Sarah Borscha, age 6, was born with Apert’s syndrome, a rare genetic disorder that disrupts normal bone growth and causes malformations of the skull, face, hands and feet. The medical costs associated with Sarah’s care are enormous. She has already required numerous surgeries, and her needs for special shoes and foot braces, prescription medications, and speech and physical therapy, are ongoing. As she grows, she is likely to need additional operations on her face, mouth and jaw. Medicaid has covered Sarah’s care since birth, ensuring that she has access to the extensive care she needs, despite her family’s very modest income.