residual spraying (IRS) with insecticides,
  • diagnosis and treatment with antimalarial drugs, particularly artemisinin-based combination therapies (ACTs),12
  • intermittent preventive treatment in pregnancy (IPTp, a drug treatment for pregnant women that prevents complications from malaria for a woman and her unborn child),
  • perennial malaria chemoprevention (PMC, formerly called intermittent preventive treatment in infants (IPTi), a drug treatment aimed at reducing adverse effects of malaria in children belonging to age groups at high risk of severe malaria), and
  • seasonal malaria chemoprevention (SMC, a treatment course administered at monthly intervals to children belonging to age groups at high risk of severe malaria during the high malaria transmission season).

More recently, in 2021, the World Health Organization (WHO) recommended, and in 2022 prequalified, the first malaria vaccine (RTS,S/AS01 or RTS,S) and in 2023 recommended and prequalified a second malaria vaccine (R21/Matrix-M or R21), both of which have been shown to be safe and effective in preventing malaria in children during clinical trials.13 As of February 2026, 25 countries offered these vaccines through routine childhood immunization programs, with more planning to introduce or scale them up, and across these countries, over 10 million children per year are targeted for malaria vaccination.14 Roll-out of these vaccines will depend on financing and country decisions about whether to adopt the vaccines as part of their national malaria control strategies, among other things.

Access to prevention and treatment services has grown over time, as ITN coverage has increased and the number of ACT treatments procured by the public and private sectors has expanded substantially.15

Global Goals

Since the late 1990s, new initiatives and financing mechanisms have helped increase attention to malaria and contributed to efforts to achieve global goals; these include the RBM Partnership to End Malaria, a global framework established in 1998 for coordinating malaria efforts among donor governments, major UN agencies, international organizations, and affected countries, among others; and the Global Fund to Fight AIDS, Tuberculosis and Malaria (Global Fund), an independent, international financing institution established in 2001 that provides grants to countries to address TB, HIV, and malaria (see the KFF fact sheet on the U.S. and the Global Fund).16

These and other efforts work toward achieving major global malaria goals that have been set through:

  • Sustainable Development Goals (SDGs). Adopted in 2015, the SDGs aim to end the malaria epidemic by 2030 under SDG Goal 3, which is to “ensure healthy lives and promote well-being for all at all ages.”17
  • Global Technical Strategy for Malaria (GTS). Developed in close alignment with the RBM Partnership and adopted by the World Health Assembly in 2015, the GTS includes the goals of reducing malaria incidence and mortality rates by at least 90% by 2030, eliminating the disease in at least 35 new countries, and preventing the disease’s re-establishment in countries that are malaria free.

With these goals, the GTS sets out a vision for countries to accelerate progress towards malaria elimination, and globally, more countries are moving towards elimination. Between 2000 and 2024, 26 countries (Algeria, Argentina, Armenia, Azerbaijan, Belize, Bhutan, Cabo Verde, China, Egypt, El Salvador,  Iraq, Kazakhstan, Kyrgyzstan, Malaysia, Maldives, Morocco, Oman, Paraguay, Saudi Arabia, Sri Lanka, Syrian Arab Republic, Tajikistan, Turkey, Turkmenistan, United Arab Emirates, and Uzbekistan) that were malaria endemic in 2000 have attained three consecutive years of zero indigenous malaria cases and are therefore recognized as having eliminated the disease.18 In 2024, of 80 malaria-endemic countries, 46 countries worldwide were reported to have been nearing elimination.19Most recently, in March 2024, WHO along with Ministers of Health in Africa and other partners convened a Malaria Ministerial Conference and signed a declaration committing to accelerating action to end deaths from malaria.20

U.S. Government Efforts

Current Status

Involved in global malaria activities since the 1950s, the U.S. government (U.S.) has historically been the largest government donor to malaria efforts.21 It is also the largest donor to the Global Fund, which in turn is the largest overall funder of malaria efforts in the world.22 Since the beginning of the second Trump administration, however, the U.S. global health response has undergone significant shifts, disruption, and retraction, fundamentally altering the global health landscape and U.S. global malaria efforts through the President’s Malaria Initiative (PMI) in particular. Now, as the Trump administration reorganizes foreign aid, it is unclear what the future holds for PMI; multilateral cooperation on malaria (particularly after the U.S. withdrawal from the World Health Organization, or WHO; see below); and malaria vaccine roll-out (especially after the U.S. announced it will withhold funding from Gavi). Additionally, the future of U.S. support for U.S. global malaria research efforts is uncertain as the Trump administration reduces and eliminates foreign research grants. (See the KFF fact sheet on the status of PMI and other U.S. malaria efforts.)

More recently, in September 2025, the State Department released its “America First Global Health Strategy,” which details how the U.S. intends to engage in global health moving forward, including through bilateral health agreements, or Memorandums of Understanding (MOU), with partner countries (see the KFF tracker on these agreements). The strategy is focused on a subset of U.S. global health areas, including malaria, and reemphasizes the U.S. commitment to support the goals laid out by the GTS. The strategy does not, however, mention PMI, and it is unclear how much emphasis will be on malaria efforts going forward, including whether the funding appropriated by Congress for malaria will fully be spent by the administration.

History

The U.S. government’s international response to malaria began in the 1950s through activities at the U.S. Centers for Disease Control and Prevention (CDC) and U.S. Agency for International Development (USAID); early efforts focused on technical assistance but also included some direct financial support for programs overseas.

Starting in the early 2000s, the U.S. assigned a heightened priority to and provided greater funding for bilateral and multilateral malaria efforts. In 2003, the U.S. Leadership Against HIV/AIDS, Tuberculosis, and Malaria Act of 2003 (the legislation that created PEPFAR, the expanded U.S. government response to global AIDS) authorized five years of funding for bilateral malaria efforts and the Global Fund. In 2005, the U.S. launched the President’s Malaria Initiative (PMI), a five-year effort to address malaria in 15 hard-hit African countries, which has since been extended and expanded. In 2008, the Lantos-Hyde U.S. Global Leadership Against HIV/AIDS, Tuberculosis, and Malaria Reauthorization Act of 2008 (which reauthorized PEPFAR) authorized another five years of funding and codified the position of the U.S. Global Malaria Coordinator.23 (See the KFF fact sheet on PEPFAR, the KFF fact sheet on the Global Fund, the KFF brief on PEPFAR reauthorization legislation, and the KFF dashboard monitoring progress toward global malaria targets in PMI countries.)

President’s Malaria Initiative (PMI)24

Launched in 2005, the President’s Malaria Initiative (PMI) was an interagency initiative to address global malaria led by USAID, until USAID’s recent dissolution, and implemented in partnership with CDC. It was overseen by a U.S. Global Malaria Coordinator, who was appointed by the President and reported to the USAID Administrator, and an Interagency Advisory Group made up of representatives from USAID, CDC, the National Institutes of Health (NIH), the Department of Defense (DoD), the State Department, the Peace Corps, the National Security Council, and other U.S. government agencies.25 USAID served as the lead implementing agency for U.S. global malaria efforts, primarily through PMI, with other agencies also carrying out malaria activities. Collectively, prior to the second Trump administration, U.S. bilateral activities reached approximately 30 countries.26 Now, amid the reorganization of foreign aid and dissolution of USAID, it is unclear how much of a focus on and funding for malaria will continue.

Goals

In 2021, the U.S. released the President’s Malaria Initiative Strategy 2021-2026; its goals included:

  • reducing malaria mortality by one-third from 2015 levels in high-burden PMI-supported countries,27
  • achieving a greater than 80% reduction from PMI’s original 2000 baseline levels,
  • reducing malaria morbidity in PMI-supported countries with high and moderate malaria burden by 40% from 2015 levels,28 and
  • assisting at least ten PMI-supported countries to meet the WHO criteria for national or sub-national elimination and at least one country in the Greater Mekong subregion to reach national elimination.

The strategy also stated that these efforts contribute to longer term goals, such as elimination of malaria in a growing number of countries, and aligns with global priorities.29 Today, these PMI goals are not reflected in the America First Global Health Strategy, although it  does reiterate the U.S. commitment to support the global malaria goals laid out by the GTS.

Key Activities30

Prior to the current administration, PMI activities focused on expanding access to and the use of six key malaria control interventions: insecticide-treated bed nets (ITNs), indoor residual spraying (IRS) with insecticides, entomological monitoring, intermittent preventive treatment in pregnancy (IPTp),31 diagnosis of malaria and treatment with artemisinin-based combination therapies (ACTs), and seasonal malaria chemoprevention (SMC).32

They also included a range of malaria control activities, including technical assistance to affected countries, monitoring and evaluation, supply chain management, and commodity procurement (since the start of PMI, U.S. support for commodities, such as ITNs, insecticides, and antimalarial drugs, like ACTs, has increased significantly33). Additionally, PMI supported activities in the following areas: behavior change communication, health systems strengthening, monitoring and evaluation, operational research, elimination, and community health.34

USAID had also supported regional efforts in Latin America and the Caribbean, including providing technical assistance to support countries in tailoring their approaches for malaria control through its Amazon Malaria Initiative.35 CDC provided technical assistance to these regional efforts and was also designated as the WHO Collaborating Center for Prevention and Control of Malaria,36 though with the U.S. withdrawal from WHO, the future of this partnership remains an open question (see also the KFF fact sheet on the U.S. and WHO). It also remains to be seen how announcements of global health reductions at CDC and the withholding of funding to Gavi could further affect malaria control efforts, including the roll-out of the malaria vaccine.

Additionally, NIH and DoD have been involved in malaria research and development (R&D). NIH has been the lead agency for U.S. malaria R&D efforts (including its International Centers of Excellence for Malaria Research program, which established a global network of malaria research centers in 2010 to support research activities in malaria-endemic countries).37 DoD also supported extensive R&D efforts as well as worldwide malaria disease surveillance, and technical assistance and capacity building with local partners.38 

Countries Reached

Prior to the current administration, PMI spanned 27 sub-Saharan African “focus countries” (gradually scaled up from three countries in FY 2006), as well as three countries in Southeast Asia under the PMI Greater Mekong Subregion regional initiative.39 Focus countries were selected based on the following criteria:40

  • high malaria burden,
  • alignment of National Malaria Control Plan (NMCP) with WHO standards,
  • country capacity to implement national control policies,
  • willingness to partner with the US in fighting malaria, and
  • involvement of other international donors (e.g., Global Fund; World Bank).

Both USAID and CDC stationed staff in each PMI focus country, though USAID staff were recalled to the U.S. due to the Trump administration’s dissolution of USAID and reorganization of foreign assistance.

Beyond PMI, the Amazon Malaria Initiative spanned several countries in Latin America and the Caribbean, and other U.S. activities may reach more countries. For example, CDC and USAID had carried out activities in additional countries in sub-Saharan Africa, the Caribbean, and Asia.41

Multilateral Efforts

The U.S. has partnered with international institutions providing support for global malaria funding mechanisms. Key partners have included WHO (although the second Trump administration officially withdrew the U.S. as a member of WHO, halting governance participation, technical assistance, and funding to the organization), the RBM Partnership, and the World Bank. Additionally, the U.S. government is the largest donor to the Global Fund, which has signed over $22 billion in funding for malaria programs worldwide and is the largest overall funder of global malaria efforts.42

Funding43

U.S. funding for malaria, which is specified by Congress in annual appropriations bills and includes support for PMI as well as other malaria control efforts and research activities, has increased slightly over the past decade from $963 million in FY 2017 to approximately $1 billion in FY 2026 (see figure for the latest information). Additional U.S. support for malaria activities is provided through its contribution to the Global Fund. (See the KFF fact sheet on the U.S. Global Health Budget: Malaria/PMI and the KFF budget tracker for more details on historical appropriations for U.S. global malaria efforts.)

Most U.S. bilateral funding for malaria has been provided through the Global Health Programs (GHP) account at USAID with additional funding provided through NIH, CDC, and DoD. In FY 2026, with the dissolution of USAID, funding through the GHP account shifted to the State Department. The majority of U.S. malaria funding has been directed to PMI focus countries, with additional funding directed to other bilateral and regional malaria efforts as well as malaria research activities. It is still unclear, however, whether the funding appropriated by Congress for malaria will fully be spent by the administration.

U.S. Funding for Global Malaria, FY 2017 - FY 2026 (Column Chart)

Endnotes


  1. WHO, World Malaria Report 2025, 2025. ↩︎
  2. WHO, World Malaria Report 2025, 2025. WHO, “Malaria fact sheet,” webpage, Dec. 2025, https://www.who.int/en/news-room/fact-sheets/detail/malaria. ↩︎
  3. CDC Malaria website, https://www.cdc.gov/malaria/hcp/clinical-features/ ↩︎
  4. M. Tanner, D. de Savigny, “Malaria Eradication Back on the Table,” Bulletin of WHO, Vol. 86, No. 2, 2008. ↩︎
  5. Launched by the World Health Organization, the United Nations Children’s Fund, the United Nations Development Programme, and the World Bank “to convene and coordinate an inclusive, multisectoral response to control, eliminate and ultimately eradicate malaria.” RBM Partnership to End Malaria, “RBM Partnership to End Malaria About Us,” webpage, https://endmalaria.org/who-we-are/about-us. ↩︎
  6. M. Tanner, D. de Savigny, “Malaria Eradication Back on the Table,” Bulletin of WHO, Vol. 86, No. 2, 2008; WHO, World Malaria Report 2025, 2025. ↩︎
  7. WHO, World Malaria Report 2025, 2025; M. Tanner and D. de Savigny, “Malaria Eradication Back on the Table,” Bulletin of WHO, Vol. 86, No. 2, 2008; RBM, The Global Malaria Action Plan, 2008; K. Senior, “Climate Change and Infectious Disease: A Dangerous Liaison?”, The Lancet. Vol. 8, No. 2,  2008; CDC, “Preventing Malaria While Traveling,” webpage, https://www.cdc.gov/malaria/prevention/index.html. ↩︎
  8. WHO, World Malaria Report 2025, 2025; WHO, “Malaria fact sheet,” webpage, Dec. 2025, https://www.who.int/en/news-room/fact-sheets/detail/malaria. ↩︎
  9. WHO, World Malaria Report 2025, 2025; Global Plan for Artemisinin Resistance Containment (GPARC), 2011; Emergency Response to Artemisinin Resistance in the Greater Mekong Subregion: Regional Framework for Action 2013-2015, April 2013; Status report on artemisinin resistance and ACT efficacy, December 2019, accessed here: https://apo.who.int/publications/i/item/status-report-on-artemisinin-resistance-and-act-efficacy; “Malaria: Artemisinin partial resistance” webpage, https://www.who.int/news-room/questions-and-answers/item/artemisinin-resistance. WHO, Strategy to respond to antimalarial drug resistance in Africa, 2022. ↩︎
  10. To address insecticide resistance, the WHO issued updated guidance in 2023 recommending the use of dual active ingredient ITNs. WHO, Press release: WHO publishes recommendations on two new types of insecticide-treated nets, March 2023. ↩︎
  11. In 2023, WHO published recommendations on two new types of dual active ingredient insecticide-treated mosquito nets, designed to provide greater protection against malaria than previously recommended nets. WHO, World Malaria Report 2025, 2025. ↩︎
  12. For a detailed description of WHO’s recommendations on the use of drugs to prevent malaria in high-risk groups, please see WHO’s Guidelines for Malaria. WHO, Guidelines for Malaria, August 2025. ↩︎
  13. Vaccines that are added to WHO’s prequalification list are endorsed by WHO as having gone through comprehensive evaluation to determine that the vaccine is safe and effective. WHO, Press release: WHO recommends groundbreaking malaria vaccine for children at risk, October 2021. WHO, Press release: WHO recommends R21/Matrix-M vaccine for malaria prevention in updated advice on immunization, October 2023. WHO, Press release: WHO prequalifies a second malaria vaccine, a significant milestone in prevention of the disease, December 2023. ↩︎
  14. WHO,  “Malaria vaccines (RTS,S and R21)” webpage, accessed: https://www.who.int/news-room/questions-and-answers/item/q-a-on-rts-s-malaria-vaccine. ↩︎
  15. WHO, Malaria Prevention Works: let’s close the gap, April 2017. WHO, World Malaria Report 2025, 2025. ↩︎
  16. RBM Partnership to End Malaria website, https://endmalaria.org/; Global Fund website, https://www.theglobalfund.org/en/. ↩︎
  17. UN, Transforming our world: the 2030 Agenda for Sustainable Development, 2015. ↩︎
  18. WHO, World Malaria Report 2025, 2025. ↩︎
  19. Countries that were malaria endemic in 2000 and reported fewer than 10,000 malaria cases are said to be “nearing elimination.” WHO, World Malaria Report 2025, 2025. ↩︎
  20. WHO, Press release: African health ministers commit to end malaria deaths, March 2024. ↩︎
  21. WHO, World Malaria Report 2025, 2025. ↩︎
  22. KFF: Global Financing for Malaria: Trends & Future Status, 2014; Mapping the Donor Landscape in Global Health: Malaria, 2013; World Malaria Report 2025, 2025. KFF analysis of OECD DAC CRS database, December 2025. ↩︎
  23. U.S. Congress, Public Law 108-25, May 27, 2003; U.S. Congress, Public Law 110-293, July 30, 2008. ↩︎
  24. PMI website, https://web.archive.org/web/20250117222257/https:/www.pmi.gov/; USAID, “The President’s Malaria Initiative,” fact sheet, May 2023; PMI, The President’s Malaria Initiative: Eighteenth Annual Report to Congress, 2024; PMI, FY 2017 Greater Mekong Subregion Malaria Operational Plan, 2017; CDC, “President’s Malaria Initiative,” webpage, https://web.archive.org/web/20240424052020/https:/www.cdc.gov/malaria/malaria_worldwide/cdc_activities/pmi.html. ↩︎
  25. PMI. “Leadership” webpage, accessed: https://web.archive.org/web/20250122153738/https:/www.pmi.gov/about-us/#leadership. ↩︎
  26. KFF analysis of data from the U.S. Foreign Assistance Dashboard website, http://www.foreignassistance.gov, accessed February 2025. PMI, Eighteenth Annual Report to Congress, 2024. CDC, “Malaria’s Global Malaria Activities” webpage, https://web.archive.org/web/20240303033903/https:/www.cdc.gov/malaria/malaria_worldwide/cdc_activities/index.html. ↩︎
  27.  The countries targeted by PMI that are considered high burden include Angola, Benin, Burkina Faso, Cameroon, Côte d’Ivoire, Democratic Republic of the Congo, Ghana, Guinea, Liberia, Mali, Mozambique, Niger, Nigeria, and Sierra Leone. PMI, President’s Malaria Initiative Strategy 2021-2026, 2021. ↩︎
  28. The countries targeted by PMI that are considered moderate burden include Madagascar, Malawi, Tanzania, Uganda, and Zambia. PMI, President’s Malaria Initiative Strategy 2021-2026, 2021. ↩︎
  29. PMI, President’s Malaria Initiative Strategy 2021-2026, 2021. ↩︎
  30. PMI, “What We Do,” webpage, https://web.archive.org/web/20241219104218/https:/www.pmi.gov/what-we-do/. ↩︎
  31. Another preventive treatment includes PMC in countries where that treatment is relevant. To date only Sierra Leone had prioritized PMC for PMI support in their NMCPs. PMI, President’s Malaria Initiative Technical FY 2024 Guidance. ↩︎
  32. SMC is only recommended for geographic regions where the malaria transmission season is four months or less. PMI, President’s Malaria Initiative Technical FY 2024 Guidance. ↩︎
  33. PMI, “Malaria Operational Plans,” webpage, https://web.archive.org/web/20240618003157/https:/www.pmi.gov/resources/malaria-operational-plans-mops/. ↩︎
  34. PMI, “What We Do,” webpage, https://web.archive.org/web/20241219104218/https:/www.pmi.gov/what-we-do/. ↩︎
  35. USAID, “Malaria: Countries,” webpage, https://web.archive.org/web/20231004093249/https:/www.usaid.gov/global-health/health-areas/malaria/countries. CDC, “CDC’s Global Malaria Activities” webpage, https://web.archive.org/web/20240303033903/https:/www.cdc.gov/malaria/malaria_worldwide/cdc_activities/index.html. ↩︎
  36. CDC, “CDC’s Malaria Program,” fact sheet, 2023. ↩︎
  37. NIAID: “Malaria,” webpage, https://www.niaid.nih.gov/diseases-conditions/malaria; “International Centers of Excellence for Malaria Research (ICEMR),” webpage, https://www.niaid.nih.gov/research/excellence-malaria-research↩︎
  38. KFF, The Department of Defense and Global Health: Infectious Disease Efforts, 2013. ↩︎
  39. In September 2017, PMI announced the addition of five new focus countries, bringing the number of PMI programs to 24 in sub-Saharan Africa. PMI. Press release: PMI Launches and Expands in West and Central Africa, September 2017; In April 2023, PMI announced its intention to expand to three more sub-Saharan African countries, increasing the total number of partner countries reached to 30 (27 in Sub-Saharan Africa and 3 in the Greater Mekong Region); the three additional countries include Burundi, The Gambia, and Togo. PMI, U.S. President’s Malaria Initiative Announces Plans to Expand to New Partner Countries, April 2023; PMI, “Where We Work,” webpage, https://web.archive.org/web/20250122154423/https:/www.pmi.gov/where-we-work/. ↩︎
  40. PMI, 2011 PMI Fifth Annual Report, April 2011. ↩︎
  41. CDC, “CDC’s Global Malaria Activities,” webpage, https://web.archive.org/web/20240303033903/https:/www.cdc.gov/malaria/malaria_worldwide/cdc_activities/index.html. ↩︎
  42. Global Fund, Global Fund Data Explorer: https://data.theglobalfund.org/; accessed January 2026. KFF analysis. ↩︎
  43. KFF analysis of data from the Office of Management and Budget, Agency Congressional Budget Justifications, Congressional Appropriations Bills, and the U.S. Foreign Assistance Dashboard website, www.foreignassistance.gov. ↩︎

What to Know About Medicare Coverage of Telehealth

Published: Mar 19, 2026

Editorial Note

This explainer was updated on March 19, 2026 to include the latest data about telehealth in Medicare.

Introduction

Use of telehealth, which includes a range of health care services delivered to patients by providers at a separate location, has grown rapidly in recent years, among both privately-insured patients and Medicare beneficiaries. Prior to the COVID-19 pandemic, telehealth utilization in traditional Medicare was very low, but it rose dramatically in 2020 following temporary measures put in place at the start of the COVID-19 public health emergency that greatly expanded the scope of Medicare coverage of telehealth. Since early 2021 telehealth use has declined steadily, but it remains higher than pre-pandemic levels, with considerable variation by level of income, disability, and urban versus rural location, among other factors.

Congress has repeatedly extended several pandemic-era flexibilities around Medicare coverage of telehealth, but with a few key exceptions (discussed below), most pandemic-era telehealth flexibilities remain temporary. This leaves them vulnerable if authorization lapses, such as during the government shutdown that began on October 1, 2025, when Medicare coverage of many telehealth services briefly lapsed before being retroactively reinstated on November 12, and creates uncertainty for both providers and beneficiaries. Many of Medicare’s telehealth flexibilities were recently granted a two-year extension under the Consolidated Appropriations Act of 2026 and will remain in effect through December 31, 2027, while a handful have been incorporated into the program on a permanent basis through prior legislation and through the annual physician fee schedule rulemaking process. There is bipartisan support for proposed legislation to permanently expand Medicare coverage of telehealth, and many health care providers are supportive of keeping these services accessible, but questions remain about the longer-term impact on patient care, Medicare spending, and program integrity.

This brief provides answers to key questions about the current scope of Medicare telehealth coverage, including both temporary and permanent changes adopted through legislation and regulation, and policy considerations that lie ahead.

Key Takeaways:

  • Congress has enacted legislation several times to extend Medicare’s expanded coverage of telehealth, which is currently due to expire in December 2027. Prior to the COVID-19 public health emergency, Medicare coverage of telehealth was limited to beneficiaries in rural areas and to certain types of providers, facilities, and services.
  • While use of telehealth in traditional Medicare has declined since the early months of the COVID-19 pandemic, use remains nearly two times higher than it was pre-pandemic. Use is higher among urban (vs. rural) beneficiaries, beneficiaries who are dually eligible for both Medicare and Medicaid (vs. beneficiaries who are not Medicaid eligible), and beneficiaries with disabilities or end-stage renal disease (vs. beneficiaries who qualify for Medicare based on age).
  • Medicare currently pays telehealth providers at different rates depending on the location of the beneficiary receiving the service. Medicare pays telehealth providers at a higher rate for telehealth services provided to beneficiaries located in their homes than for telehealth services provided to beneficiaries located in a separate clinical setting from the provider. When telehealth is provided to beneficiaries in clinical settings, Medicare also pays a separate fee for practice expenses to the facility where the beneficiary is located, which results in total Medicare payments that are generally higher relative to home-based telehealth despite the lower provider payment rate.
  • Coverage rules are different in Medicare Advantage, where plans have some flexibility to offer additional benefits, including telehealth benefits, not routinely covered by traditional Medicare (outside of the current temporary flexibilities).
  • Policymakers have considered legislation that would permanently expand Medicare coverage of telehealth, and are weighing the implications for Medicare spending and program integrity.

What is the Current Scope of Medicare Telehealth Coverage?

Prior to the declaration of the COVID-19 public health emergency, Medicare coverage of telehealth was largely restricted to beneficiaries in rural areas and to certain types of providers, facilities, and services. Beneficiaries were typically required to travel from their homes to an approved site, such as a clinic or doctor’s office, when receiving telehealth services. To make it easier and safer for beneficiaries to seek medical care during the pandemic, the Secretary of the Department of Health and Human Services (HHS) waived many of these restrictions in March 2020, enabling broader use of telehealth for all Medicare beneficiaries. While the pandemic-related expansion of telehealth coverage under Medicare was initially due to expire at the end of the COVID-19 public health emergency, Congress has extended these flexibilities several times, most recently through December 2027, and incorporated select provisions into the program on a permanent basis (Figure 1).

The following list summarizes key provisions related to coverage of telehealth in traditional Medicare under current law, both temporary and permanent, as well as limited changes made through the annual physician fee schedule rulemaking process. (See section below for a discussion of telehealth coverage by Medicare Advantage plans.)

Temporary Telehealth Provisions (Extended by Congress Through December 31, 2027)

  • Waiver of geographic and “originating site” requirements: Telehealth is currently available to Medicare beneficiaries in both urban and rural areas, and patients can receive telehealth services from any location, including their home as the “originating site.” Prior to the expansion, telehealth coverage in traditional Medicare was generally limited to rural areas, and patients were required to travel to an approved originating site, such as a clinic or doctor’s office, when receiving telehealth services. (Providers participating in select accountable care organizations (ACOs) are permitted to waive these requirements under the Bipartisan Budget Act of 2018, and may continue to provide telehealth services without geographic restrictions, and to beneficiaries in their homes, should the current temporary flexibilities expire.)
  • Expansion of covered telehealth services: Medicare currently offers coverage for an expanded set of telehealth services, including physical and occupational therapy, emergency consultations, and nursing facility care. Prior to the expansion, Medicare offered coverage for a more limited set of telehealth services, such as preventive health screenings, office visits, and psychotherapy. The Centers for Medicare & Medicaid Services (CMS) has the authority to expand the list of allowable telehealth services when there is a demonstrable clinical benefit and continues to evaluate select services for inclusion on this list. Beginning in 2026, CMS has taken steps to simplify the process of expanding telehealth coverage to new services, such as eliminating the distinction between “provisional” and “permanent” services. In past years, services were often added on a provisional basis before being considered for permanent inclusion.
  • Coverage of audio-only services: Medicare currently allows many telehealth services to be provided to patients via audio-only platforms, such as a telephone or a smartphone without video. Prior to the expansion, Medicare required all telehealth services to be provided via a two-way audio/video connection, such as an interactive audio-video system or a smartphone with video enabled.
  • Expansion of eligible “distant site” telehealth providers: Currently, any health care provider who is eligible to bill for Medicare-covered services can provide and bill for telehealth as a “distant site” telehealth provider and may conduct an initial telehealth visit whether or not they have treated the beneficiary previously. Additionally, federally qualified health centers (FQHCs) and rural health clinics (RHCs) are authorized to provide and bill for telehealth. Prior to the expansion, only physicians and certain other providers (e.g., physician assistants, clinical social workers, and clinical psychologists) were permitted to bill for telehealth services as the distant site provider and must have treated the beneficiary receiving those services within the last three years. FQHCs and RHCs were not authorized to serve as distant site providers but could serve as originating sites if located in a qualifying area.
  • Waiver of in-person visit requirement for behavioral health: Currently, Medicare beneficiaries receiving behavioral health services may opt to receive these services via telehealth with no in-person visit requirements. The Consolidated Appropriations Act of 2021 made numerous changes to Medicare coverage of behavioral telehealth (see below), including a provision that beneficiaries must have an in-person visit with their behavioral health provider no more than six months before their initial telehealth appointment and annually thereafter. Subsequent legislation has delayed this requirement, which is currently due to take effect in January 2028.
  • Use of telehealth for hospice recertification: Patient recertification for the Medicare hospice benefit can currently be conducted via telehealth, provided there is a two-way audio/video connection that allows for real-time interaction between the patient and hospice provider. Prior to the expansion, only in-person encounters could be used for the purposes of hospice recertification.

Permanent Telehealth Provisions:

  • Behavioral health: The Consolidated Appropriations Act of 2021 permanently removed geographic and originating site restrictions for any telehealth service used to diagnose, evaluate, or treat a mental health disorder. (These restrictions had already been lifted for treatment of substance use disorders and co-occurring mental health disorders in 2018.) While many provisions related to Medicare telehealth coverage are due to expire at the end of 2027, Medicare beneficiaries may continue to receive behavioral health services from their homes, in both urban and rural areas, and may do so via audio-only platforms if they are unable to access a video connection or do not consent to video use. Additionally, FQHCs and RHCs are permanently allowed to serve as “distant site” telehealth providers for behavioral health services.
  • Removal of frequency limitations: CMS recently finalized a provision in the 2026 Physician Fee Schedule Final Rule that permanently removes frequency limitations for subsequent inpatient visits, nursing facility visits, and critical care consultations provided via telehealth. This provision took effect on January 1, 2026. However, in the absence of further action by Congress, as of January 1, 2028 (when the current temporary flexibilities expire), implementation of this provision will be limited to the types of providers, services, and settings where telehealth was permitted before the current flexibilities were put in place.
  • Virtual instruction and direct supervision: The 2026 Physician Fee Schedule Final Rule also includes provisions permanently allowing direct supervision of many procedures by physicians and other supervising providers to be conducted virtually via two-way audio/video connections as well as permanently allowing teaching physicians to instruct residents virtually in all teaching settings when overseeing services provided via telehealth. These provisions took effect on January 1, 2026. However, as with other changes made through the physician fee schedule rulemaking process, implementation of these provisions will be limited in scope after January 1, 2028 should the current flexibilities expire.

What Share of Medicare Beneficiaries Use of Telehealth Services?

Telehealth use in traditional Medicare increased dramatically at the start of the COVID-19 public health emergency, with nearly half (46.7%) of all eligible beneficiaries receiving at least one telehealth service in the second quarter of 2020, compared to just 6.9% in the first quarter (Figure 2). While use has declined since that time, it remains nearly two times higher than pre-pandemic levels, with more than one in ten (12.5%) eligible beneficiaries receiving a telehealth service in the second quarter of 2025 (the most recent period for which data is available).

More than 1 in 10 Traditional Medicare Beneficiaries Used Telehealth in the First Half of 2025, a Decline from Early in the COVID-19 Pandemic but Higher Than Pre-Pandemic Levels (Line chart)

Use of telehealth services varies by geography, race and ethnicity, reason for Medicare eligibility, and dual enrollment in Medicare and Medicaid (Figure 3).

Telehealth Use is Higher Among Urban Beneficiaries, Duals, and Beneficiaries with Disabilities or End-Stage Renal Disease, with Some Variation by Race and Ethnicity (Split Bars)

Reason for Medicare eligibility: Rates of telehealth use in 2024 were higher among beneficiaries who qualify for Medicare based on having end-stage renal disease (ESRD) (37%) or a long-term disability (36%), relative to those who qualify based on age (23%). This may be due in part to higher overall rates of service use among people with ESRD and disabilities (whether in-person or via telehealth) but may also reflect a preference for telehealth among these populations, or a greater ease of accessing care via telehealth relative to in-person care. Beneficiaries under age 65 who qualify for Medicare based on having long-term disabilities are more likely than older beneficiaries to report having three or more limitations in activities of daily living, and may be more likely to benefit from the increased flexibility of receiving health care services from their home via telehealth.

Dual-eligible individuals: Rates of telehealth use in 2024 were higher among beneficiaries dually eligible for both Medicare and Medicaid compared to Medicare beneficiaries who were not Medicaid eligible (35% vs. 23%). Dual-eligible individuals are four times more likely than other Medicare beneficiaries to live on incomes of less than $20,000. Prior studies have found that having lower income or living in a socioeconomically deprived neighborhood is associated with higher rates of telehealth use, suggesting that telehealth may have the potential to improve health care access for beneficiaries with limited access to in-person services.

Geography: Rates of telehealth use in 2024 were higher among beneficiaries living in urban areas than those in rural areas (26% vs. 19%), which may be due in part to disparities in access to broadband and other communication technologies. Beneficiaries in rural or underserved areas may lack the infrastructure to support reliable video telehealth visits or the means to afford internet access, which may further impede access to telehealth if coverage of audio-only services is reduced or eliminated.

Race and ethnicity: Rates of telehealth use in 2024 were highest among Asian and Pacific Islander (30%) and Hispanic (29%) beneficiaries, and somewhat lower among Black (26%), American Indian or Alaska Native (24%), and non-Hispanic White beneficiaries (24%). Given that beneficiaries of color are more likely than non-Hispanic White beneficiaries to report difficulty accessing needed health services, telehealth use may help to improve access to care for certain groups.

How Does Medicare Pay Providers for Telehealth Services?

As of January 2024, Medicare pays for telehealth services based on the location of the beneficiary. Medicare pays providers at a higher rate for telehealth services provided to beneficiaries who are located in their homes and a lower rate for telehealth services provided to beneficiaries who are located in a separate clinical setting (i.e., originating site) (with that lower rate being the same regardless of whether the clinical setting is a doctor’s office or a facility, such as a rural health clinic). According to CMS, the higher rate paid by Medicare for telehealth services provided to beneficiaries in their homes better reflects the practice expenses of providers in mental health and certain other specialties who provide a significant share of their services via telehealth, but also maintain an office for in-person services, an arrangement that became common after the telehealth expansion allowed for greater numbers of beneficiaries to access telehealth from home.

However, when beneficiaries receive telehealth services in clinical settings, such as a rural health clinic, Medicare makes a separate payment to the originating site (the “facility fee”) to reimburse for the cost of practice expenses, and the telehealth service provider is reimbursed at a lower rate that solely reflects the cost of the service itself. This results in total Medicare payments that are generally higher when beneficiaries receive telehealth in clinical settings despite the lower payment to the telehealth service provider.

In contrast, Medicare pays for most in-person services based on the location of the provider. For services furnished in a non-facility setting, such as a doctor’s office, providers are reimbursed at a higher rate that reflects the cost of some practice expenses as well as reimbursement for the service itself (equivalent to the rate paid for telehealth services provided to beneficiaries in their homes). For services furnished in a facility setting, such as a hospital outpatient department, providers are solely reimbursed for the service provided (equivalent to the rate paid for telehealth services provided to beneficiaries in clinical settings), and practice expenses are reimbursed directly to the facility as a separate facility fee. As in the case of clinic-based telehealth, the addition of the facility fee means that total Medicare payments are generally higher for facility- than non-facility-based services, though the provider portion of these payments is smaller.

How Do Medicare Advantage Plans Cover Telehealth?

Medicare Advantage plans are required to cover all Part A and Part B benefits covered under traditional Medicare, and have some flexibility to offer additional benefits as well, including telehealth benefits not routinely covered by traditional Medicare (outside of the current telehealth expansion), such as telehealth services provided to enrollees in their own homes, services provided outside of rural areas, and services provided through audio-only platforms.

Since 2020, Medicare Advantage plans have been permitted to include the costs associated with select telehealth services in their basic Medicare Part A and B benefit package, and may continue to do so after December 2027 regardless of the status of the temporary telehealth expansions in traditional Medicare. Telehealth services may be included in a plan’s basic benefits package if they meet certain requirements, such as coverage under Medicare Part B when the same service is provided in person. When these requirements are not met, plans may continue to offer supplemental telehealth benefits via remote access technologies and/or telemonitoring services, but must cover the cost of these benefits using rebates or supplemental premiums.

What Has Been Proposed to Expand Medicare Coverage of Telehealth?

While Congress has enacted legislation to extend temporary telehealth flexibilities in Medicare since 2023, there has been little movement on bills that would permanently extend these flexibilities. For example, the CONNECT for Health Act of 2025, introduced by Senator Schatz, would permanently implement several key pandemic-era telehealth flexibilities, such as the removal of geographic and originating site requirements and the broad expansion of providers eligible to offer telehealth, but has not been scheduled for a vote.

Trump administration officials, including CMS Administrator Dr. Mehmet Oz, have voiced support for the use of telehealth and other health technologies to increase access to health care services and promote treatment of chronic disease. The upcoming Advancing Chronic Care with Effective, Scalable Solutions (ACCESS) Model from the Center for Medicare & Medicaid Innovation (CMMI) will test the impact of new payment options designed to incentivize the use of technologies such as telehealth platforms, wearable devices, and health care apps for prevention and management of certain chronic conditions, though these payment options will be temporary and limited to the performance period of the model.

Finally, at the state level, certain states have taken action to develop multi-state licensure compacts, which have allowed for additional flexibility related to licensure in participating states. Medicare providers are generally required to be licensed in any state where they are practicing, and this requirement extends to telehealth. In most cases, a distant site telehealth provider must be licensed in the state where the beneficiary receiving services is located when the telehealth visit takes place, but multi-state licensure compacts can extend these permissions to a wider area. These compacts are formed when states agree upon a uniform standard of care and enact state laws which allow qualified providers to practice across state lines while maintaining a single license, to maintain multiple licenses, or which expedite the process of gaining additional licensure across member states. These compacts may be continued beyond December 2027, though other restrictions may limit their use if the current flexibilities are allowed to expire.

What Are the Implications of Telehealth for Program Integrity?

As policymakers weigh whether to permanently implement current flexibilities around Medicare coverage of telehealth, several questions have been raised about the impact of telehealth services on patient care quality and program spending, as well as the potential for fraud and overuse.

Since the current flexibilities were introduced, state and federal agencies have filed several lawsuits regarding the submission of fraudulent claims by telehealth companies to Medicare and other insurers. However, investigations by the HHS Office of the Inspector General (OIG) into provider billing patterns during the first year of the COVID-19 pandemic found that just 0.2% of providers who billed for a telehealth service during the period engaged in excessive billing patterns that posed a high risk to the Medicare program, and clinicians generally complied with Medicare requirements when providing Evaluation and Management services through telehealth, suggesting little evidence of widespread misuse to date. MedPAC has recommended that CMS take certain precautions going forward, such as applying additional scrutiny to “outlier” clinicians who deliver more telehealth services than others and requiring in-person visits before high-cost tests and medical equipment are paid for.

What are the Implications of Telehealth for Medicare Spending?

The impact of expanded telehealth coverage on Medicare spending is difficult to assess, as it depends on several factors. Some telehealth services may replace in-person care, as in the case of behavioral health visits, but easier access to telehealth may also lead to an overall increase in use of services and higher costs. Prior research has found modest increases in clinical encounters and spending per person among Medicare beneficiaries in geographic areas and health systems with higher rates of telehealth use. At the same time, there is evidence to suggest that beneficiaries with greater access to telehealth services may have fewer emergency department visits and improved adherence to certain medications. Additional research could help policymakers and other interested parties assess the degree to which any increases in Medicare spending as a result of expanded telehealth coverage are offset by improvements in quality of care or decreases in other costs, such as spending on preventable hospital admissions and other types of acute care services.

The Congressional Budget Office (CBO) scored the extension of current telehealth flexibilities through December 2027 under the Consolidated Appropriations Act of 2026 as costing $3.8 billion from 2026 to 2028. CBO has not yet scored the cost of recent legislative proposals, such as the CONNECT for Health Act of 2025, that would implement these flexibilities on a permanent basis.

News Release

KFF Follow-Up Survey of Marketplace Enrollees: Following End of Enhanced Credits, Half of Marketplace Enrollees Now Say Costs Are a Lot Higher, Most Expect to Cut Back on Basic Household Expenses to Afford Coverage

One in 10 Dropped Their Marketplace Coverage and Are Now Uninsured and Three in 10 Switched ACA Plans, Most Citing High Costs

Published: Mar 19, 2026

Following the expiration of the enhanced premium tax credits for people with Affordable Care Act (ACA) Marketplace plans, a new KFF follow-up survey of the same Marketplace enrollees KFF surveyed in 2025 finds half (51%) of returning enrollees say their health care costs are “a lot higher” this year compared to last year, including four in 10 who specifically say their premiums are “a lot higher.” In all, a large majority (80%) of these enrollees say their health care costs, which can include premiums, deductibles, co-pays, or coinsurance, are higher.

This new survey, which was fielded about a month after open enrollment ended in most states and before the grace period to make payments ends for many enrollees, re-interviewed Marketplace enrollees who shared their expectations for their coverage decisions late last year. It also finds that nearly one in six (17%) returning ACA Marketplace enrollees say they are not confident they will be able to afford their premiums this year. For those who kept the same Marketplace plans, the expiration of the ACA’s enhanced premium tax credits in 2025 is estimated to have increased annual premium payments by more than two-fold on average this year.

Responding to Rising Health Costs
Among those who re-enrolled in an ACA Marketplace plan, a majority (55%) say they have cut or plan to cut spending on food or other basic household expenses to afford their health care costs. The impact is even greater for those with chronic health conditions, more than six in 10 (62%) of whom say they are, or will be, cutting back on food and other basics.

Marketplace enrollees are also concerned about their ability to pay for both routine and unexpected medical expenses. About three in four (73%) returning Marketplace enrollees say they are “very worried” or “somewhat worried” about being able to afford costs for emergency care or hospitalizations while about half are worried about affording costs for routine medical visits (49%) or prescription drugs (45%).

“The impacts on Marketplace enrollees we see in this follow-up survey will likely get worse as people struggle to make payments and the grace period many have expires,” KFF President and CEO Drew Altman said.

For some, rising costs have already forced them to make tough choices. About one in 10 (9%) Marketplace enrollees dropped their ACA coverage and are now uninsured and another nearly three in 10 (28%) changed Marketplace plans. When asked why they decided to drop or change their coverage, most cited costs.

A 63-year-old man in California describes why he is uninsured now:
“The end of ACA subsidies caused a huge increase in premiums, the cost of which I could not afford.”

A 56-year-old man in Texas explains why he switched to a different Marketplace plan:
“Income exceeded the subsidy limit, forcing us to pay the full cost, so we switched down to a bronze from a gold plan. Even doing that our premiums are 3 times what they were in 2025, with lower plan features and a higher deductible.”

In all, seven in 10 (69%) of those who had ACA Marketplace coverage in 2025 have re-enrolled in a plan through the Marketplace, while others became eligible for different types of health insurance coverage either through an employer (5%) or through Medicare (4%) or Medicaid (7%). A small share (5%) purchased health plans outside of the ACA Marketplace, which typically provide less comprehensive coverage and have fewer consumer protections than Marketplace plans. Even in years with few policy changes, shifts across Marketplace plans or to other types of coverage are normal and often follow changes in employment, income, age, and other life circumstances.

Looking Ahead to the Midterms
Among returning Marketplace enrollees who saw higher health costs, seven in 10 (70%) blame health insurance companies “a lot” for their increased costs and at least half place “a lot” of blame on congressional Republicans (54%), President Trump (53%), or pharmaceutical companies (52%). While majorities of partisans place “a lot” of blame on lawmakers from the opposite party, independents with Marketplace coverage are more likely to say Congressional Republicans (56%) and President Trump (58%) deserve “a lot” of blame than Congressional Democrats (28%).

Three-quarters of those who had Marketplace coverage in 2025 and are registered to vote say health care costs will affect their decision to vote (73%) and which party’s candidate they will support (74%). Democrats are more than twice as likely as Republicans to say it will have a major impact on their decision to vote (67% vs. 27%) and which candidate they may support (70% vs. 30%). Among independent voters, nearly half say the issue will have a major impact on their decision to vote (47%) and which candidate they will support (44%).

Designed and analyzed by public opinion researchers at KFF, this survey, which builds on a 2025 survey of ACA Marketplace enrollees, re-interviewed more than 80% of the original sample to learn how they are navigating changes to the ACA Marketplace. The survey was conducted February 12-March 2, 2026, online and by telephone, in English and in Spanish, among a nationally representative sample of 1,117 U.S. adults who had ACA Marketplace coverage in 2025 and completed the initial KFF survey. The margin of sampling error is plus or minus four percentage points for the full sample. For results based on other subgroups, the margin of sampling error may be higher.

Poll Finding

Cost Concerns and Coverage Changes: A Follow-Up Survey of ACA Marketplace Enrollees

Published: Mar 19, 2026

Findings

About the Survey

At the end of 2025, despite a government shutdown over the policy, the enhanced premium tax credits expired, decreasing financial assistance for subsidized Marketplace enrollees and contributing to significant increases in the Affordable Care Act (ACA) Marketplace costs for most enrollees overall. Amid the debates leading up to the expiration, KFF conducted a probability-based survey of 1,350 adults covered by ACA Marketplace plans in late 2025 to better understand their worries about potential cost increases for their health coverage. Now—without the enhanced tax credits in place—KFF re-interviewed 1,117 individuals (more than 80% of the original sample) to learn how they are navigating these changes to the ACA Marketplace. 

This report is based on all 2025 Marketplace enrollees who took the follow-up survey, including returning Marketplace enrollees1, those who have left the Marketplace entirely for another type of coverage, and those who are now uninsured.

Summary of Findings

Half of those who have re-enrolled in ACA Marketplace coverage say their health care costs are “a lot higher” this year. Following the expiration of the enhanced premium tax credits and an open enrollment period that left many Affordable Care Act (ACA) Marketplace enrollees feeling “worried” and “angry,” most of those who have re-enrolled in Marketplace coverage now report paying more for coverage. A large majority (80%) of returning Marketplace enrollees say their 2026 plan’s premiums, deductibles, or coinsurance and co-pays are higher than last year, including half (51%) who say they are “a lot higher.”

ACA Marketplace enrollees worry about affording their monthly premiums, as well as out-of-pocket expenses such as emergency care or routine medical visits. With many returning Marketplace enrollees reporting higher costs this year, majorities express worry about affording both routine and unexpected medical care. Three in four (73%) returning Marketplace enrollees say they are “very worried” or “somewhat worried” about being able to afford costs for emergency care or hospitalizations while about half are worried about affording costs for routine medical visits (49%) or prescription drugs (45%). Worries are even greater among those with lower incomes and those with chronic health conditions. In addition, one in six (17%) returning Marketplace enrollees say they are not confident they will be able to afford their monthly health insurance premium for the entirety of 2026. This is even as a quarter of those who switched plans say they downgraded their plan’s metal tier (e.g. from a Silver plan to a Bronze plan) in 2026, which generally have lower premiums but typically have higher out-of-pocket costs.

Health care costs are straining household budgets. Among 2025 Marketplace enrollees who have re-enrolled in Marketplace coverage, many report that their health care costs are putting pressure on household budgets. A majority (55%) of returning Marketplace enrollees say they are (or will be) cutting back spending on food or basic household items in order to afford the costs of coverage and care. The impact is even harder for returning enrollees with chronic health conditions, with 62% saying they are, or will be, cutting back on food and other household items in order to help them afford their health care costs.

Bar chart showing health care cost concerns among 2025 ACA Marketplace enrollees who still have Marketplace coverage.

Some previous ACA Marketplace enrollees are now uninsured or have changed to a different Marketplace plan, citing costs as the major reason for that decision. One in ten (9%) 2025 Marketplace enrollees say they are now currently uninsured and three in ten (28%) say they switched to a different Marketplace plan. When asked the reasoning behind their change, a larger share say costs were the driver rather than changes to their health care needs. A 34-year-old man living in Texas put it this way, “The prices are simply too high. $800/month for the absolute cheapest plan for two people. Our income is $120k, so we don’t qualify for subsidies in Texas. I don’t think we could afford our mortgage if I had to pay for health insurance.”

Health care costs may be a deciding factor for ACA Marketplace enrollees in the 2026 midterm elections. With health care costs front and center for 2025 Marketplace enrollees, many who are registered to vote say that the cost of health care will have a major impact on their decision to vote (48%) and which party’s candidate they will support (49%) in the midterm elections. The issue currently resonates more with Democrats, who are more than twice as likely as Republicans to say health costs will play a major impact on their decision to vote in the 2026 midterms (67% vs. 27%) and on which candidate they decide to vote for (70% vs. 30%).

Where Are They Now? Coverage Changes Among 2025 Marketplace Enrollees

The Follow-Up Survey of ACA Marketplace Enrollees finds most (69%) 2025 enrollees say they have re-enrolled in Marketplace coverage for 2026, including four in ten (39%) who say they are enrolled in the same plan they had in 2025 and nearly three in ten (28%) who have switched to a different Marketplace plan. This is largely consistent with the 2025 survey findings in which a third said they would be “very likely” to look for a different Marketplace plan if their premiums doubled.

Additionally, about three in ten 2025 Marketplace enrollees now say they no longer have Marketplace coverage, including 22% who transitioned to a different source of coverage, such as through an employer, by becoming eligible for programs like Medicare or Medicaid, or say they have now purchased a non-Marketplace health insurance plan (some of which may provide less comprehensive coverage and have fewer consumer protections than Marketplace plans). One in ten (9%) 2025 Marketplace enrollees say they are currently uninsured. A large amount of churn on and off the Marketplace is normal as ACA Marketplace coverage is often a temporary source of coverage between jobs, and because income, age, and other circumstantial changes can make people newly eligible for other public programs such as Medicaid or Medicare.

Bar chart showing health insurance coverage type among 2025 Marketplace enrollees.

Notably, half (49%) of younger 2025 Marketplace enrollees between the ages of 18 and 29 report having left the Marketplace entirely, including 14% who say they are currently uninsured. In contrast, smaller shares of older 2025 Marketplace enrollees—ages 50 and up—say they are currently uninsured (7%). Additionally, younger 2025 enrollees are also more likely than their older counterparts to say they have left the Marketplace for another source of coverage—which would be expected with life changes such as starting a new job, getting married, or experiencing a change in income. Significant shares of younger adults having left the Marketplace in 2026 is consistent with previous KFF policy analysis on the expiration of the enhanced tax credits, which attributes part of this year’s increases to insurers anticipating healthier (e.g. younger) adults exiting the Marketplace, creating an enrollee base that is more expensive on average.

Stacked bar chart showing health insurance coverage type by age among 2025 Marketplace enrollees.

Among those who still have a Marketplace plan, one in six (17%) returning enrollees say they are “not too” or “not at all” confident they will be able to afford their insurance premiums for all of 2026. This may put them at risk of losing their Marketplace coverage at some point this year.

Stacked bar chart showing confidence in affording monthly health insurance premiums for the entire year among 2025 Marketplace enrollees who still have Marketplace coverage.

Additionally, 4% of returning Marketplace enrollees say they have yet to pay their first premium for 2026. Notably, returning enrollees who receive tax credits to help pay for their coverage are generally provided with a 3-month grace period for nonpayment of premiums, meaning most may have until the end of March to pay any premiums that are due before facing the retroactive termination of their health insurance coverage.

Costs Are a Major Reason Why Enrollees Switched to a Different Marketplace Plan or Dropped Coverage

Almost four in ten (37%) 2025 enrollees are either uninsured or switched to a different Marketplace plan. When asked the reasoning behind their change, a larger share say costs were the driver rather than changes to their health care needs. Eight in ten say they made a change to their coverage because it was too expensive, including seven in ten (71%) who say this was a “major reason” and one in ten (9%) who said it was a “minor reason.” Just over a third (36%) say changing health needs were a major or minor reason why they changed plans or dropped their Marketplace coverage.

Stacked bar chart showing reasons 2025 Marketplace enrollees made changes to their health insurance coverage. Results reported among 2025 Marketplace enrollees who either switched to a different Marketplace plan or are currently uninsured.

Many 2025 enrollees who switched Marketplace plans this year say their previous plans’ premiums increased dramatically when selecting coverage for 2026. Additional reasons for changing plans include their old plans no longer being available and general dissatisfaction with their previous plan.

In Their Own Words: What is the main reason you switched to a different Marketplace plan this year?

“The cost of the same plan I had in 2025 tripled in price to $360/month. So I went with a different plan that cost less. But even it was higher than the plan I had in 2025.” – 62-year-old man, Wisconsin

“The price went from 2k to 3500 for a household of 4 people.” – 37-year-old man, Florida

“Income exceeded the subsidy limit, forcing us to pay the full cost, so we switched down to a bronze from a gold plan. Even doing that our premiums are 3 times what they were in 2025, with lower plan features and a higher deductible.” – 56-year-old man, Texas

“Cost. By switching to Bronze, I would receive a tax credit that covered my plan. If I had stayed on my Silver plan, I would’ve had to pay out-of-pocket, which my budget does not allow for.” – 26-year-old woman, Montana

“In 2025 I had the elite bronze plan. The monthly premium cost of the plan I had in 2025 went up, the PCP and prescription copays went up, and the deductible went up almost $4000. To keep my out of pocket expenses the same and given my prior history...I had to drop to the everyday bronze with a much larger deductible and just hope that I continue not to actually need anything unexpected.” – 55-year-old man, South Carolina

Health Care Costs Weigh Heavily on the Now Uninsured

Among the 9% of 2025 enrollees who say they are currently uninsured, survey responses indicate that the cost of health care played a major role in their decision to drop coverage, and many from this group report worrying about affording medical care.

In Their Own Words: What is the main reason you are currently without health insurance coverage?

“The end of ACA subsidies caused a huge increase in premiums, the cost of which I could not afford.” – 63-year-old man, California

“Even though I make some income (too much for subsidies, even last year), the increase is so high even for those without subsidies. I simply cannot afford to pay $1,200 a month for insurance. It used to be high premiums meant low deductibles and copays, but not anymore. This is ridiculous. $1,200 for a healthy person, and an $8,000 deductible. Really?” – 56-year-old woman, Illinois

“[I am] self-employed and [there are] no cheap health plans.”– 24-year-old man, Florida

“Without the subsidy, I cannot afford the premium payments.”– 54-year-old man, Texas

“The prices are simply too high. $800/month for the absolute cheapest plan for two people. Our income is $120k, so we don’t qualify for subsidies in Texas. I don’t think we could afford our mortgage if I had to pay for health insurance. $800/month is 8 self pay doctors visits a month. If I have a catastrophic health event it makes more sense for me to just declare bankruptcy than it would be to be delinquent on other payments.” – 34-year-old man, Texas

Many 2025 enrollees who are now uninsured cite fears about accessing and affording care in the case of unexpected medical emergencies. Some who have significant health issues say their main worry about not having health insurance is being unable to afford necessary medications and treatment.

In Their Own Words: What is your main worry, if any, about not currently having health insurance?

“Not managing ongoing health issues and pre-existing conditions.” – 48-year-old woman, Colorado

“Everything. Can’t afford insurance can’t afford health care without insurance so basically just hoping and praying I don’t get sick or have any major issues pop up.” – 38-year-old man, Alabama

“We are 59 and 61 yrs old. We need healthcare. And now we will either avoid seeing a dror go bankrupt.” – 59-year-old woman, Virginia

“I’m in my ‘50s and have some health concerns that I won’t be able to address this year.” – 55-year-old man, Idaho

Health Care Costs Contribute to Affordability Worries and Challenges Among Returning Marketplace Enrollees

Following the expiration of the ACA enhanced premium tax credits in December 2025, a large majority (80%) of returning Marketplace enrollees say their health care costs are higher this year compared to 2025. This includes half (51%) of returning enrollees who say their health care costs—whether it be their premiums, deductibles, and/or their coinsurance and co-pays—are “a lot higher” compared to last year.

About six in ten (63%) returning Marketplace enrollees say their monthly health insurance premium is higher than 2025, including 40% who say it is “a lot higher.” In addition, nearly half say their deductibles are higher (45%, including 24% who say they’re “a lot higher”), and one-third say their coinsurance and co-pays are higher compared to last year (36%, including 18% “a lot higher”).

Increases in insurance plan cost-sharing are pronounced among those who say they switched their Marketplace plan this year. Over half (54%) of returning enrollees who switched plans say their deductibles are higher this year compared to last year (including 34% who say “a lot higher”), and an additional four in ten (42%) say their coinsurance and co-pays are higher (25% “a lot higher”). This likely reflects the fact that some enrollees switched to lower tier Bronze plans which may mitigate some of the increase in premiums but typically have higher out-of-pocket costs. Overall, a quarter (26%) of plan switchers say they downgraded their metal plan (e.g. from a Silver plan to a Bronze plan) in 2026.

Stacked bar chart showing share of adults who say their premiums, deductibles, or coinsurance/copays are a lot higher, somewhat higher, lower, or about the same as last year. Results reported among 2025 Marketplace enrollees who still have Marketplace coverage.

While most 2025 Marketplace enrollees say they still have Marketplace coverage in 2026, having insurance does not insulate them from worrying about the costs of accessing care. About three in four (73%) returning Marketplace enrollees say they are “very worried” or “somewhat worried” about being able to afford costs for emergency care or hospitalizations while about half are worried about affording costs for routine medical visits (49%) or prescription drugs (45%).

Stacked bar chart showing share of adults who say they are worried about affording health care costs like emergency care, routine medical care, and prescription drugs. Results reported among 2025 Marketplace enrollees who still have Marketplace coverage.

At least seven in ten returning Marketplace enrollees across income groups say they are worried about being able to afford costs for emergency care or hospitalization. However, those with lower incomes are more likely than their higher-income counterparts to worry about being able to afford prescription drugs. Those with chronic conditions are more likely than those without such conditions to worry about affording emergency care, routine care, and the cost of prescription medications.

Split bar chart showing shares of adults who say they are "very" or "somewhat worried" about affording health care costs like emergency care, routine medical care, and prescription drugs. Results shown by total, household income, and chronic health condition status. Results reported among 2025 Marketplace enrollees who still have Marketplace coverage.

Rising health care costs can place considerable pressure on household budgets and create additional financial strain. Just over four in ten (44%) returning Marketplace enrollees say their health care costs have made it harder to afford other expenses, including over a third (37%) who say it has made it more difficult to afford food and groceries and about three in ten who say it has made it more difficult for them to afford their monthly utilities (32%), their rent or mortgage (30%), or gasoline or other transportation costs (30%)

About half of returning Marketplace enrollees with lower household incomes and those with chronic health conditions report that their health care costs are placing financial strain on other expenses.

Split bar chart showing share of adults who say their health care costs made it more difficult to afford food and groceries, monthly utilities, rent/mortgage, gasoline and transport, or any of the above. Results shown by total, household income, and chronic health condition status. Results reported among 2025 Marketplace enrollees who still have Marketplace coverage.

A majority (55%) of returning Marketplace enrollees say they have already, or are planning to, cut back spending on food or basic household items in order to cover any health care related costs. Around four in ten (43%) say they have already or are planning to find an extra job or work more hours to cover health expenses, while about two in ten are skipping or delaying paying other bills (23%) or taking out loans or increasing their credit card debt (20%). Notably, while one in five returning enrollees say they are already looking for another job or trying to find more hours, an increase in income could help them afford their premium or deductible payments, but it could also mean they become eligible for less financial assistance.

Returning Marketplace enrollees with chronic conditions are among the most likely to report taking steps to cover their costs, with about six in ten (62%) saying they have or plan to cut back on spending, half (52%) saying they have or plan to work more, a third (33%) saying they will skip or delay paying bills, and a quarter (26%) saying they will take out a loan or increase their credit card debt.

Stacked bar chart showing share of adults who are already or plan on cutting back on spending, finding an extra job, skipping bills, or taking out a loan in order to cover any costs related to health care. Results reported among 2025 Marketplace enrollees who still have Marketplace coverage.

In Their Own Words: What changes or actions have you taken or think you may take in order to afford your health care costs this year?

“Attempt to pay off loans to free up more monthly money, budget groceries more tightly, put hospital debt on a payment plan.” – 24-year-old woman, Kentucky

“Cut back on food expenses, choose cheaper & fewer dining out experience, watch heat & AC usage even more.” – 54-year-old woman, California

“Attempt to use as little health care as possible. Make sure our doctors and hospitals are covered by the insurance. Talk with our doctors to verify that ordered treatments and/or drugs are really necessary. Discuss with providers/pharmacies to see if self-pay may be cheaper than using insurance in particular cases.” – 56-year-old man, Texas

“Shopping for cheaper groceries, not buying clothes, avoiding getting sick, not being as social.” – 63-year-old woman, California

“Pare back expenses as much as possible.” – 39-year-old man, Iowa

“Limit going to the doctor. I can't afford the medications prescribed so I try to find over the counter substitutions.” – 54-year-old woman, Texas

“My grocery budget and fun budget are smaller so we can afford the premium.” – 38-year-old woman, Colorado

“I may have to get part-time employment. I may have to get a job after being retired.” – 60-year-old woman, Florida

Open Enrollment Process Left Many Marketplace Enrollees Worried and Angry

Following the expiration of the enhanced premium tax credits for ACA Marketplace coverage, many 2025 Marketplace enrollees say they felt worried or angry as they went through the process of evaluating their health insurance options for 2026. Nearly two-thirds (63%) of 2025 Marketplace enrollees say they felt “worried” during the process of looking for coverage while about half (52%) say they felt “angry.” Nearly half (46%) say the process made them feel “confused,” while nearly four in ten (37%) say they were “satisfied” during the process of looking for insurance coverage for this year.

Bar chart showing adults who say they felt "worried", "angry", "confused", or "satisfied" about the process of looking at health insurance coverage options for 2026. Results reported among 2025 Marketplace enrollees.

Reactions to the Expiration of Enhanced Premium Tax Credits

In a recent KFF Health Tracking poll, a majority of the public overall said Congress did the wrong thing by letting the enhanced premium tax credits for people who buy their insurance on the ACA Marketplace expire. Unsurprisingly, 2025 Marketplace enrollees share this sentiment, with eight in ten (78%) saying that Congress did the wrong thing by letting the credits expire, while two in ten say Congress did the right thing.

Majorities of 2025 Marketplace enrollees across partisanship agree that Congress did the wrong thing, including nearly all Democrats (94%), eight in ten independents, and six in ten Republicans (58%). Even among Trump’s base—Republicans and Republican-leaning independents who support the MAGA (Make America Great Again) movement—a majority (54%) say that Congress did the wrong thing by letting the credits expire.

Mirrored bar chart showing the share of the public who say Congress did the right thing or the wrong thing by letting the enhanced tax credits expire. Shown among total 2025 Marketplace enrollees and by party identification. Results reported among 2025 Marketplace enrollees.

When asked how they feel about the expiration of the enhanced premium tax credits, many 2025 Marketplace enrollees express anger, frustration, and disappointment. While some are fine with the expiration or note that it has not impacted them, many are upset at the rise in their own insurance costs and the government’s failure to extend the credits.

In Their Own Words: How do you feel about Congress letting the enhanced premium tax credits for the Affordable Care Act (ACA) expire?

“Angry. They get affordable good coverage even when they aren't doing ANYTHING. We struggle to pay for health insurance. And they gut the ACA without offering any alternative.” – 60-year-old independent woman, California

“I am okay with it. It was not going to be able to sustain itself so it needed to happen.” – 48-year-old Republican woman, Florida

“Evil on the part of republicans. Absolutely ineffectual on the part of democrats.” – 33-year-old Democratic man, Washington

“It's a disgrace that families are being put in this position to chose between health insurance and all other household needs.” – 42-year-old Democratic woman, Pennsylvania

“It could hurt some people but the impact to me is minimal.” – 56-year-old independent man, California

“There should have been a gradual decrease versus a sudden cut off or more communication so that people could prepare as needed and advocate where possible.” – 44-year-old Democratic woman, California

“I feel as if it's unfair to those who make too much to be able to receive Medicaid. We are getting penalized for making more money than poverty level.” – 26-year-old independent woman, Florida

“It needs to expire and pharmaceutical companies need to have a cap on prices. They should not be able to charge so much. Also, put a cap on insurance company premiums too.” – 47-year-old independent woman, Georgia

“It has had a major financial impact on my already financially stressed household as I am fully disabled in a wheelchair and unable to work and also unable to receive disability or social security.” – 58-year-old Republican woman, Texas

Among all 2025 Marketplace enrollees, about six in ten (62%) place the most blame on either President Trump (32%) or Republicans in Congress (30%), while a smaller share (14%) say Congressional Democrats deserve the most blame. Two in ten think Congress did the right thing by letting the tax credits expire.

While very few Democratic 2025 Marketplace enrollees blame their own party (3%) for the expiration of the enhanced tax credits, three in ten Republicans, including two in ten MAGA-supporting Republicans, place the most blame on either President Trump or Republicans in Congress.

Stacked bar chart showing percent who say either Democrats in Congress, Republicans in Congress, or President Trump, deserves most of the blame for the enhanced tax credits expiring. Results shown by total 2025 Marketplace enrollees and by party identification. Results reported among 2025 Marketplace enrollees.

Potential Political Impacts of Higher Health Care Costs Among Marketplace Enrollees

When it comes to increases in their own health care costs, returning Marketplace enrollees blame lawmakers alongside health insurance and pharmaceutical companies.

Among the eight in ten returning Marketplace enrollees who say their premiums or cost-sharing are higher this year, seven in ten say health insurance companies deserve “a lot” of blame for the increase. Although the public perceive health insurance companies as a major source of blame for their cost increases, lack of action by Congress in extending the tax credits is attributed as the main cause of increases in premiums and other costs according to KFF policy analysis. Majorities of returning Marketplace enrollees also say Republicans in Congress (54%), President Trump (53%), and pharmaceutical companies (52%) deserve “a lot” of blame for the increase in their health care costs. A third (34%) of returning Marketplace enrollees who report having higher health care costs say Democrats in Congress deserve “a lot” of blame. Fewer place “a lot” of blame on hospitals (30%), doctors (12%), or employers (8%). Notably, around half or more of those who report that their premiums, deductibles, or coinsurance and co-pays are higher this year than last year place at least some blame on each of the groups asked about.

Stacked bar chart showing adults who say each of the following deserve "a lot of blame" or "some blame" for the increase in their health care costs. Results reported among 2025 Marketplace enrollees who still have Marketplace coverage and said their health care costs are higher this year compared to last year.

Across partisanship, at least two-thirds of returning Marketplace enrollees whose health care costs (including premiums, deductibles, or coinsurance and co-pays) are higher now than last year say health insurance companies deserve “a lot” of blame, and around half or more place “a lot” of blame for their increased costs on pharmaceutical companies. However, when it comes to lawmakers, there is a predictable partisan division. Among returning Marketplace enrollees with higher health care costs than last year eight in ten or more Democratic enrollees place “a lot” of blame on President Trump (83%) and on Congressional Republicans (80%) for their increased costs. In contrast, six in ten returning Republican enrollees who now have higher health care costs place “a lot” of blame on Democrats in Congress, as do MAGA supporting Republican enrollees.

Split bar chart showing share of returning Marketplace enrollees who say each of the following deserves "a lot of blame" for the increase in their health care costs. Results shown among 2025 Marketplace enrollees who still have Marketplace coverage and by party identification. Results reported among 2025 Marketplace enrollees who still have Marketplace coverage and said their health care costs are higher this year compared to last year.

Health care costs may impact enrollees’ decisions at the ballot box this November, and in some congressional districts, the number of Marketplace enrollees could be enough to swing close elections. Three-quarters of 2025 Marketplace enrollees who are registered to vote say the cost of health care will have a “major impact” or “minor impact” on their decision to vote (73%) and which party’s candidate they will support (74%) in the midterm elections. Majorities of voters across partisanship say health care costs will impact their voting decisions, however Democrats are more than twice as likely as Republicans to say it will have a major impact on their decision of whether to vote (67% vs. 27%) and on which party’s candidate they will support (70% vs. 30%). At least four in ten independent voters say that health care costs will have a major impact on their decision to vote (47%) and who they decide to vote for (44%).

Stacked bar chart showing percent who say the cost of health care will have a "major impact", "minor impact" or "no impact" on their decision to vote and which candidate's party they would support in the 2026 midterm elections. Results reported among 2025 Marketplace enrollees who are registered to vote.

Beyond being motivated to vote, some enrollees have taken actions to discuss their rising health care costs with friends and family, online, or by directly contacting an elected official. Three-quarters (76%) of 2025 Marketplace enrollees have discussed the cost of health insurance with friends or family, including similar shares across partisanship. However, few report taking further action, including one in seven (14%) who have contacted an elected official by phone, mail, internet, or in person to discuss the cost of health insurance and one in nine (12%) who have posted on social media about the cost of health insurance.

Democrats are more likely than Republicans to say they have contacted an elected official (17% vs. 10%) or have posted on social media about the cost of their coverage (16% vs. 7%).

Split bar chart showing share of adults who say they have discussed the cost of health insurance with family, contacted any elected officials to discuss the cost of health insurance, or posted on social media about the cost of health insurance. Results reported among 2025 Marketplace enrollees.

Methodology

This KFF Follow-Up Survey of Marketplace Enrollees was designed and analyzed by public opinion researchers at KFF. The survey was conducted February 12- March 2, 2026, online and by telephone among a nationally representative sample of 1,117 U.S. adults who had Marketplace insurance in 2025 in English (n=1,079) and in Spanish (n=38). The sample is entirely derived from people who completed the KFF Marketplace Survey in 2025 (n=1,350). 

The original sample was recruited using two probably-based panels, the SSRS Opinion Panel and the IPSOS Knowledge Panel. The SSRS Opinion Panel is a nationally representative probability-based panel where panel members are recruited randomly in one of two ways: (a) Through invitations mailed to respondents randomly sampled from an Address-Based Sample (ABS) provided by Marketing Systems Groups (MSG) through the U.S. Postal Service’s Computerized Delivery Sequence (CDS); (b) from a dual-frame random digit dial (RDD) sample provided by MSG. For the online panel component, invitations were sent to panel members by email followed by up to three reminder emails. The IPSOS Knowledge Panel is a nationally representative probability-based panel where panel members are recruited randomly through invitations mailed to respondents randomly sampled from an Address-Based Sample (ABS) through the U.S. Postal Service’s Computerized Delivery Sequence (CDS). The follow-up sample included 842 individuals from SSRS Opinion Panel and 264 reached through the Ipsos Knowledge Panel. 

An additional 11 adults who were previously recruited to complete a KFF survey in 2024-2025 and were reached via their prepaid cell phone number. A small group of these individuals reported that they had Marketplace coverage in 2025.  Among this prepaid cell phone component, 4 were interviewed by phone and 7 were invited to the web survey via short message service (SMS). 

Respondents in the prepaid cell phone sample who were interviewed by phone received a $15 incentive via a check received by mail. Respondents in the prepaid cell phone sample reached via SMS received a $10 electronic gift card incentive. SSRS Opinion Panel respondents received a $5 electronic gift card incentive (some harder-to-reach groups received a $10 electronic gift card). Ipsos operates an incentive program that includes raffles and sweepstakes with both cash rewards and other prizes to be won. An additional incentive is usually provided for longer surveys. In order to ensure data quality, cases were removed if they failed two or more quality checks: (1) attention check questions in the online version of the questionnaire, (2) had over 30% item non-response, or (3) had a length less than one quarter of the mean length by mode. Based on this criterion, there were 2 cases removed. 

The combined recontacted cell phone and panel samples were weighted to match the sample’s demographics to the national U.S. adult population aged 18-64 who are currently covered by direct-purchase insurance using data from the Census Bureau’s 2025 Current Population Survey (CPS). The demographic variables included in weighting are Sex by Age, Education, Sex by Education, Age by Education, Race/Ethnicity, Census Region, Number of Adults in Household, Home Tenure (Own/Rent), and residence in a Medicaid Expansion state. Additionally, the weights account for differences in the probability of selection for each sample type (prepaid cell phone, IPSOS Knowledge Panel, and SSRS Opinion Panel). This includes adjustments for ownership of a prepaid cellphone, the design of the panel-recruitment procedure (IPSOS Knowledge Panel and SSRS Opinion Panel), and propensity to complete the recontact interview. 

The margin of sampling error including the design effect for the full sample is plus or minus 3.8 percentage points. Numbers of respondents and margins of sampling error for key subgroups are shown in the table below. For results based on other subgroups, the margin of sampling error may be higher. Sample sizes and margins of sampling error for other subgroups are available on request. Sampling error is only one of many potential sources of error and there may be other unmeasured error in this or any other public opinion poll. KFF public opinion and survey research is a charter member of the Transparency Initiative of the American Association for Public Opinion Research.

GroupN (unweighted)M.O.S.E.
Total 2025 Marketplace enrollees1,117± 4 percentage points
   
Returning Marketplace enrollees794± 4 percentage points
Returning enrollees with the same plan as 2025437± 6 percentage points
Returning enrollees who switched to different Marketplace plan345± 7 percentage points
   
Party ID  
Democrats525± 6 percentage points
Independents133± 11 percentage points
Republicans408± 6 percentage points
   
MAGA Republicans258± 8 percentage points

Endnotes

  1. This survey includes 794 returning Marketplace enrollees: respondents who say they are currently enrolled in the Marketplace, irrespective of whether they effectuated their enrollment. Some returning Marketplace enrollees may retroactively lose their health coverage for 2026 if they do not make their first premium payment. ↩︎

KFF QUIZ

How Well Do You Understand Your Health Insurance?

Health insurance is often complicated, but understanding the basics helps you make better decisions about your coverage and care. This 10-question quiz touches on some terms you may encounter. Test your knowledge and pick up some useful insights along the way.

Question 1 of 10
Which statement best describes a health insurance premium?
Question 2 of 10
Which of the following is the best definition of the term “annual health insurance deductible”?
Question 3 of 10
Which statement describes the difference between a copayment and coinsurance?
Question 4 of 10
Your health insurance plan has a $1,000 deductible for hospital care and a $250 per-day copayment once the deductible is met. You are hospitalized for 4 days, and the hospital charges negotiated with the insurance company (the “allowed amount”) total $6,000. How much would you be responsible for paying?
Question 5 of 10
Which statement describes a Health Savings Account (HSA)?
Question 6 of 10
When you receive care from an out-of-network medical professional or facility, what costs might you be responsible for? (“Out of network” refers to a doctor, hospital, or facility that does not have a contract with your health insurance plan.)
Question 7 of 10
Under federal “surprise billing” protections, patients are generally shielded from higher out-of-network charges when they receive:
Question 8 of 10
What does it mean when a health care professional says that a test, procedure, or medication requires “prior authorization” in order for insurance to cover it?
Question 9 of 10
Which of the following best describes a prescription drug “formulary”?
Question 10 of 10
Which of the following are required to publicly post prices for health care services?