KFF Dashboard: Progress Toward Global Malaria Targets in PMI Countries

Published: Nov 25, 2025

Note:  This interactive includes data from before January 2025, and therefore does not reflect the potential impact of changes implemented by the Trump administration since then. For more information, see KFF’s Overview of President Trump’s Executive Actions on Global Health and The Trump Administration’s Foreign Aid Review: Status of the President’s Malaria Initiative (PMI).

About this Dashboard

This dashboard monitors the status of the U.S. President’s Malaria Initiative’s (PMI) partner countries’ progress toward global malaria targets. It includes data for 30 countries, including 27 focus countries in Africa (including the three PMI partner countries – Burundi, Gambia, and Togo – that were added in 2023) and three countries in the Greater Mekong Subregion in South-East Asia.* Together, these 30 countries represent almost 90% of the global malaria burden. Data are from the WHO’s World Malaria Report 2024. The data powering this dashboard are available for download here. KFF will continue to track PMI country progress on these indicators and update the dashboard as new data become available.

Notes

*PMI countries include the following: Angola, Benin, Burkina Faso, Burma, Burundi, Cambodia, Cameroon, Côte d’lvoire, D.R. Congo, Ethiopia, Gambia, Ghana, Guinea, Kenya, Liberia, Madagascar, Malawi, Mali, Mozambique, Niger, Nigeria, Rwanda, Senegal, Sierra Leone, Tanzania, Thailand, Togo, Uganda, Zambia, and Zimbabwe. U.S. President’s Malaria Initiative (PMI), Where We Work, accessed: https:/www.pmi.gov/what-we-do/. PMI, Press release: U.S. President’s Malaria Initiative Announces Plans to Expand to New Partner Countries, accessed: https://www.pmi.gov/u-s-presidents-malaria-initiative-announces-plans-to-expand-to-new-partner-countries/.

Policy Tracker: Exceptions to State Abortion Bans and Early Gestational Limits 

Last updated on November 24, 2025

states have abortion bans or early gestational limits in effect

states have no health exception

states have no rape or incest exception 

states have no fatal fetal anomaly exception 

Abortion is currently banned in 13 states and 6 states have early gestational limits between 6 weeks and 12 weeks in effect. Nearly all of these bans include exceptions, which generally fall into four categories: to prevent the death of the pregnant person, when there is risk to the health of the pregnant person, when the pregnancy is the result of rape or incest, and when there is a lethal fetal anomaly. Some states have more than one abortion ban or restriction in place. The maps below illustrate the exceptions in each state’s most restrictive gestational limit or total ban. For details hover over each state to read the rollover.  

For more information on the status of state abortion bans, please visit our Abortion in the United States Dashboard

Exceptions to State Abortion Bans and Early Gestational Limits in Effect, as of April 1, 2024
Exceptions in Abortion Bans and Gestational Limits, as of April 15, 2024

Mapping the Uneven Burden of Rising ACA Marketplace Premium Payments due to Enhanced Tax Credit Expiration

Published: Nov 24, 2025

Editorial Note: Originally published on November 13, this brief was revised on November 24 to provide additional analysis on the effects of enhanced premium tax credit expiration for those at 701% of poverty.

The Affordable Care Act (ACA) offers premium tax credits to help make health insurance more affordable. Under original Affordable Care Act provisions, an income cap for premium tax credits was set at 400% of the federal poverty level. Above that threshold, federal financial assistance was not available, creating a “subsidy cliff.” The American Rescue Plan Act (ARPA) and later the Inflation Reduction Act (IRA) temporarily expanded eligibility for tax credits to people with incomes over 400% of poverty, in addition to providing more generous support for people at lower incomes.

Enhanced premium tax credits expire at the end of this year. Enrollees currently receiving premium tax credits at any level of income will see their federal assistance decrease or disappear if enhanced premium tax credits expire, with an average increase of 114% to what enrollees pay in premiums net of tax credits. Since premium payments are capped based on income and family size, there is little geographic variation in the resulting increases in premium payments for enrollees with incomes below 400% of poverty. Out-of-pocket premiums for people with incomes below 400% of poverty will increase by hundreds of dollars to over $1,500 per person on average.

Among those with incomes over 400% poverty who are losing the tax credit altogether, the impact will be greatest for those whose unsubsidized premiums are highest: older Marketplace enrollees and those living in higher-premium locales. Among enrollees with incomes over 400% of poverty, just over half are between ages 50 and 64, and will therefore have high unsubsidized premiums.

The maps below show how much average premium payments would increase for 2026 benchmark silver plans with the expiration of enhanced premium tax credits at four income levels above an income cap of 400% of federal poverty for a 40-year-old and 60-year-old individual, namely 401%, 501%, 601%, and 701%..

Among these four income levels, enhanced tax credits provide the most financial assistance for those at 401% of poverty, which represents an annual salary of $62,757 for an individual in the contiguous United States. Because the cost of living is higher in Alaska and Hawaii, 401% of federal poverty is $78,396 and $72,140 for individuals there, respectively. In 46 states and the District of Columbia, a 60-year-old at 401% of poverty will see their average annual premium payment for a benchmark silver plan at least double without enhanced tax credits. In 19 states, this person would see their premium payment at least triple on average for a benchmark silver plan, consuming more than 25% of annual income. States with the highest premium payment increases due to expired enhanced tax credits for a 60-year-old at 401% of poverty purchasing a benchmark silver plan are Wyoming ($22,452 increase per year), West Virginia ($22,006), and Alaska ($19,636). The smallest increases caused by the loss of enhanced tax credits for what enrollees pay annually for the benchmark silver plan are in New York ($4,469), Massachusetts ($4,728) and New Hampshire ($4,877).

At 501% of poverty ($78,407 in the contiguous U.S., $97,946 in Alaska, $90,130 in Hawaii), expiration of enhanced premium tax credits would at least double average premium payments for a benchmark silver plan in 37 states and the District of Columbia for a 60-year-old; at 601% of poverty ($94,057 in the contiguous U.S., $117,496 in Alaska, $108,120 in Hawaii), 19 states would see the average benchmark silver premium payments at least double for a 60-year-old if enhanced tax credits expire; at 701% of poverty ($109,707 in the contiguous U.S., $137,046 in Alaska, $126,110 in Hawaii), the average benchmark silver premium payment would be at least twice as high in five states without enhanced tax credits for a 60-year-old. The impact on a 40-year-old is more modest at all income levels.

Existing premium differences lead to variation in premium payments with the expiration of the enhanced premium tax credits at the congressional district level as well. For people with incomes over 400% of poverty, there will be smaller premium payment changes for 40-year-old enrollees and larger changes for 60-year-old enrollees, for whom plans are more expensive..

VOLUME 35

Fake AI-Generated Videos Perpetuate Stereotypes About SNAP Recipients, And New KFF Poll Looks at Belief in the False Claim That Undocumented Immigrants Are Eligible for ACA Coverage


Summary

This volume examines how AI-generated videos contributed to false narratives about Supplemental Nutrition Assistance Program (SNAP) recipients during the government shutdown, lending alleged visual evidence to decades-old stereotypes about beneficiaries of government assistance. It also highlights findings from KFF’s latest Health Tracking Poll on beliefs about undocumented immigrants’ eligibility for health insurance through the Affordable Care Act (ACA). Lastly, it shares updates on a film amplifying false vaccine claims, Louisiana officials’ delayed response to a whooping cough outbreak, efforts in medical education to address shame in clinical settings, and a survey revealing distrust of news media among U.S. teens.


AI & Emerging Technology

AI-Generated Videos Spread False SNAP Narratives During Government Shutdown

Noel Hendrickson / Getty Images

What’s happening?

  • Fake videos of public assistance beneficiaries created using artificial intelligence (AI) spread online during the government shutdown, receiving millions of views and potentially contributing to misconceptions about who uses SNAP and deepening longstanding harmful racial stereotypes. SNAP provides food assistance benefits to approximately 42 million Americans, according to data from the United States Department of Agriculture (USDA), with White people making up the largest share of beneficiaries, and many recipients either working or actively seeking employment. Eligibility for the program includes work requirements, and more than half of households with children that receive SNAP benefits also receive earned income. SNAP fraud is rare, and analysis has shown that more than 98% of those receiving benefits were eligible.
  • Despite this reality, these AI-generated videos gave new reach to decades-old myths that people who receive benefits from SNAP and other government assistance are taking advantage of these programs and choosing not to work. The AI-generated videos predominantly depicted Black women arguing with retail employees about their benefits, stealing from grocery stores, or boasting about receiving public assistance while unemployed. KFF’s monitoring of social media identified several examples of these videos posted throughout the shutdown that accumulated millions of views within days. Many of the videos contained indicators that the content was AI-generated, such as mismatched audio-visual sync. Major news outlets, including Fox News, have faced criticism for sharing this AI-generated content as authentic reactions to the Trump administration’s decision to withhold SNAP payments during the government shutdown. Fox News later corrected its coverage after online commenters pointed out that the videos were AI-generated.

Why this matters

News reports covering these videos linked them to the “welfare queen” stereotype that emerged in the 1980s because they falsely depict benefit recipients, particularly Black women, as abusing government assistance and avoiding work. AI can be used to give these myths new visual “evidence,” as the technology makes it easier to create seemingly authentic testimonials that confirm existing biases. In addition to perpetuating harmful racial stereotypes, this false narrative has historically been used to justify cuts to government assistance programs and promote policies that further limit access to assistance and make it more difficult for people who qualify to access support. Similar narratives are likely to emerge again during future policy debates about benefit programs.


Recent Developments

KFF’s Latest Health Tracking Poll Finds That Half of the Public Correctly Say Undocumented Immigrants Are Not Eligible for ACA Coverage, But Many Are Uncertain

Amid debates over the recent government shutdown, some Republican lawmakers claimed that Democrats’ efforts to reverse some provisions of H.R.1, the “One Big Beautiful Bill Act,” would allow undocumented immigrants to receive federally subsidized health insurance. Undocumented immigrants are not eligible to purchase coverage through the ACA marketplaces, or enroll in federally funded coverage, including Medicaid, CHIP, or Medicare.

Fielded during the government shutdown, KFF’s latest Health Tracking Poll finds that about half (47%) of the public correctly say that undocumented immigrants are not eligible to buy health coverage on the ACA marketplaces, while 14% incorrectly say undocumented immigrants are eligible for this coverage. Notable shares, however, express confusion, with about four in ten (39%) adults saying they are “not sure.”

Notably, similar shares of Republicans (57%) and Democrats (52%) correctly say undocumented immigrants are not eligible for this coverage.

About Half of Adults Correctly Say Undocumented Immigrants Are Not Eligible for ACA Coverage, Including Similar Shares of Democrats and Republicans

What We Are Watching

New Film Contributes to Misleading Vaccine Claims on Social Media

A film released in October by an advocacy group opposed to childhood vaccination that amplifies false claims about the safety of children’s vaccines was frequently cited in discussions about vaccine safety. KFF’s monitoring of social media found that the film’s title, “An Inconvenient Study,” was mentioned in over 60,000 posts, reposts, and comments across X, Reddit, and Bluesky, this year as of November 19. The film describes an unpublished study purporting to show higher rates of chronic illness among vaccinated children, suggesting that its findings were concealed from the public. Henry Ford Health System, where the study originated, has issued a cease-and-desist notice to the filmmakers, stating the research did not meet its scientific standards, and independent experts have identified methodological flaws with the study’s design. False claims about vaccine safety, like those shared in the film, may contribute to declining vaccination rates. The KFF/Washington Post Survey of Parents found that those who skipped or delayed vaccines for their children were more likely to believe vaccine myths.

Louisiana’s Delayed Response to Whooping Cough Outbreak

Louisiana is experiencing its worst outbreak of whooping cough in 35 years, with 387 cases reported as of September 20. The outbreak began in September 2024, but reporting from a partnership that includes KFF Health News and NPR showed that state health officials waited months to alert physicians or conduct public outreach. The decision to withhold outbreak information could exacerbate declining trust in state health officials. KFF polling finds that just under half of adults report having a great deal or a fair amount of trust in their state health officials to provide reliable information about vaccines.

New Efforts to Combat Shame in Healthcare Settings to Improve Trust

The provider-patient relationship can play a role in how people access and understand health information. Patients who feel shamed in clinical settings may avoid asking questions, which can limit their access to information and guidance. Recent KFF Health News reporting describes efforts in medical training to reduce the potential for patients to feel shamed. Addressing shame in clinical settings could help support people’s understanding of health information, as many people are uncertain about health information and are likely to trust their doctor. KFF’s recent Tracking Poll on Health Information and Trust shows that personal doctors continue to remain one of the most trusted sources of health guidance among the public, so how they communicate might influence whether patients feel safe discussing concerns and access accurate information.

Survey Finds Teens Hold Negative Views of News Media

A new report from the News Literacy Project found that 84% of teenagers in the U.S. expressed negative sentiment when asked to describe news media, with many believing journalists regularly engage in unethical behaviors. When asked what journalists do well, about one-third of teens offered negative feedback, saying journalists were skilled at things such as “lying and deceiving.” This widespread distrust of news media among teenagers could affect how they seek out and evaluate health information, a trend that health communicators may need to consider when developing outreach strategies.

About The Health Information and Trust Initiative: the Health Information and Trust Initiative is a KFF program aimed at tracking health misinformation in the U.S., analyzing its impact on the American people, and mobilizing media to address the problem. Our goal is to be of service to everyone working on health misinformation, strengthen efforts to counter misinformation, and build trust. 


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The Monitor is a report from KFF’s Health Information and Trust initiative that focuses on recent developments in health information. It’s free and published twice a month.

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Support for the Health Information and Trust initiative is provided by the Robert Wood Johnson Foundation (RWJF). The views expressed do not necessarily reflect the views of RWJF and KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities. The data shared in the Monitor is sourced through media monitoring research conducted by KFF.

The New ACA Repeal and Replace: Health Savings Accounts

Authors: Larry Levitt and Cynthia Cox
Published: Nov 21, 2025

If enhanced premium tax credits under the Affordable Care Act (ACA) are allowed to expire at the end of the year, out-of-pocket premiums for 22 million enrollees that receive premium assistance will increase by an average of 114%, or $1,016 per person.

Democrats have pushed for the enhanced tax credits to be extended, and a vote is expected on their proposal in December. There have also been some bipartisan negotiations and proposals to extend the tax credits for up to two years, with changes like a cap on who is eligible by income and efforts to address any fraudulent signups by insurance brokers.

Meanwhile, proposals have emerged from some Republicans in Congress to effectively repeal some or all of the ACA premium tax credits and replace them with contributions to Health Savings Accounts (HSAs) or something similar. President Trump posted recently:

“THE ONLY HEALTHCARE I WILL SUPPORT OR APPROVE IS SENDING THE MONEY DIRECTLY BACK TO THE PEOPLE, WITH NOTHING GOING TO THE BIG, FAT, RICH INSURANCE COMPANIES, WHO HAVE MADE $TRILLIONS, AND RIPPED OFF AMERICA LONG ENOUGH. THE PEOPLE WILL BE ALLOWED TO NEGOTIATE AND BUY THEIR OWN, MUCH BETTER, INSURANCE.”

(The current ACA premium tax credits do not, in fact, go to insurance companies. The tax credits go to people to help them pay their premiums for ACA Marketplace plans. People can either wait until they file their taxes the following year to receive a lump sum or qualify for advance tax credits based on estimated income so they do not need to wait until they file their taxes. Those advance tax credits are forwarded directly to the insurance company they choose to purchase, directly lowering the enrollee’s monthly premium payments.)

Senator Scott Proposal

The most expansive health account proposal was recently introduced by Senator Rick Scott of Florida. It would allow the enhanced premium tax credits to expire but keep the value of the ACA premium tax credits from the original law. States could submit a waiver to the federal government to replace the original ACA premium tax credits with contributions by the federal government to accounts similar to HSAs. These “Trump Health Freedom Accounts” could be used for out-of-pocket health care costs, or to pay health insurance premiums (unlike traditional HSAs).

Unlike ACA premium tax credits, which can only be used for ACA Marketplace plans, the accounts in the Scott proposal could be used for any type of health insurance plan, including short-term plans that can exclude people based on pre-existing conditions. States could also waive certain provisions of the ACA, including the requirement to cover certain benefits.

While ACA plans would still be required to cover people with pre-existing conditions under the Scott proposal, it is likely that the ACA Marketplace would collapse in states that seek a waiver under his approach. Healthy people would be able to buy less expensive coverage that does not cover pre-existing conditions, or forgo insurance altogether and use their health accounts to pay for health care directly (carrying over any unused balanced from year to year). People with expensive health conditions would only be able to get coverage in ACA Marketplace plans, leading to a premium “death spiral” for those plans. Insurers would likely leave the ACA Marketplaces.

Senator Cassidy Proposal

Senator Bill Cassidy of Louisiana has proposed a different, narrower approach. Under the Cassidy proposal, the original ACA premium tax credits and benefit rules would remain in place. The value of the enhanced premium tax credits would be converted to federal contributions to HSAs, which could be used for out-of-pocket health care costs (e.g., deductibles and copays), but not to pay premiums. HSA contributions would only be available for people who enroll in bronze level ACA plans.

The Cassidy proposal is not yet available in legislative language, so a number of questions remain about how it would work. For example, how big would the HSA contributions be? Enhanced ACA premium tax credits vary by income, age, and the level of premiums in the county of residence, and they range from hundreds of dollars to thousands of dollars per person.

Because the health accounts in the Cassidy proposal could not be used to pay premiums, out-of-pocket premiums for ACA enrollees would more than double on average once the enhanced tax credits expire at the end of the year. HSA contributions would cushion the effect of the premium increases by helping people pay for deductibles, if people can afford the premiums to continue purchasing coverage.

However, to qualify for the HSA, enrollees would need to select a bronze plan and most people today are in a silver or gold plan. Many low-income people could get a bronze plan with no monthly premium payment, even without the enhanced tax credits. But, the lowest-income enrollees get cost-sharing reductions that bring their deductibles down to about $80 only if they purchase a silver plan. Deductibles in bronze plans average $7,476 per person.

Additionally, some middle-income people would no longer qualify for a tax credit because their incomes exceed four times the poverty level, and may be priced out of even a bronze plan premium, meaning they would not benefit from the HSA contribution.

While healthier people could benefit from the Cassidy proposal by receiving HSA contributions that could be used for a variety of health care expenses and carry over from year to year, sicker people could be stuck with higher premiums or higher out-of-pocket health costs. Because the HSAs in the Cassidy proposal are contingent upon having ACA Marketplace coverage, it does not pose the same risks of insurance market instability as the Scott plan.

Although the proposals from Senators Scott and Cassidy are quite different, they would both present trade-offs, generally benefiting people who are currently healthy at the expense of people who have expensive health conditions.

Refugees and Asylees: Recent Changes in Access to Health Coverage and Other Assistance 

Published: Nov 21, 2025

Introduction

Since 1980, the U.S. has had a formal system for admitting refugees and asylees—individuals and their families who are unable to return to their country of nationality due to a well-founded fear of persecution for certain protected reasons. The right to seek asylum is rooted in international law, and the system reflects the U.S.’s longstanding inclusion of humanitarian protection as a core principle of immigration law. Refugees and asylees are generally fleeing from unsafe conditions and arrive to the U.S. with few to no resources, with many facing traumatic experiences in their countries of origin and/or during their journey to the U.S. The U.S. historically provided refugees and asylees access to assistance with food, housing, and health care upon arrival to the country as well as other time-limited services to support their transition to the U.S.

Recently, President Trump has largely eliminated the entry of refugees and asylees into the U.S., and Congress passed legislation that will restrict refugees’ and asylees’ access to assistance programs. These changes could exacerbate the health and socioeconomic challenges refugees and asylees face and negatively impact the U.S. economy given that refugees and asylees have a long-term net positive impact on the U.S. economy, meaning that they contribute more through tax revenues than they cost the government.

This issue brief provides an overview of refugees and asylees in the U.S., trends in refugee and asylee admissions using data from the Department of Homeland Security (DHS), and recent changes in eligibility for assistance programs for refugees and asylees.

Overview of Refugees and Asylees

Following the passage of the Refugee Act of 1980, the U.S. established a standardized process for admitting refugees and asylees into the country through the U.S. Refugee Admissions Program. The right to seek asylum is rooted in international law, and this system reflects the longstanding inclusion of humanitarian protection as a core principle of U.S. immigration law.  Refugees and asylees are humanitarian immigrants who are unable or unwilling to return to their country of nationality due to persecution or fear of persecution based on one of five protected grounds that include race, religion, nationality, membership in a particular social group, and/or political opinion. For example, refugees living in the U.S. include young women who had to flee their lives and livelihoods in countries like Afghanistan following the departure of the U.S. military and subsequent takeover by Taliban, a fundamentalist group that is known for banning girls and women from going to school and working. Examples of asylum seekers in the U.S. include survivors of abuse, individuals from Central America who fear persecution due to identifying as Lesbian, Gay, Bisexual, Transgender, Queer (LGBTQ), and people fleeing death threats from drug cartels in Mexico. People seeking refugee status apply for their status from outside the U.S., and those seeking asylum apply for their status from within the U.S. or when seeking admission to the U.S. at a designated port of entry.

Refuges and asylees include significant shares who are children or female who mainly come from the Middle East, Central and South America, Asia, and Central Africa. In fiscal year (FY) 2023, the last year for which government data on the characteristics of refugees are available, the U.S. admitted 60,050 refugees. Nearly half (45%) were children ages 17 years and younger while 55% were adults ages 18 and older, who were primarily under age 35. They included equal shares of females and males (50%) (Figure 1). The top countries of nationality for refugees included Democratic Republic of the Congo (30%), Syria (18%), Afghanistan (11%), Burma (10%), Guatemala (3%), and Sudan (3%). In FY 2023, the last year for which government data are available, the U.S. granted asylum to 54,350 individuals. About a quarter (26%) of those receiving affirmative asylum were children ages 17 years and younger while the remaining nearly three in four were adults ages 18 and older, who were primarily under age 35. Over four in ten (44%) were female while 55% were male.1 The leading countries of nationality for asylees included Afghanistan (27%), China (9%), Venezuela (7%), El Salvador (6%), India (5%), and Guatemala (5%). However, these data are incomplete because, as of October 2024, over 90% of asylum cases filed in FY 2023 were still pending with only 2% being granted approval due to immigration backlogs. 

Refugees and Asylees Include Significant Shares Who Are Children or Female

President Trump placed an indefinite pause on the U.S. Refugee Admissions Program in January 2025. The pause led to halts in the processing of refugee applications, cancelation of refugee travel to the U.S., and the termination of the Welcome Corps program, which allowed for private sponsorship of refugees. While a court partially blocked the pause in March 2025 for refugees who were conditionally approved as of January 20, 2025, it still remains in effect for new refugees who may only be admitted on an excepted, case-by-case basis.

Reflecting the pause on admissions, the Trump administration reduced the refugee admissions ceiling to an all-time low of 7,500 for FY 2026 (Figure 2). The previous all-time low of 18,000 was in FY 2020 under the first Trump administration. Further, the Trump administration has stated that the FY 2026 refugee admissions will “primarily be allocated” to Afrikaners, who are White individuals from South Africa, representing a departure from admission patterns for previous years.

The Trump Administration Reduced the Refugee Ceiling to An All-Time Low for Fiscal Year 2026

While there is no annual cap for asylum filings, President Trump took executive action in January 2025 to close the border to a vast majority of migrants, including asylum seekers. Building on limits to border entries established by President Biden in 2024, President Trump took executive action aimed at increasing border security that effectively closed the U.S. border for asylum seekers when he assumed office in January 2025. President Trump also rescinded a 2021 Biden administration Executive Order that was designed to aid in the “safe and orderly processing of asylum seekers.” While data on asylum grants under the second Trump administration are not yet available, there has been considerable variation in the number of individuals granted asylum over time reflecting shifting immigration policy priorities and reductions in border entry amid the COVID-19 pandemic (Figure 3). Going forward, it is likely that asylum grants will drop substantially due to the Trump administration’s border policies.

The Number of Individuals Granted Asylum in the U.S. Has Varied Over Time

Refugee and Asylee Eligibility for Health Coverage and Other Assistance

Refugees and asylees are generally fleeing from unsafe conditions and arrive to the U.S. with few to no resources, with many having faced traumatic experiences in their countries of origin and/or during their journey to the U.S. Many refugees and asylees may not be able to immediately obtain jobs due to linguistic, cultural, and other barriers and, therefore, are likely to face challenges to accessing health coverage, health care, and meeting their basic needs. Research shows that refugees have significantly higher rates of food insecurity than the general U.S. population, with some refugee groups having food insecurity rates that are six times higher than the general U.S. population. Further, research shows that refugees face challenges navigating private and public health insurance and have higher uninsured rates compared to the general U.S. population. Research also shows that culturally competent and language accessible health care services for refugees can improve communication and trust between refugees and health care providers. 

Historically, the U.S. provided refugees and asylees access to health coverage and other assistance upon arrival to the U.S., with research showing that health coverage, cash assistance, and employment are important tools for helping them gain self-sufficiency. When the Refugee Act of 1980 was passed, Congress stated that part of its purpose was to help provide “humanitarian assistance” and “transitional assistance” to those fleeing persecution in their countries of nationality. While most lawfully present immigrants (including Lawful Permanent Residents or “green card holders”) have to wait five years after obtaining a “qualified” immigration status to enroll in federal public benefits, including federally funded health coverage such as Medicaid and the Children’s Health Insurance Program (CHIP), refugees and asylees historically have not been subject to this waiting period if they met income and other state-specific eligibility requirements. Refugees and asylees also have been able to enroll in subsidized Affordable Care Act (ACA) coverage and Medicare without a waiting period if they are otherwise eligible. Further, refugees and asylees could access other income-based federal assistance programs such as the Supplemental Nutrition Assistance Program (SNAP) (i.e., food stamps), Temporary Assistance for Needy Families (TANF), and Supplemental Security Income (SSI) if they met income and other eligibility requirements.

The 2025 tax and budget law, H.R.1, eliminates eligibility for health coverage and food assistance for many lawfully present immigrants, including refugees, asylees, and other humanitarian immigrants. The law restricts eligibility for Medicaid, CHIP, subsidized ACA Marketplace coverage, Medicare, and SNAP to immigrants who are Lawful Permanent Residents (LPRs or “green card” holders), certain Cuban and Haitian entrants, and citizens of the Freely Associated (COFA) nations of the Marshall Islands, Micronesia, and Palau residing in U.S. states and territories. States that have taken up an option under Medicaid and/or CHIP to cover lawfully residing children and pregnant people, who include refugees and asylees, can also maintain this coverage. Under these changes, refugees and asylees will become ineligible for these programs, except for some in states that have taken up the Medicaid and CHIP option to expand coverage for lawfully residing children and pregnant people.

Implementation dates for the eligibility restrictions vary by program. Medicaid and CHIP restrictions will take effect October 1, 2026; limits for subsidized ACA coverage will go in place January 1, 2027; Medicare coverage limits took effect July 4, 2025 (the date the law was signed), with current beneficiaries losing coverage no later than 18 months from the enactment of the legislation (January 4, 2027); and SNAP restrictions for new applicants go into effect as early as November 1, 2025, with current beneficiaries losing access at the time of their next recertification.

The U.S. also provides refugees and asylees access to certain time-limited benefits and services through the Office of Refugee Resettlement (ORR) to facilitate their transition. These include:

  • Refugee Medical Assistance (RMA): In cases where refugees and asylees are ineligible for Medicaid or CHIP, they may qualify for RMA, which had been available to refugees and asylees for up to 12 months prior to recent changes.
  • Refugee Cash Assistance (RCA): RCA provides cash assistance to refugees and asylees for basic necessities such as housing, food, and transportation. RCA had been available to refugees and asylees for up to 12 months prior to recent changes.
  • Refugee Support Services (RSS): Refugees and asylees also have access to a range of services to support employment and thereby, self-sufficiency, which include English language training, job training, childcare, and access to transportation. Access to RSS is available to refugees and asylees for up to five years.

The Trump administration has reduced access to time-limited support services that ORR provides to refugees and asylees. On March 21, 2025, the Administration for Children and Families issued a notice reducing the eligibility period for refugees and asylees to access RMA and RCA, citing budget constraints. This notice reduced access to RMA and RCA from 12 months to four months for refugees and asylees effective 45 days after the notice’s publication (i.e., May 5, 2025).

Together, these reductions are likely to exacerbate health and socioeconomic challenges faced by refugees and asylees and could also reduce their economic contributions to the U.S. Research by the Department of Health and Human Services Office of the Assistant Secretary for Planning and Evaluation (ASPE) finds that between 2005 and 2019, refugees and asylees had a net positive impact of about $124 billion on the U.S. economy, meaning that they contributed more in revenue ($581 billion) than they cost in expenditures ($457 billion) to the federal, state, and local governments. Actions to limit the assistance refugees, asylees, and other humanitarian immigrants receive when they arrive in the U.S. could create barriers to successful transition to employment and self-sufficiency and foreclose opportunities for them to make economic and workforce contributions in the future.


  1. Data on individuals granted asylum defensively in FY 2023 not available by age and sex. Affirmative asylum applies to those not in removal proceedings who apply directly to U.S. Citizenship and Immigration Services whereas defensive asylum applies to individuals already in removal proceedings. ↩︎

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States’ Management of Medicaid Home Care Spending Ahead of H.R. 1 Effects

Authors: Maiss Mohamed, Alice Burns, and Molly O'Malley Watts
Published: Nov 20, 2025

State Findings

Over one-third of Medicaid spending pays for long-term care, with most of the spending paying for home care—also known as “home- and community-based services” or HCBS. Medicaid pays for almost 70% of all home care spending in the U.S., nearly all of which is provided through optional services. Among those optional services, states rely heavily on Medicaid “waivers” to provide home care, which allow them to manage costs using mechanisms such as capping spending or enrollment in the waiver (Box 1). States may also use waiting lists to track and manage people who want to receive but are not yet receiving home care. While waiting lists may result from caps on waiver spending or enrollment, states also used them for other administrative reasons (Box 2).

Medicaid’s significant spending on home care and the availability of mechanisms for limiting such spending could spur states to cut home care spending in response to the 2025 reconciliation law. Cutting spending on home care could result in either fewer people receiving any benefits or people receiving fewer covered services, even though the need for home care is unlikely to fall in future years. The recently passed reconciliation law is estimated to reduce federal Medicaid spending by $911 billion between 2025 and 2034, roughly a 14% reduction in federal funding for the program. During the last major reduction in federal Medicaid spending, all states reduced spending on home care by serving fewer people (40 states) or by cutting benefits or payment rates for long-term care providers (47 states).

Using data from the 23rd KFF survey of officials administering Medicaid home care programs, this issue brief describes the mechanisms states are currently using to limit Medicaid spending on home care and their plans for adopting new mechanisms in state fiscal year (FY) 2026. The survey was sent to all home care programs in all 50 states and the District of Columbia (hereafter referred to as a state), which states completed between April and July 2025. All states except Florida completed the survey, although response rates for specific questions may have been lower. States generally completed the survey prior to enactment of the reconciliation law, so changes to limit spending in FY 2026 are not attributable to the new law. Survey findings are reported by state and waiver target population, although states often offer multiple waivers for a given target population. Key takeaways include:

  • For most home care services, which are delivered through waiver programs, 44 out of the 50 responding states constrain spending through limits on either total enrollment (37 states) or on total spending (15 states, Figure 1). Most states (37) also cap waiver spending per participant for at least one waiver.
  • Most states (44) reported using mechanisms in at least one waiver to restrain spending that applies to specific services, such as limiting the amount of spending for services per participant (38 states) or limiting the quantity of personal care enrollees may receive (34 states).
  • Nearly a third of responding states (15) reported planning to adopt new strategies in FY 2026 to contain home care costs. Since most survey responses were collected before enactment of the reconciliation bill, it is not yet known how this number will change as states prepare for the forthcoming cuts to federal Medicaid spending.
  • Fewer mechanisms are available to states in managing spending for home care services provided outside of waivers, but nearly all states use prior authorization as a tool to manage that type of spending.
Nearly All States Manage Medicaid Home Care Spending with Caps on Spending or Enrollment, or by Limiting Services

Box 1: Legal Requirements and Options for Medicaid Home Care Waivers

Most Medicaid home care is provided through 1915(c) waivers, which allow states to provide home care to people who prefer to receive long-term care in their home or community rather than from an institution. The 1915(c) waiver allows states to waive several requirements of Medicaid law including that services be available statewide, and on a comparable basis to all Medicaid enrollees. States may offer a variety of unlimited services through the waiver, and states tailor the benefit packages to meet the needs of a particular target group. All services must follow an individualized plan of care. Among other requirements, 1915(c) waivers must demonstrate that the services will not cost more than institutional care would. This requirement is implemented through a cost neutrality test [see Instructions, Technical Guide and Review Criteria V3.7], that compares the per person costs of waiver services to the per person costs of providing care to similar people in an institutional setting.

States are permitted, but not required, to set limits on total enrollment or spending in a 1915(c) waiver. Enrollment limits may take several forms including the number of participants served, the number of enrollees at a given time, or the rate at which people are enrolled or disenrolled. States may also keep waiver slots available as “reserve capacity” for people to enroll on a priority basis, such as people transitioning from institutions to the community or people in crisis.

Four states also only provide home care through 1115 waivers, which offer states an avenue to test new approaches in Medicaid that differ from what is required from federal statute, if the approach is likely to “promote the objectives of the Medicaid program” in the view of the Secretary of Health and Human Services. There is no statutory requirement for waivers to be “budget neutral,” but long-standing policy and practice has required states to demonstrate budget neutrality. One way to demonstrate budget neutrality is to show that per enrollee spending over the course of the waiver does not exceed projected per enrollee spending in the absence of the waiver.

Mechanisms for Limiting Waiver Home Care Spending and Enrollment

Most states (37) manage Medicaid spending on home care by capping either total enrollment, or both total spending and enrollment (Figure 1). Most states also cap per person spending for home care waiver services. The two primary types of waivers states use to offer Medicaid home care are 1915(c) and 1115. The two waivers differ in that 1915(c) waivers are specifically used to provide Medicaid home care to people who require an institutional level of care whereas 1115 waivers can test all types of new Medicaid approaches (Box 1). Among the 50 responding states that provide home care through waivers, 15 states have caps on total waiver spending, 37 have caps on the total number of participants, and 37 have caps on spending per person (Appendix Table 1).

Box 2: Differences Between Waiver Caps and Waiting Lists

Although caps on total spending or participants may result in waiting lists when the caps result in too few waiver slots relative to the number of people who wish to receive services, in many cases, waiting lists and enrollment caps are conceptually different. In nearly all states, there are waivers that use spending or enrollment caps but don’t have waiting lists or waivers that have waiting lists without spending or enrollment caps.

States may constrain waiver spending by capping total enrollment or total spending but not have a waiting list for that waiver in the following types of situations:

  • The caps are set high enough that no people who wish to receive services are unable to do so,
  • The state allows all applicants to enroll in the waiver but limits spending by reducing the services provided, or
  • The state allocates services to people with the greatest need and refers people who are not approved for waiver services to other home care programs.

States may have waiting lists in the absence of caps on enrollment or total spending in the following types of situations:

  • People have registered to receive home care, but the state has not yet determined whether they are eligible,
  • People are determined eligible for waiver services, but they have not yet had their level of care assessed or started receiving services, or
  • People are eligible for services but not receiving them on account of provider shortages.

Use of caps on total spending, participation, or costs per participant were reported in 44 states (Figure 2). Among the 50 responding states with waivers, 44 had caps of some sort, including 15 with caps on total spending, 37 with caps on total participants and 37 with caps on spending per participant. For both 1915(c) and 1115 waivers, states are required to meet cost neutrality requirements to demonstrate that the costs per enrollee in waiver services do not exceed the per enrollee costs of institutional care (Box 1). States may meet this requirement by showing that average costs per enrollee are below the average costs of institutional care or they may establish cost limits for all participants enrolled in the waiver. States that adopt such individual cost limits [see Instructions, Technical Guide and Review Criteria V3.7] must specify the safeguards in place to address people’s needs after they have reached the individual cost limit.

Use of caps is similar for waivers that serve different target populations. Among waivers for people with intellectual or developmental disabilities (47 states) or people who are ages 65 and older or have physical disabilities (45 states), the number of states with caps on total spending (8 and 6 respectively), participation (27 and 28), and spending per participant (26 and 22) are similar. Similar trends also apply for waivers that are available in a smaller number of states (Appendix Table 2).

Less than a quarter of states (11) reported planning to adopt new mechanisms to limit waiver enrollment or spending in state FY 2026. Among states that are planning to adopt new mechanisms, caps on the number of waiver participants are most common (8 states) with few states planning to newly cap spending per waiver participant (4) or total waiver spending (1). Only two states, Maryland and Oregon, reported planning to adopt more than one mechanism (Appendix Table 4).

Nearly All States Cap Medicaid Home Care Waiver Spending or Participants

Mechanisms for Limiting the Costs of Specific Waiver Home Care Services

Most states (44) use at least one mechanism to constrain the costs of specific home care services per participant in their waivers (Figure 3). Among states with service-specific limits, caps on spending for specific services (38 states) are more common than volume-based limits such as maximum hours of personal care or number of visits (used by 34 states).

States are more likely to use spending caps for waivers that serve people with intellectual and developmental disabilities but are more likely to use volume-based limits for waivers that serve older adults and people with physical disabilities. Of the 47 states offering 1915(c) waivers serving people with intellectual and developmental disabilities, close to two-thirds of states (31) cap spending for waiver services per participant and nearly a third limit personal care hours or visits per person (15 states). For the 45 states with waivers serving people who are ages 65 and older or have physical disabilities, limits on the quantity of personal care are more common (24 states) than caps on spending for waiver services per participant (19 states). The number of states with these service caps varies for less common waivers. The maximum number of hours or visits of personal care vary by state and over a third of states determine limits through a functional assessment (19 states).

States reported capping spending on a range of different waiver services, including home and vehicle accessibility modifications and adaptive equipment and assistive technology. Home and vehicle accessibility modification limits, such as ramps and wheelchair van lifts, vary across states; Delaware and Nebraska have waivers serving people with intellectual and developmental disabilities that cap adaptations to $10,000 per participant every five years while Massachusetts waivers for the same population limit home modifications to $50,000 and vehicle modifications to $25,000 per participant in a five-year period. Some states, like Illinois, group all equipment, technology, and modifications into a combined category for spending limitations, but other states have separate caps. For example, Louisiana’s waiver serving people with intellectual and developmental disabilities caps spending on specialized medical equipment at $2,500 per year and Michigan’s waiver for people who are ages 65 and older or have physical disabilities caps spending on assistive technology at $5,000 per year.

For FY 2026, 12 states reported planning to adopt new waiver service limits to constrain costs. New caps on spending for specific types of waiver services per participant (8 states) are more common than limits on the quantity of personal care (5 states). Connecticut is the only state that reported planning to adopt both mechanisms (Appendix Table 4).

Most States Limit the Use of Medicaid Home Care Waiver Services Per Person

Use of Prior Authorization to Manage Spending on State Plan Home Care

For Medicaid home care that is provided through the state plan, states cannot use waiver-specific mechanisms for constraining costs but do generally use prior authorization. State Medicaid agencies often require enrollees to obtain approval of certain health care services or medications before the care is provided—an insurance practice commonly referred to as “prior authorization.” In Medicaid, prior authorization is used for both mandatory services, such as home health, and optional services, such as personal care, and is widely used by Medicaid managed care organizations. If the requested service is deemed not appropriate or medically necessary, the request may be denied (fully or partially), but enrollees may be able to appeal the decision through certain appeals and exemption procedures. However, the appeals process can be difficult to navigate, and individuals may be denied access to needed care while waiting for a decision. In a KFF survey conducted in July 2025, 79% of Medicaid enrollees under age 65 and 67% of those ages 65 and older found delays and denials of health care services by health insurance companies to be a major problem.

Nearly all states (47) reported using prior authorization to constrain costs on either personal care or home health services (Figure 4). Among those states, over half (26) use prior authorization for all home care services, while the remaining states (21) have this policy in place for only some services. Home health is a mandatory benefit for all states, and 40 states use prior authorization for home health. Personal care is an optional benefit offered by 33 states, and nearly all (29) use prior authorization for personal care. Common services that require prior authorization include personal care, private duty nursing, specialized equipment and technology, and home and vehicle modifications. Prior authorization is also used for home care service requests above certain thresholds (e.g. more than 40 hours per week of personal care).

States reported that prior authorization for Medicaid home care services may be conducted by various entities, including Medicaid agencies, other state entities, managed care organizations, or case managers. Across state plan services, the most common entities responsible for approving or denying services are managed care organizations (12 states), utilization management vendors (7 states), state Medicaid agencies (6 states), or other state agencies (6 states). The same entities are typically responsible for conducting prior authorization for waiver services.

States may also use prior authorization for waiver services, but it may be part of person-centered service planning requirements that apply to all 1915(c) waivers [see Instructions, Technical Guide and Review Criteria V3.7]. All services provided through a 1915(c) waiver must be specified in advance through a written service plan, also known as a plan of care. The plan is intended to provide a complete picture of how enrollees’ needs are met. The plan documents which specific waiver services will be provided to participants, including the amount, duration, and frequency of each service, and the types of providers that may furnish each service.

Nearly All States Use Prior Authorization for Medicaid Home Care State Plan Services

KFF asked states about whether they required cost sharing for home care and found that few do. Only 3 states reported requiring cost sharing for personal care offered through waivers (Georgia, Illinois, and Rhode Island) and 3 states reported requiring copayments for other waiver services (Minnesota, Oklahoma, and Rhode Island). Additionally, 3 states (Georgia, Idaho, and Maine) reported requiring copayments for home health services. No states reported adopting new copayments for state FY 2026. Starting October 1, 2028, the reconciliation law requires states to impose cost sharing of up to $35 per service on adults eligible for Medicaid through the Affordable Care Act Medicaid expansion with incomes 100-135% FPL. Nearly 400,000 Medicaid enrollees who use long-term care are eligible on account of the Medicaid expansion, and that group will be required to pay cost sharing under this requirement. It is unknown whether states will choose to apply the cost sharing requirements for home care more broadly—either on account of administrative efficiencies or as a mechanism to reduce state spending on home care in response to the historic reduction in federal Medicaid funding from the reconciliation law.

This work was supported in part by Arnold Ventures. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities. 

Appendix Tables

States Reporting Enrollment or Spending Caps on Medicaid Home Care or Tools to Limit the Use of Waiver Services
States Reporting Caps on Medicaid Home Care Waiver Spending or Enrollment for State FY 2025
States Reporting Tools to Limit the Use of Medicaid Home Care Waiver Services for State FY 2025
States Reporting Adoption of New Strategies to Contain Medicaid Home Care Waiver Costs for State FY 2026
States Reporting Prior Authorization Policies for Medicaid Home Care State Plan Services in State FY 2025

A Look at Waiting Lists for Medicaid Home- and Community-Based Services from 2016 to 2025

Authors: Alice Burns, Abby Wolk, and Molly O'Malley Watts
Published: Nov 20, 2025

Medicaid is the primary payer for long-term care (LTC) in the United States, and pays for more than two-thirds of the LTC delivered in home- and community-based settings. Most home care (also known as “home and community-based services” or HCBS) is optional for states to provide and is frequently offered through “waivers,” which allow states to cover a wide range of benefits and to choose—and limit—the number of people who receive services. KFF estimates that 5.1 million Medicaid enrollees use home care, and that about half of people are using home care through waivers. States’ ability to cap the number of people enrolled in home care waivers can result in waiting lists when the number of people seeking services exceeds the number of waiver slots available.

On July 4, President Trump signed the 2025 reconciliation law, once called the “One Big, Beautiful Bill,” that includes significant changes to the Medicaid program. The Congressional Budget Office (CBO) estimates that the new law will reduce federal Medicaid spending over a decade by $911 billion. Given the substantial share of Medicaid spending that pays for home care, and the optional nature of most home care programs, cuts to home care programs could occur as states look for ways to respond to the reductions in federal spending. If states cut home care by reducing the number of people who can receive waiver services, waiting lists could increase. Waiting lists could also increase on account of changes to immigration policy in states that use waiting lists to manage shortages of home care workers, one-in-three of whom are immigrants. The Trump Administration has made notable changes to immigration policy focused on restricting entry at the border and increasing interior enforcement efforts to support mass deportation. Those changes place increased pressure on the home care workforce, a sector that was already facing workforce shortages

This data note provides new information about waiting lists in Medicaid home care before many of the provisions in the reconciliation law go into effect. Waiting lists are an incomplete measure of unmet need (Box 1) and are not necessarily comparable across states or over time. Because of those considerations, the number of people on waiting lists could either increase or decrease in response to the federal Medicaid cuts. The data come from the 23rd KFF survey of officials administering Medicaid home care programs in all 50 states and the District of Columbia (hereafter referred to as a state), which states completed between April and July 2025. The survey was sent to each state official responsible for overseeing home care benefits (including home health, personal care, and waiver services for specific populations such as people with physical disabilities). All states except Florida responded to the 2025 survey. Survey findings are reported by state and waiver target population, although states often offer multiple waivers for a given target population. Key takeaways include:

  • Forty-one states maintain waiting lists or interest lists for people who would like to receive home care, a number that fluctuated little between 2016 and 2025.
  • In all years since 2016, there have been at least 0.5 million people on waiting lists or interest lists, with a total of over 600,000 in 2025.
  • In 2025, 12 states reported having at least one new waiting list (across 20 waivers), and 29 states reported an increase in the number of people on waiting lists or interest lists compared with only 12 states reporting a decrease.
  • Most people on waiting lists or interest lists have intellectual or developmental disabilities (I/DD) and most live in states that do not screen any people for eligibility prior to adding them to waiting lists.
  • Most people on waiting lists or interest lists are eligible for personal care provided through states’ regular Medicaid programs or for services provided through specialized state plan home care benefits.

KFF also recently updated the waiting list indicators on State Health Facts which show data by state and target population.

Box 1. Why do waiting lists provide an incomplete measure of unmet need and why is it difficult to compare waiting lists across states?

Waiting lists provide an indication of people who may need services they are not receiving, but they are an incomplete measure of unmet need for several reasons. Waiting lists reflect the populations a state chooses to serve, the services it decides to provide, the resources it commits, and the availability of workers to provide services. Waiting lists do not include people with unmet needs in the following types of circumstances:

  • States do not cover the applicable services (and therefore, have no waiting list),
  • States allow all eligible people to enroll but restrict service provision to manage total spending in the waiver, and
  • Eligible people are enrolled but providers have no excess capacity (and in some cases, the home care providers maintain their own waiting lists).

It is difficult to compare waiting lists across states because states’ approaches to managing waiting lists differ in how they prioritize and screen for eligibility. Some waiting lists include only eligible individuals while others include people for whom eligibility has not been determined. The availability of non-waiver services for people on waiting lists also varies. Although people may wait a long time to receive waiver services—32 months on average in 2025—most people are eligible for other types of home care while they wait.

Starting in 2027, states will be required to report the number of people on waiting lists as required under a final rule on access to Medicaid services, but it is unclear whether such reporting will address these data limitations on waiting lists. The data will include the number of people who are waiting to enroll in a waiver program, information on whether the people on the list have been screened for eligibility, the average amount of time people newly enrolled in the waiver over the past 12 months spent waiting to enroll, the average length of time between approval for services and service start dates, and the percent of authorized hours of care that were provided. Although the regulation does not mention interest lists, referral lists, or registries, the preamble to the rule indicates CMS’ intent for states to report all types of lists.

Despite the enhanced data states will be required to report, waiting list and waiver information will remain imperfect measures of unmet need. None of the new data will reflect how long it takes for people to receive home care provided through the Medicaid state plan, or how comprehensive services are. The new data also do not capture the number of people whose authorized services are below needed levels because of hourly or dollar caps on the amount of home care they can receive.

How Many States Have Waiting Lists for Home Care?

Between 2016 and 2025 the number of states with waiting lists has fluctuated between 37 and 41 and is currently at 41 states (Figure 1). While some Affordable Care Act (ACA) opponents have cited waiver waiting lists to argue that expanding Medicaid diverts funds from older adults and people with disabilities, research shows that ACA Medicaid expansion has led to gains in coverage for people with disabilities and chronic illnesses. Waiting lists for home care predate the ACA Medicaid expansion, which became effective in most states in 2014, and both expansion and non-expansion states have waiting lists. Waiver enrollment caps have existed since home care waiver authority was added to federal Medicaid law in the early 1980s.

The Number of States with Waiting Lists or Interest Lists for Medicaid Home Care Has Been Fairly Stable Since 2016

While the overall number of states with waiting lists did not change much from 2024 to 2025, there were more changes in waiting lists for specific types of waivers. Twelve states (across 20 waivers) reported new waiting lists, with the largest number of new waiting lists for people with intellectual or developmental disabilities (I/DD). For example, five states (Illinois, Louisiana, Missouri, Utah, and Wisconsin) reported new waiting or interest lists for waivers targeting individuals with I/DD.

Several of the new waiting lists reflect instances where states undertook efforts to increase access to care. For example, Wisconsin has a new collaborative effort with counties to identify children who are eligible for but not receiving services under the state’s waivers. This has resulted in a list of nearly 9,000 children who are deemed eligible for services but have not yet been enrolled in waivers. Indiana established a new waiver for older adults that also resulted in a new waiting list of nearly 8,000 people.

How Many People Are on Waiting Lists for Home Care?

Between 2024 and 2025, total enrollment in waiting lists and interest lists increased by 14%, and is over 600,000 in 2025 (Figure 2). Overall, there was an increase in the number of people on waiting or interest lists in 29 states and a decrease in 12 states. Most of the largest increases in waiting lists were in states that reported new waiting lists—often which represented new waivers or efforts to more proactively enroll eligible participants, as described above. Maryland reported one of the biggest decreases in waiting lists because the state increased the number of waiver slots for their program serving older adults and people with disabilities, reducing the number of people on the waiting list by over 2,000 people.

One factor that contributes to changes over time—especially the notable decline between 2018 and 2020—is that not all states screen for Medicaid eligibility prior to adding people to waiting lists and changes in this policy may result in changes in waiting list volumes. For example, between 2018 and 2020, the total number of people on waiting lists decreased by 155,000 or 19%. However, nearly half of that change came from Ohio’s implementation of a waiting list assessment of waiver eligibility, which reduced the size of the state’s waiting list by nearly 70,000 people. In 2025, most states (35) with waiting lists screen individuals for waiver eligibility among at least one waiver, but even among those states, seven do not screen for all waivers. The six states that do not screen for eligibility among any waivers (Florida, Iowa, Oklahoma, Oregon, South Carolina, and Texas) account for more than half (325,000) of all people on waiting lists.

A Disproportionate Number of People on Waiting Lists for Home Care Live in States That Don't Assess Eligibility for People Waiting

In 2025 and earlier years, a disproportionate number of people on home care waiting lists or interest lists lived in states that did not screen people on waiting lists for eligibility. One reason waiting lists provide an incomplete picture of need is that not all people on waiting lists will be eligible for services. The number of states that don’t screen for eligibility on any waiting lists ranged from six to eight states between 2022 and 2025, yet the share of individuals on waiting lists in these states ranged from 40% to 54%. Interviews about home care waiting lists found that when waiver services are provided on a first-come, first-served basis, people enrolled in waiting lists are in anticipation of future need. That study found that in some states, families would add their children to waiting lists for people with I/DD at a young age, assuming that by the time they reached the top of the waiting list, their children would have developed the immediate need for services. Many of those waivers offer comprehensive home care packages that include supported employment, supportive housing, or round-the-clock services. Among the six states that do not screen people for eligibility on any lists, three have only waiting lists, Texas has only interest lists, and two use both. (Illinois does not establish eligibility until selection but does a preliminary evaluation of eligibility prior to placing someone on the list.)

Who Is on Waiting Lists for Home Care?

Most people on waiting lists have I/DD, particularly in states that do not screen for waiver eligibility before placing someone on a waiting list. People on waiting lists for waivers serving people with I/DD (which include waivers specific to people who have autism) comprise 81% of waiting lists in states that do not screen for waiver eligibility, compared with 55% in states that do determine waiver eligibility before placing someone on a waiting list (Figure 3). People with I/DD comprise almost three-quarters (74%) of the total waiver waiting list population. Older adults and adults with physical disabilities account for nearly one-quarter (23%), while the remaining share (4%) includes children who are medically fragile or technology dependent, people with traumatic brain or spinal cord injuries, people with mental illness, and people with HIV/AIDS. People who are on home care waiting lists are generally not representative of the Medicaid population or the population that uses home care. Most people on waiting lists have I/DD, but KFF analysis shows that people with I/DD comprise fewer than half of the people served through 1915(c) waivers (the largest source of Medicaid home care spending).

Most People on Medicaid Home Care Waiting Lists or Interest Lists Have Intellectual or Developmental Disabilities

How Long Are People on Waiting Lists for Home Care?

In 2025, people on the waiting or interest lists accessed services after an average of 32 months (33 of 41 states responding), down from 40 months in 2024. People with I/DD wait 37 months on average. The average waiting period for other waiver populations ranged from 15 months for waivers targeting older adults and people with physical disabilities to 63 months for waivers that serve people with autism. People with I/DD residing in states that do not screen for eligibility wait longer for services than people with I/DD residing in states that do screen for waiver eligibility (49 months versus 32 months, on average).

Most people on waiting or interest lists are eligible to receive other types of home care while they wait. Among the 607,000 people on lists for waiver services in 2025, living arrangements are unknown for more than 445,000. Among the people whose living arrangements are known, 96% (154,000) live in the community and 4% (7,000) live in institutional settings. Although most people on waiting lists live in the community, that may not be true for all waivers. In one California waiver for older adults and people with disabilities, nearly 5,000 of the roughly 6,500 people on the waiting list are living in institutions.

While waiting for waiver services, people living in the community are likely to be eligible for other home care through Medicaid state plans. Of the over 5 million people who use home care, KFF estimates that roughly half use services provided through the Medicaid state plan, such as personal care to help with bathing or preparing meals, therapies to help people regain or acquire independent living skills, and assistive technology. States may not use waiting lists to restrict the number of people eligible to use such services and over 80% of people on home care waiting lists are eligible for personal care or other state plan services. They would not, however, have access to more specialized services such as supported employment or adult day care. People on waiting lists who receive state plan services may also have fewer hours of personal care than they would in a waiver program, or they may not have assistance with some of the activities they need help with such as bathing, dressing, preparing meals, or managing medication.

How Medicare Pays Medicare Advantage Plans: Issues and Policy Options

Published: Nov 20, 2025

Issue Brief

Medicare Advantage, the private plan alternative to traditional Medicare, covers over half of eligible Medicare beneficiaries. Initially, one of the goals of having Medicare contract with private plans was to generate savings for the Medicare program by introducing competition between private plans. However, private plans have never generated savings for Medicare, in part because the way Medicare pays private insurers has never sufficiently accounted for the differences in health status between beneficiaries in traditional Medicare and those enrolled in Medicare Advantage plans. In addition, the payment system was designed to attract insurers to the Medicare Advantage market, providing payments sufficient to maintain profitability as well as to fund supplemental benefits, which are valued by enrollees. This has limited the amount of savings realized by the federal government when private plans achieve efficiencies and have lower costs than traditional Medicare.

The Medicare Payment Advisory Commission (MedPAC) estimates that, in 2025, payments from the federal government to Medicare Advantage plans exceed what spending would have been in traditional Medicare by 20%, which translates into $84 billion in additional spending. Higher payments to Medicare Advantage plans increase total Medicare spending, strain the Part A Hospital Insurance trust fund and drive-up Part B premiums for all Medicare beneficiaries. This raises questions about whether the current payment system provides strong financial returns to insurers at the expense of the federal budget, Medicare beneficiaries themselves, and U.S. taxpayers, while also providing popular supplemental benefits such as dental and vision for Medicare Advantage enrollees. It also raises questions about whether the current payment system results in an inequitable distribution of supplemental benefits, in that it finances these additional benefits for Medicare Advantage enrollees but not traditional Medicare beneficiaries.

According to press reports, some Senators briefly considered including changes to how the federal government adjusts payments to Medicare Advantage plans based on the health status of their enrollees as part of the reconciliation legislation enacted into law on July 4, 2025. Some reportedly raised the possibility of including the No UPCODE Act, a bipartisan bill that includes a subset of payment reforms recommended by MedPAC. While these changes were ultimately not included in the reconciliation bill, there appears to be ongoing interest in refining the current methodology for setting payments to plans, given the impact of the current payment system on Medicare spending and the federal budget.

This brief explains how Medicare Advantage payments are determined, including a description of the parameters that are set in law and those that can be modified by the executive branch through its regulatory authority. It also provides an overview of policy options to change the Medicare Advantage payment system and includes a glossary of terms (italicized and bolded in text) related to Medicare Advantage payment policy.

Medicare Advantage payments are determined through an annual process.

Private plans have a long history in the Medicare program, and the details of how they are paid have changed over time to address evolving policy goals, largely as part of major pieces of legislation, including the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), the Balanced Budget Act of 1997, the Medicare Modernization Act of 2003, and the Affordable Care Act of 2010 (ACA).

Medicare Advantage plans receive a monthly payment per enrollee from the federal government to provide Medicare-covered services. In most cases, the funds received from the federal government are sufficient for plans to also cover supplemental benefits, such as vision, hearing, and dental services, to reduce cost sharing compared to what is required under traditional Medicare without a supplement, and to buy-down the Part D premium for plans that offer prescription drug coverage. Congress established the framework for the Medicare Advantage payment system giving the Secretary of the Department of Health and Human Services (HHS) authority in how it is implemented. In each step of the annual payment process described below, some components are set in statute (many of which were substantially revised by the ACA), while the Secretary of HHS is directed to define others, which is implemented by the Centers for Medicare & Medicaid Services (CMS), the federal agency that oversees and administers the Medicare program.  

Benchmarks are the maximum amount the federal government will pay Medicare Advantage plans.

The maximum amount the federal government will pay private insurers in a county for an average beneficiary who enrolls in a plan is called the benchmark. This amount is a percentage of what the federal government spends on beneficiaries in traditional Medicare in the county. The law stipulates that all counties nationwide are to be divided into quartiles based on traditional Medicare spending and sets the benchmark as a specific percentage. The maximum amount the federal government will pay private plans is less than traditional Medicare in one-quarter of counties and is equal to or more than traditional Medicare in the other three-quarters of counties.

Specifically, counties in the first quartile with the highest spending (such as Miami-Dade County, Florida) have a benchmark set at 95% of traditional Medicare spending. Counties in the second and third quartiles have benchmarks set at 100% and 107.5% of traditional Medicare spending, respectively. And counties in the fourth quartile with the lowest spending (such as Hennepin County (Minneapolis), Minnesota) have a benchmark of 115% of traditional Medicare spending.

The law also states that benchmarks are to be increased by a specific amount for plans that receive at least a 4-star rating under the quality bonus program. In most counties, benchmarks are increased by 5 percentage points for qualifying plans. The increase is 10 percentage points for qualifying plans in urban counties with historically high Medicare Advantage penetration and with lower-than-average traditional Medicare spending (double bonus counties). Benchmarks are capped and cannot be higher than they would have been prior to the ACA.  

In each U.S. county, the calculation of traditional Medicare spending for setting the benchmark includes spending for beneficiaries with Parts A and B, and beneficiaries with Part A only or Part B only, even though enrollment in both Part A and Part B is required for Medicare Advantage. Including Part A only and Part B only beneficiaries in the calculation of traditional Medicare spending for the purpose of calculating benchmarks has the effect of reducing average traditional Medicare spending compared to what it would be if spending was based only on beneficiaries enrolled in both Part A and Part B. 

While the law broadly defines how to consider historical traditional Medicare spending for purposes of setting Medicare Advantage benchmarks, it directs the Secretary of HHS, through CMS, to compute the per capita rate for payments and publish this amount. CMS, therefore, decides how to incorporate available data, as well as the economic and other assumptions to use when forecasting how health care spending will grow (since CMS is setting the payment for the upcoming year). CMS also develops, revises, administers and evaluates the methods used to calculate and assign star ratings, which are used to determine the annual increases in the benchmarks, as well as rebates received by plans (described below), and are available for beneficiaries to use to compare plans. To derive star ratings, CMS determines the specific quality measures to use, the source and year of data, how to weight measures, and the cut points for specific star values. In October of each year, CMS publishes updates to quality star ratings, which appear on the Medicare Plan Finder and are used for the subsequent payment year (after the one beginning in the coming January). That is, the quality star ratings published in the fall of 2025 will be used to determine payments for plans available to beneficiaries in 2027.

CMS publishes an Advance Notice of proposed methodological changes and payment policies early in the calendar year and a final Rate Announcement, including the county-level benchmarks, by the first Monday in April. Along with the rate announcement, CMS makes the rate book, as well as the bid pricing tool available at this time. This gives plans the information and time needed to prepare their bids (described in the next section).

Insurers submit bids to cover Medicare A and B services.

After CMS publishes the final rate announcement, insurers estimate how much it will cost to cover Medicare Part A and Part B services (excluding hospice) for the average Medicare beneficiary under each Medicare Advantage plan they propose to offer, plus administrative expenses and profit. Insurers submit their bids to CMS by the first Monday in June. (There is an exception to this process for employer- and union- sponsored plans, which do not submit bids, and instead are assigned a bid amount based on the enrollment-weighted average of bids for plans available in the same counties.) CMS is responsible for reviewing, negotiating, and ultimately determining whether to accept a bid.  CMS publishes the approved Medicare Advantage plans ahead of the October 1st launch of the marketing period for the coming year and Medicare’s annual open enrollment period that runs from October 15 through December 7.

The law requires insurers to submit certain information as part of their bid, including: a description of the proposed costs of providing all items and services covered under the plan, the proportion attributable to Medicare-covered Part A and Part B benefits, basic Part D prescription drug coverage, and supplemental benefits. Plans are also required to submit the actuarial basis used in their calculations, including a description and the actuarial value of deductibles, coinsurance, and copayments. Plans are required to spend at least 85% of their revenue on plan-covered services (including extra benefits), leaving 15% for administrative expenses and profit. This is also called the medical loss ratio (MLR). Additional instructions to insurers, including information that CMS requires as part of the bid are addressed in the Annual Rate Announcement and included in the instructions for the bid pricing tool.

Payments to Medicare Advantage plans are comprised of two components, the base payment and the rebate.

For all approved bids, CMS calculates how much the federal government will pay the Medicare Advantage plan per enrollee, by comparing the insurer’s bid (to cover the cost of providing Medicare Part A and Part B services) to the benchmark. The precise benchmark against which a bid is compared depends on whether the plan is a local or regional plan, and the specific counties in which the plan operates. Bids for plans that operate across multiple counties are compared against a weighted average benchmark constructed using projections for plan enrollment across the different counties.

The payments to Medicare Advantage plans include the following two components:

  • Base payment. For plans that bid at or below the benchmark, the base payment is 100% of the plan’s bid. If the bid is above the benchmark, the plan’s base payment is equal to the benchmark amount, and enrollees in that plan pay a supplemental premium equal to the difference between the bid and the benchmark.
  • Rebate. In addition to the base payment, plans that bid below the benchmark receive a portion of the difference between the benchmark and bid, which is called a rebate. (Plans that bid at or above the benchmark receive no rebate.) The percentage of the difference a plan gets depends on the quality star rating of the contract of which it is a part (most Medicare Advantage contracts include multiple plans) and is specified in law. The rebate percentage is 70% of the difference for plans that are part of contracts with at least 4.5 stars, 65% for plans that are part of contracts with 3.5 to 4.5 stars, and 50% for plans that are part of contracts with less than 3.5 stars.
  • Plans are required by law to use the rebate dollars to reduce cost sharing, pay for non-Medicare covered benefits (for example, dental, vision, and hearing services), or reduce the Part B and/or Part D premium (as well as to cover associated administrative costs and profit). Since 2018, the rebate portion of the payment has nearly doubled for individual plans, which are broadly available for general enrollment, and more than doubled for special needs plans, which are plans that restrict enrollment to beneficiaries with specific care needs or who are dually eligible for Medicare and Medicaid (Figure 1). Virtually all Medicare Advantage plans now provide supplemental benefits, usually for no additional premium.
Since 2018, the Rebate Portion of Medicare Advantage Payments Nearly Doubled for Individual Plans and More Than Doubled for Special Needs Plans
Payments to Medicare Advantage plans are adjusted for the health status of enrollees.

The law requires CMS to adjust payments to Medicare Advantage plans for certain demographic characteristics and the health status of enrollees. This is called risk adjustment, and under this process enrollees are assigned a risk score that is intended to serve as a predictor of their expected health care spending. CMS is responsible for developing the risk adjustment model, including deciding which data to use, the number of years of diagnosis data to incorporate, and the set of diagnoses that will factor into the risk score.

CMS periodically revises and updates the risk adjustment model, including how it is referenced (i.e., moving from V24 to V28, the current version in use) and provides notification in the Advance Notice when it proposes to make changes. For example, this occurred in 2023 when CMS proposed an update to the data used to calibrate the risk adjustment model and the year used to estimate the effect of the different factors in the model, as well as changes to how certain conditions that were coded more frequently in Medicare Advantage than in traditional Medicare were incorporated (or not) into the risk adjustment model. After considering comments on their proposed changes, including from industry representatives that were concerned about the impact on benefits and costs, changes were incorporated into V28 and adopted through a phased in process during plan years 2024 and 2025. CMS also makes decisions about other model specifications, such as how to scale risk scores so that the average score for traditional Medicare beneficiaries in the payment year is equal to 1 (this is called the normalization factor).

The law requires the Secretary to reduce Medicare Advantage risk scores by not less than 5.9 percent to account for the difference in coding patterns between Medicare Advantage and traditional Medicare if the risk model is developed using traditional Medicare data (which it currently is). The requirement for an automatic reduction in risk scores is because Medicare Advantage enrollees tend to have more documented diagnoses than they would if covered under traditional Medicare. (See next section for a fuller discussion of coding intensity.)

Medicare Advantage payments exceed expected spending in traditional Medicare.

Medicare payments to Medicare Advantage insurers consistently exceed the amount Medicare would have been expected to spend on enrollees if they were covered under traditional Medicare, according to MedPAC (Figure 3). In 2025, MedPAC estimates that payments per enrollee are 20% higher than expected spending would be in traditional Medicare. That translates into $84 billion of additional spending for 2025 alone. The higher payments to plans and the associated higher spending under Medicare can be attributed almost entirely to coding intensity ($40 billion) and favorable selection ($44 billion), described in more detail below.

Interactive DataWrapper Embed
Coding intensity contributes to higher spending for Medicare Advantage enrollees.

The current risk adjustment system relies on diagnoses from health care encounters in the prior year and generally provides higher payments to Medicare Advantage plans for enrollees with more reported diagnoses. This system creates incentives for Medicare Advantage plans to document more health conditions for their enrollees than would have been recorded in traditional Medicare. In traditional Medicare, health care providers only have to record enough information about a person’s diagnosed health care conditions to support the service for which payment is being submitted. This results in Medicare Advantage enrollees looking sicker than they would if they had been covered under traditional Medicare. Since the risk adjustment model is calibrated on traditional Medicare beneficiaries, the difference in coding practices means that the model overpredicts spending for Medicare Advantage enrollees and thus pays more for Medicare Advantage enrollees than if they had been covered under traditional Medicare. MedPAC estimates that higher coding intensity in Medicare Advantage contributes $40 billion of the $84 billion in additional Medicare spending in 2025.

Medicare Advantage insurers utilize tools that are never or rarely used in traditional Medicare to capture more diagnoses than are included on health care claims, such as chart reviews and health risk assessments (HRAs), some of which occur in a person’s home rather than in a clinical setting. On the one hand, capturing additional diagnoses could help Medicare Advantage organizations better manage care for enrollees by providing a more complete picture of someone’s health. But on the other hand, such coding practices increase payments to Medicare Advantage insurers often without improving care. Analyses by the Health and Human Services Office of the Inspector General (HHS OIG) and Wall Street Journal found, for example, that enrollees in Medicare Advantage plans frequently had no health care services associated with many of the diagnoses that appear in submissions used to calculate risk scores. MedPAC estimates that in 2023, diagnoses documented from chart reviews and HRAs contributed $24 billion and $15 billion, respectively, to total Medicare Advantage spending, a finding consistent with estimates by other researchers.

The extent to which the embedded incentives and use of additional tools impacts risk scores varies substantially across Medicare Advantage insurers. MedPAC found that in 2023, 85% of Medicare Advantage enrollees were in a plan sponsored by an insurer estimated to have coding practices that increased their enrollees’ risk scores by more than CMS’ 5.9% reduction in risk scores. In other words, even with the across-the-board 5.9% reduction to risk scores applied by CMS, payments for the vast majority Medicare Advantage enrollees remain higher than expected spending in traditional Medicare due to coding intensity.

The reporting of diagnoses for risk adjustment that are not supported by a person’s medical record could be due to insufficient documentation or potentially constitute fraud. Risk Adjustment Data Validation (RADV) audits are the primary tool the government uses to identify and recover payments to plans that were made based on such diagnoses. However, due to limited resources and staff at CMS allocated for RADV audits, the federal government has audited only a small share of Medicare Advantage contracts and has not recouped a substantial amount of Medicare payments made to plans based on coding practices that could not be justified.  

In May 2025, CMS under the Trump administration announced it would audit every Medicare Advantage contract every payment year, substantially increase the staff dedicated to carrying out these audits, and expedite the completion of audits launched between 2018 and 2024. However, it is not clear whether CMS has taken any steps to hire the new staff. Additionally, a federal judge recently struck down a rule finalized under the Biden administration related to RADV audits, which may further complicate CMS’ ability to implement its announced audit strategy. Nevertheless, Dr. Mehmet Oz, the current Administrator for CMS, continues to express concern about coding practices that document more conditions without accompanying treatment, suggesting this will remain a priority for the agency. The Department of Justice also has several ongoing cases alleging that certain insurers submitted diagnoses to CMS for risk adjustment purposes that are not valid, meaning the enrollee does not have the condition at all, and thus are illegal under the False Claims Act.

Favorable selection into Medicare Advantage plans also leads to higher Medicare spending.

Among people with the exact same risk score (based on reported diagnoses and other characteristics) that is used to estimate expected health care spending, actual spending will vary. In other words, some people use more services and incur substantially higher costs than others who have the same reported medical conditions. If people whose actual spending is lower than average among all people with the same risk score are more likely to enroll in Medicare Advantage, then there is favorable selection into Medicare Advantage because the actual cost of providing coverage for enrollees (before any effects from care management) is lower than the payments made to plans. Analysis comparing traditional Medicare spending among people who subsequently enroll in Medicare Advantage and those who remain in traditional Medicare implies favorable selection because traditional Medicare spending among beneficiaries with similar risk scores was lower for those who subsequently enrolled in Medicare Advantage than beneficiaries who stayed in traditional Medicare. MedPAC estimates that favorable selection contributes $44 billion of the $84 billion in additional Medicare spending in 2025.

One reason spending varies across people with the same risk score is that people who are the same age and sex with the same health conditions (the primary inputs into the risk score model) vary in how much health care they actually use, even if their predicted spending would be the same based on having the same risk score. Many things that affect a person’s use of health care services are not captured in the risk score model, including personal preferences or circumstances, tolerance for risk, or clinical nuances that require more or less management of a particular condition.

In the presence of utilization management tools that are common features of Medicare Advantage plans, such as prior authorization, referral requirements, and the use of networks, people who expect to use more health care services may prefer to receive their coverage from traditional Medicare, where these tools are generally not used. While these utilization management tools may deter use of unnecessary or clinically inappropriate services and reduce what the plan spends on Medicare-covered services, these effects are separate from the impact of favorable selection.

Efficiencies achieved by Medicare Advantage insurers do not guarantee savings for the federal government.

Even without the differences in spending due to coding intensity and favorable selection, when plans operate efficiently and have lower costs than traditional Medicare, Medicare payments could still be higher for beneficiaries enrolled in Medicare Advantage plans than expected costs for these beneficiaries under traditional Medicare. This is because the payment system is not designed for the federal government to retain the majority of savings achieved by Medicare Advantage insurers.

First, benchmarks are set at or above traditional Medicare spending in three-quarters of counties (representing nearly 60% of all Medicare beneficiaries), meaning savings are not guaranteed in these counties because the maximum amount the federal government is willing to pay is at least as much as what spending would be in traditional Medicare. Second, benchmarks are further increased under the quality bonus program. For example, in 2025, 75% of Medicare Advantage enrollees are in a plan that receives bonus payments, at an estimated cost of at least $12.7 billion according to a prior KFF analysis. Third, insurers’ rebate payments are set so that they are paid between 50% and 70% of the difference between the benchmark and their bid (the estimated cost of providing Medicare-covered services), which limits the share of any savings attributable to efficiencies that are retained by the federal government.

While most Medicare Advantage plans estimate that their costs for covering Part A and Part B services are well below traditional Medicare spending, with the average bid equal to about 83% of traditional Medicare spending, payments from CMS can still exceed spending in traditional Medicare, particularly in counties with benchmarks set above traditional Medicare costs. That lower spending could stem from a number of factors, such as lower use of health care services, including fewer hospital admissions and less use of post-acute care.

Consider an illustrative county with a benchmark that is 115% of traditional Medicare spending and average traditional Medicare spending of $1,000 per month. Plans with an average bid and at least a 4-star quality rating would potentially receive payments in excess of traditional Medicare spending. As shown in Figure 4, a 4-star plan with estimated costs that are 17% below traditional Medicare spending, that is a bid of $830, would receive $1,071 a month for an average enrollee, compared to traditional Medicare spending of $1,000 per month. In this example, only the 3-star plan would achieve modest ($10 per month) savings for traditional Medicare.

Example of how the Medicare Advantage Payment System does not Guarantee Savings to the Federal Government Relative to Traditional Medicare
Higher payments contribute to Medicare Advantage plans’ ability to provide extra benefits.

Virtually all Medicare Advantage enrollees are in a plan that offers reduced cost sharing and coverage of non-Medicare covered services, such as dental, vision and hearing, usually for no additional premium. Plans pay for these benefits using their rebate dollars. Additionally, most people in a plan that includes Part D prescription drug coverage do not have to pay the Part D premium, because the plan uses its rebate dollars to cover this cost. Thus, the higher payments to Medicare Advantage plans compared to spending in traditional Medicare allow private plans to provide additional benefits that enrollees potentially value. It is difficult to estimate how much value enrollees get, however, because detailed data on out-of-pocket spending, the use of extra benefits by enrollees, and plan spending by type of extra benefit are not readily available.

A variety of proposals have been put forward to reform the Medicare Advantage payment system.

The higher spending in Medicare Advantage relative to traditional Medicare has prompted numerous proposals to reform the Medicare Advantage payment system. Some proposals aim to address concerns related to coding intensity, either directly or through refinements to the methodology for adjusting payments to plans for the health status of enrollees (risk adjustment). Additional proposals would modify specific levers in the current payment system, such as the methodology for determining benchmarks, the quality bonus program and star ratings, or introducing a new reinsurance program. And others would adopt more fundamental changes to the payment approach, like implementing competitive bidding for Medicare Advantage plans. Often, proposals incorporate multiple reforms (Table 1). In many cases, the proposals described in this section would require Congressional action, while others could be implemented by CMS as part of rulemaking or the annual rate announcement.

Changes to the Medicare Advantage payment system that result in lower payments to plans raise concerns about the impact on plan availability, benefits, and costs. Specifically, since plans use payments from the federal government to reduce cost sharing, pay for non-Medicare covered services, and buy down the Part B and/or Part D premiums, some in the industry have argued that lower payments will translate into fewer extra benefits and higher premiums and other costs for enrollees. Analysis of how Medicare Advantage insurers respond to payment changes thus far suggests that the effects have been modest and that insurers have prioritized reducing their profits or lowering administrative costs over major changes to popular benefits. Following changes to the risk adjustment model that were phased in beginning in 2024, some insurers reduced the number of plans they offered, though overall the market was relatively stable. Ultimately, the response of insurers to changes in payment, and the impact on beneficiaries, will depend on the magnitude of the payment reductions and how gradually the changes are phased in overtime.

Several options to reduce the impact of coding intensity differences between Medicare Advantage and traditional Medicare have been proposed. For example, MedPAC recommends several policy changes, including developing a risk adjustment model that uses two years of traditional Medicare and Medicare Advantage diagnostic data to reduce year-to-year variation in the documentation of diagnoses, excluding diagnoses from HRAs (in either traditional Medicare or Medicare Advantage), and applying a coding adjustment that fully accounts for any remaining differences between traditional Medicare and Medicare Advantage. The Congressional Budget Office (CBO) has estimated that a subset of these policies (using two years of data and excluding diagnoses from HRAs) would save $124 billion over 10 years (2025 – 2034).

In recent years, policies to address coding intensity have also gotten increased attention from Congress. For example, the No UPCODE Act, sponsored by Senator Bill Cassidy (R-LA) and Senator Jeff Merkley (D-OR), largely modeled after the recommendations from MedPAC, would require CMS to exclude diagnoses from chart reviews and HRAs, use two years of diagnostic data, and take into account differences in Medicare Advantage and traditional Medicare coding patterns when determining adjustments to Medicare Advantage payment. The legislation has been introduced in two successive sessions of Congress.

Some proposals would increase the coding intensity adjustment applied to all Medicare Advantage plans above the 5.9% minimum. CBO included two variations of an increase in the across-the-board adjustment in its most recent set of Options for Reducing the Deficit, estimating that over 10 years, increasing the across-the-board risk score reduction from 5.9% to 8% would save $159 billion, while an increase from 5.9% to 20% would save more than $1 trillion (both over the 2025 – 2034 time period). A modification of this option would apply a tiered adjustment based on plans’ historical coding behaviors, so plans with higher coding intensity would have a higher adjustment. (CBO has not released an estimate of savings from this option.)

Options to revise how the federal government determines benchmarks for Medicare Advantage payments include both changes to the quartile system and changes to the calculation of spending in traditional Medicare that serves as the basis for benchmarks. For example, MedPAC recommends replacing the current approach to benchmarks (based on traditional Medicare spending in counties, stratified by quartiles) with a policy that blends local area traditional Medicare spending with standardized national traditional Medicare spending. This approach would keep benchmarks above traditional Medicare spending in low-spending areas, maintaining incentives for insurers to participate in these markets, and below traditional Medicare spending in high-spending areas, allowing the Medicare program to reduce overall spending. The approach also aims to address concerns about basing benchmarks on traditional Medicare spending in counties with very high Medicare Advantage penetration and smooths the differences across counties with similar traditional Medicare spending. The proposal would also apply a 2% discount rate to the benchmark to ensure the federal government retains a minimum level of savings. Some of the savings achieved by the MedPAC proposal would be offset by its recommendation to calculate traditional Medicare spending based on beneficiaries enrolled in both Medicare Part A and Part B (rather than include beneficiaries with Part A only or Part B only), which has a substantial cost, and by eliminating the policy that caps benchmarks at their pre-ACA level. Under this recommendation, the rebate percentage would be set at 75% for all plans (rather than tied to star ratings). In June 2021, MedPAC estimated that taken altogether, these changes would result in $10 billion in savings over 5 years.

Other variations of options to revise the benchmark system include capping benchmarks at a percent of traditional Medicare costs or imposing requirements that adjustments to the benchmark reduce aggregate payments so that they do not exceed spending for similar beneficiaries in traditional Medicare. Paragon Health Institute estimates that capping benchmarks at 100% of traditional Medicare spending in all counties except those with the lowest Medicare Advantage penetration would save $385 billion over 10 years.

Proposals to reform the Medicare Advantage program often include replacing, modifying, or ending the quality bonus program, and revising the quality star ratings system on which bonuses are based. For example, one Congressional proposal would end the benchmark increases for plans that obtain certain quality scores. In addition, MedPAC has proposed a comprehensive reform to the quality rating system that would replace the quality bonus program with a Medicare Advantage Value Incentive Program (MA-VIP). The MA-VIP would score a small set of measures, evaluate quality at the local level, account for social risk factors, distribute rewards based on a continuous scale so that there is not a sharp “cliff” where only plans above a certain threshold get a bonus, and incorporate both rewards for higher-performing plans and penalties for lower-performing plans. In June 2020, MedPAC estimated that these changes would save more than $10 billion over five years.

Another option includes making the quality bonus program budget neutral by offsetting spending on bonuses for high-quality plans with penalties paid by low-quality plans. The Committee for a Responsible Federal Budget (CRFB) estimates that making the quality bonus program budget neutral would save between $115 billion and $170 billion over 10 years (2024 – 2033).

Additionally, a narrower approach that largely retains the quality bonus program but eliminates double bonus counties would produce some savings. CBO estimates that eliminating double bonuses would save $18 billion over 10 years (2019 – 2028), but that savings estimate could be larger now given the growth in Medicare Advantage enrollment since the estimate was developed.

Another approach would establish a reinsurance mechanism to protect Medicare Advantage insurers from extremely high and unexpected costs that are not otherwise addressed by the risk adjustment model. For example, insurers could be paid more for enrollees that had spending that was substantially higher than predicted, while insurers with enrollees with substantially lower than predicted spending would make payments into the program, designed so the whole system was budget neutral (known as a two-sided approach). One Congressional proposal includes stop-loss payments for plans that experience significantly higher expenditures than expected and authorizes the Secretary to implement such payments in a budget-neutral manner.

Competitive bidding proposals.

Another option would shift away from traditional Medicare spending as the basis for benchmarks and instead use bids submitted by insurers that estimate the cost of providing Part A and Part B services to determine the benchmark. This approach is referred to as competitive bidding. For example, under this approach, the maximum Medicare payment to plans (benchmarks) could be set at the enrollment-weighted average of bids submitted to provide a standard benefit package, similar to the process used in the Part D payment system. CBO has not scored a competitive bidding approach in recent years. The Bipartisan Policy Center estimates that this change could save between $400 billion and $500 billion over 10 years (2024 – 2033).

Table 1
Proposals to Reform the Medicare Advantage Payment System
Category SummaryExamplesSavings Estimates
Coding Intensity and Risk Adjustment: Reduce the impact of coding intensity differences between Medicare Advantage and traditional Medicare.Exclude diagnoses from HRAs from risk adjustment model (MedPAC, No UPCODE Act, H.R. 3467)

Exclude diagnoses from chart reviews from risk adjustment model (No UPCODE Act, H.R. 3467)

Use two years of data (MedPAC, No UPCODE Act, H.R. 3467)
 
Increase across-the-board adjustment to risk scores
 
Apply a tiered adjustment to risk scores based on historical coding intensity
Use two years of data in risk model and make diagnoses from HRAs ineligible for risk adjustment: $124B (CBO, 2025-2034)
Benchmarks: Move away from the quartile system and revise calculation of traditional Medicare spending.Use a blend of national and local traditional Medicare spending (MedPAC) 

Use spending for traditional Medicare beneficiaries enrolled in both Part A and Part B (MedPAC, Paragon Health Institute) 

Eliminate benchmark cap based on pre-ACA spending (MedPAC, Paragon Health Institute) 

Discount benchmark by 2% (MedPAC) 

Cap benchmarks at 100% of traditional Medicare spending, except in counties with low Medicare Advantage penetration (Paragon Health Institute)
Blending national and local traditional Medicare spending: $10B over 5 years (MedPAC, est. in 2021) Capping benchmarks at 100% of traditional Medicare spending: $385B (Paragon Health Institute, est. in 2024)
Quality Bonus Program and Star Ratings: Replace, modify, or end quality bonus program and/or revise star rating system.Make quality bonus program budget neutral (CFRB)
 
End benchmark increases for plans that obtain certain quality scores (H.R. 3467)
 
Eliminate double bonus counties
Eliminating double bonuses: $18.2B (CBO, 2019-2028)
 
Making QBP budget neutral: $115-170B (CFRB, 2024-2033)
Reinsurance or Stop Loss: Establish mechanism to protect insurers from extremely high and unexpected costs.Stop-loss payments to plans that experience significantly higher spending than expected (H.R.3467)Budget neutral
Competitive Bidding: Use plan estimates of costs to cover standard set of benefits to set benchmark.Set benchmark at the enrollment-weighted average of Medicare Advantage insurer bids to provide a standardized benefit package (Schaeffer Initiative for Health Policy, Bipartisan Policy Center)Benchmark set to enrollment-weighted average of bids: $400B to $500B (BPC, 2024-2033).

This work was supported in part by Arnold Ventures. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

Medicare Advantage Glossary

A
Advanced Notice
The publication of proposed changes to the methodology used in the previous year to determine annual Medicare Advantage payment rates. Required to be announced at least 60 days prior to the annual rate announcement.
B
Base Payment
The portion of the federal payment to Medicare Advantage insurers that pays for the cost of providing Medicare Part A and Part B services.
Benchmark
The maximum amount the federal government will pay per month for an average Medicare beneficiary enrolled in a Medicare Advantage plan in a county.
Bid
The amount a Medicare Advantage insurer estimates it will cost to provide Medicare Part A and Part B covered services under a proposed plan benefit package for an average Medicare beneficiary.
Bid Pricing Tool
The forms and instructions provided by CMS to assist plans in developing and submitting the required information for each plan benefit package it proposes to offer in the upcoming year.
C
Chart Review
The process of reviewing a person’s medical records to determine if there are additional diagnoses that would be appropriate to include and/or if there are diagnoses that were included in information submitted to the insurer that are inaccurate and should be removed.
Coding Intensity
The degree to which Medicare beneficiaries’ health care conditions are documented through diagnoses codes submitted to Medicare Advantage insurers or traditional Medicare. Also used to describe the difference in coding patterns, and resulting risk scores, between groups of beneficiaries, such as those in Medicare Advantage and traditional Medicare, or those in Medicare Advantage plans sponsored by different insurers. 
D
Double Bonus Counties
Counties where qualifying plans (those with at least a 4-star quality rating) receive a 10 percentage point increase in their benchmark. These are urban counties with lower-than-average traditional Medicare spending and historically high Medicare Advantage penetration. 
H
Health Risk Assessment (HRA)
A tool used to evaluate a person’s health status, including their health care conditions, health history, and potential risks.
I
Individual Plan
A Medicare Advantage plan available for enrollment to any Medicare beneficiary with both Medicare Part A and Part B in the county where it is offered. Also referred to as conventional plans.
M
Medical Loss Ratio
The percentage of revenue, including federal payments and any supplemental premiums paid by enrollees, that an insurer spend on covered benefits and quality improvement activities.
N
Normalization Factor
The adjustment used by CMS to rescale risk scores so that the average risk score for traditional Medicare beneficiaries is equal to 1.
Q
Quality Bonus Program
The Affordable Care Act requires CMS to increase the benchmark for plans that are part of contracts that have at least a 4-star rating, on a 5-star scale. The increase in the benchmark is 5 percentage points in most counties and 10 percentage points in double bonus counties.
R
Rate Announcement
The publication of final annual Medicare Advantage capitation rates for each payment area for the upcoming year, as well as the process for adjusting these rates for the health status of enrollees and other factors, and a description of and rationale for the underlying assumptions and changes in methodology. Required to be published by the first Monday in April.
Rate Book
The Medicare Advantage monthly capitation rates published by CMS for local, regional, and employer group waiver plans. Rates are published by star rating.
Rebate
The portion of the federal payment to Medicare Advantage insurers that pays for reduced cost sharing, non-Medicare covered benefits, and to buy-down Part B and/or Part D premiums. Only plans that bid below their benchmark (which is most plans) receive a rebate.
Risk Adjustment
The process of increasing or decreasing the federal payment to Medicare Advantage insurers to account for an enrollee’s health status and expected health care spending.
Risk Adjustment Data Validation Audit
Process used to verify the accuracy and appropriateness of diagnosis information submitted by Medicare Advantage insurers for the purpose of risk adjusting payments from the federal government.
Risk Adjustment Model
The process used to estimate the effect of a person’s characteristics and diagnosed health conditions on their expected health care spending.
Risk Score
The numerical value assigned to a Medicare Advantage enrollee, using the risk adjustment model, based on their age, sex, dual status, whether they live in an institution, and their diagnosed health conditions, which is used to predict their health care spending, and the payments made to the Medicare Advantage plan in which they enroll.
S
Special Needs Plan
A Medicare Advantage plan that restricts enrollment to Medicare beneficiaries that meet certain criteria, including being enrolled in both Medicare and Medicaid (dual-eligible individuals), having certain chronic conditions, or requiring an institutional level of care.
Star Rating
The numerical value assigned to a Medicare Advantage contract, and all plans within the contract, based on performance on a set of quality measures. Star ratings range from a low of 1 for the lowest performing plan to a high of 5 for the highest performing plans.