KFF regularly administers the Medicaid HCBS survey of states about their home- and community-based services programs. The survey is sent to officials administering Medicaid HCBS programs in all 50 states and the District of Columbia. The survey is sent to each state official responsible for overseeing the administration of HCBS programs (including home health, personal care, and waiver services).

Before 2015, KFF and researchers at University of California San Francisco conducted the survey. Starting in 2016, KFF and Watts Health Policy Consulting have conducted the annual survey. Not all years’ surveys are available because the survey was not administered in some years and in other years, KFF replaced earlier reports with the most recent data.