TB Research Community Must Engage Patients, Advocates In Research, Policy Activities

HuffPost: We Need To Science The Shit Out Of Tuberculosis
Madhukar Pai, professor & director of Global Health at McGill University

“…For too long, TB patients and care providers have been fighting a protracted battle with antiquated, inefficient tools … While we wait for new tools, we must scale-up the best tools we already have. … But research is not just product development. … And science is not just about researchers. … [F]or TB research to have an impact, we must engage two stakeholders that have been on the sidelines: The first group is TB researchers and care providers in low- and middle-income countries. … The second group is TB patients and advocates. … [W]e must create space for TB survivors and advocates to speak at scientific conferences and publish in mainstream journals. We must seek their help designing and conducting studies, and empower them to serve on ethics and policy committees. As we have seen with the HIV epidemic, when patients advocate for R&D, they are invariably more powerful and impactful than scientists” (6/7).

The KFF Daily Global Health Policy Report summarized news and information on global health policy from hundreds of sources, from May 2009 through December 2020. All summaries are archived and available via search.

KFF Headquarters: 185 Berry St., Suite 2000, San Francisco, CA 94107 | Phone 650-854-9400
Washington Offices and Barbara Jordan Conference Center: 1330 G Street, NW, Washington, DC 20005 | Phone 202-347-5270

www.kff.org | Email Alerts: kff.org/email | facebook.com/KFF | twitter.com/kff

The independent source for health policy research, polling, and news, KFF is a nonprofit organization based in San Francisco, California.