Disability - Research and Data from KFF

KFF Examines New Rule Giving LGBTQ+ People More Protections Against Discrimination in Health Care

May 15, 2024

News Release

A long-awaited new rule recently finalized by the Biden Administration gives LGBTQ+ people more protections against discrimination when seeking health care and coverage from a range of programs and organizations, including Medicaid, Medicare, Health Insurance Marketplaces, many health insurance plans, and most hospitals and providers. The rule has been subject to a wave of litigation across the Obama, Trump, and Biden Administrations and the Biden Administration's new rule reinstates protections eliminated by the Trump Administration.…

KFF/ESPN Survey of 1988 NFL Players Finds the Vast Majority Say Pro Football Left Them With a Range of Serious Health Problems, but Most Would Play Again and Encourage Their Kids To Play

Aug 15, 2025

News Release

KFF and ESPN today jointly released a first-of-its-kind, in-depth polling and reporting project that sheds new light on the health issues and other challenges facing NFL players after they leave the game. The KFF/ESPN Survey of 1988 NFL Players draws on a novel survey of 546 respondents who were among the 1,532 players from the 1988 season. Now, at an average age of 62, large majorities of these former NFL players say pro football was bad…

Medicaid Home Care (HCBS) in 2025

Jan 5, 2026

Issue Brief

This issue brief provides an overview of what Medicaid home care (also known as “home- and community-based services” or HCBS) is, who is covered, and what services were available in 2025.

How do Medicaid Home Care Programs Support Family Caregivers?

Jan 13, 2025

Issue Brief

This issue brief provides new information about family caregivers from KFF’s most recent survey of state Medicaid HCBS programs, including a discussion of paying family caregivers, self-direction, and supports available for family caregivers.

A Look at Waiting Lists for Medicaid Home- and Community-Based Services from 2016 to 2023

Nov 29, 2023

Issue Brief

This data note provides new information about waiting lists from KFF’s most recent survey of state Medicaid HCBS programs, including a discussion of why waiting lists are an incomplete measure of unmet need and why they are not necessarily comparable across states or over time.

States Adopted Changes to Expand Medicaid Eligibility and Streamline Renewal Processes That Will Continue Beyond the Unwinding, Though Challenges Remain

Jun 20, 2024

News Release

The unwinding of pandemic enrollment protections in Medicaid helped accelerate states’ expansion of eligibility for key groups and adoption of policy and system changes to streamline renewal processes for enrollees, according to findings from a new KFF survey of state Medicaid officials. These changes mean that the return to “routine” operations when the unwinding period ends will not be a return to pre-pandemic operations in many states. The survey examined actions states have taken to…

As Recommendations for Isolation End, How Common is Long COVID?

Apr 9, 2024

Issue Brief

This issue brief analyzes the latest data on rates of long COVID, which have appeared to stabilize, affecting about 1 in 10 adults who have had COVID.

The VP Debate May Focus on the “Working Class,” But Will They Discuss Medicaid?

Sep 30, 2024

Quick Take

If Tuesday’s vice presidential debate turns to Medicaid and work requirements, the policy trade-offs will be about working people’s access to Medicaid coverage – not about increasing work.

Analysis Examines Insurance Coverage, Affordability and Access to Home and Community-Based Services for Children with Special Health Care Needs

Oct 4, 2021

News Release

A new KFF analysis examines key characteristics of children with special health care needs, the affordability and adequacy of their health coverage, and the implications for such children of potential new federal Medicaid money to assist families in caring for them. Medicaid is a significant source of coverage for medical, behavioral health, and long-term services and supports for children with special health care needs, including home and community-based services (HCBS) that they need to live…

Recent and Anticipated Actions to Reverse Trump Administration Section 1557 Non-Discrimination Rules

Jun 9, 2021

Issue Brief

The Biden Administration has started taking steps to reverse Trump Administration policy and regulations that significantly narrowed the implementation and administrative enforcement of Section 1557, the Affordable Care Act’s nondiscrimination provision, particularly as the regulations apply to gender identity and sexual orientation. In addition, several lawsuits challenging the regulations, which were initially issued by the Obama Administration and later substantially revised by the Trump Administration, are pending. Section 1557 prohibits discrimination based on race, color,…

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