Disability - Research and Data from KFF

A Challenge for States: Assuring Timely Access to Optimal Long-Term Services and Supports in the Community

Jan 30, 2011

Issue Brief

The Medicaid program is a major payer for long-term services and supports (LTSS) in the United States, accounting for 40 percent of total spending for long-term services and supports. The federal government has played an active role in sponsoring initiatives to promote a shift to community-based care; and evidence from several states suggests that providing care in the community can be less expensive than providing institutional care. The Affordable Care Act (ACA) provides incentives for…

Analysis Finds End-of-Life Medicare Spending Declines With Age Among Seniors

Jul 14, 2016

News Release

Among beneficiaries who died in 2014, Medicare spent significantly more per person on medical services for seniors in their late sixties and early seventies than on older beneficiaries, according to a new data note from the Kaiser Family Foundation. The analysis comes at a time when physicians can now be reimbursed by Medicare for end-of-life care discussions with their patients. The analysis of Medicare claims data through 2014 finds that among those who died in…

Summary of HHS’s Final Rule on Nondiscrimination in Health Programs and Activities

Jul 14, 2016

Issue Brief

On May 18, 2016, the Department of Health and Human Services (HHS) published a final rule to implement Section 1557 of the Affordable Care Act (ACA), which prohibits discrimination in health coverage and care based on race, color, national origin, age or disability, and, for the first time sex. This Issue Brief provides a technical summary of Section 1557 and the final rule and highlights new protections and provisions included in the law and rule.…

Medicare’s Role for People Under Age 65 with Disabilities

Aug 12, 2016

Issue Brief

This issue brief examines the role of Medicare for people under age 65 with disabilities, including how this group qualifies for Medicare, the characteristics of people under age 65 with disabilities compared to those age 65 or older, and how sources of supplemental coverage and prescription drug coverage, spending and use of services, and access to care differ for Medicare beneficiaries under age 65 with disabilities and older beneficiaries.

People with Disabilities Are At Risk of Losing Medicaid Coverage Without the ACA Expansion

Nov 2, 2020

Issue Brief

This data note presents the latest state-level data about nonelderly Medicaid adults who have disabilities but do not quality for SSI and considers the implications for their continued coverage if the ACA expansion is invalidated by the Court.

Medicaid Restructuring Under the American Health Care Act and Nonelderly Adults with Disabilities

Mar 16, 2017

Issue Brief

This brief describes Medicaid’s role for nearly 7 million nonelderly adults with disabilities living in the community to help inform the debate about the American Health Care Act’s proposals to end enhanced federal funding under the ACA and reduce federal Medicaid funding under a per capita cap.

Who Are the 7 Million Nonelderly Adults with Disabilities in Medicaid and What Would the House GOP Bill to Restructure Medicaid Financing and Repeal the Affordable Care Act Mean for Them?

Mar 16, 2017

News Release

A new brief from the Kaiser Family Foundation explains the role that Medicaid plays for nearly 7 million nonelderly adults with disabilities in the U.S. and explores what the American Health Care Act could mean for their health care and coverage. Medicaid covers more than three in 10 nonelderly adults with disabilities, including people with physical disabilities, such as cerebral palsy, multiple sclerosis, and traumatic brain or spinal cord injuries; intellectual or developmental disabilities such…

State Variation in Medicaid Per Enrollee Spending for Seniors and People with Disabilities

May 1, 2017

Issue Brief

This issue brief explains the variation in Medicaid spending per enrollee for seniors, nonelderly adults with disabilities, and children with disabilities compared to other populations as well as the variation in per enrollee spending for these populations among states. It also provides a snapshot of state choices about optional eligibility pathways and services important to many seniors and people with disabilities.

More Than Half a Million People in the U.S. Are On Waiting Lists for Medicaid Home- and Community-Based Services, But Waiting Lists Can Both Overstate and Understate Unmet Need

Nov 28, 2022

News Release

About 656,000 people across the country were on state waiting lists for home and community-based services financed through Medicaid waivers in 2021, finds a new KFF analysis. But such waiting lists are an incomplete and often inaccurate measure that can both overstate and understate unmet need. The data about waiting lists are among the latest findings from the 20th KFF survey of state officials administering Medicaid HCBS programs in all 50 states and Washington DC.…

Long-Term Services and Supports in the Financial Alignment Demonstrations for Dual Eligible Beneficiaries

Nov 25, 2013

Issue Brief

This issue brief compares the treatment of LTSS in the seven approved capitated financial alignment demonstrations for dual eligible beneficiaries.

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