What Do We Know About People with HIV Who Are Not Engaged in Regular HIV Care?
A new KFF analysis finds that between 2018 and 2020, one-in-five (21%) adults diagnosed with HIV were out of care.
The independent source for health policy research, polling, and news.
KFF’s policy research provides facts and analysis on a wide range of policy issues and public programs.
KFF designs, conducts and analyzes original public opinion and survey research on Americans’ attitudes, knowledge, and experiences with the health care system to help amplify the public’s voice in major national debates.
KFF Health News is a national newsroom that produces in-depth journalism about health issues and is one of the organization’s core operating programs.
A new KFF analysis finds that between 2018 and 2020, one-in-five (21%) adults diagnosed with HIV were out of care.
This analysis uses nationally representative data to assess the characteristics and experiences of people with HIV who are out of regular HIV care. Reaching and engaging people with HIV who are not in care involves addressing the complex and systemic barriers they face, which impede both their health and wellbeing and also the HIV response in the U.S. more broadly.
Use of digital behavioral health services increased during the COVID-19 pandemic when in-person visits were limited. This brief examines how different types of mental health apps are used, how federal policies during the pandemic affected the scope of services they could provide, and key issues to watch.
This brief describes current network adequacy and availability standards for Medicaid managed care plans, presents related findings from KFF’s 22nd annual Medicaid budget survey, and summarizes proposed changes to network adequacy and access rules in the Managed Care NPRM.
Medicaid enrollment increased since the start of the pandemic, primarily due to the continuous enrollment provision.KFF estimates that between 8 million and 24 million people will lose Medicaid coverage during the unwinding of the continuous enrollment provision.The Medicaid continuous enrollment provision stopped “churn” among Medicaid enrollees.States approaches to unwinding the continuous enrollment provision vary.
As states begin to unwind the COVID emergency continuous enrollment provision and resume Medicaid disenrollments, early data from a handful of states – highlighted on KFF’s regularly-updated Medicaid Enrollment and Unwinding Tracker -- reveal wide variation in disenrollment rates.
As the U.S. tries to address rising rates of mental health issues, the impact of the new 988 national crisis hotline and other innovations will be limited if states don’t have the underlying crisis services available when people are directed to them.
KFF surveyed state Medicaid officials about behavioral health policies related to administration, delivery systems, integrated care, and data analytics.
The health care coverage and financing landscape for people with and at risk for HIV in the U.S. is highly fragmented and made up of a patchwork of payers and programs. This table provides an overview of the major payers and programs that provide coverage and services to people with and at risk of HIV.
A KFF survey of Medicaid enrollees largely fielded prior to states resuming their efforts to redetermine Medicaid enrollees’ eligibility reveals many enrollees are unprepared for the renewal process that could result in some losing their coverage either due to eligibility changes or paperwork issues.
© 2026 KFF