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  • More than 10,000 People in Long-Term Care Facilities Have Died Due to COVID-19

    News Release

    More than 10,000 residents and staff in long-term care facilities across the U.S. have died from COVID-19 infections, according to a KFF analysis of state data. That number is an undercount since not all states are currently reporting such data. Among those reporting data, the largest death tolls as of April 23 were in several Northeastern states, including New York (3,505 deaths), New Jersey (2,050), Massachusetts (1,205) and Pennsylvania (845). The data also show that…

  • Limits and Opportunities of Federal Reporting on COVID-19 in Nursing Facilities

    Issue Brief

    In response to the widespread concerns about the high numbers of coronavirus cases and deaths in long-term care (LTC) facilities, CMS recently implemented new COVID-19 data reporting requirements for all federally certified nursing facilities. The newly-released federal data builds on state-reported data that has been included in many, but not all, states’ regular coronavirus reporting for several weeks. However, preliminary analysis indicates that the federal data will not reveal the full extent of the crisis…

  • A Look at Waiting Lists for Medicaid Home- and Community-Based Services from 2016 to 2026

    Issue Brief

    This data note provides new information about waiting lists from KFF’s most recent survey of state Medicaid home care programs, including a discussion of why waiting lists are an incomplete measure of unmet need and why they are not necessarily comparable across states or over time, despite KFF’s efforts to obtain as consistent data as possible.

  • Key Issues in Long-Term Services and Supports Quality

    Issue Brief

    This issue brief discusses four key issues related to long-term services and supports (LTSS) including institutional and home and community-based services (HCBS) quality, highlighting major legislative and policy changes over the last 30 years since the passage of the Nursing Home Reform Act.

  • Waiting for Care: Three-Fourths of States Have Waiting Lists for Some Medicaid Home Care Programs

    News Release

    In a new analysis of survey data from state Medicaid home care programs, KFF found that in most years since 2016, there have been nearly 700,000 people on waiting or interest lists for expanded home and community-based services (HCBS), with a total of 692,000 across 38 states in 2023 and waiting lists averaging three years. People with intellectual or developmental disabilities make up almost three-quarters of waiting lists, with seniors and adults with physical disabilities…

  • Medicaid: What to Watch in 2024

    Issue Brief

    As the start of 2024, many issues are at play that will affect Medicaid coverage, financing, and access. This issue brief provides context for these Medicaid issues and highlights key issues to watch in the year ahead.