News Release

New KFF Poll Finds that Many Older Voters Are Unaware of Medicare Drug Price Negotiation, But Awareness Has Grown

Among Independent Voters, President Biden Has a Trust Advantage Over Former President Trump on Many Areas of Health Care

Published: May 15, 2024

A new KFF poll finds that many older voters are unaware of the provision in the Inflation Reduction Act that for the first time requires the federal government to negotiate the price of some prescription drugs in the Medicare program, a key campaign issue for President Joe Biden.

The 48% of voters ages 65 and older who are aware of the landmark change represents a 12 percentage point increase from November, the poll shows. 

Fifty-two percent of older voters are aware of another provision in the IRA, signed into law by Biden in 2022, that has received attention, capping the out-of-pocket cost of insulin for people on Medicare at $35 per month. And 40% are aware of another less widely discussed but significant provision that places an annual limit on out-of-pocket costs for people on Medicare, up from 27% in November.

The poll probed voters’ views of major health policy issues and how they line up with the presidential candidates’ approaches, both in office and on the campaign trail.

“It is commonly believed this is not a health care election because there is no national health reform debate,” said KFF President and CEO Drew Altman. “But in a close election voter concerns about a variety of health care issues, including abortion, prescription drugs and health care costs, could add up and make a difference in key states.”

The poll also finds that large majorities of voters overall, and across political identification, support extending to all adults with health insurance several of the IRA’s Medicare drug provisions – echoing what Biden has proposed. That includes the monthly insulin cost cap, favored by 88% of Democratic voters and 89% of Republican voters, and the annual drug spending limit, backed by 85% of Democrats and 87% of Republicans. Three-quarters of voters (75%) want to expand the number of Medicare drugs covered by price negotiations, including 79% of Democrats and 68% of Republicans.

 Trust on health issues 

On health care issues overall, partisans predictably put more trust in their own party’s candidate, but the poll shows that Biden has a clear trust advantage over former President Donald Trump with independent voters, a key voting group, on many areas of health care.

The poll finds that independent voters tilt toward Biden over Trump when it comes to whom voters trust more to determine the future of the ACA (49% v. 23%); ensure access to affordable health insurance (47% v. 22%); maintain protections for people with pre-existing health conditions (47% v. 23%); and determine the future of Medicare (44% v. 23%) and Medicaid (44% v. 24%).

On the issue of health care costs, which rises to the top of many voters’ concerns, Biden has a somewhat smaller advantage over Trump with independent voters (39% v. 26%) — although about a third (34%) of independent voters say they trust neither candidate on this issue.

At the same time, among all voters – not specifically independents — most are pessimistic about what either candidate would accomplish in addressing the issue of prescription drug costs. Fewer than half of voters say it is “very” or “somewhat” likely that Biden’s policies would lower prescription drug costs for people on Medicare (47%) or for everyone (43%) if he were re-elected. About four in ten voters say the same about Trump (41% for people with Medicare, 40% for everyone).

Abortion policy

The poll examined voter support for two broad approaches to abortion policy, among the most contentious issues in the election. Most voters (62%) support guaranteeing a federal right to abortion, as advocated by Biden. Fewer (42%) support leaving it up to individual states to decide the legality of abortion, as advocated by Trump.

While partisans divide, the share of Democratic voters who support a federal guarantee (89%) is larger than the share of Republican voters who support leaving the matter up to the states (60%). About six in ten (62%) independent voters favor a federal right to abortion. (For a deeper look at abortion in the election, see KFF’s March 2024 Health Tracking Poll.)

Future of the ACA

Although a majority of voters have favorable views of the ACA, attitudes towards the law continue to be marked by partisanship, with Democrats expressing more favorable views of the ACA than Republicans.

Nevertheless, the poll shows majority support (72%) for extending enhanced federal financial assistance for people who purchase ACA marketplace coverage. That includes large majorities of Democratic (90%) and independent voters (73%) and a smaller majority of Republican voters (57%). The enhanced subsidies are scheduled to expire at the end of 2025.

A large majority of voters say they think Trump – who tried to repeal the ACA when he was president – would either try to repeal the ACA (50%) or scale back what the law does (30%) if he is re-elected. Republican voters are less likely than Democratic voters to say Trump would attempt to repeal the entire ACA (37% v. 67%). Previous KFF polling has found that few voters think Trump has a plan to replace the ACA.

Future of Medicare, Medicaid, and Social Security

Majorities of voters are worried that, in the future, people covered by Medicare, Social Security, and Medicaid won’t be able to get the same level of benefits that are available today, with at least three in four saying they are at least somewhat worried about this when it comes to Social Security (83%), Medicare (78%), and Medicaid (73%). A recent report by the Medicare and Social Security trustees projects both programs will have insufficient funds to pay full benefits in about a decade.

When it comes to determining the future of these programs, voters overall are mixed in terms of which candidate they trust more, but older voters give a clear advantage to Biden. For example, about half of voters ages 65 and older say they trust Biden more to determine the future of Social Security (49%), Medicare (49%), and Medicaid (50%), while about a third of older voters say they trust Trump more on each. 

Regarding Medicaid, the poll finds most voters across gender, age, and racial and ethnic groups are opposed to the idea of capping the federal government’s contribution to the states in paying for the program. However, while large shares of Democratic voters (87%) and independent voters (74%) say they want Medicaid to continue as it is today, Republican voters are evenly divided, with 50% preferring Medicaid to stay as it is today and 49% saying the federal government should limit how much it pays states and give them greater flexibility to administer their Medicaid programs.

Designed and analyzed by public opinion researchers at KFF. The survey was conducted April 23-May 1, 2024, online and by telephone among a nationally representative sample of 1,243 registered voters in English and in Spanish. The margin of sampling error is plus or minus 4 percentage points for registered voters. For results based on other subgroups, the margin of sampling error may be higher.

Poll Finding

KFF Health Tracking Poll May 2024: Voters’ Views of Health Policy Issues in Context of Presidential Campaigns

Authors: Grace Sparks, Alex Montero, Marley Presiado, Ashley Kirzinger, and Liz Hamel
Published: May 15, 2024

Findings

Former President Donald Trump and President Joe Biden are now the presumptive nominees for the Republican and Democratic parties, and their respective records as president and their campaign platforms suggest very different visions for the future of U.S. health care. This new KFF Health Tracking Poll looks at voters’ views of some of the country’s major health and entitlement programs and how these views line up with the candidates’ approaches to these issues based on their track records, policy positions, and statements on the campaign trail. While previous polls show that many other issues outrank health care on voters’ minds this election cycle (and issues are only one part of how voters make decisions), these findings help illustrate how voters may react to talking points about health care that the candidates may make during the course of the campaign.

Key Takeaways

  • Six months out from the 2024 presidential election, partisans predictably put more trust in their own party’s candidate on health issues, but President Biden has a clear trust advantage over former President Trump with independent voters, a key voting group, on many areas of health care. For example, when it comes to addressing high health care costs, an issue that rises to the top of many voters’ priority lists, while neither candidate has a majority of trust among independent voters, Biden has an advantage over Trump (39% v. 26%), with 34% of independent voters saying they trust neither candidate on this issue.
  • Most voters overall are still unaware of the Medicare drug pricing provisions in the Inflation Reduction Act (IRA) that President Biden signed into law, but awareness is higher and has increased since November among older voters and among Biden’s base of Democratic voters. Large shares of voters across partisan groups also support Biden’s proposals to extend some of the IRA’s drug provisions to cover all adults with private insurance, including capping monthly costs for insulin and placing a limit on out-of-pocket prescription drug costs. Voters are also supportive of expanding the Medicare prescription drug price negotiation of the IRA to cover a larger number of drugs, with three-quarters saying more drugs should be subject to price negotiations, including majorities across partisanship.
  • While most voters are supportive of the proposals President Biden has made for addressing prescription drug costs, most are pessimistic about what either candidate would accomplish in this area if elected. Among independent voters, Biden has a slight edge, with half saying it is likely that his administration’s policies will lower prescription drug costs if he is elected, compared to about four in ten who say the same about Trump.
  • Regarding abortion policy, a key voting issue for Democratic and younger voters in this election, a majority of voters (62%) support guaranteeing a federal right to abortion while fewer (42%) support leaving it up to individual states to decide the legality of abortion. Majorities of Democratic voters and stronghold Democratic groups such as young voters and Black voters are supportive of a federal guarantee, while a majority of Republican voters support leaving the legality of abortion up to individual states. Notably, support among Democratic voters for a federal guarantee (89%) is higher than support among Republican voters for leaving abortion policy up to the states (60%).
  • When it comes to determining the future of the nation’s major entitlement programs – Social Security, Medicare, and Medicaid – older voters give a clear advantage to President Biden. Majorities of voters are worried that, in the future, people covered by Medicare, Social Security, and Medicaid won’t be able to get the same level of benefits that are available today, and many also agree that fraud, waste, and abuse are problems in these programs, which is a criticism that former President Trump has made. For context, most voters also see fraud, waste, and abuse as a major problem in private health insurance plans.
  • Asked about the future of Medicaid, seven in ten voters want Medicaid to largely continue as it is today, while three in ten support changing Medicaid to cap federal funding and give states greater flexibility in designing their programs (a recurrent Republican proposal sometimes referred to as a Medicaid block grant). While large shares of Democratic and independent voters prefer to keep Medicaid as it is today, Republican voters are evenly divided, with about half preferring to keep Medicaid as is and half supporting a cap on federal spending.
  • While a majority of voters have favorable views of the ACA, attitudes towards the law overall continue to be marked by partisanship. One-third of Republican voters now view the law favorably (up from 11% when the law was passed), but three-quarters of Republican voters say they would support “repealing and replacing” the ACA. Previous polling and past repeal efforts have shown that public support for repeal erodes considerably when popular provisions like the protections for people with pre-existing conditions are put at risk, so while these views don’t necessarily imply enduring support for repealing the ACA, they do suggest there is some receptivity among Republican voters for “repeal and replace” as a talking point. Notably, about four in ten Republican voters think Trump will try to repeal the entire ACA if elected, compared to two-thirds of Democratic voters.
  • Despite divided views on the ACA overall, there is majority support for strengthening one key piece of the ACA: about seven in ten voters – including majorities across partisanship – support extending enhanced financial assistance for people who purchase health coverage through the ACA marketplace. Currently, enhanced subsidies that were provided in recent years are set to expire at the end of 2025.

Biden Has Trust Advantage On Many Areas of Health Care, But Trump Ties On Addressing High Costs

When it comes to trust of the presumptive 2024 presidential candidates, larger shares of voters trust President Joe Biden than former President Donald Trump on several key health care policy issues, but neither candidate has a clear lead when it comes to addressing high health care costs, with similar shares of voters saying they trust Biden (38%) and Trump (36%).

Voters Trust Biden More than Trump on a Variety of Health Care Policy Measures, but Are Split When It Comes to Social Security and Addressing Health Care Costs

Not surprisingly, voters are split along party lines in their trust of the presumptive candidates on health care issues, with Democrats largely trusting Biden over Trump and Republicans trusting Trump over Biden. Still, even among partisans, substantial shares say they trust “neither” candidate on some health care issues. For example, about one in five Democratic voters and Republican voters say they trust “neither” candidate to address high health care costs.

Independent voters are more likely to say they trust Biden more than Trump in each are of health care, including addressing care costs. Biden has a notable trust lead among independent voters when it comes to determining the future of the ACA (49% v. 23%), ensuring access to affordable health insurance (47% v. 22%), and maintaining protections for people with pre-existing health conditions (47% v. 23%) and a substantial lead on determining the future of Medicare (44% v. 23%) and Medicaid (44% v. 24%). When it comes to addressing high health care costs, independent voters give the edge to Biden, with four in ten (39%) saying they trust him more compared to a quarter (26%) for Trump. However, a third (34%) of independent voters say they don’t trust either candidate.

Among Independent Voters, Biden Leads Trump in Trust on Health Issues, but About Three in Ten Trust Neither Candidate

Voters’ Views in Key Health Policy Areas

Prescription Drug Prices

Lowering prescription drug prices has been a frequent talking point of both President Biden and former President Trump. While Trump kept drug prices on the political agenda during his time as president, his administration ultimately did little to contain them. President Biden has touted passage of the Inflation Reduction Act (IRA), including its provisions aimed at lowering prescription drug prices for people with Medicare, as one of the signature achievements of his administration.

Most voters overall are unaware of the Medicare drug pricing provisions in the IRA, but awareness is higher among older voters and among Biden’s base of voters who identify as Democrats. Overall, about a third of voters correctly say there is a federal law in place that requires the federal government to negotiate the price of some prescription drugs for people with Medicare (36%) or one that caps the cost of insulin for people with Medicare (35%), while about a quarter (27%) know there is a law that limits annual out-of-pocket prescription drug costs for people with Medicare and one in seven (14%) know there is a law that penalizes drug companies for increasing prices for Medicare faster than the rate of inflation.

Awareness of these provisions is higher among voters ages 65 and older – a group that is mostly covered by Medicare and tends to vote at higher rates than younger adults. About half (52%) of older voters are aware of the IRA’s $35 cap on insulin for people with Medicare and a similar share (48%) correctly identify that there is a law that requires the federal government to negotiate the price of prescription drugs for Medicare enrollees.

Across partisans, fewer than half of Democrats, independents, and Republican voters are aware of any of these health care provisions. However, Democratic voters are more likely than Republican voters to correctly say there is a law that caps the cost of insulin for people with Medicare at $35 per month (46% v. 28%) or requires the federal government to negotiate the price of some prescription drugs for people with Medicare (43% v. 32%).

Few Voters Are Aware of IRA Drug Pricing Provisions, but Awareness Is Higher Among Older Voters

Voter awareness of the IRA’s $35 insulin cap for people with Medicare has increased by about seven percentage points since November 2023 when about a quarter (28%) of voters were aware of this provision of the IRA. Awareness of the IRA’s other Medicare drug pricing provisions has not changed significantly among all voters since November, but there have been increases in awareness of some provisions among Democratic voters and older voters, suggesting that Biden’s campaigning on the successes of the IRA may be breaking through with some groups.

Among Democratic voters, between November 2023 and May 2024 there was a 12 percentage point increase in the share correctly identify the cap on insulin (from 34% to 46%) and an 8 percentage point uptick in awareness of the law placing limits on out-of-pocket prescription drug costs for people with Medicare (from 24% to 32%). Similarly, among voters ages 65 and older, the share who are aware there is a federal law that limits annual out-of-pocket prescription drug costs for people with Medicare increased from 27% to 40% between November and May, the share who are aware of the negotiation provision increased from 36% to 48%, and the share who are aware there is a law that penalizes drug companies for increasing prices faster than the rate of inflation for people with Medicare from 9% to 15%.

Among Older and Democratic Voters, Voter Awareness of IRA Provisions Has Increased Since November 2023

President Biden has expressed support for several policies that would extend some of the prescription drug provisions of the IRA to cover all adults with private insurance. The KFF Health Tracking Poll finds that large shares of voters support these proposals, including capping monthly out-of-pocket costs for insulin for all adults with health insurance (86%) and placing a limit on out-of-pocket prescription drug costs for all adults with health insurance (84%).

Large majorities across partisans support both drug pricing provisions, including nearly nine in ten Democratic voters (88%) and Republican voters (89%) who support capping out-of-pocket costs for insulin and similar shares who support placing an out-of-pocket limit on prescription drug costs (85% of Democrats and 87% of Republicans).

Majorities Across Partisans Support Extending Some Medicare Drug Pricing Provisions of the IRA to Cover All Insured Adults

Voters are also supportive of expanding the Medicare prescription drug price negotiation of the IRA to cover a larger number of drugs. Under the law, negotiated prices will take effect for 10 prescription drugs in 2026, increasing to a total of 60 drugs by 2029. Three-quarters (75%) of voters say the law should be expanded by increasing the number of drugs subject to price negotiation. Another 15% think the law should be kept as is, while one in ten (10%) voters want the law to be repealed.

Among the biggest proponents for expansion of the drug price negotiation aspect of Medicare are those ages 65 and older (80% want the law to be expanded) and Democratic (79%) and independent (80%) voters. However, a majority of Republicans (68%) also agree that the law should be expanded.

Majorities of Voters Support Increasing Number of Drugs Subject to Price Negotiation Under Medicare

While most voters are supportive of the proposals President Biden has made for addressing prescription drug costs, most are pessimistic about what either candidate would accomplish in this area if elected, with fewer than half saying it is “very” or “somewhat” likely that Biden’s policies would lower prescription drug costs for people on Medicare (47%) or for everyone (43%) if he were re-elected. About four in ten voters say the same about former President Trump (41% for people with Medicare, 40% for everyone).

Not surprisingly, majorities of partisans say they think it is likely their party’s respective candidate will lower drug costs if elected, while few say the same about the other party’s candidate. Among independent voters, about half think it is likely that Biden’s policies would lower prescription drug costs for people with Medicare (52%) or for everyone (48%), while slightly fewer say the same about Trump (39% and 37%, respectively).

Most Voters Are Pessimistic About Biden or Trump’s Policies Lowering Drug Costs, but Independent Voters Give Biden Slight Advantage

Abortion Policy

The March KFF Health Tracking Poll provided an extensive look at voters’ views of abortion and the role it may play in the upcoming election. In this poll we examine voter support for two approaches to abortion policy for which President Biden and former President Trump have voiced support. President Biden has expressed support for a federal right to abortion while former President Donald Trump has stated that abortion policies should be left to the states. When it comes to abortion policy – a key voting issue for Democratic and younger voters in this election – a majority of voters (62%) support guaranteeing a federal right to abortion while fewer (42%) support leaving it up to individual states to decide the legality of abortion1 .

About nine in ten (89%) Democratic voters support guaranteeing a federal right to abortion compared to about six in ten independent voters (62%) and one-third of Republican voters (34%). Conversely, about six in ten Republican voters support leaving abortion up to individual states compared to 42% of independent voters and a quarter (26%) of Democratic voters.

Those who plan on voting for Biden in 2024 (90%), Democrats (89%), young voters ages 18-29 (79%), and Black voters (78%) are among the largest groups in support of guaranteeing a federal right to abortion. Majorities of those who plan to vote for Trump in 2024 (63%) and Republican voters (60%), support leaving abortion up to individual states.

Nine in Ten Democratic Voters Support Guaranteeing a Federal Right to Abortion, While Six in Ten Republican Voters Support Leaving Abortion Policy Up to States

Health and Entitlement Programs

Besides issues of prescription drugs prices for Medicare, there are signs that Trump and Biden would approach the future of the nation’s major health and entitlement programs differently if elected. Majorities of voters have a favorable opinion of the major entitlement programs, with at least three in four voters saying they have a “very” or “somewhat” favorable opinion of Medicare (80%), Social Security (78%), and Medicaid (75%). A smaller share of voters – but still a majority — say they have a favorable opinion of the Affordable Care Act (ACA), or Obamacare (60%). While its passage and enactment were embroiled in partisan battles, the public has consistently held a more favorable than unfavorable view of the ACA since 2018.

Large Majorities of Voters Have a Favorable Opinion of Entitlement Programs, with a Smaller Majority Favoring the ACA

While Democratic voters are somewhat more likely than Republican voters to express favorable views of Medicare, Medicaid, and Social Security, majorities across partisans are favorable towards each of these programs. Partisan divisions are more notable when it comes to the ACA, with nine in ten Democratic voters (90%) holding favorable views of the ACA compared to a third (32%) Republican voters – a share that has increased since the law was enacted (in April 2020, just 11% of Republican voters had a favorable view of the law).

Medicare, Social Security, Medicaid, and the ACA are also popular with voters across age groups, although voters ages 65 and older are somewhat more likely than younger voters to express favorable opinions of Social Security and Medicare – programs that largely provide benefits to older adults. In turn, younger voters ages 18-29 are more likely than older voters to have a favorable opinion of Medicaid.

Majorities of Voters Across Partisan and Age Groups View Entitlement Programs Favorably, but Partisans Divide on ACA

Future of Medicare, Social Security, and Medicaid

When it comes to determining the future of Social Security, Medicare, and Medicaid, neither candidate garners a clear majority of trust among voters on all three items. About four in ten voters overall say they trust President Biden more to determine the future of Medicare and Medicaid, while one-third trust former President Trump more. Voters are more evenly split on the future of Social Security, with 38% who trust Biden more and 36% for Trump.

Older voters, a key voting bloc and the primary beneficiaries of Social Security and Medicare, are more likely to trust Biden when it comes to determining the future of each program. About half of voters ages 65 and older say they trust Biden more to determine the future of Social Security (49%), Medicare (49%), and Medicaid (50%), while about a third of older voters say they trust Trump more on each.

Half of Voters Ages 65 and Over Trust Biden More to Determine the Future of Entitlement Programs

Majorities of voters are worried that, in the future, people covered by Medicare, Social Security, and Medicaid won’t be able to get the same level of benefits that are available today, with at least three in four saying they are at least somewhat worried about this when it comes to Social Security (83%), Medicare (78%), and Medicaid (73%). While large shares of voters across the age spectrum worry about future benefits available under these programs, worries about future benefits under Medicare and Social Security tend to peak among those ages 50-64, the next age group to become eligible for these programs in the coming years. A new report issued by the Medicare and Social Security trustees projects both programs will have insufficient funds to pay full benefits in about a decade.

Majorities of Voters Worry About Future Benefits Under Entitlement Programs, with Worries Peaking Among Those Approaching Retirement Age

While former President Trump’s remarks on the future of entitlement programs have been inconsistent, in some appearances he has criticized the Social Security and Medicare programs, stating that he will cut these programs by targeting “waste” and “fraud.” Many voters agree that fraud, waste, and abuse are problems in the nation’s entitlement programs, with over half saying fraud, waste, and abuse are a “major” problem in Medicaid (60%), Medicare (55%), and Social Security (53%). For context, 58% of adults also see fraud, waste, and abuse as a major problem in private health insurance.

Larger shares of Republican voters say fraud, waste, and abuse are a “major” problem in Medicare Medicaid, and Social Security than Democrats, with no differences by partisanship when it comes to concerns about private health insurance.

Majorities of Republican and Independent Voters Say Fraud, Waste, and Abuse Are Major Problems in Entitlement Programs, but Fewer Democratic Voters Agree

Former President Trump has not released any detailed statements on his plans for the future of Medicaid if elected, but his budget proposals as president included plans to cap federal Medicaid spending. Asked which comes closer to their view of what Medicaid should look like in the future, seven in ten voters say “Medicaid should largely continue as it is today, with the federal government guaranteeing coverage for low-income people, setting standards for who states cover and what benefits people get, and matching state Medicaid spending as the number of people on the program goes up or down.” About three in ten voters (29%) say “Medicaid should be changed so that instead of matching state Medicaid spending and setting certain requirements for health coverage, the federal government limits how much it gives states to help pay for Medicaid and states have greater flexibility to decide which groups of people to cover without federal guarantees.”

Majorities of voters across gender, age, and racial and ethnic groups agree that Medicaid should largely continue as it is today. However, while large shares of Democratic voters (87%) and independent voters (74%) say they want Medicaid to continue as it is today, Republican voters are evenly divided, with 50% preferring Medicaid to stay as it is today and 49% saying the federal government should limit how much it pays states and give states greater flexibility to administer their Medicaid programs.

Majorities of Voters Prefer To Keep Medicaid As Is, but Half of Republicans Support Changing Medicaid To Limit Federal Spending and Give States More Flexibility

Under the ACA, most states have expanded their Medicaid programs to cover more low-income people. For states that expand their Medicaid program, the federal government pays for 90 percent of the costs of this expansion with the state paying the rest.

Two-thirds (63%) of voters who live in a non-expansion state want their state to expand Medicaid to cover more low-income uninsured people, while one-third (36%) would rather keep Medicaid as it is today. Expanding Medicaid is largely split along partisan lines, with nearly nine in ten (86%) of Democrats or Democratic-leaning independent voters who live in a state without Medicaid expansion saying they want to expand Medicaid, compared to six in ten (59%) of Republicans or Republican-leaning independent voters who want to keep Medicaid as it is today.

Six in Ten Voters in Non-Expansion States Think Their State Should Expand Medicaid, with Support Strongest Among Democratic Voters

Future of the ACA

Although a majority of voters now have favorable views of the ACA, attitudes towards the law overall continue to be marked by partisanship. Three quarters of Republican voters say they would support “repealing and replacing” the ACA, as do about half of independent voters. This poll did not test other options (such as expanding or scaling back the law, which generally produce much lower levels of support for repeal). Previous polling and past repeal efforts have shown that public support for repeal erodes considerably when popular provisions like the protections for people with pre-existing conditions are put at risk, so while these views don’t imply that repealing the ACA is a political reality, they do suggest there is some receptivity among Republican voters to “repeal and replace” as a talking point. Previous KFF polling has found that few voters think Trump has a plan to replace the ACA.

Aside from views on repeal, there is majority support for strengthening one key piece of the ACA: about seven in ten voters (72%) support extending financial assistance for people who purchase health coverage through the ACA marketplace, including large majorities of Democratic (90%) and independent voters (73%) and a smaller majority of Republican voters (57%). Notably, two-thirds (65%) of voters are worried that in the future, people covered by ACA marketplace insurance will not be able to get the same level of benefits that are available today.

Majorities Across Partisans Support Extending ACA Financial Assistance, Divided on Repealing and Replacing ACA

While former President Trump recently stated he is not running to terminate the ACA, he has routinely criticized the law, saying he will make it “better” and “less expensive” and unsuccessfully pushed to repeal it during his time in office. A large majority of voters think Trump would try to either repeal the ACA (50%) or scale back what the law does (30%) if he is re-elected in 2024. About one in eight voters (12%) say they think he will keep the law as is and just 7% say they think he would try to expand what the law does. Despite the large share of Republican voters saying they would support repealing and replacing the ACA, Republican voters are less likely than Democratic voters to say they think Trump would attempt to repeal the entire ACA if elected in 2024 (37% v. 67%).

At Least Seven in Ten Across Partisans Believe Former President Trump Will Either Scale Back the ACA or Repeal It Entirely If Elected

Methodology

This KFF Health Tracking Poll/Health Misinformation Tracking Poll was designed and analyzed by public opinion researchers at KFF. The survey was conducted April 23-May 1, 2024, online and by telephone among a nationally representative sample of 1,479 U.S. adults in English (1,396) and in Spanish (83). The sample includes 1,201 adults (n=65 in Spanish) reached through the SSRS Opinion Panel either online (n=1,176) or over the phone (n=25). The SSRS Opinion Panel is a nationally representative probability-based panel where panel members are recruited randomly in one of two ways: (a) Through invitations mailed to respondents randomly sampled from an Address-Based Sample (ABS) provided by Marketing Systems Groups (MSG) through the U.S. Postal Service’s Computerized Delivery Sequence (CDS); (b) from a dual-frame random digit dial (RDD) sample provided by MSG. For the online panel component, invitations were sent to panel members by email followed by up to three reminder emails.

Another 278 (n=18 in Spanish) interviews were conducted from a random digit dial telephone sample of prepaid cell phone numbers obtained through MSG. Phone numbers used for the prepaid cell phone component were randomly generated from a cell phone sampling frame with disproportionate stratification aimed at reaching Hispanic and non-Hispanic Black respondents. Stratification was based on incidence of the race/ethnicity groups within each frame.

Respondents in the phone samples received a $15 incentive via a check received by mail, and web respondents received a $5 electronic gift card incentive (some harder-to-reach groups received a $10 electronic gift card). In order to ensure data quality, cases were removed if they failed two or more quality checks: (1) attention check questions in the online version of the questionnaire, (2) had over 30% item non-response, or (3) had a length less than one quarter of the mean length by mode. Based on this criterion, two cases were removed.

The combined cell phone and panel samples were weighted to match the sample’s demographics to the national U.S. adult population using data from the Census Bureau’s 2023 Current Population Survey (CPS), September 2021 Volunteering and Civic Life Supplement data from the CPS, and the 2023 KFF Benchmarking survey with ABS and prepaid cell phone samples. The demographic variables included in weighting for the general population sample are sex, age, education, race/ethnicity, region, civic engagement, frequency of internet use, political party identification by race/ethnicity, and education. The sample of registered voters was weighted separately to match the U.S. registered voter population using parameters above plus recalled vote in the 2020 presidential election by county quintiles grouped by Trump vote share. Both weights account for differences in the probability of selection for each sample type (prepaid cell phone and panel). This includes adjustment for the sample design and geographic stratification of the cell phone sample, within household probability of selection, and the design of the panel-recruitment procedure.

The margin of sampling error including the design effect for the full sample is plus or minus 3 percentage points and is plus or minus 4 percentage points for registered voters. Numbers of respondents and margins of sampling error for key subgroups are shown in the table below. For results based on other subgroups, the margin of sampling error may be higher. Sample sizes and margins of sampling error for other subgroups are available by request. Sampling error is only one of many potential sources of error and there may be other unmeasured error in this or any other public opinion poll. KFF public opinion and survey research is a charter member of the Transparency Initiative of the American Association for Public Opinion Research.

GroupN (unweighted)M.O.S.E.
Total1,479± 3 percentage points
Total registered voters1,243± 4 percentage points
Republican registered voters372± 7 percentage points
Democratic registered voters417± 6 percentage points
Independent registered voters323± 7 percentage points
 
Have ever used GLP-1 drugs
Yes189± 9 percentage points
No1,288± 4 percentage points

Endnotes

  1. These were two separate items on a support or oppose list, not two separate answer choices to a single question. ↩︎
Poll Finding

KFF Health Tracking Poll May 2024: The Public’s Use and Views of GLP-1 Drugs

Authors: Alex Montero, Grace Sparks, Marley Presiado, and Liz Hamel
Published: May 10, 2024

Findings

Key Findings

  • The latest KFF Health Tracking Poll finds that about one in eight adults (12%) say they have ever taken a GLP-1 agonist – an increasingly popular class of prescription drugs used for weight loss and to treat diabetes or prevent heart attacks or strokes for adults with heart disease – including 6% who say they are currently taking such a drug. The share who report ever taking these drugs rises to four in ten (43%) among adults who have been told by a doctor that they have diabetes, a quarter who have been told they have heart disease, and one in five (22%) who have been told by a doctor that they are overweight or obese in the past five years1 . Public awareness of GLP-1 drugs has increased in the past year, with about one-third (32%) of adults now saying they have heard “a lot” about these drugs, up from 19% in July 2023.
  • Most adults who have taken GLP-1 drugs say they took them to treat a chronic condition including diabetes or heart disease (62%), while about four in ten say they took them primarily to lose weight.
  • About half (54%) of all adults who have taken GLP-1 drugs say it was difficult to afford the cost, including one in five (22%) who say it was “very difficult.” While most insured adults who have taken these drugs say their insurance covered at least part of the cost, even among insured adults about half (53%) say the cost was difficult to afford2 .
  • While 8% of adults ages 65 and older say they have taken a GLP-1 medication for a chronic condition, just 1% say they have ever taken a GLP-1 drug to lose weight, which may reflect Medicare’s lack of coverage for prescription drugs used for weight loss. Nearly four in ten (37%) adults ages 65 and older report being told by a doctor they are overweight or obese in the past five years.
  • With Medicare currently prohibited by law from covering prescription drugs used for weight loss, six in ten adults say they think Medicare should cover the cost of these drugs when prescribed for weight loss for people who are overweight, including more than half of Democrats, independents and Republicans. Similar shares of the public continue to support Medicare coverage of these drugs for weight loss even after hearing arguments for and against this proposal.

Use, Access and Affordability of GLP-1 Drugs

KFF’s latest Health Tracking Poll examines the public’s views and use of an increasingly popular group of drugs that include Ozempic, Wegovy, Mounjaro and others that belong to a class of prescription medications known as GLP-1 agonists3 . GLP-1 drugs have garnered an increasing amount of media attention and some notable celebrity endorsements in the U.S., with much of the focus on their use for weight loss, though many of these drugs are also prescribed to treat diabetes or reduce risk of heart attack or stroke.

A large and increasing share of the public say they have heard about GLP-1 drugs, with about eight in ten (82%) adults saying they have heard at least “a little” and about three in ten (32%) saying they have heard “a lot” about these drugs. The share of the public who report having heard about these drugs has increased since July 2023 when seven in ten adults reported having heard at least “a little” about these drugs and one in five (19%) said they had heard “a lot.”

The share who say they have heard “a lot” about these drugs rises to at least four in ten among those who have ever been told by a doctor that they have diabetes (45%) or heart disease (41%) or have been told by a doctor in the past five years that they are overweight or obese (42%) – the primary conditions these drugs are prescribed for.

Across age groups, awareness of these drugs is highest among older adults. About four in ten adults ages 50 to 64 and 65 and older say they have heard “a lot” about GLP-1 drugs, compared to about one-third of adults ages 30-49 (32%) and one in six adults ages 18-29 (17%). Notably, older adults are more likely than their younger peers to have been told by a doctor that they have diabetes or heart disease.

Adults with annual household incomes of $90,000 or greater are more likely than those with lower household incomes to say they have heard “a lot” about these drugs.

Larger Shares of Older Adults and Those With Chronic Conditions Have Heard “A Lot” About GLP-1 Drugs

Overall, 12% of adults say they have ever used GLP-1 drugs, including 6% who say they are currently using them. The share who report ever taking these drugs rises to about four in ten (43%) among adults who have been told by a doctor that they have diabetes, a quarter (26%) of adults who have been told they have heart disease, and one in five (22%) adults who have been told by a doctor that they are overweight or obese in the past five years (some of whom also have diabetes or heart disease).

Black adults are somewhat more likely than White adults to report ever taking these drugs (18% v. 10%), while 13% of Hispanic adults say they have taken these drugs. KFF’s analysis of Centers for Disease Control (CDC) data shows that Black and Hispanic adults in the U.S. have a higher rate of obesity than White adults. For additional information on obesity rates and racial disparities, see KFF’s policy watch: What are the Implications of New Anti-Obesity Drugs for Racial Disparities?

Similar shares of adults regardless of gender, income, or health insurance coverage report taking these drugs.

One in Eight Adults Say They Have Ever Used GLP-1 Drugs, Rising to Four in Ten Among Adults Who Have Been Diagnosed With Diabetes

Among the 12% of adults who have ever taken GLP-1 drugs, most report taking them, at least in part, to treat a chronic condition like diabetes or heart disease, with fewer saying they took them only to lose weight. Among those who have taken these drugs, six in ten (62%) say they took them to treat a chronic condition like diabetes or heart disease, including about four in ten (39%) who took them only to treat a chronic condition and one in four (23%) who say they took them to both treat a chronic condition and to lose weight. About four in ten (38%) adults who have taken these drugs report using them only to lose weight.

Six in Ten of Those Who Have Ever Used GLP-1 Medications Did So To Treat a Chronic Condition Like Heart Disease or Diabetes

Among all adults, 7% say they have taken or are taking these drugs to treat a chronic condition such as diabetes or heart disease – either alone (5%) or in combination with intent of losing weight (3%) – while 5% of adults report ever taking these drugs to lose weight but not to treat a chronic condition.

About one in five (19%) adults ages 50-64 say they have ever taken GLP-1 drugs, higher than the shares reported by other age groups. Among adults ages 50-64, 15% say they have taken GLP-1 drugs to treat a chronic condition and 5% say they’ve taken them for weight loss only. Few adults under age 50 report having taken these drugs to treat chronic conditions, but similar shares of 18–29-year-olds (7%) and 30–49-year-olds (6%) report having taken them for weight loss. Among adults ages 65 and over, 8% say they have taken a GLP-1 medication for a chronic condition, while just 1% say they have taken these drugs only to lose weight, which may be a reflection of Medicare’s lack of coverage for prescription drugs used for weight loss. Nearly four in ten (37%) adults ages 65 and older report being told by a doctor they are overweight or obese in the past five years.

Younger Adults Are More Likely Than Those 65 and Older to Report Taking GLP-1 Drugs Just for Weight Loss

Alongside the relatively high cost of GLP-1 drugs in the U.S., there have been recent reports of shortages or limited availability of these drugs occurring as demand increases. Recent news reports have emphasized that some adults are seeking generic or compounded versions of these drugs through sources such as medical spas or compounding pharmacies, which may sell products claiming to be name-brand GLP-1s that have not been vetted by the F.D.A.

About eight in ten (79%) adults who have taken GLP-1 drugs report getting these drugs or a prescription for them from their primary care doctor or a specialist, while fewer report getting them from an online provider or website (11%), a medical spa or aesthetic medical center (10%), or from somewhere else (2%).

Most Adults Who Have Taken GLP-1 Drugs Say They Got Them From Their Primary Doctor or Specialist, About One In Four Say They Got Them From Another Source

In the U.S., list prices for GLP-1 drugs can range from $936 to $1,349 before insurance coverage, rebates or coupons. Most insured adults who have taken GLP-1 drugs say their insurance covered at least part of the cost. Among adults with health insurance who report ever taking these drugs, over half (57%) say their health insurance covered part of the cost of these drugs and they paid the rest, while one in four (24%) say their health insurance covered the full cost. One in five (19%) insured adults who have taken GLP-1s say they paid for the full cost themselves.

Most Insured Adults Who Have Taken GLP-1s Say Their Insurance Covered at Least Part of the Cost, but Fewer Say Their Insurance Covered All the Cost

Despite the fact that few insured adults say they paid the full cost of these drugs themselves, many report difficulty affording them. About half of adults who have taken GLP-1s say it was difficult to afford the cost of these drugs. Among those who have taken these drugs, about half (54%) – including 53% of those with health insurance – say it was either “somewhat” or “very difficult” to afford to pay for these drugs, including one in five (22%) who say it was “very difficult,” including a similar share of adults with health insurance (23%).

Half of Adults, Including Similar Shares of Insured Adults, Say They Had Difficulty Paying for GLP-1 Drugs

Public Opinion on Medicare Coverage of GLP-1s for Weight Loss

While some Medicare drug plans cover the cost of some GLP-1s such as Ozempic or Wegovy when prescribed to treat diabetes or prevent heart attacks or strokes for adults with heart disease, Medicare is currently prohibited by law from covering drugs when prescribed for weight loss – for more information, see KFF’s issue brief on Medicare coverage of GLP-1s. KFF’s latest Health Tracking Poll finds that most adults think Medicare should cover the cost of these drugs when prescribed for weight loss for people who are overweight, with support remaining largely unchanged after hearing arguments for and against this proposal.

Overall, six in ten adults (61%), including similar shares across age groups, say they think Medicare should cover the cost of these drugs when prescribed for weight loss for people who are overweight, a share that rises to about seven in ten (71%) among those who have ever taken these drugs.

While more than half of adults across partisans say Medicare should cover the cost of these drugs for weight loss, Democrats (66%) are somewhat more likely than Republicans (55%) to say this.

Majorities Say Medicare Should Cover the Costs of GLP-1 Drugs for Weight Loss for People Who Are Overweight

Attitudes on some policy proposals may change when the public hears different arguments in favor or against certain proposals. After asking whether Medicare should cover the cost of GLP-1s when prescribed for weight loss for people who are overweight, the poll presented two different arguments for and against this proposal:

Argument against: Some people say that if Medicare covers the cost of these drugs, it could increase premiums paid by people with Medicare and place financial pressure on the Medicare program and the federal budget.

Argument in favor: Others say that if Medicare covers the cost of these drugs, it could help more people afford these medications and improve health and quality of life for people who are overweight.

After being presented with these arguments, the public’s attitudes remain largely unchanged, with six in ten adults still saying they think Medicare should cover the cost of these drugs when prescribed for weight loss for people who are overweight. Attitudes also remained largely unchanged among adults 65 and older, among those who have taken GLP-1s and those who have not, and among independents and Republicans. Among Democrats, there is a slight increase in the share who say Medicare should cover the cost after hearing these arguments (71% after v. 66% before).

Opinion Regarding Medicare Coverage of GLP-1 Drugs Remains Largely Unchanged After Hearing Arguments on Both Sides of the Debate

Methodology

This KFF Health Tracking Poll/Health Misinformation Tracking Poll was designed and analyzed by public opinion researchers at KFF. The survey was conducted April 23-May 1, 2024, online and by telephone among a nationally representative sample of 1,479 U.S. adults in English (1,396) and in Spanish (83). The sample includes 1,201 adults (n=65 in Spanish) reached through the SSRS Opinion Panel either online (n=1,176) or over the phone (n=25). The SSRS Opinion Panel is a nationally representative probability-based panel where panel members are recruited randomly in one of two ways: (a) Through invitations mailed to respondents randomly sampled from an Address-Based Sample (ABS) provided by Marketing Systems Groups (MSG) through the U.S. Postal Service’s Computerized Delivery Sequence (CDS); (b) from a dual-frame random digit dial (RDD) sample provided by MSG. For the online panel component, invitations were sent to panel members by email followed by up to three reminder emails.

Another 278 (n=18 in Spanish) interviews were conducted from a random digit dial telephone sample of prepaid cell phone numbers obtained through MSG. Phone numbers used for the prepaid cell phone component were randomly generated from a cell phone sampling frame with disproportionate stratification aimed at reaching Hispanic and non-Hispanic Black respondents. Stratification was based on incidence of the race/ethnicity groups within each frame.

Respondents in the phone samples received a $15 incentive via a check received by mail, and web respondents received a $5 electronic gift card incentive (some harder-to-reach groups received a $10 electronic gift card). In order to ensure data quality, cases were removed if they failed two or more quality checks: (1) attention check questions in the online version of the questionnaire, (2) had over 30% item non-response, or (3) had a length less than one quarter of the mean length by mode. Based on this criterion, two cases were removed.

The combined cell phone and panel samples were weighted to match the sample’s demographics to the national U.S. adult population using data from the Census Bureau’s 2023 Current Population Survey (CPS), September 2021 Volunteering and Civic Life Supplement data from the CPS, and the 2023 KFF Benchmarking survey with ABS and prepaid cell phone samples. The demographic variables included in weighting for the general population sample are sex, age, education, race/ethnicity, region, civic engagement, frequency of internet use, political party identification by race/ethnicity, and education. The weights account for differences in the probability of selection for each sample type (prepaid cell phone and panel). This includes adjustment for the sample design and geographic stratification of the cell phone sample, within household probability of selection, and the design of the panel-recruitment procedure.

The margin of sampling error including the design effect for the full sample is plus or minus 3 percentage points. Numbers of respondents and margins of sampling error for key subgroups are shown in the table below. For results based on other subgroups, the margin of sampling error may be higher. Sample sizes and margins of sampling error for other subgroups are available by request. Sampling error is only one of many potential sources of error and there may be other unmeasured error in this or any other public opinion poll. KFF public opinion and survey research is a charter member of the Transparency Initiative of the American Association for Public Opinion Research.

 

GroupN (unweighted)M.O.S.E.
Total1,479± 3 percentage points
 
Have ever used GLP-1 drugs
Yes189± 9 percentage points
No1,288± 4 percentage points

Endnotes

  1. Adults who say a doctor or health care provider told them they are overweight or obese in the past five years include those who may also have diabetes or heart disease. ↩︎
  2. Insufficient sample size to report among uninsured adults who have ever taken these drugs. ↩︎
  3. These drugs are commonly prescribed for weight management, to treat type 2 diabetes, or to reduce the risk of heart attacks and stroke in people with cardiovascular disease. While Medicare is currently prohibited by law from covering medications used specifically for weight loss, Medicare spending on these drugs is currently skyrocketing given their high price and use for diabetes and to reduce cardiovascular risk. For more information, see KFF’s policy watch on rising Medicare spending on Ozempic and other GLP-1 Drugs. ↩︎
News Release

Poll: 1 in 8 Adults Say They’ve Taken a GLP-1 Drug, Including 4 in 10 of Those with Diabetes and 1 in 4 of Those with Heart Disease 

About Half Who Have Taken the Drugs Say It Was Difficult to Afford Even with Insurance

Published: May 10, 2024

About one in eight adults (12%) say they have taken one of an increasingly popular class of prescription drugs known as GLP-1s that are used for weight loss and to treat diabetes and reduce the risk of heart disease and stroke, a new KFF Health Tracking Poll finds. This includes 6% of adults who say they are currently taking one of these drugs, which include Ozempic, Wegovy and MounjaroThe shares of adults who report ever taking these drugs is highest among people with diabetes (43%), followed by those with heart disease (26%) and those who have obesity or overweight (22%), the poll finds. Among those who report ever taking the drugs, most (61%) say that they took the drugs to treat a chronic condition such as diabetes or heart disease – either alone (39%) or in combination with losing weight (23%). Nearly four in ten (38%) say that they took the drugs solely to lose weight.

List prices for GLP-1 drugs can top $1,000 for a month’s supply prior to insurance coverage, rebates, and discount coupons. About half (54%) of those who report ever taking the drugs say it was difficult to afford them, including one in five (22%) who say it was “very difficult.”  Having insurance coverage makes little difference to patients’ perceptions of the drugs’ affordability, with similar shares of those covered by insurance saying the drugs were difficult (53%) or very difficult (23%) to afford.

Most of the Public Favors Medicare Coverage of Weight-Loss Drugs Even After Hearing Competing Arguments 

While 9% of older adults ages 65 and older report ever taking the drugs, few (1%) say they did so solely for weight loss – likely reflecting Medicare’s prohibition on the coverage of prescription weight-loss drugs. Medicare covers some of the drugs for diabetes and other conditions.

About six in ten adults (61%) say that Medicare should cover these drugs when prescribed for weight loss for people who are overweight. This includes similar shares across age groups, and more than half of Democrats, independents, and Republicans.The poll also tested the impact of arguments for and against Medicare coverage, with short descriptions explaining that it could increase premiums for people with Medicare and place financial pressure on the Medicare program and the federal budget, but that it could help more people afford the medications and improve the health and quality of life of people who are overweight.Those arguments did little to change the public’s views, with similar shares of the public overall and the various subgroups continuing to favor Medicare coverage. 

Other findings include:•    About eight in ten (82%) adults say they have heard at least “a little” about these drugs, including about three in ten (32%) who say they have heard “a lot” about them. Awareness is up since July 2023, when about one in five (19%) said they heard a lot about the drugs.•    About eight in ten (79%) adults who have taken GLP-1 drugs report getting these drugs or a prescription for them from their primary care doctor or a specialist. Fewer report getting them from an online provider or website (11%), a medical spa or aesthetic medical center (10%), or somewhere else (2%). 

Designed and analyzed by public opinion researchers at KFF. The survey was conducted April 23-May 1, 2024, online and by telephone among a nationally representative sample of 1,479 U.S. adults in English and in Spanish. The margin of sampling error is plus or minus 3 percentage points for the full sample. For results based on other subgroups, the margin of sampling error may be higher.

Medical Debt Among New Mothers

Authors: Cynthia Cox and Gary Claxton
Published: May 9, 2024

This analysis examines the share of new mothers who have significant medical debt (in excess of $250), compared to other young women who did not recently give birth, using data from the Survey of Income and Program Participation (SIPP).

New mothers are twice as likely to have medical debt as young women who did not recently give birth. Among women ages 18-35, 14.3% of those who gave birth in the last year and a half have medical debt in excess of $250, compared to 7.6% of women in the same age group who did not have a child recently. This comparison group (7.6%) includes some women who have older children, so there could still be residual debt from an earlier birth.

KFF’s earlier survey of people experiencing health care debt also found that parents generally are significantly more likely than non-parents to report having health care debt from their own or someone else’s medical or dental bills.

The analysis is available through the KFF-Peterson Health System Tracker, an online information hub that monitors and assesses the performance of the U.S. health system.

KFF Comment Letter on CMS Request for Information on Data Access

Published: May 8, 2024

On May 8, 2024, KFF submitted this letter in response to the Centers for Medicare & Medicaid Services request for information about research data requests and access policy changes.  As KFF currently uses several CMS Research-Identifiable File datasets and would be affected by the changes, the letter outlines a number of concerns and options for CMS to consider.

View the letter [PDF]

News Release

What the Data Show: Black Women Report More Pervasive Negative Experiences in Health Care Compared to Other Groups

Published: May 8, 2024

A new analysis of data from KFF’s Survey on Racism, Discrimination, and Health shows Black women are more likely than other groups to report being treated unfairly by a health care provider in recent years because of their race and ethnicity and that these experiences have health consequences.

For example, among Black women who used health care in the past three years, 34% report at least one of three consequences because of a negative experience with a health care provider for any reason: worse health (13%), being less likely to seek care (19%), or switching providers (27%).

The findings shift with Black women’s health status: Black women who describe their physical and/or mental health as fair or poor are more likely than those who report better health to say that a negative experience resulted in worse health, being less likely to seek care, or switching providers in the past three years. In fact, about half (49%) of Black women with fair or poor mental health status say they experienced at least one of these consequences.

Although overall, most Black women report positive experiences receiving health care, they are more likely than other groups to report being treated unfairly by a health care provider because of their race and ethnicity (21%) and to say they prepare for possible insults or must be very careful about their appearance to be treated fairly during health care visits (61%).  The survey suggests such preparations—behaviors documented in other research areas as “heightened vigilance”—may be a response to past experiences.

Reflecting the importance of racial and ethnic diversity in the health care workforce, a shared racial and ethnic background between provider and patient is associated with more positive interactions for Black women. The survey finds that Black women who have more health care visits with providers who share their racial and ethnic background report more frequent positive and respectful interactions.

KFF’s  Survey on Racism, Discrimination and Health is a probability-based survey conducted online and by telephone, June 6-August 7, 2023, with a total of 1,306 women who identify as Black. Respondents were contacted via mail or telephone; and had the choice to complete the survey in English, Spanish, Chinese, Korean, or Vietnamese. The survey methodology was developed by KFF researchers in collaboration with SSRS and SSRS managed sampling, data collection, weighting, and tabulation. The margin of sampling error is plus or minus four percentage points for results based on the sample of Black women.

Additional resources from the Survey on Racism, Discrimination and Health:

Five Facts About Black Women’s Experiences in Health Care

Published: May 7, 2024

Black women account for one in seven women in the U.S. today and play an integral part of our workforce and communities. Despite making significant advances and contributions to U.S. society, Black women continue to face high levels of unfair treatment and systemic discrimination, making up disproportionate shares of people living in poverty and working in low-wage jobs. Reflecting the intersectional nature of their identity, Black women experience the combined impact of discrimination based on their gender in addition to their race. KFF’s 2023 Racism, Discrimination, and Health Survey is a major effort to document the extent and implications of racism and discrimination, particularly with respect to people’s interactions with the health care system. As reported in the overview report, a majority (54%) of Black women say they experienced at least one form of discrimination asked about in the survey in the past year, such as receiving poorer service than others at stores or restaurants.

In addition to these everyday forms of discrimination, Black women also report experiencing disproportionate levels of unfair treatment in health care settings. For example, about one in five (21%) Black women say they have been treated unfairly by a health care provider or their staff because of their racial or ethnic background and a similar share (22%) of Black women who have been pregnant or gave birth in the past ten years say they were refused pain medication they thought they needed. These experiences may contribute to ongoing disparities in health for Black women, including stark divides in maternal health.

Below are five key facts about Black women’s experiences in health care drawing on the survey. The findings highlight that while overall most Black women report positive interactions in health care settings, experiences with discrimination and unfair treatment due to race are pervasive among Black women of all backgrounds. Having more health care visits with a racially concordant provider is associated with increased reports of positive experiences in health care settings among Black women, illustrating the opportunities to increase high-quality and culturally competent care which may mitigate disparities in health.

Although overall most Black women report positive experiences receiving health care, they are more likely than other groups to report being treated unfairly by a health care provider due to their race and ethnicity and to say they prepare for possible insults or must be very careful about their appearance to be treated fairly during health care visits. Overall, similar to other groups, the majority of Black women report positive interactions when receiving health care in the past three years, such as a doctor spending enough time with them during their visit or explaining things in a way they can understand. However, compared to other groups, Black women are more likely to report being treated unfairly by a health care provider in the past three years. For example, Black women (21%) are more likely to say they have been treated unfairly by a health care provider because of their racial or ethnic background than are Black men (13%) and are seven times as likely to say this than are White women (3%). In another example, about six in ten (61%) Black women say they are very careful about their appearance or prepare for possible insults when seeking health care, similar to the share of Black men (57%), but roughly twice the share of White men (28%) who say the same.

Black Women More Likely Than Other Groups To Report Unfair Treatment and Practicing Vigilant Behaviors in Health Care Settings

Reports of unfair treatment by a health care provider due to race and ethnicity persist among Black women with higher incomes and are particularly high among those who are younger and those with darker skin tones. Across income groups, at least one in six Black women say they have felt they were treated unfairly or with disrespect because of their race or ethnic background during a health care visit in the past three years. There are some differences in experiences with unfair treatment among Black women by age and skin tone. Younger Black women are more likely than older Black women to say they have had this experience, with about a quarter of Black women ages 18-29 (23%) and 30-49 (26%) and one in five ages 50-64 (19%) reporting this compared with about one in ten (11%) Black women ages 65 and over. Black women who describe their skin tone as “very dark” or “dark” are also more likely to report these experiences compared to those who describe their skin tone as “light” or “very light” (27% vs. 17%).

Younger Black Women and Those With Darker Self-Reported Skin Tones Are Particularly Likely To Report Unfair Treatment by a Health Care Provider

Black women who are younger or who have self-reported darker skin tones are more likely than their counterparts to say they prepare for possible insults or feel they must be very careful about their appearance to be treated fairly during health care visits. Vigilant behaviors, such as preparing for insults or considering one’s appearance, are sometimes adopted by people who experience discrimination as a means of protection from the threat of possible discrimination and to reduce exposure. Research has shown that heightened vigilance is associated with poor physical and mental health outcomes, including hypertension, sleep difficulties, and depression. While about half or more Black women regardless of income, age, and skin tone say they do one or both of these things at least some of the time, the share of Black women who report these vigilant behaviors is higher among those who are younger and have darker skin tones. For example, seven in ten (71%) Black women with self-reported darker skin tones say they have to be very careful about their appearance and/or prepare for insults at least most of the time, whereas about half (56%) of Black women with self-reported lighter skin tones say the same.

Black Women Who Are Younger and With Self-Reported Darker Skin Tones Are More Likely Than Their Counterparts To Report Preparing for Possible Insults and Being Careful About Their Appearance During Health Care Visits

About one in three (34%) Black women who used health care in the past three years report that a negative experience with a health care provider resulted in worse health (13%), them being less likely to seek care (19%), and/or them switching providers (27%). Younger Black women are more likely than those ages 65 and over to report that a negative experience resulted in one of these consequences. In addition, Black women who describe their own physical and/or mental health as “fair” or “poor” are more likely than those who report better health to say that a negative experience resulted in worse health, being less likely to seek care, or switching providers in the past 3 years.

One in Three Black Women Say Negative Experiences With Health Care Providers Resulted in Worse Health, Reduced Likelihood to Seek Health Care, or Switching Health Care Providers

Black women who had at least half of their health care visits with a racially concordant provider report more positive interactions with their health care providers. For example, Black women who had at least half of recent visits with a provider who shares their racial or ethnic background are more likely than those who have fewer of these visits to say that their doctor spent enough time with them during their visit (80% vs. 66%), explained things in a way they could understand (90% vs. 82%), involved them in decision-making about their care (84% vs. 76%), understood and respected their cultural values or beliefs (84% vs. 75%), or asked them about social and economic factors (39% vs. 27%) during recent visits. However, about six in ten (63%) Black women say that less than half or none of their health care visits in the past three years have been with a provider who shared their racial or ethnic background. This suggests that increasing the diversity of the health care workforce may help increase positive interactions for Black women and points to importance of training and education among all providers to provide culturally competent and respectful care.

Black Women Who Have More Visits With Providers Who Share Their Racial or Ethnic Background Report More Positive Provider Interactions

Challenges and Strategies in Expanding Non-Traditional Pregnancy-Related Services: Findings from a Survey of State Medicaid Programs

Authors: Anna Mudumala, Kathleen Gifford, Usha Ranji, and Elizabeth Hinton
Published: May 3, 2024

Maternal and infant mortality rates in the U.S. are far higher than those in similarly large and wealthy countries, with people of color at increased risk for poor maternal and infant health outcomes compared to their White peers. As a result, policy makers at both the federal and state levels are increasingly focusing on improving maternal and infant health outcomes and reducing disparities. At the federal level, the Consolidated Appropriations Act made permanent the option for states to extend Medicaid postpartum coverage to 12 months. As of April 2024, 46 states have implemented the 12-month extension. In addition, the Biden administration has identified maternal health as a priority, and their recent budget proposal includes enhanced efforts to improve maternal care. The nation’s governors, acting through the National Governors Association, have recognized the urgent need for action releasing the Tackling the Maternal and Infant Health Crisis: A Governor’s Playbook in July 2023. Also, in the 2023 Medicaid budget survey, conducted by KFF and Health Management Associates (HMA), nearly a third of all responding states mentioned initiatives to improve maternal and child health as a top priority for the year ahead.

The Medicaid program has potential to influence maternal and infant health outcomes as it finances about 4 in 10 U.S. births. While Medicaid’s coverage of maternity care has traditionally focused on prenatal and postpartum physician visits and labor and delivery care, a growing number of states have added new pregnancy or postpartum benefits in recent years, such as doula services, lactation services, and home visiting programs, to promote better maternal and infant health outcomes and reduce racial/ethnic health disparities.

To better understand state initiatives to expand Medicaid coverage of these less commonly covered pregnancy-related services, the 23rd annual Medicaid budget survey, conducted by KFF and HMA asked states about strategies and challenges in promoting access to “non-traditional pregnancy-related care and services” and included childbirth education classes, doula services, home births, and home visits by lactation consultants as examples. The budget survey question was limited to services that were separately reimbursed as of July 1, 2023, outside of a hospital bundled payment and not as a component of an office or clinic visit. Maternity care is often reimbursed as a bundled payment that covers all professional services provided during the perinatal period, including prenatal care, labor and delivery, and postpartum care. These bundled payments do not typically cover non-traditional services. A previous KFF survey collected additional detail on pregnancy-related services included in bundled rates as of July 2021 and also identified specific pregnancy-related services provided by each state – detail that was not collected by the 2023 budget survey.

Forty-eight states (including DC) responded to the survey, although response rates for specific questions varied. The full report highlights state action to expand pregnancy and postpartum benefits including doula services, lactation supports, and home visiting programs.

As of July 1, 2023, more than two-thirds of responding states (32 of 47) reported coverage of at least one separately reimbursed, non-traditional pregnancy-related service. The following list describes services mentioned in state responses. A broader group of states may provide these services (like doula services) through a bundled payment.

  • Doula services. Doula services were the most frequently mentioned non-traditional service. Doulas are professionals who support pregnant and postpartum people by providing a variety of services throughout the pregnancy and postpartum period, including visits during the prenatal period, labor coaching and support at the time of delivery, and postpartum care and assistance. Doula services are linked to more positive delivery outcomes, including reductions in C-sections, premature deliveries, and length of labor.1 
  • Childbirth and/or parenting classes. There are a variety of education-related support services that can aid pregnant and postpartum individuals with pregnancy, delivery, and childrearing. These include childbirth education classes, infant and parenting education classes, and group prenatal care (e.g., Centering Pregnancy group prenatal care). While some states cover these services through their Medicaid programs, some states offer these services through other public health programs.
  • Outpatient lactation supports. Lactation support can be provided in multiple settings in the postpartum period, including in the hospital before discharge, at outpatient visits, or at home. Many Medicaid enrollees are also eligible for WIC, which provides lactation support.
  • Lay or “direct entry” midwife services as a non-traditional covered service. Midwives use a holistic, person-centered care model that has been linked to better maternal and infant outcomes. Most states only include certified nurse-midwives (CNMs) in their provider networks, as required by federal law, but recent state action has extended Medicaid coverage to other midwife providers, including midwives who may be credentialed to provide childbirth support and services despite not having a formal nursing education. States use various terms to refer to midwives without a nursing degree, including licensed midwife, direct entry midwives, licensed lay midwife, certified midwives, certified professional midwives, traditional midwife, and verifiable midwife.
  • Home births. International studies suggest that home births may be as safe as hospital births for low-risk pregnant individuals and infants when they are part of an integrated and regulated system. Nevertheless, home births account for a small share of births in the U.S., although there has been growing interest since the start of the COVID-19 pandemic. Doulas, midwives, or physicians may be in attendance for home births.
  • Other services. Other covered pregnancy-related services mentioned by at least one state as “non-traditional” include specialized care management or care coordination programs, home visiting programs, and pregnancy care via telehealth.
States that Separately Reimburse Non-Traditional Pregnancy-Related Care

In addition to state efforts, there are federal efforts to expand access to non-traditional pregnancy-related services. In June 2022, the White House identified workforce expansion and diversification as one of its five goals for addressing the nation’s maternal health crisis. This goal includes, in part, promotion of doulas, midwives, and community health workers. Subsequently, CMS announced the Transforming Maternal Health (TMaH) Model in December 2023. The new model aims to improve maternal and infant health outcomes and reduce disparities by providing technical assistance and grant funding to up to 15 state Medicaid agencies. TMaH will help participating states improve access to care, including care from doulas and perinatal community health workers. The Biden Administration’s recently proposed budget also directs more than $300 million to improving maternal health, including an additional $5 million to grow and diversify the doula workforce. The proposed budget also includes an optional Medicaid maternal health support benefit aiming to address equity issues in maternal health outcomes. The benefit would include coverage of doulas, community health workers, and peer support workers. However, with a divided Congress, those budget proposals are not likely to be passed this year.

While non-traditional pregnancy-related services have the potential to improve maternal health outcomes and reduce disparities, access-related challenges may limit utilization, despite state efforts to establish coverage and encourage take-up. Documented access-related barriers include workforce shortages, restrictive provider training/licensure requirements, low reimbursement rates, billing complexities, and quantity limitations. The 2023 Medicaid budget survey asked states about these challenges and initiatives to address them. The survey divided these challenges into six categories: 1) workforce shortages, 2) provider enrollment//training/certification/licensing needs, 3) low reimbursement rates, 4) billing challenges, 5) quantity limitations on hours/visits allowed, and 6) “other.”

Twenty-five states reported a challenge in at least one specified category. The following section describes the challenges most frequently mentioned by states and the approaches cited for addressing those challenges, if any. In some cases, initiatives to respond to challenges involve collaborative efforts between Medicaid agencies and managed care organizations (MCOs), state-level provider licensing boards, and/or private licensing entities.

State Challenges in Promoting Access to Non-Traditional Pregnancy Care

The most frequently cited challenges related to provider enrollment, training, certification, or licensing. Eighteen states reported challenges in this category. States have varying approaches and standards for certifying or licensing non-traditional providers. For example, doulas have not historically received state medical board licenses, though many do receive certifications from private entities (which may involve significant training and cost). However, to receive Medicaid reimbursement, doulas must enroll as Medicaid providers and meet the state Medicaid department’s relevant qualification standards. Some doulas find this process to be challenging as it can involve costly and administratively burdensome training standards. Also, midwives can have varying levels of education and training (as described above) which could impact their ability to meet Medicaid enrollment requirements or limit the settings for which they can receive Medicaid reimbursement, particularly those who have not received nursing degrees.

Only a few states mentioned initiatives to address these challenges: Michigan has developed provider support materials, trainings, and toolkit information; Montana reported developing an outreach and education plan; New Jersey Medicaid staff are working with MCOs and the New Jersey Department of Health-funded Doula Learning Collaborative to provide technical assistance; in Virginia the Department of Health and the Virginia Certification Board are working to increase the number of doula training entities; and Wisconsin reported that it planned to update the state’s administrative code to allow additional non-traditional providers to become certified.

Seventeen states reported workforce shortage challenges. Several states reported that broader health care workforce shortages were also affecting the non-traditional pregnancy-related services workforce. States specifically mentioned shortages of doulas, lactation consultants, and providers of childbirth classes. In addition to widespread shortages brought on by the COVID-19 pandemic, states cited training requirements (discussed above) as a barrier to growing the non-traditional workforce. A few states noted specific initiatives to address workforce shortages in rural areas. For example, Kansas allows access to lactation consultants via telehealth to help improve access in rural areas, and New Mexico uses midwife services to improve access to care in rural areas with existing physician/OBGYN shortages.

At least four states described efforts to increase their doula workforce: New Jersey is working with non-profits, MCOs, and their sister agencies to increase access to accepted doula trainings; Virginia is recruiting more doulas to create an adequately sized doula workforce for their expected number of pregnant enrollees; Michigan is financing doula training courses, and Maryland is collaborating with their state’s Maternal and Child Health Bureau to recruit more doulas.

Fifteen states cite billing challenges for non-traditional pregnancy-related service providers. Several states noted that these providers are not familiar with Medicaid and MCO billing processes, which may be complex and time-consuming resulting in delays in payments as well as frustrations working with Medicaid agencies and MCOs. For example, Michigan reported that providers don’t always have the technology needed for Medicaid billing and New Jersey reported that doulas are not accustomed to the amount of paperwork for Medicaid billing. Some states are providing technical assistance, resources, and training to help providers navigate billing. For example, New Mexico reported exploring ways to streamline the billing process and Virginia is working with MCOs to provide support to doulas in Medicaid and MCO billing.

Eleven states reported low reimbursement rates for non-traditional providers as a challenge. Low reimbursement rates can disincentivize providers from enrolling in Medicaid, limiting access for Medicaid enrollees. This has been a barrier for perinatal professionals for many years. For example, in California implementation of Medicaid coverage for doula services was delayed due to disputes between the state and doula organizations over reimbursement rates. Non-traditional providers emphasize patient education and support, which means that they often spend extensive time with patients, and many have reported that Medicaid rates are not sufficient for covering their costs. Some states reported actions to address low reimbursement rates. Iowa and Indiana are evaluating their current reimbursement rates; Ohio is matching reimbursement rates to other programs, like the federal Maternal, Infant, and Early Childhood Home Visiting (MIECHV) Program; Kansas has plans to increase reimbursement rates for lactation services, and Wisconsin recently increased rates for prenatal care coordination services.

Five states reported challenges related to quantity limitations on hours or visits for doula services, childbirth education classes, and/or lactation supports. For example, while Virginia Medicaid currently reimburses doula services for up to eight prenatal/postpartum visits (90 minutes for the initial prenatal visit and one hour for other visits), the state reported that doulas have expressed the desire to have more allowed visits – e.g., a total of 12-16 visits, 6-8 prenatal and 6-8 postpartum visits — and longer visits. Also, Indiana reported that efforts were underway to develop doula-specific service limitations as the Community Health Worker benefit currently used to reimburse doula services was subject to visit limits that were “not conducive to doula activities.”

Four states commented on “other” challenges: California commented on working with hospitals to allow doulas access during birth; Georgia cited access to services in rural areas as a challenge; Missouri noted as a challenge the need to disenroll members from MCOs for a home birth to be covered through fee-for-service reimbursement payment; and Oklahoma commented on the challenge of structuring the doula services benefit in a way that allows doulas and patients to be matched on the basis of race, ethnicity, and language.

This brief draws on work done under contract with Health Management Associates (HMA). Kathleen Gifford is an expert on state Medicaid programs and a Principal at HMA.

  1. According to the National Health Law Program, 21 states covered or were implementing Medicaid coverage of doula services as of February 2024 (which could include services reimbursed through a bundled payment). ↩︎
News Release

KFF Examines Implications of Dobbs-era Abortion Bans and Restrictions for Miscarriage or Stillbirth

Published: May 2, 2024

In a new brief, KFF explores how abortion bans and restrictions in the aftermath of the Supreme Court’s 2022 Dobbs decision can further complicate pregnancy loss. 

Pregnancy loss, which includes miscarriage and stillbirth, is common, and for many people, it is a physically, mentally, and emotionally taxing experience. The medical interventions used to manage miscarriages and stillbirths are often the same medicines and procedures used in abortions, which means abortion bans and restrictions can end up limiting care for pregnancy loss. 

Further, the threat of criminalization and penalties for clinicians who provide abortions in states with bans can create a chilling effect on clinical care. Four in 10 OBGYNs who practice in states with abortion bans report that management of miscarriages and pregnancy-related emergencies has become worse since the Dobbs ruling.  While all state abortion bans have exceptions for cases of life endangerment of the pregnant person, they don’t account for the wide range of circumstances people may face when experiencing a pregnancy loss. Meanwhile, the growing record of documented cases of people experiencing pregnancy-related emergencies who have been denied care highlights what abortion restrictions can mean for pregnancy loss management.