Medicare Advantage Quality Bonus Payments Will Total at Least $12.7 Billion in 2025

Authors: Jeannie Fuglesten Biniek, Anthony Damico, and Tricia Neuman
Published: Jun 12, 2025

The House-passed reconciliation bill includes only a few provisions that directly affect Medicare spending. It includes no provisions related to Medicare Advantage, the private plan alternative to traditional Medicare, even though analysis by the Medicare Payment Advisory Commission (MedPAC) estimates payments to Medicare Advantage plans are $84 billion (or 20%) more than spending for similar beneficiaries in traditional Medicare. In contrast, the bill instead focuses on major changes to Medicaid and the Affordable Care Act (ACA), which would reduce federal spending by over $1 trillion and increase the number of uninsured people by an estimated 10.9 million. (When combined with the effects of allowing the ACA’s enhanced premium tax credits to expire, CBO estimates 16 million more people will be uninsured in 2034.) Despite some reports last week that Senate Republicans were considering including changes to how the federal government adjusts payments to Medicare Advantage plans based on the health status of their enrollees, those now appear unlikely to be included in the Senate version.

The Medicare Advantage quality bonus program, established by the Affordable Care Act, increases Medicare payments to Medicare Advantage plans based on a five-star rating system. Plans may, but are not required to, use the additional payments to cover the cost of supplemental benefits, including reduced cost sharing, extra benefits not covered by traditional Medicare (e.g., vision, hearing and dental), and lowering Part B and/or Part D premiums. The star ratings are intended to help consumers make informed decisions when choosing among Medicare Advantage plans and the bonus payments are intended to encourage plans to compete based on quality. However, MedPAC and others have observed that the star ratings incorporate too many measures, do not adequately account for social risk factors, and may not be a useful indicator of quality because star ratings are reported at the contract rather than the plan level. Medicare Advantage contracts typically include multiple plans, which may have different benefits, costs, networks, service areas, and enroll different populations (i.e., plans that are open for general enrollment and special needs plans that limit enrollment to dual-eligible individuals).

Critiques of the quality bonus program have led to calls to replace, reform or end the program. In 2018, the Congressional Budget Office estimated that eliminating the quality bonus program would lower federal spending by almost $100 billion over ten years. Given the sharp increase in both actual and projected Medicare Advantage enrollment since CBO’s analysis, the savings from eliminating bonuses could be substantially higher. For example, 33 million people were enrolled in Medicare Advantage in 2024, which was 5 million more than CBO projected at the time of the analysis, and CBO’s most recent projections for future Medicare Advantage enrollment are nearly 30% higher than previously projected. The degree to which changes to the quality bonus program would impact plan quality or the availability of supplemental benefits would depend on the specifics of any proposal and how insurers modified plan offerings in response. Though the proposal that had reportedly been under consideration by the Senate, the No UPCODE Act, does not directly address the quality bonus program, to the extent the changes in the legislation results in lower risk scores of Medicare Advantage enrollees, spending under the quality bonus program would also be lower.

This analysis examines trends in bonus payments to Medicare Advantage plans, enrollment in plans in bonus status (plans that qualify for a benchmark increase based on their quality star rating), and how these measures vary across plan types using publicly available information on Medicare Advantage enrollment, payment rates, and quality ratings.

Key Takeaways:

  • Federal spending on Medicare Advantage bonus payments will total at least $12.7 billion in 2025, similar to spending in 2023, and more than four times higher than in 2015. Since 2015, Medicare has spent at least $87 billion on quality bonus program payments.
  • Most Medicare Advantage enrollees (75%) are in plans that are receiving bonus payments in 2025. Since 2019, at least 7 in 10 Medicare Advantage enrollees have been in a plan receiving a bonus payment.
  • The average bonus payment per enrollee is highest for employer- and union-sponsored Medicare Advantage plans ($438) and lowest for special needs plans ($332), raising questions about the implications of the quality bonus program for high-need beneficiaries.

Medicare Advantage plans will receive at least $12.7 billion in bonus payments in 2025.

Estimated bonus payments to Medicare Advantage plans will total at least $12.7 billion in 2025, similar to 2023. Bonus payment spending had decreased slightly in 2024 following a decline in star ratings after the expiration of COVID-19 pandemic-era policies. Those policies prevented individual measures that go into calculating the star ratings from declining between 2021 and 2022 and temporarily increased star ratings for certain plans. Bonus payments have increased sharply since the program started, more than quadrupling from $3.0 billion in 2015 to $12.7 billion in 2025 (Figure 1). The total spending on the quality bonus program is less than 2.5% of the projected payments to Medicare Advantage plans in 2025 ($540 billion).

Total Spending on Medicare Advantage Plan Bonuses Will Increase in 2025 to $12.7 Billion

Medicare spending on bonus payments has grown faster than enrollment in Medicare Advantage, which has doubled since 2015. This spending comes at a time when the Medicare program is facing growing fiscal pressures. Medicare Advantage benchmarks (and corresponding spending) have grown faster than traditional Medicare spending in part because of the increase in bonus payments.

These estimates are a lower bound because bonus payments are risk adjusted, which is likely to increase bonus payments. The estimates also do not include additional spending that results if plans increase their bids when their benchmark is higher because of being in bonus status. For example, a plan might increase its bid to increase payments to providers, add more expensive providers to its network, or retain a larger amount as profit, provided they meet medical loss ratio requirements.

The distribution of bonus spending across plan types is similar to the distribution of enrollment in 2025, though employer plans comprise a slightly larger share of bonus spending than enrollment. Individual plans account for 61% ($7.8 billion) of bonus spending and 62% of enrollment, employer plans account for 20% ($2.5 billion) of bonus spending and 17% of enrollment, and special needs plans account for 19% ($2.4 billion) of bonus spending and 21% of enrollment in 2025 (Appendix Table 1).

Most Medicare Advantage enrollees (75%) are in plans that receive bonus payments.

In 2025, nearly 26 million people, or 75% of Medicare Advantage enrollees, are in plans that are receiving bonuses. That compares to just under 9 million people (55%) in 2015 (Figure 2). The share of enrollees in plans that receive bonus payments in 2025 is slightly higher than the previous year (72%).

Most Medicare Advantage Enrollees (75%) Are In Plans That Receive Bonus Payments in 2025

Average annual bonus payments are highest for enrollees in employer- and union-sponsored plans.

In 2025, Medicare Advantage plans receive an average annual bonus of $372 per enrollee, more than double the $184 average bonus per enrollee in 2015 (Appendix Table 2). Average bonuses in group employer- and union-sponsored plans have consistently been higher than for other plans. The average bonus per enrollee in a group employer- or union-sponsored Medicare Advantage plan is $438 in 2025, compared to $368 for individual plans and $332 for special needs plans (SNPs) (Figure 3).

Annual Medicare Advantage Bonuses per Enrollee are Highest for Employer Plans

Bonuses are higher per enrollee in employer plans because these plans have higher average star ratings, resulting in a larger share of enrollees receiving coverage from plans that qualify for bonuses. Across the entire period of 2015 to 2025, the share of all enrollees in employer- or union-sponsored plans that received a bonus never went below 80%. In contrast, at least 80% of enrollees in individual and special needs plans were in a plan that received a bonus in only one year – 2023 (Figure 4).

Between 2015 and 2025, Over 80% of Enrollees in Medicare Advantage Plans Sponsored by Employers Were in a Plan That Received a Bonus

Relatively low bonus payments for special needs plans, raises questions about the implications for higher need beneficiaries, including people who are dually eligible for Medicare and Medicaid.

Box 1. Medicare Advantage Star Ratings

A key feature of the quality bonus program is the star rating system. Star ratings are used to determine two parts of a Medicare Advantage plan’s payment: (1) whether the plan is eligible for a bonus, and (2) the portion of the difference between the benchmark and the plan’s bid that is paid to the plan. The benchmark is the maximum amount the federal government will pay for a Medicare Advantage enrollee and is a percentage of estimated spending in traditional Medicare in the same county, ranging from 95 percent in high-cost counties to 115 percent is low-cost counties. The bid is the plan’s estimated cost for providing services covered under Medicare Parts A and B.

Since 2015, plans that receive at least four (out of five) stars have their benchmark increased. For most plans in bonus status, the benchmark is increased by five percentage points. Plans in “double bonus” counties – defined as urban counties with low traditional Medicare spending and historically high Medicare Advantage enrollment—have their benchmark increased by 10 percentage points. In addition, the benchmarks for plans without ratings due to low enrollment or being too new are increased by 3.5 percentage points. The benchmarks are capped and cannot be higher than they would have been prior to the ACA. This can result in plans that are eligible under the quality bonus program receiving a smaller increase to their benchmark, or in some cases, no increase at all.

This work was supported in part by Arnold Ventures. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

Jeannie Fuglesten Biniek and Tricia Neuman are with KFF. Anthony Damico is an independent consultant.

Total Bonus Payment Spending by Type of Medicare Advantage Plan, 2015 - 2025

Average Annual Bonus Payment Per Enrollee by Medicare Advantage Plan Type, 2015 - 2025

Methods

This analysis uses data from the Centers for Medicare & Medicaid Services (CMS) Medicare Advantage Enrollment, Crosswalk and Landscape files for the respective year.

This analysis includes HMO, POS, local PPO, regional PPO, and PFFS plans. Enrollment counts in publications by firms operating in the Medicare Advantage market, such as company financial statements, might differ from KFF estimates due to inclusion or exclusion of certain plan types, such as SNPs or employer plans.

To calculate federal spending on quality bonus program payments we first obtained information on star ratings from the Part C and Part D Performance Data, Star Ratings Data Table for the previous plan year. These are the ratings on which a plan’s benchmark is based. We then determined each plan’s benchmark using these data and information from the Medicare Advantage Rate Book, Rate Calculation Data, which provides the benchmark by county for plans with a 5%, 3.5% and 0% bonus. A plan’s bonus payment per enrollee is equal to the difference between its quality adjusted benchmark (either the 5% or 3.5% bonus rate) and the benchmark if the plan was not in bonus (0% bonus rate), multiplied by the relevant percentage based on its star rating and year (for example, 65% for plans with 4 stars and 70% for plans with at least 4.5 stars in 2025). The bonus per enrollee is multiplied by enrollees in March of each year to get total spending. Actual bonus payments will depend on the risk scores of Medicare Advantage enrollees. According to the plan payment data release by CMS, the average risk score of MA enrollees was above 1 for every year from 2015 through 2023 (the most recent year for which data are available), meaning our estimates likely understate actual spending.

 

What are the Implications of the 2025 Budget Reconciliation Bill for Hospitals?

Published: Jun 12, 2025

On May 22, 2025, the U.S. House of Representatives passed a budget reconciliation bill—called the One Big Beautiful Bill Act (OBBBA)—that includes significant reductions in federal Medicaid spending to help offset the cost of tax cuts, along with changes to the Affordable Care Act (ACA), immigration reforms and  other provisions. Together, the combination of policies that increase the number of uninsured, policies that limit the ability of states to raise revenues to increase provider payments, and other changes are expected to have financial consequences for hospitals, affecting some hospitals more (or less) than others. Financial pressure on hospitals could affect patient care to the extent that hospitals respond by cutting certain expenses—such as by offering fewer services, laying off staff, or investing less in quality improvements—or close altogether, especially in rural areas. This is in addition to the direct impact of losing coverage on individuals, who would be less likely to obtain needed care as a result.

According to the Congressional Budget Office (CBO), the bill is projected to cut federal Medicaid spending by $793 billion and reduce spending related to the ACA Marketplaces by $268 billion over a decade, totaling $1.04 trillion in cuts after accounting for the indirect effects on federal revenues. CBO projects that the number of uninsured Americans would increase by 10.9 million as a result of the OBBBA—7.8 million due to changes to Medicaid and 3.1 million due to changes to the ACA exchanges—and by 16.0 million when combined with the expected expiration of the ACA enhanced premium tax credits and the implementation of proposed rules for the ACA exchanges. The substantial increase in uninsured Americans would likely lead to more uncompensated care, putting an additional strain on hospital finances. The bill would also restrict states’ future ability to raise the state share of Medicaid revenues through provider taxes, which often support higher payments for hospitals, and would limit the ability of states to create new state directed payments to increase payments to hospitals. The impact of the OBBBA on hospital finances would vary across hospitals. For example, it is likely that the OBBBA would have a disproportionate impact on hospitals caring for a relatively large number of Medicaid patients and other patients with low incomes.

Because the OBBBA is projected to increase the deficit, CBO projects it would trigger about $500 billion in mandatory reductions in Medicare spending between 2026 and 2034, including a 4% reduction in payments to hospitals, unless Congress takes action to circumvent them (which Congress has historically done).

This issue brief discusses the potential implications of the OBBBA for hospitals and explains how some hospitals (such as rural hospitals as well as urban hospitals that serve a large share of Medicaid patients) may be less well positioned than others (such as hospitals that serve a large share of commercial patients) to absorb revenue losses given their current financial status. Analyses of hospital operating margins are based primarily on RAND Hospital Data and reflect 2023 numbers.

About 4 in 10 hospitals had negative operating margins, and 12% had margins below -10%, but 24% had margins at or above 10%, suggesting some will have greater capacity than others to absorb any losses

About four in ten (39%) hospitals had negative operating margins in 2023 (Figure 1). Operating margins are a measure of financial standing that indicate the extent to which hospitals profit or lose money on patient care and other operating activities. Hospitals with negative operating margins could have a particularly hard time absorbing any losses resulting from the reconciliation bill. This could especially be the case for the more than one in ten (12%) hospitals with operating margins below -10%.

However, the remaining three fifths (61%) of hospitals had positive margins, though some of these hospitals had relatively modest margins (e.g., 22% had positive margins of less than 5%).  Roughly a quarter of all hospitals (24%) had relatively high margins of at least 10%. These hospitals may be most likely to withstand major spending reductions in the OBBBA.

About 4 in 10 Hospitals Had Negative Operating Margins, and 12% Had Margins Below -10%, but 24% Had Margins at or Above 10%

Rural hospitals were more likely to have negative margins than urban hospitals

A larger share of rural versus urban hospitals had negative margins (44% versus 35%) (Figure 2). The share with negative margins was especially high among hospitals in the most remote rural areas (49%), defined here as rural areas not adjacent to a metropolitan area.

Rural Hospitals Were More Likely to Have Negative Margins Than Urban Hospitals

Rural hospitals have a unique set of financial challenges and could have an especially hard time adjusting to any losses resulting from the OBBBA. For example, rural hospitals tend to be smaller facilities with lower volume. Operating at a smaller scale can lead to a higher cost of providing care on average—e.g., to the extent that the fixed costs of operating a hospital, such as maintaining a minimum number of staff, are spread across fewer patients—and may limit the ability of rural hospitals to offer specialized services.

The ability to absorb any losses resulting from the reconciliation bill would likely vary across rural hospitals, as is true of hospitals overall. More than four in ten (44%) rural hospitals had negative margins, and about one in seven (15%) had margins of less than -10%. Negative margins were more common among rural hospitals in states that had not expanded Medicaid (especially those in the most rural areas) and among sole community, Medicare-dependent, and low-volume hospitals, among other differences. A major provision in the reconciliation bill – a work and reporting requirement in Medicaid – would only apply to the Medicaid expansion. However, other provisions, such as cutbacks on the ACA Marketplaces, would likely disproportionately affect states that have not expanded Medicaid.

At the same time, more than half (56%) of all rural hospitals had positive margins. Nearly a quarter (23%) of rural hospitals had relatively modest margins (less than 5%) while about one fifth (19%) had margins of at least 10%. Positive margins were more common among rural hospitals with more beds, with higher occupancy, that were affiliated with a health system, and that were not government-owned.

Hospitals that serve a large share of Medicaid patients in urban and rural areas were more likely than others to have negative margins, and they could be disproportionately affected by the House-passed bill

Hospitals where Medicaid covered a high share of stays—a group that could also have an especially hard time absorbing any losses resulting from the OBBBA—were more likely than others to have negative margins. For example, 45% of hospitals with high shares of Medicaid patients had negative margins versus 35% among hospitals with low shares. The share with negative margins was relatively high among hospitals with high Medicaid shares in both urban and rural areas (44% and 48%, respectively). Relatedly, operating margins were lower than average among hospitals with high Medicaid shares (e.g., they were 2.3% among hospitals with high shares versus 7.0% among those with low shares).

Hospitals that serve a large share of Medicaid patients in urban and rural areas were more likely than others to have negative margins

Hospitals caring for a disproportionate share of Medicaid patients and other patients with low incomes have unique financial challenges. For example, Medicaid and other public payers tend to reimburse at lower rates than private insurance, and it may be more expensive to treat patients with low incomes in ways that are not captured in reimbursement rates.

Further, it is likely that hospitals caring for a relatively large share of Medicaid patients and other patients with low incomes would take the biggest hit under the OBBBA, since the bill achieves much of its savings through Medicaid cuts along with changes to the ACA exchanges that would increase the number of uninsured individuals.

Hospitals with for-profit ownership, high commercial shares, and high commercial-to-Medicare price ratios were more likely to have positive margins than other hospitals, among other differences

While about six tenths (61%) of hospitals had negative operating margins, the share was higher among for-profit hospitals (71%), hospitals where commercial payers cover a relatively large share of stays (73%), hospitals with high commercial-to-Medicare price ratios (75%), hospitals that were part of a broader health system (66%), and hospitals with high market shares (73%) (Figure 4). These hospitals may have an easier time than others in absorbing any losses related to the OBBBA.

Hospitals With For-Profit Ownership, High Commercial Shares, and High Commercial-To-Medicare Price Ratios Were More Likely to Have Positive Margins Than Other Hospitals, Among Other Differences

In most states (29), at least four in ten hospitals had negative margins in 2023

The share of hospitals with negative margins varied across states, but in more than half of all states (29 states), at least four in ten hospitals had negative margins (Figure 5). At least half of hospitals had negative margins in 14 states. This includes a mixture of red states (such as Kansas and Oklahoma) and blue states (such as Massachusetts and New York). At least 60% of hospitals had negative margins in four states: Kansas, Mississippi, Vermont, and Washington.

Differences in hospital finances across states may be attributable to variations in demographics, hospital ownership and type, commercial reimbursement rates, and state and local health and tax policy. For instance, the share of hospitals in the red may have been relatively low in Texas in part because the state has a relatively large number of for-profit hospitals (which are less likely to have negative margins) among other factors. The relatively low share of hospitals with negative margins in Florida may be at least partly due to relatively high commercial prices as a percent of Medicare rates.

Some states with a relatively large share of hospitals with negative margins may be disproportionately affected by the OBBBA and other policy changes. For instance, three fifths (60%) of hospitals in Mississippi had negative margins. If the OBBBA were enacted, the ACA enhanced tax credits expired, and the proposed rules for the ACA Marketplaces were implemented, then the share of people who are uninsured is expected to increase, putting a particular strain on hospitals in states that experience large increases in the number of uninsured.  The uninsured rate in Mississippi would increase by 6 percentage points—one of the highest increases in the country—based on KFF estimates. As another example, in Washington, where more than three fifths (63%) of hospitals had negative margins, the reduction in federal Medicaid as a share of baseline spending resulting from the OBBBA would be the largest of all states (17% over ten years) according to KFF estimates.

In Most States (29), At Least 40% of Hospitals Had Negative Margins in 2023

The bill could trigger about $500 billion in mandatory Medicare cuts, including cuts in payments to hospitals and other providers, unless Congress intervenes

Because the bill is expected to increase the federal deficit, CBO projects it would trigger about $500 billion in mandatory cuts to Medicare spending between 2026 and 2034—including a 4% cut in payments to hospitals and other providers—unless Congress intervened. The automatic reductions in Medicare payments to hospitals and other health care providers and plans, known as “sequestration,” would be required under the Statutory Pay-As-You-Go (PAYGO) Act. If these cuts did go into effect, they would come at a time when the Medicare Payment Advisory Commission has recommended that Congress increase Medicare payment rates in 2026 relative to current law and could raise concerns about the adequacy of Medicare reimbursement. Historically, Congress has voted to waive automatic Medicare payment reductions due to sequestration under statutory PAYGO rules.

This work was supported in part by Arnold Ventures. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

Methods

Data: The analysis relied primarily on RAND Hospital Data, a cleaned and processed version of annual cost reports that Medicare-certified hospitals are required to submit to the federal government. The analysis relied on the American Hospital Association (AHA) Annual Survey Database to obtain data on payer mix, system membership, and hospital referral region (HRR) market shares. Data on commercial-to-Medicare price ratios were obtained from Round 5.1 of the RAND Price Transparency Study.

Sample construction: This analysis focused on non-federal general short-term hospitals, excluding those in U.S territories. It also included other sample restrictions, such as ignoring certain outlier values (see the Methods section of a prior KFF analysis of operating margins for additional details). The final analysis included 4,206 hospitals, though some analyses of hospital characteristics included fewer hospitals depending on the data available (see counts in figures). For example, data on commercial-to-Medicare price ratios were only available for 2,779 hospitals.

Defining operating margins: Operating margins were approximated as (revenues minus expenses) divided by revenues after removing reported investment income and charitable contributions from revenues. The Methods section of a prior KFF analysis of operating margins includes additional details, such as the limitations of available financial data, as well as more information about the definition of hospital market shares and commercial-to-Medicare price ratios.

Definition of urban and rural: Urban hospitals are defined as those operating in a metropolitan area, while rural hospitals are defined as those operating in nonmetropolitan areas. A metropolitan area is a county or group of counties that contains at least one urban area with a population of 50,000 or more people. Nonmetropolitan areas include micropolitan areas—which are counties or groups of counties that contain at least one urban area with a population of at least 10,000 but less than 50,000—and noncore areas (areas that are neither metropolitan nor micropolitan). The analysis further breaks down rural areas into those that are adjacent to metropolitan areas (defined as the “most rural” areas in this brief) and those that are not adjacent to metropolitan counties. The Methods section of a prior KFF analysis provides additional information about these definitions, limitations, and other approaches.

News Release

Walgreens and KFF’s Greater Than Campaign to Offer Free HIV/STD Testing in Stores on June 27

More than 415 Local Health Departments and Community Organizations Mobilize Across the Country for Largest-ever National HIV Testing Day Event

Published: Jun 12, 2025

DEERFIELD, Ill. & SAN FRANCISCO, June 12, 2025 –  Walgreens and Greater Than HIV/STDs, a public information campaign from KFF, are joining with health departments and community organizations to provide free rapid HIV, syphilis and hepatitis C testing at more than 575 Walgreens stores on June 27 for the nation’s largest National HIV Testing Day (NHTD) event. 

With more than 415 local testing partners in nearly all states, Washington, D.C. and Puerto Rico, this year’s activation marks a record level of participation in the partnership’s 15-year history. Since 2011, KFF’s Greater Than HIV and Walgreens National HIV Community Partnership has provided more than 93,000 free HIV/STD tests through the in-store NHTD program.

“This year’s record-breaking National HIV Testing Day activation shows the power of public-private partnership,” KFF Senior Vice President Tina Hoff said. “Together with Walgreens and hundreds of community organizations from across the nation, we’re reaching more people than ever with free, fast HIV and STD testing—and expanding awareness about powerful new prevention tools like PrEP and doxy-PEP, along with advances in treatment.”

“The Greater Than campaign plays a vital role in reaching those in need with accessible information about the latest in HIV and STD testing, prevention and treatment,” said Rick Gates, chief pharmacy officer, Walgreens. “All Walgreens pharmacists receive HIV prevention and destigmatization training, and about 3,000 of our specialty and community pharmacists have completed advanced training in HIV treatment and prevention. Partnering once again with KFF strengthens our ability to help patients access the care and support they need most.”

HIV and STD testing will be available on-site in a private area of the store or mobile unit administered by trained counselors with results available in 20 minutes or less. Information about the latest in prevention, including PrEP and doxy PEP, and advances in treatment will also be available.

With ongoing high rates of syphilis, including congenital syphilis (transmission during pregnancy or delivery), along with other STDs in the U.S., the activation expanded last year to include additional testing offerings.More than 22,000 rapid HIV, syphilis and hepatitis C tests have been donated to support this year‘s activation by leading manufacturers, including Diagnostics Direct, NOWDiagnostics, OraSure Technologies, Chembio Diagnostics, and bioLytical Laboratories.Click here for a list of participating Walgreens stores and testing hours. Appointments are not required.To get out the word about the importance of HIV/STD testing throughout June, Mesmerize, a national advertising network, is donating time on 1,200 screens in 750 clinics and community organizations for Greater Than videos.

About WalgreensFounded in 1901, Walgreens (www.walgreens.com) has a storied heritage of caring for communities for generations and proudly serves nearly 9 million customers and patients each day across its approximately 8,500 stores throughout the U.S. and Puerto Rico, and leading omni-channel platforms. Walgreens has approximately 220,000 team members, including nearly 90,000 healthcare service providers, and is committed to being the first choice for retail pharmacy and health services, building trusted relationships that create healthier futures for customers, patients, team members and communities.

Walgreens is the flagship U.S. brand of Walgreens Boots Alliance, Inc. (Nasdaq: WBA), an integrated healthcare, pharmacy and retail leader. Its retail locations are a critical point of access and convenience in thousands of communities, with Walgreens pharmacists playing a greater role as part of the healthcare system and patients’ care teams than ever before. Walgreens Specialty Pharmacy provides critical care and pharmacy services to millions of patients with rare disease states and complex, chronic conditions.

About KFF

KFF is the independent source for health policy research, polling, and journalism. Its mission is to serve as a nonpartisan source of information for policymakers, the media, the health policy community, and the public. KFF’s Greater Than HIV initiative is a leading public information response focused on HIV in the U.S. Through localized Greater Than HIV campaigns, KFF works with health departments and community partners to reach those most affected and in need with the latest on testing, prevention and treatment. This public-private partnership model helps extend the reach of limited resources in high need areas.

VOLUME 24

Flawed Report Aims to Undercut Established Research on Abortion Pill Safety, Plus How a Federal Initiative to Study Autism May Overemphasize Environmental Toxins


Summary

This volume highlights how a report criticized for flawed methodology is influencing renewed efforts to restrict access to the abortion pill, mifepristone. It also explores how a federal plan to study the causes of autism could be contributing to stigma by over-emphasizing environmental toxins and examines the resurgence of false claims about fetal tissue in vaccines following comments from Robert F. Kennedy Jr.


Recent Developments

Flawed EPPC Report Aims to Cast Doubt on Long-Standing Research Documenting Abortion Pill Safety

Peter Dazeley / Getty Images

An April report from the Ethics and Public Policy Center (EPPC), which has been met with criticism over its methodological rigor and lack of data transparency, has led to renewed calls for the FDA to restrict access to mifepristone, the abortion pill used in nearly two-thirds of U.S. abortions. The group, which describes itself as working to “push back against the extreme progressive agenda,” analyzed an undisclosed source of insurance claims and reported that almost 11% of patients who took mifepristone experienced a serious adverse event, contradicting the well-established safety profile of the drug. Mifepristone, used alongside misoprostol to terminate pregnancies, has been approved as a safe and effective drug by the Food and Drug Administration (FDA) since 2000. The FDA prescribing information notes that 10 clinical trials with collectively more than 30,000 patients found that serious adverse effects occur in fewer than 0.5% of patients. Other studies have found similar rates, and an analysis of more than 100 studies found that, in the vast majority, more than 99% of patients had no serious complications. Although the new report is framed as research-based analysis, the president of the American College of Obstetricians and Gynecologists and other reproductive health specialists say it lacks transparency and overstates risk by relying on broad and undisclosed diagnosis codes, including events not clearly tied to the drug, like ectopic pregnancies.

Despite being widely criticized for methodological flaws, lack of transparency, and distortion, findings from the report have been used to amplify false claims that mifepristone is unsafe. Mentions of abortion pills in news and on the platform X spiked on April 28, the day the report was released, marking one of the largest spikes for abortion pill mentions in 2025 to date, with a smaller spike following on May 6. Safety of mifepristone was a dominant theme in these posts – between April 28 and June 1, mentions of safety were found in approximately a quarter (26%) of X posts identified in our search on the topic, compared to just under 4% in the period before. Many of the posts cited the report’s false claims that “serious complications from abortion pill are 22x higher than FDA reports.” Commenters on X posts sharing the study repeated the false claim that medication abortion is unsafe along with other common myths about mifepristone, including the incorrect claim that it causes infertility.

The report has been cited in calls to review federal regulations surrounding mifepristone, including from anti-abortion U.S. representatives on social media. Although FDA Commissioner Marty Makary had previously said in late April that the agency had no plans to restrict the availability of mifepristone unless new evidence came to light, the FDA now plans to begin a complete safety review.

Polling Insights: A March 2024 KFF Health Tracking Poll found that most of the public oppose banning mifepristone but partisans are divided on the question. Overall, two-thirds of U.S. adults say they oppose banning the use of mifepristone, or medication abortion, nationwide with about a third (32%) saying they would support such a ban. The share who support banning mifepristone rises to half among Republicans (50%) compared to far fewer Democrats (23%). Among both men and women, majorities say they would oppose a law banning mifepristone.

Two-Thirds of Adults - Including Similar Shares of Men and Women - Oppose Banning Medication Abortion, But Partisans are Divided

In addition, KFF’s May 2023 Health Tracking Poll found that most U.S. adults (55%) say medication abortion pills are either “very safe” (30%) or “somewhat safe” (25%) when taken as directed by a doctor, but about one-third (35%) of the public say they are not sure. Very few believe the pills are unsafe. Similar to views on banning mifepristone, partisans are divided on whether medication abortion is safe, with majorities of Democrats (72%) and independents (58%) saying medication abortion pills are safe compared to less than half of Republicans (40%). Views also differ by gender, with somewhat larger shares of women than men saying medication abortion is safe (59% v. 50%).

About One-Third of the Public is Unsure About the Safety of Medication Abortion, Including Nearly Half of Republicans

Claims that Autism is Caused by Environmental Factors Center Around Vaccines

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In April, the National Institutes of Health (NIH) and Centers for Medicare & Medicaid Services (CMS) announced a plan to create a “real-world data platform” using information from Medicare and Medicaid enrollees to allow researchers to study the causes of autism. The project links autism to “environmental toxins,” but previous research has shown that there is no single cause for autism, and most risk factors exist before birth.

Although scientific consensus points to a strong genetic basis for autism, the federal initiative has sparked an uptick in social media posts discussing claims that autism is caused by preventable environmental factors. Among the most common factors linked to autism by some social media users were a person’s gut microbiome, chemical exposures in the environment, and, most frequently, vaccines. Vaccines are rarely mentioned in official announcements of the initiative, but they commonly appeared in reactions to the project. Since early May, approximately 34,000 news articles and social media posts identified by KFF tracking across platforms mentioned the federal autism study. While few posts referenced environmental toxins, approximately 10,000 of the 34,000 posts discussed vaccines and autism. Another dominant theme was privacy concerns, as most social media posts suggested that an “autism registry” could be used to discriminate against adults and children with the diagnosis. Autism advocates continue to warn that framing autism as preventable could place undue blame for autism diagnoses on parents and contribute to stigma. KFF’s April 2025 Tracking Poll on Health Information and Trust found that most adults (63%) and parents (61%) say they have heard the myth that measles, mumps, and rubella (MMR) vaccines have been proven to cause autism. While very few adults say this false claim is “definitely true” (3%), most express uncertainty and say it is either “probably true” (21%) or “probably false” (41%).

False Claim About ‘Fetal Debris’ in Vaccines Resurfaces

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The false claim that certain vaccines, like the measles, mumps, and rubella (MMR) vaccine, contain fetal debris gained traction online throughout May as social media users reacted to statements made by HHS Secretary Robert F. Kennedy Jr. The claim, which has circulated in various forms before, has been refuted by virologists and vaccine development specialists. Some vaccines, including the rubella component of the MMR vaccine, are developed using fetal cell lines originally derived from fetal tissue decades ago, but no fetal tissue or “debris” is present in the final vaccine.

Online mentions of fetal debris in vaccines were rare before April 30, but posts about this claim spiked on May 1 as users shared clips of Secretary Kennedy’s comments in an interview. Mentions spiked again on May 10 and May 14, following similar statements shared during another news interview and later reiterated during his Senate testimony. Social media users reacted to this statement by both debunking the claim and expressing concern over vaccine ingredients. The narrative especially resonated with religious attitudes towards abortion, exemplified by one influencer with more than 500,000 followers on X writing, “I hope everyone understands the correlations as to why Democrats and Planned Parenthood are so hell bent on ‘Abortion access’. It’s all connected… it’s all satanic.”


AI & Emerging Technology

Study Highlights Use of Retrieval Augmented Generation to Improve AI Fact-Checking

Traditional generative AI models like OpenAI’s ChatGPT or Google’s Gemini produce answers based on patterns learned during training, limiting their usability for fact-checking and increasing the risk of inaccurate outputs or “hallucinations.” By contrast, a technique called retrieval-augmented generation (RAG) introduces an external source of information. Before generating a response, the AI consults a curated database of documents to support its answer.

A study published in Journal of Medical Internet Research tested the use of RAG systems to fact-check claims relating to COVID-19. Researchers combined a large language model with a RAG system linked to a repository of about 130,000 peer-reviewed scientific papers from PubMed and Scopus. The results showed that fact-checks produced using this method were more accurate than those generated by the standard chatbot, and that these responses provided important contextual information from scientific papers when available. The authors argue that such tools could help counter false claims more efficiently, especially in fast-moving public health crises. But they also note limitations: the system depends on published research, which can lag behind falsehoods, and the quality of the answers depend on the quality of the papers included in the dataset.

About The Health Information and Trust Initiative: the Health Information and Trust Initiative is a KFF program aimed at tracking health misinformation in the U.S., analyzing its impact on the American people, and mobilizing media to address the problem. Our goal is to be of service to everyone working on health misinformation, strengthen efforts to counter misinformation, and build trust. 


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Support for the Health Information and Trust initiative is provided by the Robert Wood Johnson Foundation (RWJF). The views expressed do not necessarily reflect the views of RWJF and KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities. The Public Good Projects (PGP) provides media monitoring data KFF uses in producing the Monitor.

Key Facts About Medicare Beneficiaries in Rural Areas

Published: Jun 11, 2025

Over the years, policymakers have expressed ongoing concern about barriers to medical care in rural areas, due to workforce shortages, long travel times to medical facilities, and rural hospital closures. For the more than 10 million people with Medicare who live in rural areas, both older adults and younger beneficiaries with permanent disabilities, these issues may pose particular challenges to the extent they are more likely than other people to have medical conditions that require frequent visits to health care providers. Compounding existing challenges to the delivery of health care in rural areas, current proposals by the GOP-led Congress to cut billions in Medicaid spending and discontinue enhanced subsidies for Marketplace coverage could impact the financial stability of rural hospitals and other health care providers, which could heighten concerns about access to care for rural residents, including millions of people with Medicare.

Over the years, federal and state lawmakers have taken steps to improve rural health care for Medicare beneficiaries, including support for Rural Health Clinics (RHCs), preservation of rural hospitals at risk of closure under the Rural Emergency Hospital (REH) and Critical Access Hospital (CAH) programs, and increased training opportunities for medical residents at sites that serve rural communities. Additionally, the House-passed 2025 reconciliation bill proposes to expand the definition of a rural emergency hospital under the Medicare program. However, the Trump administration is proposing $1 billion in cuts to HRSA’s Health Workforce Programs, which support training for providers in rural and underserved areas, as part of the President’s FY 2026 budget. While budget decisions ultimately rest with Congress, these proposed changes could also affect the health care of people living in rural communities.

To help inform current policy discussions, this brief analyzes various data sources to highlight key facts about Medicare beneficiaries living in rural areas, including their demographic and health characteristics, access to care, and satisfaction with care. The analysis compares Medicare beneficiaries living in rural areas, including those that are not adjacent to any urban areas (referred to as the “most rural areas”) and those that are adjacent to an urban area (“rural adjacent areas”), and urban areas (see Methods for further details). More than 10 million Medicare beneficiaries lived in rural areas in 2024, 3.4 million of whom were in the most rural areas.

Key Takeaways

  • A larger share of Medicare beneficiaries living in the most rural areas than beneficiaries living in urban areas had annual incomes of less than $20,000 per person in 2022 (34% vs. 27%).
  • Rural Medicare beneficiaries are more likely to also be enrolled in Medicaid than those in urban areas (23% and 18% respectively).
  • About one-third (32%) of Medicare beneficiaries living in the most rural areas had 5 or more chronic health conditions, as compared to 25% of beneficiaries living in urban areas.
  • The majority (58%) of Medicare beneficiaries living in the most rural areas are covered by traditional Medicare instead of Medicare Advantage, while in rural adjacent and urban counties, traditional Medicare is less common (48% and 44%, respectively).
  • While more than 9 in 10 Medicare beneficiaries living in the most rural areas were satisfied with the quality of their medical care and fewer than 1 in 10 reported trouble getting needed care, larger shares reported food insecurity (21%) and health care cost-related problems (13%) than beneficiaries in urban areas (16% and 10%, respectively).
  • A smaller share of Medicare beneficiaries living in the most rural areas reported that their usual provider offers telehealth services than beneficiaries in urban areas (57% vs.67%).

More than 10 million Medicare beneficiaries live in rural areas, including 3.4 million who live in the most rural areas

Among the 61 million Medicare beneficiaries with both Parts A and B in 2024, 3.4 million, or 6%, lived in the most rural areas of the country (Figure 1). Another 7.3 million lived in rural adjacent areas and 50.4 million lived in urban areas. The share of Medicare beneficiaries living in the most rural areas varied across states, ranging from 61% in Wyoming to less than 5% in 17 states, including Florida, New York, and California (Figure 1, Appendix Table 1).

About 3.4 Million Medicare Beneficiaries Lived in the Most Rural Areas in 2024, With Shares Ranging From 61% in Wyoming to Less Than 5% in 17 States, Including Florida, New York, and California

Medicare beneficiaries in the most rural areas are more likely to have lower incomes than beneficiaries in urban areas

More than one-third of Medicare beneficiaries living in the most rural areas had annual incomes of less than $20,000 per person in 2022 (34% vs. 27% in urban areas) (Figure 2). Likewise, nearly three-quarters of beneficiaries living in the most rural areas had annual incomes of less than $40,000 per person (72% vs. 56% in urban areas). Having a relatively low income can pose a barrier to access to care for Medicare beneficiaries who may need to pay for costly or unanticipated medical care, as well as services not covered by Medicare, including dental services and long-term services and supports.

Medicare Beneficiaries in Rural Areas are More Likely to Have Lower Incomes than Beneficiaries in Urban Areas

Medicare beneficiaries living in rural areas are more likely to rely on Medicaid than beneficiaries in urban areas

In 2022, a larger share (23%) of Medicare beneficiaries living in rural areas (including the most rural counties and rural adjacent counties) also had Medicaid coverage (i.e., “dual-eligible individuals”) than beneficiaries in urban areas (18%) (Figure 3). For these individuals, Medicare is their primary source of health insurance coverage, and Medicaid wraps around their Medicare coverage by paying Medicare premiums, and in most cases, cost sharing. Many dual-eligible individuals also have Medicaid coverage of benefits not covered by Medicare, including long-term services and supports. Dual-eligible individuals generally have low incomes, modest assets, and are more likely to be in poorer health and have greater health needs than Medicare beneficiaries without Medicaid.

A Larger Share of Medicare Beneficiaries in Rural Areas Are Covered by Both Medicare and Medicaid Than Beneficiaries in Urban Areas

Medicare beneficiaries living in the most rural areas have higher rates of chronic conditions and are more likely to be under 65 with permanent disabilities than beneficiaries in urban areas

Roughly one-third of Medicare beneficiaries living in the most rural areas had 5 or more chronic health conditions (32% vs. 25% in urban areas) (Figure 4). The share of beneficiaries in the most rural areas with specific chronic conditions included 66% with hypertension (vs. 61% in urban areas), 36% with heart disease (vs. 30% in urban areas), and 22% with a pulmonary condition (vs. 18% in urban areas) (Appendix Table 2).

Medicare Beneficiaries in Rural Areas Have Higher Rates of Chronic Conditions and are More Likely to be Under 65 with Permanent Disabilities than Beneficiaries in Urban Areas

More than one in five Medicare beneficiaries living in the most rural areas had a cognitive impairment (21% vs. 16% in urban areas), which may present additional challenges when navigating the health care system, particularly for those who must travel long distances to reach their health care appointments and may need to rely on family members or caregivers for transportation.

A larger share of Medicare beneficiaries in living in the most rural areas and in rural adjacent areas were under age 65 with permanent disabilities, relative to those living in urban areas (13%, 16% and 11%, respectively). People under age 65 typically qualify for Medicare once they have received Social Security Disability Insurance benefits for at least 24 months. Medicare beneficiaries under age 65 are more likely than older beneficiaries to experience problems with their health insurance, including cost-related problems and difficulty accessing needed health services.

A majority of Medicare beneficiaries in the most rural areas get their coverage from traditional Medicare than Medicare Advantage

In 2024, nearly 6 in 10 (58%) Medicare beneficiaries living in the most rural areas were in traditional Medicare and 42% were enrolled in a Medicare Advantage plan (Figure 5). This pattern is in contrast to beneficiaries living in other areas, where more than half of eligible beneficiaries (52% in rural adjacent areas and 56% in urban areas) were in Medicare Advantage, and the remaining 48% and 44%, respectively, were in traditional Medicare. This pattern is driven in part by the fact that fewer Medicare Advantage plans are available to people living in the most rural areas. More limited participation of local providers in Medicare Advantage plan provider networks in rural areas is also likely to factor into lower Medicare Advantage enrollment in the most rural areas.

In the Most Rural Areas, Nearly Six in Ten (58%) Medicare Beneficiaries Are Covered by Traditional Medicare

Among traditional Medicare beneficiaries in rural areas, most had some form of additional coverage—including 4 in 10 with a Medigap policy—but a larger share had no form of supplemental coverage compared to beneficiaries in urban areas. In 2022, similar shares of traditional Medicare beneficiaries in rural and urban areas (40% vs 43%) had a Medicare supplement insurance policy, also known as Medigap, to supplement their traditional Medicare coverage (Figure 6). Medigap policies, sold by private insurance companies, limit the financial exposure of Medicare beneficiaries by partially or fully covering Medicare’s cost-sharing requirements, but premiums for these policies can be costly and vary by state and policy type. Additionally, similar shares had some employer-sponsored insurance in addition to their traditional Medicare coverage.

However, a larger share of traditional Medicare beneficiaries in rural areas, including both the most rural counties and rural adjacent counties (14%), had no supplemental coverage than beneficiaries in urban areas (10%). These beneficiaries are fully exposed to Medicare’s cost-sharing requirements, and for those under age 65 in rural areas, getting a Medigap policy may be particularly challenging due to the lack of guaranteed issue rights for this group.

Most Traditional Medicare Beneficiaries in Rural Areas Have Some Form of Additional Coverage, But a Larger Share Have No Supplemental Coverage Than Beneficiaries in Urban Areas

A small share of rural Medicare beneficiaries report difficulty accessing medical care, but they are more likely than beneficiaries in urban areas to report economic struggles, including health care cost-related problems and food insecurity

Most Medicare beneficiaries, including those in rural areas, report being satisfied with the quality of their medical care and few report difficulty accessing care. More than 9 in 10 Medicare beneficiaries living in the most rural areas, rural adjacent areas, and urban areas reported being satisfied or very satisfied with the quality of their medical care. Likewise, fewer than 1 in 10 beneficiaries in the most rural areas, rural adjacent areas, or urban areas reported difficulty accessing needed health care (Figure 7).

Similar Shares of Medicare Beneficiaries Across Rural and Urban Areas Report Satisfaction with the Quality of Their Medical Care and Little Trouble Accessing Needed Services

Medicare beneficiaries living in rural areas were more likely to report economic struggles, however, including food insecurity and health care cost-related problems (Figure 8). In 2022, more than one in five beneficiaries living in the most rural areas (21%) and rural adjacent areas (22%) reported some type of food insecurity in the past year compared to 16% of beneficiaries in urban areas. This includes running out of food and not having money to buy more, cutting the size of meals or skipping meals because there wasn’t enough money for food, eating less because there wasn’t enough money for food, or feeling hungry and not eating because there wasn’t enough money for food.

Additionally, larger shares of Medicare beneficiaries in the most rural areas (13%) and rural areas adjacent to urban areas (15%) reported having at least one of the following health care cost-related problems than beneficiaries in urban areas (10%): trouble getting needed health care due to cost, delays in health care due to cost, or problems paying medical bills.

Larger Shares of Medicare Beneficiaries Living in Rural Areas Report Food Insecurities and Health Care Cost-Related Problems Than Beneficiaries in Urban Areas

Medicare beneficiaries in rural areas are less likely to be offered telehealth services by their usual providers than beneficiaries in urban areas

Among Medicare beneficiaries with a usual source of care, a lower share of beneficiaries in the most rural areas (57%) and areas adjacent to urban areas (51%) reported that their usual provider offers telehealth services compared with beneficiaries in urban areas (69%) (Figure 9). Lower rates of telehealth offerings by rural providers may reflect differences in provider capacity and health system infrastructure challenges in rural areas relative to urban areas.

A Lower Share of Medicare Beneficiaries in Rural Areas Report That Their Usual Provider Offers Telehealth Services Than Beneficiaries in Urban Areas

Additionally, among traditional Medicare beneficiaries, 10% of those in rural areas used Medicare-eligible telehealth services compared to 14% of those in urban areas as of the third quarter of 2024, based on fee-for-service claims data. While telehealth use has the potential to improve access to care in areas with a shortage of health care providers or where people must travel farther to access medical care, lower use of telehealth services in rural areas could be partly due to more limited broadband access. According to the Federal Communications Commission, in 2022, 28% of Americans in rural areas lacked broadband internet coverage compared to just 2% of people in urban areas.

During the COVID-19 public health emergency, Congress enacted several Medicare telehealth flexibilities that were initially set to expire at the end of the public health emergency. However, these flexibilities have been extended multiple times, with the latest extension set to expire on September 30, 2025, unless Congress takes further action.

Methods

This analysis is based on several data sources, including the Centers for Medicare & Medicaid Services (CMS) Medicare Monthly Enrollment data, September 2024, and the Medicare Current Beneficiary Survey (MCBS), 2022 Survey file data (the most recent year available). The MCBS is a nationally representative survey of Medicare beneficiaries (66.1 million people in 2022, weighted), including beneficiaries living in the community and in facilities. The MCBS analysis accounted for the complex sampling design of the survey, including topical survey weights where applicable and relevant replicate weights.

For Medicare Advantage enrollment by rural status, the analysis used CMS’ 2024 Medicare Advantage Landscape files and the September 2024 Medicare Monthly Enrollment data (See KFF, “Most People in the Most Rural Counties Get Medicare Coverage from Traditional Medicare”, April 2025).

This analysis combines these datasets with the 2024 Urban Influence Codes published by the U.S. Department of Agriculture Economic Research Service for estimates of beneficiaries in counties that are part of rural or urban areas. To examine the role of urban influence, which affects access to infrastructure, including for the delivery of health care services, rural counties are further classified as adjacent to or not adjacent to an urban (metropolitan) area.

The 2024 Urban Influence Codes classifies 3,235 counties and county-equivalents into 9 categories, which we categorize as follows:

Urban

1. Large metro (in a metro area with at least 1 million residents)

4. Small metro (in a metro area with fewer than 1 million residents)

Rural adjacent

2. Micropolitan, adjacent to a large metro area

3. Noncore, adjacent to a large metro area

5. Micropolitan, adjacent to a small metro area

6. Noncore, adjacent to a small metro area

Rural non-adjacent

7. Micropolitan, not adjacent to a metro area

8. Noncore, not adjacent to a metro area and contains a town of at least 5,000 residents

9. Noncore, not adjacent to a metro area and does not contain a town of at least 5,000 residents

In this analysis, large and small metropolitan areas (Urban Influence Codes 1 and 4) are referred to as “urban” areas; rural counties not adjacent to an urban (metropolitan) area (Urban Influence Codes 7, 8, and 9) are referred to as the “most rural” areas, and rural counties adjacent to an urban (metropolitan) area (Urban Influence Codes 2, 3, 5, and 6) are referred to as “adjacent to urban areas”.

The analysis on sources of coverage in traditional Medicare used the MCBS and was based on the source of coverage held for the most months of Medicare enrollment in 2022. The analysis includes 59.6 million people with Medicare in 2022 (weighted), excluding beneficiaries who were enrolled in Part A only or Part B only for most of their Medicare enrollment in 2022 (weighted n=5.0 million) and beneficiaries who had Medicare as a secondary payer (weighted n=1.6 million).

The analysis on use of Medicare-eligible telehealth services is based on CMS’ Medicare Telehealth Trends dataset, which is restricted to fee-for-service claims data and does not capture telehealth services used by Medicare Advantage enrollees. For this dataset, CMS defines rural and urban status using the beneficiary’s mailing ZIP code and the Rural Urban Commuting Area Crosswalk (RUCA).

Appendix

The Share of Medicare Beneficiaries Living in the Most Rural Areas Ranges From 61% in Wyoming to Less Than 5% in 17 States Including California and New York
Characteristics of Medicare Beneficiaries by Rural Status: Demographics, Health, Access to Care, and Satisfaction with Care

Growing Uncertainty About the Future of the 988 Suicide and Crisis Lifeline’s LGBTQI+ Service

Published: Jun 11, 2025

Update: On June 17th, 2025, SAMHSA announced that it would end the 988 LGBTQI+ specialty service stating “The 988 Suicide & Crisis Lifeline will no longer silo LGB+ youth services, also known as the “Press 3 option,” to focus on serving all help seekers, including those previously served through the Press 3 option.”  

Since taking office, the Trump administration has pursued various policy actions that could limit health services and access for LGBTQ+ people, including those related to mental health. LGBTQ+ people experience elevated stigma, discrimination, and mental health challenges, along with greater unmet mental health needs. Dedicated services tailored specifically to LGBTQ+ individuals aim to address these distinct needs and experiences.

988, the federal suicide and crisis line, supported by the Substance Abuse and Mental Health Services Administration (SAMHSA), includes a specific service to meet the needs of LGBTQI+1  youth and young adults under the age of 25.2  This specialty service, initially launched in pilot form in October 2022 and expanded nationwide in July 2023, has experienced increasing demand. The Trump administration’s FY 2026 budget request includes level funding for 988 overall, including its Spanish language service, but eliminates dedicated funding for the LGBTQI+ service. Additionally, promotional materials for 988’s LGBTQI+ service were removed from SAMHSA’s website in early February 2025.3  With this exclusion from the proposed budget, removal of materials, along with other actions, the future of the 988 LGBTQI+ service is uncertain. (For additional history of the LGBTQI+ service and, 988 more broadly, see our earlier analyses.)

This brief reviews the latest data on the 988 LGBTQI+ service.

Since its launch (including the pilot phase) the 988 LGBTQI+ service has received nearly 1.3 million contacts from LGBTQI+ youth and young adults seeking support, and usage has risen substantially. Like the broader 988 service, the 988 LGBTQI+ service is available via call, text, or chat. Between July 2023, when the LGBTQI+ service fully launched following the pilot program, and February 2025 (the latest available data):

  • Service utilization has steadily increased with contacts to the LGBTQI+ service rising by 46% over this period.
  • The service has averaged about 50,000 contacts per month, with most occurring by call (60%), followed by text (25%), and chat (15%). More recently, from October 2024 to February 2025, average monthly contacts have remained steady at about 60,000.
  • Contacts to the 988 LGBTQI+ service represented 10% of all 988 contacts, including 13% of all texts, 12% of all chats, and 9% of all calls.
  • People contacting the 988 LGBTQI+ service experienced slightly higher disconnection rates than 988 users overall (13% v. 10%). According to SAMHSA, disconnections may be due to a technical reason (e.g. internet or mobile connection strength or service interruptions, etc.) or because the person ends the contact before a counselor responds.
988 LGBTQI+ Service Surpasses 1 Million Contacts, with Recent Monthly Volume Steady Around 60,000

The 988 LGBTQI+ service offers specialized crisis care tailored to LGBTQI+ youth and young adults, who experience higher rates of serious suicidal thoughts and suicide attempts compared to their peers. This dedicated service addresses the specific challenges commonly facing LGBTQI+ young people and their associated higher unmet need for mental health services. In 2023, 41% of LGBTQ+ high school students reported having seriously considered suicide during the past year, and 20% reported a suicide attempt, compared to 13% and 6%, respectively, among non-LGBTQ+ students (Figure 2).

40% of LGBTQ+ High School Students Have Seriously Considered Suicide, 20% Have Attempted, 2023

The President’s budget request is only a proposal, with Congress ultimately determining appropriations, and Congress has historically provided specific funding for the LGBTQI+ service. Most recently, Congress appropriated $520 million for 988, including 6% ($33 million) for this service. However, recent administrative actions, and the President’s budget request, have created uncertainty about the future of the program.

  1. SAMHSA uses the acronym “LGBTQI+” in describing and discussing this service. In other contexts, SAMHSA has defined “LGBTQI+” as “people identifying as lesbian, gay, bisexual, transgender, queer, questioning, intersex, two-spirit, and other diverse sexual orientations, gender identities, and expressions.” ↩︎
  2. 988 also has specialty services for veterans and Spanish speakers, and operators trained to meet the needs of people who are deaf or hard of hearing. ↩︎
  3. Previously, LGBTQI+ people were identified as a “resource population,” a designation for groups receiving specifically tailored promotional materials   ↩︎

Federal Vaccine Advisory Committees: Roles and Current Issues

Published: Jun 10, 2025

This brief has been updated to reflect Secretary of Health and Human Services Kennedy’s announcement dismissing all members of the Advisory Committee on Immunization Practices , issued on June 9, 2025.

The federal government routinely relies on external advisory committees to inform policy across multiple areas. In the context of vaccines, these include several committees that assist in informing the government on vaccine policy, vaccine approvals, and vaccine recommendations for use among the public. Still, while advisory committees have served an important function in this regard for years, members of the Trump administration have raised critiques and questions about the role of these committees and taken actions in the past few weeks that have bypassed their input altogether. For example, Secretary of Health and Human Services (HHS) Robert F. Kennedy, Jr. has long raised concerns about conflicts of interest and a lack of transparency on federal vaccine advisory committees, and has recently said he intends to make changes to these committees.  On June 9, 2025, Kennedy took a major step in this direction, dismissing all members of the Advisory Committee on Immunization Practices (ACIP), a key external advisory committee for the Centers for Disease Control and Prevention (CDC). In addition, in recent days officials at HHS and FDA announced a number of changes to policies regarding the review, approval, and recommendations for COVID-19 vaccines, which were implemented without any input from advisory committees. These statements and actions raise questions about the roles external vaccine advisory committees will play going forward, and whether and how federal health agencies will tap into their advice when making policy decisions.

Given this context, this brief provides an overview of key federal vaccine advisory committees and discusses policy issues and questions they currently face.

Background

External advisory committees are established by Congress, federal departments, and agencies as tools for “furnishing expert advice, ideas, and diverse opinions.” Almost all federal external advisory committees are governed by the Federal Advisory Committee Act (FACA), and operate under a common set of rules and guidelines. Each advisory committee under FACA is required to have a charter, which outlines key processes and procedures such as how members are selected, how long members serve, the number of members and voting privileges, meeting schedules, reporting, and other aspects.

External advisory committees are typically comprised of the following types of members:

  • Special Government Employee (SGE) members are subject matter experts drawn from outside the U.S. government. SGEs are expected to provide independent input and judgment on behalf of the government and to be free of conflicts of interest – U.S. Code prohibits SGEs from serving on a committee if doing so has a “direct and predictable effect” on their financial interests.
  • Ex-officio members are federal employees who represent relevant federal offices.
  • Representative members are individuals from non-government entities that represent points of view from particular groups or interested parties. For example, there may be representatives present on advisory committees from interested professional associations and/or patient groups.

Committees are overseen by and report to staff from associated federal departments or agencies. For the most part, federal external committees are advisory only – they do not set federal policy and instead only provide input and recommendations for consideration. However, some committees, such as the Advisory Committee on Immunization Practices, have certain statutory roles related to federal vaccine programs (see more below).

In the context of federal vaccine policy, there are four main advisory committees that have been established: the Vaccines and Related Biological Products Advisory Committee (VRBPAC) at the Food and Drug Administration (FDA); the Advisory Committee on Immunization Practices (ACIP) at the Centers for Disease Control and Prevention (CDC); the National Vaccine Advisory Committee (NVAC) at the Department of Health and Human Services (HHS); and the Advisory Commission on Childhood Vaccines (ACCV) at HHS.

Overview and governance: The Vaccines and Related Biological Products Advisory Committee (VRBPAC) at FDA reviews and evaluates scientific data on the safety and effectiveness of vaccines and provides independent advice on these issues to the FDA Commissioner. It was initially established in 1979 under U.S. code (21 U.S.C 394) and is subject to the provisions of the FACA. It is managed by the FDA’s Center for Biologics Evaluation and Research (CBER). Its most recent charter was approved in July 2024; the charter must be renewed every two years or the committee will be terminated, so charter renewal will be due by July 2026.

Membership: There are 15 voting members of VRBPAC, including a Chair. Committee members are selected by the FDA Commissioner from individuals outside the government with expertise in relevant areas and serve for up to four-year terms. One voting member, as selected by the Commissioner or designee, can be selected to represent “consumer interests” while one non-voting member can be selected to represent “industry interests.” There are two ex-officio voting members: one representing the CDC and one representing the National Institutes of Health (NIH). Voting members are subject to FDA and federal government conflict of interest standards and safeguards.

Responsibilities and process: According to its current charter, VRBPAC is meant to be convened approximately six times a year, with meetings open to the public except as determined by the FDA Commissioner or their designee. Each VRBPAC meeting is announced in advance, with an agenda of topics for review by committee members. Typically, the committee is convened to consider one or more candidate vaccines under review by the FDA, which can be new vaccines or updates to existing vaccines. Committee members review background materials and receive presentations that summarize information on the safety and efficacy of the candidate vaccine(s). There is time allotted for questions and deliberation, including public comments and questions. Voting members are typically asked to vote on specific questions, such as whether the candidate vaccine should or should not be approved by the FDA. The vote results and other information from the meeting are then reviewed and considered by FDA staff and the Commissioner as they make final decisions regarding vaccine approval or authorization, but the FDA Commissioner is not required to follow the recommendations of the committee.

Recent and upcoming meetings & topics: In 2024, the committee met four times. Since taking office, the Trump Administration has convened one VRBPAC meeting, which was held May 22, 2025 and focused on formula selection for COVID-19 vaccines for the 2025-2026 season. Earlier this year, there had been a VRBPAC meeting scheduled for March to review influenza vaccine composition for the 2025-2026 season, but it was cancelled with no reason given. Instead, FDA announced it held a closed-door interagency meeting of government experts to discuss this topic and that group agreed on a set of recommendations for influenza vaccine composition for the coming season without external input from VRBPAC.

Advisory Committee on Immunization Practices (ACIP)

Overview and governance: The Advisory Committee on Immunization Practices (ACIP) provides the CDC Director with expert opinion and recommendations about the use of vaccines. ACIP was established in 1964 under section 222 of the Public Health Service Act (42 U.S.C. §2l7a), and has a Secretariat composed of CDC staff, including an Executive Secretary from the CDC’s National Center for Immunization and Respiratory Diseases (NCIRD) who is responsible for overall management and compliance with federal law. The ACIP Secretariat is responsible for renewing the charter every two years (or the committee will be terminated), and any revisions to the charter are subject to review and approval by the Secretary of HHS. The current ACIP charter was approved in April 2024, with renewal due by April 2026.

Membership: There are up to 19 voting members of ACIP including a Chair and Vice Chair. Currently, membership on the committee is in flux because on June 9, 2025, Secretary Kennedy dismissed 17 members that had been sitting on the committee. Replacements for those dismissed have not yet been announced. According to its charter, committee members are meant to be selected from technically qualified people from outside government trained in a clinical medical field with knowledge of vaccines and immunization. Also, ACIP must include a consumer representative as one of the voting members of the committee. ACIP members are selected by the Secretary of HHS and serve for up to four year terms. Voting members are considered SGEs subject to federal government conflict of interest standards and safeguards. In addition, ACIP voting members cannot be directly employed (or have an immediate family member who is directly employed) by a vaccine manufacturer and cannot hold a patent on a vaccine or related product. Further, members disclose sources of research funding at the beginning of every committee meeting and cannot vote on decisions where they are conflicted. ACIP also has six ex-officio members who are non-voting representatives from related U.S. government agencies such the FDA, the National Institutes of Health, and the Centers for Medicare and Medicaid services. In addition, there are 31 liaison (non-voting) representatives primarily representing professional organizations such as the American Academy of Pediatrics, the American Academy of Family Physicians, and the American College of Physicians.

Responsibilities and process: ACIP responsibilities include generating recommendations for the CDC Director regarding who should get a vaccine (e.g., specifying age or other criteria), what dose of the vaccine should be given, and what the timing of vaccine doses should be. In addition to generating recommendations for the CDC Director, ACIP also has certain statutory roles assigned by Congress. For example, ACIP has the responsibility to establish the list of vaccines, number of doses, schedule and contraindications for the Vaccines for Children (VFC) program, which provides vaccines to children whose parents or guardians may not be able to afford them. In addition, the Affordable Care Act and subsequent laws have indicated that health insurance plans must cover ACIP-recommended immunizations after those recommendations have been formally adopted by the CDC Director. ACIP also recommends which vaccines are required for individuals immigrating to the United States.

According to its charter, ACIP holds three regular meetings each year, though additional meetings may be scheduled as needed. Meetings are open to the public, except as otherwise determined by the CDC Director or their designee. The ACIP Steering Committee, which is comprised of representatives from each of the major centers at CDC, plans the agenda for ACIP meetings. Before meetings, each new or modified use of an existing vaccine on the agenda is reviewed by a work group consisting of ACIP members and CDC staff, which then proposes questions for consideration by the full committee. During meetings the full committee reviews this and other background information, listens to presentations, and engages in discussion and debate. In its deliberations, ACIP considers disease epidemiology and burden of disease, efficacy and effectiveness, safety, the quality of evidence reviewed, economic analyses, and implementation issues for each vaccine. The committee then votes on specific proposals or the wording of recommendations, the results of which are submitted to the CDC Director for consideration, but the CDC Director is not required to follow these recommendations.

Recent and upcoming meetings & topics: A February 2025 ACIP meeting was initially postponed and subsequently held in April 2025. That meeting covered topics that included meningococcal, respiratory syncytial virus, and chikungunya vaccines. There is another ACIP meeting scheduled starting June 24, 2025, which is expected to focus on COVID-19 vaccines for the 2025-2026 season, coming after the May 22 VRBPAC meeting on that topic. The June meeting also comes on the heels of an announcement by HHS Secretary Kennedy on May 27 that the CDC will no longer recommend COVID vaccines for healthy children or healthy pregnant women, a policy change that was reported to be a surprise to CDC staff and which was made without any input from ACIP. Further, it is unclear how many new ACIP members will be announced, vetted, and participating prior to the upcoming June 24-25 meeting now that all prior members have been dismissed.

National Vaccine Advisory Committee (NVAC)

Overview and Governance: The National Vaccine Advisory Committee (NVAC) serves an advisory role, providing peer review, consultation, advice, and recommendations to the Assistant Secretary for Health at HHS, in their capacity as the Director of the National Vaccine Program. A senior staff member of the Office of Infectious Disease and HIV/AIDS Policy (OIDP) with the Assistant Secretary of Health at HHS serves as the federal officer responsible for NVAC. The committee was established in 1986 by Congress under Section 2105 of the Public Health Service Act, and its charter was renewed in July 2023 and is due for renewal every two years or will be terminated; its next renewal would be July 2025.

Membership: NVAC consists of 17 voting members, comprised of 15 public members who are SGs, including the chair, and two members designated to serve as official representatives of the vaccine manufacturing industry. The committee also includes non-voting ex-officio representatives from federal agencies, as well as non-voting liaison representatives from other groups such as state and local health departments or non-governmental public health organizations. Members are appointed by the Assistant Secretary of Health at HHS in consultation with the National Academy of Sciences; vaccine industry groups are consulted for selection of the two voting representative members.

Responsibilities and process: NVAC advises the Assistant Secretary for Health at HHS on how to close gaps in immunization coverage and makes recommendations for how the U.S. vaccine enterprise broadly can improve the prevention of infectious diseases through vaccination. The committee’s advice and recommendations cover areas such as: barriers in the immunization delivery system, public trust in vaccines, immunization infrastructure, support for providers of immunization services, demand for immunization, vaccine safety, and fostering vaccine development and innovation. NVAC’s advice is presented to the Assistant Secretary for Health, who by law serves as the Director of the U.S. National Vaccine Program. NVAC is the only federal advisory committee that considers and makes recommendations across the entire U.S. immunization system broadly.

According to its charter, NVAC meets three times per year, and meetings are open to the public except as otherwise determined by the HHS Secretary or their designee. Meetings can cover recent and timely topics affecting the vaccines and immunizations broadly in the U.S.

Recent and upcoming meetings & topics: NVAC has not met since September 2024. At that meeting, the committee focused on areas such as Hepatitis B vaccine recommendations and implementation, approaches to equity in immunizations, provider payments for vaccination, and a review of HIV vaccine development. No NVAC meetings have been held under the Trump administration, and none have been publicly scheduled for future dates.

Advisory Commission on Childhood Vaccines (ACCV)

Overview and Governance: The Advisory Commission on Childhood Vaccines (ACCV) advises the Secretary of HHS on matters related to the implementation of the National Vaccine Injury Compensation Program (VICP). VICP is a federal program established by Congress in 1986, that provides financial compensation to individuals found to have been injured by a vaccine covered by the program (primarily childhood vaccines). The ACCV was established in 1986 under Title 42 of U.S. Code (42 U.S.C. 300aa-19). The committee is managed by the Health Systems Bureau of the Health Resources and Services Administration (HRSA). The current AACV charter was renewed in July of 2024; the charter is meant to be renewed every two years or will be terminated; the next renewal would be before July 2026.

Membership: Nine voting members appointed by the Secretary as follows: “three health professionals who are not employees of the federal government with expertise in health care of children, the prevention of childhood diseases, and the adverse reactions associated with vaccines, of whom at least two are pediatricians; three members from the general public, of whom at least two shall be legal representatives of children who have suffered a vaccine-related injury or death; and three attorneys, of whom at least one is an attorney whose specialty includes representation of persons who have suffered a vaccine-related injury or death and one who is an attorney whose specialty includes representation of vaccine manufacturers.” Voting members are considered SGEs. In addition, the Director of the National Institutes of Health, the Assistant Secretary for Health, the Director of the CDC, and the FDA Commissioner (or designees of these officials) participate as ex-officio, non-voting members.

Responsibilities and process: According to its charter, ACCV is meant to meet four times a calendar year to advise the Secretary of HHS on matters related to the implementation of the VICP. The committee does not make final decisions about individual claims (the United States Court of Federal Claims is responsible for resolving claims for compensation under the VICP) but instead makes observations about and recommendations for improvements to the VICP program. Meetings are open to the public, except as determined otherwise by the Secretary of HHS or their designee.

Recent and upcoming meetings & topics: The most recent ACCV meeting took place in July 2024, where the committee reviewed and discussed topics such as the finding from a National Academy of Medicine review of the adverse effects of COVID-19 vaccination, the latest information from CDC’s Immunization Safety Office and updates from other federal agencies on vaccine injury information. No meetings of ACCV have been held under the Trump administration, and none have been publicly scheduled for future dates. An ACCV meeting that had been scheduled for January 29, 2025 was postponed indefinitely.

Issues to Watch

Committee composition and membership. The June 9, 2025 announcement from Secretary Kennedy dismissing all sitting members of ACIP indicates that Trump Administration officials are willing and able to make significant changes to the composition of these committees, and re-fashion their membership to reflect their priorities. No changes to the membership of VRBPAC, NVAC, or ACCV have been announced so far, even as the same concerns used to justify dismissal of ACIP members – conflicts of interest – have been raised for the membership of these other committees. While FDA Commissioner Makary said he had no plans to rearrange or remove experts on FDA external advisory committees such as VRBPAC, Secretary Kennedy, who has the authority to remove members, continues to raise concerns about corruption at FDA and the committee members’ independence.

Handling of alleged conflict of interests. The primary concerns expressed by Secretary Kennedy and others in relation to external advisory committees – especially VRBPAC and ACIP – revolves around accusations of conflicts of interest. Commissioner Makary, for example, has said the FDA under his leadership will have to “review the ethics policy” because of a “cozy relationship between industry and the regulators.” Regarding ACIP, one of the first steps Kennedy took to address transparency concerns was launching a new online tool to allow the public to search for conflicts of interest among ACIP committee members. The rationale given for the dismissal of all ACIP members on June 9 was to promote trust and address conflict of interest concerns. However, there is little evidence of major conflicts of interest for current VRBPAC and ACIP committee members that have served recently, and all federal vaccine advisory committee members are already required to comply with federal regulations regarding disclosing potential conflicts of interest. For example, FDA says it “screens all advisory committee members carefully” for current financial interests and any other interests and relationships that could create the appearance that a member lacks impartiality.” In addition, VRBPAC members cannot be directly employed (or have an immediate family member who is directly employed) by a vaccine manufacturer and cannot hold a patent on a vaccine or related product. Likewise, ACIP members file annual financial disclosures, cannot work for or own vaccine manufacturer stock (nor can their family members), and cannot accept gifts from vaccine companies. Even so, more changes to committees may be coming in the future based on perceived conflicts of interest.

Uncertainty about meeting frequency and cancelations. Under the Trump administration, the pace of convenings for these committees has been relatively slow compared to the recommended frequencies noted in their charters, and compared to past years. For example, VRBPAC has met once since President Trump took office this year, even though the frequency has been four to six meetings in previous years. A VRBPAC meeting initially scheduled for March 2025 was cancelled, and a February 2025 ACIP meeting was postponed for over a month. No meetings have been scheduled for either NVAC or ACCV, which according to their charters are meant to have three and four meetings a year, respectively. NVAC, for example, met at least twice and usually three times in each of the previous six years, while ACCV met four times a year over that time frame.

Officials bypassing or ignoring committee input on key policy decisions. In the past, FDA and CDC have typically sought input from VRBPAC and ACIP when considering key vaccine policy questions. Furthermore, final policy decisions coming from these agencies regarding vaccine approvals and recommendations have typically aligned with the input provided by these committees. However, this year has seen Trump administration health officials make several vaccine policy changes without seeking committee input or doing so while ignoring committee recommendations. For example, seasonal influenza vaccine composition this year was decided without external input, in contrast to previous years. Also, FDA leaders announced that updated COVID-19 vaccines would have to undergo new placebo-controlled trials to be approved in some cases, without any input on this change from VRBPAC. In addition, HHS Secretary Kennedy recently announced CDC would no longer be recommending COVID-19 vaccines for healthy children and pregnant women, a change that was instituted without ACIP consultation and which goes against existing committee recommendations. Further, Kennedy has thus far not acted on issuing new CDC guidance expanding the recommended age range for meningitis and respiratory syncytial virus vaccinations in the U.S., even though these changes were recommended by ACIP in its April 2025 meeting (CDC guidance regarding the chikungunya vaccine, however, was updated following ACIP recommendations from the same meeting). While there is past precedent for FDA and CDC ignoring or breaking with advisory committee recommendations, it has been rare. Ultimately, the leadership of these agencies has authority to take unilateral action, and in fact the Secretary of HHS has ultimate authority over vaccine approvals and recommendations. Therefore, further changes to federal vaccine policy changes that bypass or ignore these committees may be coming.

Table 1

Key Characteristics of Federal Vaccine Advisory Committees

CommitteeHome AgencyPrimary responsibilitiesInitially EstablishedNumber of Voting MembersTypical frequency of meetingsMost recent/ upcoming meeting
Vaccines and Related Biological Products Advisory Committee (VRBPAC)Food and Drug Administration (FDA)Advises and provides recommendations to the FDA Commissioner on the safety and effectiveness of vaccines, through review of the scientific data, to inform approval and/or authorization of vaccines in the United States.197915Six times per yearLast meeting: May 2025; next meeting not yet scheduled
Advisory Committee on Immunization Practices (ACIP)Centers for Disease Control and Prevention (CDC)Advises and provides recommendations to the CDC Director on the public use of vaccines in the United States; also has certain statutory roles including authority to establish the list of vaccines used in the Vaccines for Children (VFC) program. ACIP recommendations also have implications for which vaccinations are required to be covered by private health insurance under the Affordable Care Act.1964up to 19Three times per yearLast meeting: April 2025; next scheduled meeting: June 2025
National Vaccine Advisory Committee (NVAC)Department of Health and Human Services (HHS)Advises the Assistant Secretary for Health at HHS on how to close gaps in immunization coverage and makes recommendations for how the U.S. vaccine enterprise can improve the prevention of infectious diseases through vaccination198617Three times per yearLast meeting: September 2024; no future meetings publicly scheduled
Advisory Commission on Childhood Vaccines (ACCV)HHS/Health Resources and Services Administration (HRSA)Advises the Secretary of HHS on matters related to the implementation of the National Vaccine Injury Compensation Program (VICP), which provides financial compensation to individuals found to have been injured by a vaccine.19869Four times per yearLast meeting: July 2024; no future meetings publicly scheduled
Poll Finding

KFF Health Tracking Poll: The Public’s Views of Funding Reductions to Medicaid

Published: Jun 6, 2025

Findings

The latest budget reconciliation bill, named the “One Big Beautiful Bill Act” by Republicans, passed the U.S. House of Representatives in late May and will be taken up next by the Senate. The bill includes significant changes to Medicaid and the Affordable Care Act (ACA), among other health care provisions. The Congressional Budget Office estimates that the bill would decrease federal Medicaid spending by more than $700 billion and result in more than 10 million people losing Medicaid coverage.

The latest KFF Health Tracking Poll examines the views and experiences of the groups that could be most directly impacted by the impending legislation. Key takeaways include:

  • Those who get their coverage from Medicaid and the ACA Marketplaces represent a range of political identities. More than four in ten of those who purchase marketplace coverage identify as Republican, including one-third who call themselves supporters of President Trump’s “Make America Great Again” (MAGA) movement. Among Medicaid enrollees, more than a quarter are Republican, including one in five who identify with MAGA.
  • Most of the public is worried about the consequences of significant reductions in federal Medicaid spending, including among many groups that would be directly impacted by the cuts. Partisanship drives these attitudes to a certain extent, but about two-thirds or more of Republicans enrolled in Medicaid and those with lower incomes are worried that Medicaid spending reductions would hurt their families and their communities.
  • The poll finds a large majority of rural residents, and particularly those with lower household incomes, worry these cuts will lead to more children and adults losing health care coverage, harm providers in their communities, and make it more difficult for themselves and their families to access or afford health care. Rural residents are divided along partisan lines on this issue, but half of rural Republicans are worried about more people becoming uninsured. Rural health care providers, which often rely heavily on Medicaid funding, may be especially vulnerable to the decreased federal spending included in the reconciliation bill.
  • Views on how the Trump administration’s policies will impact the country’s health care programs are largely partisan, even among people who are enrolled in these programs. Overall, most of the public says the Trump administration’s policies will weaken Medicare and Medicaid, including most Democrats and independents, while most Republicans expect the administration’s policies to strengthen or have no impact on these programs. Among Republican Medicaid enrollees, however, views are mixed with similar shares saying the policies will strengthen, weaken, or have no impact on the program they rely on.

Medicaid and Marketplace Enrollees Represent a Wide Range of Political Identities

Millions of adults who get health insurance from Medicaid and the ACA Marketplaces across the political spectrum are at risk of losing coverage if the current version of the reconciliation bill becomes law. While most Medicaid beneficiaries under age 65 are Democrats or lean Democratic (37%), or do not lean toward either party (36%), more than one in four are Republicans or lean that way (27%), including one in five (19%) who identify as MAGA supporters, President Trump’s strongest base of support.

Republicans also make up 45% of adults who purchase their own health insurance, most of whom do so through the ACA Marketplaces, including about three in ten (31%) who identify with the MAGA movement. About one-third (35%) are Democrats or lean that way, and one in five do not identify or lean toward either political party.

Nearly Half of Likely ACA Marketplace Enrollees Identify as MAGA Supporters or Other Republicans

A Majority of the Public Worry About the Consequences of Proposed Medicaid Cuts

The latest KFF poll shows that most adults are worried significant reductions in federal Medicaid spending will lead to more uninsured people and will strain health care providers in their communities. About seven in ten adults (72%) are worried that a significant reduction in federal funding for Medicaid would lead to an increase in the share of uninsured children and adults in the U.S., including nearly half (46%) who are “very worried” and one in four (25%) who are “somewhat worried.”

Similarly, about seven in ten adults say they are worried that if the federal government significantly reduces its spending on Medicaid, there will be negative impacts on hospitals, nursing homes, and other health care providers in their communities (71%), including four in ten (42%) who are “very worried” and three in ten (28%) who are “somewhat worried.”

Over half (54%) of U.S. adults are worried that reductions in federal Medicaid spending would negatively impact their own or their family’s ability to get and pay for health care, including about three in ten who are “very worried” (29%) and one in four (26%) who are “somewhat worried.”

A Majority of Adults Are Worried About Impacts of Federal Funding Cuts to Medicaid on the Number of Uninsured, Their Families, and Communities

There is a strong partisan dimension to these worries, as Democrats and independents are much more likely than Republicans to worry about potential negative consequences of reductions in federal government spending on Medicaid. Large majorities of Democrats and Democratic-leaning independents (94%) and independents who do not lean toward either party (85%) say they are worried these cuts will lead to more adults and children becoming uninsured, compared to fewer than half of Republicans and Republican-leaning independents (44%). Similarly, at least eight in ten Democrats (92%) and independents (85%) are worried about funding reductions negatively impacting providers in their communities, compared to 43% of Republicans.

Democrats and independents are also more than twice as likely as Republicans to worry these cuts will negatively impact their family’s ability to get and pay for health care.

Between one in four and four in ten Republicans and Republican-leaning independents who identify as supporters of the Make America Great Again (MAGA) movement, a group that makes up about three-quarters of all Republicans and Republican-leaning independents, are worried that reducing federal spending on Medicaid would lead to negative consequences.

Most of the Public Are at Least Somewhat Worried About Potential Impacts of Federal Funding Cuts to Medicaid

Funding reductions to Medicaid would likely have a disproportionate impact on women, Black and Hispanic individuals, and those with lower household incomes – all groups who are more likely to rely on Medicaid to access medical care. The poll finds these groups are also most concerned about the personal impacts of reductions in federal Medicaid spending. Larger shares of those enrolled in Medicaid (86%), Black adults (77%), those living in households earning less than $40,000 annually (73%), Hispanic adults (68%), and women (61%) are worried that their family’s ability to access and afford care would be negatively impacted by cuts to federal Medicaid spending.

Six in ten (61%) parents of children ages 18 or younger in their household say they worry about their family’s ability to access and afford care, rising to more than eight in ten (85%) single mothers.

Large Shares of Black Adults, Hispanic Adults, and Adults With Lower Household Incomes Report Worry That Medicaid Cuts Would Negatively Impact Their Access to Care

Among Medicaid Enrollees and Lower-Income Adults, Majorities Across Partisanship Worry About Impacts of Medicaid Spending Cuts

Majorities of Medicaid enrollees and adults in lower-income households, many of whom rely on the Medicaid program or have household members who do, worry about the impacts of funding reductions on the program for their communities and families – regardless of partisanship.

A large majority of Medicaid enrollees say they are worried that spending reductions would negatively impact their own or their family’s ability to access and afford health care, including six in ten (60%) who say they are “very worried.” Large shares of Medicaid enrollees are also worried such spending reductions would hurt providers in their communities and lead to more adults and children becoming uninsured. While partisanship shapes these attitudes, among Republicans enrolled in Medicaid, three-quarters worry such funding reductions would hurt their family’s ability to get and pay for care (76%) and about two-thirds worry they would lead to an increase in the uninsured (69%) and negatively impact providers (65%).

Nearly Nine in Ten Medicaid Enrollees Say They Are at Least Somewhat Worried That Federal Funding Cuts to Medicaid Would Negatively Impact Their and Their Families' Access to Health Care

Similarly, lower-income adults are more likely than those with higher incomes to worry about the implications of Medicaid spending cuts. Eight in ten adults in households with incomes under $40,000 say they are worried these spending reductions would lead to more children and adults becoming uninsured (80%) or that health care providers in their communities would be negatively impacted (78%). Nearly three-quarters (73%) are worried these cuts would negatively impact their own families’ ability to access and pay for care.

While Democrats and independents with lower incomes are more worried than their Republican counterparts on the implications of these funding reductions, once again the poll shows that majorities of lower-income Republicans also express worry. About six in ten Republican and Republican-leaning independents with household incomes under $40,000 say they are worried about more adults and children becoming uninsured and that the cuts would negatively impact providers in their communities. More than half of this group say they are worried that these funding reductions would negatively impact their own family’s ability to pay for health care.

Majorities of Low-Income Adults Across Partisans Are Worried About Impacts of Federal Funding Cuts to Medicaid on Their Families, Communities

In addition to being eligible for Medicaid coverage, many lower income adults in the U.S. rely on the Supplemental Nutrition Assistance Program (SNAP) to help pay for food for their families. As Congress debates reductions in both Medicaid funding and SNAP benefits for lower-income families, the latest KFF Health Tracking Poll finds about half of adults with household incomes under $40,000 report having difficulty affording necessities, and about three in ten report difficulty affording health care. About half of lower-income adults, including 49% of lower-income Democrats, 47% of lower-income Republicans, and 62% of lower-income independents, say they or a family member in their household have had problems affording food, housing, transportation, or other necessities in the past year.

Nearly three in ten lower-income adults say they have had trouble paying for health care, including three in ten lower-income Democrats (30%) and independents (30%) and one in four lower-income Republicans. With proposals from Republicans to reduce federal spending on Medicaid and SNAP, these shares could rise, placing additional strain on a population already facing significant financial challenges.

Half of Low-Income Adults Say They or a Family Member They Live With Have Had Problems Paying for Food, Housing, or Transportation This Past Year

Worries About Medicaid Spending Cuts Extend to Rural Communities

Health care providers in rural communities are most at risk of experiencing the negative impacts of funding reductions from the recent tax bill, as many of these providers are dependent on funding from the Medicaid program. Overall, about seven in ten rural residents are worried that cuts would lead to more adults and children becoming uninsured (69%) or that this would negatively impact health care providers in their communities (66%). About half (52%) of rural adults say they are worried that funding reductions would impact their or their family’s ability to get or pay for care. Rural residents are split along partisan lines, with large majorities of rural Democrats worrying about each of these, compared to fewer Republicans. However, about half (52%) of rural Republicans say they are worried this would lead to more adults and children becoming uninsured.

Large majorities of rural adults in households with incomes under $40,000 also express worry about each of these consequences, including nearly nine in ten (87%) lower-income rural residents who are worried this would lead to more adults and children becoming uninsured, about eight in ten worried this would impact their local communities (78%), and three-quarters who worry about a negative impact on their own family’s ability to access and pay for care.

A Majority of Adults Living in Rural Areas Are Worried That Federal Cuts to Medicaid Would Impact the Uninsured Rate and Health Care Providers in Their Community, Including Nearly All Rural Democrats

Most of the Public Say Medicare and Medicaid Will Be Weakened by the Trump Administration’s Policies

The reconciliation bill championed by President Trump is one way the administration’s policies may affect health care policy in the U.S. However, the direction of programs like Medicare and Medicaid are also likely to be shaped by other administration actions such as executive orders, federal appointments, and agency policies. Overall, most U.S. adults say the Trump administration’s policies will “weaken” key aspects of the U.S. health care system including Medicaid, Medicare, and health care services for veterans, while fewer say they will strengthen these programs.

About six in ten adults think the Trump administration’s policies will weaken Medicaid (59%) and Medicare (57%), more than twice the share who say the policies will strengthen each program (19% and 23%, respectively). Half of adults (49%) say the Trump administration’s policies will weaken health care services for veterans, a larger share than say the policies will strengthen care for veterans (32%).

The public is more mixed on how the Trump administration’s policies will impact private health insurance, with four in ten saying it will “weaken” it while about a quarter (27%) say it will “strengthen” it. The Republican tax bill includes changes to the Affordable Care Act (ACA) that will increase the number of uninsured people by about 8 million by 2034, estimated by the Congressional Budget Office (CBO).

Nearly Six in Ten U.S. Adults Say Trump's Policies Will Weaken Medicaid, Medicare

Views on how the Trump administration’s policies will impact the country’s health care programs are largely partisan, with large majorities of Democrats and independents saying the policies will weaken the programs, while Republicans are more likely to say the policies will strengthen the programs – especially veterans’ health care.

Two-thirds of Republicans and Republican-leaning independents say the administration’s policies will strengthen health care services for veterans and between four in ten and half say the same about Medicare (50%), private health insurance (43%), or Medicaid (42%). Notably, one in five Republicans say the administration’s policies will weaken Medicaid (22%) and Medicare (19%), and a sizable share of Republicans say the administration’s policies will have no impact on each of these policy areas.

Democrats, on the other hand, overwhelmingly say the Trump administration’s policies will weaken each of these health insurance programs. Nine in ten Democrats say Medicaid (91%) and Medicare (90%) will be weakened by the administration’s policies. About eight in ten (84%) Democrats say health care services for veterans will be weakened by the policies, and two-thirds (66%) say the same about private health insurance. One in six Democrats say the administration’s policies will strengthen (17%) or have no impact (17%) on private health insurance.

Majorities of Democrats and Independents Say the Trump Administration's Policies Will Weaken Medicaid and Medicare, Four in Ten or More Republicans Say His Policies Will Strengthen the Program

Partisanship is also a strong predictor of these views among people who have health insurance through these programs. While most Democrats and independents with Medicaid coverage say the Trump administration’s policies will weaken Medicaid (84% and 73% respectively), Republicans and Republican-leaning Medicaid enrollees are split on the issue. While about one-third of Republican Medicaid enrollees say the administration’s policies will strengthen Medicaid (35%), a similar share (34%) say they will weaken it.

Two-Thirds of Medicaid Enrollees Think the Trump Administration's Policies Will Weaken Medicaid, Including Large Majorities of Democrats and Independents; About One-Third of Republicans on Medicaid Say They Will Strengthen the Program

Adults ages 65 and older with Medicare coverage are sharply divided along partisan lines in their expectations for how the Trump administration’s policies will impact their health care coverage. Nine in ten (94%) Democrats and Democratic-leaning independents with Medicare say the administration’s policies will “weaken” the program, while two-thirds (67%) of Republican and Republican-leaning Medicare enrollees say the program will be “strengthened.” One in four (24%) Republican Medicare enrollees say the program will not be impacted by the Trump administration’s policies, while few (5%) Democratic Medicare enrollees agree.

Nine in Ten Democrats Ages 65 and Older With Medicare Say Trump's Policies Will Weaken Medicare, and Majorities of Their Republican Counterparts Say His Policies Will Strengthen It

Methodology

This KFF Health Tracking Poll was designed and analyzed by public opinion researchers at KFF. The survey was conducted May 5 – 26, 2025, online and by telephone among a nationally representative sample of 2,539 U.S. adults in English (2,444) and Spanish (95).

The sample includes 2,028 adults who were reached through an address-based sample (ABS) and completed the survey online (1,802) or over the phone (226). An additional 511 respondents were reached through a random digit dial telephone (RDD) sample of prepaid (pay-as-you-go) cell phone numbers. Among this prepaid cell phone component, 260 were invited to the web survey via short message service (SMS) while another 251 were interviewed by phone (CATI). Marketing Systems Groups (MSG) provided both the ABS and RDD sample. All fieldwork was managed by SSRS of Glen Mills, PA; sampling design and weighting was done in collaboration with KFF.

Both ABS and RDD samples were stratified to increase the likelihood of reaching certain populations. Both the ABS and RDD sample frames included disproportionate stratification aimed at reaching Hispanic and non-Hispanic Black respondents. The ABS was also stratified based on model-based prediction of household-members’ party identification (Republican, Democratic, or independent).

Respondents received a $15 incentive for their participation, with interviews completed by phone receiving a mailed check and web respondents receiving a $15 electronic gift card incentive. The online questionnaire included two questions designed to establish that respondents were paying attention and cases were monitored for data quality including item non-response, mean length, and straight lining. Cases were removed from the data if they failed two or more of these quality checks. Based on this criterion, four cases were removed.

The combined ABS and cell phone samples were weighted to match the sample’s demographics to the national U.S. adult population using data from three sources: the Census Bureau’s 2024 Current Population Survey (CPS), the 2021 Census Planning Database, and the 2023 National Public Opinion Reference Survey (NPORS) data. The demographic variables used for weighting include gender by age, gender by education, age by education, race/ethnicity by education, education, race, census region, population density, and frequency of internet usage. The weights also take into account differences in the probability of selection for each sample type (ABS and prepaid cell phone). This includes adjustment for the sample design and geographic stratification of the samples, and within household probability of selection.

The margin of sampling error including the design effect for the full sample is plus or minus 3 percentage points. Numbers of respondents and margins of sampling error for key subgroups are shown in the table below. For results based on other subgroups, the margin of sampling error may be higher. Sample sizes and margins of sampling error for other subgroups are available by request. Sampling error is only one of many potential sources of error and there may be other unmeasured error in this or any other public opinion poll. The Medicaid and health care costs module included in this survey was designed, analyzed, and paid for by KFF. The demographic questions included in this study were developed and funded jointly by CNN and KFF as part of an unrelated project, with each organization having independent editorial control over its portion of the survey. KFF Public Opinion and Survey Research is a charter member of the Transparency Initiative of the American Association for Public Opinion Research.

GroupN (unweighted)M.O.S.E.
Total 2,539± 3 percentage points
Party ID
Democrats and Democratic-leaning independents1,102± 4 percentage points
Pure independents388± 7 percentage points
Total Republicans and Republican-leaning independents886± 4 percentage points
MAGA Republicans and Republican-leaning independents625± 5 percentage points
Health Insurance Coverage
Adults enrolled in Medicaid, ages 18–64454± 6 percentage points
Adults who have purchased their own health coverage, ages 18–64247± 9 percentage points
Adults enrolled in Medicare, ages 65 and older411± 7 percentage points
News Release

More Than Half of the Public Worries Federal Medicaid Budget Cuts Would Affect Their Family’s Ability to Obtain and Afford Care; More Worry It Will Increase the Uninsured 

More ACA Marketplace Enrollees Are MAGA Supporters or Other Republicans Than Democrats

Published: Jun 6, 2025

As Congress weighs spending cuts and other changes to Medicaid, more than half (54%) of the public say they are worried significant reductions in federal Medicaid spending would negatively affect their family’s ability to obtain and afford health care, a new KFF Health Tracking Poll finds. This includes about three in 10 (29%) who say they are “very worried” about such an outcome. 

Democrats (69%) and independents (68%) are much more likely to say they are worried about the impact of potential Medicaid cuts on their families compared to Republicans generally (31%) and supporters of President Trump’s Make America Great Again (MAGA) movement specifically (26%). 

Among Medicaid enrollees themselves, a large majority (86%) worry about the impact of cuts on their families, including six in 10 (60%) who say they are very worried. Three- quarters (76%) of MAGA supporters and other Republican Medicaid enrollees say they are worried about the potential impact of federal spending reductions on their families, as are about half (53%) of Republicans with household incomes less than $40,000. 

About seven in 10 people overall also say they are worried federal Medicaid spending reductions would lead to more adults and children becoming uninsured (72%, including 46% who are “very worried”) and would negatively impact hospitals, nursing homes, and other health care providers in their communities (71%, including 42% who are “very worried”). 

These concerns are shared by residents of rural communities, where providers often rely heavily on funding from Medicaid and other government health care programs. 

Among rural residents, about half (52%) say they are worried that Medicaid funding reductions would impact their or their family’s ability to get or pay for care. A sizeable majority of rural residents also worry that spending reductions would lead to more adults and children becoming uninsured (69%) and would negatively impact health care providers in their communities (66%).  

Nearly Half of Marketplace Enrollees Identify as MAGA Supporters and Other Republicans  

With Congress and the Trump administration weighing changes to the Affordable Care Act (ACA), the poll shows that ACA Marketplace enrollees represent a diverse group. 

Nearly half (45%) of those who purchase their own health insurance plans – the vast majority of which are ACA Marketplace plans – identify as or lean Republican, including three in 10 (31%) who identify as MAGA supporters. Smaller shares identify as Democrats or Democratic-leaning independents (35%), or do not lean toward either party (20%). 

Among Medicaid enrollees, about a quarter (27%) identify as MAGA supporters or other Republicans.  

Partisans Split on Trump Administration’s Impact on Medicaid and Medicare 

About six in 10 adults say the Trump administration’s policies will weaken Medicaid (59%) and Medicare (57%), more than twice the share who say the policies will strengthen each program (19% and 23%, respectively). Half of adults (49%) say the Trump administration’s policies will weaken health care services for veterans, a larger share than say the policies will strengthen care for veterans (32%). 

Unsurprisingly, there are dramatic differences in how partisans view the Trump administration’s impact in each of these areas.  

For example, much larger shares of Democrats (91%) and independents (70%) than Republicans (22%) expect the administration’s policies to weaken Medicaid. In contrast, more Republicans (42%) than Democrats (3%) or independents (7%) say that the administration’s policies would strengthen Medicaid. Among Republicans who get their insurance from Medicaid, roughly as many expect Trump’s policies to weaken the program (34%) as expect them to strengthen it (35%). 

Designed and analyzed by public opinion researchers at KFF, this survey was conducted May 5-26, 2025, online and by telephone among a nationally representative sample of 2,539 U.S. adults in English and Spanish. The margin of sampling error is plus or minus 3 percentage points for the full sample. For results based on other subgroups, the margin of sampling error may be larger. 

Domestic HIV Funding in the White House FY2026 Budget Request

Author: Lindsey Dawson
Published: Jun 5, 2025

President Trump released the FY 2026 budget request, the first of his second term, on May 30, 2025, following a preliminary release with topline information earlier this month. A budget request lays out presidential administration priorities both in terms of the policy issues identified and the level of funding requested (or proposed for elimination). Congress then considers the request but ultimately has “the power of the purse” and is responsible for appropriating funding for discretionary programs. Congress may also pass temporary “continuing resolutions” rather than a full budget. Those appropriations can differ from levels proposed by the administration. At the same time, since taking office in January, the Trump administration has taken several executive actions to terminate or limit already appropriated funding – – including delaying and cancelling HIV-related grants – leading to litigation and creating some uncertainty regarding future spending even if funds continue to be appropriated. In addition, the administration has plans to use the recission process, whereby the president asks Congress to rescind appropriated funds, which, if approved by Congress, would reduce funding.

The FY 2026 request marks a significant change in approach for domestic HIV programs and funding levels. It eliminates or transforms several core programs, while maintaining others. Additionally, past proposals to bolster PrEP uptake were not included in this request. Notably, an OMB document leaked earlier this year indicated that the administration was considering eliminating the “Ending the HIV Epidemic” (EHE) initiative, an effort created by the first Trump administration, but the final budget request retains funding for EHE (at least for accounts where funding levels are available). While detailed funding information is not available for all accounts, where levels are known for both years, the FY 2026 budget request for domestic HIV programs represents a $1.5 billion (35%) decline compared to FY 2025 levels.

If these cuts are enacted, it could make addressing HIV more challenging at a time when Congress debates other changes to the health policy landscape, changes that could also have an impact on how people with, and at increased risk for, HIV receive access to care and prevention services.

A summary of the request for domestic HIV programs is below.

Overview

The request includes discretionary funding for key programs aimed at addressing the domestic HIV epidemic, including for the Health Resources and Services Administration’s (HRSA) Ryan White HIV/AIDS and Health Center Programs, programs that the budget moves to the new Administration for Healthy America (AHA). The request states that AHA “will prioritize prevention” and includes HIV/AIDS, among other named areas, as a focus. Funding previously provided to other departments/agencies for HIV activities is moved to AHA. This includes funding previously at the Office of Infectious Disease and HIV/AIDS Policy (OIDP) for HIV and other infectious disease related activities, as well as all EHE funding previously allocated to CDC. At the same time, the request eliminates a range of historical HIV programs including funding for domestic HIV prevention at the Center for Disease Control and Prevention’s (CDC), the Housing Opportunities for People with AIDS (HOPWA) program, Part F of the Ryan White HIV/AIDS Program, and at least some parts of the Minority AIDS Initiative (MAI). Additionally, large cuts are proposed for the National Institute of Allergy and Infectious Diseases (NIAID) at the National Institutes of Health, which has been the largest source of HIV research funding in the world.

Specific, known funding levels are as follows:

Centers for Disease Control and Prevention (CDC)- Domestic HIV Prevention

Funding for core HIV prevention programs at the CDC is eliminated in the budget request and funding previously provided to the CDC for EHE activities ($220 million) is moved to AHA. Historically, CDC has accounted for almost all (91%) federal funding for domestic HIV prevention. This cut would represent a $794 million decrease (78%) over FY25 level ($1 billion, including the EHE) in HIV funding, but a total elimination of funding for the division.

While CDC’s HIV prevention funds are eliminated in the proposal, some funding for infectious diseases has been retained and combined into one account. Previously, CDC funding for viral hepatitis, sexually transmitted infections, and tuberculosis prevention had separate funding lines. The request proposes to group those accounts into a single $300 million line. The $300 million funding level is $77 million below the sum of these individual accounts in FY 2025. These accounts were not traditionally part of the HIV prevention budget and it is unclear whether HIV activities would be allowable activities in the reorganized account.

Ryan White HIV/AIDS Program

The Ryan White HIV/AIDS Program, the nation’s safety net for HIV care and treatment (formerly housed at HRSA, now at AHA), receives $2.5 billion in the FY 2026 request, a $74 million (3%) decrease over the FY 2025 enacted level. The request includes $165 million for EHE activities within Ryan White, the same as in FY 2025. The overall program decrease of $74 million is attributed to the elimination of funding for Part F of the program which has included the following components:

  • AIDS Education and Training Centers (AETCs) which provide education and training for health care providers who treat people with HIV.
  • Dental Programs: The “Dental Reimbursement Program” reimburses dental schools and providers for oral health services. The “Community-Based Dental Partnership Program” supports dental provider education and expands access to oral care for people with HIV.
  • Minority AIDS Initiative (MAI): Created in 1998 to address the impact of HIV on racial and ethnic minorities, MAI provides funding to strengthen organizational capacity and expand HIV services in minority communities.

Community Health Center HIV Funding

The FY 2026 budget request includes $157 million in HIV funding for the Health Center Program (formerly housed at HRSA, now at AHA), all of which is for the EHE initiative, and is the same amount as the FY 2025 level.

Administration for Healthy America (AHA) – EHE Coordination

The budget provides funding to support coordination and leadership of “EHE and other HIV/AIDS related activities, formerly carried out by OASH’s Office of Infectious Disease and HIV/AIDS Policy” (OIDP). It appears this is accompanied by $8 million in funding and may inlcude funding to support work related to other infectious diseases. Previously, these funds resided at OIDP for HIV and other activities.

Housing Opportunities for Persons with AIDS (HOPWA)

The Department of Housing and Urban Development’s HOPWA Program is eliminated in the budget. In FY 2025, HOPWA was funded at $505 million. HOPWA, which was established in 1992, has provided housing assistance and supportive services to low-income people with HIV facing housing insecurity and is the only federal program centered on the housing needs of people with HIV. Its funding supports grants to localities, states, and community-based organizations.

National Institutes of Health – Domestic HIV Research.

Historically, the National Institutes of Health (NIH) has carried out almost all federally funded HIV research activities. However, the budget proposes significant cuts to NIH overall, including to the National Institute of Allergy and Infectious Disease (NIAID) which would be cut by $2.4 billion (36%), from approximately $6.6. billion to $4.2 billion. While the amount of funding for domestic HIV research at NIH is not yet known, in FY 2025, it was $2.7 billion (amount provided to KFF via data request). The Office of AIDS Research, which sits in the Office of the NIH Director is mentioned in the budget’s technical appendix, although a specific funding amount is not provided. suggesting some level of funding may be retained. Notably though, the administration has reportedly decided not to renew core NIH funded HIV vaccine research.

Indian Health Service (IHS)

In the IHS budget justification, EHE is mentioned but no funding level is provided, nor is it described as eliminated. In FY 2025, IHS received $5 million for EHE activities to support ending HIV and hepatitis C in Indian Country.

The Minority AIDS Initiative (MAI)

As noted above, the MAI was created in 1998 to address the disparate impact of HIV on racial and ethnic minority communities and to build resources and organizational capacity within these communities. The status of the Minority AIDS Initiative is unclear. Funding that has been provided for MAI activities at the Substance Abuse and Mental Health Services Administration (SAMHSA), aimed at “improving the health of people of color who have or are at risk for HIV” is eliminated in the proposal. In FY 2025 SAMHSA received $119 million for the MAI. Another $60 in MAI funding is eliminated from the Secretary’s Minority HIV/AIDS. In addition, as noted, MAI Ryan White funding in Part F is also eliminated in the proposal.

The tables below compare federal funding levels for domestic HIV, where specified, in the FY 2026 request to the FY 2025 continuing resolution (CR) levels. EHE funding is included in the overall table (Table 1) and in a dedicated table (Table 2).

Key Discretionary Accounts in the Domestic HIV Budget Request, FY 2026 Budget Request and FY 2025 Continuing Resolution (in Millions)
EHE funding in the FY26 Domestic HIV Budget Request and FY 2025 Continuing Resolution (in Millions)

Sources:

HHS FY26 Budget in Brief: https://www.hhs.gov/sites/default/files/fy-2026-budget-in-brief.pdf

HHS FY26 Budget Technical Appendix: https://www.govinfo.gov/content/pkg/BUDGET-2026-APP/pdf/BUDGET-2026-APP.pdf

Indian Health Services Congressional Budget Justification: https://www.ihs.gov/sites/ofa/themes/responsive2017/display_objects/documents/FY_2026_IHS_Congressional_Justification_Plan.pdf

Centers for Disease Control and Prevention Congression Budget Justification: https://www.cdc.gov/budget/documents/fy2026/fy-2026-cdc-cj.pdf

Department of Housing and Urban Development Congressional Budget Justification https://www.hud.gov/stat/cfo/cj-fy26

Consolidated Appropriations Act, 2024 (basis for FY25 continuing resolution): https://www.govinfo.gov/content/pkg/CPRT-118HPRT55008/pdf/CPRT-118HPRT55008.pdf