Early 2021 Data Show No Rebound in Health Care Utilization

Authors: Kieran Gallagher, Jackie Gerhart, Krutika Amin, Matthew Rae, and Cynthia Cox
Published: Aug 17, 2021

This analysis by KFF and Epic Health Research Network (EHRN) finds that hospital admissions remained below expected levels in early 2021, suggesting much of the care people put off during the early months of the COVID-19 pandemic may have been forgone altogether. Though admissions for COVID-19 in March 2021 were down from their peak in January 2021 as vaccines became available, the virus continued to drive a significant share of admissions to hospitals. Health spending more broadly remains below pre-pandemic levels.

The analysis is based on electronic medical record data from EHRN on nearly 10 million admissions since 2017.

It is available on the Peterson-KFF Health System Tracker, an online information hub dedicated to monitoring and assessing the performance of the U.S. health system.

News Release

KFF’s Kaiser Health News Expands With a New Southern Bureau to Grow Journalism About Health, Equity, Race and Poverty in the South and Texas

Robert Wood Johnson Foundation—the Nation’s Largest Philanthropy Focused on Health and Equity—Provides Seed Funding

Published: Aug 16, 2021

Project will Leverage KHN’s Reporting, Editing and Distribution Capacity to Strengthen Local Health Journalism in Communities Across the South

SAN FRANCISCO, Calif. — KFF will expand its Kaiser Health News (KHN) operation and health journalism across the South with $2.3 million in funding from the Robert Wood Johnson Foundation (RWJF) to produce more journalism focusing on health, race, equity, and poverty in the region.

With RWJF’s support, adding to KFF’s staff capacity, KFF will seek support from other national funders as well as state and regional donors with the goal of expanding the effort across the Southern states and in Texas.

In the start-up phase, KFF plans to establish a Southern Bureau with a home office in Atlanta and nine new positions to support reporting in at least five states. KHN also will work with freelancers and media partners throughout the region. This expansion brings the number of KHN regional bureaus to four – including those in California, the Midwest, and the Mountain States – in addition to the KHN national newsroom in KFF’s Washington D.C. offices.

Veteran journalist Andy Miller, CEO and editor of Georgia Health News, will be Interim Bureau Chief of the new KHN outpost, and the nonprofit news service that Miller founded 11 years ago will become part of KHN. Sabriya Rice, another distinguished journalist and the Knight Chair in Health and Medical Journalism at the University of Georgia’s Grady College of Journalism and Mass Communication, will join the enterprise beginning as Senior Advisor to the bureau.

KFF will establish a pool of funds to be used to seek matching commitments from national, state, and regional funders throughout the South to expand the initiative. KHN will seek to partner with local media throughout the region to produce deeply reported stories that shed light on underreported issues. The South has long fared poorly on measures of health care access and health outcomes and has been marked by chronically high rates of uninsured residents — problems inextricably linked with larger issues of politics, race, and inequality. The coronavirus pandemic has thrown such disparities into even sharper relief.

The goal is to bring the same high-quality health and health policy journalism that KHN produces elsewhere to the South, and to bring important stories from the Southern Bureau to the nation. As with all its journalism, KHN stories produced from the Southern Bureau will be made freely available for publication by media outlets throughout the region and the country and will be published on kffhealthnews.org and distributed through KHN’s social media platforms.

“The pandemic has taught us many lessons about how America prioritizes health, how poverty and skin color often determine health and opportunity, and why timely and accurate information from trusted sources is absolutely vital to the health of our nation,” said Richard E. Besser, President and CEO of the Robert Wood Johnson Foundation. “We believe that cultivating more local journalism of the caliber thatKHN produces can bring about a more equitable approach to health policy and practice in this region, and we encourage others to join this effort.”

“We have wanted to expand KHN and health journalism in the South where the need is so urgent for years,” said KFF President and CEO Drew Altman, who is also KHN’s founding publisher. “The Robert Wood Johnson Foundation’s seed funding and its backing has now made this possible and I am enormously grateful to RWJF for making the difference in getting this top priority initiative launched.”

Media organizations interested in working with KHN should contact KHN at KHNPartnerships@kff.org and those interested in providing additional funding support to expand and improve health journalism in the South and beyond should contact KFF at healthjournalism@kff.org. Employment opportunities for the Southern Bureau will be posted soon at https://www.kff.org/employment-opportunities/.

About KFF and KHNKHN (Kaiser Health News) is a national newsroom that produces in-depth journalism about health issues. Together with Policy Analysis and Polling, KHN is one of the three major operating programs at KFF (Kaiser Family Foundation). KFF is an endowed nonprofit organization providing information on health issues to the nation.

About the Robert Wood Johnson FoundationSince 1972, the Robert Wood Johnson Foundation has supported research and programs to uncover the many factors that impact health, and enable people and communities to be as healthy as possible. Working alongside public health leaders, entrepreneurs, research scientistspolicymakers and community leaders, the Foundation is committed to ensuring that everyone has a fair and just opportunity to achieve better health where we livelearnwork and play.

News Release

Children Head Back to School Amid an Ongoing Pandemic That Has Had Significant Effects on Their Health and Well-Being

Published: Aug 13, 2021

As students head back to in-person school this fall, a new KFF brief highlights the effects of the ongoing pandemic on the health and well-being of children, including missed routine vaccinations and preventive care, mental health challenges and economic setbacks that can influence health.

There had been over 4 million COVID-19 cases among children as of July 29, 2021, with children comprising an increasing share of new cases due to the Delta variant. At the same time, eligible children (those aged 12 and older) have lower COVID-19 vaccination rates than the adult population, and elementary school-aged children remain ineligible for a vaccine.

While experts generally agree the benefits of in-person school outweigh the risks from the virus, the health care disruptions, mental health challenges, and economic hardships stemming from COVID-19 all have implications for children’s health, and some children may need additional supports during their transition back to school.

Among the key findings in the new analysis are high rates of disruptions in routine vaccinations or preventive care and difficulty accessing care. For instance, an estimated 1 in 4 households with children have a child who missed, delayed, or skipped a preventive appointment in the past 12 months due to the pandemic, according to KFF analysis of the Household Pulse Survey from June 23 – July 5, 2021. Use of telemedicine has increased but not enough to offset overall declines in service utilization.

Households with children also have experienced significantly higher rates of economic hardship during the pandemic than households without children. Among adults reporting income loss in the past 4 weeks, 91 percent of adults with children in the household reported difficulty paying for expenses in the past week, 20 percent reported not having confidence in their ability to make their next month’s housing payment, and 32 percent reported food insufficiency – all rates higher than those among adults living in households without children. Black, Hispanic, and other people of color have been disproportionately impacted by the pandemic’s economic effects.

The full analysis, Back to School amidst the New Normal: Ongoing Effects of the Coronavirus Pandemic on Children’s Health and Well-Being, as well as other data and analyses related to COVID-19, are available at kff.org.

Back to School amidst the New Normal: Ongoing Effects of the Coronavirus Pandemic on Children’s Health and Well-Being

Published: Aug 13, 2021

Issue Brief

As millions of children across the nation prepare to go back to school this fall, many will face challenges due to ongoing health, economic, and social consequences of the pandemic. Children may be uniquely impacted by the pandemic, having experienced this crisis during important periods of physical, social, and emotional development, and some have experienced the loss of loved ones. Further, households with children have been particularly hard hit by loss of income, food and housing insecurity, and disruptions in health care coverage, which all affect health and well-being. Public health measures to reduce the spread of the disease also led to disruptions or changes in service utilization, difficulty accessing care, and increased mental health challenges for children. Young children are still not eligible for vaccination, and though children are likely to be asymptomatic or experience only mild symptoms, they can contract COVID-19. Children may face new risks due to the rapid spread of the Delta variant, and some children who contract COVID-19 experience long-term effects from the disease.  Many of these effects have disproportionately affected low-income children and children of color, who faced increased health and economic challenges even prior to the pandemic. This brief examines how the COVID-19 pandemic has affected the health and well-being of children, explores recent policy responses, and considers what the findings means for the back-to-school season amidst new challenges due to the recent increase in cases and deaths. Key findings include:

  • During the pandemic, some children experienced disruptions in routine vaccinations or preventive care appointments and difficultly accessing care, particularly dental and specialized care. Use of telemedicine has increased but not enough to offset declines in service utilization overall.
  • Children’s mental health service utilization declined amid elevated symptoms of depression, anxiety, and psychological stress for children and parents.
  • Households with children have experienced significantly higher rates of economic hardships throughout the pandemic compared to households without children, leading to increased barriers to adequately addressing social determinants of health. Black, Hispanic, and other people of color have been disproportionately impacted by the pandemic’s economic effects.
  • Though the risk of severe illness from COVID-19 is lower for children than adults, over 43,000 children are estimated to have lost a parent due to COVID-19, with Black children being disproportionately impacted by parent death.
  • Most children are likely to be back in the classroom this fall, but many still face health risks due to their or their teachers’ vaccination status. Some states and school districts are beginning to announce mask or vaccine requirements while others are banning vaccine or mask mandates for schools.

Recent policy developments, most notably the American Rescue Plan Act and the American Families Plan, attempt to alleviate some of the existing and pandemic-induced issues impacting children’s health and well-being. However, there is still uncertainty around what back to school will look like this fall, and the transition to “the new normal” may be more difficult for some. Schools, parents, and policymakers may face additional pressure to address the ongoing effects of the pandemic on children.

Children’s Health Care Disruptions and Mental Health Challenges

The pandemic has led to delays in child vaccinations and preventive care. KFF analysis of the Household Pulse Survey from June 23 – July 5, 2021 estimates 25% of households with children have a child who has missed, delayed, or skipped a preventive appointment in the past 12 months due to the pandemic (Figure 1). Preliminary Medicaid administrative data confirms this pattern, showing that when comparing March 2020 – October 2020 to the same months before the pandemic in 2019, there were approximately 9% fewer vaccinations for children under 2 and 21% fewer child screening services. Rates for primary and preventative care among Medicaid beneficiaries show signs of rebounding in more recent months with service use reflecting pent-up demand, but it is unclear whether this trend will continue and make up for the millions of services missed early in the pandemic. Another recent study similarly reports vaccinations for all children declined sharply after March 2020. The study also finds vaccinations have completely recovered for children under 2 but have only partially recovered for older children.

Figure 1: Children have missed or delayed preventive appointments and utilized telehealth during the pandemic

Children also experienced difficulty accessing and disruptions in specialty and dental care. Parents have reported delaying dental care or difficulty accessing dental care for their child, and there were 39% fewer dental services for Medicaid/CHIP beneficiaries under 19 when comparing the pandemic months March 2020 – October 2020 to the same months in 2019. Children with special health care needs experienced difficulties accessing specialized services, especially services that could not be conducted via telehealth.

Children’s utilization of telemedicine services has increased since the pandemic, but the increase has not offset the decreases in service utilization overall. Preliminary data suggest that telehealth utilization for Medicaid/CHIP beneficiaries under 19 increased rapidly in April 2020 and remains higher than before the pandemic. 23% of households with children surveyed by the Household Pulse Survey from June 23 – July 5, 2021 reported a child having a telehealth appointment in the past 4 weeks (Figure 1). Throughout the pandemic, the federal government and states have taken action to expand access to telehealth services. While telehealth utilization has increased, the increase has not offset the decreases in service utilization overall, and barriers to accessing health care via telehealth may remain, especially for low-income patients or patients in rural areas.

Children’s mental health and mental health service utilization has worsened since the start of the pandemic. The pandemic caused disruptions in routines and social isolation for children, which can be associated with anxiety and depression and can have implications for mental health later in life. Also, research has shown that as economic conditions worsen, children’s mental health is negatively impacted. Parents with young children reported in October and November of 2020 that their children showed elevated symptoms of depression, anxiety, and psychological stress and 22% experienced overall worsened mental or emotional health. Recent studies by the Centers for Disease Control and Prevention (CDC) find children’s emergency department visits increased during the pandemic for mental health-related emergencies and suspected suicide attempts by children ages 12 to 17. At the same time, mental health service utilization has declined, with preliminary data for Medicaid/CHIP beneficiaries suggesting there have been approximately 34% fewer mental health services when comparing the pandemic months March 2020 – October 2020 to the same months in 2019. Private mental health care claims also decreased from 2019 to 2020. There has been an increase in access to mental health care through telehealth, but there remain technological and privacy barriers to accessing mental health services via telehealth for some children.

Parental stress and poor mental health due to the pandemic can negatively affect children’s health. A previous KFF analysis finds economic uncertainty has led to increased mental health challenges, especially for adults in households with children and specifically mothers in those households. Further, 46% of mothers who reported a negative mental health impact due to the pandemic were not able to access needed mental health. Parental stress can negatively affect children’s emotional and mental health, harm the parent-child bond, and have long-term behavioral implications. Maternal depression can worsen child health status and lead to less preventative care. Additionally, parental stress and financial hardship can lead to an increased risk of child abuse and neglect. Early evidence shows declines in child abuse during the pandemic, though it is unclear if that is due to decreased reporting or due to social policy interventions during the pandemic. Children’s existing and pandemic-induced mental health challenges may have implications for the transition back to school and indicate children may need additional mental health support when they return to school.

Pandemic-related challenges in children’s access to health care built on a system that was sometimes not meeting needs even before the pandemic, especially for low-income children. In 2019, 23% of children living in households with incomes below 100% of the federal poverty level (FPL) were estimated to have not received a preventative check-up in the past 12 months and 26% did not see a dentist for a preventive visit during the past 12 months (Figure 2). Some children with mental health needs were not receiving care, with an estimated 29% of the lowest income children who needed mental health services not able to access care (Figure 2). The pandemic may have made it even more challenging for children already experiencing difficulties accessing care and likely worsened existing disparities in access to needed care for children of color, children with special health care needs, children in low-income households, and children living in rural areas.

Figure 2: Even before the pandemic, some children were not receiving preventive care or mental health care

The Economic Downturn and Children’s Well Being

Following the onset of the COVID-19 pandemic, many families with children were faced with unemployment and income loss and continue to face economic hardship. Throughout the pandemic, households with children were consistently more likely to report job or income loss, with more than half of households with children reporting losing income between March 2020 and March 2021.1  While national indicators signaling job and income loss have moderated in recent months, they are still not at pre-pandemic levels. KFF analysis of the Census Bureau’s Household Pulse Survey from June 23 – July 5, 2021 found 12% of adults with children in the household applied for Unemployment Insurance (UI) benefits and 23% experienced loss of income in the past 4 weeks (Figure 3). These rates were significantly higher compared to adults without children in the household.

Figure 3: Households with children are experiencing higher rates of job or income loss compared households without children

Loss of family income affects parents’ ability to provide for children’s basic needs. KFF analysis of the Census Bureau’s Household Pulse Survey also found that among adults reporting income loss in the past 4 weeks, 91% of adults with children in the household reported difficultly paying for expenses in the past week, 20% reported not having confidence in their ability to make their next month’s housing payment, and 32% reported food insufficiency (Figure 4). All of these rates are significantly higher for adults living in households with children than adults living in households without children. A large body of research shows that economic instability is a social determinant of health outcomes for children.

Figure 4: Among households experiencing income loss, households with children are experiencing higher rates of hardship

Further, Black, Hispanic,2  and other households of color have been disproportionately impacted by the pandemic and its economic effects. In 2019, Black and Hispanic children were nearly three times more likely to be living in poverty than Asian and White children, and food insufficiency rates before the pandemic were three times higher for Black households and two time higher for Hispanic households when compared to White households. A recent report found Hispanic and Black households with children have experienced almost double the rate of economic or health-related hardships during the pandemic compared to White and Asian households with children. Overall, child poverty rates children have increased during the pandemic, especially among Hispanic and Black children.

Job and income loss may lead to disruptions in children’s health coverage, though increased coverage through Medicaid and CHIP is likely offsetting much of that decline. Roughly 2 to 3 million people between March and September 2020 have lost employer health benefits, a trend that built on years of coverage losses among children. From 2016 and 2019, the rate of uninsured children in the US started to increase despite reaching the lowest rate in history (4.7%) in 2016, with the rate of uninsured Hispanic children increasing more than twice as fast as the rate for non-Hispanic youth. Loss of coverage or coverage interruptions can negatively impact children’s ability to access needed care.3 ,4 ,5  During the pandemic, Medicaid and CHIP provided a safety net for many children. Administrative data for Medicaid show that children’s enrollment in Medicaid and CHIP has increased between February 2020 and February 2021, a total increase of 3.2 million enrollees, or 9.1%, from child enrollment in February 2020 (Figure 5).

Figure 5: Child Medicaid/CHIP enrollment has increased since the pandemic

Children’s Health and COVID-19

While likely to be asymptomatic or experience only mild symptoms, children can contract COVID-19. Preliminary data through July 29, 2021 show there have been over 4 million child COVID-19 cases, and children with underlying health conditions may be at an increased risk of developing severe illness. Though a small percentage, some children who tested positive for the virus are now facing long haul symptoms, with multisystem inflammatory syndrome in children (MIS-C) the most-common complication that has impacted 4,000 children as of June 2, 2021. It is unclear how long symptoms will last and what impact they will have on children’s long-term health. Cases have risen in recent weeks due to the Delta variant, and children are making up an increasing share of new cases, with children making up 19.0% of cases for the week ending in July 29 compared to 14.3% since the pandemic began. Hospitalizations of children with COVID-19 have also been rising since early July, reaching 216 children, on average, being admitted to the hospital every day for the week of July 31 – August 6, 2021.

Eligible children have lower vaccination rates than the adult population, and some children remain ineligible for a vaccine. Children 12 and up are now able to be vaccinated against COVID-19, which reduces the risk of adolescents contracting, spreading, or experiencing severe symptoms from COVID-19. Approximately 37% of children ages 12-15 and 48% of children ages 16-17 have received at least one vaccine dose as of July 26, 2021. These rates are lower than the adult population, which reached 70% as of August 2, 2021. There is currently no COVID vaccine for children under the age of 12, so  some risk remains for that population to contract and spread the virus. Vaccine clinical trials are currently underway for children under 12, with authorization expected by the end of 2021. The KFF COVID-19 Vaccine Monitor recently reported that almost half of parents of children ages 12-17 say their child has received a COVID-19 vaccine or they intend to get them vaccinated right away. The report also found that parents’ vaccination intentions for their children are largely correlated with their own vaccination status and those who say their child’s school provided information on or encouraged COVID-19 vaccines are more likely to report their child has received a vaccine. The KFF COVID-19 Vaccine Monitor also found that parents are more cautious when it comes to vaccinating their child under 12, with about a quarter saying they would get their child between the ages of 5 and 11 vaccinated right away once the vaccine is authorized and four in ten saying they would wait and see.

Some children have experienced COVID-19 through the loss of one or more family members due to the virus. A study estimates that, as of Feb. 2021, 43,000 children in US have lost at least one parent to COVID-19. The study also finds Black children represent only 14% of children in the US but 20% of children who have lost a parent, and low-income communities and communities of color overall experienced higher COVID-19 case rates and deaths. Losing a parent can have long term impacts on a child’s health, increasing their risk of substance abuse, mental health challenges, poor educational outcomes, and early death. Further, the death of a loved one from COVID-19 may have occurred amid increased social isolation and economic hardship due to the pandemic. Estimates indicate a 17.5% to 20% increase in bereaved children due to COVID-19, indicating an increased number of grieving children who may need additional supports as they head back to school in the fall.

Policy Responses

Several policies passed during the pandemic provided financial relief for families with children. To address the economic fallout of the pandemic, the federal government passed relief bills that included direct financial relief for families, and evidence suggests material hardships that affect health, such as food insufficiency and financial instability, declined following stimulus payments. In addition, the March 2021 American Rescue Plan Act (ARPA) included targeted aid to families with children through the Child Tax Credit (CTC). The ARPA is projected to decrease the number of children living in poverty by over 40%, with the expanded CTC now reaching children previously too poor to qualify and giving families in the lowest quintile an average income boost of $4,470. Alleviating child poverty is associated with improved child health outcomes such as healthier birthweights, lower maternal stress, better nutrition, and lower use of drugs and alcohol.

Other recent policies directly target children’s health coverage or access to health care. To address health care coverage, the ARPA extended eligibility to ACA health insurance subsides for people with incomes over 400% of poverty and increased the amount of assistance for people with lower incomes. The ARPA also included incentives for states to expand Medicaid for low-income adults under the ACA and extend Medicaid postpartum coverage for up to 12 months, both of which could benefit the health and well-being of families.6 ,7  The Child Tax Credit, expanded by the ARPA, is not taxable income, so expanding the tax credit will not count toward Medicaid eligibility. To address access to health care challenges, the federal government and many states are making policy changes to permanently expand access to telehealth services. In their most recent report to congress, the Medicaid and CHIP Payment and Access Commission (MACPAC) recommended more coordinated efforts by agencies to address the design and implementation of benefits and improve access to home and community-based behavioral health services for Medicaid/CHIP children with significant mental health needs. In addition, the Biden Administration created a program to provide relief for COVID-19 related funeral costs, but targeted services for bereaved children were not included.

Back to School

Most children are likely to be back in the classroom this fall, but many still face health risks due to their or their teachers’ vaccination status and increasing transmission due to the Delta variant. The vast majority of schools, 88% of schools with 4th grade and 89% of schools with 8th grade, in the U.S. offered hybrid or full-time, in-person learning in Spring 2021, according to a federal survey. Most of these schools, as well as others, are likely to be in-person in fall 2021. While many states allow for in-person learning decision to be made at the local level, nine states have mandated schools return to in-person learning for the 2021-22 school year as of June 2021. No states are requiring the COVID-19 vaccine for school attendance at this time, and some states have enacted legislation to ban vaccine mandates for school attendance. However, due to concerns over the Delta variant and rising cases, some local districts are beginning to require the COVID-19 vaccine for teachers and staff. There have been legal challenges to vaccine mandates, with a federal District Court in Texas recently upholding a Hospital’s mandatory COVID-19 vaccination policy for employees. The CDC recently updated their guidance for COVID-19 in schools, recommending masks for all staff and students regardless of vaccination status for in-person learning in the fall. While some states and school districts will require students and staff to wear masks at school, at least nine states have passed legislation to ban mask mandates for schools as of late July 2021. Recent KFF polling shows that about half the public overall supports K-12 schools requiring COVID-19 vaccination, but most parents are opposed, with divisions along partisan lines.

While returning to in-person learning can support children’s development and well-being, the transition back to school in the fall may be challenging for some children. Experts notes that in-person learning is beneficial for children’s social, emotional, and physical health and can provide access to important health services and address racial and social inequities. However, this school year will look different for many children due to COVID-19 prevention strategies and transitioning back to “the new normal” may be difficult for some, especially those who have adapted to new routines and virtual learning in the past year. Children’s mental health has worsened during the pandemic, which could make the transition back to school more challenging. Additionally, young children who have been home with parents during the pandemic may experience separation anxiety as they transition back to school or day care.

Schools and proposed policies may provide additional supports for children and families as they transition back to school. The increased Child Tax Credits began July 15th and will continue monthly, but the enhanced CTC was only adopted for 2021. The American Families Plan put forth by the White House proposes to extend the CTC expansion through 2025 and make the credit permanently available to families with no earnings. The American Families Plan also proposes expanding school meals and access to healthy foods, making the summer EBT program permanent, and expanding SNAP eligibility for formerly incarcerated individuals. The American Families Plan also proposes a national paid family and medical leave program and universal pre-kindergarten, both of which research has shown have benefits for children’s health outcomes.8 ,9   President Biden and congressional Democrats also recently released a reconciliation budget resolution that includes expanded child tax credits and investments in universal pre-k, child care, paid leave, and education. Other policy actions at the local level can also address children’s well-being. For example, schools and school districts can support students as they transition back to school by creating a safe in-person learning environment, providing staff and resources to support students having difficulty transitioning, ensuring staff and teachers have access to mental health resources, and developing a trauma-informed plan to respond to COVID-19 related trauma.

COVID-19 and the health care disruptions, mental health challenges, and economic hardships stemming from COVID-19 all have implications for children’s health and their transition back to school in the fall. While returning to in-person learning can support children’s development and well-being, uncertainty remains around what in-person learning will look like as cases rise due to the Delta variant and the transition to “the new normal” may be difficult for some children and their families. Recent policy developments attempt to address the ongoing effects of the pandemic on children, and schools, parents, and policymakers may face additional pressure to support children during this time.

Endnotes

  1. KFF analysis of Census Bureau’s Household Pulse Survey. ↩︎
  2. Federal surveys generally ask whether respondents are “of Hispanic, Latino, or Spanish origin.” This brief uses Hispanic. Persons of Hispanic origin may be of any race but are categorized as Hispanic. ↩︎
  3. Jennifer DeVoe, et al., “Mind the Gap” in Children’s Health Insurance Coverage: Does the Length of a Child’s Coverage Gap Matter?”, Ambulatory Pediatrics: 8,2 (2008): 129-34. doi:10.1016/j.ambp.2007.10.003. ↩︎
  4. Karyn Schwartz, Spotlight on Uninsured Parents: How a Lack of Coverage Affects Parents and their Families (Commission on Medicaid and the Uninsured, Kaiser Family Foundation, June 2007), http://kff.org/medicaid/issue-brief/spotlight-on-uninsuredparents-how-a-lack/. ↩︎
  5. Martha Heberlein, et al., Medicaid Coverage for Parents under the Affordable Care Act (Georgetown University Center for Children and Families, June 2012), http://ccf.georgetown.edu/wp-content/uploads/2012/06/Medicaid-Coverage-for-Parents1.pdf. ↩︎
  6. Madeline Guth and Meghana Ammula, Building on the Evidence Base: Studies on the Effects of Medicaid Expansion, February 2020 to March 2021 (Kaiser Family Foundation, May 6, 2021), https://modern.kff.org/medicaid/report/building-on-the-evidence-base-studies-on-the-effects-of-medicaid-expansion-february-2020-to-march-2021/. ↩︎
  7. Usha Ranji, Ivette Gomez, and Alina Salganicoff, Expanding Postpartum Medicaid Coverage (Kaiser Family Foundation, March 9, 2021), https://modern.kff.org/womens-health-policy/issue-brief/expanding-postpartum-medicaid-coverage/ ↩︎
  8. Maya Rossin-Slater and Lindsey Uniat, Paid Family Leave Policies and Population Health (Health Affairs, March 28, 2019), https://www.healthaffairs.org/do/10.1377/hpb20190301.484936/full/. ↩︎
  9. Jorge Luis García, James Heckman, Duncan Ermini Leaf, and María José Prados, The Life-cycle Benefits of an Influential Early Childhood Program, National Bureau of Economic Research Working Paper Series, No. 22993 (December 2016), https://www.nber.org/papers/w22993. ↩︎

How Would Drug Price Negotiation Affect Medicare Part D Premiums?

Published: Aug 12, 2021

Proposals to allow the federal government to negotiate prescription drug prices, such as H.R. 3, the Elijah E. Cummings Lower Drug Costs Now Act, aim to lower out-of-pocket drug costs for Medicare beneficiaries and private plan enrollees and achieve savings for Medicare. The debate over a budget reconciliation package in the coming weeks, and possibly months, is likely to focus heavily on the savings to Medicare, which can be used to expand Medicare benefits and fund other health care priorities. However, by lowering Medicare spending for Part D, which covers retail prescription drugs, drug price negotiation proposals would also be expected to lower premiums that beneficiaries pay for Part D coverage.

According to an analysis by Medicare’s actuaries of the version of H.R. 3 that passed the House of Representatives in the 116th Congress, the drug price negotiation provisions in the legislation would reduce spending by Medicare Part D enrollees by $117 billion between 2020 and 2029, including a reduction of $102.6 billion in cost sharing for people who use drugs covered under Part D that are subject to negotiation, and another $14.3 billion reduction in Part D premiums (in addition to Medicare savings). This data note estimates average premium savings attributable to the negotiations provision of H.R. 3 on a per capita basis for Part D enrollees who pay premiums (including those receiving partial low-income subsides) in dollar amounts and as a share of the base beneficiary premium, based on aggregate premium reductions and baseline premiums projected by Medicare’s actuaries through 2029.

How does drug price negotiation affect Part D premiums?

Under Part D, beneficiary premiums are calculated to cover 25.5 percent of costs for standard coverage, which includes benefit payments before the catastrophic coverage threshold as well as catastrophic costs (i.e., reinsurance). Allowing the federal government to negotiate drug prices is expected to result in lower drug prices for those drugs subject to negotiation, which would lower Medicare spending for the standard drug benefit and lower Part D premiums, with significant reductions in reinsurance spending (i.e., costs above the catastrophic threshold). These reductions are expected to be somewhat offset by cost increases attributable to a reduction in rebates paid by drug manufacturers to Part D plans (which plans use to lower their total costs) and higher prices for new drugs.

What is the expected magnitude of savings on Part D premiums per enrollee?

Under drug price negotiation, premium savings for Medicare beneficiaries are projected to increase from an estimated 9% of the Part D base beneficiary premium in 2023 to 15% in 2029. Medicare’s actuaries have estimated that the Part D base beneficiary premium, which covers the cost of basic Part D coverage, will increase from around $440 per year in 2023 to around $560 in 2029. The $14 billion in aggregate Part D premium savings from drug price negotiation over a decade translates into estimated per capita savings for Part D enrollees who pay premiums of $39 annually in 2023, increasing to $85 annually in 2029 (Figure 1). This translates to savings of 9% of the base beneficiary premium in 2023 and 15% in 2029.

Premium Savings for Medicare Part D Enrollees from Drug Price Negotiation Would Range from 9% in 2023 to 15% in 2029

These estimates may understate premium savings for Medicare beneficiaries that could be achieved under the current version of H.R. 3, which requires the Secretary to negotiate prices for a larger number of drugs in year 2 than the prior version of H.R. 3 that the actuaries analyzed. In addition, savings could be higher or lower than our estimates depending on the actual base beneficiary premium each year as well as premiums for plans that beneficiaries enroll in, which vary widely each year from the base premium amount. These estimates also do not reflect the interactive effects of other provisions in H.R. 3, such as the Part B and Part D inflation caps or Part D benefit redesign, which would also affect beneficiary premiums and cost sharing.

This work was supported in part by Arnold Ventures. We value our funders. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

News Release

Drug Overdose Deaths Rose During the COVID-19 Pandemic, Particularly Among Black and American Indian/Alaska Native People

Published: Aug 12, 2021

Drug overdose deaths rose during the early part of the COVID-19 pandemic, with some of the biggest jumps occurring among people of color, a new KFF analysis finds.

The analysis breaks out drug overdose deaths by race and ethnicity for the first nine months of 2020, when the pandemic triggered widespread shutdowns and job losses, to the same period in each of the two prior years.

Between 2018 and 2020, drug overdose death rates increased across all racial and ethnic groups, but increases were largest for Black and American Indian and Alaska Native people. White and Hispanic people also experienced significant increases in drug-overdose deaths during those two years, though the death rate among Hispanic people remains well below the rate among those other groups.

The analysis also looks at other trend data on drug overdose deaths and other indicators of substance use prevalence and access to care by race and ethnicity, as well as recent and pending legislation aimed at addressing the nation’s substance use and mental health challenges.

Amid the crisis of the COVID-19 pandemic, the United States is also facing a worsening substance use crisis. More than one in ten adults have reported starting or increasing the use of alcohol or drugs to cope with the pandemic. Additionally, deaths due to drug overdose spiked during the pandemic, primarily driven by opioids. Recently released data shows that over 93,000 drug overdose deaths were reported in 2020 – the highest on record and nearly a 30% increase from 2019 (Figure 1). (more…)

Substance Use Issues Are Worsening Alongside Access to Care

Authors: Nirmita Panchal, Rachel Garfield, Cynthia Cox, and Samantha Artiga
Published: Aug 12, 2021

Amid the crisis of the COVID-19 pandemic, the United States is also facing a worsening substance use crisis. More than one in ten adults have reported starting or increasing the use of alcohol or drugs to cope with the pandemic. Additionally, deaths due to drug overdose spiked during the pandemic, primarily driven by opioids. Recently released data shows that over 93,000 drug overdose deaths were reported in 2020 – the highest on record and nearly a 30% increase from 2019 (Figure 1). (more…)

Amid the crisis of the COVID-19 pandemic, the United States is also facing a worsening substance use crisis. More than one in ten adults have reported starting or increasing the use of alcohol or drugs to cope with the pandemic. Additionally, deaths due to drug overdose spiked during the pandemic, primarily driven by opioids. Recently released data shows that over 93,000 drug overdose deaths were reported in 2020 – the highest on record and nearly a 30% increase from 2019 (Figure 1). (more…)

News Release

Most Parents Don’t Want Their Schools to Require COVID-19 Vaccination, But Most Favor Requiring Masks for Unvaccinated Children and Staff

Nearly Half of Parents of Children Ages 12-17 Say Their Child is Already Vaccinated or Will Get a Shot As Soon As Possible; Republican Parents Are More Resistant

Published: Aug 11, 2021

Worries about Long-Term and Serious Side Effects are Parents’ Top Concern; Hispanic and Black Parents Are More Likely than White Parents to Cite Access and Cost Issues

As schools around the country prepare to reopen, a majority of parents of school-age children say they do not want their children’s schools to require students to get a COVID-19 vaccine in order to attend in person classes, the latest KFF Covid-19 Vaccine Monitor report finds.

This includes most (58%) parents of adolescent students, ages 12-17, who are already eligible to get a COVID-19 vaccine under an emergency use authorization from the U.S. Food and Drug Administration (FDA). Fewer (42%) of these parents say they want their schools to mandate vaccination.

Not surprisingly, parents of adolescent children who have already gotten at least one dose of a COVID-19 vaccine are far more supportive of schools requiring them than parents of similarly aged unvaccinated children. Three-quarters (75%) of parents of vaccinated children want their schools to require it, while a large majority (83%) of parents of unvaccinated children oppose it.

Among all parents of school-age children, a narrow majority (54%) say schools should not require students get a COVID-19 vaccine even if the FDA were to grant full approval for school-age children to receive them. Fewer (45%) parents say schools should require a COVID-19 vaccine if it gets full FDA approval.

On both questions, there are large partisan divisions, with about two-thirds of Democratic parents favoring such mandates and more than three-quarters of Republican parents opposing them. Majorities of White and Black parents oppose such requirements, while Hispanic parents are more evenly divided (51% should, 47% should not).

Most Parents Want Their Schools to Require Masks for Unvaccinated Students and Staff

Overall parents are more supportive of mask requirements than vaccines. More than 6 in 10 (63%) parents of school-age children say their child’s school should require unvaccinated students and staff to wear masks in school, while 36% say they should not.

“Despite controversy around the country about masks in schools, most parents want their school to require masks of unvaccinated students and staff,” KFF President and CEO Drew Altman said. “At the same time, most parents don’t want their schools to require their kids get a COVID-19 vaccine despite their effectiveness in combatting COVID-19.”

Majorities of parents who identify as Democrats (88%) and independents (66%) say their child’s school should require masks, while most Republican parents (69%) say they should not. In addition, larger shares of Black parents (83%) and Hispanic parents (76%) compared to White parents (54%) support a mask requirement at their child’s school.

Among parents of adolescents enrolled in school for the coming year, about 4 in 10 say that the school has both provided them with information about how to get a COVID-19 vaccine for their child (42%) and encouraged parents to get their children vaccinated (40%).

Parents whose schools did either of these things are about twice as likely as parents whose school did not to say their child received a COVID-19 vaccine. A difference persists even after controlling for other demographic factors, suggesting that schools could play a role in increasing vaccine uptake in this group.

Nearly Half of Parents of Children Ages 12-17 Say Their Eligible Children are Already Vaccinated or Will Get a Shot Soon

Among parents of children ages 12-17 who are already eligible to receive a COVID-19 vaccine, nearly half say their child has already been vaccinated (41%, up from 34% in June) or will get the vaccine right away (6%).

Nearly a quarter (23%) say they want to “wait and see” how the vaccine works for others before getting their eligible child vaccinated, and another 9% say they would get their child a shot “only if their school requires it.” One in five (20%) say that their child will “definitely not” get vaccinated.

Not surprisingly, parents’ vaccination intentions for their children are largely correlated with their own vaccination status. Among parents who have gotten vaccinated themselves, 60% say their 12-17 year-old is vaccinated, compared to just 4% of unvaccinated parents.

Among parents of children ages 5-11, who are not yet eligible to receive any COVID-19 vaccine, a quarter (26%) say they will vaccinate their child “right away” once a vaccine is authorized for children in their age group. One in five (20%) parents of children younger than 5 say the same. Four in 10 (40%) parents of children in each age group say they “wait and see” once their child becomes eligible before getting them vaccinated.

Long-Term and Serious Side Effects are Parents’ Top Vaccine Concern 

A large majority (88%) of parents of children ages 12-17 who have not yet received a COVID-19 vaccine say they are “very” or “somewhat” concerned that not enough is known about its long-term effects in children. Nearly as many (79%) say that they are concerned that their child might experience serious side effects.

In addition, nearly three-quarters (73%) say they are concerned that the vaccine may negatively impact their child’s fertility, even though the CDC says that there is “no evidence that any vaccine, including the COVID-19 vaccine, causes fertility problems.”

Smaller shres of parents of unvaccinated adolescents generally express concerns over access and financial issues related to the vaccine. For example, about a third (32%) are concerned about taking time off work to get their child vaccinated and recover from side effects, and a quarter (24%) are concerned that they won’t be able to get their child vaccinated at a place they trust.

Hispanic and Black parents are more likely than White parents to report concerns about vaccine access and cost. For instance, half (49%) of Hispanic and 28% of Black parents of unvaccinated adolescents are concerned about not being able to get their child vaccinated at a trusted place, while just 16% of White parents express such worries.

Hispanic (34%) and Black (30%) parents of unvaccinated adolescents are roughly three times as likely as White parents (11%) to express concerns they will have to pay out-of-pocket to get their child vaccinated – even though the vaccines should be available at no cost to the individual.

Among parents who are employed, small shares say their employer offers paid time off to take their children to get vaccinated (21%) or to stay home with their child while they recover from any side effects (24%), though large shares say they aren’t sure.

Even smaller shares of parents with lower household incomes (less than $40,000 annually) say their employer provides paid time off to get their child vaccinated (8%) or to care for them while they recover from side effects (14%).

Among working parents of unvaccinated adolescents, a quarter (25%) say they would be more likely to get their child vaccinated if their employer gave them paid time off.

Pediatricians are Parents’ Most-Trusted Source for COVID-19 Vaccine Information

The report finds more than three-quarters (78%) of parents say they trust their child’s pediatrician a “great deal” or “fair amount” to provide reliable information about COVID-19 vaccinations for kids.

Majorities also say they trust the Centers for Disease Control and Prevention (66%) and their local public health department (62%) to provide such information. Among those with insurance, most trust their health insurer (58%), and a narrow majority of those who are employed trust their employer (53%). Fewer trust their child’s school or day care (44%) or other parents (38%).

While most parents trust pediatricians’ vaccine information, just 30% of parents overall – and 35% of parents of children ages 12-17 – say they spoke to their pediatrician about it. Among parents of adolescents eligible for a vaccine who did talk to their pediatrician about it, a large majority (72%) say the pediatrician recommended their child get a COVID-19 vaccine.

Designed and analyzed by public opinion researchers at KFF, the KFF Vaccine Monitor: Parents and the Pandemic was conducted from July 15-August 2 among a nationally representative probability-based sample of 1,259 parents with a child under age 18 in their household. Interviews were conducted in English and Spanish online (908) and via telephone (351). The margin of sampling error is plus or minus 4 percentage points for the full sample and plus or minus 5 percentage points for parents of children ages 12-17. For results based on subgroups, the margin of sampling error may be higher.

The KFF COVID-19 Vaccine Monitor is an ongoing research project tracking the public’s attitudes and experiences with COVID-19 vaccinations. Using a combination of surveys and qualitative research, this project tracks the dynamic nature of public opinion as vaccine development and distribution unfold, including vaccine confidence and acceptance, information needs, trusted messengers and messages, as well as the public’s experiences with vaccination.

Poll Finding

KFF COVID-19 Vaccine Monitor: Parents and the Pandemic

Published: Aug 11, 2021

Findings

The KFF COVID-19 Vaccine Monitor is an ongoing research project tracking the public’s attitudes and experiences with COVID-19 vaccinations. Using a combination of surveys and qualitative research, this project tracks the dynamic nature of public opinion as vaccine development and distribution unfold, including vaccine confidence and acceptance, information needs, trusted messengers and messages, as well as the public’s experiences with vaccination.

Key Findings

  • As children around the country head back to school, nearly half of parents of children ages 12-17, the age group currently eligible to receive a COVID-19 vaccine, say their child has already been vaccinated (41%) or they will get the vaccine right away (6%). The vaccination status of children closely mirrors that of parents, with larger shares of older parents, Democrats, those with higher incomes and college degrees (all demographic groups with higher vaccine rates among adults), saying their child is vaccinated compared with their counterparts. Nearly four in ten Republican parents (37%) and half of parents who are unvaccinated themselves say they will “definitely not” get their 12-17 year-old vaccinated.
  • Parents of younger children who are not yet eligible to be vaccinated continue to take a cautious approach to COVID-19 vaccines, with four in ten parents of children under 12 saying that once a vaccine is authorized for their child’s age group they will “wait a while to see how it is working” before getting their child vaccinated. About half of parents, regardless of their child’s age, say they are very or somewhat worried about their child getting seriously sick from coronavirus.
  • For parents of unvaccinated teens, their top concerns about the COVID-19 vaccine center around the potential for long-term or serious side effects in children. However, we also find that as surveys of adults have identified, Hispanic and Black parents are more likely than White parents to cite concerns that reflect access barriers to vaccination, including not being able to get the vaccine from a trusted place, believing they may have to pay an out-of-pocket cost, or difficulty traveling to a vaccination site. A larger share of Hispanic parents than White parents also reports being concerned about needing to take time off work to get their child vaccinated.
  • Few working parents – particularly those with lower incomes – say their employer offers them paid time off to get their children vaccinated or care for them if they experience vaccine side effects. One quarter of working parents of unvaccinated 12-17 year-olds say they would be more likely to get their child vaccinated if their employer offered them paid time off to do so.
  • Four in ten parents of children ages 12-17 say their teen’s school provided information about COVID-19 vaccines for children or encouraged parents to get their children vaccinated. Those who say their school did either one of these things are more likely to say their child has received a COVID-19 vaccine than parents who say their school did not do these things, even after controlling for other demographic factors associated with higher vaccination rates, suggesting that schools could play a role in increasing vaccine uptake among 12-17 year-olds.
  • A majority (58%) of parents of 12-17 year-olds say their child’s school should not require students to be vaccinated for COVID-19, and a similar share (54%) of parents of all school-age children say schools should not require vaccination even once the FDA has fully approved the use of a COVID-19 vaccine in children. Majorities of Democrats and parents of children who are already vaccinated support schools requiring vaccinations in both scenarios, while majorities of Republican parents and those whose children are unvaccinated are opposed.
  • More than six in ten (63%) of all parents of children who attend school think their child’s school should require unvaccinated students and staff to wear masks at school, although most Republican parents (69%) oppose such a requirement and parents of unvaccinated children are evenly divided.
  • Pediatricians continue to be a top trusted source of information on COVID-19 and kids, though most parents have not yet talked to their child’s pediatrician about the vaccine. Among parents of teens who discussed the vaccine with their pediatrician, most say the doctor recommended their child get vaccinated, and three-quarters of those whose pediatrician recommended vaccination say their child has received at least one shot.
  • A majority of parents say they have talked about the COVID-19 vaccines with their 12-17 year-olds, including almost half who say they have discussed the vaccines “a lot.” Among parents of unvaccinated teens, four in ten say their child has expressed concerns about getting a COVID-19 vaccine and 12% say their child has said that they want to be vaccinated.

Parents and COVID-19 Vaccines

COVID-19 Vaccination Status of Parents

One way for parents to protect their children from the risk of COVID-19 is to get vaccinated themselves. The latest KFF COVID-19 Vaccine Monitor finds 61% of parents say they have personally received at least one dose of a COVID-19 vaccine, which is somewhat lower than the 71% among adults without children (largely due to the fact that parents are younger on average than non-parents).

Among parents, some groups stand out as having lower vaccination rates than others, largely reflecting differences seen among the general population. For example, about half of those without health insurance (56%), Republican parents (54%), those with incomes under $40,000 per year (53%), parents ages 18-39 (50%), those without a college degree (49%), and Black parents (46%) say they have not received a COVID-19 vaccine.

Six In Ten Parents Report Being Vaccinated For COVID-19, With Lower Shares Among Some Groups

Vaccination Intentions Among Parents Of Children Currently Eligible For COVID-19 Vaccination

Among parents of children ages 12-17, for whom the Pfizer COVID-19 vaccine is currently authorized, 41% now say their child has received at least one dose of a vaccine, up from 34% in June1 . An additional 6% of parents of 12-17 year-olds say they intend to get their child vaccinated “right away.” Nearly one quarter of parents (23%) say they want to “wait and see” how the vaccine is working before getting their adolescent child vaccinated, while one in ten (9%) say they will only get their child vaccinated “if their school requires it,” and one in five say they will “definitely not” vaccinate their child.

Four In Ten Parents Of Children Ages 12 To 17 Say Their Child Has Received At Least One Dose Of The COVID-19 Vaccine

Not surprisingly, parents’ vaccination intentions for their children are largely correlated with their own vaccination status. Six in ten parents who have received the vaccine themselves say their 12-17 year-old is vaccinated, compared to just 4% of unvaccinated parents. Among parents who have not been vaccinated themselves, half say they will “definitely not” vaccinate their child.

Six In Ten Vaccinated Parents Say Their Child Has Received  COVID-19 Vaccine, Half Of Unvaccinated Parents Say “Definitely Not”

Besides vaccination status, parents’ vaccination intentions for their children differ along similar lines as adults overall. Parents who identify as Democrats, older parents, and those with higher levels of income and education are more likely to say their child is already vaccinated or they will get them vaccinated right away. Notably, nearly four in ten (37%) Republican parents say they will “definitely not” get their 12-17 year-old vaccinated.

While there have been gaps in COVID-19 vaccine uptake among adults by race and ethnicity, the current survey does not find a statistically significant difference in child vaccination uptake between Hispanic, Black, and White parents. However, White parents of children ages 12-17 are twice as likely as Hispanic parents to say they will “definitely not” get their child vaccinated (24% vs. 12%).

Democrats, More Educated, Higher Income, And Older Parents More Likely To Say Their 12-17 Year-Old Has Received A COVID-19 Vaccine

Parents’ intentions towards the COVID-19 vaccine for 12-17 year-olds are not necessarily a reflection of their behaviors with regards to other childhood vaccines. The vast majority of parents (90%) say they normally keep their children up-to-date with recommended vaccines such as the measles, mumps, and rubella (MMR) vaccine, while just 9% say they have delayed or skipped some childhood vaccines for their children. Yet even among parents of 12-17 year-olds who say their children are up-to-date on other childhood vaccines, fewer than half (43%) say their child has received a COVID-19 vaccine. (The sample of parents of 12-17 year-olds who have skipped or delayed other vaccines is too small for analysis.)

Just over half of parents (54%) say their child normally gets a flu vaccine each year. Among parents of 12-17 year-olds who say their child normally gets a flu shot, 57% say their adolescent has received a COVID-19 vaccine, which is twice the share of parents who say their child does not normally get a flu vaccine who have gotten the COVID-19 vaccine (25%).

Parents Who Say Child Normally Gets Flu Vaccine Are More Likely To Say They Are Also Vaccinated For COVID-19

Vaccination Intentions Among Parents Of Younger Children

While uptake of COVID-19 vaccines among 12-17 year-olds has increased over time, parents continue to report a more cautious attitude when it comes to vaccinations for children younger than 12. About a quarter (26%) of parents of children between the ages of 5-11 say they will vaccinate their child “right away” once a vaccine is authorized for their age group, as do one in five parents with children under 5. Four in ten parents in each age group say they will “wait and see” how the vaccine is working before having their younger child vaccinated. One-quarter say they will “definitely not” get their 5-11 year-old vaccinated and three in ten parents say the same about their children under age 5.

Four In Ten Parents Of Children Under 12 Say They Want To "Wait And See" Before Getting Their Child Vaccinated For COVID-19

Parents’ Concerns and Reasons For Holding Off On Child COVID-19 Vaccinations

Parents of unvaccinated children ages 12-17  cite a range of concerns when it comes to vaccinating their children for COVID-19, with safety and side effects at the top of the list. A large majority (88%) of these parents say they are “very” or “somewhat” concerned that not enough is known about the long-term effects of the COVID-19 vaccine in children, and nearly as many (79%) say they are concerned their child might experience serious side effects from the COVID-19 vaccine. Nearly three-quarters of parents of unvaccinated adolescents (73%) report being concerned that the vaccine may negatively impact their child’s fertility in the future, even though the CDC states there is “no evidence that any vaccines, including COVID-19 vaccines, cause female or male fertility problems.”2  Two-thirds of parents of unvaccinated adolescents (65%) say they are concerned that their child might be required to get the COVID-19 vaccine even if they don’t want them to.

Notably, parents whose teens are unvaccinated but who have received a COVID-19 vaccine themselves are somewhat less likely than unvaccinated parents to express concern that their child will experience serious vaccine side effects (70% vs. 86%), that the vaccine might impact their child’s future fertility (58% vs. 85%), and that they will be required to get the vaccine even if the parent doesn’t want them to (50% vs. 78%).

Serious Side Effects And Long Term Effects Are The Top Vaccine Concerns Among Parents Of Unvaccinated Teens

A smaller share of parents overall cite concerns that may reflect access barriers to getting a COVID-19 vaccine for their child, though many of these concerns are more prevalent among Hispanic and Black parents than they are among White parents. For example, half (49%) of Hispanic parents of unvaccinated adolescents are concerned they might need to take time off work to get their child vaccinated or care for them if they experience side effects, twice the share of White parents (24%) who express the same concern. Similarly, among parents of unvaccinated 12-17 year-olds, larger shares of Hispanic and Black parents compared to White parents are concerned that they won’t be able to get their child the vaccine at a place they trust, they might have to pay an out-of-pocket cost to get their child vaccinated, or they will have difficulty traveling to a vaccine site for their child.

Hispanic And Black Parents More Likely Than White Parents To Be Concerned About Access-Related Barriers To COVID-19 Vaccination For Their Children

In addition to these concerns, many parents of unvaccinated 12-17 year-olds view the vaccine as a bigger risk to their child’s health than getting sick from COVID-19. Overall, six in ten (62%) parents of 12-17 year-olds say becoming infected with coronavirus is a bigger risk to their child’s health than getting the COVID-19 vaccine, while about half as many (34%) say getting the vaccine is a bigger risk. The share saying the vaccine is a bigger risk rises to 55% among Republican parents and 73% among parents who are unvaccinated themselves. Among parents of unvaccinated 12-17 year-olds, 55% say the vaccine is a bigger risk, including 91% of those who say they will “definitely not” get their child vaccinated.

Over Half Of Parents Of Unvaccinated Adolescents And Almost All Of Those Firmly Opposed Say The Vaccine Is A Bigger Risk To Their Child’s Health Than COVID-19

When parents of adolescent children who have not yet been vaccinated are asked to name in their own words the main reason why their child has not received a COVID-19 vaccine, the top reasons include that not enough is known about the vaccines or wanting more research on the vaccines in children (19%), they are concerned about side effects (13%), their child does not want the vaccine (13%), they do not believe a vaccine is necessary (7%), and they don’t trust the vaccines (5%).

In their own words: What is the main reason your child has not gotten a COVID-19 vaccine?

Need more information/tests/research (19%)

“Because it's not been long enough to see what the long term effects are” – White father in Arkansas, will wait and see before getting child vaccinated

“Have not seen results reported on safety or effectiveness of this vaccine on children 12-17” – Hispanic father in California, will wait and see before getting child vaccinated

“Not enough information on how it affects children” – Black mother in Delaware, will wait and see before getting child vaccinated

“Because I feel as a parent this vaccine has not been tested enough…And my child is not a test dummy” – Black mother in Michigan, will definitely not get child vaccinated

“It is still experimental” – White father in North Dakota, will definitely not get child vaccinated

Side effects/reactions (13%)

“He was involved with summer school, and mom did not want side effects to interfere.” Hispanic mother in Alaska, will get child vaccinated right away

“Potential side effects outweigh risk of even contracting COVID” – White mother in Florida, will definitely not get child vaccinated

“I'm concerned about the short and longer term side effects” – Hispanic mother in Texas, will wait and see before getting child vaccinated

“Just concern it might be unhealthy for them.  My oldest daughter got the Johnson & Johnson and then we found it there were issues about them.” – White mother in Washington, will wait and see before getting child vaccinated

Child doesn't want it/their choice (13%)

“She does not want it and her mother does not either” – Black father in Georgia, will only get child vaccinated if required

“I gave him a choice. He chose not to” – White mother in Idaho, will definitely not get child vaccinated

“I don't feel comfortable forcing him to get it since he is 17 and nearly an adult. I have strongly encouraged it though” – White mother in Wisconsin, will wait and see before getting child vaccinated

Not worried about COVID-19/Don't think vaccine is necessary (7%)

“Children in this age group are less at risk than vaccinated adults…Getting struck by lightning or winning the lottery are greater chances than death or serious illness from COVID in this age range” – Hispanic mother in Arizona, will definitely not get child vaccinated

“I haven't really been concerned about her getting the virus and she hasn't really been concerned about getting it” – White mother in Florida, will only get child vaccinated if required

“I think my child is healthy enough to battle the Covid-19 virus without a vaccine” – Hispanic mother in Georgia, will wait and see before getting child vaccinated

Don't trust the vaccine (5%)

“Too many that’s not trustworthy involved” – Black father in Arkansas, will definitely not get child vaccinated

“Don't trust the vaccine yet, need more info” – Hispanic mother in New York, will wait and see before getting child vaccinated

“Because I don't trust it” – White mother in Ohio, will definitely not get child vaccinated

Potential Role Of Employers In Facilitating COVID-19 Vaccinations For Children

Seven in ten parents of children under age 18 say they are employed, including six in ten who are employed full-time. More than a third of employed parents say their employer offers them paid time off to get a COVID-19 vaccine (39%) or to recover from side effects themselves (35%). However, most say their employer does not provide paid time off for them to get their children vaccinated (36%) or they are not sure if their employer offers this (42%). Similar shares say the same about paid time off to care for a child experiencing vaccine side effects.

Notably, parents with lower household incomes are even less likely than those earning higher incomes to say their employer provides paid time off for either their own vaccination and side effects or that of a child.

Few Parents Say Their Employer Offers Paid Time Off To Get COVID-19 Vaccines For Children, Particularly Among Lower Income

Among employed parents of unvaccinated 12-17 year-olds, one-quarter say they’d be more likely to get their child vaccinated if their employer gave them paid time off, while somewhat smaller shares of this group say they’d be more likely to vaccinate their child if their employer arranged for a medical provider to come to their workplace to vaccinate children and families (19%), or provided free transportation to a vaccine site (14%).

One In Four Parents Of Unvaccinated 12-17 Year Olds Say They Would Be More Likely To Get Their Child Vaccinated If Their Employer Provided Paid Time Off To Do So

With lower rates of reported COVID-19 vaccination among parents with lower incomes, employer policies have the potential to reduce these income gaps somewhat. For example, just 29% of employed (non self-employed) parents with household incomes under $90,000 say their 12-17 year-old has been vaccinated for COVID-19 compared to over half (54%) of employed parents with higher incomes. Among employed parents with incomes under $90,000, an additional one in five say they’d be more likely to get their child vaccinated if their employer offered them paid time off, and some say they’d be more likely to vaccinate their child if their employer arranged for a medical provider to vaccinate children and families at their workplace (14%) or provided free transportation to a vaccination site (12%).

Employer Policies May Increase Likelihood Of Some Parents Getting Their 12-17 Year Old Vaccinated

Parents’ Worries About Kids and COVID-19

While research has shown that children are less likely than adults to become seriously ill from coronavirus infection, parents may nevertheless worry about their children being exposed or passing an infection on to other family members, particularly when it comes to children under the ages of 12 who are not eligible for COVID-19 vaccination. The latest KFF COVID-19 Vaccine Monitor reports that about half of parents of children ages 12-17 (48%) and under age 12 (52%) say they are worried about their child getting seriously ill from coronavirus. Similarly, about half of parents across child age groups say they are worried about their child being exposed to coronavirus and passing it on to family members or that they may personally be exposed to coronavirus and pass it on to their child.

Across child age groups, Black and Hispanic parents are much more likely than White parents to say they are worried about personally getting sick, about their child getting sick, about their child infecting someone else in the family, and about personally passing an infection on to their child. For example, among parents of children ages 12-17, 71% of Hispanic parents and 64% of Black parents are worried about their child getting seriously sick from coronavirus compared to 38% of White parents.

Black And Hispanic Parents Are More Likely To Express Worry About Their Child Getting Sick, Exposing Others To Coronavirus

The July KFF COVID-19 Vaccine Monitor found that despite being at higher risk for contracting the disease, unvaccinated adults are less likely than vaccinated adults to worry about getting sick from COVID-19. A similar pattern holds among parents. Parents of vaccinated children ages 12-17 are more likely than parents of unvaccinated children in this age range to worry about their child getting seriously sick from coronavirus (56% vs. 42%) and about their child becoming infected and passing the virus on to someone else in their family (60% vs. 44%).

Parents Of Unvaccinated 12-17 Year-Olds Are Less Likely Than Those Whose Child Is Vaccinated To Worry About Coronavirus Risk

Schools and COVID-19 Vaccines

With some schools around the country already open for the 2021-2022 school year and many others set to open later this month, this Vaccine Monitor report examines parents’ views on vaccines and other protective measures in their children’s schools. We find that while most parents of school-age kids say their children attended school at least partially online during the previous school year, a large majority expect school to happen all or mostly in person during the upcoming school year (87% of parents of 12-17 year-olds and 89% of parents of 5-11 year-olds).

Most Parents Expect Their Child Will Attend School In-Person In The Upcoming School Year

Among parents of children ages 12-17 who are enrolled in school for the upcoming school year, about four in ten (42%) say the school has provided them with information about how to get a COVID-19 vaccine for their child and a similar share (40%) say the school has encouraged parents to get their children vaccinated. Higher-income parents are more likely than those with lower incomes to say their child’s school did either of these things; about half of parents with household incomes of $90,000 or more say their child’s school provided vaccine information or encouraged vaccination compared to between one-third and four in ten among parents with lower incomes.

Fewer parents of 12-17 year-olds say their child’s school asked about their child’s COVID-19 vaccination status (11%) or said that they will require students to be vaccinated in order to return to school in-person (7%).

Higher-Income Parents More Likely To Say Their Child’s School Has Provided COVID-19 Vaccine Information Or Encouraged Vaccination

Parents of 12-17 year-olds who say their child’s school provided information about COVID-19 vaccination are more likely than those whose school did not provide information to say their child has received a COVID-19 vaccine (58% vs. 32%). Similarly, about twice as many parents whose school encouraged vaccination report that their child is vaccinated compared to those whose schools did not (62% vs. 30%).

These differences may be at least partially due to differences in other demographic characteristics of parents whose schools provided information or encouraged vaccination compared to those who did not. However, using a statistical technique called multiple logistic regression, we find that parents whose children’s schools provided information or encouraged vaccination are more likely to say their child is vaccinated, even after controlling for demographic characteristics associated with child vaccination, including parents’ own vaccination status, age, race, ethnicity, education, income, party identification, urbanicity, and region. This suggests that more schools providing information and encouraging COVID-19 vaccination could contribute to higher vaccination rates among students.

Parents Whose Child’s School Encouraged COVID-19 Vaccination Or Provided Information Are More Likely To Say Child Is Vaccinate

Overall, most parents of children in the 12-17 age group currently eligible for vaccination say they do not think their child’s school should require students to get a COVID-19 vaccine (58%) while four in ten parents (42%) say their school should require this. Views on this question diverge along partisan lines, with two-thirds of parents who identify as Democrats (66%) saying their child’s school should require students to be vaccinated and nearly nine in ten Republican parents (87%) saying it should not. Majorities of White parents and Black parents say their school should not require students to be vaccinated, while Hispanic parents are more evenly divided on this question (51% should, 47% should not).

Not surprisingly, there is a huge divide in opinion of school vaccine mandates among parents by their child’s vaccination status: 75% of parents of children ages 12-17 who have received a COVID-19 vaccine say their child’s school should require vaccination while 83% of parents of unvaccinated children ages 12-17 say they should not.

Most Parents Of Children Ages 12-17 Do Not Want Their Child's School To Require Students To Get The COVID-19 Vaccine

Parents’ views on schools requiring COVID-19 vaccinations remain divided even when asked how they would feel if the FDA were to grant full approval for the use of a vaccine in children. Among all parents of school-age children (ages 5-17), just under half (45%) say that once a COVID-19 vaccine receives full FDA approval, “schools should require students to be vaccinated for COVID-19 as they do for most other diseases like measles and tuberculosis” while just over half (54%) say schools should not require COVID-19 vaccinations in this scenario.

Similar to the question about their own child’s school, majorities of Democrats, Hispanic parents, and parents of children who have already received a COVID-19 vaccine say schools should require students to receive a COVID-19 vaccine once one is approved by the FDA, while majorities of Republicans, Black parents, White parents, and parents of unvaccinated 12-17 year-olds say they should not.

Fewer Than Half Of Parents Think Schools Should Require COVID-19 Vaccination Even Once Fully Approved By FDA

In general, parents are more supportive of mask mandates in schools than they are of vaccine mandates. Over six in ten parents of children enrolled in school (63%) say their child’s school should require unvaccinated students and staff to wear masks while they’re in school while 36% say they should not. Previous Vaccine Monitor reports have shown that mask-wearing among adults divides largely along partisan lines and the same is true when it comes to opinions about mask mandates in schools. Large majorities of parents who identify as Democrats (88%) and independents (66%) say their child’s school should require masks while most Republican parents (69%) say they should not. In addition, larger shares of Black parents (83%) and Hispanic parents (76%) compared to White parents (54%) support a mask requirement at their child’s school. Among parents of 12-17 year-olds, a large majority (85%) of those whose child has received a COVID-19 vaccine say their school should require unvaccinated students and staff to wear masks while those whose child is unvaccinated are evenly split.

Most Parents Say Their Child's School Should Require Unvaccinated Students And Staff To Wear Masks When At School

While some parents may be concerned about their child’s risk of exposure to coronavirus at school or in social settings, about four in ten parents of children ages 12-17 (41%) say they don’t know what share of their child’s close friends have been vaccinated for COVID-19 and about half (48%) say the same about their child’s schoolmates. Parents of vaccinated children are much more likely than parents of unvaccinated children to say all or most of their child’s friends (32% vs. 2%) and schoolmates (14% vs. 1%) are vaccinated, while parents of unvaccinated 12-17 year-olds are more likely to say they don’t know the vaccination status of their child’s friends (45% vs. 34%) and schoolmates (55% vs. 38%).

Large Share Of Parents Of 12-17 Year Olds Do Not Know If Their Child's Friends, Classmates Have Been Vaccinated

Sources of Information and Information Needs

Throughout efforts to vaccinate adults for COVID-19, the Vaccine Monitor has documented gaps in information about COVID-19 vaccines, including that Black and Hispanic adults and those with lower incomes have been more likely to say they don’t have enough information about vaccine side effects and access.

The latest survey finds that the same is true when it comes to parents’ feelings about information on COVID-19 vaccines for children. While about four in ten parents say they have enough information, over half say they don’t have enough information about the effectiveness (57%) or the potential side effects (60%) of the COVID-19 vaccines in children.

Larger shares of mothers, younger parents, Black and Hispanic parents, those with lower incomes, and parents without a college degree say they don’t have enough information about effectiveness and side effects of vaccines in kids compared to fathers, older parents, White parents, and those with higher incomes and college degrees.

Younger Parents, Black And Latino Parents More Likely To Say They Do Not Have Enough Information About The Effectiveness, Side Effects Of COVID-19 Vaccine In Children

Parents’ Trusted Sources Of Information On COVID-19 Vaccines For Kids

Overall, pediatricians are a top source for trusted information when it comes to COVID-19 vaccines and children. About eight in ten parents overall (78%) say they trust their child’s pediatrician “a great deal” or “a fair amount” to provide reliable information about COVID-19 vaccines for kids. Over six in ten also say they trust the CDC (66%) and their local public health department (62%) at least a fair amount, while a majority of insured parents trust their health insurance company (58%) and over half of working parents trust their employer (53%). Schools and other parents are lower on parents’ list of trusted information sources, with 44% saying they trust their child’s school or daycare for vaccine information and 38% saying the same about other parents they know.

Reflecting partisan divisions in trusted information sources among all adults in previous Vaccine Monitor reports, parents who identify as Republicans are far less likely than those who identify as Democrats to trust most sources of information, with the exception of pediatricians (who are highly trusted by parents across the political spectrum) and other parents (who rank lower as a trusted resource regardless of partisanship).

Parents Are Most Likely To Trust Pediatricians To Provide Reliable Information About The COVID-19 Vaccine For Children

A key target group for information is parents of unvaccinated children ages 12-17, who are currently eligible to receive a COVID-19 vaccine. Among these parents, nearly two-thirds (64%) trust their child’s pediatrician at least a fair amount to provide reliable information about COVID-19 vaccines and children, but fewer than half trust any of the other information sources tested. Notably, among those who say they will “definitely not” vaccinate their child, four in ten (39%) say they trust their child’s pediatrician and fewer than one-third put at least a fair amount of trust in any of the other information sources included in the survey.

Parents Who Say They Will Not Vaccinate Their Child For COVID-19 Are Less Trusting Of Vaccine Information Sources

Parents’ Vaccine Conversations with Pediatricians And With Their Children

While pediatricians are a top trusted source of information, most parents have not yet discussed COVID-19 vaccinations with their child’s pediatrician. Three in ten parents of children under age 18 say they have talked to their children’s pediatrician about the COVID-19 vaccine, including a somewhat higher share of parents who have children between the ages of 12-17 (35%). Among parents of children in this age range who discussed the vaccine with their child’s pediatrician, 72% (one quarter of all parents of 12-17 year-olds) say the pediatrician recommended that their child get vaccinated for COVID-19.

One-Quarter Of Parents Of 12-17 Year-Olds Say Pediatrician Recommended COVID-19 Vaccine, But Majority Have Not Discussed Vaccination With Pediatrician

Parents who say their child’s pediatrician recommended vaccination are about two and half times as likely to say their child has received a COVID-19 vaccine compared to parents who did not talk to a pediatrician or say the pediatrician did not recommend vaccination (75% vs. 31%). However, the extent to which a pediatrician’s recommendation was a deciding factor for these parents is unclear, since parents who are more inclined towards getting their children vaccinated for COVID-19 may have been more likely to initiate these conversations with pediatricians in the first place.

Parents Whose Child's Pediatrician Recommended The COVID-19 Vaccine Are Far More Likely To Say Their Child Has Been Vaccinated

Parents more commonly report discussing the COVID-19 vaccine with their children than with their pediatrician. Among parents of 12-17 year-olds, nearly half (46%) say they have talked with their child about the vaccine “a lot” and another third (32%) say they have discussed it “some.” Parents with college degrees and those who have received the COVID-19 vaccine themselves are more likely to report discussing the vaccine with their adolescent children. In addition, more than six in ten parents of children who have received at least one dose of the vaccine say they have talked with their child “a lot” about the vaccine compared with about a third (35%) of parents of unvaccinated 12-17 year-olds.

Most Parents Report Discussing The COVID-19 Vaccine With Their Children Ages 12-17

About one-third of parents of children ages 12-17 say their child has expressed any concerns to them about getting a COVID-19 vaccine, including one quarter (24%) of parents of vaccinated children and four in ten (41%) parents of unvaccinated children.

Among parents of unvaccinated children ages 12-17, one in eight (12%) say their child has told them that they want to get the vaccine.

Four In Ten Parents Of Unvaccinated 12-17 Year Olds Say Their Child Has Expressed Concerns About Getting The Vaccine

When asked to say in their own words the main concern their child has expressed, side effects are at the top of the list, with 29% of parents of children who expressed a concern saying this was their main concern (38% of parents of vaccinated children and 26% of unvaccinated). The second- and third-ranked concerns among parents of unvaccinated children who expressed concerns are not wanting to get the vaccine (16%) and concerns about long-term effects (14%). Among parents of vaccinated children who expressed concerns, 9% say their child was concerned about long-term effects and 8% expressed concerns about the safety of the vaccine.

Side Effects Were The Most Common Concern About The COVID-19 Vaccine That 12 to 17 Year Olds Expressed To Their Parents

Methodology

This KFF COVID-19 Vaccine Monitor – Parents and the Pandemic was designed and analyzed by public opinion researchers at the Kaiser Family Foundation (KFF). The survey was conducted July 15-August 2, 2021 via telephone and online among a nationally representative sample of 1,259 adults who are the parent or guardian of a child under the age of 18 living in their household. The sample includes 351 parents reached through the July 2021 KFF COVID-19 Vaccine Monitor and 908 who were reached online through a probability-based online panel (SSRS Opinion Panel). The Vaccine Monitor respondents were reached through a random digit dial telephone sample of adults ages 18 and older (including interviews from 101 Hispanic parents and 64 non-Hispanic Black parents), living in the United States. Phone numbers used for the telephone component were randomly generated from cell phone and landline sampling frames, with an overlapping frame design, and disproportionate stratification aimed at reaching Hispanic and non-Hispanic Black respondents as well as those living in areas with high rates of COVID-19 vaccine hesitancy. The sample also included 43 parents by calling back respondents that had previously competed an interview on a KFF poll (n=11) or SSRS omnibus poll (n=32). The comparison sample of non-parents was also drawn from the July 2021 KFF COVID-19 Vaccine Monitor. See the July 2021 KFF COVID-19 Vaccine Monitor for further details on the telephone component.

For the online component, invitations were sent to panel members who previously identified as the parent of a child ages 5 to 17.  As with the telephone component, Hispanic and Black respondents were oversampled.  The SSRS Opinion Panel is a nationally representative probability-based web panel. SSRS Probability Panel members are recruited randomly in one of two ways: (a) Through invitations mailed to respondents randomly sampled from an Address-Based Sample (ABS). ABS respondents are randomly sampled by MSG through the U.S. Postal Service’s Computerized Delivery Sequence (CDS). (b) from a dual-frame random digit dial (RDD) sample, through the SSRS Omnibus survey platform. Sample for the SSRS Omnibus is obtained through Marketing System Groups (MSG).

The combined telephone and online parent samples were weighted to match the sample’s demographics to the national parent population using data from the Census Bureau’s 2019 U.S. American Community Survey (ACS). Weighting parameters included sex, age, education, marital status, child age, and region, within racial/ethnic groups. The weights take into account differences in the probability of selection for each sample type (phone and web). This includes adjustment for the sample design and geographic stratification of the telephone sample, within household probability of selection, and the design of the panel-recruitment procedure.

The margin of sampling error including the design effect for the full sample of parents is plus or minus 4 percentage points. Numbers of respondents and margins of sampling error for key subgroups are shown in the table below. For results based on other subgroups, the margin of sampling error may be higher. Sample sizes and margins of sampling error for other subgroups are available by request. Sampling error is only one of many potential sources of error and there may be other unmeasured error in this or any other public opinion poll. Kaiser Family Foundation public opinion and survey research is a charter member of the Transparency Initiative of the American Association for Public Opinion Research.

This work was supported in part by grants from the Chan Zuckerberg Initiative DAF (an advised fund of Silicon Valley Community Foundation), the Ford Foundation, and the Molina Family Foundation. We value our funders. KFF maintains full editorial control over all of its policy analysis, polling, and journalism activities.

GroupN (unweighted)M.O.S.E.
Total parents/guardians of children under 18 in household1,259± 4 percentage points
Parent Race/Ethnicity
White, non-Hispanic399± 6 percentage points
Black, non-Hispanic372± 7 percentage points
Hispanic429± 6 percentage points
Child Age Groups
Parents of children under age 5523± 7 percentage points
Parents of children ages 5-11674± 6 percentage points
Parents of children ages 12-17728± 5 percentage points
Comparison sample of non-parents (adults who are not parents or guardians of children under 18) from July 2021 KFF COVID-19 Vaccine Monitor1,166± 4 percentage points

Endnotes

  1. The survey was conducted July 15 through August 2, with the bulk of interviews being conducted before the most recent data from the CDC indicating the increased risk of the Delta variant to both unvaccinated and vaccinated people. Therefore, the survey may not capture any recent uptick in child vaccinations due to the latest surge in cases. ↩︎
  2. COVID-19 Vaccines While Pregnant or Breastfeeding (U.S. Centers for Disease Control and Prevention, June 29, 2021). Accessed August 9, 2021. https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/pregnancy.html ↩︎
News Release

Direct Care Workforce Shortages Have Worsened in Many States During the Pandemic, Hampering Providers of Home and Community-Based Services

50-State Survey Finds States Plan to Target New Federal Money Toward Provider Rate Increases, Workforce Recruitment

Published: Aug 10, 2021

During the pandemic many states have experienced worsening direct care workforce shortages that have affected providers of home- and community-based long-term care services (HCBS), according to early findings of a new KFF survey of Medicaid HCBS programs in all 50 states and the District of Columbia.

Most states reported workforce shortages as the pandemic’s primary impact on HCBS provided in an enrollee’s home and in group homes. The pandemic has brought new attention among policymakers to the longstanding unmet need for HCBS for seniors and people with disabilities, as well as the direct care workforce shortage that has been driven by low wages, high turnover, and limited opportunities for career advancement.

The survey also finds that the HCBS provider infrastructure declined during the pandemic, with two-thirds of responding states reporting a permanent closure of at least one provider. The survey finds that states’ initial plans for the new American Rescue Plan Act’s (ARPA) 10 percentage point temporary increase in federal Medicaid matching funds for HCBS center on provider payment rate increases and workforce recruitment — two areas which recent experience confirms are crucial to sustaining and expanding access to long-term care services at home and in the community.

The new survey report focuses on state policies adopted in response to challenges posed by the pandemic, the pandemic’s impact on Medicaid HCBS enrollees and providers, and states’ initial plans for the ARPA funding. The funding is available from April 2021 through March 2022.

Just under half of the states that responded to the survey said they were tracking COVID-19 vaccination rates among Medicaid HCBS enrollees. At the same time, state HCBS programs are playing a role in facilitating vaccine access for HCBS enrollees, with most responding states adopting multiple policies in this area. Over one-third of responding states have publicly available data on COVID-19 cases and deaths among HCBS enrollees.

The ARPA enhanced funds are available only for one year. The budget reconciliation package proposed by Democratic leaders in Congress aims to expand funding for HCBS, though the details will be worked out by Congressional committees. President Biden earlier this year proposed a $400 billion federal investment in Medicaid HCBS, though it is unclear how much of that funding increase will be approved by Congress as it considers competing priorities in the budget package this year.