Disability - Research and Data from KFF

End of Pandemic-Era Policies in Medicaid Home- and Community-Based Services Could Challenge Family Caregivers and Enrollees

Sep 19, 2023

News Release

Family caregivers played a key role in supporting people who used Medicaid home- and community-based services (HCBS) during the COVID pandemic. Many states used new pandemic-era authorities to support and pay family caregivers and maintain services in other ways amid workforce shortages and other challenges. Now, several states are ending payments to family caregivers and unwinding other pandemic-era policies, which could complicate ongoing workforce shortages and create new challenges for enrollees, according to survey of…

Pandemic-Era Changes to Medicaid Home- and Community-Based Services (HCBS): A Closer Look at Family Caregiver Policies

Sep 19, 2023

Issue Brief

Drawing from KFF’s 50-state survey of state Medicaid HCBS officials, conducted between May and August of 2023, this issue brief describes how states used the PHE authorities to strengthen their HCBS programs, changes as the PHE ends, and the role of family caregivers in providing HCBS.

What Share of Nursing Facilities Might Meet Proposed New Requirements for Nursing Staff Hours?

Sep 18, 2023

Issue Brief

This issue brief analyzes the percentage and characteristics of facilities that would meet the rule’s proposed requirements for the minimum number of RN and nurse aide hours to better understand the implications of the rule.

How Many People Use Medicaid Long-Term Services and Supports and How Much Does Medicaid Spend on Those People?

Aug 14, 2023

Issue Brief

KFF examines how many Medicaid enrollees used Long-Term Services and Supports (LTSS) for aging, illness, or disability in 2020, how much Medicaid spent on these enrollees, and policy issues to watch in the coming years.

Ending the Public Health Emergency for Medicaid Home- and Community-Based Services

Apr 19, 2023

Policy Watch

This policy watch explores the potential implications of ending the PHE for Medicaid HCBS programs.

Access Problems And Cost Concerns Of Younger Medicare Beneficiaries Exceeded Those Of Older Beneficiaries In 2019

Apr 3, 2023

Issue Brief

Published in the journal Health Affairs, this analysis compared measures of access to care, cost concerns, and satisfaction with care for beneficiaries younger than age sixty-five versus those ages sixty-five and older, using the 2019 Medicare Current Beneficiary Survey.

More Than Half a Million People in the U.S. Are On Waiting Lists for Medicaid Home- and Community-Based Services, But Waiting Lists Can Both Overstate and Understate Unmet Need

Nov 28, 2022

News Release

About 656,000 people across the country were on state waiting lists for home and community-based services financed through Medicaid waivers in 2021, finds a new KFF analysis. But such waiting lists are an incomplete and often inaccurate measure that can both overstate and understate unmet need. The data about waiting lists are among the latest findings from the 20th KFF survey of state officials administering Medicaid HCBS programs in all 50 states and Washington DC.…

Ongoing Impacts of the Pandemic on Medicaid Home & Community-Based Services (HCBS) Programs: Findings from a 50-State Survey

Nov 28, 2022

Issue Brief

This issue brief presents the latest findings on key state policy choices about Medicaid HCBS in 2022 based on the 20th KFF survey of state officials administering Medicaid HCBS programs in all 50 states and DC. The data were collected from April through September 2022. The survey was sent to each state official responsible for overseeing the administration of HCBS benefits (e.g., home health, personal care, and services for specific populations such as people with…

What is at Stake for Medicaid in Supreme Court Case Health & Hospital Corp v. Talevski?

Oct 28, 2022

Policy Watch

On November 8th, the U.S. Supreme Court is scheduled to hear oral arguments in Health & Hospital Corporation of Marion County (HHC) v. Talevski. The case raises the issue of whether Medicaid beneficiaries can seek relief in federal court when they believe their rights are being violated by state officials, or whether enforcement of state compliance with federal Medicaid rules should be left solely to the federal Centers for Medicare and Medicaid Services (CMS). While…

What are the Implications of Long COVID for Employment and Health Coverage?

Aug 1, 2022

Policy Watch

Long COVID has been described as our “next national health disaster” and the “pandemic after the pandemic,” but we know little about how many people are affected, how long it will last for those affected, and how it could change employment and health coverage landscapes. This policy watch reviews what we know and outlines key questions to watch for regarding employment and coverage outcomes. We continue to follow the research on who is most at…

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