Poll Finding

Views Of COVID-19 Vaccines Among LGBT Adults

Published: Aug 27, 2021

Findings

There has been limited data on how the coronavirus pandemic has impacted the lives of lesbian, gay, bisexual, and transgender individuals (LGBT) in the U.S. Drawing on our previous analyses indicating that LGBT individuals are at greater risk of both COVID-19 health and economic outcomes, this analysis examines their views of the vaccine and their role in uptake.  

Key Findings

  • This new analysis examines the experiences of LGBT adults from the July COVID-19 Vaccine Monitor and finds that as a group they are more likely to be vaccinated for COVID-19 and less likely to view getting the vaccine as a health risk compared to non-LGBT adults. Previous analyses have found that the LGBT population bears a disproportionate burden from the pandemic, including economic hardships and mental health problems. In addition, research has found that LGBT individuals have higher rates of comorbidities and experience stigma and discrimination in the health system.
  • A larger share of LGBT adults than non-LGBT adults say they have received at least one dose of a COVID-19 vaccine (82% vs 66%) and 8 in 10 report being fully vaccinated (80% with one of their one-dose vaccine or two of their two-dose). This may reflect the fact that larger shares of LGBT adults identify as Democrats, a group that has been disproportionately likely to get the vaccine. However, the high level of vaccination among LGBT adults is notable given that they are a younger population. Nearly half (45%) of LGBT adults are under age 30, an age group that has lagged in vaccination rates compared to older populations.
  • LGBT adults are more supportive of vaccine mandates than non-LGBT adults. Almost two-thirds of LGBT people (65%) support the federal government recommending that employers require their employees to get the COVID-19 vaccine unless they have a medical exception. Fewer non-LGBT adults agree with government recommended mandates, with the group split between supporting them (50%) and not (47%). Again, this likely reflects the differences in partisan identification between the two populations.
  • A larger share of LGBT people than non-LGBT people believe the seriousness of the pandemic has been generally underestimated by the media, which may be a reflection of the disproportionate mental health and economic struggles they have faced. This may also be a factor in their relative enthusiasm and high uptake of the COVID-19 vaccine. Compared to other historically marginalized groups that have tended to have lower vaccine uptake, this high level of vaccination could be an important factor to mitigate further disparities in the pandemic’s impact on the LGBT population.

COVID-19 Vaccination Intentions And Uptake

As of July 2021, eight in ten LGBT adults report being vaccinated for COVID-19, according to the latest KFF COVID Vaccine Monitor. A larger share of LGBT adults report receiving at least one dose of a COVID-19 vaccine than non-LGBT adults (82% vs. 66%). Eight in ten report being fully vaccinated (80% with one of their one-dose vaccine or two of their two-dose). Eighteen percent (18%) of LGBT adults remain unvaccinated, a smaller share than for non-LGBT adults, 32% of whom remain unvaccinated.

Among LGBT adults, a small share (2%) say they want to get vaccinated “as soon as possible,” while 4% want to “wait and see” before getting vaccinated, and 12% say they will “definitely not” get the vaccine (similar to the 14% of non-LGBT adults who express this view).

Eight In Ten LGBT Adults Already Vaccinated, Significantly More Than Non-LGBT

In KFF’s analysis of April and May polling data, 56% of LGBT adults reported being vaccinated, 5% wanted to get one “as soon as possible,” and another 20% wanted to “wait and see,” mostly matching the reported intentions among the general public, 59% of whom were already vaccinated, 6% wanted it right away, and 14% were “wait and see.” Around 1 in 10 LGBT people reported they definitely would not get vaccinated (11%) or would only get it if required (7%), also similar to intentions among the general population.

Now however, a larger share of LGBT adults report being vaccinated, surpassing rates among the non-LGBT population.

A previous KFF analysis examined the demographic groups among the unvaccinated population finding adults who are still unvaccinated tend to be older, more Republican-leaning, less educated, and lower income, with each of those groups making up a larger part of unvaccinated than the vaccinated group. Party identification, in particular, tends to be a strong predictor of vaccination intentions.

Higher rates of vaccination among LGBT adults compared to their non-LGBT peers may be associated with strong Democratic party identification, rather than or in addition to, sexual orientation or gender identity. Two-thirds of LGBT adults identify as Democrats or lean that way compared to 43% of non-LGBT adults. By contrast, more than a third (36%) of non-LGBT adults identify or lean Republican compared to 14% of LGBT adults. Additionally, LGBT adults tend to be younger and lower income, two groups that tend to have low vaccination rates. Almost half (45%) of adults who identify as LGBT are under age 30 compared to 19% of non-LGBT adults, and half (51%) of LGBT adults compared to a third (34%) of non-LGBT people report having household incomes under $40,000. High self-reported vaccination rates among LGBT people could be driven by their Democratic partisanship, but also is in spite of their relatively young age and lower incomes.

Views of covid-19 and the vaccine

In addition to higher vaccination uptake, LGBT individuals have different views of how the media has portrayed the severity of the pandemic, as well as the relative risk of the vaccines versus the virus.

Three in 10 (31%) LGBT adults say what is said in the news “generally underestimates” the seriousness of the pandemic compared to one in five (18%) non-LGBT adults. Another four in ten LGBT adults (40%) say the news is “generally correct” in its portrayal of the seriousness of the pandemic, which is similar to the share of non-LGBT adults who report the same (44%).

LGBT Adults Are More Likely To Think The News Underestimates The Seriousness Of The Pandemic

Consistent with views of the pandemic generally, a large majority of LGBT adults say becoming infected with coronavirus is a bigger risk to their health than getting vaccinated (82%), while 14% think getting vaccinated is a bigger risk. About 7 in 10 (69%) non-LGBT people agree that becoming infected is a bigger risk, though this share is somewhat less than among the LGBT group.

Larger Shares Of LGBT Adults Think Becoming Infected With COVID-19 Is A Bigger Risk Than Getting The Vaccine

Similar to other adults, LGBT people generally have high levels of confidence in the effectiveness of the COVID-19 vaccines. Two-thirds of LGBT people think the available COVID-19 vaccines are “extremely” or “very” effective at preventing vaccinated individuals from getting seriously sick or hospitalized if infected (67%) and dying from COVID (66%). Another 56% say the vaccines are effective at preventing infection if exposed to someone who is sick and 45% say the same of passing coronavirus on to others.

Majorities Of LGBT And Non-LGBT Adults View The Available COVID-19 Vaccines As Effective, Especially With Preventing Death And Hospitalization

Mandates

LGBT adults are more supportive of vaccine mandates than non-LGBT adults. Almost two-thirds (65%) of LGBT people support the federal government recommending that employers require their employees to get the COVID-19 vaccine, unless they have a medical exemption. Fewer non-LGBT adults agree with the government recommended mandates, with the group split between supporting them (50%) and not (47%). Given that views on government mandates divide sharply along partisan lines, this division of opinion between LGBT adults and non-LGBT adults likely reflects the fact that LGBT adults lean more Democratic, as noted above.

Two-Thirds LGBT Adults Support Government Recommending Employer Mandates For Vaccines, Non-LGBT Adults Split

Methodology

This KFF COVID-19 Vaccine Monitor was designed and analyzed by public opinion researchers at the Kaiser Family Foundation (KFF). The survey was conducted July 15-July 27, 2021, among a nationally representative random digit dial telephone sample of 1,517 adults ages 18 and older (including interviews from 322 Hispanic adults and 300 non-Hispanic Black adults), living in the United States, including Alaska and Hawaii (note: persons without a telephone could not be included in the random selection process). This includes 95 adults who identify as LGBT, 1,403 who are not LGBT, and 19 respondents who said they didn’t know or refused to answer. Phone numbers used for this study were randomly generated from cell phone and landline sampling frames, with an overlapping frame design, and disproportionate stratification aimed at reaching Hispanic and non-Hispanic Black respondents as well as those living in areas with high rates of COVID-19 vaccine hesitancy. Stratification was based on incidence of the race/ethnicity subgroups and vaccine hesitancy within each frame. High hesitancy was defined as living in the top 25% of counties as far as the share of the population not intending to get vaccinated based on the U.S. Census Bureau’s Household Pulse Survey.  The sample also included 28 respondents reached by calling back respondents that had previously completed an interview on the KFF Tracking poll at least nine months ago. Another 118 interviews were completed with respondents who had previously completed an interview on the SSRS Omnibus poll (and other RDD polls) and identified as Hispanic (n =50 ; including 21 in Spanish) or non-Hispanic Black (n=68). Computer-assisted telephone interviews conducted by landline (176) and cell phone (1,341, including 1,015 who had no landline telephone) were carried out in English and Spanish by SSRS of Glen Mills, PA. To efficiently obtain a sample of lower-income and non-White respondents, the sample also included an oversample of prepaid (pay-as-you-go) telephone numbers (25% of the cell phone sample consisted of prepaid numbers) Both the random digit dial landline and cell phone samples were provided by Marketing Systems Group (MSG). For the landline sample, respondents were selected by asking for the youngest adult male or female currently at home based on a random rotation. If no one of that gender was available, interviewers asked to speak with the youngest adult of the opposite gender. For the cell phone sample, interviews were conducted with the adult who answered the phone. KFF paid for all costs associated with the survey.

The combined landline and cell phone sample was weighted to balance the sample demographics to match estimates for the national population using data from the Census Bureau’s 2019 U.S. American Community Survey (ACS), on sex, age, education, race, Hispanic origin, and region, within race-groups, along with data from the 2010 Census on population density. The sample was also weighted to match current patterns of telephone use using data from the January- June 2020 National Health Interview Survey. The weight takes into account the fact that respondents with both a landline and cell phone have a higher probability of selection in the combined sample and also adjusts for the household size for the landline sample, and design modifications, namely, the oversampling of potentially undocumented respondents and of prepaid cell phone numbers, as well as the likelihood of non-response for the re-contacted sample. All statistical tests of significance account for the effect of weighting.

The margin of sampling error including the design effect for the full sample is plus or minus 3 percentage points. Numbers of respondents and margins of sampling error for key subgroups are shown in the table below. For results based on other subgroups, the margin of sampling error may be higher. Sample sizes and margins of sampling error for other subgroups are available by request. Sampling error is only one of many potential sources of error and there may be other unmeasured error in this or any other public opinion poll. Kaiser Family Foundation public opinion and survey research is a charter member of the Transparency Initiative of the American Association for Public Opinion Research.

This work was supported in part by grants from the Chan Zuckerberg Initiative DAF (an advised fund of Silicon Valley Community Foundation), the Ford Foundation, and the Molina Family Foundation. We value our funders. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

GroupN (unweighted)M.O.S.E.
Total1,517± 3 percentage points
LGBT Status
LGBT adults95± 13 percentage points
Non-LGBT adults1,403± 3 percentage points
News Release

Two New KFF Reports Take a Closer Look at the COVID-19 Pandemic and the LGBT Community, From the Impact on Mental Health to Vaccination Status

Published: Aug 27, 2021

Two new KFF reports provide new and updated data on the experiences of lesbian, gay, bisexual and transgender (LGBT) people during the COVID-19 pandemic, featuring data showing the impact on mental health and COVID-19 Vaccine Monitor data on vaccine uptake within the community. The two reports add important context to the limited but growing body of evidence on the community’s pandemic experiences.

As a result of the COVID-19 pandemic, LGBT people reported stress and worry negatively impacted their mental health, more often and more severely than non-LGBT people. As of July, six in ten LGBT people reported that the pandemic negatively impacted their mental health, with 31% saying it had a major impact, compared to 17% of non-LGBT people. One in four (25%) LGBT people report seeking mental health care during the pandemic compared to one in ten non-LGBT people. While LGBT people were more likely to seek out mental health services during the pandemic, almost two in ten faced affordability barriers. For more information, see the full report The Impact of the COVID-19 Pandemic on LGBT People’s Mental Health.

Eight in ten LGBT adults say they have received at least one dose of the COVID-19 vaccine, compared to two-thirds of non-LGBT adults (82% vs 66%), according to the latest Vaccine Monitor. LGBT adults are also more likely to support vaccine mandates compared to non-LGBT adults (65% vs 50%) and believe the seriousness of the virus is underestimated (31% vs 18%) by the media. This may reflect the fact that larger shares of LGBT adults identify as Democrats, a group that has shown to be more receptive to the COVID-19 vaccine and mandates. For more information, see the full report Views of COVID-19 Vaccine Among LGBT Adults.

Designed and analyzed by public opinion researchers at KFF, the KFF Vaccine Monitor survey was conducted from July 15-27 among a nationally representative random digit dial telephone sample of 1,517 adults, including oversamples of adults who are Black (300) or Hispanic (322). This includes 95 adults who identify as LGBT, 1,403 who are not LGBT, and 19 respondents who said they didn’t know or refused to answer.  Interviews were conducted in English and Spanish by landline (176) and cell phone (1,341). The margin of sampling error is plus or minus 3 percentage points for the full sample, plus or minus 13 percentage points for LGBT adults and plus or minus 3 percentage points for the non-LGBT adults. For results based on subgroups, the margin of sampling error may be higher.

The KFF COVID-19 Vaccine Monitor is an ongoing research project tracking the public’s attitudes and experiences with COVID-19 vaccinations. Using a combination of surveys and qualitative research, this project tracks the dynamic nature of public opinion as vaccine development and distribution unfold, including vaccine confidence and acceptance, information needs, trusted messengers and messages, as well as the public’s experiences with vaccination.

The Impact of the COVID-19 Pandemic on LGBT+ People’s Mental Health

Authors: Lindsey Dawson, Matthew McGough, Ashley Kirzinger, Grace Sparks, Matthew Rae, Greg Young, and Jennifer Kates
Published: Aug 27, 2021

Findings

Key Findings

Historically, the LGBT+1  community has faced mental health and substance use problems at higher rates than their non-LGBT+ peers. The COVID-19 pandemic, which has disrupted the lives of people across the globe, has negatively impacted LGBT+ people’s mental health in disproportionate ways. In this data note, we pull together data from nationally representative surveys, adding to a small but growing evidence base on the impact of the pandemic on LGBT+ people.

  • LGBT people reported the COVID-19 pandemic negatively impacted their mental health both more widely and more severely than their non-LGBT peers. They report that their sleep, appetite, and temper were negatively impacted at higher rates than non-LGBT people. They also report that they were more likely to seek out mental health care during the pandemic than non-LGBT people, including via telemedicine.
  • A range of factors may contribute to these mental health disparities among LGBT+ people during the COVID pandemic, including different work, life, and health care experiences. LGBT+ people more commonly report quitting a job because of COVID-19, taking time off work because of becoming ill with COVID-19 or quarantining, or taking time off work to care for a family member who was sick with COVID-19 or quarantining than non-LGBT+ people. Given that LGBT+ have lower-incomes than their non-LGBT+ peers, disruptions in employment could be especially challenging for families and harmful to mental health.
  • Another factor that may drive these disparities is LGBT+ people’s higher rates of mental health and substance use problems pre-pandemic, including those related to more common experiences of stigma and discrimination compared to their non-LGBT+ peers. These underlying experiences could have made LGBT+ people more vulnerable to stress during the pandemic.
  • Despite LGBT+ people reporting accessing mental health care at higher rates than non-LGBT+ people, many still face barriers, particularly financial ones, to getting the care that they need. LGBT+ people are more likely to report they could not afford mental health care and say they face challenges with medical bills than their non-LGBT peers. Other reported roadblocks include problems getting appointments and negative provider experiences.

Taken together, these findings may help to identify and inform opportunities to address and mitigate mental health disparities among LGBT+ people. These could include adopting culturally appropriate policy solutions and approaches to engaging the community, as well as efforts to address wider, systemic factors that drive stigma and discrimination.

Introduction

Historically, the LGBT+ community has faced mental health and substance use problems at higher rates than their non-LGBT+ peers and experiences during the COVID-19 pandemic have been no exception. The pandemic has negatively impacted LGBT+ people’s mental health in disproportionate ways. Pulling together data from three nationally representative surveys in this area, we explore a range of factors related to LGBT+ people’s mental health during the pandemic including assessment of mental health, access to and affordability of mental health services, and underlying experiences of stigma, discrimination, and negative encounters with health care providers.

Data in this analysis comes from: KFF’s monthly COVID Vaccine Monitor, KFF’s Women’s Health Survey, and new KFF analysis of publicly available Survey of Household and Economics and Decisionmaking (SHED) data from the Federal Reserve.

The Impact of COVID-19 on LGBT People’s Mental Health and Care Seeking

LGBT individuals report that worry and stress related to the COVID-19 pandemic negatively impacted their mental health more often and more severely than non-LGBT people. These negative mental health impacts were especially pronounced for all people before vaccines were widely available. The KFF COVID-19 Vaccine Monitor found that in the December 2020/January 2021 period, three-quarters of LGBT people (74%) reported that worry and stress from the pandemic negatively impacted their mental health compared to half (49%) of non-LGBT people. This includes about half of LGBT people (49%) who said the coronavirus was having a “major impact” on their mental health, twice the share of non-LGBT individuals who reported the same (23%) (Figure 1).

While the share reporting negative mental health impact of the pandemic fell for both groups in July 2021, a time of widely available vaccination and partial reopening, LGBT people continue to report the pandemic has negatively impacted their mental health both more widely and more severely than non-LGBT people. In July, six in ten LGBT people reported that the pandemic negatively impacted their mental health, about half (31%) of whom say that the impact has been major. By comparison, 37% of non-LGBT people reported a negative mental health impact in this period, 17% of whom say that the impact was major (Figure 1).

LGBT People Report Worry and Stress Related to the Pandemic Has Negatively Impacted Their Mental Health at Higher Rates Than Non-LGBT People, a Disparity That Has Persisted for Months

Specifically, compared to non-LGBT people, larger shares of LGBT people say worry or stress related to the coronavirus caused them to experience difficulty with sleep (39% v. 21%), problems with their appetite (41% v. 18%), and difficulty controlling their temper (23% v. 10%) in the past two months. They report similar rates of headaches or stomachaches, worsening chronic conditions (e.g. blood pressure or diabetes), and increased alcohol or drug use. LGBT people are more likely to report that they have experienced at least one of these impacts than non-LGBT people (55% v 34%) (Figure 2).

LGBT People More Commonly Report Recent Pandemic Related Worry or Stress Has Negatively Impacted Their Sleep, Appetite, and Temper Than Non-LGBT People

A range of factors may contribute to these mental health disparities among LGBT+ people, including their different circumstances during the pandemic. For example, the 2020 KFF Women’s Health Survey found larger shares of LGBT+ people reported having to quit a job for a reason related to COVID-19 compared to non-LGBT+ individuals (15% v. 7%). Additionally, 19% of LGBT+ people report taking time off work because of personally becoming ill with COVID-19 or quarantining, compared to 11% of non-LGBT+ individuals. One in ten (10%) LGBT+ people report taking time off work to care for a family member who was sick with COVID-19 or is quarantining (v. 5% of non-LGBT people) (Figure 3). While these factors could be stressful for any individual, given that LGBT+ people tend to be lower income than their non-LGBT+ peers, disruptions in employment could be especially challenging for families and harmful to mental health.

Quitting a Job or Taking Time Off Work in Response to COVID-19 Was a More Common Experience for LGBT+ People Than Non-LGBT+ People

In addition, LGBT+ people faced higher rates of mental health and substance use problems pre-pandemic, which may be related to common experiences with stigma and discrimination. KFF analysis of 2020 Survey of Household and Economics and Decisionmaking (SHED) data reveal that 19% of LGBT+ people report experiencing discrimination or unfair treatment in the past 12 months versus 9% of non-LGBT+ people (Figure 4). These experiences with unfair treatment and discrimination were similar prior to and during the pandemic but the underlying stress associated with them could have made LGBT+ people more vulnerable to pressures related to the pandemic.

LGBT+ People Report Higher Rates of Recent Discrimination and Violence Than Their Non-LGBT+ Peers

LGBT+ people also report seeking mental health care during the pandemic more than non-LGBT+ people. One in four (25%) LGBT+ people report seeking mental health care because of the pandemic, compared to 1 in 10 (12%) non-LGBT+ people, potentially reflecting their higher reported needs in these domains (Figure 5).

1 in 4 LGBT+ People Sought Mental Health Care During the Pandemic

Additionally, LGBT+ people reported using telehealth more widely since the pandemic began than non-LGBT+ people (49% v. 34%) and among LGBT+ people who reported COVID era telehealth use, 25% say it was for mental health services, a higher share than non-LGBT+ telehealth users (14%) (Figure 6).

Of Those Who Used Telehealth During the Pandemic, LGBT+ People Were More Likely to Do So For Mental Health Services Than Non-LGBT+ People

Barriers to Mental Health Care

Even as LGBT people have a greater need for mental health care during the pandemic, and report seeking such care at higher rates, all those who require mental health services may not be receiving them. SHED data reveal that in 2020, one-in-five (19%) LGBT+ people say they could not afford mental health care or counseling during the past 12 months compared to a smaller share of non-LGBT people (5%) (Figure 7). LGBT+ people’s lower income levels and higher rates of pandemic related employment disruptions compared to non-LGBT+ peers could make accessing and affording mental health care especially difficult for this group.

LGBT+ People Face Affordability Barriers to Mental Health Care or Counseling at Higher Rates Than Non-LGBT+ people

Indeed, 30% of LGBT individuals report trouble paying medical bills in the past year, compared to 19% of non-LGBT individuals (Figure 8). Of LGBT people who had trouble paying medical bills over half (58%) attributed that trouble, at least in part, to the COVID-19 pandemic.

LGBT+ People Were More Likely to Have Difficulty Paying Medical Bills During the Pandemic Than Non-LGBT+ People

In addition to financial challenges, difficulty in obtaining appointments during the pandemic may also present a barrier. Nearly one-third (29%) of LGBT+ people said they were unable to get a health care appointment during the pandemic (not limited to mental health services), similar to the share among non-LGBT+ people (25%).

Negative provider experiences may also deter LGBT+ people from getting the care they need. Compared to non-LGBT people, LGBT+ people are more likely to report a provider has not believed they were telling the truth (16% v. 8%), suggested they were to blame for a health problem (13% v. 8%), assumed something without asking (21% v. 11%), and dismissing their concerns (29% v. 16%). Altogether, over one-third (36%) of LGBT+ people reported at least one of these negative experiences with a provider, compared to fewer than one in five (22%) non-LGBT+ people. (Figure 9)

Larger Shares of LGBT+ People Report Negative Provider Experiences Than Non-LGBT+ People

Implications

Larger shares of LGBT+ people experienced negative mental health effects from the COVID-19 pandemic than non-LGBT people. While LGBT+ people were more likely to report seeking mental health care during the pandemic, not all those who need services are obtaining them. Many report barriers to receiving care, particularly related to affordability. However, difficulty getting appointments during the pandemic may also play a role, as might negative past provider experiences. Experiences of stigma and discrimination were widespread among LGBT+ people prior to the pandemic and these underlying disparities could make weathering pandemic related stress more challenging. These findings are important both given the mental health disparities LGBT+ populations have traditionally faced and as the pandemic created new stressors disproportionately impacting the community. As such, targeted and culturally appropriate policy solutions and approaches to engaging the LGBT+ community would be beneficial. Additionally, addressing the wider, systemic factors that drive stigma and discrimination may help to mitigate these disparities.

This work was supported in part by the Elton John AIDS Foundation. We value our funders. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

Methodology

COVID-19 Vaccine Monitor DataMethodology and toplines can be found here for Dec. 2020/Jan. 2021 data and here for July. In addition to the detail provided in the link, the July COVID-19 Vaccine Monitor is a nationally representative random digit dial telephone sample of 1,557 adults, including 95 adults who identified as lesbian, gay, bisexual, or transgender. The margin of sampling error is plus or minus 13 percentage points for the full LGBT sample and 3 percentage points for the non-LGBT sample.

Women’s Health Survey DataMethodology and topline can be found here.

Survey of Household Economics and Decisionmaking (SHED)The Survey of Household Economics and Decisionmaking (SHED) is an annual survey of adults conducted by the Federal Reserve Board. The survey is based on the Ipsos KnowledgePanel, a nationally representative probability-based online panel. Ipsos selected respondents for KnowledgePanel based on address-based sampling (ABS). The questions asked of the panel are intended to gather information from the individual about how they make household economic decisions. All data is the most current available.  The data presented here are from the 2020 survey with the exception of the estimates of being a victim of violence which is from the 2019 survey. SHED survey finishes data collection in October and then releases the report and public use file in May of the following year. LGBT+ adults include those who self-identify as lesbian, gay, bisexual, transgender, or something else (other than straight or cisgender).

Endnotes

  1. Where possible in this analysis we use the inclusive term LGBT+. LGBT+ includes people who identify as lesbian, gay, bisexual, transgender, or another sexual orientation or gender identity aside from heterosexual or cisgender. When LGBT is used, the more limited term describes the population a particular survey reflects. ↩︎

How Have States Used Medicaid Emergency Authorities During COVID-19 and What Can We Learn?

Authors: Rachel Dolan and Madeline Guth
Published: Aug 26, 2021

In response to the COVID-19 public health emergency, states and the federal government took a range of actions in Medicaid to enhance capacity to respond to the public health and economic crises. The COVID-19 pandemic had wide ranging effects across Medicaid, impacting providers, beneficiaries, and long-term services and supports (LTSS). States were able to use Medicaid emergency authorities to address specific challenges and make necessary changes as circumstances evolved and new challenges emerged.

Although the federal public health emergency (PHE) remains in place, as vaccine rates increased and COVID-19 cases declined earlier this year, many state-level emergency declarations expired and states started to terminate some Medicaid flexibilities beginning in late Spring and early Summer of 2021. However, the Delta variant and low vaccination rates in some areas may present additional challenges. The Biden Administration has indicated it intends to extend the public health emergency until at least the end of calendar year 2021, but a continued wave of infections, hospitalizations, and deaths could lead to further extensions and continued emergency authorities in Medicaid.

This brief summarizes how states have used Medicaid emergency authorities related to the COVID-19 PHE, providing potential lessons for future public health and economic crises.

The declarations of a national disaster and a public health emergency allow for the use of a range of Medicaid emergency authorities. These authorities include Disaster-Relief state plan amendments (SPAs), Section 1135 waivers, Section 1915(c) Appendix K waivers, and Section 1115 waivers. States can also make Medicaid program changes during a PHE using existing administrative authorities and traditional SPAs. In addition, Congress enacted major federal legislation to respond to the COVID-19 emergency, including funding to support Medicaid and increase access to Medicaid coverage. The PHE began on January 27, 2020, and the most recent declaration extended the PHE through October 18, 2021, however; the Biden administration has indicated it will continue to renew the PHE through the end of 2021 and that states will receive 60 days’ notice prior to its expiration or termination.

The unprecedented nature of the COVID-19 pandemic resulted in wide adoption by states of available Medicaid emergency authorities to expand Medicaid capacity and target services, providers, and enrollees that were impacted by the coronavirus emergency. Based on our tracking between March 2020 and July 2021, all 50 states and DC received approval to make changes through Disaster-Relief state plan amendments (SPAs), Section 1135 waivers and Section 1915(c) Appendix K waivers. Additionally, twelve states received approval for changes through a Section 1115 waiver and six states made changes through regular SPAs. States adopted many policies through these existing authorities similar to previous disasters, including to connect individuals to coverage more quickly and to address needs of affected populations.

States used Medicaid emergency authorities to make changes across a number of policy areas during the COVID-19 PHE to address the effects of the emergency. We analyzed specific state actions in more detail in a series of briefs, linked below. State actions included:

  • Facilitating access to Medicaid and/or CHIP coverage. As people lost jobs and income due to the COVID-19 emergency and associated economic downturn, a growing number became eligible for Medicaid. To make it easier for individuals to enroll, states made changes to expand eligibility and/or modify eligibility rules, eliminate or waive premiums, and streamline application and enrollment processes. Federal legislation also created a new optional Medicaid eligibility pathway available to all states, with 100% federal matching funds, for states to cover coronavirus testing and testing-related services for uninsured individuals. However, only about a third of states adopted this eligibility group and some states rescinded the policy later after adoption.
  • Expanding LTSS eligibility and benefits. The COVID-19 pandemic had a disproportionate impact on nursing homes, congregate settings, and other LTSS providers and services. In response, states expanded eligibility criteria for seniors and people with disabilities, reduced premium and/or cost-sharing requirements for these populations, and provided new LTSS benefits to meet enrollee needs during the emergency.
  • Supporting providers across service type and authority, most commonly by increasing payment rates and making retainer payments.The coronavirus pandemic resulted in financial strain for Medicaid providers. Forty-one states increased provider payment rates for state plan services through Disaster-Relief SPA or other administrative authority, 40 states did so for home and community-based services (HCBS) waiver services specifically using Appendix K, and two states received approval for Section 1115 waivers that increased payment rates for HCBS.
  • Increasing beneficiary access to medications. Medicaid beneficiaries with chronic conditions faced barriers to obtaining needed medications during social distancing and stay-at-home orders. To allow beneficiaries to have more of their medication on hand and reduce the barriers to receiving medication, states relaxed restrictions on quantity limits, allowed early refills, suspended prior authorization requirements and increased the availability of mail delivery.
  • Increasing access to telehealth. To increase health care accessibility and limit risk of viral exposure, states took steps to expand coverage and access to services delivered via telehealth. For example, states newly allowed certain services to be delivered via telehealth and established payment parity for these services as compared to face-to-face services. States also broadened the provider types that may provide services via telehealth, including by adding new providers and waiving licensing requirements.

Use of Medicaid emergency Section 1115 authority differed from previous emergencies. Historically, states have used Section 1115 authority to expand coverage and/or provide uncompensated care to address the direct impact of natural disasters and public health emergencies (like New York City after 9/11Hurricane Katrina, and Flint Michigan) on state Medicaid and Children’s Health Insurance Program (CHIP) programs. In response to the COVID-19 PHE, however, CMS targeted the emergency Section 1115 waiver demonstration opportunity to HCBS flexibilities. While states initially submitted Section 1115 waivers with a broader approach, CMS approved few waivers and mostly limited the scope to authorities in the application template.

Medicaid emergency authorities related to the PHE expire at different times, but states can choose to continue some of these changes even after the PHE ends (Table 1). The PHE ends when the Secretary declares that the emergency no longer exists, or after 90 days from the last PHE extension, whichever happens first. As noted above, the Biden Administration has indicated the PHE will last at least through 2021.  Policy changes such as streamlining eligibility and enrollment, adding benefits and increasing provider rates that were made through Disaster-Relief SPAs can be continued after the emergency through regular SPA authority. Similarly, states may submit 1915(c) waiver amendment requests to continue some Appendix K options (such as expanded telehealth, new services, and increased ability to pay family caregivers) after the PHE. States may also submit Section 1115 requests to continue some emergency flexibilities.

Table 1: Medicaid Emergency Authorities

Lessons learned from Medicaid’s response to the COVID-19 PHE can inform continued pandemic response and recovery as well as future emergencies.  To facilitate states’ adoption of emergency authorities during the COVID-19 PHE, the federal government issued templates, guidance documents and held state calls to communicate with states. These weekly state calls helped to provide timely guidance and to answer emerging questions as the federal government and states were moving quickly to implement new legislative provisions as well as emergency authorities designed to facilitate enrollment, access to care and reimbursement for providers.  Preprint templates allowed states to quickly apply for and adopt flexibilities specifically addressed to COVID-19 challenges, especially given that states faced staffing shortages due to social distancing and illness. Once adopted, states and the federal government communicated with providers and enrollees to inform those impacted by the policy changes and to ensure that additional resources were utilized. Policy flexibilities during the COVID-19 PHE strengthened Medicaid’s ability to serve as a safety net during the pandemic and economic downturn by providing coverage to individuals who lost their jobs and supporting providers who experienced reduced income. The Biden Administration has indicated a continued focus on Medicaid as a key part of the social safety net during the COVID-19 recovery and beyond, including increasing support for HCBS services and increasing adoption of the Medicaid expansion. Going forward, understanding how the process of adopting and implementing changes during the pandemic worked and what could be improved will be important in continuing to respond to the current emergency and the Delta variant as well as future emergencies.

Looking ahead, some states had begun to unwind emergency authorities and were planning for a return to normal operations; however, they may face challenges due to rising cases as a result of the Delta variant and low vaccination rates in some areas. The Biden Administration recently updated previous guidance to states on the end of the PHE on transitioning to normal operations, allowing additional time for states to complete renewals and redeterminations once the PHE ends. States began to roll back emergency authorities and plan for normal operations beginning in late Spring and early Summer of 2021 as vaccination levels increased and cases declined. More recently, however, states are again seeing increased cases due to the Delta variant. States with areas of low vaccination rates in particular may face challenges and disruptions similar to those experienced earlier in the pandemic. If states have terminated emergency Medicaid flexibilities that increased access to coverage and care, they may have reduced ability to address the effects of the Delta variant on providers and individuals. Increased case levels due to coronavirus variants may result in the Biden Administration continuing to extend the PHE into 2022, which would also have implications for maintenance of effort requirements for states, further extending the time which they must provide continuous Medicaid coverage and keeping many emergency authorities in place longer.

News Release

New Campaign from THE CONVERSATION / LA CONVERSACIÓN about Kids and the COVID Vaccines

Pediatricians Featured in Latest Installment of KFF’s Public Information Response to COVID-19, Presented with the American Academy of Pediatrics

Published: Aug 25, 2021

August 25, 2021 – THE CONVERSATION / LA CONVERSACIÓN expands to address questions about the COVID-19 vaccines and children with new FAQ videos featuring pediatricians. This installment of the campaign is produced by KFF (Kaiser Family Foundation) under its Greater Than COVID public information response and is presented with the American Academy of Pediatrics (AAP).

Vaccine safety, efficacy and potential side effects, as well as the need for vaccinations among children, are among issues highlighted in the new FAQ video series, which addresses both the currently available COVID vaccine for 12 and older as well as status of vaccines for younger children. Comedian and parent, W. Kamau Bell appears in an anchor video in conversation with pediatricians about some of the most common questions asked by parents and caregivers in KFF research.

Children 12 and older are currently eligible to get the COVID vaccine. Clinical trials with children under 12 are underway with authorization expected to come later this fall. With the Delta variant resulting in increasing COVID cases among children, along with adults, and rising hospitalizations among those unvaccinated, there is growing urgency to get children vaccinated when eligible.

“As a pediatrician, I am very concerned about the rapid increase in children who are being infected and hospitalized with COVID due to the Delta variant,” said AAP President, Lee Savio Beers, MD, FAAP. “Vaccination is the best way to protect children 12 and older. And for those children who are not yet eligible to be vaccinated, families can protect them by getting vaccinated themselves. This is part of a layered approach that includes hand washing, physical distancing and wearing masks as kids return to school.”

According to a data analysis by the AAP, as of August 19, nearly 4.6 million children have tested positive for COVID-19 since the onset of the pandemic. Over 180,000 cases were added from the week prior, a continuing substantial increase. After declining in early summer, child cases have steadily increased since the beginning of July.

“The surge in COVID cases as children return to school has many parents anxious about how best to protect their families. Parents trust pediatricians more than everyone else when it comes to information on vaccinating their kids. This campaign provides resources that build on that trust,” said KFF President and CEO Drew Altman.

According to recent findings from the KFF COVID Vaccine Monitor, pediatricians are the top trusted source of information on COVID-19 for parents. Among parents of teens who discussed the vaccine with their pediatrician, most say the doctor recommended their child get vaccinated, and three-quarters of those whose pediatrician recommended vaccination say their child has received at least one shot.

“Children across the country are returning to in-person learning at a time when the dominant strain of COVID is more contagious than ever. So many parents and caregivers are rightfully concerned about how to protect their kids,” said Rhea Boyd, MD, MPH, pediatrician and public health advocate, who co-developed THE CONVERSATION / LA CONVERSACIÓN with KFF and appears in the current messaging about kids and the COVID vaccines. “In this video series, parents and caregivers can hear directly from us, pediatricians who know the science and can share the information they need to feel comfortable getting their kids vaccinated when eligible.”

“I’ve been working with pediatric vaccines my whole career, including in pediatric COVID-19 vaccine trials here at Stanford Medicine. There is no doubt in my mind that we absolutely need vaccines for children. We know that vaccines are the most effective public health intervention to keep all populations safe and healthy,” says Yvonne “Bonnie” Maldonado, MD, Stanford Medicine Epidemiologist and Pediatric Infectious Disease Specialist, who appears in the campaign.

THE CONVERSATION / LA CONVERSACIÓN offers an expansive, living video library featuring doctors, nurses, researchers and community health workers dispelling myths and providing credible facts about the COVID-19 vaccines. The campaign debuted in March with an initial series focused on Black communities presented with the Black Coalition Against COVID. Additional content was added in May for Latinx and Spanish-speaking communities with UnidosUS. To date, the videos have been viewed more than 82.7 million times on digital and social media.

All content is available rights-free and designed to be shared on social media and can be easily embedded on websites. A community toolkit provides additional graphics and promotions to extend reach of the messaging.

The California Health Care Foundation, California Community Foundation, California Endowment, Commonwealth Fund, Sierra Health Foundation and Walgreens have provided funding in support of THE CONVERSATION / LA CONVERSACIÓN campaign. YouTube, Google, Facebook, Twitter and Pinterest are promoting the messaging on their platforms as part of efforts to amplify trusted voices on COVID-19.

For more information about THE CONVERSATION / LA CONVERSACIÓN go to:

www.BetweenUsAboutUs.org l www.EntreNosotrosSobreNosotros.org

www.youtube.com/GreaterThanCOVID

The American Academy of Pediatrics is an organization of 67,000 primary care pediatricians, pediatric medical subspecialists and pediatric surgical specialists dedicated to the optimal health and well-being for all infants, children, adolescents and young adults. For more information, visit www.aap.org.

KFF (Kaiser Family Foundation) is a national nonprofit leader in health policy analysis and polling, journalism and social impact media. No affiliation with Kaiser Permanente. Visit the COVID-19 Vaccine Monitor Dashboard, Racial Equity and Health topic page and KHN.

Greater Than COVID is a public information initiative from KFF to help individuals take charge of their health during the evolving COVID-19 public health crisis. Tailored media messages and community tools address information needs about the vaccines.

News Release

KFF’s Kaiser Health News and Science Friday Examine Rising Suicide Rates among People of Color in Initial Collaboration

Published: Aug 20, 2021

Continuing its expansion into audio storytelling, KFF’s Kaiser Health News examines the rising suicide rates among Black, Hispanic and other communities of color in its first collaboration with Science Friday, the award-winning producer of high-quality, trustworthy science news and educational programming.

The storytelling highlights tragic cases like that of 19-year-old Jamal Clay, who killed himself in his family’s garage in May 2020. Rafiah Maxie, Clay’s mom and herself a social worker, recounts her difficulties in getting her son the mental-health care he needed and her efforts since his death to help others affected by violence, suicide and trauma in her community outside Chicago.

Reported by KHN correspondent Aneri Pattani, the package includes Pattani’s digital story, and a radio segment airing today with longtime SciFri guest host John Dankosky and voices of families and experts. In their conversation, Dankosky and Pattani discuss socioeconomic factors linked to suicide risk and the community-level fixes that might reverse its rise among people of color in the U.S.

KHN’s initial collaboration with Science Friday builds on a strong tradition of audio journalism — including KHN’s longtime partnership with NPR and dozens of its member stations to report on health and health policy issues from across the country, and the crowdsourced investigative series with NPR and CBS, “Bill of the Month.”

KHN’s family of podcasts includes What the Health?, An Arm and a Leg and Where It Hurts, a co-production with St. Louis Public Radio. In other recent audio collaborations, KHN has partnered with This American Life and Reveal from the Center for Investigative Reporting.

Read the story and listen to radio segment.

About KFF and KHN

KHN (Kaiser Health News) is a national newsroom that produces in-depth journalism about health issues. Together with Policy Analysis and Polling, KHN is one of the three major operating programs at KFF (Kaiser Family Foundation). KFF is an endowed nonprofit organization providing information on health issues to the nation.

About Science Friday

The Science Friday Initiative, a nonprofit, is dedicated to increasing the public’s access to science and scientific information. WNYC Studios distributes the radio show, which airs on over 400 public radio stations across the U.S. The initiative produces a sweeping array of educational and entertaining science experiences including videos, podcasts and live events that serve hundreds of thousands of lifelong learners every year.

Poll Finding

KFF COVID-19 Vaccine Monitor: The Impact Of The Coronavirus Pandemic On The Wellbeing Of Parents And Children

Published: Aug 19, 2021

Findings

Key Findings

  • As students head back to school amid uncertainty caused by the coronavirus pandemic, the latest report from the KFF COVID-19 Vaccine Monitor finds parents reporting notable adverse impacts of the pandemic on children’s academic and social development. About four in ten parents of children ages 5 and over say at least one of their children fell behind academically (39%), rising to half of Hispanic parents (50%) and those with lower household incomes (51%). More than a third (36%) of parents say their child fell behind in their social and emotional development and about three in ten (29%) say their child experienced mental health or behavioral problems due to the pandemic. Notably, parents whose children attended school all or mostly online, or who had a mix of online and in-person schooling were more likely than parents whose child attended school all or mostly in-person to say they had a child who had these adverse effects even after controlling for other demographic factors and type of school.
  • When asked about more specific problems that may indicate mental health concerns among children, about four in ten parents (42%) report that at their children experienced at least one new mental health symptoms in the past 12 months that they had not been experiencing them before the pandemic including difficulty concentrating on schoolwork (27%), problems with nervousness or being easily scared or worried (19%,) trouble sleeping (18%), poor appetite or overeating (15%), and frequent headaches or stomachaches (11%). Mothers – who tend to take on greater responsibilities for childcare and are often the primary health care decision makers in a family– are more likely than fathers to say one of their children experienced most of the symptoms since the pandemic began.
  • The KFF COVID-19 Vaccine Monitor finds that nearly four in ten parents say they or another adult in their household left a job or changed work schedules to care for their children in the past year. Notably, more than half of Black parents (53%) and parents with lower household incomes (51%) say they or another adult in their family left a job or changed schedules in order to care for their children. One in five parents overall say the person in their household who left a job or changed their work schedule is still not working or continues to work reduced hours, rising to one-third of Black parents and nearly four in ten lower-income parents.
  • Household employment disruptions may also be related to children’s wellbeing. Parents in a household with an employment disruption are more likely than those who didn’t experience a disruption to say their fell behind academically (51% vs. 32%), fell behind in their social or emotional development (49% vs. 28%), or experienced mental health or behavioral problems (41% vs. 21%). Parents in a household with an employment disruption are also more likely than those who did not experience a disruption to say their child has developed a new mental health symptom since the pandemic began (56% vs. 33%).
  • Along with negative impact on children’s mental health, the pandemic appears to have taken a mental health toll on parents. A majority (54%) of parents say the pandemic has had a negative impact on their mental health, compared to 39% of adults overall who say the same. Mothers, Black and Hispanic parents, those with lower incomes, and parents whose household experienced a work disruption due to increased childcare needs have been particularly affected with at least six in ten in each of these groups saying it the pandemic had a negative impact on their mental health.

Effects of the pandemic on children’s academic and emotional development

As students head back to school amid uncertainty caused by the coronavirus pandemic, this new report from the KFF COVID-19 Vaccine Monitor examines parents’ assessment of the toll the pandemic has taken on their children and on their own mental health and financial wellbeing over the past 18 months.  When asked about specific ways the pandemic may have affected their children, about four in ten parents of children ages 5 and over say at least one of their children fell behind academically (39%), while more than a third (36%) of parents of children of any age say their child fell behind in their social and emotional development and about three in ten (29%) say their child experienced mental health or behavioral problems due to the pandemic.

About Four In Ten Parents Say Their Child Fell Behind Academically Due To The Pandemic, About Three In Ten Say Their Child Experienced Mental Health Or Behavioral Problems

Notably, half of Hispanic parents say one of their children fell behind academically as a result of the pandemic compared to about a third of White parents (35%) who say the same. Across income groups, half (51%) of parents with a household income under $40,000 say their child fell behind academically compared to about a third (32%) of those with incomes of $90,000 or more.

Half Of Hispanic Parents And Those With Lower Incomes Say Their Child Fell Behind Academically Due To The Pandemi

The coronavirus pandemic caused a tremendous amount of disruption to the 2020-2021 school year. Across the country, millions of students and teachers had to transition to online learning. Previous KFF research at the beginning on the 2020-2021 school year found that about two-thirds of parents were worried about their child falling behind academically or in their social and emotional development if they did not return to in-person school. Indeed, most students were not able to attend in-person school fulltime during this past school year. KFF’s most recent COVID-19 Vaccine Monitor finds that a majority of parents say their child attended school at least partially online during the previous school year (72% of parents of 12-17 year-olds and 62% of parents of 5-11 year-olds). Notably, we find that parents of children whose school was at least partially online are more likely than those whose kids attended school mostly or completely in-person to report that one of their children have experienced a negative impact to their wellbeing1 . These differences may be at least partially due to differences in other demographic characteristics of parents whose child’s schools offered in-person schooling compared to those who did not. However, using a statistical technique called multivariate regression, we find that even after controlling for parent’s race and ethnicity, gender, income, region, age, educational attainment, and party identification and whether they had a child attending private or public school, parents with a child who attended school at least partially online are more likely than those whose children attended school all or mostly in person to report their child experienced a negative impact to their wellbeing due to the pandemic.

Parents whose children attended school all or mostly online, or who had a mix of online and in-person schooling were more likely than parents whose child attended school all or mostly in-person to say they had a child who fell behind academically (47% vs. 26%), fell behind in their social or emotional development (46% vs. 31%), or experienced mental health or behavioral problems (39% vs. 22%).

Parents Whose Children Attended School At Least Partially Online During The 2021 School Year Are More Likely To Say One Of Their Children Experienced Negative Impact To Their Wellbeing Due To The Pandemic

When asked about more specific problems that may indicate mental health concerns among children, about one in four parents (27%) say their children had difficulty concentrating on schoolwork or completing assignments and that this was a new problem they were experiencing since the pandemic began. About one in five say a child experienced new problems with nervousness or being easily scared or worried (19%) or trouble falling or staying asleep or sleeping too much (18%). In addition, 15% of parents say their children exhibited poor appetite or overeating (15%) and about one in ten say they experienced frequent headaches or stomachaches (11%). Overall, four in ten parents (42%) report that their children experienced at least one of these symptoms in the past 12 months and had not previously been experiencing them before the pandemic.

Four In Ten Parents Say At Least One Of Their Children Has Experienced A New Negative Symptom Since The Pandemic Began

With the exception of difficulty concentrating on schoolwork, mothers – who tend to take on greater responsibilities for childcare and are often the primary health care decision makers in a family– are more likely than fathers to say one of their children experienced each of the symptoms since the pandemic began. Overall, about half (47%) of mothers report that their child experienced a new problem compared to about to four in ten fathers (37%).

Notably, half of Hispanic parents (52%) and lower-income parents (49%) say one of their children exhibited one of these mental health symptoms in the past 12 months which were not present before the pandemic. In addition, parents of children who attended school at least partially online are more than twice as likely as parents whose children attended school all or mostly in person to say their child experienced new problems concentrating on schoolwork or completing assignments in the past 12 months (41% vs. 17%).

Mothers Are More Likely Than Fathers To Say Their Child Experienced Nervousness,  Issues With Sleeping And Eating, Frequent Headaches And Stomachaches Since The Pandemic Began

Childcare Needs And Employment Disruptions

In this past year, the pandemic not only affected children, but has also had an impact on working parents and families across the country. A recent KFF analysis of the Census Household Pulse Survey shows that households with children were more likely to have experienced employment loss. The most recent KFF COVID-19 Vaccine Monitor finds that nearly four in ten parents say they or another adult in their household left a job or changed work schedules to care for their children in the past year. As one might expect, parents of younger children are more likely than those of children ages 12 and older to say their household had an employment disruption due to childcare needs in the past year. In addition, Black parents (53%) and Hispanic parents (44%), those with a household incomes under $40,000 (51%), and parents under age 40 (44%) are more likely than their counterparts to say they or another adult in their family left a job or changed schedules in order to care for their children.

Notably, one in five parents of kids ages 5 and over say at least one of their children had to take on new duties helping to care for siblings or other family members as a result of the pandemic, including 28% of Black parents and 26% of Hispanic parents compared to 15% of White parents.

Younger Parents, Black And Latino Parents, Those With Lower Incomes And Those With Younger Children Are More Likely To Say Their Household Suffered A Job Disruption Due To Child Care Needs

When asked more specifically how their work arrangements changed to accommodate for increased childcare needs during the pandemic, 16% of parents say they or another adult in their household changed their work schedule and a further 10% say they cut back on hours. About one in ten parents (11%) say they or another adult in their household stopped working temporarily in order to care for their children, rising to one in five among Black parents (20%) and parents with a household income under $40,000 (21%). A further 9% of parents say in the past year they or another adult in their household stopped working permanently in order to care for their children, rising to 17% among Black parents and those with lower household incomes.

One In Five Black Parents And Parents With Lower Incomes Say They Or An Adult In Their Household Stopped Working Temporarily To Care For Their Children

Many parents who stopped working or adjusted their work schedules to take care of children during the pandemic have still not returned to work or to their previous schedules. Overall, about half (54%) of parents who report a work disruption due to childcare needs (21% of parents overall) say the person in their household who left a job or changed their work schedule is still not working or continues to work reduced hours. Overall, one-third of Black parents and one in four Hispanic parents say their household has not resumed their previous employment hours after having a childcare-related employment change during the pandemic. Low-income parents are particularly hard-hit, with roughly four in ten parents (39%) with a household income under $40,000 saying their household has not resumed their previous employment hours.

One In Five Parents Say They Or Another Person In Their Household Who Experienced A Work Disruption Are Still Not Back To Previous Work Schedule

These employment disruptions have added an additional burden to what has already been a difficult year for many parents across the country. Large majorities say their household employment disruption due to childcare needs has had an impact on their stress level (50% say it has had a major impact, 36% a minor impact), their family finances (44% major, 35% minor), and their own mental health (31% major, 39% minor).

Large Shares  Say Their Household Employment Disruptions Had An Impact On Their Stress Level, Family Finances, And Mental Health

Again, Black and Hispanic parents are particularly impacted with about one in four saying their household experienced an employment disruption and that it has had a major impact on their family’s finances and on their stress level. Among lower-income parents, one-third say report experiencing a household employment disruption that has had a major impact on their stress level (33%), and on their family finances (33%) and one in five (21%) report such a disruption has had a major impact on their mental health.

At Least One In Four Black And Hispanic Parents, And A Third Of Low-Income Parents Say Their Household Employment Disruption Has Had A Major Impact On Their Stress Level, Finances

The Impact Of Employment Disruption On Children

When parents experience disruptions in their employment due to increased childcare needs, this may also have an impact on the wellbeing of their children. When assessing the impact of the pandemic on their children, parents in a household that experienced an employment disruption are more likely than those whose household did not experience a disruption to say their child fell behind academically (51% vs. 32%), fell behind in their social or emotional development (49% vs. 28%), experienced mental health or behavioral problems (41% vs. 21%), or had to take on new care duties for siblings or other family members (33% vs. 11%). Overall, about seven in ten parents in households that experienced an employment disruption say one of their children has experienced at least one of these things compared to 44% of those who did not experience a disruption.

Parents Whose Household Experienced An Employment Disruption Due To Child Care Are More Likely To Say One Of Their Children Experienced An Adverse Impact To Their Wellbeing Due To The Pandemic

Similarly, parents who experienced a household employment disruption are also more likely than those who did not experience a disruption to say their child has developed a new mental health symptom since the pandemic began (56% vs. 33%). Nearly four in ten parents in households that experienced an employment disruption say their child has had difficulty concentrating on schoolwork (37%), about three in ten say their children have exhibited nervousness or being easily scared or worried (29%), and about one in four say they had sleeping disturbances (26%) or issues with eating (26%). One in six say their child experienced frequent headaches or stomachaches (17%).

A Majority Of Parents Whose Household Experienced An Employment Disruption Due To Child Care Say One Of Their Children Experienced An New Mental Health Symptom Since The Start Of The Pandemic

Mental Health Of Children And Their Parents

Previous KFF research has shown the even before the pandemic, many children in the U.S. were experiencing mental health problems and there was some evidence last year that the pandemic may have been exacerbating the issue. While three in ten parents report that their children experienced mental health or behavioral problems as a result of the pandemic and an even larger share say their children have experienced new symptoms in the past 12 months that may be associated with mental health concerns, a much smaller share (17%) report that their children received mental health services in the past 12 months. One in nine parents overall (11%) say there was a time in the past 12 months when they thought their child may have needed mental health services or medication but didn’t get them.

One In Six Parents Say Their Child Recevied Mental Health Services In The Past Year, One In Ten Say They Thought Their Child Needed Services, But Did Not Get Them

Access to mental health services appears to be an issue for those parents who say they thought their child might need mental health care but they were unable to get it. The main reasons parents cite for why their child was unable to get needed mental services include that they could not find a provider (32%), that they were too busy or could not get the time off work (16%), and that they could not afford the cost (15%).

Difficulty Finding A Provider, Being Too Busy, And Affordability Were Main Reason Parents Did Not Get Their Child Mental Health Services

In addition to the effects on children’s mental health, parents themselves are disproportionately likely to say the pandemic has had a negative impact on their own mental health. About four in ten adults overall (39%) report that stress and worry related to coronavirus has had a negative impact on their mental health, a share that rises to 54% among parents (compared to 37% of adults without children at home). The stress and worry over the pandemic has especially affected mothers, Black and Hispanic parents, those with household incomes under $40,000, and parents whose household experienced a work disruption due to increased childcare needs, with at least six in ten in each of these groups saying it has had a negative impact on their mental health.

Mothers, Black And Hispanic Parents, And Lower Income Parents  And Those With A Household Employment Change Are More Likely To Say Stress Related To The Pandemic Has Had  Negative Impact On Their Mental Health

Mental Health Impacts Over The Course Of The Pandemic

Previous KFF research has found that the share of adults reporting symptoms of anxiety or depressive disorder rose to about four in ten during the pandemic, up from about one in ten who reported these symptoms in 2019. While still large share of adults say the stress and worry due to the pandemic has had a negative impact on their mental health, it has decreased slightly from March 2021 (47%) to 39% in the July KFF COVID-19 Vaccine Monitor, and is down considerably from 53% a year ago. While the share of adults in the U.S. who are reporting negative mental health impacts from the coronavirus is down slightly, the survey was fielded largely before the news of the increased threat of the Delta variant.

The Share Of U.S. Adults Reporting Negative Mental Health Impact From Coronavirus Pandemic Down Slightly In Recent Months

A majority of parents and more than four in ten Hispanic adults, women, those with a chronic health condition, and health care workers say stress and worry related to coronavirus has had a negative impact on their mental health. Smaller shares of non-parents, adults ages 65 and older, men, and those with higher incomes say they have experienced mental health impact from the coronavirus. Previous studies have shown that men, older adults, and Black adults may be less likely to report mental health difficulty and more likely to face challenges accessing mental health care.

Larger Shares Of Parents, Women, Hispanic Adults, Adults Earning Lower Incomes Say Worry Or Stress Has Had  A Negative Impact On Their Mental Healths

Methodology

This KFF COVID-19 Vaccine Monitor – Parents and the Pandemic was designed and analyzed by public opinion researchers at the Kaiser Family Foundation (KFF). The survey was conducted July 15-August 2, 2021 via telephone and online among a nationally representative sample of 1,259 adults who are the parent or guardian of a child under the age of 18 living in their household. The sample includes 351 parents reached through the July 2021 KFF COVID-19 Vaccine Monitor and 908 who were reached online through a probability-based online panel (SSRS Opinion Panel). The Vaccine Monitor respondents were reached through a random digit dial telephone sample of adults ages 18 and older (including interviews from 101 Hispanic parents and 64 non-Hispanic Black parents), living in the United States. Phone numbers used for the telephone component were randomly generated from cell phone and landline sampling frames, with an overlapping frame design, and disproportionate stratification aimed at reaching Hispanic and non-Hispanic Black respondents as well as those living in areas with high rates of COVID-19 vaccine hesitancy. The sample also included 43 parents by calling back respondents that had previously competed an interview on a KFF poll (n=11) or SSRS omnibus poll (n=32). The comparison sample of non-parents was also drawn from the July 2021 KFF COVID-19 Vaccine Monitor. See the July 2021 KFF COVID-19 Vaccine Monitor for further details on the telephone component.

For the online component, invitations were sent to panel members who previously identified as the parent of a child ages 5 to 17.  As with the telephone component, Hispanic and Black respondents were oversampled.  The SSRS Opinion Panel is a nationally representative probability-based web panel. SSRS Probability Panel members are recruited randomly in one of two ways: (a) Through invitations mailed to respondents randomly sampled from an Address-Based Sample (ABS). ABS respondents are randomly sampled by MSG through the U.S. Postal Service’s Computerized Delivery Sequence (CDS). (b) from a dual-frame random digit dial (RDD) sample, through the SSRS Omnibus survey platform. Sample for the SSRS Omnibus is obtained through Marketing System Groups (MSG).

The combined telephone and online parent samples were weighted to match the sample’s demographics to the national parent population using data from the Census Bureau’s 2019 U.S. American Community Survey (ACS). Weighting parameters included sex, age, education, marital status, child age, and region, within racial/ethnic groups. The weights take into account differences in the probability of selection for each sample type (phone and web). This includes adjustment for the sample design and geographic stratification of the telephone sample, within household probability of selection, and the design of the panel-recruitment procedure.

The margin of sampling error including the design effect for the full sample of parents is plus or minus 4 percentage points. Numbers of respondents and margins of sampling error for key subgroups are shown in the table below. For results based on other subgroups, the margin of sampling error may be higher. Sample sizes and margins of sampling error for other subgroups are available by request. Sampling error is only one of many potential sources of error and there may be other unmeasured error in this or any other public opinion poll. Kaiser Family Foundation public opinion and survey research is a charter member of the Transparency Initiative of the American Association for Public Opinion Research.

This work was supported in part by grants from the Chan Zuckerberg Initiative DAF (an advised fund of Silicon Valley Community Foundation), the Ford Foundation, and the Molina Family Foundation. We value our funders. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

GroupN (unweighted)M.O.S.E.
Total parents/guardians of children under 18 in household1,259± 4 percentage points
Parent Race/Ethnicity
White, non-Hispanic399± 6 percentage points
Black, non-Hispanic372± 7 percentage points
Hispanic429± 6 percentage points
Child Age Groups
Parents of children under age 5523± 7 percentage points
Parents of children ages 5-11674± 6 percentage points
Parents of children ages 12-17728± 5 percentage points
Comparison sample of non-parents (adults who are not parents or guardians of children under 18) from July 2021 KFF COVID-19 Vaccine Monitor1,166± 4 percentage points

Endnotes

  1. Parents who said they had at least one child who attended school all or mostly online, or a mix of online and in-person were coded as All/Mostly/Mix Online. ↩︎
News Release

Four in Ten Parents of School-Aged Children Say a Child Fell Behind Academically Due to the COVID-19 Pandemic

Parents of Children Who Attended Online School Are More Likely to Report Children Experienced Pandemic-Related Impacts on Academics and Mental Health

Published: Aug 19, 2021

Four in Ten Parents Say Someone in Their Household Left a Job or Worked Fewer Hours to Care for Their Children, Including Higher Shares of Black, Hispanic, and Lower-income Parents

As a result of the pandemic, about four in ten (39%) parents of school-aged children (ages 5-17) say at least one of their children fell behind academically, rising to half among parents with household incomes below $40,000 (51%) and Hispanic parents (50%), a new KFF Vaccine Monitor report shows.

Among parents of children under age 18, more than a third (36%) say at least one of their children fell behind in social and emotional development because of the pandemic and about three in ten (29%) say a child experienced mental health or behavioral problems.

Parents whose children attended school at least partially online in the previous school year are more likely than parents whose child attended school all or mostly in-person to say they had a child who fell behind academically (47% vs. 26%) or in their social or emotional development (46% vs. 31%), or experienced mental health or behavioral problems (39% vs. 22%). These differences persist even after controlling for demographic differences including gender, race/ethnicity, income, parents’ education level, and whether children attended a public or private school.

Parents Report Pandemic-Related Emotional and Mental Health Problems for Both Their Children and Themselves

In the past 12 months, about four in ten parents (42%) say their children experienced a new mental health symptom that they did not experience prior to the pandemic, including difficulties concentrating on schoolwork (27%), nervousness or being easily scared (19%), sleeping problems (18%), poor appetite or overeating (15%), or frequent headaches or stomachaches (11%).

A smaller share (17%) of parents say their children received mental health services in the past 12 months and 11% say there was a time they thought their child needed mental health services or medication but did not get them. The main reason parents cite for why their children were unable to receive mental health services was that they could not find a provider (32%).

Many parents themselves report experiencing negative mental health impacts as a result of the pandemic. A majority of parents (54%) say that worry and stress related to the pandemic has had a negative impact on their mental health. Mothers, Black and Hispanic parents, lower income parents, and parents with recent employment changes are among the groups most likely to report experiencing mental health challenges.

More Than Half of Black Parents and Low-Income Parents Left a Job or Changed Schedules to Care for Their Children During the School Year

About four in ten parents say that they or someone else in their household left a job or changed work schedules in the past year in order to care for their children. Black (53%) and Hispanic (44%) parents are more likely than White parents (32%) to say their household suffered a job disruption due to childcare needs, as are parents with lower incomes (51% of parents with household incomes under $40,000) compared to those with higher incomes (35% of those with incomes of $40,000 or more).

Among parents who say they left a job or changed their work schedule to care for their children during the pandemic, over half (54%) say they still have not returned to a pre-pandemic work schedule, representing one in five (21%) of all parents. Roughly four in ten lower-income parents (39%), one-third of Black parents, and one-quarter of Hispanic parents say their household had a work disruption and has still not returned to their pre-pandemic job or hours.

Many parents report that these employment disruptions due to childcare needs have had a negative impact on their stress level, family finances, and mental health, including larger shares of Black and Hispanic parents and those with lower incomes. About one in four Black and Hispanic parents say their household experienced a childcare-related employment disruption that has had a major impact on their family’s finances and on their stress level. Among parents with household incomes under $40,000, one-third report a household employment disruption that has had a major impact on their stress level (33%) or their family finances (33%) and one in five (21%) report such a disruption has had a major impact on their mental health. The shares reporting these impacts are much lower among White parents and those with higher incomes.

The new report shows that parents who experience household employment disruptions due to childcare are more likely to report that their children fell behind academically (51% vs. 32%), fell behind in social and emotional development (49% vs. 28%), or experienced mental health problems (41% vs. 21%) compared to those that did not have an employment disruption during the pandemic.

Designed and analyzed by public opinion researchers at KFF, the KFF Vaccine Monitor: The Impact of The Coronavirus Pandemic On The Wellbeing Of Parents And Children was conducted from July 15-August 2 among a nationally representative probability-based sample of 1,259 parents with a child under age 18 in their household. Interviews were conducted in English and Spanish, online (908) and via telephone (351). The margin of sampling error is plus or minus 4 percentage points for the full sample. For results based on subgroups, the margin of sampling error may be higher.

The KFF COVID-19 Vaccine Monitor is an ongoing research project tracking the public’s attitudes and experiences with COVID-19 vaccinations. Using a combination of surveys and qualitative research, this project tracks the dynamic nature of public opinion as vaccine development and distribution unfold, including vaccine confidence and acceptance, information needs, trusted messengers and messages, as well as the public’s experiences with vaccination.

Most private insurers are no longer waiving cost-sharing for COVID-19 treatment

Published: Aug 19, 2021

Early in the pandemic, many insurers waived cost-sharing requirements for people hospitalized with COVID-19, and the vast majority of people enrolled in fully-insured plans would have had their out-of-pocket costs waived in such circumstances.

With safe and effective vaccines now widely available, this new analysis finds that that 72% of the two largest insurers in each state and DC (102 health plans) are no longer waiving these costs, and another 10% of plans are phasing out waivers by the end of October.

The analysis is available on the Peterson-KFF Health System Tracker, an online information hub dedicated to monitoring and assessing the performance of the U.S. health system.

News Release

KHN Wins National Edward R. Murrow Award for Excellence in Diversity, Equity and Inclusion

Published: Aug 17, 2021

SAN FRANCISCO, Calif. — The Radio Television Digital News Association today awarded KFF’s Kaiser Health News a national Edward R. Murrow Award for Excellence in Diversity, Equity and Inclusion for a series of stories by Midwest Correspondent Cara Anthony on the hidden burdens of systematic racism.

Anthony’s stories examine the coping mechanisms many Black Americans use to survive society’s systemic racism with its day-to-day threats of violence.

Her stories, reported from the Greater St. Louis area, introduced readers to Black children who live in the “wrong” neighborhoods and learn to hide in bathtubs or behind the couch when they hear gunfire outside; Black men who learn to keep their hands visible when talking to police, and Black women like Anthony who are told to style their hair long and straight to meet society’s expectations.

The Radio Television Digital News Association has been honoring outstanding achievements in electronic journalism with the Edward R. Murrow Awards since 1971. A list of all of this year’s national winners is available here.

About KFF and KHN

KHN (Kaiser Health News) is a national newsroom that produces in-depth journalism about health issues. Together with Policy Analysis and Polling, KHN is one of the three major operating programs at KFF (Kaiser Family Foundation). KFF is an endowed nonprofit organization providing information on health issues to the nation.