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  • Working-Age Adults with Disabilities Living in the Community

    Issue Brief

    In September 2023, the National Institutes of Health designated people with disabilities as a population experiencing health disparities, which will help ensure that people with disabilities are represented in research funded by the National Institutes. Also in September of 2023, the Biden Administration proposed a new rule that would update the requirements for nondiscrimination on the basis of disability. Among other changes, the proposed rule would codify the Olmstead court decision, which requires people with…

  • Who Uses Medicaid Long-Term Services and Supports?

    Issue Brief

    This analysis examines the characteristics of Medicaid enrollees who use Medicaid long-term services and supports (LTSS), how enrollees who use LTSS differ from those who do not use these services, and how enrollees who use different types of LTSS differ from each other.

  • Waiting for Care: Three-Fourths of States Have Waiting Lists for Some Medicaid Home Care Programs

    News Release

    In a new analysis of survey data from state Medicaid home care programs, KFF found that in most years since 2016, there have been nearly 700,000 people on waiting or interest lists for expanded home and community-based services (HCBS), with a total of 692,000 across 38 states in 2023 and waiting lists averaging three years. People with intellectual or developmental disabilities make up almost three-quarters of waiting lists, with seniors and adults with physical disabilities…

  • Dying Broke: A New Jointly Reported Series on America’s Long-Term Care Crisis from KFF Health News and The New York Times 

    News Release

    Today, KFF Health News and The New York Times published the first phase of an investigation into America’s long-term care crisis, which has left many in the boomer generation facing the prospect of exhausting their financial resources as the price tag for care explodes. Dying Broke, the investigative series, uses KFF polling, original analysis and interviews with experts and impacted individuals and their families to examine the challenges facing families and caregivers in navigating long-term…

  • The Affordability of Long-Term Care and Support Services: Findings from a KFF Survey

    Poll Finding

    This survey shows that most adults feel unprepared for affording the cost of long-term care and support service, and just under half are not confident they will have the financial resources to pay for care they might need as they age. Most older adults have not taken financial or practical steps to plan for their potential future care needs.

  • In Response to Home-Care Workforce Shortages, Most States Report Increasing Medicaid’s Payment Rates and Expanding Worker Opportunities

    News Release

    Almost every state reported increasing Medicaid payment rates for home- and community-based services to recruit and retain workers as part of their strategy to address long-standing workforce challenges, according to a new report from a survey of state officials administrating those programs. Most states also report developing or expanding worker education and training programs and offering incentive payments to recruit or retain workers. All surveyed states reported shortages of care workers and most (43 states)…

  • End of Pandemic-Era Policies in Medicaid Home- and Community-Based Services Could Challenge Family Caregivers and Enrollees

    News Release

    Family caregivers played a key role in supporting people who used Medicaid home- and community-based services (HCBS) during the COVID pandemic. Many states used new pandemic-era authorities to support and pay family caregivers and maintain services in other ways amid workforce shortages and other challenges. Now, several states are ending payments to family caregivers and unwinding other pandemic-era policies, which could complicate ongoing workforce shortages and create new challenges for enrollees, according to survey of…